HOME from the HOSPITAL ! | Let's Talk IBD
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- čas přidán 26. 12. 2019
- I was so fortunate to escape the hospital after my proctocolectomy (Barbie Butt) surgery on post-op day 3! Here are the first few days home, learning to walk/sit/and manage pain.
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Thank you for everyone who joined live for the premiere! I hope you all are feeling as great as possible & I will see you soon!
Great to see you again! I'm looking forward to your next video already! I can definitely relate to how you're feeling after this surgery. I hope you feel better soon hun. I would enjoy talking to you again. Please feel free to text me 813-703-4230 or email me at
sari.kitty84@gmail.com. I hope you and Zak and the doggies have a great day!
03421128065
iam newest fan i just start do asmr videos and then your channel came in my list so i click to one of your videos and i like it so much my dear now im biggest fan of you
im sad when i see you in pain i will pray until i see you you without pain and cure completely ❤️🙏
big love and hugs to you from arabic Assyrian heart
i really like to be your friend and you my role , amazing heart GOD BLESS YOUR LITTLE HEART ❤️🙏
I admire your strength. My love and prayers are always with you! 💕💕💕💕
So happy for you Maggie!! You look so good!! Cannot believe this is only post op day 5 and look at you go!!! Look forward to your next video as you continue your recovery 👍💗
You are looking good girl. Speedy recovery to you.
Thank you for filming your journey through Crohns! My husband is dealing with Crohns and it is so amazing to hear from other people who are also going through a similar thing!
Sending you so much love from Dublin Ireland. I had my surgery on my bottom in June 2018. You are doing amazing. Such an inspiration to me and others. Xx🇮🇪💚☘
You are my hero! You are a strong, strong woman! I’ve learned so much from you, thank you for sharing! Bless your sweet heart❣️❣️
Hi Maggie. I've been following you for a while now because I wanted to learn more a about IBD and your day to day life. I suffer from an autoimmunity condtion which has totally changed my life. However, watching you makes me feel like a wimp!! You are so inspiring and I love your spirit. One my bad days I think of you and it gets me up and going because my condition is no how or way comparable to yours and I know you're not wasting a moment of life. I have four pups, 3 Yorkies and a pit. They were all rescued and always know when I'm feeling bad. Good luck on your healing journey. I'll be watching from NC!!
You’re amazingly STRONG, really inspiring
Hope you have a healthy relaxing life.
Stay strong
Hi Maggie and Zac, seems to me that you two young folk are not only brave but rather an example to us all. I’m and old man in Australia and I have tell you both that you are simply put , an inspirational treasure who in my mind are a blessing to so many folk. God love you and keep always .
You look a whole lot better than before the surgery. You have a very brave approach to your illness. Bravo!
Hi Maggie, I’m so happy to see you up and about so soon after your surgery. Your videos have helped and educated so many people,thanks for getting out there and doing this.
Thank you for the update. What an inspiration you are ......
I hope each day you feel a little bit better...."little tiny steps then up and over...". X x
Thank you so much!!
May God ! Continue to bless you. Keep you with great spirits and give you the strength to carry on. You may dear are a blessing to us all that think they may be going through something......Thank you.
Hi love! When I had colorectal surgery last year I had a wound to pack that, when I would use the restroom, the packing would fall out. So I was using a female urinal. While unconventional and not my favorite, it prevented the packing from falling out every single time! 👌🏻
Hi Maggie, I’m so happy to see you doing well. Recovery from this type of surgery is not for the faint hearted. Love & best wishes from Kit in York, England. X
Thank you so much
Hello LetsTalkIBD, Thank you for sharing your "journey." Best wishes to you coming from us, Bob & Linda in Ontario, Canada.
So glad you are getting better each day ❤️♥️
Me too - thank you!
You are such a beautiful strong woman! I thoroughly enjoy your videos. I have lived with Stomach Issues for many years and still do. You help me stay so positive! Thank You!❤️
Aw thank you so much!!
Hi Maggie
I'm JJ and I just went through Colonoscopy Surgery a few months back. I'm coming along pretty fine for now. I have watched you videos and they have made realize how lucky I am. I really hope your doing well and better as time goes on. You have given me more hope and I want to thank you for that. I'll still be doing more testing and keep hopeing for the best. I also hope for the best for you.
Take care and God Bless. JJR.
My daughter is having this op on Thursday in UK I’m terrified but seeing you gives me hope things will be ok.
Just came across your videos going to watch them you're such a brave girl 😘
You are amazing Maggie love you loads xxx
You are such a brave young woman. I have diverticulitis and I recently had an abcess that was perferated. Now I have a colon bladder fistula. I'm scheduled for surgery the end of January. There talking about removing my whole colon but I'm not sure I want that done.i look forward to watching all your videos. God bless you!!
It is so interesting that there are so many uses for gabapentin. I was given it to treat cronic migraines. My mother takes it as a nerve pain blocker for fibromyalgia. And together with tylenol for surgery pain.
Hi Maggie Zac please feel better soon your amazing and beautiful your hubby is brilliant
I take Gabapentin for neuropathic pain. It makes me feel tired and sleepy but it helps my burning horrific nerve pain. My sister and I have diverticulosis and she had to have 18 inches of her colon removed. I have mild IBS too. I am glad you are doing better. Just take it slow.
hope you feel better soon
I’ve learned so much from, and I am not afraid anymore. My doctor has been warning me about cancer in my colon and the ilium. She was saying that if I have to have too much colon taken out, I could subject to a colostomy bag. I was terrified of going back for a colonoscopy, but after hearing you talk about everything, I am not afraid now. So I feel better. If I have to have a lot of my colon removed, I can take on the challenge. Thank you
I'm like... I've never seen someone like this strong ever in my entire life
I went on gabapentin for chronic migraines and it was TERRIBLE. I was so nauseous and I just felt super weird. I hope you can get off of that soon!
Hope you get better soon xx
Thank you so much!
Thank you Maggie
Glad to see you up and feeling better ! I hope the rest of your recovery is smooth and speedy! Your weather looks similar to ours, where do you guys live ?
We are in Pennsylvania!
Hi Maggie. I’m glad everything is going well for you. Just wanted to let you know that after my surgery i really had trouble sitting and tried several different things before my husband went to the hardware store and bought a wheelbarrel innertube. It sounds strange but worked the best because i could adjust the air with a bike pump depending where i sat. Before that there was only one chair in the house i could sit on. I took it for car rides, dr visits anywhere i went. Recieved quite a few strange looks but didn’t care because they would have been watching me cry otherwise.
What a creative way to get comfy!! If my waffle pillow starts getting uncomfy, I will def send Zak to get me one!! I am the same way with chairs - I have one chair that I can sit in right now (so if you see me sitting in the same chair in my videos, that's why hehe).
ibd is never fun your doing amazing and inspire so many
Hi , I've had bruising soo bad around the attempts to start an IV , but my problem is my veins contract and hide when they feel the needle, thus the bruising and several pokes. OUCH!Your in my prayers hun,,,Tom
Imagine how good the Surgeon must be if she can walk on Post op Day 04 after that major a surgery.
Thanks for your videos! I have had CD over 40 years and you are a inspiration. Question: Do you have teeth issues cracking infections etc? I do and so expensive Thanks. Stay well.
I found out the hard way that wound care organization is key. Lol ♥️
So wonderful to see you up and about. I can so relate to everything you are going through. I have never had a regret in the last 2 1/2 years. Gabapentin has worked fabulous for me. I wouldn’t be able to walk without it. Do you have such a product as ‘Natures Aid’ in the U.S. ? It’s all natural and works fabulously on any type of skin irritation/inflammation.
Hi Maggie! Just wanted you to know your videos are so helpful! My 22 yr old daughter has UC and will be getting her first surgery soon for a J pouch. Can I ask you - what brand and kind of ostomy supplies you thing would be best for her? Do you think single use bags are good? She does have sensitive skin. Thank you so much! Please never stop doing your videos. You truly are an inspiration ❤️
Hi Maggie from the UK, Glad to see you up and about after your op , I have had the same op as you with a ileostomy but was opened up I had min on 6th dec but with myself I had to have a blood transfusion due to quite a bit of blood loss had 4 days in intense care then 13 days on a ward due to infections just glad I got home for Christmas, sounds like your on the same pain meds as myself I must say I understand about the sitting I try and swap sides I sit on to help while on a big pillow , just wanted to say your videos helped me a lot to get through it ..thank you .
Hopefully now that you're home you're getting more comfortable! So glad you made it home in time for Christmas!
Hi Maggie, you are doing fantastic and looking great! I had the same surgery a few years ago but did not get the Barbie butt. They closed it off with the exception of a very little hole which is leaking some sort of fluid. Anyway, l love your videos!
Hi Maggie! I’m at my doctor’s office getting my Remicade infusion and you popped up on my feed. I’m so glad you are up and about. Trying to think of some way to keep your packing in when you urinate. Would an ostomy belt worn low beneath your pouch and incisions but over your wound in the back help? That’s all I can think of. .
Keeping you in my prayers. Lots of us out here in CZcams land thinking of you. ❤️❤️❤️
Actually I am just doing a little line of gauze now so no huge bandage! Thank you for trying to come up with a solution! I wonder if that would work for someone whose wound is a little fresher?
Thank you for all the information and making these videos 😘
I enjoy your videos God bless I hope you can get some relief for your pain
Thank you
I highly recommend Vashe and Hydrafera Blue for expediting healing. I had major healing complications and those helped along with hyperbaric therapy. Thank you for sharing your journey.
Thanks! Hoping my wound heals correctly and quickly! Sorry to hear you had trouble with yours!
This is new to me but somehow I found one of your videos. Now I am attached to you, my sweet girl. You are in my prayers. 🙏🏻💜
I had that done when I was in 1st or 2nd grade I have one to
Gabapentin does the same to me!!! Didn't help enough with pain to keep taking it.
Exactly! I haven't taken it in at least a week now because even when taking it consistently it didn't do a whole lot.
Mary Frey had the rice crispy popping after her feeding tube surgery
Such a weird feeling!!
Hi Maggie thanks for all the info, I have crohns with a bypassed jpouch so I have a loop ileostomy. I will be getting my jpouch excised in jan or feb of 2020.
Wishing you luck for your surgery!!
Fuel flow I have a jpouch and I need to have it removed as well. I think we are the same age because of the 1954. I hope you are doing well!
fuelflow1954 please see my post below.
Hi Lorib54, Thanks! I am 65 and my surgery date is Feb 12 I'm having it done at Yale this will be my 4th abdominal surgery I have had colectomy (2001), jpouch (2001),and loop ileostomy (2008). I am hoping that I don't have a lot of adhesions but I think I do. I am looking forward to having it removed and hoping my gut improves since all the uc/crohn's will be gone from me (it's all in the pouch and my original rectum. I hope that you are well also! I am so happy that I stumbled on Maggie Baldwin's website the information is invaluable. Good luck with your health.
fuelflow1954 good luck! I’m so nervous about doing this surgery. It was easier when I felt lousy but since I have so many strictures they are recommending it. Maggie is wonderful & I’m glad to find her too! I’ll keep you in prayer on Feb 10!
This is a crazy way you inadvertently helped me. I was watching when you commented that you were or took Gabapentin for pain but you had a side effect with vision. I hope this is correct. I am sitting there...well I take it too for post knee replacement pain. For the last few days I have been having vision problems..blurred when watching TV and irritation in my right eye.. I even asked my son to look in my eye because maybe I lost a contact. In it. Nope. Wait...could I be experiencing a side effect. I called my daughter, a physician. She told me to stop taking it and see if vision improved. Also sometimes side effects will diminish over time. I do not think it is doing me any good anyway. So thank you. I shall see.
I am fairly certain this is a common side effect of gabapentin! Hopefully it goes away- it took me about 2 days for it to return to normal!
Funny story, dogs will eat anything left out. After I had my daughter I got a lovely yeast infection, went to the pharmacy and got Monistat. I unfortunately left it on the table, went out. When I came home my dog had eaten it. I had to phone the vet and asked if she would be okay. They laughed and said she would be okay. You’re looking great, hope you’re feeling good.
Oh boy we know that! Many an ostomy bag have been eaten in our house! Haha! Thanks so much!
LetsTalkIBD hopefully they were empty bags. I have a question. Do you eat popcorn. Since my getting my ostomy I’m afraid to try eating it. I love popcorn and my husband and daughter eat it in front of me all the time. I heard it’s taboo if you have an ostomy.
You are amazing girl I'm on my own I have a urostomy all alone husband left me xxx
I’m so feel your pain but God will be cure you Amin. ❤️🙏🙏 big love from Arabic Assyrian heart ❤️ ⛪️⛪️🤲🏻
Oh wow when i saw your wrists ... i remember one time they wanted to collect arterial blood and it looked exactly like this, but unfortunately, i think a nerve in the skin was hit, because it hurt a looong time and it still isnt back to normal it tingles and hurts when touching the skin, a neurologist was fascinated but couldnt do anything unfortunately.... i hope i never have to do that again. I thought someone stuck a red burning iron in my arm. Well anyway i am watching all your videos, which i propably shouldnt do since a need to get a (well in comparison minor) surgery and i am... frightened as hell :(. But i hope in watching you recover i can tell myself i will make it :D.
I send you
a big hug from israel. Be strong❤
Thank you
Hey Maggie. Have you thought about getting a port? I have one and its sooo much easier
Hoping I wont need too many IV needs now that the colon is out! :)
@@LetsTalkIBD right?! I hope not either. I just have no veins. They are tiny and roll. After 8 surgeries in a year and finally bringing the ultrasound out to fund a vein and asked my colorectal surgeon to put one in. I have it for infusions as well. All the best to you in the New Year Maggie. Best wishes to you and Zak. I know you are on a tough journey but I think you've changed a lot of lives including mine so thank you. Continue to heal and grab your amazing life back.
Hello Maggie
I can tell you are a warrior!!! You have gone thru so much and you still have a smile on your face.
Question?? All of those organs are removed by a big incision ( small incision) in the front???
Or did you have more incisions?
I hope you are happy and well!
Hugs😇💙
So the big incision you see was from years ago - my intestines had burst inside of me and they needed a big incision to be able to clean me out. This surgery, my colon and rectum actually were pulled out through my anus, and once they were out they sewed the hole shut. The small incisions on my belly were for cutting the connective tissue to loosen my colon (my surgery was done robotically).
Did they use ultrasound to place your art line? Hopefully you never need another one if you do I would make sure they use ultrasound the next time.
Couldn't tell you as they placed it after I was asleep. Luckily the pain in my arm resolved!
God save you and cure you my dear i will keep pray for you to God so he will cure completely and will be zero pain no more pain my sweetheart ❤️❤️🙏🙏❤️🤲🏻🤲🏻🤲🏻
I hope your recovery will continue to go smooth! Also what animal do you have in the terrarium? I didn't know you had a terrarium, I myself have a bearded dragon, and she is just the funniest animal we have at home (because she is quite clumsy).
Its actually a fish tank! There are only a few tetras in there because our tank got wiped out by some bacteria ): Zak is going to rebuild the tank and fully plant it! Aww so cute!
LetsTalkIBD oh those are nice and very beautiful fish. The wood in your fish tank looks (on the video) a lot like the wood in our terrarium...
Try doing this after my release from the hospital instead of redressing my wound we’re my rectum and anus used to be I just used depends as a bandage and it worked
I am fortunate where I am not having much/any drainage at the moment! Since I filmed this video, I am now just sticking a line of gauze between my cheeks (hehe) and using my underwear to hold in place.
Since you have had the surgery will you still need to be on Humira therapy.
I haven't restarted it yet but because I have Crohn's disease, it is recommended to restart (right now, nothing is stopping me from getting inflammation in my small intestine)
Gabapentin is a weird drug. It’s used for so many things. I’m on it as part of my depression and anxiety regime. It’s the med that I feel if I miss it, the one that I told the hospital I had to have that night when I was admitted after an accident.
Nancy Williams It’s definitely very weird. I took it to treat nerve pain and it gave me suicidal thoughts and severe depression, as well as a BAD twitch at random times. But then it’s great for others! It’s bizarre how every body is so different in reacting to meds!
I got that for Depression at one point one of many drugs they tried to find a better one for me didn't work.
It IS a weird drug. I take it for nerve pain from neuropathy, yet veterinarians give it to cats as a tranquilizer/painkiller.
Meraj Khan love you
Gabapentin in a horrible drug. Ruined my life for a year