MS Patient Beats Doctor in Marathon Race
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- čas přidán 13. 02. 2024
- This is a story of how my patient with aggressive multiple sclerosis beat me in the Los Angeles Marathon.
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Dr. Brandon Beaber is a board-certified neurologist with subspecialty training in multiple sclerosis and other immunological diseases of the nervous system. He is a partner in the Southern California Permanente Medical Group and practices in Downey, California (South Los Angeles). He has several publications on MS epidemiology and has participated in clinical trials for MS therapeutics. You can follow him on twitter @Brandon_Beaber where he regularly posts about MS news and research.
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he video material by Dr. Brandon Beaber is general educational material on health conditions and is not intended to be used by viewers to diagnose or treat any individual's medical condition. Specifically, this material is not a substitute for individualized diagnostic and treatment advice by a qualified medical/health practitioner, licensed in your jurisdiction, who has access to the relevant information available from diagnostic testing, medical interviews, and a physical examination. To the extent that Dr. Beaber endorses any lifestyle change, behavioral intervention, or supplements, the viewer should consult with a qualified healthcare professional to determine the safety and efficacy of the intervention in light of their individualized information. - Věda a technologie
I am a runner with RRMS. I was diagnosed in my late 20s with most of my lesions in my spine, but I was just about managing without a walking aide. I was able to take Lemtrada as my first (and only) DMT and went on my first jog around the block a year later. When I got back to running I thought I'd better hurry and run a marathon in case it was my only chance. Now I race a lot and get above average times; much faster than I was pre-diagnosis. I think it is actually an advantage to not feel pain in my legs!
Thanks so much Dr. Beaber. I love hearing inspiring messages that give us hope! I did have success myself overcoming foot drop early on in my MS journey. I had my first discernible relapse in 2006 and the main symptom was foot drop. I was not diagnosed at that time but was given IV steroids. They helped some but I still had weakness and difficulty walking. I changed to a more plant based diet, added yoga, and meditation to my life. Over the period of several months my foot drop slowly got better. You would never know now that I had a problem.
I think many people would be surprised how well people with MS can recover from even severe relapses over time. I can tell you that improving from walking with a walker to running a marathon is extremely rare.
Thanks for sharing this story🙂I was diagnosed 2021 at 34 yo with highly active RRMS, started running after recovery from my first relapse and just signed up for a half marathon in April 😊
So encouraging. I have improved over the past year by exercising every day.
What an inspiring story! I have been running marathons since 2000 and I was diagnosed with MS in 2006. Foot drop was one of my first symptoms but I am able to continue running with the use of a carbon composite AFO. I have completed 59 marathons and 51 half marathons with an AFO. However, I am secondary progressive now and my entire right side is so much weaker. I usually push onward by registering for a marathon and mapping out a training plan, but all of my tried-and-true tricks don’t seem to be working. But I still have a strong desire to run. So, thank you for this encouraging story! I’ll keep at it!
59 marathons. Very impressive!
wow that's awesome!! curious about his lifestyle other than exercise, maybe diet and such
Thanks for sharing. I will be running the Boston Marathon in April to raise money for the NMSS. I had HSCT in 2022. The conditioning agent was cyclophosphamide. There are a lot of individuals with MS doing pretty amazing things like this. I’m a big believer in diet, exercise, sunshine, stress management, and maintaining vitamin levels (at least it’s worked well for me since 2009).
Thank you for this video Dr Brandon, I was an avid Runner myself years before my diagnosis at the age of 50 and I'm now at the progressive stage of MS but fortunately I'm still walking with a walker of course but I'm still doing what I can to keep going in videos like this give some inspiration and thank you again😊
Thanks so much for your videos! I was recently diagnosed with MS and find your videos extremely helpful.
:)
I love these stories. Thanks for sharing. Unfortunately I can no longer do intense exercise due to my symptoms although I have little functional disability. I can deal with my fatigue and leg weakness to a degree but my vision gets very blurry and makes certain activities a struggle. All of my symptoms have improved a bit since I started on ocrevus 2 years ago and I’m planning to try biking again this year.
As for relapse recovery - I had my first relapse at 19 at college and a number of others over 16 years until I was diagnosed at 35. During those times I tried to rest and meditate and often recovered fairly quickly. At diagnosis I had a number of non active lesions on the brain and spine. I also have permanent vision loss from years of insidious optic neuritis.
For some people intense exercise temporarily worsens symptoms dramatically, and it is not practical.
Thank you for sharing. Your first relapse was at age 19, Dx 16 yrs later at age 35... How many years since Dx? How are you feeling now?
Thanks for sharing this inspiring narrative. Excellent efforts from Neurologist. Wonderful efforts and achievement on the part of the patient! Awesome
At which stages did this person exercise and to what extent? I've heard about HIIT being helpful. Thanks for sharing wow!!!!!!!! There is another individual who runs marathon after HSCT in Mexico - for PPMS!
You said this patient had very little observable involvement with the spinal cord. That, and the young age, probably helped this patient.
Yes. No doubt.
Hope you had a good time in Carlsbad! If you'd like to open an office here we wouldn't be opposed :) there are only a few still practicing around here
😂way to go💪🏻
Awesome encouraging video
Indeed. Your mileage may vary ;)
I ran 17 marathons, to include Boston, after 1st relapse (ft drop). Though now, had to stop running 😔 and need rollator for < 1 mile.
Very impressive to have qualified for the Boston marathon. I could never achieve anything close even without MS.
@@DrBrandonBeaber in my favor, I was misdiagnosed by a neurologist (1986) and did not know it was MS. Boston is over-rated. Big Sur was my fav 🙌
@@elizabethrash7370 I heard Big sur is a beautiful course.
@@DrBrandonBeaberI’m unsure if you’re a fan of Harry Potter, but the Big Sur’s splendid mountainous view seemed similar to the Hogwarts castle setting
Thank you for all your videos you do. I have been subbed for a long time and try to watch relative videos because my mother has ms.
Unfortunately, she broke her hip(from a fall) and most likely has to have THA? I have tried to do some research and read studiees but do you have any input on any information you have? From outcomes/complications etc? Because i am very scared and i do not know what to do. She is at home now and waiting to call shepherd center tomorrow morning.
I cant help but think the worst because MS patients do have higher chance of complications according to the studies i have read but just want your input because i like what you do and your work. Thank you
Thank you Dr I am 39 years old dealing with a relapse right now and I'm having double vision in my left eye and I take keysempta i had a MRI yesterday and I'm curious what my neurologist is going to suggest for me but it's encouraging to know other people with rrms can get through these difficult relapses
Hi. Doctor, please make a video on Brown Sequard Syndrome (T4). And please take about the inability to maintain knee function on the right leg, because in my situation my knee hyperextends, because of this I can't work independently and if I can recover. Also the foot drop, my right foot (toes) also wants to coil inward like clinching a fist and because of this, my foot catches the floor even with a Hard plastic ankle foot orthosis. And sensation.
Hey, I am 18 years diagnosed with MS. My neuro wants to go with the escalation approach, giving me Tecfidera. Do you think thats a good idea? Or should I go with a high effiecient one at this age.
I don't really have any big issues caused by the ms and its pretty mild. Didn't have a relapse 1 year now without any DMT.
MS can be helpful with marathon running, as there can be numbness in the feet so the runner doesn’t feel pain
Is NMO and MS both are same? I am taking Rituximab injunction for every 6 months from past 2 years…is NMO having progressions like MS?
NMO is a different disease. I do have one video on this topic: czcams.com/video/xBCke5TsDGA/video.html
I have inflammatory demylinating disease. I really need help.
Me too. Personally, hope you are not USA east coast like me because there's sadly no hope re "medical, of any type is awful; nothing is available & there is no way to win any fight for yourself due to strict inhumanity of culture.
Oooh would you believe my best time is one minute slower than yours - 3:52, achieved two and a half years after my diagnosis in Loch Ness Marathon. I'm training for London now and hoping to beat that time by at least three minutes, which would be a Good For Age time. Me and London have unfinished business. Before my diagnosis I got double vision two days before the race and ran it almost completely blind for a time of 4:17.
4:17 while blind is probably more impressive than 3:51 anyway :)
@@DrBrandonBeaber it didn't feel that way at the time, I'd trained so hard and I didn't adjust my race plan...