What to do if You Have a Multiple Sclerosis Relapse Explained by a Neurologist
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- čas přidán 7. 06. 2024
- What should you do if you have new or worsening MS symptoms? I think video, I give a simple explanation of the signs of a relapse, a step-by-step approach, and some potential treatments.
What is a Multiple Sclerosis Pseudo-exacerbation? • What is a Multiple Scl...
Plasma Exchange for Multiple Sclerosis: • Plasma Exchange for Mu...
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Dr. Brandon Beaber is a board-certified neurologist with subspecialty training in multiple sclerosis and other immunological diseases of the nervous system. He is a partner in the Southern California Permanente Medical Group and practices in Downey, California (South Los Angeles). He has several publications on MS epidemiology and has participated in clinical trials for MS therapeutics. You can follow him on twitter @Brandon_Beaber where he regularly posts about MS news and research.
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he video material by Dr. Brandon Beaber is general educational material on health conditions and is not intended to be used by viewers to diagnose or treat any individual's medical condition. Specifically, this material is not a substitute for individualized diagnostic and treatment advice by a qualified medical/health practitioner, licensed in your jurisdiction, who has access to the relevant information available from diagnostic testing, medical interviews, and a physical examination. To the extent that Dr. Beaber endorses any lifestyle change, behavioral intervention, or supplements, the viewer should consult with a qualified healthcare professional to determine the safety and efficacy of the intervention in light of their individualized information. - Věda a technologie
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Had my first relapse in mid may. Couldn't control my right arm at all, and had almost no control over my right hand. Went to the hospital and after getting diagnosed, I received 5x steroids to help against the attack. The doctor in the hospital told me that I might have some neurological deficit due to poor recovery, and even after 4 weeks I didn't see major improvements overall, but after 8 weeks my arm was fully functional again, and it is almost as if I am back to normal. Tge only issue I have is sporadic tingling on my right side. I didn't really have that many lesions in my brain, but one was in my cerebellum, so I guess that caused a bigger deficit with my body. I've reveived Ocrevus in june and hope that I can live a normal life for as long as possible. I was very anxious about my arm but it helped knowing that even after a long time since an attack symptoms can improve bit by bit. Greeting from germany
I have had MS for 23 years and have learned more in this past year watching your videos than I ever did these past 20 years. Thank you for doing these video's. We need you out here!! There is so much confusing data that it is hard to decipher it all. You really help with that. I am currently getting over a relapse with my eyes and trying to be patient for them to heal. It has been 2 weeks. I can't do another course of steroids because too close to previous steroids I took. I must be patient and wait for eyes to start tracking better. Can't see to the right. All blurry and jiggly (is that a word?). I am feeling better and not so depressed. Just need the eyes to get better. Keep these video's coming. Very much appreciated.
Dear @michellem322, it's such a shock when our eyesight is so badly affected by an optical nerve infection. Please don't lose hope if your undergone treatment seems to take longer to show any results. I had this happen to me, back in 2015. And it took almost a year to reach it's really good endresult. Hope you are able to stay hopeful and upbeat despite all this. Warmest regards 👋🏻 from The Netherlands 🇳🇱, Janet 😊.
Dear Dr. Beaber, it is always interesting to hear about the basic facts of pseudo exacerbations and relapses and their treatments. Thank you for today’s video. Would it be possible to make a video on the effects of stress on brain and spinal cord in ms? In my case, periods of intense stress (difficult life events) caused severe relapses with new symptoms and brain lesions. What happens in our brain when ms meets the uninvited and inevitable stress?
That is something I am interested in too.
Most of my relapses coincided with stressful life events as well. I constantly pushed through the stress and fatigue for years which brought on my attacks.
AVN
Avascular necrosis
Maybe do a video on this?
Thank you Dr Beaber for your thoroughness - always appreciative of your evidence based medicine
Great informative video Dr. Brandon. I wish I had seen this a year ago. I had a very severe relapse 12 month ago which presented with finger numbness and what I thought was Bells Palsy. It quickly developed into weakness in arms/hands and legs/feet plus blindness and difficulty speaking. 5 days of 1gm IV steroids didnt help and CT/MRI showed severe cerebral edema as well as a lot of tumefactive lesions. Several neurologists believed may have PML. A central line was placed in and I underwent 5 days of plasma exchange having seizures and losing consciousness during those 5 days. Long story short the plasma exchange halted the attack and I am back to walking/running/cycling/full time work with an EDS of 1.5 after months and months of physical therapy learning to walk again/use my hands etc. It is great that you point out the disability will resolve over time, it is good to be optimistic. In hindsight everything turned out ok. But during the attack I was sure I would be bed bound for the rest of my life let alone walk and have a normal life. Keeps up the great videos and g'day from Australia.
very short version. I thought I was just having MS hugs, a bit painful, but vitals were ok except pulse was roughly double of normal and getting a good breath hurt sometimes. Did use "My Chart' to contact Dr. He said ER. Turns out I had blood clots in both lungs. Now I see the wisdom of just because it could be MS, eliminate other causes first.
14 yrs ago, I went into the hospital for definitive diagnosis of MS and started my IV steroids. Three days later I went home for additional oral steroids but fully recovered from my sixth cranial palsy, which was my first sign of MS. Thanks for the videos and I like the oral treatment idea for my next episode. Keep 'em coming
It was my first sign of MS, too.
I was diagnosed MS in 2018, 1st indication that caused a CAT scan and then MRI. I am about to start my 2nd round of Mavenclad. I have been getting solumedrol 500mg 1x month since 2019. No ill effects, I was starting to think it was a placebo LOL. I am an active, lucky MS patient 2 or 3 spinal taps and many MRIs; I consider myself very lucky to have worked around MS. probably had it most of my life around since 30 or so... I am turning 70, still ride a Harley, in midst of rototilling and trenching my backyard.. as I said. I am lucky. When I hear of, or see MS stories on how the MS has stolen others lives, it breaks my heart for them and I feel guilty. SO - TAKING 500MG SOLUMEDROL EVERY MONTH SINCE 2019, good or bad. My glucose is under control, liver shows good. [I have had as therapies: Copaxon, ticfidara, Cytoxan, Mavenclad.)
Hi I'm on mavenclad 10 mg took first year dose having weird side effects have secondary MS may God heal us all prayers God bless 🙏🙏🙏🙏🙏🙏
Great Video Dr. B! Excellently put together as well!
:)
Very informative, thanks for the info Dr. B! I get IV solumedrol and Benadryl before my Ocrevus infusions. My nurse equates the combo to an IV vodka Red Bull. Thankfully, I haven't had any significant side effects, except fatigue and dry mouth from the Benadryl. Unfortunately, I have permanent central vision loss in one eye, as well as some color/contrast vision loss in both. My bouts with optic neuritis weren't typical in that I didn't have much pain or vision loss during those relapses, which resulted in years of misdiagnoses until my vision declined to 20/200 in my bad eye.
Looking back, a typical relapse for me was usually a headache combined with fatigue and mildly blurred vision occasionally over the course of many years. My worst relapse lasted a few days consisting of significant fatigue, cog fog and repeated bouts of dizziness, which also seemed to make sense at the time as I was exhausted coming off of a lot of OT during my busy work season. For me, a relapse is hard to identify and I'm sure others may feel the same way. I now know to rest when I start to feeling run down and that's usually enough to keep me from a full on attack. I haven't been treated for a relapse since my diagnosis 2 years ago and I tailor my diet and lifestyle to ease my symptoms.
Same thing here. Same onset of symptoms. Took Prednisone taper pill last night and again this morning. Also took a Niacin Pill late last night; bought a bottle two summers ago. And, as expected, felt the ' Niacin Hot Flash this morning, but it seemed to help. More alert, causes greater capillary circulation, and I'm feeling positive signs of improvement since just last night. Very helpful supplement indeed. All The Best, MM JD.
Thanks. This is exactly the topic I needed to fill in my knowledge base. I now feel better to deal with future symptoms appropriately.
Thanks for another excellent video Dr. Beaber! Especially saying that improvements can sometimes take time and we may see improvements months or a year later.
Awesome info. Thanks.
This video was a wealth of knowledge! Thank you Dr. B!
Excellent comprehensive video - thank you Dr Brandon!!
i have had 3 relapses in 7 years doc , the thing that suprised me is that , the first relapse was the most severe , the other two were pretty mild (btw i wasnt taking disease modifying therapy) , now i barely convinced my doctor to take ocrevus. from the last two relapses i completely recovered without steroids but the weird thing is that the symptom's came very slowly and went away very slowly, maybe thats because i am young.
This video came at the perfect time. I was struggeling with this question this week. I feel like I am the first case you are describing with mild but new tingling in the hands and a low efficacy medication. Will talk to my neurologist tomorrow. Thanks for all your information which has helped me to stay positive :)
Wow, what a well spoken and wonderful professional! Thank you very much for your contributions and educational videos, Doc!
Very useful information, coming straight from the specialist!
Thank you for the video! Very informative as always!
I had a really bad MS attack back in June. All my limbs went tingly/pins and needles, as well as weakness in my legs, making me walk like an old person and a short memory blackout period. The symptoms gradually wore off over the course of a week(The pins and needles thankfully lasted about a day. The memory was about an hour we think). I wasn't able to get in to see a doctor or nurse for about a month after the attack, so no medication was given and it was just a ride it out, kind of crappy experience. When I talked to the Nurse practitioner a month later, she came to the conclusion that I had a Pseudo relapse since all the symptoms I had weren't new, but just unfortunately occurred all at once instead of having isolated symptoms.
Great information! Thank 😊 you
I would LOVE a video on MS and mitochondrial disease/dysfunction, especially in the context of fatigue. I've heard that idea talked about here and there but it doesn't seem to be a big talking point.
Also to answer about relapses, optic neuritis, never got any steroids. Had significant Uhthoff's sign. 4 months post ocrevus (starting DMT) and I have zero problems. Don't even notice desaturation anymore.
Thank you for this video, there is so much confusion when symptoms worsen, or new symptoms appear, and it's really good to know WHY steroids are being refused - and to know that this refusal is usually for really, really good reasons. The examples you give are really useful. Thank you
:)
A great video and great explanations
Thanks
Fabulous video, sir. You are benefiting mankind 🙂
Thanks
Hi from Israel your explanation teach me a lot thank you dear doctor
good discussion
Another Great Video!
In your opinion could a mild tooth infection be causing my legs to be bothering me? Im on my feet alot and do work in the elements. Cooling vest helps with heat to a degree.. Response much appreciated.
(Waiting for my neurologist get back to me)
Dr. Brandon what about IVIG? Is this similar to the plasma? As always thank you for your videos!
Thank you for giving us such precise information about the underlying mechanisms of MS. As terrifying as this disease can be, it is also absolutely fascinating.
I am 23, I live in Paris, and was diagnosed in March after what was, in retrospect, my third relapse (my doctor didn't suspect that the first two could indicate MS, which is why it took three relapses and loss of mobility in my right leg to finally be diagnosed). Upon being diagnosed, I was given the 5-day course of high-dose steroids, and my recovery was excellent as well as quick; I had regained full mobility before even finishing the entire course and immediately went rock climbing after leaving the hospital!
I am now being treated with Tysabri, which is great news because France only recently decided to "flip the pyramid" and use highly effective treatments as soon as possible. Smouldering MS is my biggest concern, I just hope that doesn't happen down the road.
AVN
Avascular necrosis! Maybe a video on this?
I am going through one for past 3 days for now just taking baclofen for few days hopefully thing will improve but video was helpful
Hi Dr Beaber great information. Can you give your thoughts on "Smoldering MS" and if agree is there a way to determine if you may be in that category?
Same question !!!
Great video! Will you please do a video about the non common MS symptoms? I was dx 7 months ago and after 4 months I developed this painful burning on my right posterior scalp. It has not completely gone away and some days are good and others I can't stand for even a breeze to touch my scalp. I feel my left side is getting weaker and more ataxic. When I told my Dr. he basically told me ppl don't have relapses on Kesimpta (which is the medication I'm taking) Is there anything else I can do. This pain is unbearable at times and Naproxen ,Tylenol, etc does nothing.
New subscriber! So glad I found your channel..I know you specialize in MS, but do you also see patients with CIDP or proximal neuropathy?
Yes.
@@DrBrandonBeaber I know everyone is different, but if you have severe neuropathy making it extremely difficult to walk and you are unable to sit as well,but bloodwork looks normal, do you think that potentially trying immunosuppressant/IVIG might be beneficial?.....
I also find Dr. Aaron Boster's channel to have very good info too....
For sure
Thanks for another helpful video, Dr. Beaber! Question for you... I *hate* steroids. I'm fine with the pre-med steroids I get w/ Ocrevus, but the other 2 times I've had them have been awful. (Once via high-dose oral Prednisone pre-MS diagnosis, and 5 days IV when I was diagnosed.)
My question is, if someone were to have a relapse and the symptoms weren't debilitating, would steroids be absolutely necessary? How would you feel if a patient declined treatment, or opted not to receive steroids?
I understand you can't give specific medical advice..I guess I'm asking/don't know if the steroids (during relapse) are doing anything to benefit disease progression and symptoms long-term, or if they just help manage and shorten the current relapse.
For me, personally, the cons and side effects of steroids are so great that if my symptoms were mild as they have been in the past (decreased sensation on arm w/ no weakness, optic neuritis w/ no pain), I'd much rather live with and wait out the symptoms than go through steroid treatment.
My personal opinion is that while evidence suggests steroids aid speed of recovery from relapses, there is no evidence they affect the long-term recovery. So I feel it is reasonable to avoid steroids for a mild, non-disabling attack. Other neurologists would have a different opinion though.
I wonder if when you relapse again they could do IVIG instead of solumedrol. That's what I had to do. Maybe something to research and ask?
@@DrBrandonBeaberDr. If a relapse had started months ago whether from frequent infections new disease activity or a mixture and was left untreated would it be too late for the steroids to work after months? I never improve on steroids but i cant function because of my crazy dizziness..i actually get worse on steroids can u tell us more on the other options for relapses? And what tests other than crp and urine analysis need to be checked before being gven steroids? I had fevers and hidden infections while taking them and got worse😢
@@donnabolt5847hey there donna may i ask how those work? Steroids dont work for me and ive been relapsing for months and drs
Dont know what to do for my dizziness
Had to get 3 rounds of solumedrol for my last relapse. Even after receiving an ocrevus starting dose
I have had numbness in my hand for almost 4 months. My neurologist prescribed baclofen instead of steriods. I didn't take it because I am not in pain. The numbness is uncomfortable but not painful. I am wondering should I request steriods to alleviate this feeling.
My experience over the past 25 years with IV solumedrol for 3 days then tapering with prednisone has always been a positive experience with no side effects.
Dr. Beaber
grate video for sure when i do staroids my mental health gets effected really bad and i have panic attacks like crazy so i have to take something like hydroxazine or some other mellow out drug to help .... i have a video segestion ..... how a nero works with a patient that has comorbid systematic autoimmune disorder who also has ms ...... like how do you treat it
I’ve had IV steroids, each time it’s made me dramatically worse. 1st time, weakening of legs, difficult walking but still going to work. I had 3 days IV steroids and ended up unable to walk, bedridden for a couple of months then slowly getting to back to walking but overall was worse off than prior to exacerbation. 2 & 3 rd times were both 5 day treatments in conjunction with Lemtrada. After 1st Lemtrada day, though I walked in, I rolled out in wheelchair, not able to walk more than 20 steps at a time and no more than 300 for day. Yes, I kept track. 2nd Lemtrada treatment a year later, rolled in wheelchair and rolled out unable to walk but a few assisted steps. It took me over 2 years after last Lemtrada treatment before I could walk more than 20 steps and another couple years to get up to 1,000 at a time with a 3500 max. Average for the day. I’ll never take the IV steroids again. I’ve taken Prednisone a couple of times and it definitely helped me.
Thank you Dr, amazing video.
My experience on high dose IV steroids for my MS optic neuritis was a nightmare. I had the first three infusions inpatient and then two more days home health. It caused steroid induced diabetes with blurred vision, severe thrush and worst was the loss of bowel and bladder function with severe loss of blood (doctors suspected perforation of bowel). Any time I stood up I simply poured blood. I’ve never been told why my reaction was so severe and in fact, I am currently having a relapse and I have refused the prescribed IV steroid treatment.
Please enlighten me and explain if you can!
I have had 2 relapses that have been treated with steroids, both IV and oral. Both times, my symptoms improved. My question to you is, without steroid treatment, would the relapse symptoms have improved regardless? Isn't that what relapsing/remitting means? In effect, I'm asking if steroid treatment reduces or stops the lesion formation in the brain, or does it just shorten symptom production without somehow stopping the lesion formation in the brain? Are steroids an actual treatment of the underlying MS or just symptom management? I hope my questions make sense. Thanks. I love your videos.
I had intervenes steroids for 5 days on my 1st identification . They didn't confirm bet years later i have RRMS. and it helped very much. I had a listing gate, some footdrop and drag.
Hello dear dr.Beaber..My last relaps was 3 months ago because of stress I got 1g iv of solumetrol for three days. Symptoms were first changeable but after few days was constant,getting worst. I have been in a very stressful situation and my symptoms always getting worst because of big stress.It is starting by burning the skin on hands, legs,face last time there was also crawling bugs feeling under the skin.I think I have another mild relapse right now again . First symptom was burning skin and tingling legs, lips and hands, but it always starting by burning,burning feels like sunburn after few days joining by tingling or stiffness on the feet or face.All of these symptoms are old. For now burning is pretty constant,joined by mild tingling tongue and lips. Neuro said last time that it could be because of anxiety and stress last time and not believing me I had a relapse ,despite the fact I got Solumedrol 1g (iv) and i felt better right after the treatment but few days after a dose of medrol I always feel worse.I do not why. I know it is not good taking solumedrol too often.It is possible If I have more mild not that severe relapses for this time just leave it like that without any treatment? I am actually REALLY confused if these are relapses, because my neuro said that it can not be. Because burning is because of anxiety and stress.I am newly diagnosed (1 year) I have 2 mild relapses (tingling,burning,sometime a little stiffness on my feet, or vertigo) Skin symptoms getting worst so I got Solumedrol but in the hospital they do not really believing me that I have relapse because i have these kind of stuff which is actually invisible (Tingling,burning) I have never had optic neuritis or visible more severe limb relapse .It is possible this potential mild relapse just let untreated? If I do not have severe ones? Does go itself? without myelin loss?Or every single one have to be cured by dose of medrol. I am on Copaxone for 8 months taking vitamin d,exercise, taking milgamma injectable but when I have very big stress i have this kind of exacerbation anyway.I had 2 mild relapses already all cured by medrol in one year.I know that stress is big trigger for me with Ms.Can you give me any opinion on this? Please.Thank you and have a nice day.
This is a very valuable video. Just saying. I wish I had known about this when I was initially diagnosed. It's very bad I didn't check to use steroids to stop progression of relapse damage before it became worse. My goodness, I feel horrible for not considered steroids because I "knew" they aren't good for weight gain and cortisol issues - I should have gone to the Neurologist and gotten their advice on if taking that risk then was still obviously appropriate in my circumstance - proportionally speaking. I'm very sorry the opportunity for steroids was lost; the damage can't be undone, if you know what I mean.
😢
Excellent video Dr. Brandon😊 ive been going through a relapse for over 6 months severe dizziness that made me end up in a wheelchair. Steroids havent helped with my dizziness and im starting to worry its a tumour. Can u make a video on ths specific symptom because its chronic and i was told there are no meds for it. Even sitting up straight or laying down in bed makes me so dizzy. I was gven scopolamine patches and wasnt told about withdrawels and ended up with seizures. Are the side effects permanent? What are my chances as an ms patient that my constant dizziness is a tumour from ur experience what meds control ths disabling symptom😢
I can't give you personal advice, but imaging studies can discriminate between vertigo due to a tumor or demyelinating lesion. Chronic vertigo due to central nervous system injury is difficult to treat, but some medications have been attempted which are described in this article: pn.bmj.com/content/12/3/147.full#T1
@@DrBrandonBeaber thanks for ur reply Dr.😊 i will look into the article and will be getting an mri soon. Are there any other tests we can do to rule out a tumour like veps blood work etc.. just for me to relax and not thnk of the worse..im worried about the mri because i have positional vertigo and i was told mri machines can induce that im not sure how true that is..from ur experience though chronic dizziness in ms patients can have different causes i believe right dr.? Like migraines stress bppv etc..i dont know if any blood markers or veps can show a tumour i heard we can tell even from an eye checkup or clinical neuro examination..another q dr. Is head pressure/ heavy head sensation an ms symptom? And are there meds to treat it other than steroids? Thank u dr.🙏 plz continue making these great vids🙂
@@DrBrandonBeaber sorry dr. Forget one q are side effects of scopolamine patches permanent ive been twitching ever since and my neuro didnt mention ths side effect..i get relief from low dose benzos as i dont want antidepressants for my dizziness..do benzos cause damage to the brain and have u used scopolamine patches on patients with severe dizziness? I was told dmts may or may not reverse ths symptom but dmts are known to work on preventing future damage not reverse old damage right?
Dr. Beaber, my beautiful 22 year daughter/nursing student just had "atypical bell's palsy." They did a MRI and found multiple lesions. I'm torn apart and having a nervous breakdown, anxiety attack everyday in caring for her. What's your advice for me?
It was my first sign of MS, too. My neurologist said to me there are good prognostic factors since my right side of face was numb. After one year I am ok, no relapse, taking Tecfidera... I forgot I have MS. 😊
@Vesna101 Thank you for sharing your experience. May God bless you always.
Very interesting video as always Dr Brandon :) Thank you! On my initial presentation just over a year now I had severe left eye ON (everything was pitch black except a small bit of peripheral vision - i could see very blurry shoes when someone was standing). Would you count this as a severe relapse? I was only treated with 3 days methylprednisolone. Day 2 & 3 i was seeing improvement but this stopped by day 4 and stabilized. Now still permanently blind in my left eye. I can see shapes and everything is incredibly blurry/black white/covered in white noise. At the time I didn't know better but looking back I wonder if my vision could have improved further if I had received a 5 day course + tapper. Even now my ON seems to light up on MRI (recent scan 1 week ago).
Yes; same here, but be advised: The Medical System is sorely lagging on Expedited Patient care; they'll let you tough it all out. Not because your immediate problem isn't important, but they are Comparable to Supertankers, trying to make you believe they are as Maneuverable, as say, a PT BOAT. Finding out; They Suck!
Instead: You MUST be your own advocate; even an asshole if need be. 2.) Do not wait on them. People die all the time in their trade, and to them, we are but another patient number. So: If and when you need care, you do what I am learning to do to Ensure I Don't Suffer From A Lack of Due Care Before I end up with, Either Decompensation, Permanent Injury Due To Medical Neglect for Long Lines, Slow Scheduling, and Slow or Busy Doctors:
A.) 1 Day Medical =s Urgent Care
B.) 1-3 Day Medical =s Your Local Emergency Hospital; just go and be seen and served.
C.) 1-2 Week(s)=s Your Regular Doctor or HMO.
D.) 1-3 Months=s Specialist/Neurologist/ ENT/ Et.Al. * Terrible Wait time and Follow up, sigh..
Note: 9 Years Since establishing medical care, and only now ; 9 Years Later Am I Learning This Method, Dear Friend.
The Rule: Develop Your Medical Care Dogfighting Skills. !
Hope This Valuable Information Is Helpful
All The Best, MM, JD. ❤❤❤❤
Hello doctor
This is the third time iam commenting for ur advice on my daughter's reports.
Plzz at least once view the reports and and films and advice me and let me know the best treatment for her. She is an intern ,22 years old.
Itchy on shoulders, neck, and back of head With tenderness and painful to touch on back of head and Rt ear
On DMT OCREVUS. Thank you
@jude4896 how is ocravus treating you I’m scared to start
@danielmcinerney9949 Ocrevus DMT has been good and 6mo infusion.... easy to stay on track also watch all levels in the blood check liver . All other symptoms and vitamin levels and vaccines are current (covid, hep B, flu, shingles....) I wish I was on a Ocrevus DMT earlier than I did. Hav had/ have a set of MRI annual w and wo contrast. Head, upper spine, and lower spine. Find a Nuroligist you connect with.
I’m wondering what you would suggest for a pseudo exacerbation that severely enhances existing pain? Pregabalin helps (along with low dose Naltrexone), but at 150 mg 3x daily, I don’t think taking more would help. Are there other drugs that could help reduce the pain?
I have a video on different nerve pain treatments which could be useful to you: czcams.com/video/YQmtEpAPCiY/video.html
I’ve developed a reaction to steroids my liver numbers go up to the thousands. Very scary very rare and now unfortunately I can’t have steroids as a treatment anymore.
Doctor here wants to give her rituximab injection, iam worried as it is not FDA approved. Can she take it?
She was given steriod 7 weeks before and was on dyfira 120mg twice. We couldn't increase it to 240 mg twice because her liver enzymes increased a bit.
Why not ocrelizumab or ofatumumab, or are you in a country where it's not available?
I believe I had what's called a relapse couldn't walk at all
I have numbness on my head and half of my face for over a yr I have tried 6 times to get treatment being Prednisone. 2 N:P, a trip to Emergency, a trip to London MS clinic times 2 times another trip to Emerg 26 hr wait all said no to prednisone. N/P said they don’t believe it’s a relapse, umm I know when I’m having a relapse I’ve been living with it since 1994 but wan’t diagnosed until I was 35 I am now 52.. what are you suppose to do when no one in the medical field believes that we are the ones living with it and we know our bodies we know our ms and when we are having a relapse.
The second N/P said she did not feel comfortable giving prednisone to me In such a high dose….I said to her it does not have to be a high dose can give in low dose….she said no, When I went to London second time he said same no cannot give /get me low dose because it wouldn’t work. I’m now ??? As to why no one could give me prednisone . Desperate for answers. Thank you for your information.
Is it true that steroids have no benefits for recovery?
I've heard many doctors say that, but it doesn't make much sense, because it stops the inflammatory reaction which causes most of the damage.
Where is your practice located?
In Los Angeles
YIKES !!
Waiting for my insurance so I could find a good doctor
When can someone assume their symptoms are permanent after a relapse, if they don’t go away?
Hey there i had dizziness from an attack that never went away even with several rounds of steroids..at ths point i guess drs believe steroids dont always work and they would have to find a way to help patients manage their symptoms whether with meds physiotherapy vitamins etc..depending on the deficit left..i was only diagnosed last year..but in a wheelchair now because no dr. Was able to help me control my dizziness and im ataxic all they do is try to force dmt on me claiming they reverse previous damage
In some cases of severe attacks, people may recover slowly over 1-2 years.
@@DrBrandonBeaber in ths case dr. Of having had a long relapse would u say its too late to try with steroids or the other meds u spoke about for relapses? Would it be safer to just leave thngs to recover on their own and instead ask the neuro how to use symptomatic meds for relief?
@@DrBrandonBeaber i feel from peoples stories and ur experience that dizziness isnt common in ms or ths disabling like in my case? Should i think mybe its not jst my ms? Arent there any meds for central vertigo
#Sharingiscaring
#MavencladMiLF
"Sir, here is the bill for granting you the privilege of peeing in a cup in the emergency room." Grand total: one bazillions dollars. Fun fact, my initial relapse of getting diagnosed with MS I refused to be admitted to the hospital for IV steroids. 78 total 50mg tablets. 13x in the morning 13x at night for 3 days. It wasn't actually too bad, but getting that steroid copper penny taste out of your mouth was pretty rough. And man, that high dose steroid feeling is insane... I remember listening to spotify and singing to myself at like 4 am, amped out my mind.
Doctor im suffering from brain fog memory loss in my 20s how could i reach you out since I’m not able to work or organize what im saying everything feels tiring and i sleep 12 hrs a day I couldn’t work due to feeling tired all the time i suspected adhd inattentive i took concerta didnt work for me i took multiple nootropics too nothing works
I was Surprised to hear him say that oral steroids are equally effective to iv. This is not my experience. IV is superior in my experience. I have had MS for 25 year dx and at least 10 years before that. I am on Ocrevus now and haven't needed steroids in a while, but my last flair was terrible and took much longer to end after being on oral steroids.
1st
I'm proud of you ❤️
@@zoranagavrilovic9403
Hey Dr. Beaber,
I am a Hispanic male 30 years old.
I had my first attack In 2011 when I was 18.
It was a major foot drop on my left side and numbness all they up my left side to my neck.
Couldn’t walk or stand,
I recovered after a few months and got full mobility back.
I decided to not take any treatment for it and have not had any attacks since but have had residual pain but thankfully no mobility issues.
The day before and days before the first attack I was working on the roof with my brother in Banning, Ca which is the desert in July and the temperature was well over 100 and up to 120 on the roof. I got down and had a major headache and then a day later the attack.
Since I’ve had no attacks since ,could this be a one time thing ?
They all told me I would be wheelchair bound by now since the foot drop was so major but I only seem to have sensory issues with the same foot since and some days doesn’t even seem like I have MS.
Is this normal ?
Thanks
I had IV solumedrol for 3 days. I still felt just as sick. I then switched to ms specialist who felt like I needed few more days as he always prescribes 5 days
I did another round of 3 days, I never got the relief they talked about from solumedrol and the solumedrol made me temporarily blind that took 5 months to completely return. I was told it's usually temporary for 3 months.
It was a very mentally challenging 5 months to say the least.
I was told no more solumedrol. I then had IVIG 5 days.
Hang in there. Define MS, don't let it define you... take care