I’m allergic to Benadryl and I can’t use an Epinephrine Pen it would kill me because I have 2 Brain Aneurysms and one behind my Heart with very thin walls. I also have Heart Disease. I have Vascular EDS with Hyper-mobility and so many other severe things going on. I’m scared because I have now been told that I am “Terminal”. I wish I had access to doctors like you do. My pain is EXCRUCIATING Bone and Muscle, Spine. I don’t know how you do it. You do have a lot of support which I don’t, not even from Doctors. You are just an amazing person Cheyenne. You know what, I want to get some things with the Zebra on them so bad but can’t really find anything anywhere that sells things. I would love a Zebra Backpack, just the print and then a small emblem somewhere of a Zebra. Thank you for all you do for us even when you are so incredibly sick. Much love and Prayers to you and your Fiancé and Family and sweet Teddy Graham ( sorry if I spelled that wrong) . 💫💫✨💕
My heart goes out to you...Doctors are trying to figure out with me if I have systemic mastocytosis. I have to possibly have a bone marrow biopsy done pending further blood work results and labs from my hematologist .... I also recently found out that I am severly allergic to wheat&gluten.My allergist feels that I could be borderline celiac as well...But, of course I would have to follow up with the gastroenterologist for an endoscopy and possibly colonoscopy.... When did you start on this journey as you are much younger then me? I hope you don't mind me asking as I am new to your channel...
I’m allergic to Benadryl and I can’t use an Epinephrine Pen it would kill me because I have 2 Brain Aneurysms and one behind my Heart with very thin walls. I also have Heart Disease. I have Vascular EDS with Hyper-mobility and so many other severe things going on. I’m scared because I have now been told that I am “Terminal”. I wish I had access to doctors like you do. My pain is EXCRUCIATING Bone and Muscle, Spine. I don’t know how you do it. You do have a lot of support which I don’t, not even from Doctors. You are just an amazing person Cheyenne. You know what, I want to get some things with the Zebra on them so bad but can’t really find anything anywhere that sells things. I would love a Zebra Backpack, just the print and then a small emblem somewhere of a Zebra. Thank you for all you do for us even when you are so incredibly sick. Much love and Prayers to you and your Fiancé and Family and sweet Teddy Graham ( sorry if I spelled that wrong) . 💫💫✨💕
Praying for continued good health for you! You are so adorable
Thank you so much!
Thank you so much for being so open and sharing your story! God bless you, and please know that you're in my prayers!
Thank you. God bless xoxo
Where did you go? I miss your videos. Are you ok?
I have systemic Mastocytosis, you are absolutely amazing!!!!
My heart goes out to you...Doctors are trying to figure out with me if I have systemic mastocytosis. I have to possibly have a bone marrow biopsy done pending further blood work results and labs from my hematologist .... I also recently found out that I am severly allergic to wheat&gluten.My allergist feels that I could be borderline celiac as well...But, of course I would have to follow up with the gastroenterologist for an endoscopy and possibly colonoscopy.... When did you start on this journey as you are much younger then me? I hope you don't mind me asking as I am new to your channel...
Poor you Hun