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For me, it’s always been very hard to just say anything is difficult or that I need help. I don’t have much of a support system. I am a single father raising my son, and I still have to wake up every day show up for life get My Son ready for school help w help with his homework and make sure he has a very fulfilling life. I do work managing life with multiple sclerosis is a challenge but I tell myself if it’s not hard, it’s not worth it that’s been my mentality my whole life. Having MS has humbled me and made me appreciate the beauty in life.

I will try Kesimpta

Great video thank you for posting. I have a morning routine where I rerack every day meaning every day is a brand new fresh start. All the BS/theMS from yesterday's gone. I reviewed in my mind what I'm most happy for and the that includes people that I am closest to, my clients, my doctors, and quite frankly my mindset. There is no doubt, sometimes I am faking it but I will continue to fake it until I feel better. Growing up my mother had Parkinson's, the whole house had Parkinson's. She set a great example of living life to the fullest even with obstacles. FU MS I am going after life. Beating whatever challenges or learning new ways to cope. I should say My MS in comparison to some of my MS friends is very manageable. I pay it forward trying to raise funds and awareness and hope some day there will be a cure for MS. I hope everybody watches this video. SISU

Hi dear doctor، Im iranian woman and live in Iran،I suspect ms one doctor tells me that I have ms and another Says no، could I email you my result to determine if I have ms or not ?

I wonder if you can get the yips for using your mobile hahaha

Are there any news on BTK inhibitors?

I've just have lumber awaiting results 3 weeks after phizer I started having migraine with aura awake seizers then my arm started to get weak couldn't lift much pins and needles then started to go incontinent had all tests found liasions in my brain been diagnosed with rectocele cyctocele and my brain is not communicating with my sacral nerves.teeth started to fall out my vision has got worse kept getting rashes and can't dye my hair now brain fog bad where the liasions are indicates migraine or ms giving my symptoms they think ms so awaiting lumber results for diagnoses

I’m recently in the midst of possible getting diagnosed with MS, 32 years old and your videos have been reassuring snd informative. I was referred to check some of your videos by a neurologist here in San Marcos, CA - Kaiser. I’d love to get more of your perspective on this disease - had some lesions in the spine and one in the brain with optical neuroses but lumbar puncture came back negative, I have full motor function and just once for a period of a week had random numbness in my right leg for seconds at a time, would love to make a appt with you for a 2nd opinion!

Friends, Dear Friends: Just sat here and listened to most of this discussion. ... Problem is: Try as he might.., really sorry, - but the man doesn't have a clue about the Cause or Causes of MS. ...🤔 Rather: There is NOTHING but Talk about { Treatment }. Why?. Because No specific Facility or Agency is Fully in charge of the problem.., if you have not noticed... 🙄 The Rationale: Medical Professionals are educated yes.., but unfortunately, not in Learning Causation, and that is Utterly Sad and very Disappointing... ..🎓🤔 To Me: ..Listening to this man and Others just like him; ... going on, attempting to sound as if they actually had any real answers, but can Cure Nothing..., - but by advocating for Merely the newest drug ' 🤑😵‍💫😜🧐🙈🙉🙊💊💊💊🧪🧪🧪🧪💉💉💉💉💉💊💊💊💉💉💉💊🤑🤓🤑🤑🤑🤑🤥 hit of the latest high from some Big Pharma Drug to Me.., I find the entire affair Disgusting, as it would appear My Curative Approach is actually working at least for Me.. , as I do have some slight Disease decompensation, ....but because I know these ass clowns Will Let You Decompensate and only ' Treat Symptoms ..., I took action early, and I may not get worse now. I am up, no cane, walked outside to get the morning mail, and am chewing on a small handful of Chinona Bark, while taking Two; sometimes Three or Four Tinctures of Liquid Stevia, then Black Walnut, then Wormwood, then Liquid Cloves, and leaving the Chinoa Bark softening in my mouth til I masticate it and swallow. Plus, Whal's Protocol for Two Weeks then a cheat day then back on it, is really helping. Plus no MS medications since my 2016 diagnosis. I Hope this helps. Have a better day, MDM, A.A., A.S., B.A. MOD, JD Candidate and Former Program Chapter Manager, NMSS, Central California, 1997-1998.✌️❤❤❤

Ty for posting this- i actually co created a global online support group for MS’rs 8 years and going strong 💪🏻- support is crucial- the feeling that only those who “ get IT- got IT” Love the Osmonds. Ty for his.

Wonderful interview 🙏🏻

absolutely yes to HSCT it even pays for itself in 1.5 yrs. It should be covered - and offered within the first years of diagnosis. About 75% success!

Thank you for the video on David Osmond Dr Brandon, I have heard in the past that he has MS but didn't know his father had it also. Judging by everything you covered David seems to have a great attitude and outlook on life which is really needed when you're dealing with this disease

Great video Dr. B. I share his Dr. Seuss philosophy, but my RRMS is also fairly mild in comparison to others so it's easier for me to be more positive. It's a common mantra in my family to say "well what can you do" when you get bad news and I've lived that through the years. Make the best of a crappy situation because most of life is out of our control and attitude changes the perspective of every situation. Our realities are often subjective.

Ive been following OMS since diagnosis, over 15 years but still getting worse and quite disabled... Looking for an alternative and now going high fat, low carb carnivore 🤞🏼

Thank you for this story. I always look forward to your videos to learn something new. Learning is my favorite.

Dr. Beaber, my MS doctor said the subtypes of MS definitions will be abolished by the end of this year. Can you talk about this?

I believe my MS was triggered by the 76 swine flu vaccine and then mononucleosis right on top of my swine flu vaccine!

I was diagnosed 1/2021 after the ER staff insisting it was COVID. They performed a lumbar tap on me and found the increased proteins and admitted me. Early the next morning they found the lesions. They started me on 14mg Aubagio and then they switched me to Kesimpta. I didn’t feel wonderful after the first loading dose but ever since then I feel fine, I don’t get crap gap. I’ve been on Kesimpta for over a year and my latest maintenance MRI shows stability. So I’m definitely counting it as a win. Just got to deal with the dang fatigue 🙄

Doc, I'm just about to start a strict keto-vore diet regime. I don't have any weight to lise but i do want to get stronger, healthier and hopefully keep my disease progress in check. Can you present some research findings about the effectiveness of this diet in MS patients? Does any exist? I've heard anecdotally, so I've decided to try it.

Such a great video, thank you for sharing this 👍🏼

I was asked to write a book by my neurosurgeon and others it was totally bizarre and how many doctors that don’t have time to listen to their patient and how one can end up in a psychiatric ward literally dying of two neurological disorders. It was total abusive and how your doctor can throw their patient under the bus so quickly. My journey was long painful I was even told I had deadly disorder of multiple myeloma to pheochromocytoma to other diseases I never heard of and get my life in order I had only few weeks to live and my doctor did tests but left for Christmas vacation with no way to get the tests for another month it was not good ! I can’t believe that I had a brain tumor that wasn’t visible on my MRI that was treating my multiple sclerosis that nobody told me if I had that disease because you can’t really diagnose multiple sclerosis without taking piece of your brain send it to a lab which is totally not possible . I survived this ordeal by leaving this psychiatric unit against the best of west neurologist very poor examination of my neurological bizarre Symptoms totally ignoring things of central pure sleep apnea was awake for several years I stopped breathing when my body wanted to go to deep sleep but my brain wasn’t taking over my deep sleep so I would jump to my feet suddenly confused the episodes were so numerous in such short time period they didn’t know what I had going on . What was really crazy is when two pulmonologist wanted to remove my uvula and perform a tracheotomy put me on ventilator I said to them this central apnea came suddenly couldn’t it resolve itself they said yes but I needed to have this surgery now because I had 4 chamber heart enlargement and I could die if I didn’t allow them to do this drastic surgery, I told them no they then I was a threat to my own wellbeing and they decided that my refusal of drastic surgery was like suicide gesture. I then asked these surgeons can they put my uvula and my trachea back to normal if they find the real cause or this resolves itself they said well no they can’t. I then said well I wonder who is the threat to my well-being then ! Thank God I didn’t allow these surgeons take out my uvula and perform tracheotomy I did find the what I really had it was a rare brain tumor that was also treating my multiple sclerosis when tumor was removed the multiple sclerosis really started to occur my neurosurgeons had never seen that occur inside one person. My cortisol levels not one neurologist bothered to perform tilt table or my cortisol levels not would they do simple chest X-rays for my severe rib pain and painful breathing they just brushed it off as pleurisy and cervical neck problems for over a year I was wrapping my chest with ace wraps and work back belts to even control the pain . Finally a country on call physician got chest X-ray he literally called me from his car while he was going home he asked me what I was doing and to stop suddenly and don’t move he got the radiologist report that showed I had 13 fractured ribs all along my spine on both sides and he asked me how long I had rib pains if wax over a year he couldn’t believe that I had not had punctured my lungs by these fractures he said whatever you have been doing keep doing this wrapping my chest .Then they did cortisol levels mine was highest from 1800 to 2000 levels this was causing my bones to fracture under my own body weight including my cervical neck with spinal cord compression happening. What was so disturbing is how many of these well known neurologists totally blind not to get the proper exams and test’s instead tell the patient it’s all psychological or all psychosomatic and then nudge you in your ribs that has been bothering you for last year ? This really happened I left on my own against their medical advice oh that wax best thing I ever did I wasn’t about to die on a psychiatric unit of neurological disorder . They did shut down their psychiatric unit because what happened to myself.I understand these physicians have been trying to manage these bad short patient exams or interviews with new patients. It’s difficult now to get any good neurologists they are leaving their practices and purging these doctors!

Thanks for sharing this motivational story,as a patient of PPMS,I. really feel very depressed sometimes.Dr,Iam still waiting for the answer of my question " Retuximab or ocrelizumab which one is better for PPMS

I really like that Dr. Seuss quote. I am better off than most people I know with MS.

I am single with no children and RRMS. I had for since 1998. I am still ambulatory and work ft. Unlike the Osmonds and many others I don't have a support system. The challenges have been primarily mental health and financial management.

I went to a David Osmond outdoor concert when he first had his multiple sclerosis symptoms he was with his sister Marie Osmond and they publicly announced why he was absent from his singing I oddly myself was having my first serious onset of multiple sclerosis at same time as David Osmond and now again relapsed it’s not good now feels like my body is being sliced up by razor blades it’s so painful you almost think something is worse going on ! I put on the best attitude possible especially out in public because I know I had much worse things that happened to me having a rare deadly brain tumor that so happens was treating my underlying multiple sclerosis and had multiple broken bones including my cervical neck with paralysis and went totally blind twice already but I did with Gods help overcome these things all at one time now I just had a recent relapse don’t know what will be the plan to tackle this situation because my neurologist all have left their practices . Takes time to find another multiple sclerosis neurologist . That’s another sad thing it’s been a very very long waiting game as it was when I had brain tumor they couldn’t see on my MRI scans I was at deaths door by the time someone took this unseen brain tumor I knew I had more seriously. With one good doctor finally listened to what I knew I had he took it very seriously and got the neurosurgeons I needed to find this tumor that had herniated downward toward my brain stem . They found this tumor by a brain blood sample sent to a well known hospital that confirmed my suspicions. Two neurosurgeons wax needed to do 13 hours of brain surgery. So I understand miracles do happen and my creator didn’t let me down it was he that showed me it was a brain tumor that these modern MRI scans couldn’t detect this type of tumor. Besides why not have a good attitude around others for they don’t know the horrible painful disease this can cause and you can’t let your discomfort be placed onto fhem. Public doesn’t know how much pain fatigue your having and you can’t have a rotten attitude towards public because your hurting and falling and two thousand body parts pain or mobility issues and the ridiculous time time it takes to just do simple tasks in your house and you live alone with a rescue doggie that needs to rescue me about now . Seriously maybe that new doggie keeps me moving physically ! That’s my long short story ! Thank you for your recent video stream ! Strange I was once a supporter of MS and walked long hard 21 walk for multiple sclerosis who would think I would develop multiple sclerosis about same age as Osmond but I had childhood weird symptoms sleeping hand or foot or tripping while jogging long distances heat intolerance especially in showers warm showers over one’s back would have such weird symptoms.

Very interesting, especially for a girl who grew up in America in the'70's. Was nice to hear someone who speaks simply and down to earth, in his own words. Long live Dr. Seuss.

how you contact you doctor. it's urgent. i have a problem with my diagnosis about ms i need yo contact you please . am medical doctor general surgeon . thanks you in advance.

Will it help inflammation. ?

You are not to synical, we have only known about ms since 1836. Even after first describin MS, up untill 1971 we did not have a good way of diagnosing or displaying it pre death. Up until 1993 there were not a lot of good treatments for MS (if any). The understanding of and treatment of MS is still evolving. While some new ideas may not pan out they are still helpful in so much as they can guide us to were we ought to go. Perhaps feeding all of our data into a robust AI will provide us with a new and safer treatment, and eventually a cure.

Thank you for this, I was struggling to find a flowing information about Tyruko. I’ve been on Tysabri for 15 years, only having relapsed 2/3 times. My hospital here in the UK had informed us that the change was coming, they gave us no notice and so we’ve all been trying to find information. Your video is very informative and I thank you for it! I have asked to continue on Tysabri for further two months, I’ve asked that because I am treated between two jurisdictions, the United Kingdom and Italy and obviously, the medicines have to match, I’m quite sure you can’t mix and match. 🥴 So I’ll be starting Tyruko in September, I feel a lot more confident about it having seen your video. 🙏

Do you by chance have a video on anything to do with recovery from b12 deficiency? I’m currently going through weekly injections after years of chasing for a test. Finally was discovered that I had “no registering reading for a level” I was so low. I’ve been dealing with severe mental health issues and was diagnosed and medicated for them in that time. I’m now struggling with the flood of ups and downs during the process of “waking up” and I don’t know what to expect, what’s normal, or what I should see as possible red flags to let my doctor know about. I’ve had head injuries and also diagnosed PCOS so feel very disconnected from the body I’ve been trapped in for quite some time now.

So glad you’re speaking about invisible symptoms. People don’t believe what they don’t see.

I been diagnosed with Ms. I went blind In my left eye . A drop foot unstable walking , in pain for for over 14 years , Brain lesions, shaking and trembling . To most people I look normal . I know how to hide my paintlhead achesthat last for c months at a time . But the xan give a thousand dollars a month to illigals .and only 600.00 to sone applicants. I cant hold My shit.

Would like to hear a video on our thoughts of Foralumab. I will be listening to your book.

Good morning doctor, I'm starting the tyruko today. Can you explain to me in a few words the difference between tysabry and tyruko? I don't understand much English. I understand Italian.

I am taking it 10 years now and expect the flushing I don’t really have other side effects. I fell great and everything is ok. But now we want to try to have a baby and I have to stop it and I am kind of scared 😥

Woke. They are either woke or paid off by Big Pharma

What magnetic field are these scans? Would a higher field 7T give you a better diagnosis? I have seen a Siemens 7T promotion video diagnosing a lesion on a girl who keeps getting seizures before going into the 7T mri. The high field mri detected a lesion in her brain and operated and she is now living seizure free.

2:35 it’s so Kurzgesagt ! 😂

Thanjs

​ @DrBrandonBeaber , could you ellaborate more on what you meant by, "By the way, secondary progressive MS and disability is more correlated with absolute age (time since birth) than duration of disease." Are you saying that someone who starts MS young (like a teen) doesn't necessarily have the same transition to SPMS like after 20 years (when age is mid to late 30s) but would likely see it later in life, let's say, in the 50s?

MS Sucks overall.

What if your eyeball points in another direction than the other

I had this treatment a couple months ago. I now can’t taste my coffee. I won’t do this treatment again. 20 year MS patient. Never conventional treated before. I am going to try the Tao Patch. Thanks for your videos, Dr.

how bout a cure? and if there is in fact no cure why are there so many videos on "exercises for foot drop"??

Aren’t we any closer to finding the real reason behind all these debilitating AIDs yet? This is really sad. Millions of patients are suffering.

I'm just now seeing this video, as recently, it's been suspected that I am progressing. My best friend was in a study for Ocrevus, and by the time they found her breast cancer, she was already at stage 4. She fought for 5 years, and ultimately succumbed early last year. She had no family history of breast cancer. My neuro's APRN discussed this as an option for me, and at first, I was against it. But then she reminded me that pretty much all disease modifiers for MS slightly increase your risk for cancer. Plus, one in 8 women will get breast cancer anyway. So I'm a little less scared of trying it.

Thanks a lot. My question is, how do they get an improvement of symptoms when the nerve damage had already occurred?

Went off Tysabri started mavenclad. Severe nerve pain and worsening symptoms. I feel like I'm dying