MS Diagnosed on Accident! (Dr. Daniel Matterson's Story)
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- čas přidán 24. 10. 2023
- Daniel Matterson was a healthy 23 year old radiographer when he underwent an MRI scan of the brain for a research study. The images showed changes consistent with MS, and he later developed symptoms. The experience inspired him to pursue a career in medicine. In this video, I share an autobiographical article written by Dr. Matterson
The article I am reading: metro.co.uk/2023/09/18/i-volu...
Dr. Matterson on Instagram: the.ms.doct...
My video on radiologically isolated syndrome: • Multiple Sclerosis Wit...
15 video playlist on HSCT: • HSCT Vs Lemtrada for ...
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Dr. Brandon Beaber is a board-certified neurologist with subspecialty training in multiple sclerosis and other immunological diseases of the nervous system. He is a partner in the Southern California Permanente Medical Group and practices in Downey, California (South Los Angeles). He has several publications on MS epidemiology and has participated in clinical trials for MS therapeutics. You can follow him on twitter @Brandon_Beaber where he regularly posts about MS news and research.
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he video material by Dr. Brandon Beaber is general educational material on health conditions and is not intended to be used by viewers to diagnose or treat any individual's medical condition. Specifically, this material is not a substitute for individualized diagnostic and treatment advice by a qualified medical/health practitioner, licensed in your jurisdiction, who has access to the relevant information available from diagnostic testing, medical interviews, and a physical examination. To the extent that Dr. Beaber endorses any lifestyle change, behavioral intervention, or supplements, the viewer should consult with a qualified healthcare professional to determine the safety and efficacy of the intervention in light of their individualized information. - Věda a technologie
Amazing!! Although, I wasn’t diagnosed until later in life, my first attack (optic neuritis), was at age 22. I was able to work for 2 decades, in the medical field.
I just knew I had MS for sure around age 35. It would take another decade to finally get diagnosed.
I had been to so many neurologist. The one I saw and had been seeing leading up to my diagnosis, finally ordered an MRI with contrast. I had to beg for it. He decided to check my ROM and was shocked. He also made fun of my shoes and when I asked what he thought, prior to him walking out the door. His exact words were “ your range of motion is really bad but you’re strong and I have other patients waiting.
I was admitted that night. Radiologist thought I was having a stroke. As soon as the hospital neurologist walked in, she asked me to explain everything. I asked her, where do I start. She replied, from the beginning. The first words out of her mouth were, this sounds like MS. I said THANK YOU! I knew it was and so did she.
I remember her giving me the diagnosis and I said, well I finally know! I was mentally prepared. I only cried, when she told me that she didn’t see patients outside of the hospital 😂😅
From my experience with RRMS. 20 years of symptoms but nothing I couldn’t handle. When I hit 40 I could no longer work in the medical field or really at all. Walking hurts but I’ll take the pain to still be walking. Although, my walking includes a lot of wall walking and or I appear drunk 😅. My cognitive has taken a big hit and the fatigue is tricky to balance out! My neck lesions cause that hand tingling and numbness you described.
I think as we gradually decline, we get use to the pain and discomfort!
People with MS are some of the toughest and bravest! Accepting, not knowing if I will wake up unable to walk again and also not knowing the course your disease will be, was key for me. I live in the now and show up for life every day!
Medical school culture is SO different in the US. I quit medical school at the end of 3rd year because of my diagnosis. I needed accommodations for the vision and fatigue issues I get, especially for the Step exams and they were denied. Additionally, my school all but soad "suck it up or get out". I moved to the UK and while I didn't attend school there, I did research with 4 UK junior doctors and the culture is night and day. Additionally, in the UK, because the cost is so much less than the US, if you need to take time off it's affordable because interest payments aren't swallowing you whole. Good on this man for pushing through his diagnosis and fighting for the accommodations he needs.
It makes me so sad that some people don’t tell their spouse. My spouse has been all about adding things into our home in case I ever need it - like shower bars, a ramp up to our house, etc. but I walk fine and I feel good most of the time. I can’t imagine going through this alone
Me too - I also see hiding one's MS as a seemingly sad dark secret - but at the same time I can argue it as a smart move in some situations where it would serve to protect the relationship from existing perpetually in the light (or shadow) of the MS condition.
Many factors exist, but the obvious one is severity - as there is a big difference between having tingling hands and needing a wheelchair - which is less hidable.
I know myself, earlier on, as a professional performing and studio musician, I kept things private and toured nationally and internationally all with no shadow being cast and none (or little) of my interaction being. There was a period where I was getting CAT scan, then MRI and spinal tap which diagnosed PPMS. I am usually talkative and it was a discipline against my chatty nature, not telling dearlong time musician friends as I wanted to let all our energy be focused on good performances and rejoicing in that. I simply said that my gait issue was something being looked at by Dr's...
After a tour which had concerts in Colombia I disclosed the diagnosis and still performed 'gigs' back in Toronto. Also around that time I did a fundraiser for aHSCT in Mexico. I have been back for about 4 weeks.
It's all attitude. Attitude can change outcome or in any case attitude can drastically change your enjoyment of life whether disbaled or not.
I'll maybe pick up Dr.s Beaber's book again. This video was kind of like a 6th case study chapter addition.
Another great video! I love the stories of resilience. Thanks Dr. Beaber!
Thanks
Thank you for another great video. I’m one of those people with a radiologically isolated syndrome diagnosis, also got it by accident as a handful of lesions were found when doing an MRI for migraines. Luckily my neurologist is super proactive and has put me on tecfidera already so hopefully I will never transition to full MS. I’ve watched most of your videos though and I must say they are the best on CZcams, I really love the no-nonsense approach and in depth explanations
Hi from Israel very touching video it shows how life is so unexpected and how mental strength can help to overcome the MS illness thanks dear doctor
He has his mri picture on his insta page ☺️ it’s one of the first posts he uploaded
@@arr2820 it’s @the.ms.doctor
Young couples might be able to withstand an MS diagnosis because it's generally less severe and many people experience a full or nearly full recovery after an early exacerbation. However, in older couples that have been living with MS for a decade or two, separation or divorce is more common, I believe. This may be more of an anecdotal observation on my part, but I know more than 1 couple that have gotten divorced specifically because one of the parties was unable to cope with the partner's MS symptoms worsening (progression). The male is more likely to leave the female who has MS, but it also happens where the healthy female leaves the male with worsening MS.
yes..exactly right..rrms can be easily dealt with...spms and ppms are life
ruining killers.
Thanks for this great video. Been searching for answers for my condition. Lightheadedness and cog fog for the past two years. Brain MRI showed the following but neurologist said it was normal; “Multiple diffuse scattered foci of abnormal T2 and FLAIR signal intensity are seen within the supratentorial frontal and parietal white matter” so I was wondering if you had any suggestions. Thanks
This case has been such a discovery
I was diagnosed with MS in June 2006 and I tried four products for MS unsuccessfully, however I am using a CPAP and with it I am doing better.
Is it possible that the MS has been mistaken with sleep apnoea?
His name is close but the last name of the man you spoke of is Masterson. Thanks for this video. I’m glad he got that MRI!
Hi Dr. Brandon! I was diagnosed last year with MS. Im 36 not on any dmts just a personal choice. Im in a wheelchair because of chronic dizziness that caused so much ataxia so my muscles have weakened from lack of movement but drs say i shud b able to walk again except my neuro. Jst because im not on dmt he said physiotherapy wont help. I have ortho issues it cant be the MS second year that caused ths but he cant figure out why im always dizzy. May i ask what u personaly wud do if a patient doesnt wants dmts but needs to work on walking again if they still have function wudnt u recommend vitamins physiotherapy and symptom management? All the neuros ive been to either dmt or nothng go home.
No receiving disease modifying therapy is not a reason you could not benefit from symptom management or physical therapy.
@@DrBrandonBeaber Hi Dr. Brandon thank u for ur reply😀 so even if i dont want a DMT physiotherapy plays a big role in helping me walk again right even though ive been in a wheelchair for like 5 months? I still have muscle and nerve strength but weakness from lack of movement and ataxia..that can be worked on right?... may i also ask what would you recommend for fatigue and lightheadedness? I only take vit d and magnesium..even if my b levels r normal how important r B vitamins? I have sciatica too
Well said your experience has been the same as mine…. It’s like they want to wear you down until we give! My faith is strong 💪🏽 as I speak to you from my ER bed now unfortunately!
@@danielmcinerney9949 hey there daniel thanks i hope ur okay sending u my prayers wishing u a full speedy recovery take care🙏
Dr Beaber, are you familiar with a new potential aid for MS, the Accelera R-100 which employs Stochastic Resonance. It seems to have great promise.
Very interesting situation :O he is both very lucky / unfortunate, I for one was in absolute shock after my diagnosis about 1.5 years ago. Came out of the blue, within 10 minutes my entire world changed, my identity shattered. Lucky that he managed to start treatment very early though. :) I think the UK is 1:500 not 1:1000 btw!
😢❤
Thank you dear doc
Doc if i may ask if you (God forbids) diagnosed with ms and you had enough money to do either hsct or lemtrada in near future what would you choose(both of them are not available in my country) thank you so much for these daily videos ❤❤❤❤
see "hsct vs lemtrada ms news today"
India offers hsct for lowest price in hospital.. $30,000
@@mary-vy3mo thank you so much
But does india provide good care for that price ? And do you know any one who has done it there 🌹🙏
@@MohammedNomer yes known a few who have gone.
@@arr2820did you notice..matt embry say he will do hsct if he starts to worsen..?
Pardon my ignorance, Im no doctor just an MS patient with highly active and now quite advanced RRMS. Im wondering how MS was diagnosed after no prior clinical attacks or symptoms and a single lesion on an MRI. Was the McDonald criteria not applied in his case? To my knowledege MS can only be diagnosed with this criteria
Two or more lesions/two or more relapses
DIT/DIS clinical findings on MRI
One relapse plus one lesion
Also testing for oligoclonal bands in spinal fluid.
I am also concerned that he went straight to stem cell therapy as a first therapy to treat.
Should he have MS, and it worsens with time, he wil have no other treatment to progress to? And why he was offered this as a first line treatment puzzles me..if there was any uncertainty of MS surely CIS could have been diagnosed.
Thank you for the video.
You are correct in multiple ways. 1) A diagnosis of MS requires symptoms. 2) A diagnosis of MS requires dissemination in space, not just a single lesion. I presume that he was initially diagnosed with "radiologically isolated syndrome and then later MS due to a future attack and MRI with new lesions. He probably just didn't want to explain these technicalities in the article. Some people would advocate for hematopoietic stem cell transplant as an option in early relapsing MS, though undoubtedly this treatment has significant risk.
Thanks for your reply Dr. Beaber. I am concerned that his leaving out of the technicalities (perhaps it servers other purposes ie to increase awareness of MS) isn't the best approach. It may leave people who have not yet been diagnosed with MS (RIS , CIS, other) pushing for a risky treatment that may not benefit them, and people with a
Advanced and or Agressive RRMS, PPMS etc wondering why they were not offered a more aggressive treatment in the early stages of diagnosis, while having to adopt a more cautious approach to what is a risky treatment. Thanks again.
Obviously im mindful that people's treatment should be planned accordingly to their disease progression. But I fear extreme treatments at a very early stage leaves little room for further treatment should it not work as expected. And advocating for this should be managed in line with expectations (as much as one can with MS medicines, lifestyle plans and the disease nature and course).
@@MaiC- I can't speculate on Dr. Matterson's specific situation. In general, I think the evidence for higher-efficacy disease modifying therapies (including HSCT) is better for younger people with relapsing MS early in the disease.
@@DrBrandonBeaber yes, I understand. Thank you
#SharingisCaring
I hate my MS..I say out loud "I have MS" many times a day. Still new to me. I have lesions in my spine so that's the worse prognosis.
I wonder if this is one of the reasons men are underrepresented in MS. Many things can be mild and perhaps many men don't go to the Dr. for these issues especially since some symptoms can spontaneously resolve early in the disease. (i think it is known men are less likely to go to the Dr generally) I also wonder if this may be one of the reasons for a worse prognosis for men. Essentially men only being diagnosed later in their disease stage leading to worse outcomes...
This is certainly possible.
But on the whole, worse disability is more common in MEN. There have been studies done that bear this out.
@@andrewreisinger6860 thanks for that, as a man with MS this is great to hear. I know the stats - my statement was trying to explain a possible reason as to why this is. But who knows perhaps I am indeed just genetically f'ed..
I wish I could be misdiagnosed
🧐 @drbrandonbeiber Can you tell me the video where you referenced a research paper done by Dr. Christopher Perrone?😊Thank you, love your videos
Justin Bieber does have Daddy after all. Good Job Doc.
No relation to Justin but he did have a neurological disease (ramsay hunt syndrome) explained in this video: czcams.com/video/fYr3BtbPrfk/video.html
Medical research, same culture 😅