![Hospital Princess · Cheyanne Perry](/img/default-banner.jpg)
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Hospital Princess · Cheyanne Perry
United States
Registrace 5. 07. 2011
Documenting life with rare disease.
Bacteremia or the Return of Mystery Fevers? 🌡️
LET’S BE FRIENDS:
Blog - hospitalprincess.com
Instagram - hospitalprncss
Twitter - hospitalprncss
Facebook - hospitalprincess
Etsy - Etsy.com/shop/hospitalroundknits
Email - hospitalprincessblog@gmail.com
MY CHILDREN'S BOOKS:
HOSPITALPRINCESS - www.shop.imaginewepublishers.com/products/hospital-princess
PEARL SPOTS A FRIEND - www.shop.imaginewepublishers.com/products/pearl-spots-a-friend
Blog - hospitalprincess.com
Instagram - hospitalprncss
Twitter - hospitalprncss
Facebook - hospitalprincess
Etsy - Etsy.com/shop/hospitalroundknits
Email - hospitalprincessblog@gmail.com
MY CHILDREN'S BOOKS:
HOSPITALPRINCESS - www.shop.imaginewepublishers.com/products/hospital-princess
PEARL SPOTS A FRIEND - www.shop.imaginewepublishers.com/products/pearl-spots-a-friend
zhlédnutí: 11 440
Video
Let's Go Strawberry Picking
zhlédnutí 2KPřed 2 lety
LET’S BE FRIENDS: Blog - hospitalprincess.com Instagram - hospitalprncss Twitter - hospitalprncss Facebook - hospitalprincess Etsy - Etsy.com/shop/hospitalroundknits Email - hospitalprincessblog@gmail.com MY CHILDREN'S BOOKS: HOSPITALPRINCESS - www.shop.imaginewepublishers.com/products/hospital-princess PEARL SPOTS A FRIEND - www.shop.imaginewepublishers.c...
Hoppy Easter 🐰 | Too Many Medical Shortages!
zhlédnutí 1,9KPřed 2 lety
LET’S BE FRIENDS: Blog - hospitalprincess.com Instagram - hospitalprncss Twitter - hospitalprncss Facebook - hospitalprincess Etsy - Etsy.com/shop/hospitalroundknits Email - hospitalprincessblog@gmail.com MY CHILDREN'S BOOKS: HOSPITALPRINCESS - www.shop.imaginewepublishers.com/products/hospital-princess PEARL SPOTS A FRIEND - www.shop.imaginewepublishers.c...
HOSPITAL PRINCESS BOOK | Chronic Illness Real Talk: When We Got Sick, Fear of Missing Out
zhlédnutí 1,8KPřed 2 lety
LET’S BE FRIENDS: Blog - hospitalprincess.com Instagram - hospitalprncss Twitter - hospitalprncss Facebook - hospitalprincess Etsy - Etsy.com/shop/hospitalroundknits Email - hospitalprincessblog@gmail.com MY CHILDREN'S BOOKS: HOSPITALPRINCESS - www.shop.imaginewepublishers.com/products/hospital-princess PEARL SPOTS A FRIEND - www.shop.imaginewepublishers.c...
Our Hollywild Safari Adventures
zhlédnutí 1,5KPřed 2 lety
LET’S BE FRIENDS: Blog - hospitalprincess.com Instagram - hospitalprncss Twitter - hospitalprncss Facebook - hospitalprincess Etsy - Etsy.com/shop/hospitalroundknits Email - hospitalprincessblog@gmail.com MY CHILDREN'S BOOKS: HOSPITALPRINCESS - www.shop.imaginewepublishers.com/products/hospital-princess PEARL SPOTS A FRIEND - www.shop.imaginewepublishers.c...
Sepsis x 2 | Bye Bye Barbie the Bard Power Hickman
zhlédnutí 7KPřed 2 lety
LET’S BE FRIENDS: Blog - hospitalprincess.com Instagram - hospitalprncss Twitter - hospitalprncss Facebook - hospitalprincess Etsy - Etsy.com/shop/hospitalroundknits Email - hospitalprincessblog@gmail.com MY CHILDREN'S BOOKS: HOSPITALPRINCESS - www.shop.imaginewepublishers.com/products/hospital-princess PEARL SPOTS A FRIEND - www.shop.imaginewepublishers.c...
Come Apple Picking With Us | HLA Antibody Results
zhlédnutí 2,3KPřed 2 lety
LET’S BE FRIENDS: Blog - hospitalprincess.com Instagram - hospitalprncss Twitter - hospitalprncss Facebook - hospitalprincess Etsy - Etsy.com/shop/hospitalroundknits Email - hospitalprincessblog@gmail.com MY CHILDREN'S BOOKS: HOSPITALPRINCESS - www.shop.imaginewepublishers.com/products/hospital-princess PEARL SPOTS A FRIEND - www.shop.imaginewepublishers.c...
Feelin' Like I Lost 1/2 of my Blood Volume | S-ICD Consideration
zhlédnutí 6KPřed 2 lety
LET’S BE FRIENDS: Blog - hospitalprincess.com Instagram - hospitalprncss Twitter - hospitalprncss Facebook - hospitalprincess Etsy - Etsy.com/shop/hospitalroundknits Email - hospitalprincessblog@gmail.com MY CHILDREN'S BOOKS: HOSPITALPRINCESS - www.shop.imaginewepublishers.com/products/hospital-princess PEARL SPOTS A FRIEND - www.shop.imaginewepublishers.c...
Not JUST Ehlers Danlos Syndrome
zhlédnutí 12KPřed 2 lety
LET’S BE FRIENDS: Blog - hospitalprincess.com Instagram - hospitalprncss Twitter - hospitalprncss Facebook - hospitalprincess Etsy - Etsy.com/shop/hospitalroundknits Email - hospitalprincessblog@gmail.com MY CHILDREN'S BOOKS: HOSPITALPRINCESS - www.shop.imaginewepublishers.com/products/hospital-princess PEARL SPOTS A FRIEND - www.shop.imaginewepublishers.c...
Pearl Spots a Friend | Children's Book Trailer | ImagineWe Publishers
zhlédnutí 1,2KPřed 2 lety
PEARL SPOTS A FRIEND: www.shop.imaginewepublishers.com/products/hospital-princess?variant=42872996003994 LET’S BE FRIENDS: Blog - hospitalprincess.com Instagram - hospitalprncss Twitter - hospitalprncss Facebook - hospitalprincess Etsy - Etsy.com/shop/hospitalroundknits Email - hospitalprincessblog@gmail.com
My Intestines Twisted Again?!
zhlédnutí 5KPřed 3 lety
MY MAST CELL DISEASE AWARENESS CHILDREN'S BOOK: www.bookstore.imaginewellc.com/collections/mission-books/products/pearl-spots-a-friend-new-release LET’S BE FRIENDS: Blog - hospitalprincess.com Instagram - hospitalprncss Twitter - hospitalprncss Facebook - hospitalprincess Etsy - Etsy.com/shop/hospitalroundknits Email - hospitalprincessblog@gmail.com
Our Wedding Vows | 11.07.2020
zhlédnutí 3,3KPřed 3 lety
LET’S BE FRIENDS: Blog - hospitalprincess.com Instagram - hospitalprncss Twitter - hospitalprncss Facebook - hospitalprincess Etsy - Etsy.com/shop/hospitalroundknits Email - hospitalprincessblog@gmail.com MY MAST CELL DISEASE AWARENESS CHILDREN'S BOOK: www.bookstore.imaginewellc.com/collections/mission-books/products/pearl-spots-a-friend-new-release
Allergic to IV Bags? | Cardiac Monitor Placement
zhlédnutí 6KPřed 3 lety
In this video, I had my BioTel Cardiac Monitor placement for KCNQ1 Long QT Syndrome. I also discuss mast cell activation reactions from various IV supplies and update on my endocrinology appointment! MY MAST CELL DISEASE AWARENESS CHILDREN'S BOOK: www.bookstore.imaginewellc.com/collections/mission-books/products/pearl-spots-a-friend-new-release LET’S BE FRIENDS: Blog - hospitalprincess.com Inst...
FIRST ADMISSION OF 2021 | Sepsis or HLH?
zhlédnutí 10KPřed 3 lety
GET YOUR MIGHTY WELL MASK: mighty-well.com?afmc=CHEYANNEPERRY10&CHEYANNEPERRY10& OR use code CHEYANNEPERRY10 for 10% off MY MAST CELL DISEASE AWARENESS CHILDREN'S BOOK: www.bookstore.imaginewellc.com/collections/mission-books/products/pearl-spots-a-friend-new-release *Use code 'HOSPITALPRINCESS' for free shipping! LET’S BE FRIENDS: Blog - hospitalprincess.com Instagram - hospitalp...
The Duck Whisperer Returns 🦆 | OUR 2ND CAMPER VACATION
zhlédnutí 2,1KPřed 3 lety
The Duck Whisperer Returns 🦆 | OUR 2ND CAMPER VACATION
Finding A G-Tube Drainage Bag | HAPPY EASTER 🐣🌷
zhlédnutí 2,3KPřed 3 lety
Finding A G-Tube Drainage Bag | HAPPY EASTER 🐣🌷
Just Call Me The Duck Whisperer 🦆| OUR FIRST BEACH VACATION IN THE CAMPER
zhlédnutí 3,2KPřed 3 lety
Just Call Me The Duck Whisperer 🦆| OUR FIRST BEACH VACATION IN THE CAMPER
Testing The Norb Sleep Light | What I Do On a Low Symptom Day
zhlédnutí 3,8KPřed 3 lety
Testing The Norb Sleep Light | What I Do On a Low Symptom Day
HOW I RECEIVED MY DIAGNOSIS | Probably Genetic's Mito Testing Program: Part 2
zhlédnutí 4KPřed 3 lety
HOW I RECEIVED MY DIAGNOSIS | Probably Genetic's Mito Testing Program: Part 2
Do You Have A Rare Disease? | Probably Genetic's Mito Testing Program: An interview with Lukas Lange
zhlédnutí 1,9KPřed 3 lety
Do You Have A Rare Disease? | Probably Genetic's Mito Testing Program: An interview with Lukas Lange
Feeding Tube Q&A | Misconceptions About Tubes, Venting a Feeding Tube, & More
zhlédnutí 4,4KPřed 3 lety
Feeding Tube Q&A | Misconceptions About Tubes, Venting a Feeding Tube, & More
First Christmas WITHOUT My Hot New Husband
zhlédnutí 3,7KPřed 3 lety
First Christmas WITHOUT My Hot New Husband
THE RESULTS ARE IN ... | MORE ABOUT MY CHRONIC ILLNESS CHILDREN'S BOOK 📚
zhlédnutí 5KPřed 3 lety
THE RESULTS ARE IN ... | MORE ABOUT MY CHRONIC ILLNESS CHILDREN'S BOOK 📚
WE GOT HITCHED 💍 | Mass Update and the Worst MRI EVER
zhlédnutí 24KPřed 3 lety
WE GOT HITCHED 💍 | Mass Update and the Worst MRI EVER
My MCAD Stories | Part 3: Hereditary Alpha Tryptasemia, Systemic & Cutaneous Mastocytosis
zhlédnutí 7KPřed 3 lety
My MCAD Stories | Part 3: Hereditary Alpha Tryptasemia, Systemic & Cutaneous Mastocytosis
My MCAD Stories | Part 2: Using My First EpiPen & MoreDiagnostic Tests
zhlédnutí 4,8KPřed 3 lety
My MCAD Stories | Part 2: Using My First EpiPen & MoreDiagnostic Tests
I just had this done. The genetic counselor was outstanding. While the test didn't show mitochondrial disease, she encouraged me to seek out a muscle biopsy due to my symptoms. Now, after years of illness, I finally have a way forward. So grateful. ❤
This made me feel better about my upcoming test. Thanks for posting!
RIP SWEET GIRL ❤
Thinking of your beautiful joyous daughter, wife today!!!! Miss her so much!!! What a blessing she was. So glad she is with our precious Savior and we get to see her again.
😪❤️
Is this person still alive
Rest in peace beautiful
Thanks for sharing! I have throw out a bunch of my cleaners. Your suggestions are helpful
Looking back at your vlogs gives me hope and keeps me going and motivated to get the medical care we deserve. Even though your gone now, you will never be forgotten Rio chey
Some of those are geese!!!
🎉i use subtitles and when you said the word pain the word penis was used instead lol sooooo funny 🎉 i hope that gave you a giggle i did laugh 😅😊
I've been following you for many years. You don't know me and at most I've only gotten a like or a simple reply from you. I was sobbing and weeping like a baby when I found out of your passing. Cheyenne, now are enjoying all the food you couldn't enjoy on this earth. Silvino, Lori, and step dad, my deepest condolences ❤ Mis condolencias, Silvino. No te conozco pero se que la amaste y la amarás por siempre. El tiempo y el amor de familia te ayudará en tus malos tiempos.
rest in peace chey
How much is this?
Wow, we have SO many similarities! Have you ever tried Amlexanox peptides? They are an anti-allergic compound and they were a game changer for my food allergies related to histamine intolerance and MCAS! I take 40mg twice a day now and can eat SO many more foods. You might want to try that! Also, which genetic test did you do? I tend to think a lot of my issues were prompted by genetics.
RIP Cheyanne ❤
Has anyone from the family come out and say she passed away been watching for years and only found out weeks ago
Did her family say anything about her passing away
I followed this lovely young woman for along time and only found out a month ago she had passed I saw alot of people asking where she was untill someone wrote and said it was in shock
Came a cross this only found out recently this lovely young woman has passed
I mix my daughters Elecare in a protein mixer bottle. Idk if you’d be okay with using that- but, it’s been a total game changer for mixing her formula and it doesn’t clot on the lid. My daughter has a AMT G-Jet GJ tube. She didn’t have any leakage with the first one and only a little with her 2nd and 3rd. She’s only 3 and tends to be murderous on her bulbs. She used a mic-key and didn’t do nearly as well with it. Maybe requesting a different manufacturer would be a good idea. The only “change” would be the connection sets- which use the enfit connectors to your Farrell and Feed bags. I know this is a few years old- but I just found you. I hope this message finds you well. You’re amazing. Keep fighting the good fight! ❤ we have an extra back pack, extra carry all and a cooler for traveling away from home for more than 30 minutes. Bare minimum I have her backpack and a cooler.
Seeing these pop up is so sad now this lovely young woman has passed
So sorry to hear this lovely girl has passed away
Im so sorry for your lost to her parents an to husband. Please give my love to her furbabbies. How is Teddy an weaslry doing. I really miss Cheyenne an her videos she was so much inspiration to me. My love an prayers are with you alll. 10:00
Rip beautiful girl😢😢
Bye beautiful girl you fought so hard but your body couldn’t take it any more you will be always missed we will meet at the gates soon RIP 🪽😇 🪽 🙏 🤲 🌹 💐 📿
I'm so sorry...I've been thinking about you no more suffering for you! I miss you!
I’m in the hospital with the same issues and they have no Solution and no answer as to what this infection is
Very sad. RIP. It’s a tragedy that it’s so difficult to intervene, mental health is so poorly managed, especially her particular illness. Thoughts with you all.
Thank you very much. I'm with a weird reumatologycal disease and I can understand your point. Thank you for sharing your courage and the knowledge u have about your disease. I pray to God to help you and give you enough faith and strength to struggle with this situation. A honest hug.❤❤❤
Thank you for sharing your journey with us and teaching us so patiently and compassionately
She’s so cute ❤god bless her.
This is so sad. Another angel have their wings. Go fly Cheyenne. Rest in peace 💔 xx
I’m so sorry sweet girl. I will miss you 😢 I’m glad you’re not in pain anymore ... I’ve watched you for a long time and always thought you were so courageous, strong and funny. You will be missed. rip
I never thought I could miss so someone so much I never met. You were always so positive and brave. You're still brave. I hope heaven is as beautiful as you've ever imagined. ❤
You will be forever missed ❤ Thank you for all you brought to this world and the differences you made. Your memory will live on through all you've contributed to this community we will never forget and we will keep fighting. Fly high angel ❤🖤🤍
RIP Cheyanne I’m glad you aren’t suffering 👼🏼🤍 I will miss you so much, 😢 I Hope your eating and drinking tasty things in the next life, I Hope to see you again some day.
Rest in paradise princess ❤
RIP Cheyanne. Condolences and prayers to her family, friends, and Silvino. ❤️ Happy for you that you got to try pancakes and Chick-Fila with your new stomach before you left us!
I have never before heard that you can transplate a stomach, very sad that she didn't make it after it but good she got to taste food.
Unfortunately, Cheyenne passed away yesterday on August 12th. Her best friend Denise made a post on Instagram. 💔
*Denae, I mean
@@Herzeleid1985how and where
@abidaleee I can't find a link or anything announcing her passing. I just see people saying she passed. If you find a link could you please share it?
@@peppermintwoman2049 sister I don't know if u find then share...it's very tragic 😔 she was an angel unforgettable how why...still not believing
I'm so sorry to hear this!
On instagram she reported she got her transplant and is home recovering.
What did she have transplanted?
@@teeka7777 multiple organs as far as I can tell.
She sadly passed away a few days ago 😔
I have all the same signs:/
Beautiful video! Late congratulations 👰♀️🤵♂️💍
Now your hospital queen ❤❤❤❤💕 god bless your family ❤
Are u ok ??
Are u ok why did u stop making videos
She passed away
Hi I have mast cell. Zero safe foods I have been on kate farms feeding foemual since decemeber. Does pollen set you off? Do you have burning bones when in a flare? What's a flare like to you? What medication has helped
Your so beautiful 😊
Why did you stop making videos?
Because she passed away 😢
Omg, this is me.