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Can you offer more details about sign #1? Many of us don’t experience “pallor”…

As far as family, I wish they even cared. All I get is fighting, "why don't you do this" "why do you forget", "but I told you to do this". Everything I do is a bother to them. The infighting just drives me into more depression, brain fog and anxiety.

You always said after crashing you are coming back to baseline with time, but then why are so many people so severe after a crash in a severe stage and not coming back?

Thank you for these videos. They are so inspiring and give me hope. I was 14 when I started having severe panic attacks that disrupted going to school. At 15, I became agoraphobic and stopped going. The school board threatened to put me in juvenile detention so I had to go back. It was horrible. I was almost 16 and stopped going again thinking by the time they find out, I'll be 16. I became completely housebound, mostly to my bedroom and still had severe panic attacks. I stayed mostly in bed. I was there for 3 months and then was hospitalized for the agoraphobia. I then got mono, what you guys call glandular fever. I also had severe acne which they treated with antibiotics. With medication, my agoraphobia became better, but not gone. Fast forward, I'm 59, on antidepressants, and exhausted. We've been taking care of my mom with Alzheimer's these past years, and now she got to the point of severe with violent behaviour we couldn't control with needing our care 24/7 (at the end, just my sister-in-law and I doing 24 hours shifts opposite each other. We had to take her to ER for violent behavior and she is now in hospital in a locked unit waiting for placement in long-term care. We are now cleaning her apartment out (kind of a hoarder). Still exhausted, but seeing the light at the end of the tunnel. I have high hopes of getting better from this and hope to be able to help others, especially seniors, with their health. I've been put off work by my doctor for years, so it will be a struggle to get better. Thank you for these videos, they are very helpful.

BS!

We ME patients cannot watch long videos

Did not work for me 3 months going 3 times to the bathroom yesterday there was not 6 hours between only 3 and i tried to sit for 30 srconds twice,result i had a panic attack snd needed to go twice after it to tge bathroom ,so the whole night no sleep because i tgought i stop breathing no energy for it .amd the whole day to. Thst was long enough to stabilize for the body 3 months and i am getting weaker and weaker. Nice

Beeing in my baseline made me worse and worse because my body gets weaker and weaker

What if you never can stabilize?becazse i tried the last 3 months ans because i am not sleeping my body is going to get weaker and weaker

Thank you for all your support and helpful ideas. I feel so much better since i cut down majorly on carbohydrates and sugar in the diet 🎉

Everybody know that you shall go easy but how to get back to where you was 8 years ago 😢

How do I handle pressure from family members who want you to " get better quicklly" because it annoys them that you are unwell. The is includes my adult children and occasionally my spouse.

Thank you!

Thankyou Toby and Ash….Total gold❤️

Thanks so much toby this was really helpful ❤

She clearly never had me/cfs.

You clearly have nfi about me/cfs!

So, just one big advert for the company?

Basically too much stress - physical chemical mental and emotional.

Thank you so much

9

I'm sorry, but fibro has left me with a severe light sensitivity, and that light bulb over your right (to me) shoulder is causing me to turn away.

Glad you feel better. It wkuld help if you tell us HOW you recovered!

Trauma, Epstein Barr, long Covid, Cancer…toxic shock, torn pericardium, traumatic brain injury. It’s a messy soup.

This is really eye opening, I always wondered why fasting never seemed to work for me and I push and crash all the time too!

Amazing explanations! Really helpful! Hopefully I can find my baseline soon..

I love the cave analogy, I feel like it will be useful when I get to that point of questioning and struggling over why my body is feeling/reacting this way and hopefully keep my mind from spiraling into a depression or hopelessness about this condition. I had to consistently tell my myself over the period of 2 years ( with really no support/understanding of this condition ) that I just need to rest , instinctually it was what I knew I needed to do. Finding the " sweet spot " and asking for support is now the goal. Thank you

Tiredness.

it’s a great idea with the clothes and colours

CFS and fibro are the same disease, caused by phosphate retention. Look up Dr St Amands book and watch Tender Points Documentary. You can reverse three symptoms on the guaifenesin protocol ❤

Please look up the guaifenesin protocol. Dr Paul St Amand found the cause for this. There is a treatment that can reverse it❤

Thanks for your videos ! It really helps cause here in France it's very tough to find help and answers.. I have a question: Do you know why exactly after a workout during the day, when we didn't really feel exhausted, we still have a night crash with insomnia? It's really frustrating.

All the types of fatigue you have mentioned affect me . I will become more aware of spiritual fatigue. Thank you

Thank you. This makes so much sense the more i listen to it. Does the program teach you how to find a baseline? Can you do baseline if working full or part time ? The working day demands vary so much. I have been crashing and pushing for 3 years since got covid. Thank you

So true, Toby! Attitude is altitude.

Thank you Toby and Dr Olivia. Great video! 😊♥️

Great video! I saw the ME/CFS team through the NHS and they talked about quite a few of these things, but I didn’t feel they emphasised the importance of not doing ‘less is more’ for too long. Thank you 👍

How much? If it is a paid program, why dont you just say that in the beginning?

I hate this stupid name, chronic fatigue syndrome.

Wow what a great video I've been crashing and burning for many years too, with highs and lows more lows than highs now. only the last couple years I've been paying attention more to the signs cuz my body makes me. lol This makes so much sense and I've known this for a long time it's just putting it to practice I guess the universe is telling me it's time.🙄

I push and crash all the time and have done for years. What you say makes sense, but it's getting myself out of a mentallity, a way of being to discipline myself even to do small and often

Please reply Toby Why do the symptoms get triggered by the things we love to do most,

Thank you so much for sharing all this helpful information! Pushing and crashing has been one of the biggest things that kept me from recovering for many years, and learning how to tackle that contributes a great deal to restoring my hope for the future.

People chase because they need the diagnosis for med certificates, social services and insurances etc

Thankyou Toby and Dr Olivia…this is like a comforting hug for the nervous system ❤️🥰