In the Hospital for SEPSIS | Let's Talk IBD
Vložit
- čas přidán 20. 11. 2019
- Shop Chronic Illness Gear:
teespring.com/stores/lets-tal...
Use code "Holiday20" for 20% off until 12/3/2019!
Used or seen in this video:
Canon EOS M5 Camera amzn.to/2BqtaC4
Canon 22mm Camera Lens amzn.to/2MY8GVA
Microphone amzn.to/2SJipVq
Ring Light amzn.to/2talK1a
Lights amzn.to/2GyMKzu
www.amazon.com/shop/letstalkibd
By purchasing from the above links, you are helping to financially support this & future videos. Thank you!
For business inquiries, please email me at LetsTalkIBD@outlook.com!
And as always, find me on...
CZcams (duh) / letstalkibd
My Other Channel / maggiemo
Instagram / letstalkibd
Twitter letstalkibd?lang=en
Facebook / letstalkibd
Snapchat LetsTalkIBD
www.LetsTalkIBD.com
Having difficulties hearing this video? Please click the "CC" button on the bottom left of the video screen! Please consider contributing translations and subtitles!
Sepsis is super tough, been there 16 times, mostly with central line infections, but I had a couple of my intestinal infections go septic. It’s really scary, and I never present with the “typical” symptoms. I don’t get a fever until I am ICU bound, and I never have an elevated white count, which my hematologist says it’s something with my blood and bone marrow stuff. But, some docs in the ER don’t look outside the box or listen when you tell them that a regular blood panel isn’t going to show anything. I almost died from septic shock because the doc sent me home, refusing to draw cultures or listen to me, I had the chills and a headache that killed. I was rushed back in hours later with a 105 fever and my central line site was super swollen and pouring blood and pus out of it. Sepsis is something that everyone should know about because it can come on super fast and have tragic results.
You have to be the most optimistic and bravest person I’ve ever come across. I am 67, dealing with a very aggressive Ovarian cancer and I just can’t handle so many things. I have tumors on most of my abdominal organs and possibly in chest cavity and around heart and they aren’t sure where else. They want to remove some cancer from the outside of my colon which will necessitate a bag and I just can’t get myself to feel ok with that. I guess for me, there are no guarantees bc my cancer has metastasized. I just had major surgery 4 weeks ago today and the whole ordeal kinda traumatized me. I used to be brave….😒
My husband passed away 6 years ago. He had a colostomy for three years before he died. He also had five bouts of sepsis. The last sepsis he had caused his death. I am so glad you are doing so well. I will be praying for you.
Iam so sorry. I lost my Dad to sepsis.
I'm sorry about your husband Betty. That is awful.
I'm so sorry xxx should have been my husband he left me 6months ago I have an urostomy plus had hysterectomy he said to me stop getting out of bed in the mornings in a mood plus said nobody is gonna want me now like this,karma has to return the favour I say,rot in hell Ken you bastard
God bless you and I'm sorry for your loss.
@@almamacleod2778 Sad!
Sepsis ain't no joke! Lot's of people die from it, especially the elderly! Glad you are better!
I've had sepsis twice so far- one was what led me to being hospitalized and getting my colostomy. 2nd time was because the surgeon opened my incision in the ER to drain a post surgical abscess and 4 days later I was so bad off I went back to ER and was diagnosed with it again. :O I totally understand how you felt, wish I could have given you a hug back then. I dont know about you, but- its the roughest when you feel so alone going through all this. Your family just stares like uh, I dont know what to do for you...and they are scared and lost. You wish they could read your mind and just do stuff for you without having to be instructed on every little thing. The last thing you need is more frustration like this. See if it was me, I would be like whoa you're barfing, let me get something quick to either have you barf in, or wipe it up, or you up. I would also run to get cold bowl of water and a wash cloth to start compresses to help reduce your temperature and it also comforts a bit too with headaches, etc. But men, and some people just don't get little things like that. Not in my family anyway :( and they should know all this, as we have had to do it many times with them when they were sick, etc. over the years. God bless you and your husband for making such a wonderful team! I hope you guys continue to work well together and take care of each other always. Remember, love and communication, and a great sense of humor is the key. Good luck!
wish i had seen this earlier,my great grandmother just passed away from this,cannot believe how fragile life is
This is literally EXACTLY what happened to me twice. Only in my case, I missed it because of chronic endometriosis, adenomyosis and interstitial cystitis, so I dismissed all my symptoms as being just a flare-up of my normal health issues. It's truly frightening, especially when you're constantly having to fight being dismissed by doctors.
Oh the journey you’ve been on girl... I have such a great deal of respect for you and your courageous heart and positive attitude. Sending you love and light always. 🙏🏽❤️😘
♡ thank you!!
Oh my gosh, I had sepsis, too, and was in the hospital for almost a month...on respirator for a time. Didn't even know I was sick...almost died. So glad you are OK! Don't we have enough to deal with with pooping in a bag?? LOVE to see a video on sepsis. Niurses told me it is the #1 cause of death and I had never even heard of it!! NOT ENOUGH AWARENESS.
@@carolina92861 Woody, the day I went to the emergency room I woke up feeling flu like symptoms. I just felt lousy and then I started throwing up. Something just told me to go to the hospital. By the time I got there, I almost couldn't breathe. They had to induce a coma and get me on a respirator pronto. By the grace of God I survived but it was touch and go for a while. Point is, until the day I felt sick, I had no idea I was even ill. That's the scary part! Many don't seek medical help because they just think they have the flu! I had never even known about sepsis until then. Hope that explains it!☺
@@carolina92861 yes! It was very scary. In fact, when I got home, I kept crying for no reason and couldn't stop thinking about the fact I almost died! Went to a therapist and he diagnosed PTSD! I thought only veterans got that, but, apparently not.
@@jillkoop5682 no, medical PTSD is a thing! I have PTSD-C the C is for chronic because it's something I chronically deal with. Last year I had a mental break down over having to call the urologist again...I had to go to therapy to actually make the phone call. Also, look into post sepsis syndrome, I just found out about it and I've had it 4 times!
@@mombythec thank you for the info! I will look up post sepsis syndrome.
FWIW, my friends noticed something was wrong before I did! Infact, they told my wife if she didn't take me to the Hospital, they were coming over and bringing me! Then the nightmare started!
I feel for you. I got so infected after my colonectomy, it took 4 months to close the wound. I now have a 3 3/4 inch deep by 3x5 mass of solid scar tissue. I had read before the surgery that there was a 70% chance of infection, since its not the most sterile of surgeries. The surgery was performed mostly laparoscopicaly. Here's to a speedy recovery.
Girl....you almost died!!!! You were in deep!! I have had sepsis from pyelonephritis at least 4 times...that's the amount I can remember. I have chronic stones and a year ago they removed half my kidney (it's always the same one, my other one is beautiful) and we were hoping no more stones or kidney infections, but I'm currently battling both. Again. I always knew that I had a kidney infection months before I can get lab work to confirm it, I have inconclusive urine, or positive but the first few antibiotics aren't strain specific so they don't actually work and it's very frustrating to basically know you are going to end up septic before anyone will take you seriously as a patient. Except one time. Once, I was completely asymptomatic and woke up extremely ill. My baby seemed to have the flu, so I had a friend take us both and they were like "he is fine, you are seriously ill", my temp was 105 and I immediately said "check my kidney, check my kidney!!!"....took them 5 hours, and when they did....I was right. After my latest bought of sepsis, I haven't felt right. I overheard a women in line at the store saying she was suffering post sepsis syndrome. I was like....what in the world is that?!? So I looked it up, and indeed have all the symptoms. I have never had a doctor mention it to me once. If you do do a video on sepsis, please check into post sepsis syndrome, there are many videos right here on youtube as well as through the CDC I believe...reputable sources are available is what I am saying. I hope you are feeling better and go easy on yourself! I also hope you are not like me and never have to repeat this scenario again. Happy New Year!!
Ugh that's awful ❤️❤️ I'm a medical laboratory scientist in microbiology, please know that we care about patients so much and try to give your doctors the best possible information/results - it really depends on your doctors to request the right tests and give us proper clinical information though, too 😔 I hope your kidney journey has been nice to you recently ❤️❤️
I literally have the same issue with infection! It never shows up until it’s too late. I also have issues even with my blood work (cbc doesn’t show anything until I’m at a 106-107 temp.) It is so, so frustrating! L
@@KaylaCorrine17 it's the worst! Stay safe, a good doctor will tell you they don't mind you coming to get checked whenever you're not sure....I just had to get a new urologist and told alllll my history. I said, I am really in constant pain in my left kidney area and I just ignore it because now I'm wrong a lot and even though it's killing me, I don't seem to have an infection or anything. He said he wished he could explain why that's happening, but said it's no problem for me to call in and ask for a UA whenever I am concerned that I could be getting sick and it's ok if I'm wrong. I probably won't lol, but it's nice to be told it's ok! I'd be there every week if I did that! Fevers are the tell tale sign for sure! But, kidneys feel pain,something is wrong with the medical information that's out there that says they don't because I am in groups of thousands of people who also have constant kidney pain.
@@mombythec Have you ever heard of LPHS? Loin pain hematuria syndrome. The blood can even be microscopic but causes chronic extreme flank pain.
Oh my gosh! So glad you are home and getting stronger. Thank you for sharing your journey; you’re an encouragement to me! 🤗
Well, you sure went through some stuff. Glad you're feeling better!💗
Nine years ago I developed sepsis overnight. I almost died, I was in the hospital for almost 4 months. It was really scary, I don't fully remember much from that time. I do remember the Dr's telling my family to prepare for the worst. Thank God I made it through.
I'm so glad to see you getting better. When I saw you were in the hospital I sent you all of my happy thoughts and prayers. Rest and let your body recuperate.
Thank you so much April!!
So glad you're feeling better and are home!!!!
Me too! Woohoo :)
My thoughts exactly!
I just started watching your videos. You are very brave and have a good spirit to endure your illness. I hope you get well and feel better😊
I’m glad you are doing a lot better.
I went in for my fourth surgery from having cancer on my pancreas & a tumour near my kidneys. I stayed a week & was about to go home the next day when I threw up & fainted & had a 105 fever & was rushed down to surgery again & woke up with an Ileostomy for life!!! I had gotten sepsis because another operation two years pryer the doctor left a hole in my colon & when they did the pancreas surgery the hole got exposed & that’s when I got sepsis. The doctor did admit it was a hole from the colon cancer surgery which not too many doctors would admit that! I totally was not prepared for this. I now have a hernia & two stomas 4 inch each long hanging out of my stomach which has caused me so much grief but because my cancer has come back a fifth time they have had to postpone my surgery to fix my hernia & my prolapsed bowel. Now we have to get my cancer under control until they can fix everything! So I know how scary sepsis is thank got I had a good doctor/surgeon who knew right away what it was, sepsis! So the battle still goes on! Thank you for all your tips & making people aware on what to look for! Sorry for the novel sometime I just need to release my frustrations❤️🇨🇦
I cannot even imagine what you're going through. You are definitely strong! Keep it up. You are in our prayers. 🌷🌿
My gut perforated in the hospital before my surgery. Crazy painful.
Thank you for talking with us. I surely appreciate you, Dear.
I love your channel. It is my happy place. You are funny, and so down to earth. And courageous. When I saw this video, I was so glad everything worked out. I see other videos where sepsis causes the loss of limbs and/or death. So scary.
PRAYERS FOR YOU AND ALL💕
OMG I'm so sorry you have had to go through all this. Praying you will stay healthier from now on.
That's so scary! I saw everything on your IG. Glad you're feeling better!
It was! Thank you!!
I have had sepsis. I went into septic shock and had 2 cardiac arrests. Scariest experience.
Take care! Thanks for sharing your story
Oh my gosh!! Hoping you are doing well now - that is so scary!
LetsTalkIBD I am doing better now- have some lasting effects but could have been so much worse
Me too. I was on life support but I honestly can’t work out why I didn’t feel scared. I felt at peace...almost reborn? 🤷🏻♀️ idk, maybe the meds🤣. Glad you defied death🙌🏻
Scared 20 year old here. Did you guys pass out or feel as if everything was a blur? Or were you awake
@@JK-td7ky If your referring to sepsis, the answer is YES, along with several other symptoms.
If you have a direct question, I will be happy to try and answer it for you. Unfortunately my comments will come from my and my brothers personal ordeals!
YES, my 1 year younger brother who lives 1,500 miles away within 24 hours were in the hospital for the same thing, "sepsis".
In February 2019, I knew something was wrong. Fortunately the hospital I went to did a blood test immediately! Turns out I was within 48 hours of checking out! Same with my brother 1,500 miles away.
This is when I had my first experience with being "sepsis", along with having a "MRSA"! You will have to look up the MRSA for more information. 9 weeks in the Hospital taking massive amounts of medicines, I was finally able to go home. I didn't realize the seriousness of these conditions until 6 weeks into the sickness. I was able to read a little bit on my laptop. I never knew this stuff has a mortality rate of 80%, I do now! Fortunately, I was one of the few ones who responded "very" quickly to the medications, which I am told is rare! My brother was home in less than 2 weeks, and is doing OK now. I will have to state, my brother and I are a few rare humans who "didn't" required any amputations during, or after the sickness. Again, I was told most loose an arm, leg, or something with Sepsis and the MRSA! I did require another operation in November of the same year. It turns out it was a collateral damage situation which had to be corrected.
Almost 1 1/2 years later, I am watching about everything I do, and especially my surroundings, include what's under my feet!
If you or anyone has a question, I will answer it the best I can. I was very well educated during the hospital stay, and kept it going after getting home.
Wishing everyone the best, Take Care, Dennis
I wish you would do one on sepsis as I had never heard of it til my Son got it after a liver transplant and ended up dying from sepsis. I am so glad you were able to get over it and hope it never comes back. Thank God you are ok.
I did- if you check my channel, I sat down and talked about the different stages. I am so sorry for your loss!
I wish you all the best girl!
I’m happy you are on the mend. What an experience !!
Me too! Thanks!!
Glad you got help before it was to late,good to hear your feeling better take care.
Thank you!!
New subscriber & a fellow Crohn's disease. Your journey have been such a great testimony to me. I've had 3 surgeries this year, a resection/iliostomy and same day they had to go back in because I was bleeding on the inside and they had to find to fix then later on an pelvic abscess that came up and they put a drain in for a month. Third surgery was a reversal of the iliostomy. I take my hat off to those who have permanent ones, i had so much problem out of mine because of high output & i couldn't keep up with the hydration because i couldn't keep anything down or it'll go straight to the bag. Doctors put me on every anti diarrhea medicine but nothing worked & it was 8 weeks of hell & i lost weight now 86pounds at 33 yrs old. God really is real & he keeps us through these struggles. Keep on holding on praying for health and happiness to you and yours..
👋 Hi Maggie 👋
So glad you're feeling better!! What a go of what you went through! Poor Zak!! Thankfully he found the tupperware!! Whew!! Glad your back home and hopefully taking it easy.
Think putting a video out about kidney infection and going septic and what it can lead up to is a great idea. More importantly not to delay treatment!
Yeah, that would be kind of a "what the heck" moment when it's something else that your not use to dealing with. Thankfully it was caught and dealt with. Silly body systems!! Can't they just get along and play nice!?
🌼have a great day🌼rest, fluids and yummy foods🌼
Good grief! Glad you are on the mend! That sucks that the docs missed your sepia as adhesions, but glad you are better ! 😉👍🏻😉
Bless your heart. Thanks for sharing your experience. I learn from you.
Glad your ok and recovered 💕💕💕
So glad you are starting to feel better
Thank you!!
I'm glad you are doing better.
Thanks!!
That's so scary, bless you!
You are such a strong girl and fighter to go thru this..my sister in law has gronnies.
So glad you were able to get treatment I would love to see a video on sepsis since I have to watch for it with having a central line and feeding tube
Awesome! I'm starting to do some research on it and will hopefully get the video up soon :)
I have narrowing of my ureter too and get constant kidney infections. My gp has said that it is more common than people think, and those with more than 4 infections a year normally have some degree of narrowing. Anyway thanks for sharing your story, you're a strong woman! God bless and I hope you stay healthy
Glad you’re on the mend! That had to have been scary. I’d love for you to do a video on sepsis, as I have diverticulosis and had my first bout of diverticulitis in January.
I definitely will and will film it soon! :)
I hope you are doing better. Sorry you went through that. I have Chron's disease myself.
God bless, stay well. Thank you 🙏!!!!!!!!
Glad you're home and on the road to recovery💜 I've been keeping updated on your IG😱..
Thank you ♡♡
Soooooo........glad you are better ! How scary it must gave been.......but I spy with my little eye a beautiful mint cricut behind you........what craft you do with it.....I have had them all since launch of Nov 2006......I currently have the CRICUT MAKER......love my machine........hugs loves and prayers after your recent surgery...
When sothing isn't right check it out right away because stuff get serious fast but I'm glad your beter postive thoughts
I'm happy you are well!
Thank you!
Hello there! Blessings to you!! I've watched 3 of your videos and from this video I may have found out exactly what's been going on with me for the last 2 yrs! I had contacted h pylori but since been eradicated! But this pain in my right side along with a lot of inflammation has cause so many other problems! So many test has been ran and all came back negative, thank God! I knew then there was an underlining medical issue going on! From what you've explained on your right side and the other symptoms, I'm 100 percent sure this is septics! My urine , stools, breath, and body sweat smells horrible like poop! Because I'm always constipated! Even changed my diet but it doesn't help any!Though the doctors say they dont smell anything I'm very aware of it as well as those around me! I go in for another colonoscopy next month and I'm praying to the almighty God this will put an end to my suffering! Thank you so much for sharing your story! I'm sure it will help plenty of others who are going through something like this! New subbie by the way! Have a blessed one and i pray for better health traveling thought this journey!❤🤗😇
Interesting, I didn't experience anything you stated above. Everyone is different! I do have a longer post above.
Take Care, D
Glad you are better
Glad you're feeling better. I had a sepsis episode last April. In March I had a bowel resection for colorectal cancer. After surgery I proceeded to Iose 17 1/2 lbs in 5 days because of nausea from what turned out to be one of the pain meds. Got discharged 7 days after surgery and a few weeks later I started experiencing a pain I never felt before in my buttocks area. I could only get 2 hours sleep at a time before the pain woke me up. It was a dull constant pain that wouldn't subside in any position I placed myself in. 3 or 4 days after the pain started I began to get symptoms that led me to believe I had the flu. I had body aches and I felt extremely cold all the time. The flu symptoms started on a Friday and got worse over the weekend. I was experiencing a low grade fever, 100 to 101. I already had a Hematology Oncologist appointment on Monday and he saw how bad I was and sent me to my surgeon to get an evaluation. I had a heart rate of 112 bpm (normally I run in the 70s). The surgical team wasn't sure what was going on so they sent me home and told me if I didn't feel better the next day to call. I called them and they sent me to get a Ct scan. While waiting to get the CT scan I started to feel even worse. My wife said I should go to the ER instead. At first I said no but I reconsidered. Good thing I did. By the time I got admitted to the ER my heart rate was between 130 and 140 bpm and I had a low grade fever still as well as the body aches and chills. They went ahead and did the CT scan and found that my bowel resection leaked causing an abscess in the area of my buttocks and thus the pain. I also had my blood tested and they found I was bacterimic (bacteria in my blood) which caused me to have sepsis. They inserted a manual drain pump in through my butt cheek so I could drain the abscess and they admitted me to the hospital for 4 days and pumped me full of antibiotics to kill the bacteria in my blood. Thank God I went to the ER when I did. If I had waited any longer I may have gone into septic shock and then my life would have been severely in jeopardy. I did research on sepsis and some of the symptoms I had were early warning signs; low grade fever and higher than normal heart rate. I think I had the body aches and chills because of the abscess. I also learned post operative sepsis is rare, only occurring about 1% of the time but if the surgery involves major bowel surgery then it occurs about 5% to 8%. My surgical team never warned about the potential for contracting sepsis ( probably because the chances are low) so if you have major surgery especially on your bowel make sure to ask them about it so you know the other symptoms to look for. It could save your life. I had no idea I had sepsis. I just got lucky.
Wow I'm so glad you caught it! Sometimes the symptoms are not even too outrageous, like a slight fever or slight increase in heart rate. It sneaks up on you!
You so strong. I had s gastro intestinal perforation stemming froma vulvelus ..intestinal knot causing a bowel obstruction which caused the colon to start tearing.Peritonitus is not fun. Half a meter of bowel cut out..sigmoid and rectum detached and wearing a colostomy bag for now until the reversal can be done. Had begining stages of sepsis but got caught early enough.
Hi there..
I am in memory care i have two with ostomy care and i have learned so much from you.. ty ... they have about 5or 6 mini marshmallows afterceach meal... that wascto thicken and less gas... it seems to work on ocassion
I was in lots of pain 4.5 weeks ago i was feeling sick but didnt throw up i had a fever and went to the hospital.... well they did remove my appendix just a few hours later it was inflamed a whole lot im glad it didnt break ... we all know its causing sepsis too
Im glad you are ok and nothing worse happened to you ♡
Oh wow I'm glad you're ok. It was really surreal hearing you talk about your symptoms because they sound a bit too familiar to my every day for the past 3-4 years and I forgot that that stuff was actually abnormal. I mean thankfully I didn't have as bad of vomiting issues (though I'm on Zofran daily because it's still pretty bad). My heart rate regularly goes into the 140s basically whenever I get up and I pass out sometimes if I'm not careful enough or if my body is just having a bad day I guess. None of my drs know what the deal is it can be super frustrating. Currently blaming most of the symptoms on MCAS and POTS and maybe some mystery connective tissue disease but idk. Like those aren't my only symptoms it's just weird to hear them like that. Like hope I never get sepsis cuz we'd never know
Oh boy I was going to ask if you had POTS! Hopefully you won't ever have this experience!
Maybe you have anemia?
Get better soon x
Thank you! Working hard on it!
Hi Maggie,
So glad that you are getting better! I’m sorry that you had to go through all of that. I have had kidney, uti, problems since I’ve had my colectomy. This year I’ve had two kidney stones with uti’s. At separate times. Just getting over the 2nd stone. I still have one stone left in my right kidney. When you started explaining your symptoms I immediately thought you had something like a kidney infection or something like that. So I’m glad you got it taken care of. I’m also anemic and take iron pills every day. Well I just wanted to share a bit of my story with you. Take care!!💕
Oh man that is no fun!! You'd think our bodies would choose just one system to mess with :)
I'd wondered what was going on and thought you had said bye bye to your colon. Anyway, thnks for letting us know.
I'm 24 years old..and I had a really bad bowel obstruction and figured out also had a hole in my colon ( which resulted in me getting an ileostomy )..went septic ( had no clue ) , finally went to the hospital by ambulance, ended up having only 6 pints of blood in my body by the time I made it to the ER..very scary..So glad you ended up being okay!(:
Wow I know some of your pain had my colon burst went septic spent 6 months plus cleveland clinic 10 surgeries later and 2 years almost bag for a year I'm back also 2 cardiac arrests thank god for Cleveland clinic they saved me
Maggie, you are awesome
Glad you are on top of it. Sepsis kills. Sucks too.
I can relate. I am more then likely be having back aurgery. Everytime I leave the hospital I sing my heart out.
Aww man! Good luck with your surgery!
Thanks but first we have to see what the MRI NBA shows and I'm nervous sick. I don't feel good about this. If all is wel, they can fuse the bone back in place.
I wish you to have a normal life as much as possible. 💜
You're such a brave girl 😘
Thank you!♡
oh sweetie. I got to go all the way to septic shock. Loads of fun. Please be careful with yourself. Sepsis takes a while to totally get over. There is something called post sepsis syndrome. It's all kinds of little things that are from having sepsis. It can be anything from random aches to memory loss and it can cause issues with your teeth later on. You poor thing.
Can you please pm me
Hi Maggie! Just seeing this video for the first time. Wanted to say that we have the same color Cricut!
I had sepsis once and spent a week in the hospital it was no fun at all they thought I might die but luckily the meds worked and I'm doing good today
God bless you.
I feel so bad for her she is always in good spirits reguardless
😊
I'm so sorry sweetie! That actually happened to a friend of mine with no warning. So glad you're better
I feel for you wholeheartedly. I have gone fully septic When I was 21/22 due to a kidney stone blockage. My kidney was blown out With a severe ecoli infection. I spent a week in the hospital with a fever of 103-105 degrees and had to have 2 surgeries for the stone, infection, and subsequent stents to save my kidney. Sepsis is no joke I was barely conscious from two days before the hospital till about a week after it. I have a chronic kidney disorder that makes stones so I fear for another stone causing a blockage one day.
I have experienced sepsis as well (and then septic shock) but ended up getting endocarditis as a result. I was rushed to the ER and ended up in the hospital for 6 weeks with a PICC line giving me antibiotics.
I finally told the nurses they "couldn't" keep probing in my forearms looking for veins! Both my forearms were black and blue from the 3 day hep line being replaced, blood test, and whatever else they were doing. Plus with massive opiods, my forearms hurt 24/7 from all the "searching" for veins.
That's when I had the PICC line put in. It was like they were waiting for me to first ask for it before they approved it! It took several months for my forearms healed!
I'm so glad u feeling I was in ED myself my G tube was infected colitis
But doing better yo on antibiotic
That is tough! Glad you are doing better now!
So glade your feeling better unfortunately I have been sepsis 3 times once as kid and 2 times as and adult it’s horrible and your right the symptoms are very vague in 2016 it was missed I was the same your high fever the couldn’t figure it out sent me home when back less then 2 days same symptoms I had an intestinal infection 9 days in ICU 🥺😢🙁
Oh my gosh!! 3 times is too much!
I had pyelonephritis when I was 16 years old and wound up going septic. I had a fever of 104.7, I was peeing blood and I couldn’t even walk to the doctor’s office from the car. And that is a relatively small parking lot. I think I spent almost a week in the hospital.
Prayers going out for you too heal from sepsis) 🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏❤️❤️❤️❤️❤️🙏🙏🙏 🙏🙏🙏🙏)))
I was In the hospital for a few days shy of a month from MRSA bacteremia. Went into septic shock as well. Heart and lungs ended up involved. Mine started from an infected port. Was already in the hospital for a week due to PEG tube issues and they didn’t catch it. Thought it was a rash not MRSA. Was in the icu for 18 days. Thought I was going to die. First time septic n first MRSA infection.
So pleased your on the mend. I had something same happend to me I thought the pain i endured for 9 months was indigestion. My Gp sent me for ultrasound turned out to be gall stones. I had no idea the pain was due to that. like you i carried on till one night i started shivering and spikeing a temp. I was rush to A/E my pancreas was inflammed. My stoma had doubled in size. Cut long stoey short i was on iv antibiotics for 3 days then the surgeon told me i needed to have emergency surgery to get my gall bladder out as it was packed with stones. After 7hour surgey because he had to cut through many adhesions he finally got my gallbladder out without damaging my stoma
After when the surgeon came the next day he said it could have killed me if it had been left. I didn’t realise i was so sick. Like you i have crohns i thought the same i dont need anything else to deal with As crohns has dominated my life. So i gues im very lucky to be here ..
Sorry it a long story. i thought id share this. I hope you start to feel better soon Take it easy xx💕🇬🇧💐
It's crazy how we can blame Crohn's for everything because, for the most part, it has been Crohn's fault. Definitely going to listen to all symptoms a little more closely and quit ignoring things! Hoping you are doing much much better now!!
Im doing fine now ty 😊
I had this happen as well tho I was just entering the sepsis stage when I made my way to emerge. I also had no I dea that I was harboring a terrible bacterial infection in my kidneys for about 2 months
It definetly sneaks up on you, and then, BAM!
Once you feel it, you better get to the hospital quick! I actually felt myself shutting down, a very weird feeling.
@@LiPo5000 How were you guys diagnosed with sepsis? Through regular blood test or blood culture looking for bacteria?
@@tori4297 When I realized something bad was going on, I went to the Hospital and told them I felt as if I had a UTI, but wasn't sure. They took blood, then the next thing I know 7 people were in my room doing whatever! I stayed in the Hospital 9 weeks making sure I got rid of "everything". They took 2 vials of blood, that's it, nothing else was collected. So to answer your question directly, I don't know how they determined exactly what I had. All they had was my blood. And I just knew it was bad. I was very fortunate as I didn't lose any limbs, or organs during my sickness. Not to mention the infection/bacteria has a very high Mortality Rate! For some reason, I responded very quick to the Vanco and other meds I was taking! They stated this is not usually the case. I have heard of some people taking over a year to get rid of a MRSA, bacterial infections, sepsis, etc., and somehow I fit into the 20% group who accomplished this, along without losing any body parts! No collateral damage whatsoever!
I am still amazed by this, and I am still studying everything I went through. Fortunately I have relatives, one who is a "Infectious Disease" Doctor (note: he was not involved in my recovery), another one who is a cardiac surgical nurse, one who is a Cancer Nurse-specialty unknown by me, and some who are RN's and other medical fields.
I had my first back operation sometime before the year 2017, I don't remember the exact year.
Now . . . .
FYI, for the record, I had back surgery-L5 in Jan 2018. I started having problems in August 2017, but waited until Jan 2018 to have the operation, which was mandatory in my case.
Feb 2019 is when the **** hit the fan resulting in me having 3 more back surgeries-L3, L4, and L5 again, and two L knee surgeries. I mention this as they told me the MRSA starting point was between the metal and my vertebrates! 9 weeks spent in the Hospital for all of this. But . . . I am still here!
If I had to mention something good about all of this is the fact "ALL" the metal they installed in L3, L4, and L5 was removed permanently! These rods were literally a PIA 24/7! It sure made a difference with all of it removed. The Doctor states the MRSA is probably what caused a lot of my discomfort, but now it's still a mystery.
Sorry for the long response, maybe it will help someone else somehow. I am having a great morning, hence I felt like writing my story! Have a great day! Dennis
I noticed you mentioned Busch Gardens. Do you live in Va? 757 area? If so, curious about which doctors you go to. I have stomach issues but no pain and need to get checked out. I’m by the Busch Gardens in Williamsburg
We actually live up in Pennsylvania, but travel down to VA sometimes! Sorry!
Did you take regular bloodtests before this incident or? Wouldn't kidney infection etc be visible on bloodtests? Anyways scary experience, thank you for sharing.
Not typically, unless you have entered sepsis territory. They need a urine test and with a rapid urine test they can get some idea of if you have an infection, but not always. They culture the urine to then see if it grows over 100,000 colonies of bacteria and if you are lucky, they will identify the bacteria as well to make sure you are on the correct antibiotic. This system is far from flawless, for instance 2.5 weeks ago I went to the ER...my rapid urine "looked fine", the culture they took was inconclusive. I happened to have a urology follow up the next week where my rapid also looked fine, but my culture showed an infection...which was discovered/ treated almost a week later due to the timing of the collection and the cultures take about 72 hours. So....that entire timeI had kidney pain and they gave me bacterium which I have little faith will do the trick, it could, but it's not recommended for pyelonephritis so...we shall see.
God bless
Admire you young lady~
Do you think it is common to have alot of kidney infections with crohns disease. My daughter is 9 and all her life has had UTIs and kidney infections. Had a few bad times were she was hospitalized like you with high temps that wont go down.
I'm not sure! I haven't seen a whole lot of correlation between the two but there may be some IBD-related reason she is getting them!
Do they know what caused it?
I've heard sepsis can carry permanent disabilities afterwards. Do you have any lasting effects from the septicemia? I hope you're well love.
You can read my story above, or wherever it is now. Fortunately, I didn't have any "lasting effects" from my experience.
I’ve have sepsis before in 2015. Nearly killed me. But made a full recovery. I know hoe she felt/feels.
It's awful, isnt it?
Very awful. I had several doctors/hospital staff tell me once I recovered that they didn’t expect to see me alive again.
Did they not take urines and blood cultures immediately? That's weird, in my hospital lab we get blood cultures on anyone who has a fever of unknown origin.
They did
How do you pass gas? Or do you simply not get gas when you have a stoma?
Its called burping the ostomy bag ^~^ u can still pass gas
@@pastthecastlewalls1786 .👍
Can someone tell me what the symptoms are for sepsis? So I know what to look out for. Thanks.
Most people have a high fever as one symptom, but I never did. I went into septic shock. It took 4mths in the hospital for me to recover. I am not certain at what point I became septic. My #1 symptom was acute pain, diarrhea, nausea, and vomiting. I literally could not move due to pain. I live alone, and kept falling out of bed. I tried sleeping in a recliner, or the sofa, thinking I could manage better. I thought it was a severe arthritis flare. I could not walk, get up, etc. My son came over through out the day, and night to care for me. He knew it was something serious when the lymph nodes in my neck became severely swollen. They had to transport me by ambulance due to the severity of the pain. The staphylococcus aureus was in the intestines, and permanently damaged parts of the spine. I had to learn to walk again. Everyone is different. I knew something was seriously wrong, but at that point, I was also hallucinating & delusional. I was on the verge of death.
Did they ever figure out what the pressure around your stoma was from?
It was the kidney behind which was infected. It still gives me issues (have a narrow ureter so urine can't leave my kidney as fast)
What would you do if you were alone?
U are so pretty
I became sepsis while was in hospital. I stay there total of 6 weeks. I had a tube inserted in my anus with a jp tube .gallbladder drain and kidney drain. I definitely understand what you went through. Glad to you doing well. 👍
you were lucky, my grandpa died from sepsis
you never had dysuria?
I need help asap
Glad you are feeling better! BUT a person like you with an extensive medical history should not have waited so long to call your Dr. just saying
I know! I'm a bad patient - a stubborn nurse :)
LetsTalkIBD I only think of these things because my daughter who is 22 has Ulcerative colitis. Stuff like this is ALWAYS on my mind lol 💗
@@LetsTalkIBD the thing about us nurses is we try to treat at home before we go get seen lol
My doctor told me to never medicate a fever because 1) it has an important job to do and 2) it's the only real way to measure the severity of my illness. She said if it's that high or goes on that long, they will medicate me but they want me there to keep an eye on closely. Word.
Frugal Foogle it is not the only way to measure the severity of an illness, and a severe fever will not respond to medication. Sepsis and a cold are different thing entirely.
I know all abojt colostomy issues with explosions. I only tell you this maggie because I have a colostomy and I don't know what a colectomy is but I did have my rectum taken out August 1st 2007.
It is quite annoying when it happens! And a colectomy just means removing the colon :)
@@LetsTalkIBD I don't know if I had that done or not but I had some of my intestine removed and I had my rectum remlvdd. I am embarrassed abou my colostomy but alana arbucci and carisa barke made me feel as though I'm special on here and they told me that the unfortunate thing is there are mean people on ere who won't take the time to understand what we are going through maggie I say we becahse I've been in the hospital many times and I've had 53 surgeries and I'm getting ready foe back surgery. I told you about my colostomy because I want you to know you are not alone. I had my colostomy put in when I was 3 years old. That was 32 years ago. I liked it at first but since elementary school they saw my colostomy bag and made fun of me. I had a teacherfrom 3rd grade to 5th grade hollering and yelling at me when my bag leaked and until I saw your videos I thought I was broken and and disgusting and maggie it would hjrt me if anyone made you feel that way. My little sister my mom took in with her brother she would love your videos and if she thlught somone was not nice to you she wluld lash out. She encuaraged me to show her what my stoma looks like I have a nephew who complained about it ad my baby sisger now q2 years old lost her temper over it. I did not wnt to have my rectum out in fact I didn't care if I had to risk losing my life just to get rid of my colostomy. If I could dk it I would but my 12 year old sister and my 9 year old nephew to, d me they would always love me and they just couldn't handl losing me and whysper and a friend of hers went out of their way to comfort me and make me feel like I'm not broken. I was special to them.