Multiple Sclerosis and Diet. My Patients' Stories

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  • čas přidán 14. 11. 2023
  • In this casual video, I tell stories about some of my patients with MS and the diets they have attempted, be it a paleo, keto, or vegan diet. Are certain diets linked to better results?
    Comment or ask questions below! I would be happy to answer!
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    Make video requests in the comments section!
    Check out my book “Resilience in the Face of Multiple Sclerosis” FREE on Amazon: amazon.com/dp/B07WP7H5LK It's about 5 people with MS who live incredible lives, the science and psychology of resilience, mindfulness, and ho’oponopono. Paperback priced to generate $0 royalty.
    Dr. Brandon Beaber is a board-certified neurologist with subspecialty training in multiple sclerosis and other immunological diseases of the nervous system. He is a partner in the Southern California Permanente Medical Group and practices in Downey, California (South Los Angeles). He has several publications on MS epidemiology and has participated in clinical trials for MS therapeutics. You can follow him on twitter @Brandon_Beaber where he regularly posts about MS news and research.
    Follow me on twitter: / brandon_beaber
    Music: INNER GRACE - Copyright 2018 Wilton Vought Source: Really Really Free Music Link: • Video T
    he video material by Dr. Brandon Beaber is general educational material on health conditions and is not intended to be used by viewers to diagnose or treat any individual's medical condition. Specifically, this material is not a substitute for individualized diagnostic and treatment advice by a qualified medical/health practitioner, licensed in your jurisdiction, who has access to the relevant information available from diagnostic testing, medical interviews, and a physical examination. To the extent that Dr. Beaber endorses any lifestyle change, behavioral intervention, or supplements, the viewer should consult with a qualified healthcare professional to determine the safety and efficacy of the intervention in light of their individualized information.
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Komentáře • 107

  • @fpan2774
    @fpan2774 Před 6 měsíci +9

    I did keto diet for one year and after that eating only low carb.No spasticity anymore and over all feeling much better now than before.Greetings from Germany 😊🍀

  • @JulianX3__
    @JulianX3__ Před 6 měsíci +13

    I was diagonosed 6 years ago, at age 27. I'm now 34 and diet and exercise are the key to beating MS. Trust me, its the #1 thing all people with ms need to realize with MS is, you cant be lazy! Western medicine isn't going to help you. Dont give up! Research everyday on how to fix yourself and dont rely on anyone else. Read books, get educated, cut out carbs, start fasting everyday, get plenty of sunlight and exercise, fight inflamation, no processed foods, no chemicals, and most importantly, never give up and think its going to go away.

    • @kurtaytoros1625
      @kurtaytoros1625 Před 4 měsíci

      Could you please tell me what you are saying?

    • @kurtaytoros1625
      @kurtaytoros1625 Před 4 měsíci

      Eating*

    • @JulianX3__
      @JulianX3__ Před 4 měsíci +2

      @@kurtaytoros1625 zero processed foods. No sugar.

    • @mimiwhite1963
      @mimiwhite1963 Před 4 měsíci

      I totally agree with you. I am a huge believer in Overcoming MS protocol.

  • @beastywild
    @beastywild Před 6 měsíci +14

    31 year old here in Ireland, diagnosed when I was 29 but had first relapse at 19. Doing very well on gilenya and fully clean diet (no red meat, gluten, processed foods, dairy or sugar) since I wad diagnosed. I play football and would nearly go as far to say that my sports performance has improved since my diagnosis and diet started. I kept my diagnosis secret from my team mates and I think if I told them I had MS their jaws would drop, I also work full time as an engineer. Worth noting my mother had secondary progressive MS and is in a vegetative state.

    • @mary-vy3mo
      @mary-vy3mo Před 6 měsíci

      you are only doing well because you are
      still rrms...from age 40-50 is when people become spms...Get hsct so yoi never become spms.
      Diet and DMT are jokes they do not stop spms..avoid your poor mothers fate and get hsct

    • @eight-ball3625
      @eight-ball3625 Před 6 měsíci

      Why not red meat? Dairy?

    • @huggy15
      @huggy15 Před 4 měsíci +1

      Hi Im waiting to be seen by a neurologist in Sligo as I had an MRI done and lesions were found. It was an incidental finding. The HSE waiting times are a joke though and I've been waiting now a few months. Did you have to wait long to be seen? I'm also a bit worried about my future with regards working and disability as I've only recently bought a house and have a small child. I'm going to look into changing my diet also. Are there any books you'd recommend? Thanks

    • @debraindxb
      @debraindxb Před 23 dny

      @@huggy15 I hope you found some answers. By the way, I have a friend who had an MRI because of a neck injury and that is when she was told she had MS. She never had any symptoms before or after the MRI (which found several lesions) so it makes you wonder how many ppl have mild MS that would never be discovered if it weren't for incidental imaging.

    • @huggy15
      @huggy15 Před 17 dny

      @@debraindxb I've seen a neurologist. She done a physical examination and sent me for lumbar puncture which I'm still waiting the results on. She's said that she thinks it may be a radiologically isolated syndrome as I'm showing no signs of physical impairment and I've not had any "attacks". Fingers crossed this is the case and it doesn't progress on to be MS

  • @gldiego
    @gldiego Před 6 měsíci +7

    Doctor, it's been 6 months since my RR diagnosis, and it's been 2 months since my last Mavenclad dose due to the number of lesions in the brain and spinal cord. My blood tests are OK, I have also lost 10 kg, I walk 10 km daily, and I do strength exercises 3 times a week. I've eliminated processed foods and sugars, taking care of my diet. My body tells me I'm doing the right thing. Thanks for the video. Greetings from Argentina.

    • @DrBrandonBeaber
      @DrBrandonBeaber  Před 6 měsíci +2

      Thanks for sharing. Is MS well-known in Argentina or is it considered a rare disease?

    • @user-ig3kn2ly2x
      @user-ig3kn2ly2x Před 3 měsíci

      !!? How in the Hell did you get Mavenclad so quickly?? I was diagnosed back in 2016, and Nobody did Jack shit for me. Even now...., Yes one primary care doctor made a few neurologist referrals, but again, I can tell from that EDSS Scale comment, that I'm slipping faster than I realized, but because I'm poor, I suppose Poverty and MS make strange bedfellows, sigh......😒

    • @gldiego
      @gldiego Před 3 měsíci +1

      Hello, yes, mine was very fast. I don't know where you are from but in my case the Argentine health system was excellent, I hope to have the same luck with my next treatment cycle. I hope better. Greetings.

  • @forkums
    @forkums Před 6 měsíci +4

    Gluten, free, dairy, free and other than Chips, I do stay away processed food. lots of vegetables Lots of spinach and kale. lots of fruit chicken fish and Turkey.I have had to work hard to keep weight on. Overall, I feel good. I am on Ocrevus this and feel that my MS is controlled. I AM 59 was diagnosed at 57. Brain neck and spine lesions so it had potential to be bad. I made this dietary change almost immediately after being diagnosed. So it is difficult for me to say whether this help my MS or not. just thankful that I feel decent. just finishing up a one mile walk. Thank you for your video. They are always insightful.

    • @DrBrandonBeaber
      @DrBrandonBeaber  Před 6 měsíci

      I like the caveat, "other than chips." :) I suppose everyone has their vice.

  • @stonz42
    @stonz42 Před 6 měsíci +7

    Thanks for posting a diet video. I got very interested in nutrition and fitness when I began college. I started eliminating all processed foods and sugar and began running with my roommate. I was in the best shape of my life running 5 and 10k races during freshman year. However, the following year I had my first MS attack at age 19 after my left arm went almost completely dead while eating cereal one morning. I also had a lot of unnatural fatigue leading up to that point and never fully returned to that fitness level thereafter. Fast forward to age 35 and I was diagnosed with MS after losing significant vision in my right eye. That was almost 3 years ago and I’ve been following a similar diet since age 18. Although, since my diagnosis, I’m now more strict at avoiding inflammatory omega 6 oils and dairy, but my diary consumption was always low since I hate drinking milk. My dairy intake now is mostly from the occasional slice of cheese or ice cream. Overall, I’d say I follow a Mediterranean style diet low in dairy and my disability remains extremely low. I’ve also added high dose vitamin D, fish oil, and a probiotic at my doctor’s orders, but I’ve been taking a daily multivitamin since my mid teens. However, my MS seemed to be mild from the onset but I believe my diet and active lifestyle kept me healthier all this time.

  • @maryanngames9353
    @maryanngames9353 Před 6 měsíci +2

    Diagnosed at age 44 will be 80 in three months. In 1988 was diagnosed with RR now SP. I can’t stand or walk but with exercise I am able to transfer well, and I am very happy about that.
    We, my husband and I eat a no sugar, next to no flour diet almost no dairy. Feeling well despite the MS grumbling now and then, I feel good.

  • @__Wanderer
    @__Wanderer Před 6 měsíci +9

    Interesting how the MS flared up for the gentleman who was losing weight (around minute 11). From my understanding fat / adipose can also store toxins, and quite large amounts. If he was losing weight perhaps his body was slowly being flooded by the accumulated toxins, causing inflammation and a relapse. I notice that toxins is sometimes ascribed to the list of MS triggers / potential causes. I also wonder if toxins/ pollutants are generally causing the younger generations now to develop more autoimmune disease as they are so pervasive. I know many of my friends with some form of autoimmune issue. Chemicals on food, in our water, in plastic containers, air quality etc has all become much worse over the last 50 years. I looked up a list of the "trace chemicals" found in the netherlands and it is shocking... a clean modern country but has hundreds of trace chemicals, likely the same the world over if not worse.

    • @DrBrandonBeaber
      @DrBrandonBeaber  Před 6 měsíci +2

      It would be difficult to attribute the rise in MS solely to industrialization because MS remains rare in places like China and Ecuador. It could certainly be a factor. In general, there is no evidence that MS relapses are triggered by weight loss.

    • @__Wanderer
      @__Wanderer Před 6 měsíci +3

      @@DrBrandonBeaber very true! Definitely seems to be a genetic predisposition necessary. Would be interesting to see if they can really pinpoint the cause over the coming decade (EBV/toxin exposure/viruses/lifestyle etc). Found one interesting paper on the topic of weight loss & MS although only a case study/ not really gold standard evidence. Title "The first attack of multiple sclerosis presented immediately after voluntary and intensive weight loss: A case series". It seems it may not be toxins but another mechanism during weight loss that triggers it perhaps - more research needed i think :)

    • @__Wanderer
      @__Wanderer Před 6 měsíci

      ​@@DrBrandonBeaber Thank you for the very interesting video Dr. Brandon :) Always enjoy your content!

  • @marybethcully5883
    @marybethcully5883 Před měsícem

    Thank you…I maintain a healthy diet, lots of fruits, colorful vegetables and very little processed foods. I am not vegetarian but I don’t eat red meat and I do follow an intermittent fasting style of eating with usually one meal a day and simple snacks. My snacks are probably the weakest part of my diet as I enjoy an ice cream sandwich or dark pretzels. I wish I could say this is because I am a disciplined eater but in reality it is simply how i eat. I exercise every day, yoga, ms gym and MSing link, I play golf 2 or three times a week. I was diagnosed in 1993, and now have some gait issues and use a rollator to walk outside. I am on Aubagio, as I didn’t tolerate Ocrevus (sadly) and at this stage inflammation rather than progression is the biggest hurdle. I think my lifestyle does contribute to my overall health, but I also appreciate that you pointed out that it’s anecdotal . Takes some of guilt away for any progression. I feel lucky that I am doing as well as i am and I have an excellent support system both personally and medically so I think all those things help too. I look forward to seeing your research results…perhaps it will give us another tool in our toolbox!😊

  • @EvenSoItIsWell
    @EvenSoItIsWell Před 6 měsíci +11

    Thanks so much Dr. Beaber. You are so right, eating a healthier diet definitely helps with fatigue, cog fog and vitality. As you know, in addition to my DMT I follow a whole food plant based diet but I also exercise regularly, try to get good sleep, practice mindfulness and take supplements under the guidance of my neurologist and naturopathic doctor. All of these are important to my health and wellbeing. 🙂 I am excited to see the results of you study with Dr. Jelinek. When will it be concluded?

    • @DrBrandonBeaber
      @DrBrandonBeaber  Před 6 měsíci +1

      Out of curiosity Vickie, what supplements do you take? Unfortunately, it will take a long time to complete the epidemiologic study. Once I gather all the data, I can blame the slow progress on the University of Melbourne.

    • @EvenSoItIsWell
      @EvenSoItIsWell Před 6 měsíci

      @@DrBrandonBeaber I am currently taking D3, K2, B12, Pregnenolone, Turmeric, and Omega 3s.

    • @valentinpopescu1156
      @valentinpopescu1156 Před 6 měsíci +1

      ​@@DrBrandonBeaber as an aside, Prof. Giovannoni (kind of) advocates α-lipoic acid. although he mentions the case is pretty vague/unclear and a lot of studies have to be done before a firm recommendation. (however, I think this puzzle would be a bit less opaque if you agree to share your opinion regarding ALA.)

    • @DrBrandonBeaber
      @DrBrandonBeaber  Před 6 měsíci

      @@valentinpopescu1156 I am not aware of specific benefit as a disease modifying therapy, but it has been used as a treatment of neuropathic pain in people with diabetic neuropathy.

    • @fionablack1227
      @fionablack1227 Před 6 měsíci +1

      NIH report from last year I think.
      We comprehensively summarized the current findings of LA regarding pharmacokinetics, efficacy, safety, and mechanisms in MS while critically proposing deficiencies and improvements for future studies. Overall, LA exerted positive neuroprotective effects by antioxidation and immunomodulation in both in vitro and in vivo experiments. LA decreased the clinical disability scores in EAE mice and halted the worsening of EDSS scores without any serious AEs in MS patients. Notably, R‐LA showed better bioavailability and gastrointestinal tolerance than the same dosage of the racemic form. Because demyelination, oxidative stress, and autoimmunity are typical features of MS, using LA as a dietary supplement or in combination therapy is a hopeful and safe strategy in future. The limitations of this study are that a certain form of LA is not always reported. Although we tried to contact the authors by e‐mail, only one replied to us patiently. Second, the outcomes of mouse experiments may not be generalizable to patients because of the injection administration. Finally, and inevitably, the evidence might be incomplete because of the subjectivity of search terms and combinations.
      To date, the achievements of LA supplementation are exciting, but the evidence is not sufficiently strong, being limited primarily by the short trial duration and insufficient study quantity. Thus, multicenter and long‐term controlled studies are encouraged to determine the strength of LA orally, an appropriate dose for long‐term usage, and the most suitable combination therapy. As our understanding of the role of LA improves, we hope to uncover the best treatment regimens for MS patients.

  • @colleensmith3374
    @colleensmith3374 Před 6 měsíci

    Thank Dr Beaber & Happy Thanksgiving to you & family ~ grateful for you

  • @judehall2220
    @judehall2220 Před 6 měsíci +3

    Thank you for this! I am 74 years old, female, and was diagnosed with PPMS 3 years ago. I have led an active life and been very healthy eating a vegetarian and plant based diet since age 17. Ocrevus is the DMT that I am taking. There have been no side effects or infections, and I continue to be mobile with the exception of wearing an AFO brace when I go shopping. My left leg becomes weak and unsteady after 30 minutes of walking. I haven’t needed any medications throughout my life, not even aspirin. My blood pressure, cholesterol, etc are all good, and I continue to be active by hiking, biking, and weight lifting. I’m of Norwegian descent, and I have lived in a northern climate my entire life.

    • @DrBrandonBeaber
      @DrBrandonBeaber  Před 6 měsíci +1

      Thanks for sharing. I'm glad you are doing well.

  • @grinch4567
    @grinch4567 Před 2 měsíci

    I’m doing a modified version of the OMS diet. I include chicken, turkey, and seafood. I include free range (not the indoor type!!) for iodine to help remyelination and I have substituted fish oil capsules for flax seeds for omega 3 as they are far higher in the active ingredients.
    Also I have weekly hyperbaric oxygen - I would appreciate a video on that, please.
    I’ve been following this regime for 4 years and am improving slowly.
    Currently looking at introducing liver for the choline, too 🙂
    Another video I would appreciate would be on the part cholesterol and triglycerides etc play in MS.
    Thank you again for uploading the videos, always much appreciated 👍🙂

  • @roberture5903
    @roberture5903 Před 6 měsíci +1

    Thank you for an excellent video this morning Dr Brandon.

  • @gamergabrielbygabrielrange5573

    Thank you doc for the video and always a pleasure to sit with you and go over my concerns. Richard Rangel 💪

  • @josephvered3991
    @josephvered3991 Před 6 měsíci

    Hi from Israel it is so interesting to see how changes in life style may give hope thanks dear doctor

  • @ML-ds8sb
    @ML-ds8sb Před 6 měsíci +2

    Thanks again Dr. Beaber!
    I'm following the OMS program as well and I definitely see the difference if I don't manage to eat super compliant - I have lower energy levels, that's really noticeable. But I'm on Tysabri too. I do have a stable MRI for 3ys now.

  • @JollyRogerCBGs
    @JollyRogerCBGs Před 6 měsíci +2

    I seem to do well with the Keto Diet, it initially cleared up a lot of symptoms for me. I even did the Carnivore diet for 9 months, and felt my symptoms went almost completely away, but it was an extreme diet. I now eat a well rounded diet that is high in animal based protein, but I do eat my veggies and fruit. As long as I dont eat too much sugar, exercise nearly every day (a lot!), and maintain a good sleep schedule, I can keep my symptoms extremely manageable. I was also on Tysabri the entire time through all of my diet experiments!

  • @abrahamcluxton4881
    @abrahamcluxton4881 Před 6 měsíci +2

    I'm 36 year old male. Diagnosed 1.5 years ago with a significant lesion load, but little disability thank God. I started a keto diet right away with little success and have switched to a Carnivore diet 5 weeks ago. I like the carno diet a lot. It's very simple and powerfully anti inflammatory. My fatigue is now managable

    • @DrBrandonBeaber
      @DrBrandonBeaber  Před 6 měsíci

      Thanks for sharing. What do you typically eat in a day on the carnivore diet?

    • @abrahamcluxton4881
      @abrahamcluxton4881 Před 6 měsíci

      @@DrBrandonBeaber I usually fast in the morning until 1pm. Then eat a pound of ground beef with salt and butter, then for dinner I will have a cut of steak or more ground beef. That's a typical day. But I will also eat eggs, sausage and bacon to mix it up a little.

  • @mohsens9166
    @mohsens9166 Před 6 měsíci +1

    please more videos about nutrition, thanks

    • @DrBrandonBeaber
      @DrBrandonBeaber  Před 6 měsíci

      You may appreciate this playlist on nutrition and multiple sclerosis (25 videos!): czcams.com/video/Cey5muWJBs0/video.html

  • @mslifeamongtheclouds4110
    @mslifeamongtheclouds4110 Před 6 měsíci

    I find this a very interesting topic. I take Kesimpta, but if I can get extra DMT-like benefits from lifestyle decisions, I'm keen to make those changes too. I'm not yet satisfied that Paleo / Keto can alter disease course - there just hasn't been enough research yet to make these determinations. However, the anecdotal accounts of people faring much better on these diets is compelling. I'm currently a participant in Dr. Wahls' latest study in the hopes of getting better data to inform my lifestyle decisions.

  • @belmakanlic1113
    @belmakanlic1113 Před 6 měsíci +2

    Dear dr Beaber, thank you for the informative video. I've officially had MS since 2018, but had first relapse in 2011. I was doing great, my EDSS was 1, until I had covid and pneumonia in Feb 2022, which lasted 2 months before I was finally well. After the pneumonia, my MS started going downhill, my walk deteroriated, I lost overall strength, my balance is not ok (I often look as if I am drunk), my bladder is crazy (urgency and retention)... And the crazy thing is I have no new spots on MRI at all.
    I started with dr Wahls diet in Dec 2022, and I really felt benefits - I lost 14 kg, I had more energy, I wasn't tired all the time, even my walk improved. However, since April 2023, things started to go downhill again... Now my walk is worse than ever before, and people who don't know I have MS ask me if I injured my leg. I'm gonna try with Wahls Keto, that is one desperate attempt to do something... I exercise 3x a week (strength training), I am on Ocrevus since 2019, I don't smoke or drink, I am now of healthy weight, I honestly don't know what to do anymore...

    • @AD-rn5hh
      @AD-rn5hh Před 6 měsíci +1

      Hope wahls keto will work out for you. Before trying wahls diet in December 2022, did you eat dairy or gluten?

    • @belmakanlic1113
      @belmakanlic1113 Před 6 měsíci +1

      @@AD-rn5hh Thanks! My diet was horrible prior to Dec 2022. I ate gluten and dairly, but with a lot of sugar and carbs. I would deal with all my problems (work, family, MS) with sugar - chocolate mainly. Pandemic was very stressful for me, my daughter was severly sick, so instead of going to shrink and dealing with this anxiety, I would drown myself in chocolate... And of course I was tired and cranky all the time, Cutting out sugar was the best decision I ever made for my health!

    • @AD-rn5hh
      @AD-rn5hh Před 6 měsíci

      @@belmakanlic1113good to read! Apart from diet and your good medication, I believe good sleep, exercise, meditation, sunlight exposure and omega 3s seem to help. Have a good day!

  • @DrMattiLabbratt
    @DrMattiLabbratt Před 3 měsíci +1

    Thank You Doctor. I’m on Kesimpta for RMS started July 23. I also have pernicious anaemia, uveitis, psoriatic arthritis (intermittent, fingers only without Psoriasis) and Asthma.
    Is it likely that my Kesimpta will help all my other conditions?
    I have had no instances of Uveitis, PsA, or MS since starting the med btw 🙂x

    • @DrBrandonBeaber
      @DrBrandonBeaber  Před 3 měsíci +1

      Take a look at the chart at 11:05 in this video which shows the use of anti CD20 drugs such as kesimpta in other autoimmune diseases.

  • @aaishanaim2825
    @aaishanaim2825 Před 5 měsíci

    I have 2 autoimmunes...
    Hyperthyrodism & MS. Hence fighting on two fronts. 😊
    I stopped taking Thyroxine for thyroid recently due to frequent weight loss, and hand tremors that started few months back. Started gaining weight, hand tremors are gone but facing a challenge in increasing it (weight) because MS is also playing its part. Difficulty in walking, or standing from a chair, or standing for a long time.
    My message to hyperthyrodism and MS is that I am not giving up. 😊

  • @kevineeverhart7869
    @kevineeverhart7869 Před 6 měsíci

    As a health care provider, a discussion from your perspective of medicare & ms would be useful.
    Ive had a pretty good aca plan for a number of years and have has access to decent MS treatment -- but i am worried about moving to Medicare in a few years. Should i be?

  • @brianguppy
    @brianguppy Před 6 měsíci +2

    Am I the only one who is worried by some of the very restrictive diets being recommended (on the basis of pretty scant evidence) for MS? I'm very concerned that eating disorders are going to become a serious problem in the MS community, if they haven't already.

  • @erinnicolefranco6807
    @erinnicolefranco6807 Před 4 měsíci

    Does this also apply to MS mimicers… NMO, MOG, transfers myelitis and outliers?

  • @mimiwhite1963
    @mimiwhite1963 Před 4 měsíci

    Stable on OMS and gilenya for 5 + years. No physical disability, normal brain volume, and living my life.

    • @DrBrandonBeaber
      @DrBrandonBeaber  Před 4 měsíci

      Awesome

    • @mimiwhite1963
      @mimiwhite1963 Před 4 měsíci

      ​@DrBrandonBeaber I love your videos, I always learn something . I live in Northeast GA, was an art teacher for 31 years. So I know a lot of people and I get phone calls on a regular basis from people newly diagnosed. I send them all to your channel and recommend OMS.

  • @johnpace5195
    @johnpace5195 Před 6 měsíci +1

    I was dx 2006. Started Swank from the beginning but did not stick to it. However, I have done three things religiously. No trans fat, no dairy ever, and no red meat. I did Tysabri for the first five years starting 07 after short rebif failure. 10 years no DMD. Now Kesimpta for a year. About five relapses over the years but no progression in disability from the original damage.

    • @DrBrandonBeaber
      @DrBrandonBeaber  Před 6 měsíci

      Thanks for sharing. Swank's diet is a lot less strict than many people believe. He actually miscalculated saturated fat (all natural oils including plant foods have saturated and unsaturated fat)

  • @thigmotrope
    @thigmotrope Před 3 měsíci

    I have had Crohn's disease for 30 years and followed a specific carbohydrate diet (SCD) on and off (sometimes with a high degree of fidelity) and had good results. was able to induce multi year remissions a couple of times.
    was diagnosed with MS 2 years ago and started Wahls, which has some similarities to SCD. I felt great on Wahl's. Gut was in great work
    shape. MS was manageable, but there. MRIs came back after 6 months of this diet and I had more lesions. some of them on the brain stem. I also lost weight so I stopped the diet and went on a B-cell therapy which was a major mistake.
    on tysabri now and doing a less restrictive version of Wahl's and SCD combined. can't say if it's working but I maybe have reached a homeostasis.

    • @DrBrandonBeaber
      @DrBrandonBeaber  Před 3 měsíci

      Thanks for sharing your experience. Tysabri is actually FDA approved for both MS and Chron's disease.

    • @thigmotrope
      @thigmotrope Před 3 měsíci

      @@DrBrandonBeaber yes, I know. thank you. and it seems to be the treatment of choice for those with both. (probably for that reason)
      maybe you have one but a video on comorbidities would be awesome, I think.
      I have heard there is some debate about whether MS is an extra-intestinal manifestation (EM) of Crohn's disease. to me, that's a weird way to think about it, but probably makes sense to doctors and researchers when they consider treatment options or even etiology.
      for me, I believe I have one immune system and it is hyper vigilant and easily dysregulated. It also has no problem (though can take time) reaching new areas of my body

  • @MadMax2022
    @MadMax2022 Před 6 měsíci

    DR. B anyway you do a video on montel williams ? He seems to be doing well

  • @Iteria
    @Iteria Před 6 měsíci +1

    The nature of MS wouldn't lead me to believe that diet can stop progression. I believe that diet can have an impacts because keeping your body fully stocked on what it keeps to maintain itself and not aggravating yourself (and thus triggering your immune system) can only be a good thing.
    For, I have a general diet that's mostly processed food free and that's about all i can claim. I found relief from symptoms via supplements. Some specific to my own personal deficiencies and some just general recommendations for people with MS. Ive found dropping any given pill in the set results in my symptoms getting worse. I do take a DMT and have low disease activity so take that as you will.

  • @edoardoferri7770
    @edoardoferri7770 Před 6 měsíci

    Doctor beaber i have a question off topic why embold study fails? Ata 188 was ineffective very bad news for us.
    But the phase 1 trial was very promising 33 pecent improvemet versus the 6 percent of the phase 2.
    Why so bad the result? What 's your thoughts?

    • @mary-vy3mo
      @mary-vy3mo Před 6 měsíci

      Maybe EBV and low vit. D are just triggers..once you have ms vit. D and
      EBV have no affect on MS progression.
      Also people can improve on placebo..
      why it is called placebo effect.

  • @mccflo99
    @mccflo99 Před 5 měsíci

    When do you anticipate your study being complete and data available?

    • @DrBrandonBeaber
      @DrBrandonBeaber  Před 5 měsíci +1

      Unfortunately I'm not sure. Many months from now.

  • @ToLoveIsToLive89
    @ToLoveIsToLive89 Před 6 měsíci

    I was eating the healthiest I have ever eaten (very low sugar, high protein, lots of vegetables, all organic etc.) and exercising daily, VERY healthy! That’s when I had my worst relapse! That relapse then triggered dysautonomia, which now greatly limits what I can eat, I have also been diagnosed with hyperlipidemia, hyperPOTS and many other diseases/conditions. I now eat what I can enjoy.

    • @DrBrandonBeaber
      @DrBrandonBeaber  Před 6 měsíci

      This is a great example of "your mileage may vary."

  • @markdennes
    @markdennes Před 6 měsíci

    I've done 3 Rituximab infusions with a 4th scheduled in Dec 2023. I'm 64 yrs old and my B-cell count is very low. My health continues to decline and exercise doesn't seem to help. I'm speculating on skipping the next infusion thinking could the Rituxan be making me weaker?

    • @DrBrandonBeaber
      @DrBrandonBeaber  Před 6 měsíci

      Unfortunately I can't comment on your specific situation.

  • @jesusjasso7463
    @jesusjasso7463 Před 6 měsíci +1

    I have RMS and been diagnosed for 10 years, i eat once a day to improve my availability of going out and withstanding staying away from home.

    • @jesusjasso7463
      @jesusjasso7463 Před 6 měsíci

      Yes mostly fruits or vegetables.... meat is no longer my choice

    • @DrBrandonBeaber
      @DrBrandonBeaber  Před 6 měsíci

      Just once a day? You don't get hungry?

    • @Iteria
      @Iteria Před 6 měsíci

      @@DrBrandonBeaber One meal a day is actually super doable if you work down to it. It's a form on intermittent fasting. I've done it and you really don't feel hungry. A lot of hungry is more than you have the habit of eating at a particular time. I only stopped because my daughter wouldn't eat if I didn't and a toddler is not capable of consuming as many calories as they need in one meal.

  • @orkideaaugust4612
    @orkideaaugust4612 Před 6 měsíci

    Hi Doctor please I need your advice I diagnosed with TM then doctors hers started to give me long term Betaferon injections and Istill belueve It's wrong so can you help me?

    • @DrBrandonBeaber
      @DrBrandonBeaber  Před 6 měsíci

      I can't give you personal advice. Betaseron (beta-interferon 1b) is a treatment of multiple sclerosis but not other causes of transverse myelitis.

  • @ernietollar407
    @ernietollar407 Před 6 měsíci +1

    mostly vegan which is easy and delicious. Im 59 PPMS.
    My son is the most staunch vegan in the house and trains martial arts and can disprove old protein and B12 myths. I shop in the produce section a good deal. Some salmon and omega 3-6-9 phosphatydal choline 10,000 vit D B and multivitamins. Wish I was in a sunnier latitude (not Toronto).
    2 months out of hsct mexico (too early to prognosticate but energy and immunities feeling great,but might have tighter legs but not sure if its a post chemo thing or progression of MS).
    I find Jelynyk's attitude positive and that makes my feel happy. ILooking forward to what he publishes.
    appreciate Wahl, but also find her to be an infomercial preaching overly emphatically to a captive audience. Though at least she is not a pharma schill and has a lot of info (although the delivery is unscientific as in not balanced / looks to confirm theories more than question her own theories. I'm happy for her and appreciate her efforts.
    Life is a joyous blessing. I compose music everyday and never have writer's block. I play chess improving slowly though my son wipes me off of the board.

    • @DrBrandonBeaber
      @DrBrandonBeaber  Před 6 měsíci

      Thanks for sharing. Are you a long term vegan or only more recently?

    • @ernietollar407
      @ernietollar407 Před 6 měsíci

      i've been vegan for a few years , although i eat fish in hopes it'll help brain - but it's just in case - I'm ok with or without fish
      @@DrBrandonBeaber

  • @harmcity9934
    @harmcity9934 Před 6 měsíci

    i noticed when i eat vegetables at all my stomach hurts and swells, so that triggers an attack, i can only eat meat

  • @nsudha66
    @nsudha66 Před 6 měsíci +2

    Thank you Dr Beaber. Do keep us updated on any more of these diet related aspects for MS .
    I'm from India...PPMS since 2.5 years, no DMTs, not vaxed, only on homeopathic, anthropsophic and ayurvedic meds/ supplements. Always been a vegetarian....with organic, whole foods. Managing with Yoga, Pranayama, Rhythmic Massage therapy. Fatigue, RLS , much better. So is sleep. Gait still needs improvement.. especially on uneven surfaces.

    • @kevinobrien5964
      @kevinobrien5964 Před 6 měsíci +1

      I too suffer from PPMS and have done for 15 years. They never seem to include PPMS when they discuss these type of 'articles' , they just seem to discuss MS as a 'whole' and never discuss how we have a very different ,unmanageable disease whilst advocating for remedies for the lower hanging fruit , that is RRMS and seemingly only telling us half stories .

  • @icecoldmotivation4850
    @icecoldmotivation4850 Před 3 měsíci

    Would be nice to see you with some patients trying carnivore diet

  • @MadMax2022
    @MadMax2022 Před 5 měsíci

    Dr. B MONTEL uses a device called a pons. Are you familiar with this ?

  • @annaleeamoroso3527
    @annaleeamoroso3527 Před 6 měsíci

    I'm 37yrs old I have attack 3times this Feb. March and may 2023.. last attack was parelise halt body.. I on my recovery the possible because my diet.. now my diet hi hot tablea, virgen coconut, moringga .. I'm diabetic

  • @andrewreisinger6860
    @andrewreisinger6860 Před 6 měsíci +2

    Any thoughts on weight loss generally? Intermittent fasting? Semaglutide drugs (wegovy, etc)? That could be a whole video in and of itself. Those drugs are possibly the next frontier in weight loss and a new multi-billion dollar industry, with a potential to significantly reduce obesity-related death from heart disease. I feel weight loss, no matter what type of diet, can have great positive effects on pwMS.

    • @DrBrandonBeaber
      @DrBrandonBeaber  Před 6 měsíci

      I'm not quite on the board with a high percentage of the general population taking drugs like wegovy, particularly if it is in lieu of diet and exercise.

  • @MSman77
    @MSman77 Před 5 měsíci

    I used Dr. whals diet program several years ago & after several weeks I had an attack Which forced me to stop this program. Regards 😎

  • @MysticFogGarden
    @MysticFogGarden Před 6 měsíci +1

    Organic Fruit and vegetable ONLY, No Dairy Products, No gluten, clean filtered water and ...NO EGGS...

  • @desiredecove5815
    @desiredecove5815 Před 6 měsíci

    I find over my many years with MS- sugar is my nemesis- tho Sooooo tasty- the day after a sweet treat/ or two/ or three….
    My entire body feels inflammation.
    I don’t know the science but I know how I feel- so knowing this- I try to make better dietary choices- or accept the consequences of a good cake.
    🤣
    #Sharingiscaring

  • @__Wanderer
    @__Wanderer Před 6 měsíci +6

    My one gripe with Dr. Wahls is that she took some pretty hardcore chemo drug before going into remission or not? This also "coincidentally" coincided with her eating a specific diet. I find it highly distasteful that she advocates diet alone can cure a large chunk of MS related issues. That said, eating well is good for everybody this is a tautological statement / platitude but is something I also try to adhere to! Eat vegetarian most of the time with plenty of veg/fruit + occasional fish 2-3 times a week as I have also read it may potentially help (take flax seed oil as well as it seems the omega 3 is the primary reason for benefits). *edit: prior to my MS diagnosis I was a pure vegetarian for about 5-6 years. Only over the last 6 months have I added more fish consistently as it seems it might have a benefit, if that be the healthy fats or something about fish protein. Perhaps evolutionarily it also makes sense considering the vast majority of humanity lived next to water (lake, stream, ocean) where fish/seafood were plentiful. From a quick google it also seems fish seems to promote a healthy gut biome, something that seems to be problematic with many with MS (i personally am still fascinated by the gut-brain interaction / potential for leaky gut to cause MS through biomimicry.)

    • @DrBrandonBeaber
      @DrBrandonBeaber  Před 6 měsíci

      To be fair, Dr. Wahls is open in her book about having received novantrone, and she does not explicitly advocate for a diet alone approach, though she no longer takes any disease modifying therapy.

    • @__Wanderer
      @__Wanderer Před 6 měsíci

      @@DrBrandonBeaber I think for me it comes to the imbalance in her time spent talking about DMTs vs diet. The DMT seems like a footnote, in many interviews she stated that she tried many medications but nothing worked, until she changed her diet. If she spent an equal amount of time on DMTs and diet I would probably be less critical. Currently I am sure she has convinced many with MS that diet alone may be the solution, something people want to hear. Likely she has singlehandedly caused hundreds a lot of pain and suffering down the line. * just took a look at her documentary "Defying All Odds" - she doesn't / barely talks about medication. She does however claim her diet cured her paralysis/nerve damage... blows my mind at least that her diet claims to work on remyelination.

  • @korisnikk4208
    @korisnikk4208 Před 4 měsíci

    Prevedi na hrvatski