Proctocolectomy Surgery: The Day Of | Let's Talk IBD
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- čas přidán 19. 12. 2019
- Zak filmed a little bit of the "behind-the-scenes" of my proctocolectomy surgery that happened December 13th, 2019. That's right folks! I had major surgery on Friday the 13th!
Everything went well and I will continue sharing the recovery.
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I’m on my wife’s phone, while she sleeps in her hospital bed after her colostomy surgery today. This is all new for us. UC symptoms started less than a month ago and she had to have emergency surgery due to a severe tear. She got out of surgery 11 hours ago so I’m trying to do some research to help her out with this new lifestyle. Thank you for all your content that you post for your viewers with IBD’s, and their supporting husbands!
How awesome is it that you are researching for her right now? What a supportive husband!
Maggie you r such an inspiration! I watched all your vids before my own colostomy surgery in May. You made me much less afraid and much more confident I could handle what was to come!! I am old enough to be your mother (I am 50!) but you have given me soooo much comfort in these past months! Now it’s your turn to take all the positive energy you can from me and all the other well wishers! I pray for a fast and pain free recovery! I look forward to all your future videos and watching you blossom after your recovery!! God bless you and Zack!!
You will feel much better. I had that done 47 years ago I’m 65 and still going strongish, lol good luck!
you got your stoma at 18?
So brave , esp for sharing such a traumatic experience ,
I might have to have this surgery in the near future and all your videos have demystified the process hugely for me,
Thanks Maggie and Zack for sharing .
Ho-lee-chit! I'm thinking a big transformation in you this year. Much prayers, hugs, and blessings for your recovery😘
I’m so thankful to have discovered your channel! I had my pre-testing today for my total proctocolectomy surgery scheduled for next Monday. I also have Crohn’s. I’m thankful for people like you who can go through it with a smile. Thank you for being such an inspiration ❤️❤️❤️
Four years with Colostomy and I wouldn’t go back after 20 years of suffering life is too good!!!
I’m having the full operation next year early next year as stage 2 abnormal cells of been found in my colon , I had crohns for 20 years and feel it’s time I got my freedom back , watching your story has helped me come to terms with my condition, many thanks for sharing your story and get well soon
You have taught me so much. Thank you for being so brave and confident.
Wishing you a speedy recovery into the New Year. Cheers.
Very anxious to see your next videos! I had a meniscus repair and femeral hardware removed and thought I was excited, I was allergic to the titanium rod!, but you put me to shame! The joy in your eyes said it all. Cannot wait to see the new you! Take good care of yourself!
Hope you feel better soon your so brave, I actually started crying watching this because I have crohns disease and its been tough for me lately and knowone understands so thank you for this video love to you xxx
You're a brave girl.. Stay strong as always. Hope you recover quick.
Bless you sweetheart. I'm praying for you.
Thank you for sharing your journey. You have helped me so much with mine I have Crohn's disease was diagnosed in 2018 and I've had a right hemicolectomy done in October this year hopefully it will help a little. Hope your recovery is going well. X 😀
Get well soon Megan. I hv been in yr situation. You will get better soon hanging in there ❤️
Best of luck and prayers in this new chapter of your life🙏🙏🙏
Sending you prayers for strength and fast healing...🙏
Hi Maggie hope you're recovering well. Sending hugs and healing prayers. God bless you and a happy new year to you and Zak. Xxxx
Thank you so much Ann!
Hope you feel better soon sweetie ❤️❤️ sending love and prayers
The sun through the the window looks like an angel is hovering over you. God is watching you my sweet girl!
Hi Maggie... You are such a STRONG person...and Beautiful...I will always keep you in my prayers... God Bless, Kathy from Hawaii🌺
I just had my colon removed on 12-09-2019 .. Im on my 3rd day at home pretty sore but much better than i was before.. Hope your well and Merry Christmas...Happy Recovery....
Get better soon yeah👍
Happy new year have a bless one , 🎊🎈🎆
Bless you , hit 10 years myself in may 2019 been delaying this op for two years till my little boy is old enough, wishing you a great recovery and fresh start to life x
Que valiente eres , todo un ejemplo a seguir en aptitud , tus vídeos dan fuerzas en el desánimo y el miedo . Eres una luchadora !
I hope that your recovery is without and set back. I wish you the best.
Maggie, after my colostomy surgery four months ago, your channel was most helpful to me and I have kept up with your journey since then. Your courage and upbeat attitude set a great example for everyone. I'm so glad this is behind you now, and you can begin to heal and get on with your life. I'll be watching! (Washington state, 67 years old, cancer patient with rectal tumor.)
Oh my goodness, thank you!! Hope you are doing well with your colostomy ♡
@@LetsTalkIBD I am now, thanks. "Perky" and I are getting along great but there was a definite adjustment period. I hadn't expected that. I thought I'd ace having a colostomy, since I had had an ileostomy four years ago for several months. But this was a whole different experience. We learn and grow, right? Keep up the great work! You are inspiring people who need a lift.
I hope you have a good recovery. BIG HUG FROM COSTA RICA
Just got told today that I need a proctocolectomy. The GI said it was my only option. He said my life would change for the better
Please subscribe 🙏🙏🙏
Your a brave girl my dear.....Peace n good health to you n yours....
I'm going to cry rn when I saw ur video for very first time, and I dunno why I feel my body hurt too, but when I see ur smile, was really made me cry, you look like you were fine, but we know u were struggle too much for this. You inspired anybody trust me. You absolutely amazing! You'll be okay, and moreee better, God bless u beauty! Btw I'm new here, and subscribe u also.. Biggest luv! 💙
Had the same op 15 years ago . At the moment you will not realise how much better your life will become, but it will. Little steps and don’t forget you have had a massive op! Eat, Eat, Eat!
Hope you are healing well warrior girl. I just had my ileostomy. I am new to being an Ostomate. I feel so much better than I did with a non functioning colon. I still have Gastroparesis, Rectoceles that are where my lady parts were so might be going for a second surgery. Wait and see pattern. I wish you great success with your surgery strong brave beauty 🤎🤎🤎🤎🤎🤎🤎🤎🤎🤎🤎🤎💚💚💚💚💚💚💚💚💚💚
My thoughts and prayers are with you... ❤️❤️❤️
God bless and love you Maggie! I truly hope with myheart you recover well.
Wow glad your surgeon was able to get it all wising you nothing but the best
I feel for you. I had a total colectomy 35 years ago for UC. Luckily I had a j pouch formed a couple of years after the colectomy that is still functioning ok. Since the surgery I have fathered 3 great sons and have been continuously employed. Life does go on.
Have you sorts of incontinence problems with that surgery, maby by the nights? Because I have a lots of this?!
Go girl, God bless you guys
You are one brave woman!
Maggie your smile is the best it brings a great smile to my face
♡!😭 dont make me tear up!
@@LetsTalkIBD your great don't cry
That lady! I love her, caring enough about your looks on the video.
I'm praying you are doing well and comfortable at least. Sending you lots of love xxx
I am definitely getting more comfortable each day!
So impressed by your bravery. The rest of us don't know how lucky we are. Best wishes.😉
Had a proctocolecyomy in '13. Was rough at first , but after the first year you start to get the rhythm of your new "normal" toileting... Still better than U.C.
I know a man who had his colon removed when he was forty five. He recently turned 90. Myself, I had a right hemicolectomy in 2003. Good luck to you!
Maggie I’m 54 and I just found out I’m facing a live with a bag and I terrified. I’m so tired of being sick all the time but when I see your sore skin and all the battles you are fighting it scares me even more. Has your life really improved with the bag? You are so positive and beautiful it makes me feel like a woos but I can’t help it. I’m so scared of infection and sore skin I just don’t know what to do and I can’t stop crying
Hi there! While I show some of the battles I go through with the ostomy, it has been far better than life before I had one. I know everyone's story is different, but I was so sick and spent hours in the bathroom every day before I go the ostomy. I'm not sure I'd be alive today without it! There is also a huge wonderful community online of people with ostomies who are always willing to help troubleshoot issues! I hope that if you get the surgery, it gives you some relief with what you are dealing with!!! ♡
Kymmer, hope you re In a better place health wise . Best wishes from the UK.
💙sending you love and prayers for a speedy recovery Maggie💙Rest and DO NOT worry about the updates right now💙You got this girlie!! 👍 Just take one moment at a time. 👍
Its been one hellva journey for you and honoured to walk the journey with you! Keep your head up and keep smiling. 😃 🙂
I have a temp colostomy and I know I’ll be In your shoes one day. My Crohn’s is so severe that reversal is something I don’t even want. This disease steals so much from us. I’d rather be with a permanent bag than to let this control my entire life. Surgery after surgery is so much on someone. I’m 24 and had 6 resections
Before a bag. Sepsis landed me In a bag.
Decided to keep mine. Reversal is significant surgery and having a bag is no big deal anymore.
Hi Emily 1981 i received a colostomy and i am still going strong , i was the first FDNY fire fighter to work full duty with one.I think its the way to go,hang in there.nick
You are so strong and brave.
I'm going through the same problems. At Doctor's office now finding out date of my surgery. Hope you get well soon.
Good luck!!!
You talked well hope your ok good hospital thank you for sharing I don’t hate to worry about that thank god but I’m happy I understand it better now
Best of luck, get well soon
You are a really2x brave girl. I'm feel nervous. While i'm watching.. take good care.. god blessed you always..
Get well soon my prays are with u
cherish every moment in life
Good luck and god speed
Wow 😔 you are brave.
I can't even take my gallbladder out, cus I'm so scared...... You are brave 💜
such types of situations are there and we still out there and ungrateful for the ourhealthy lives and continuesly complaining for litttle things which even doesnt matter,...stay strong dear and be as lively as u are,,u guys are inspiration ..dont think that y thsi is with u ,,coz suffering is also blessing ,if u dont want to suffer intentionally ..it is test by Almighty for His strong ones...
You’re a beautiful and brave young woman!
Oh you poor thing! Hoping this will help you live a life feeling a lot healthier ❤
I'll be ok! Yes - hopefully will bring more health!
Much ❤️ from Nashville
Bless you darling I bet you're husband stays with you my husband left me six months ago I had my bladder removed plus hysterectomy xxx
Bless you brave soul 💕🌸
You are amazing!
Happy new year Wishing you well good health
I just found ur channel. I'm unaware of ur whole story. But as a nurse I'm catching up. May God bless you thru ur surgery and recovery. You were so excited for surgery, u were beaming. And u had some extra findings that lengthened surgery...😥 I hope u didn't suffer any ill effects from 6 hrs of anesthesia. (the pukes) I'll catch the post surgical video.
Sending love💜💐
I'd be scared to death! I have severe IBS and it's pure hell on earth! Prayers for you sweetie.🙏🙏🙏🙏❤❤
I had Ulcerative Colitis for 3-4 years. Tried all the drugs. Some worked for awhile but it always came back. Had to be admitted to hospital urgently for IV steroids three times. Finally decided to have the operation. Was out of hospital in a few days although they say normally a week. Had bag for three years now. It's really not bad. Can't feel it most of the time. Doesn't stop me doing anything. Can swim etc. Don't need to eat fibre anymore! Wish I'd had the operation sooner.
I love your dad's beautiful deep voice. So charming 😀
god be with you sweet lady
I m gonna get admitted to for my surgery next week. fully scared now ,hope everything will be alright.
How Crazy! I had 10 inches of my colon removed on December 13th! My dog knew something was going on and when I was at the hospital she ended up having seizures, My daughters friend ended recommended she use cbd oil for her and it actually worked. hope your feeling better, I am slowly.
Omg 😳 god bless you may god help you and heal your pain
Bless you.
Im praying for yu my dear waww yu inspire me thank yu so much🌼🌷🌷
Those socks are my favorite part of having surgery
blessings, get will soon
You are amazing lady xxxxx
Wow... I'm so glad I've found ur channel... There's soo many qstns I'd love to ask u... I have crohns disease absolutely nothing has worked I've been on every medication even the dreaded humira 😡 .. My liver is now being effected.. I've got scars.. Strictures.. Bowel thickening.. & I've seen 3 consultants & they sed my small bowel doesn't Even have any good bits for them to do surgery in other words there's no surgeon that wud do it.. But I never knew u cud have Wot uve had done.. I'm almost living on fortisips drinks.. Anyway hope your doing 👌... I'm Amy ❤️
Everytime I click on he bell it says there is an error. I love your videos maggie nd I pray you have a smooth and peaceful recovery. I am sorry if I mispell anything. I have chronic back pain and I think I'll be having surgery myself and I already had 53 surgeries
Shoot I'm not sure why that is happening!
I never had that much fun in the hospital.
Good luck beautful Maggie
No início do ano meu marido teve que remover todo o intestino grosso, devido os pólipos. Aos 12 anos ele foi diagnosticado com colite ulcerativa. Ficou 9 meses ileostomizado, e está com 25 dias que fez a reversão do intestino. Está se recuperando muito bem. Os médicos estão satisfeitos com o resultado.
God bless you I hope you are feeling better and your life has come to normal... I am going to do my operation soon for endometriosis which is about scar tissues.. Pray for me please 🙂
Wow, you’re an amazing woman. I would have been a wreck if this had happened to me at your age.
Animals know when we need them xxx
God bless you
Happy 2020
I had the same operation 24 years ago. I have a j pouch.
I hope you are doing well!!
My brother almost had to get a colostomy bag also
You never answer any of my comments yet. I also messaged you on IG. But here is another question. How do you think that fistula on your tail bone affected you? Because that's what I think I have and so I get cold chills when food passes parts of my bowel. And why could hey not see that on scans?
God bless you
i had my large intestine removed in may 2018 due to colonic neuropathy, best decision i’ve made 💗🦓
Getting this surgery on March 16th!
Hi Maggie and other youtubers I might have to have a proctocolectomy done and I am so worried, nervous and panicking about it. I'm scared of the pain that comes with surgery. Is the pain bearable or do they give you anything to combat the pain?
Yes, they give you medicine for pain! I highly suggest getting a waffle pillow for sitting and even laying down - it is very helpful for shifting your weight back and forth because you can put pressure directly on the incision. Good luck!! ❤
Does the medicine get rid of all of the pain or does it lessen the degree of it. How much does it hurt when you're on the pain medication
Also do they have single incision Laparoscopic surgery as an option?
I love your videos. I had my colon removed to in November 2019.
Same problem
Good hospital
May I ask what your ferritin level is?
Please someone tell me im just diagnosis with mild colitis
did I cry? maybe