Ostomy Bags Have Too Many Features - How to Choose Your System! | Let's Talk IBD
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- čas přidán 16. 06. 2024
- There are so many features available from a variety of ostomy manufacturers! In this video, I go over as many as I can think of so you have the most information when selecting your stoma appliance. Check out @VeganOstomy and his wonderful sample resource here: www.veganostomy.ca/ostomy-sup...
00:00 Intro
02:29 Product Catalog
05:58 One Piece vs. Two Piece
08:17 Adhesive Two Piece System
09:26 Floating Flange
10:22 Sizing and Shaping a Flange
11:23 Tape Collars
12:04 Convexity
13:47 Non-Drainable
14:36 Drainable Closures
16:40 Clear vs. Opaque
18:05 Filters
21:09 Belt Loops
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*This video is not meant to diagnose or treat any illness or condition. This is for entertainment purposes and to get you thinking! Please ALWAYS refer to your physician for medical care.
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Hi, I'm Maggie and I have Crohn's disease. I am thrilled to be here sharing my personal experiences with Inflammatory Bowel Disease as well as living with an ostomy. I'm proud to share a little bit from a clinical experience as well, having worked as a GI pediatric nurse and ostomy telehealth nurse. I am so glad you are here. ♥ #ibd #crohnsdisease #ostomy
Check out the free sample guide from Vegan Ostomy here! www.veganostomy.ca/ostomy-suppliers-free-samples/
@letsTalkIBD would like to talk and get info about this. My daughter, who's 10 is about to begin this journey.
I have to ask, was your surgery an emergency? I had an emergency colectomy, because I had a perforation. I have a similar scar (it's still healing). I spent 3 months on a wound vac. I was just wondering if this kind of healed scar is what I should expect. Anyway, you have helped so much with my recent transition into living with a stoma.
Thanks for sharing the link! I miss you, Maggie! Glad to see that you're still cranking out awesome videos!🤩
I just have to say you are an amazingly brave and positive young lady! I have chronic illnesses too but nothing even close to u. But I'm so inspired by your videos. God bless u for being so open with people with or without your condition. All very enlightening. ❤😊
I have an ileostomy, and I’m TPN dependent. Completely NBM. I also have a large hernia which they won’t operate on, because my health is so poor. Does anyone have any ideas to help bags stay on? I’m dealing with them falling off when I’m sitting up in bed, or them leaking overnight. Due to the hernia, I seem to be obstructing a lot, so nothing will happen for a day or two, and I will have lots of tummy pain. Then it will go 24 hours of uncontrollable water. So my stoma is constantly irritated and bleeding. It just feels constantly wet and sore. The hernia is the size of a small melon now.
I will go and look through the other videos to see if this topic is covered. It’s nice to have someone talking so openly about their stoma and all that comes with it. 💞
Great video Maggie. I have a colostomy with a thicker output and use the non drainable Coloplast bags with the filter, and I dispose of them when they are 1/3 full or fuller. I find the filter to be a great feature because I don't have to manually burp my bags and, even better, don't have to smell the gassy burps! The stickers are actually to put on the outside of the filter to protect the filter from getting wet and are to be applied before a shower, bath or swimming to protect the integrity of the filter. I do find that when the filter gets wet from the inside of the bag, there is an extremely faint smell that starts emitting from the bag, but this is resolved by changing the bag (luckily I have great coverage and have more bags than I could ever need). I have never had output leak out of the filter, even when my output has been watery.
It’s so true & then when they discontinue your current system it all starts over! Thankfully there were enough complaints and my bag came back!
Ileostomy here. With an ileostomy I can have an all liquid day or a very "colostomy" type day. Definitely like the colostomy type days. Diet is super important. If I have tons of processed food I have super liquid but if I have veggies...I get thick output.
Coloplast also has opaque bags without the clear plastic, on which the filters are placed differently than the clear ones. The sticker can also be used when bags vacuum.
my 17 year old daughter got her ileostomy in September and so far we have learned that for her we prefer convex hollister--- opaque--- no belt---- 2 piece ---- convex. This video was so informative! thank you!
I love the coloplast sensura mio convex flip!!!!! I cut the belt loops off because they just get in the way.
Urostomy is for people who predominantly had a cystectomy, removal of bladder. It is for urine discharge, mucous can be in it too. Basically same products are involved, but urostomy patients can connect the bag to a "night bag" which can also be used for travel etc.
That's why I bring them up in the video!
I have a urostomy, but still have my bladder….
I have a ostomy very life changing
I love that there's so much variety in these! I hope supply chain issues haven't been a problem.
Thank you Maggie for making this video! I have an Urostomy, and find the overnight drainage to be very important. Otherwise, I am needing to wake up every 1.5 to 2 hours to drain my pouch. I have had issues with the adapters for the tubing connecting my drainage tap from my pouch to the larger collection bag. I have had several near misses with a pouch ready to burst due to the tubing getting pinched or twisted. I now use a Velcro leg strap to make sure the tubing is secure and not twisted. I am now going to be using the night drainage system from Convatec - it is a jug that sits in on the floor. The collection bags I use overnight now, and to have to be cleaned with vinegar and water using a very small funnel. After about 3 weeks, the bag needs to be disposed of. The Convatec jug can be easily cleaned and is not meant to be disposable. Just wanted to share some of the issues I have had - 6 months with my Urostomy.
Maggie thanks so much for this vlog. I especially liked that you included the urostomy, which I have had for 2 1/2 years. I’m still using the Coloblast convex all in one bag but finding that the adhesive is not sticking very well now and in 1-2 days it leaks right thru. I’m calling them tomorrow for suggestions and samples. Thanks again. 😊
Have had my ileostomy for going on 2 years and have watched your vids since the fall of '22. Looking forward to the accessory vid. I'm in Canada and get my appliances/accessories from Payless Medical so I will def be looking for some of the brands you mentioned. Currently using a Convatec 2 piece system but it's nice to know there are a lot of options. As always Maggie, your videos are a great source of info and a comforting inspiration!
Great video, very informative, thanks for doing it!❤
Hello Maggie, wow amazing information!!! Keep it up!!!❤❤❤
Thanks and looking forward to the accessories video!
Hello, thank you for sharing with us as their's a lot of stuff to deal with. Thanks for sharing this with us. Take care.
Thanks for sharing these different opinions.
I used to use Hollister filter bags and they leaked every single time. I'm a coloplast girl now because of my skin not liking the hollister adhesive.
Great info Maggie. 😊. I am still a clip closure girl. Because I have a lot of output, I feel more secure with the clip. Especially during my fluids( i.vs. )
This is so funny for me to see this video today as yesterday I just watched your video from 4 years ago where you had all the different bags arranged in a binder and talked about each one. It's good information to have so thanks for sharing again! ☺
I don't know what I did with that binder but I should make a new one with all the available products!
Lots of excellent information!
Thank you!!
Great ingo. Thank you very much. Blessings to all ❤
Hey you just gained a subscriber🎉 you are amazing, please tag the video where you explain what led to this disease and symptoms before your surgery.
Love you❤🇿🇦
Great information
Thank you so much Maggie 💓 This was a super helpful video. I didnt even know there was that many brands out there. Definitely will get some samples to try them out. I've been having problems with SenSura Mio Flip convex "petals" and their bags. One it doesn't feel or help like convex at all. 2) The bag is awful for rinsing after dumping bag, charcoal leaks everywhere and stool gets on the foam comfort ring around your stoma which makes the bag really gross. 3)it also has some weird plastic sheet inside and output gets trapped between the plastic sheet and you cant get it clean. The sticker aids in keeping water from getting into the filter during shower and swims. Which leads me to 4) I used the sticker to keep my bag from sucking all air out and causing more pancaking in that bag. Every flip i put on Id pancake and output would go under wafer and before the day was over, I'd have to take it off and put on a new one. 😢I went back to Hollister after 1 week of that changing daily. But again, I thank you for going over these because now I will try those others you showed and also that guy's website so I can hopefully get samples of many more. I need to find the perfect one for me. Im having stoma and hernia issues. My stoma doesn't stay out and doesn't stay same shape as when I cut it, therefore it causes the area around stoma to break seals daily.
I love your information. Going to see about the samples. I'm dealing with a hernia right now. What brand would you recommend?❤
I'd been getting 7 days per system using Convatec Moldable till I changed my diet and output became more fluid. I've had my stoma 18 mos. and I do have some other samples. I like the feeling of the one piece Senso-Mio and I put one on 3 days ago. This morning I decided to change it and found it had already begun to allow output beneath the seal. I've still got plenty of the Convatec '420's with an '805 wafer, but, I was curious to see how I felt going back to using one of the Hollister 2 pc systems I still have from the hospital. I notice upon closing the rings that it was way more easy to close than the Convatec. I suspect that's why those may have issues at that 'juncture'. I got the Senso-Mio from my wound care nurse who also got me my first convatec system. I've just put in a sample request from Coloplast. The last of the big three I have to ask. Negotiating our own solutions is a wonderful capacity. Babies, children, and the infirmed are at the mercy of their caretakers.
Hey! Love how educational your videos are. I have learned so much! I was wondering if you could perhaps please caption your "shorts" as I need captions to understand them:). I can turn the closed captions on with your long videos, but the shorts aren't captioned and it bums me out lol. Thanks again!!!
One of the customizations I make to my bags is to cut off the belt tabs since I dont' use an ostomy belt. I wish they'd make them with and without; it would save me time.
I have a urostomy and use Coloblast, I have thought about cutting them off too. Now I know you do I think I’m going to try it. I’m having problems with my flange leaking so I’m calling Coloblast tomorrow to talk to a nurse or someone to try some different bags they have for a urostomy.
@@wendiewegner9236 have you tried a Coloplast Bravia Protective Seal with a convex urostomy bag? The magic bullet to prevent leaks for me! The seal fills in gaps so you stay dry. I can go 4 solid days between changes. I use a one piece Sensura Mio soft convex
Thank you so much. My skin does not like holister flange. I really like the descrete bag you showed. I love the festure that tuckes the end in. Can you tell me which one that is? I am asking my edgepark rep for a catalog. I appreciate you!
Hi Maggie, probably going to have another colonoscopy in the near future. What bags/flange can be used once one begins with meds to clean you out? I have a colostomy.
I have hernia under my stoma that makes it look like I have softball under it. They say it is not worth fixing unless it's causing pain, which it doesn't. So I need a flange which will form around the 'dome'. The Hollister gear works fine. Unfortunately it does mean I have to wear track pants, long t-shirts and always looks like I have a beer belly. :(
Just to say, I know your pain. My hernia is the size of a small melon, because of poor health they say it’s too dangerous to operate. My bags just keep popping off or leaking every day. It’s frustrating and from one side I look 7 months pregnant. Urgh!
@@OneLove101. Hi; Thanks. My hernia specialist said fixing them would be major surgery and might just happen again, so not worth it unless in a lot of discomfort.
Not sure what gear you're using, if the pouch is popping off or the flange is coming off your skin. The Hollister flange seems to form around my 'dome' pretty well. I can only suggest the skin is completely clean of adhesive, skin flakes and hair.
I understand you're a woman but there might be fine light hair on your abdomen to shave. I use a little rubbing alcohol last and a hair dryer before I stick a new one on. Also regular habit of checking the flange is still snapped in. Sometimes I put a little 'sports tape' on the edges of the cloth if it's starting to fray. My other suggestion is diet. Foods that will bung you up a little so it's not liquid all the time. I also take a fare amount of pills that can cause constipation so I have the opposite problem, having to take Senokot to get things moving after a few days of nothing. I have managed to somewhat time these, no discharge periods, to shower without the gear or go out, a meeting etc.
I sure miss my jeans and belt. :(
@@OneLove101. I also stopped using the pliable disk which is meant to help around the edge of the cut out hole in the flange. They made the adhesion worse.
Your informative videos and amazing ideas help me a lot. I am from India having permanent colostomy bag and follow you. Can I place the order of Colostomy product. I need stoma pouch cover
Hi Maggie, is there a moldable flange that's one piece system?
I would love like the link please
Hey Maggie, have you ever used the ez-vent? I’m trying to combat my bag ballooning from gas and I was told the vents can help. I hate filter bags because I had hollister filter bags and the filter leaked every single time.
I haven't myself but had a sample - they seem awesome!!
@@LetsTalkIBD I’ve been nervous to try them because I don’t want to screw up putting it on and causing any issues with me bag. I see my ostomy nurse in a few days so I’m hoping she can help me out with it. Thank you for being such an amazing resource for all of us ostomates, I’m still fairly new to having an ileostomy (emergency surgery was last March to save my life).
Hi Maggie I am due to have a loop ileostomy or it may be not looped. I am booked to have this next Tuesday. I have to say I have raided my pension pot as I have been going through NHS
Bags are free on nhs
Maggie have you had a CT done where you have to drink banana barium? I have to have one you Monday and I was wondering how Gracie would act with this.
I haven't had a CT with contrast done in a long time, but I have had an Mri with it and the contrast always runs right through me! Thankfully I believe CTs are a bit faster than MRIs, but just keep an eye on your ostomy output!
Thank you. My husband said to tell you that you are really beautiful!
Every single time I was given any kind of contrast it would be in my bag within 15 minutes. Dump your bag right before you go in and don't wear a little one. In my experience they have you drink so much that it is more than my bag could hold
@@A---ti3zz thank you
@@1960pattie Good luck!
I’ve been having problem with the glue of the bags . I’ve reacting to them with a bad allergy 😭
If you wet the rings it clicks on easier
I have a new urostomy. They put me on a 2 piece from holister.
I have urostomy also do you like the one you use?
@@wendiewegner9236 yes it like it I think it’s nice I can see my stoma and check it. I love the 2 piece. What do you use
☀️🌼
Umm what is a stoma and why did u get it Im Not being mean I just really want to know
Hello on 🇮🇳🙏🤝💪🤗🤲🥰🙋♀️
Are you a stoma nurse or doctor?
I'm an RN (pediatric GI and telehealth ostomy experience)! I went to school for WOCN for a short period of time, but had to leave due to my colectomy!
Flanges don’t last forever! They all have an expiration date, after that won’t stick, no matter what prep you put on your skin
Don't worry - my older ones I keep around only for purposes of showing in videos!
فديوهاتك كلها تحفيزية ومفيدة ولاكن انا 😊😊😊😊😊😊😊لاافهم اللغة 😊😊😊وانا اجرية عملية لتغيير مسالك البولية ❤❤❤❤❤❤❤❤❤❤❤❤
Coloplast also has opaque bags without the clear plastic, on which the filters are placed differently than the clear ones. The sticker can also be used when bags vacuum.