Stop Multiple Sclerosis Meds & Eat Plants? [Two Case Reports on a Whole Foods Plant Based Diet]
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- čas přidán 4. 04. 2023
- Is is possible to treat multiple sclerosis with diet? This video discusses an scientific article which describes two people doing well with MS for many years on a whole foods plant based diet.
The article I am discussing: journals.sagepub.com/doi/10.1...
"Attitude is Everything" by Conor Devine Reviewed by Neurologist Dr. Brandon Beaber: • "Attitude is Everythin...
Neurologist Tries Multiple Sclerosis Meds! • Neurologist Tries Mult...
The Swank Diet for Multiple Sclerosis Explained by Neurologist: • The Swank Diet for Mul...
"Attitude Is Everything: My Multiple Sclerosis Story" by Conor Devine: www.amazon.com/Attitude-Every...
"Ironmind: Against All Odds" by Conor Devine: www.amazon.com/Ironmind-Again...
Quantifying the risk of disease reactivation after interferon and glatiramer acetate discontinuation in multiple sclerosis: The VIAADISC score: pubmed.ncbi.nlm.nih.gov/33370...
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Dr. Brandon Beaber is a board-certified neurologist with subspecialty training in multiple sclerosis and other immunological diseases of the nervous system. He is a partner in the Southern California Permanente Medical Group and practices in Downey, California (South Los Angeles). He has several publications on MS epidemiology and has participated in clinical trials for MS therapeutics. You can follow him on twitter @Brandon_Beaber where he regularly posts about MS news and research.
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Music: INNER GRACE - Copyright 2018 Wilton Vought Source: Really Really Free Music Link: • Video T
he video material by Dr. Brandon Beaber is general educational material on health conditions and is not intended to be used by viewers to diagnose or treat any individual's medical condition. Specifically, this material is not a substitute for individualized diagnostic and treatment advice by a qualified medical/health practitioner, licensed in your jurisdiction, who has access to the relevant information available from diagnostic testing, medical interviews, and a physical examination. To the extent that Dr. Beaber endorses any lifestyle change, behavioral intervention, or supplements, the viewer should consult with a qualified healthcare professional to determine the safety and efficacy of the intervention in light of their individualized information. - Věda a technologie
I was diagnosed in 2000. Legs went numb below the knee with tingling. Took Avonex intermuscular for 4 yrs but quit. Made me feel worse. Neuro told me not too but I have not been back since. Became vegetarian and exercise and meditate alot. 18 years no symptoms! I believe food heals. No meds!
Crazy story..Good for you my friend
I am wary of relying heavily on the absence of relapses and lack of new lesions to demonstrate MS stability. I think accelerated brain atrophy and smouldering MS are not considered enough in MS patients. It would would be interesting to look at intermittent fasting, as I think there was a study recently that suggested it could help MS patients. Thanks for the video, Dr. Beaber!
Agreed
I think Wahls is studying intermittent fasting at the moment.
@@tempest510 yes, her current study is looking at this (I’m a participant in the study).
They sre not considered at all...actually spinal atrophy is best sign for pira and spms.
I have been diagnosed with MS since 2000. Been doing intermittent fasting and cut out a lot of carbs and sugar. I haven't noticed any difference in my MS symptoms, but I have lost 30 lbs... Haven't gone all vegetarian or vegan though. As far as vegetables go a lot of researchers say to stay away from nightshades.
My son tried the Wahls diet. It helped a lot. No processed food, organic fruit and vegetables, nuts, etc.
Thanks so much Dr. Beaber! I really appreciate you making this video! As you know I eat WFPB and am doing well! A bit more background on my story. I had my first relapse in 2006 but was not diagnosed at that time. I then started changing my diet to more vegetarian, added yoga, and mindfulness. I went 10 years without any problems, then had my second relapse and was diagnosed in 2017. I started Copaxone and refined my diet and lifestyle further. I now eat completely WFPB with occasional French fries or potato chips, exercise regularly (walking 2-3 miles daily, yoga, stretching, light weights, and Zumba), try to get good sleep, and practice mindfulness/kindness.
I believe all of these are key to my health and wellbeing.
"completely WFPB with occasional French fries or potato chips" -haha. I'll let it slide :)
@@DrBrandonBeaber thanks! 🤣
Diagnosed 40 yrs ago / only med gabapentint for 5 years/ all natural foods/ Pickelball 4 days a week / work as Dr of optometry 4 days a week / take NAD along with a number of additives all geared to performance / I am looking forward to my 135 the birthday / I am 81
@@robertfleischer6068 you are an inspiration!!
I've actually gone the other way. Mainly carnivore with what I call accidental vegetables lol. But it's grass fed beef, pasture raised pork and poultry and wild caught fish. I did genetic testing and it confirmed my anecdotal experience that gluten was inflammatory for me. As were plant lectins, histamines and nightshades. So I am meat heavy but do add cruciferous vegetables and low glycemic fruits, especially berries. I make sure to include organ meats. My MTHFR genes have mutations so I have B12 absorption issues - meaning being plant based would leave me quite deficient in B12 and folate. So I also add methlyated B12 and folate in supplement form daily. I'm down 50 pounds and the mental clarity and memory improvement has been substantial. Also exercise daily HIIT on the bike and I lift weights.
I don't have MS but in 2010 I was diagnosed with the inflammatory bowel disease Ulcerative Colitis. I was initially treated with steroids and recovered but experienced a minor flare in 2013. Since then I have been eating a whole foods plant based diet and I remain symptom free. My last colonoscopy was ten years ago and showed a normal colon. For medication I take a low dose non steroidal anti inflammatory tablet daily.
I have twice yearly blood tests which show that my inflammatory markers are below the normal range. I believe that my diet is helping to keep me symptom free and my inflammation under control.
I have only been diagnosed for 2 months, and I'm really following it closely. Thank you very much!
Thank you, Dr. Beaber! I find the topic of MS and lifestyle really interesting. My story in short: I was diagnosed in 2013, but had optic neuritis year prior diagnosis, I have been on 3 DMTs till 2019. I started OMS in 2019 after a nasty relapse, then stopped the DMT in March 2019 in order to get pregnant. Lifestyle approach doesn't have effects right away and I did have 2 minor postpartum relapses maybe due to the sleep deprivation and stress. Now 4 years later I had an MRI and the results are no active lesions, no new lesions, no progression. I feel confident that prof. Jelinek's program really helped these results. 🙏 I'm not against DMDs, if a new lesson appear, I will definitely start one again. Thank you again for the informative videos!
Thank you for this content. The constant "MS cures" I'm advertised eventually gets to my insecurities about being chronically ill and I need to be reminded of anecdotal evidence.
I love your videos! I was diagnosed in 2017 at age 28 and immediately started with swank and Gilenya. No relapses since but I began having breakthrough lesions with no symptoms or decline. My neurologist switched me to Kesimpta in Nov 22. Shortly afterwards developed an eye infection that wouldn’t clear up and hives that come and go sporadically. My neurologist denies it’s Kesimpta related. However I just made the decision to stop DMDs and attack it naturally.
My activity level and function is rather high considering I am a firefighter/paramedic and I have a wife and 4 kids. I’m open to sharing more if anyone is interested.
I would love to hear more.
@@miyah5087 any part in particular?
Me too
Do you do anything specific or eat any specific diet to keep stable?
I follow the swank diet. Which is low saturated fat but i definitely recommend you do your own research on it. The diet has been around for over 50 years and a lot of people have had success with it.
THANK YOU so much for this video. I was diagnosed with MS and have been on Ocrevus since summer 2021 and I have been in remission since then. However, I immediately started Terry Wahls-inspired WFPBD and I although I have only been in remission for 2 years, I am very curious if I can stop my DMT and continue with my new WFPB lifestyle. I am very grateful for my meds as well but if I could get off of it, I would be so happy.
Both are vital Dr. Beaber medication along with a lifestyle appproach of a changed diet and working out.
Great video thanks. I will not feel safe with such diets only. However, I totally understand diet is extremely important for us. I try to have an anti-inflammatory diet with salmon, walnuts, broccoli, blueberries and more.
Very interesting topic, thank you as always for taking time to share information! I'm 60, eat fairly healthy but don't follow a specific diet. I've never had a relapse & was shocked to learn I have brain lesions/ms at 57. I think about stopping tecfidera every day because I worry about low lymphocytes & wbc from it being older, but w/o more evidence that diet can help control ms I'd be afraid to stop. By the way, what is considered a "low lesion burden"? Under 10? Or does it matter more about where lesions are located vs how many? Maybe a future topic?
Great question. Hope he responds.
Definitely matters where lesions are located. I also hope you get a response.
I'm a bit late to the discussion but i only just found this channel. I was diagnosed with RRMS late 2022 and promptly put on Kesimpta. I'm a fan of the WFPB diet and trying to get back on the wagon after falling off....I would even call it nearly miraculous in some cases.... But I could never trust that over DMT unless it got to the point where the DMT was severely affecting my quality of life. The name of the game is to prevent relapses and new lesions as much as possible because once they are there, they're there to stay (tongue twister lol). To each their own, everybody is different, and everybody's MS is also different, but it's such an unpredictable disease that i could not put my faith in diet alone. Diet in conjunction with, sure. That's a great idea even. But the other would be terrifying imo.
Great idea to to a retrospective study on MS patients! That is definitely a bit of a gap in the studies from what I have seen. Analyzing general activity, medication use, perhaps latitude + avg. sun exposure ( can also do a skin test to see how much sun damage someone has perhaps / correlate with sun exposure), diet, stress levels (work), relapse count etc - would be a powerful study that is for sure!
yes only 60 years too late
@@dominicp134 sorry to hear :/ There is no real certainty for any of us though - even with a DMT people can be unlucky and have an aggressive form. I was diagnosed last year and am already blind in one eye after my first attack. Makes me scared for my future that is for sure if that's an indication of my MS / aggressiveness / severity. Hope you're doing well.
Exactly what was on my mind! Thank you. I'm 72, started Kesimpta 1 yr. ago and new pain meds and things were going well for some month and I was making gains, but now I have had/ worsening pain - symptoms of dysethesia and spasticity that has moved from foot up up up to throat. It moved up a whole lot this year v. 15 years. I've been homebound for 10 years because of the pain. I eat a "What I CAN eat diet" which I learned is FODMAPish. I have terrible problems w/ foods making pain worse. To answer your question - would I completely ditch a DMT for a WFPBD? Probably not. I think for someone my age maybe going back to Copaxone is (I was stable on that though smouldering) . I'm very confused about what to do....
I was diagnosed one year ago. I am also on Kesimpta and follow plant based diet. I suffer from your same symptoms of pain, etc. For the last 6 months I have been using CBD/CBG oil tincture. This has been critical in helping with my symptoms. I take it twice a day.
PPMS diagnosis in 2019, mainly spinal cord & chose life style approach over DMT ( since there was no guarantee other than may slow down the progression )
MS symptoms are managed though steady decline from on & off cane to trying hard with walker) though I still recommend healthy diet to everyone but won’t say pick over med as age, phase of illness & everyone’s body & life including mindset & stress management is completely different & all plays huge role in exacerbating symptoms & more.
This has been my experience & I’ve kept myself under observation with team of doctors all gathered around neurologist & MS clinic for everyone to have access to any test results.
I do have taken 5 days steroids when needed additional help to renounce on some occasions which was mostly was stress related.
Thank you! I totally agree.
I have been adapting to a gluten free, dairy free, minimal sugar diet. Eating about 6 cups of veggies a day. Approx 1-2 cups of fruit per day. I would never feel comfortable quitting my DMT which is ocrevus. I just try and be the best me possible with multifaceted interventions. I also began an exercise regimen. I’m doing 20 minute HITT training, core strengthening as well as upper and lower body strengthening regimen. This has all helped to improve my energy levels and moods, assist with sleep health, balance improved. I do try and stay with a whole food diet and prefer cruciferous veggies.
Anectodal things should be approached with caution in medicine. Nevertheless eating healthy and minimizing process food intake is a no-brainer for health. Thanks for having a scientific and rational take on this.
I'm thankful that I found OMS early in my diagnosis but I don't rely on just food alone to improve my prognosis with MS. I took Copaxone for 8 years and just recently took Mavenclad and I'm glad I did. I do eat a healthy diet and exercise regularly but I don't want to have to constantly consider MS when I'm making choices. So for me, taking DMs with a combination of other healthy choices have worked well for me. Thanks for sharing this video.
I'm wondering if the key to MS treatment by diet is to drop sugar and processed foods. It seems to be the common denominator in all these 'successful' anecdotal diet case reports, whether WFPB, vegan, carnivore or whatever. People stop junk food and get better. I'd love to see a study proving this.
I'm 61. I have had MS for years (not sure although officially diagnosed 2 years ago). After diagnosis, and two relapses, I stopped eating sugar completely and dramatically reduced my processed food consumption. My weakness and fatigue improved dramatically. I've been on a strict carnivore diet for 2 months now. I feel better than I have felt my whole life. Since diagnosis, I'm been on Ocrevus, then switched to Kesimpta. No new lesions but some progression in walking difficulty over the years.
I would be interested to see research on this as well.
Well balanced talk 😁
Diet (vegetables, fruits, fish) and exercise absolutely helps.
It's hard to argue with this
I was diagnosed with MS at age 53 Dec, 2021. Started Ocrevus 3 months later and began a purely WFPB diet five months after that. I love the WFPB lifestyle and will never turn back. There has been a reduction in lesions on my MRI in the last year, which my doc attributes to the Ocrevus but I wonder about dietary impacts on my lesions. My functioning has worsened in some ways but I continue PT weekly and walk 45 minutes a day indoors with walker. I take Ampyra to help with walking, which I know helps because I stopped it for a period and walking was a chore. I am looking forward to seeing the longitudinal effects of the Ocrevus and lifestyle changes. I do not plan to stop the DMT anytime soon. Thank you for the book recommendation!
Any side effects you have with Ocrevus?
@GirlyMuscleTV none following the infusions
I don’t know what to believe anymore!!!
Had first flare in my 30's but never diagnosed. Had several flare-up yearly but never taken seriously untill I lost all sensation from the neck down and finally diagnosed with secondary progressive at age 52. Took aubagio for 1 year, had many side effects, so I stopped. Lost government assistance for meds so had to go without. Started a whole food plant based with occasional fish at 54. Doing OK, still working part-time at age 60. Just discovered the OMS program a few months ago. On a limited income so trying to eat as healthy as I can.
I am pretty shocked at some of these diets where they included grains, lectin laden foods like beans, lentils as well as starch heavy foods like white potatoes. Additionally, I think meats are often villianized which is fine, in which case how about bending the rules a bit and going with bone broths for protein needs and gut health.
I agree 100% Gluten and lectins don't agree with most people. Not a lot of people understand that plants have anti-nutrients so that they aren't palatable to 'animals'.
I am 60, didn't get diagnosed untill I was 53 when I hit secondary progressive. Was relapsing and remitting since I was in my 30's. Was on aubagio for a year and it didn't agree with me, developed alot of infections. I have been following the OMS program for a few years now. Plant based with fish occasionally. My disability has not progressed since following the OMS diet and lifestyle. That is just my experience.
Thank you for the information and your time.
I finished Mavenclad last year. I lowered red meat and chicken consumption, and eat a lot more greens and fish. I think what has kept me stable is that I drink a medium size cup of natural ginger, turmeric, beets, and cucumber juice. I do it not only for the anti inflammatory properties but for the antioxidants and anti cancer properties. I think that this has helped me, but I don’t know.
Regardless of a specific effect on MS, a good diet is always important for general health.
@Dr. Brandon Beaber, please research Palmer Kippola's claims to have eliminated her MS and let us know what you think? You and I have briefly communicated about her before, but you said you weren't aware of her. She's still making BIG claims of totally beating MS.
In experience of a woman I met in the hospital, she's been doing great for years and having very mild and very rare relapses and she eats whatever she wants. And she mentioned her friend who insisted on eating an "MS friendly diet" (I'm not sure which one) and he is now bed bound.
Note that they were both without DMTs for a long time due to bad financial situation in my country but she got Rebif after 8 years of waiting, and when it comes to her friend I don't have the information if he got any DMT.
It is certainly true that some people with MS eating a standard American diet do well. There is a lot of individual variability.
I was diagnosed with SPMS about a year ago. I was 46 and I have many, many lesions. I did not ever see a doctor for any symptoms prior to my diagnoses and was diagnosed within a matter of a couple of days. I had previously had a fairly healthy lifestyle. I have never smoked. I don't drink. I eat fairly healthy but didn't exercise the way I should.
I started medication in August. I didn't have any side effects, but stopped in January because I'm lazy and didn't want to call to get the medication. I also started a stricter low fat, take everything out that isn't healthy diet back in July. I haven't had any major relapses as far as numbness goes. In fact, I would say currently I'm feeling better than before I was diagnosed. I do believe the diet helps. I will probably go back on the medication just because it did help with some of my symptoms such as a frequent nausea feeling.
It would be interesting to see a study on people who did not know they had MS for decades possibly due to lifestyle. They told me I most likely had it for 15 to 20 years prior to being diagnosed. I never knew.
There is extremely strong evidence that MS starts prior to symptom onset by years or even decades in many people with MS. I don't know if anyone has researched your specific question about lifestyle and undiagnosed MS.
I am living on a plant based diet all my life long and doing well with MS for ca. 18 years. Even thought i would not dare to stop medication.
Taking Gilenya and fampyra.
I was diagnosed 6 months ago and I take Kesimipta. I’ve noticed a huge improvement in my symptoms…and I’m a meat eater but I don’t eat beef or pork. We’re all different
Hi Dr Beaber! Are you still recruiting for your study? I've been eating a more or less OMS diet for years - SPMS with little/no progression, EDSS 3.5-4.0.
Thanks Dr. B for another great video, I switched to a WFPB diet after being diagnosed with PPMS & lost 50lbs. Still doing Ocrevus & feeling good but my family not convinced, still eat SAD & never cook for me 😢
Good on you Nikki! It is amazing how eating this way supports our bodies!
Great job with weight loss! 👏
Keep eating healthy. Hopefully your family will realize diet is so important by watching you walk the walk and that you're not all talk.
Have you noticed any beneficial effects in terms of MS?
@@DrBrandonBeaber I have! In 2006 I had foot drop, fatigue, and weakness. The steroid treatment definitely helped reduce these symptoms but I credit the diet and lifestyle with reducing them further over a period of months. No one would know now that I had foot drop. After my diagnosis in 2017 I made even more changes and went from vegetarian, to vegan, to whole food plant based and definitely noticed improvements in my weakness, fatigue, and cog fog. In addition to improving my MS symptoms, I lost weight, lowered my cholesterol, and my allergies and asthma all but disappeared.
I am sure the exercise, better sleep, and mindfulness all contributed as well.
I can say my health isn’t worse so that’s a good thing! I did notice benefits to my mental health were the most noticeable positive effects 😄
I'm 51. I was diagnosed 12 years ago. I never have taken any medication. I have controlled my condition strictly through diet.
What diet?
Hi, so throughout the years, I've experimented with everything from the Whals protocol. To straightforward fruitarion to straight carnivore. What I have learned that they all have in common. You feel great immediately because each one, you're staying away from sugar and processed food. In the end, for me, the best thing is half a day. Just straight raw and then at night cooked vegan style meals. This is how I feel my best. And go to work every day with no issues.
@@Miceliism No one would argue with avoiding processed food.
Hi laurie Turmer
one question do you have fine with kesimpta know
Thanks
My turns is next month
Status Update; End of Week 2 on Carnivore Diet; week end March 9, 2024:
Outcomes; Observing Improvement now with visual acuity post last December late; 2nd Optic Neuritis Flare, Right Eye. Today is March 9, 2024; Vision improvement now.
Balance: Noticing 30% improvement in general balance improvement.
Cognition: Noticing stabilization via Homeopathic Tinctures e.g., Black Walnut, Wormwood, and Cloves. Also: Carnivore Diet concurrently.
Outcome: Overall Symptom Improvement.
Hope this helps,
MM, JD CANDIDATE ✌️ ❤❤❤
Im whole food plant based and im scared this just gave me courage to explore it
Wife (65 yo) with RRMS (22 yrs) has been WFPB for more than 8 years. With less than one exacerbation per 3 years. Her functional recoveries are in the high 99% range. So there is very little long-term degradation. Is this due to lifestyle and WFPB? Her first attack put her at an EDSS score of 6. Today EDSS appears to be less than one--not quite zero.
A very interesting and motivational study would be: does WFPB delivering complete nutrition (like CRON) plus a healthy lifestyle result in quick healing and returning to 99+% functionality in short order--weeks or at most months. Is this healing a genetic predisposition or is it the food and lifestyle?
There is nothing to lose giving WFPB a try...there is only upside potential.
Do Ocrevus or kesimpta increase risk if skin cancer?
Excellent. My son had one incident, of MS symptoms 2016. 2020 he got covid and sepsis. One month later, blind in one eye, unable to walk up stiars no balance. Rapidly evolving MS diagnosis started Cladribine in England. 2021 flew back to Australia, he went on the Wahls diet but not so much meat. All organic food ,no processed food. He says the diet helps a lot. If he went off the diet and ate processed food his symptoms worsen. He also does intermittent fasting.( I do it too, to give him some moral support.) Now on Kesimpta, as he has new lesions. Mostly he does a whole food diet. No gluten, no dairy, no sugar. Some fruits ( berries, mangoes etc) and lots of vegetables daily. He has nuts, seeds, lentils, fish etc. organic olive oil, avocado.
He also does yoga and meditation and goes bushwalking. He looks very well. He is now 35. .Thank you so much for your lecture.
Thanks for sharing your son's story. Video on the Best Bet Diet to be posted tomorrow.
I eat mostly healthy but with no restrictions, because constantly trying to have access to the right foods is very stressing and stress is bad for mental health and well, for MS
don't know if It's just me but I improved drastically with low lectins diet, i'ts not a cure but for me was like night and day 👍
Nope, me too.
Fully endorse this ( kudos Dr. Gundry!!! )... I don't have MS, however I have Adhesive Arachnoiditis and I officially villainize lectins
What meds are approved for CIS?
I recently met a man with MS who just had a stem cell transplant in Mexico. The man is an obese smoker. I want to help him. I had my own health problems; hip replacements and then my shoulders were attacked around 2018. That's when I researched and found the WFPBD. It cured me and I became a runner again. I completed a 50K ultra trail marathon. I'm still doing well eating plants and running; awesome. I'm thinking of documenting the process of helping this man get healthy. Any advise?
I was diagnosed with MS 2010 because my feet were tingling. I went to the hospital and all tests were negative but the MRT showed some lesions. I decided not to take medicine after 14 years I had some MRT check ups with some new fresh lesions. I never took MS drugs. What do you think? Is this responsible ? And how is my prognosis? since 2010 I never had any symptoms again.
Hello there!! Symptom onset for me was 40 years ago!! I haven't taken any of them disease-modifying drugs!! I tried but each one almost killed me!! I was end stage 8 years ago!! Spent 4 years in a wheelchair!! And was on my deathbed with respiratory pneumonia!! And now I just got done riding my bicycle from Portland Maine to Yellowstone National Park 3000 Miles through 15 states on the route I took!!
How did you do that?
I've tried whole-foods, plant-based, for quite a while. It didn't help me, in the slightest. The only time I noticed an improvement was when I ate nothing but potatoes, as suggested by Dr. Mcdougall. What helps, IMMENSELY, is AIP (autoimmune protocol). I'm a bit worried that I discovered the diet a bit too late, since I am in a wheelchair, my MS is a doozie, and diet can, only, help so much, at this point.
We can get out of these wheelchairs. We must have faith and keep searching! Avonex, Tecfidera and Ocrevus made my MS worse. Currently on Kesimpta.
After 13 years MS, first swank, now Jelineks WFPB here. Never started meds, no need to.
The Meds push doctors seem not to be able to recognize mild MS.
You are kidding yourself...yeah many people
are fine first twenty years...from year 15-30
is when very very slowly the disease turns progressive and only then the real disability
begins.
Mild MS only exists in about
20% of people...13 years is not long enough to tell..if you
Even at 30 years post MS dx
People become spms at 40 and 50 years.
I eat plants and fish plus take meds. I don't believe in putting my eggs in one basket.
@@juliepurvis1438 I do Overcoming MS . Been on it for 5 years with no issues
My wife lost her taste and smell when she had a TBI is it possibly to recover from that type of injury? Every once in awhile she seems to have some taste come back .
Some people get their sense of smell back over time.
@bluesdirt6555 I have MS, 16 and half yrs. This was not MS related. When I was 17 yrs old I had seizures brought on by a medication. The "big one" I went board straight and hit my head on a cement floor. I had a fractured skull, and blood coming out both ears. I lost my sense of smell as I hit the area in the brain that controls smell---therefore I also lost, or rater it was "off," taste (like think of a really bad cold and sometimes anything tomato tastes like penny). After a year it came back, but not all the way. Over probably 10 yrs it came back completely, with taste. Smell and taste are connected. I did however regain most smell within the first few years. I'm not sure how long ago your wife sustained her TBI injury. I wish you both the best.
Dr. Beaber are you not with Kaiser any longer?
I am with kaiser
Sir, I need your help. There is limited facility for Autoimmune disease like MS or NMOSD in Bangladesh . I am a patient of NMOSD(Seronegative). How can I get your personal consultation?
I can't give you advice here. I wish you the best of luck.
@@DrBrandonBeaber I'm just searching for best treatment option for me.
Best place would be Reddit and Facebook NMOSD groups....
@@shakil_khan_badhon Dr. Aaron Boster (he has channel too) does consults for people around the world (he says all the time in his videos). He does telehealth, I'm not sure rules for global, but you might want to contact him, his channel has contact information.
I follow Wahls Protocol level 3 for 2 yrs and also take Kesimpta. Exercise 4 days a week and stretches 3 days a week. I'm 65 and stable. My neuro and I are planning e tended dosing. If all goes well possible stop all meds.
Good luck. However often would you take kesimpta with extended dosing?
My neuro and I will develop the plan on my next visit. Do you have any experience with extended dosaging on kesimpta?
Is there any proof that ms medications clearly slow ms progression. How is it determined that these patients would have (or not) progressed without the medications??
Yes. This video reviews some long-term data: czcams.com/video/ioF3jXNw-mE/video.html
@@DrBrandonBeaber thanks for the quick reply. I’ve seen that video. Unfortunately, it doesn’t satisfy my intrigue into the subject, nor, I believe answer the root of my question.
#SharingisCaring
As a keto epileptic a plant based diet will not be possible for me. Now if i have MS i dont think this will work at all. I eat at least 45g of saturated fats although i do meet my rda of potassium and magnesium with vegetables.
You should try the 2* tablet for vumerity! Should experience the flushing once haha - it's a powerful antioxidant and a single dose shouldn't be a problem for you ;)
im guessing this was sarcasm but i would still like to know for sure cause i just started tecfidera
@@harmcity9934 Not sarcasm no - Vumerity / tecfidera takes months to reach "peak" effectiveness so a single dose won't really do much. It will be quite clear if you suffer from flushing - from day one onwards I had flushing. If you haven't experienced it yet you may be one of the lucky ones :)
@@__Wanderer My daugter started Vumerity at age 19, just turned 21. She had a lot of flushes and itching at first but only has flushes which are less intense about once a month
@@debraindxb that's very lucky! :) After 6-7 months I still have flushing almost every other day. You're definitely right though - the flushing can also reduce for some people with time :) Hoping that will also be the case for me in another year or two.
I don't understand why the carnivore diet is being ignored when it has saved so many of us when plant based failed. I was vegetarian most of my life and whole foods plant based vegan for 7 yrs and got more and more sick till I was diagnosed. My story is very common.
Thank you for bringing this up
They want us to eat bugs and plants..no meat...the woke community I mean
What I know is that Tysabri gave me back my life, at least 80% of it. So no, I don’t thing the diet alone can cure you or effectively stop the disease.
I was so sad when I was told I couldn't control MS alone with just diet. I honestly didn't believe the neuro at first because majority of diseases can be managed and/or avoided by lifestyle choices.
I had managed to control my medullary sponge kidney disease with diet (was told not very doable), so far have not gotten diabetes type 2 or heart disease (both very heavy in family history) so I thought I could do same with MS.
Turns out they were correct. I ate very clean while waiting for tecfidera to take affect (decided lets kick butt with meds and diet) and was diagnosed from mild to aggressive MS within 3 Mos of diagnosis.
I love how people can control MS with diet!! I wish I was able to too.
Diet is soo important. But it's important for people to know that with MS, it CAN be a monster and don't dismiss meds. I didn't dismiss meds while I changed my diet. My first med wasn't strong enough and now I have all this permanent damage. I just don't want others to end up like me even though I was on a med.
Still need to eat healthy!!
Thanks Dr B! I love your videos so much
What med are you taking now? How long have you been on it? How are you doing? Well I hope! How long were you on Tecfidera? What progression did you experience? Thank you so very much!
@jodicrews8996 I am on tysabri.
I'm in "remission" but I still suffer daily from my symptoms unfortunately so not the best quality of life. I've been on it since Jan 2021
I had gone from 4 "old non active" lesions at time of diagnosis to over 30+ active brain lesions, 2 in neck, 5 in thoracic in 4 months.
I went from walking 2-4 miles a day, exercising, good cognition, very very active to extreme (and I mean extreme) fatigue, walk about 1/2 mile only now so rent a wheelchair if we go to zoo etc, can't do cardio, can't really do any exercise classes or programs, family functions are difficult or i am left behind, cog issues, sleep issues, temporary blindness 5 for months um... I have over 20 invisible symptoms lol. Really bad heat intolerance, cold intolerance (but that is easier. It's just pain and/or being uncomfortable. The heat brings out symptoms and also worsens fatigue, makes you physically ill).
I think the lesions in my brain stem and spinal cord is what makes me so sick honestly. I could be wrong. I don't know lol . I was only on tecfidera for the 4 months before he pulled me off it because tecfidera doesn't work on aggressive.
How are you doing? I really hope your doing ok
flaxseed oil gives me panic attacks or it could be the lions mane i used to take, either way one of those fcked me up real bad since September...till this day i still cannot drink coffee
I take flaxseed, have a brew with lionsmane and morning coffee.
But if food disrupts you, keep searching for whats a good match for you :-)
@@lindavanzwol2643 Some foods just don't work for certain people. It's why I did testing to find out. I knew gluten and I weren't good friends but the testing not only confirmed that but it also pointed out lectins and histamines were hard on me.
@@lindavanzwol2643 i'm so jealous 🤤
@@kevindonnelly7475 how / what were the tests? Thank you!
@@jodicrews8996 I did genetic testing which showed a propensity to have trouble with gluten. I was already aware as gluten always caused inflammation and psoriatric skin issues with me. Caused me to do an actual allergy test.
I'd like to see a study on the carnivore diet.
Tried to stay away from red meat but just read article with my hashimotos I should eat red meat!!?? And veggies!!
HSCT FOR REAL RESULTS
Giving up processed foods will likely be beneficial. A carnivore diet would probably be much more beneficial that a plant based diet.
It would be impossible to know if a carnivore diet would be better.
@@DrBrandonBeaber Just look at the scientific information about essential nutrients in meat and the anti-nutrients in a lot of plant foods. That would be a good place to start, but it's sounds as if you're not really interested in nutrition.
@@NYNC88 The only way to know if one diet is superior would be to do a randomized trial and follow people over time for measurable outcomes. Many plausible treatments in medicine later prove the be ineffective.
Why not? Because MS medications have done nothing for me.
Gut health is 🧠 health 💯
I'm over 55... 57 me !!!