Will Lucy's disability stop us having children? | But I'd Never Marry A Blind Woman

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  • čas přidán 14. 05. 2024
  • #BritishBlindGirl #LucyEdwards #HowDoesABlindGirl

Komentáře • 55

  • @chantelr
    @chantelr Před 3 měsíci +34

    Lucy, I am 33 and slowly losing my sight. If there is any better of a person to guide someone at risk for this, ITS YOU. I love you guys and I am so proud of you guys. Lucy you are so inspiring for me. It's only been a year and a half since starting to lose my vision, so I get that grief. Thank you for letting me be part of your family conversation. You guys would be the BEST PARENRS EVER.

    • @TheBlindMermaid
      @TheBlindMermaid Před 2 měsíci +2

      Hey there. I just wanted to share. I always had 20\20 vision. At age 18 I woke up to no vision in left very small tunnel in right. Honestly it was extremely difficult and hard. But now I am happier then I've ever been or thought I'd be. You got this ❤

    • @chantelr
      @chantelr Před 2 měsíci +1

      Thank you so incredibly much. Your encouragement means the world to me

    • @jeanpeck380
      @jeanpeck380 Před měsícem +1

      I am losing my vision due to Glaucoma my hubby is great help..but I have been in shock for a while

    • @chantelr
      @chantelr Před měsícem

      @jeanpeck380 Hi there friend. I am so sorry for this loss. There is alot of grief involved for sure, there was for me. I remember my first few days. It was terrifying. I woukdnt wish that on anyone and im sorry. I'm sending you good vibes and energy. Don't give up. The world is learning how to be kind to the blind. Be patient with yourself. You'll find out there is a super hero buried inside you. You will do incredible things, I know you will. Chin up. And I'm open to chatting privately if you want to vent. Stay kind to yourself and others will follow. 🖤💛 and if not, I can come smack them with my cane, I don't mind 💛

  • @karenwalker575
    @karenwalker575 Před 2 měsíci +20

    What a difficult decision.Thank you for being so open, whilst knowing how vulnerable it makes you both. It's obvious any children you may have will be loved, unconditionally, regardless of their genes.❤

  • @blindnessisaspectrum6237
    @blindnessisaspectrum6237 Před 2 měsíci +7

    There's so many throw away children. Adoption is always a good prospect. Your family doesn't need to go through all the tribulations of your body trauma's. Good on you for standing strong. Doing what's right for you as a couple is what counts. Think about the things the child would endure. Would he/she love you for your choices? Whatever your decision you will be magnificent for it.

  • @emmapanzica8333
    @emmapanzica8333 Před 2 měsíci +8

    Thank you for sharing and being vulnerable. I always love hearing you guys and the both of you will be wonderful parents❤❤❤

  • @widethigh6ix9ine
    @widethigh6ix9ine Před 2 měsíci +5

    This is my first timing seeing the full intro, I absolutely love the graphic, and yall are lovely for being so open

  • @tiffanimilburn8885
    @tiffanimilburn8885 Před 2 měsíci +7

    I love your podcast. It takes courage to be vulnerable.

  • @shaaba
    @shaaba Před 2 měsíci +2

    Thank you both for being so vulnerable, you’re gonna make the BEST parents, I just know it. Love you! 💛💛

  • @imaginhoneychurch6025
    @imaginhoneychurch6025 Před 2 měsíci +5

    Thank you for your transparency on such a vulnerable and in your case personal subject ❤

  • @kowa5209
    @kowa5209 Před 7 dny

    Lucy I’ve watched you ever since your CZcams channel was picked up by local news, all those years ago. Feel like I’ve grew up with you. Oli has always been such a decent young man, he reminds me of my own husband. It’s lovely to see. xx

  • @ren5215
    @ren5215 Před měsícem

    Hi Lucy, my name is Ren and I also have IP just like you. You are the first person I’ve seen publicly with IP and I’m ngl I was super excited that someone also as the same condition as I do
    I just wanted to say that I completely understand and agree with your stance, and I take that stance as well. Now IP as affected me more neurological and physical compared to eyesight, and I love IP and it makes me who I am and I would never change that, just how you feel about your blindness. But I feel that if I could prevent many of the life issues that have given me trauma to my child, I would 100% do it.
    I wish you guys the best in growing your family and thank you for being so vulnerable in your experience through your blindness and your ability to start a family.
    Without you I would have never accepted and been proud of my disability and to see you talk about your options of having a family gives me hope that I will be ok when I get to that stage in my life
    Lots of Love 🩷😁

  • @Remnants_
    @Remnants_ Před 2 měsíci +1

    Thanks for sharing this part of your journey with us. I hope everyone is supportive & kind about sharing this. Everyone has the right to choose if & how they have kids. Thats the biggest thing, the ability to choose what is right for you, too. Good luck for if or when you move forward with this!

  • @florenceamalfi4500
    @florenceamalfi4500 Před 2 měsíci

    You are amazing guys. Thank you for sharing. All the best in your journey ❤

  • @dliles773
    @dliles773 Před 2 měsíci

    Thank you for sharing this and being so open.good luck with your journey.

  • @ritikakhanal8247
    @ritikakhanal8247 Před 2 měsíci

    Love you. Thank you for sharing. Its so important to have people talking about this stuff, because this is such a real conversation within the community, and I know how many people will feel less alone because of this. And it totally makes sense your thought process. Because yes, disability can be beautiful once you figure out how to work with it and make it your own. But its not an easy life. It creates challenges on an every day basis, and as much as we can come to terms with it and be proud of it, I think we all have moments where we think, what if we didn’t have this? Because honestly, life would be so much easier without it. So knowingly doing that to a child when you know what you’ve gone through and that things could turn out even more differently simply makes sense.

  • @rolo429
    @rolo429 Před 2 měsíci +1

    The way Lucy and Ollie described their thought process around their decision is exactly the way my husband and I rationalised it when we were making a similar decision. Thank you for sharing for others' benefit, and for making it clear that it is an incredibly personal decision which no one else has the right to an opinion on. I want to temper that though, for Lucy and Ollie and anyone else reading, that IVF PGT-M isn't a magic bullet.
    Despite having no known fertility issues, and being a good age, we've done 4 rounds over 3 years and got nothing. IVF is incredibly tough on the body, especially if you're already dealing with a physical health condition. It's also the biggest mental and emotional rollercoaster which would test even the strongest relationship. Go into it with optimism - you have to, otherwise you couldn't put yourself through it. But also please prepare yourself for the possibility that it might not work. 💔

  • @Emmah1243
    @Emmah1243 Před 2 měsíci +1

    This was an honest and vulnerable conversation to have and i commend you both! Its a hard decison to make and i commened your bravery, Lucy. Ye will make wonderful parents!

  • @jaimew1539
    @jaimew1539 Před měsícem

    Lucy I love watching your videos. Your energy is an inspiration and your attitude is refreshing. Also, you have an absolutely wonderful voice, maybe you should be a voice actress! So lovely.

  • @Natty_lew0
    @Natty_lew0 Před 2 měsíci +1

    I’m a mum with autism and BPD and my 13 year old has autism aswell and I’m not going to lie
    That girl saved my life luc & ollie
    You both do what you want with your bodies I’ll still be here cheering you on no matter what
    I know it’s easier said than done but try to ignore all the hate comments you’re both too beautiful. Amazing people that only try to spread positivity and love around and that is why I absolutely love and Adore you both

  • @superkawaii792
    @superkawaii792 Před 2 měsíci +5

    As a disabled person I see it this way.
    Accepting your own disability and living your fullest life doesn’t mean you’d ever wish it on anyone else.ever. The world can be unbearably cruel as well as beautiful. Never feel guilty for wanting the absolute best for your children especially when it comes to health!
    You’d make incredible parents for sure! Miss molls is already extremely lucky to have you both ❤

  • @luv2read247
    @luv2read247 Před 2 měsíci

    I have endometriosis and chronic intractable migraine. If there was a way i could insure that my child would not have these diseases, I would do it in a heartbeat. I totally understand your dilemma Lucy because I wrestled with the eugenics ideas just like you. I came down on the side of, if my kid has my diseases then I will be able to advocate for them. I am also fiercely hoping my baby won't have it.
    I think you should do whatever makes you the most comfortable without guilt.

  • @jillbooth7140
    @jillbooth7140 Před 2 měsíci

    Love you two! I sincerely hope your family planning all works out well for you both.....and I'm certain that it will.
    Your children will be so lucky to have both of you for their parents.xxxx

  • @jasonnajaso5635
    @jasonnajaso5635 Před měsícem

    I am 26. My son is four years old. His father cited. There is a 25% chance later in life that he could go blind. It is very moving and humbling to have these discussions. Thank you for your vulnerability. Thank you for being willing to share it with us as much as you have on this beautiful beginning of your journey for the both of you. I recommend a stroller with a double sided handle with the reversible handle. Super helpful. 22:04

  • @agatarosicki467
    @agatarosicki467 Před 2 měsíci

    God bless your sweet souls! And I wish you all the best. You guys are so amazing and cute. I have no words to express how watching your relationship makes me happy! I always see the positive in the difficult. So I am the exception of people judging someone because of my disability. I tried to keep everybody on an equal level! God bless

  • @CaityLouise85
    @CaityLouise85 Před 2 měsíci

    Thank you for sharing this 🧡 No part of me doubts you’d love any child, no matter if they were disabled or not - that isn’t what this is about

  • @PurpleNoir
    @PurpleNoir Před 2 měsíci

    Love the podcast ❤❤❤

  • @CaylawithaC
    @CaylawithaC Před 2 měsíci

    I appreciate your vulnerability and sharing all of this. I am blind and currently pregnant with my first baby. We did IVF for infertility though not genetic reasons, but if I was in your shoes I would probably make the same decision as you even though it is a very complex and difficult one. There is definitely a lot to think about in preparing to be a blind mom. I will be making videos on my CZcams channel along the way about all of those aspects that may be helpful to you as you go on the journey as well. If you have any questions about IVF in general or specifically being a blind woman going through IVF I’d be more than happy to help in any way I can. One thing that I wish I would’ve known is that the process takes longer than you might expect. I was already working with a fertility clinic and decided to move forward with IVF in February or March of last year, I didn’t end up actually starting stems and having the retrieval until June, we had our first embryo transfer at the end of September, and then I found out I was pregnant in October.

  • @katiekennett5294
    @katiekennett5294 Před 2 měsíci +2

    My journey was My first pregnancy was my beautiful daughter she's was born with no eyes(we had no idea) but she's amazing then I had 2 miscarriage 6 and 7 weeks and it was so emotional even now I still think about it. Then I got lucky and had a beautiful baby boy and he healthy but had a milk allergy until recently he's nearly 2 years old. You just never know what's going to happen. I wish you the best with your journey.

  • @jyotirajchandrot9171
    @jyotirajchandrot9171 Před 2 měsíci

    I appreciate the thoughtful decision strategy

  • @williemacon30
    @williemacon30 Před 2 měsíci

    After this story Lucy deserves all the laughter that she gets in every podcast

  • @geekytrainerhs9078
    @geekytrainerhs9078 Před 2 měsíci

    Lucy you're an outstanding role model for the disabled community 1:13 and beautiful on the inside and out Olly is the luckiest man❤️

  • @_BecX
    @_BecX Před 2 měsíci

    While this is so personal for you both and I appreciate you opening up and sharing this, it is so fascinating. I am a mum of a nearly 2 year old daughter who has a very rare chromosome deletion (she is 1 in 15 globally), My partner and I found this out when I was pregnant (planned pregnancy) I had an amniocenteses done at 17 weeks and thats when they found the deletion, my daughters deletion ended up causing severe preeclampsia and other complications within 24 hours at 34 weeks and I delivered her via caesarian at 34 weeks and 1 day gestation. While I was pregnant, my partner and I both had our chromosomes tested and we both came back completely normal, our daughters case is what is called a "de-novo" case which basically means a random scenario that happened during conception that neither of us could prevent. Interestingly, if we decide to have another child (I'm on the fence as our daughter is severely globally delayed, she's had all up 5 surgeries including major jaw surgery as she was born with a very small jaw and cleft pallete, all of this has caused a lot of trauma and PTSD for me), but if we do decide to, we have been advised to go to genetics first to discuss the possibility of us having another child with a deletion because we have a child with a deletion already, it's made me think about how my daughter will have children if she decides to as that is her decision, she will likely pass this on and she may need to go down a path similar to yours and it will be so interesting to see how far advanced technology is by the time she decides to go down that path if she does.
    Even though mine and my partners chromosomes are normal, my mum had her first child at 20 weeks who had the rarest type of down syndrome, she sadly didn't make it, I was born at 22 weeks gestation - very lucky to be here - I have ROP from my prematurity and I am legally blind.
    Again, thank you for sharing something so personal to you both and congratulations on one day becoming beautiful parents.

  • @annetteconnelly125
    @annetteconnelly125 Před 2 měsíci +4

    So interesting guys - I think you are making a very sensible decision. Aside from the genetic risks I would think the stress of being naturally pregnant and waiting to find out if your baby would be ok would also put a strain on your pregnancy and your health. Hope you do pass on your beautiful red hair Lucy! You guys will be fab parents - good luck ❤️

  • @AshleysAdvice
    @AshleysAdvice Před 2 měsíci +1

    I absolutely love your podcast you guys are such a cute couple and I wish you all the best with this process, I also have a visual disability but mine is caused from brain damage at birth alongside a physical disability, because mine is from the umbilical cord it's just sadly something that happened to me, so not the same thing, despite this though even just about having a normal child I have my worries being a disabled mum I've been told even by my parents they're worried about me being a parent they didn't word it great but it did make me a little worried, I think everything around pregnancy can be scary regardless of the information you know so even having a perfectly healthy child there's still a lot of fair there around pregnancy giving birth and all of the things that could happen, I would know since I was a complication due to the umbilical cord getting wrapped around my neck my mum had to have a C-section to save my life rather than being born the regular way, she also had to C-section with my sister just to make sure nothing went wrong and she's perfectly healthy and fine, so you never know what might happen. I wish you all the best with your journey and hope you have a lovely girl or boyregardless of disability, I'm sure you'll make wonderful parents.

  • @scar4265
    @scar4265 Před 2 měsíci

    Lucy you are incredible and Ollie is just a peach. You and him will make the right decision for you.

  • @amydixon9982
    @amydixon9982 Před 2 měsíci

    Good luck with the IVF guys. We have two children by IVF because I have PCOS. Although, my husband also has an inherited eye disease but it was not identified genetically until we already had both of them. It gives me comfort that if either of them have inherited the gene, they will be able to make the same choice you are making when they are older. X

  • @gabrielletanner5339
    @gabrielletanner5339 Před měsícem

    I've lost two babies and don't have any...I always said I wouldn't regret..in a world today I am glad I haven't.

  • @sophiephillips5116
    @sophiephillips5116 Před 2 měsíci +2

    Hi Lucy my sister also my best friend, has Incontinentia pigmenti she was diagnosed when she was baby (severe skin conditions)
    . She has had to have lots of maxofacial surgery and intensive dental work/implants/bone grafts etc and never once complained she had regular eye check up too, if she was to consider having a child she to would have to go through genetics etc. You are amazing and should be so proud of yourself !
    You would be a beautiful mum xxxxx

  • @nyves104
    @nyves104 Před 2 měsíci +1

    I've never wanted kids, they're just not for me. I don't know if my disability is genetic or just a birth defect, but I get your choice. Mine comes with a lot of chronic pain and I wouldn't wish it on anyone, so if you've got the option to avoid it, I think it's fair. I look forward to more videos about your journey of becoming parents and I hope it goes smoothly

  • @TLCgoldendoodles
    @TLCgoldendoodles Před 2 měsíci

    You are wonderful people, and any of your children will be too.

  • @daisylloyd2855
    @daisylloyd2855 Před 2 měsíci +1

    Hey Lucy and Ollie. My name is Daisy and I’m blind too but I’ve been blind for 20 years. I llost my eyes at the age of five because I had a rare cancer in the retinas called RetinaBlastomer. Like Lucy’s condition I can pass on the cancer genes to my children which makes me worried a lot. People say there are ways to avoid this from happening. One is IBF! But I do prefer to do it naturally. I have a sighted boyfriend who denies that he might have ADHD. But me and my parents think so. I have warned the boyfriend about the possible situation and asked him if he would be fine if the likelyhood that the child did end up with the cancer, if he would support me through it. Because of my past, I got PTSD from all the treatment and needles.. I’ve suffered from that since two years after I lost my eyes. I actually go to Moorfields Eye Hospital a lot and have the same consoltant that you mentioned a few episodes before. The boyfriend is very supportive and said that if that would happen to our child, that he would support me through it. Or try his very best. But I’m terrified about it. So worried that I might relive everything!
    I really like listening to the podcast because it helps me get through the day when I’m feeling low. Plus it makes me feel like I’m not alone! And all the quirkiiness of you both make me giggle a lot! Especially when reading the Hate Comments!
    Have a good day and can’t wait for next week’s episode!!!!

  • @madelinevictoriapolkowski9948
    @madelinevictoriapolkowski9948 Před 2 měsíci +1

    You will be great and they will not care that they are different

  • @marymactavish
    @marymactavish Před 2 měsíci

    I'm picturing the loading circle on my phone when he stops

  • @merrly20
    @merrly20 Před 2 měsíci

    Don’t feel exposed or anything it’s up to you what you wanna do and planning a family to start a family whatever you choose how support you and as far as the eugenics go those people should know that visually impaired people exist. People with disabilities exist. We have always existed since the beginning of time and they should get over it and get over it

  • @Le_Tiger
    @Le_Tiger Před 2 měsíci

    Cool intro allready

  • @fishhugify
    @fishhugify Před 2 měsíci +1

    I hope you do have a baby and show the world that disabled people can look after new-borns to adult

    • @slimetank394
      @slimetank394 Před 2 měsíci

      I hope you treat her like a human being and not a sort of icon that needs to be the sample of greatness

  • @ritikakhanal8247
    @ritikakhanal8247 Před 2 měsíci

    And, as usual, to stick to my out of context quotes: “Well, its something you know how to spell.”
    “Very correct. Thank you, darling.”
    “By the way, we don’t want a test tube baby.”
    “She will get her eggs. Will I? I think they will just be in me.”
    “They will have your eggs. They will fertilize them first… with myself.”

  • @williemacon30
    @williemacon30 Před 2 měsíci

    Lucy my story is a little diferen from yours it's just that one of my parents had a good Gene the other parent had a bad gene and the doctor told me that if I have a wife with the same eye condition there is a 50 50 chance our kids will be vision impair ALSo i hav r p