Feelin' Like I Lost 1/2 of my Blood Volume | S-ICD Consideration
Vložit
- čas přidán 20. 08. 2024
- LET’S BE FRIENDS:
Blog - hospitalprincess.com
Instagram - hospitalprncss
Twitter - hospitalprncss
Facebook - hospitalprincess
Etsy - Etsy.com/shop/hospitalroundknits
Email - hospitalprincessblog@gmail.com
MY CHILDREN'S BOOKS:
HOSPITALPRINCESS - www.shop.imagi...
PEARL SPOTS A FRIEND - www.shop.imagi...
It always brings a smile to my face to hear your liver numbers are improving!
Hi Cheyanne, I’m really praying for you…hoping things get better. I have been Subscribed to your channel for quite awhile now. I have, maybe you remember (I don’t expect you to 🤪, haha) Vascular EDS with the severe hyper mobility and a laundry list of other things. But now I am fighting for my life. My Hypertension came back with a vengeance, 200/130 the meds aren’t bringing it down. I had to see a cardiologist in a big hospital but they left me sitting in my wheelchair out in the lobby because it was overflowing with sick people. Coughing, throwing up…for 6 hours with an IV in me. I was in so much pain I couldn’t take it anymore so I told the nurse to take the IV out or I would because I was leaving. I had seen my Cardiologist there and he wanted to admit me but there were no beds. I have had 3 Strokes, I have 2 Brain Aneurysms and another one in my Aorta by my Heart. I’m a ticking time bomb. I don’t blame them, these poor nurses and Doctors are overwhelmed. It makes me so angry when I see people with no mask on. I can’t get the Vaccine, 3 Doctors have said no because of all my allergies, quite a lot are Anaphylactic reactions. But I have to go back for a bunch of tests and to have a Holter Monitor put on for 2 weeks. Please stay safe, you and your whole family even Teddy Grams ( sorry if I spelled his name wrong). Lots of Peace and Love to You Cheyanne, you are so Strong. 🦋💫✨
Hi Cheyanne, I have been following you for awhile but have never commented but I had to laugh about how you always talk about your wallpaper! I just wanted you to know we have the same wallpaper in our house. We have painted over most of it but still have the bathroom to go! I have never liked it either😉. I also want you to know I so admire your strength and sense of humor with all you are dealing with! I will keep you and family in my prayers.❤️🙏
I agree. Seriously I think I will snap if I see one more idiot waltzing around thinking they're doing something amazing by not wearing a mask. Doctors and nurses are developing issues like PTSD/C-PTSD, people who have a different condition or set of issues cannot be seen because beds are being taken, fear mongering that has driven people to do ridiculous things like opt out of vaccines and masks and replace them with ivermectin and even frigging drinking dirt water! I'm disgusted. :/
@@dont_harsh_my_mellow Hi May, I agree with you so much. I have (not my family) family through someone I have been with for a long time, that since the beginning of this refuse to wear masks and they have children. You know if you want risk your life, whatever, but your child’s life???? They say it’s all political when it first started and still to this day. It angers me that people don’t see how precious life is and all the suffering that is going on both mentally and physically. My heart goes out to those that can’t get a flu shot or a COVID Vaccine, like me, and to the First Responders, Nurses and Doctors who fight tirelessly to save lives. I love them all. Stay Safe and Peace and Love to you 🦋💫✨
Hello Beautiful, I have been following you for about 3 years. I have not seen any current video's, so I thought I would reach out and le/ you know you are missed. Continuing to pray for you. Hope you are having a blessed day!
Crystal
You are such a fighter! You know so much. You could consult and help other understand medical conditions. I am so glad you have a wonderful family and support system.
Love it that you share your journey with us... and you look stunning! 🌟
At 6:56, your hair is beautiful. You always manage to look good even when you’re doing rough. I really appreciate the facts and information that you put out for everyone. You would make a fantastic np. I think with your attitude you would be a one of a kind. People would be lined up to see you.
I love your hair up. I hope you feel better. My worst subject in college with math
Dang. That was a LOT of blood they took. You look so tired. Very very very glad no one tested positive for Covid. 💜
雖然我們在不同一個國家……希望妳和我一樣一切順利平安健康♥
Love you and your family Cheyanne ❤💕❤
With CIPO and Mast Cell try propranolol liquid. I always learn so much from you that helps my daughter. God bless.
Very best wishes for you dear.
I love your videos.😍😍
I have long qt syndrome and was diagnosed in April 2019. I have the s-icd and on propranolol.
In the video when talking about the wallpaper, you said that you found a “safe paint” you are going to use. Could you put in the comments below what the name of the safe paint is? (I have MCAS and Multiple Chemical Sensitivity and I desperately need to have my husband repaint our house but haven’t been able to bc of regular paint throwing me into attacks/flares. If you could share the paint company name, I would so appreciate it!! I would love to try it to see if I can tolerate it. I got so excited when you said you actually found a safe paint!!!
Thank you so much!!!
Sure! The brand of paint is ECOS. :)
@@HospitalPrincess Thank you so much!!!
I'm sorry to say this but you don't look good but I do know that it's not your fault you're a really strong person for going through what you're going through I don't know if I could do that myself I kind of know what you're going through because I have CPU which rivers are opposing you however I am glad that I don't have to go through any of the stuff that you're going through you or probably one of the strongest people that I've watched on CZcams
I was wondering why I haven't seen much of you I'm glad your doing well considering all the challenges you have with your health.
I love how this vid had an ad for reactine and benadryl
Pray for you
I have chronic pancreatitis as well, and they have no idea why. My pancreas looks great on imagining and it looked good on the esophageal ultrasound, but my levels are high, and if I don't take my pancreatic enzymes after eating, I'm in excruciating stomach pain. I'm moving back to Washington state in October, so I'm hoping to find a GI who's willing to treat some of my conditions instead of letting me suffer like the dr's here in TX are doing. They'll dx you here in TX, but ask for treatment because they won't stick their necks out for you. My POTS is out of control but nobody will ok a port for IV treatment. I have an electrolyte imbalance, and there's a Gatorade shortage (which is the only way I've been able to keep myself somewhat stable). I told my current GI that IV infusions would correct the electrolyte imbalance, keep me hydrated, and get me off the high sugar content of the Gatorade, which will allow me to lose the weight all my dr's want... he won't sign off on it, neither will my primary care Dr. My cardiologist said it's a great idea, but, he's not going to be responsible if I develop an infection, so no... my double heart conditions and POTS are up to me to control. I haven't even been prescribed meds for my gastroparesis or colitis.
Gatorade Zero has no sugar, or you could try Drip Drop or Liquid IV. Unless a person is pretty much completely unable to eat or drink, VERY few doctors will ever recommend a central line just for hydration because the risk of death by infection is far greater than POTS symptoms which are aggravating but not deadly. A central line should only be used as a last resort, never a first line treatment.
I’m just wondering, why do you see an oncologist if you don’t have cancer?
Oncologist see people with iron deficiency anemia and other things. It's common with EDS patients to have other problems with their blood. Most oncologist are hematologist too. Just a quick answer.
All wallpaper is ugly.
But you look great. :-)
If you lost half of your blood volume then how did you write the title. And you’re monotonous
And you are mean for no reason. Let the girl make a living. If you don't like it, don't watch.
Perhaps someone else wrote the title for her 🙄
She said "feelin" like she lost that... Not that she actually did lose that much blood.