"I'm choosing what I do to hurt myself" - Casey Stoner & his everyday struggle with chronic fatigue
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- čas přidán 30. 01. 2022
- Since retiring from professional racing, Casey Stoner has been battling a debilitating case of chronic fatigue syndrome. After years of tests and research into the illness Casey and his family are still coming up empty in their search for treatment.
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Made me cry. He is right, the hard part of feeling better and pumped and then wiped out; the psychological strength from not getting your hopes up. Awesome dude.
Wow. Renewed respect for Casey as a person after listening to his struggles. Always admired his “alien” talent on a bike.
Stay strong Casey, thank you for all your service and success on the bikes for Australia. Your a legend mate.
Love from the UK still
I’ve dealt with chronic fatigue to varying degrees most of my adult life (53 years old, former mtb racer. Still run, bike, lift 5-6 days/week). Got to the point where I had to nap in my truck on lunch break and would pass out on the couch when I got home. Finally found a doctor that specializes in chronic fatigue. Blood work showed low hormones, adrenal fatigue, and active Epstien Barr virus. Started last May with a tailored 3x daily vitamin/ supplement regimen, TRT, and 2x daily anti-viral med. Reduced carb whole food diet, 11 hour time restricted eating ( trying to get this under 10 hours), and try to get 7 hours sleep per night (8-9 would be ideal but difficult with work and family). Feel better now than I have in years and improving every month. Hope this story might help someone. Hearing about Ken Roczen’s struggle with EBV and Nick Koumalatsos’ struggle with low hormones got me thinking about finding a new doctor and helped me ask the right questions. So glad I did!
Good on you, a tough battle for sure.
Long Covid EMCFS stole my life 22 september 2022. Im stuck im my bed 23/24. I was MTB, dirtbike, enduro, motocross, sportbikes trackday every week. I have no clue how to get some kind of life back. i need to pace to go to toilet, eat, microwave, shave, wash etc.... i hope with that 50 Millions Casey Stoner with his foundation find a cure before i die of it.
czcams.com/video/44ddtR0XDVU/video.html
Such a cruel and horrible disease, have suffered from it since high school. Stoked you had some awesome years before you got it. Long covid has so many scientists working on it right now, I'm sure they will come up with some kind of treatment as the two illness are very similar.
I'm Brazilian and I've hardly ever followed MotoGP, but since I was a kid I've always considered this motorcycle category to be the most exciting of all motorsport categories. Knowing a little about this MotoGP world, I soon met (on TV, internet) some of the great figures, such as: Valentino Rossi, Dani Pedrosa, Nick Hayden, Jorge Lorenzo, and almost everyone is a fan of the VR 46 and later of the MM 93 because they were competitive, they earned a lot, they were very bold...
I didn't have a rider that I was a fan of, so I got to know Casey Stoner's history and career and today I consider him my favorite rider for everything: for his talent, his unique achievements, his character, his story of fighting this disease overwhelming, for her determination and example. Your number 27 and the memory of your deeds will forever be in my heart!
Thank you very much!
From a Brazilian fan of Australia's "pure talent", the Wild 27.
Had chronic fatigue not fun at all took 15 years to get over it, the catch is if you do something it wipes you out. It simply takes what ever time it takes, but every time you do anything physically get stressed emotionally it sets you back and makes the whole ordeal take longer very frustrating.
From a guy dealing with Lyme....i feel you brother. Hope 100% health comes back to you🙏
As one who was at the peak of their physical talent, representing Queensland in AFL.. chronic fatigue is the most depressing and soul crushing sicknesses, having the things taken away from you for something so invisible to people
I feel tired a lot , how does one know if it’s chronic fatigue?
@@AussieBattler46 a doctor's visit is a good start. They can check your blood for signs of it as well as determine what else it could be.. like diet, stress, drugs etc.
@@AussieBattler46 usually if the fatigue is post exertional and is not relieved by rest, combined with sleep disturbance. Most chronic fatigue syndrome patients are post viral. All the best
@@smpmarsh I struggled with Chrinic fatigued for almost 10 years after a viral infection. Went from cycling 100km once a week to couldnt walk around the block.
soul destroying, good luck Casey, hope it gets better.
@@whittykins2000 10 years! damn. Did it get better?
Hell that was intense ,the honesty ,puts things in perspective from a guy you think has it all .
It sad to hear your struggles @casey but glad to see you starting to get back out and about involved with the public, fingers crossed you keep improving for your kids and yourself
My admiration for the legend never ends , so lucky i got to see him race in my era of life, in my opinion the very very best.
People dont understand until they go through something similar or the same themselves.
If you have a friend that doesn't work & genuinely seems to be struggling....dont judge him! You want to make that guys or gals day. Go and visit them and see how their doing! Go say hello & show them that your there and u care. That lifts a mans spirits no end as it is a brutal disease. Can feel extremely lonely experiencing something like this....especially when youve been so fit & active!
You can have all the money in the world but your health truly is your wealth. Never forget it and NEVER take it for granted❤
100% people don’t get it and it’s so lonely
CFS took me from a 50 year old who could drop to the ground and give you 30 one arm pushups at the end of a 5 mile run to bed bound over night! Still sick 20 years later at 70 years old. I'll never give up though. Thank you Casey for spreading awareness.
So sad to hear this, chronic conditions and "grey" areas as my issues were described to me are so frustrating.
Casey nice to see you're looking much healthier, never give up mate. 👊
Watching him race was mesmerizing....watching him recover through these interviews is just at mesmerizing. It takes a lot of nerve to be this honest. We never know how many people we will impact, especially someone whos had a large part of their life in the public eye, so thanks for sharing your story and struggles champ. You're still having an impact on the world!
Casey, thank you for sharing. I've been stuck with this a long time and and the title of the interview is perfect! I now have a motorcycle again, and pondering a dirt bike again "might be too much hurt" but have to to save the mind.)
After seeing 30+ years of research it looks like the mitochondria is the key. Producing lactic acid instead of ATP. VIP treatment have reset the system in some lucky folk, is you haven't tried this already check out the Shoemaker protocol.
…thanks for the honest share Casey, resonants strongly, encouraging much! 🤜🏼🤛🏽
great interview, thanks Casey
My daughter played soccer with a girl who's father suffered with chronic fatigue, I was told recently he'd ended his own life , he was sick of being sick, really sad...
I admire Casey for the level he trained himself to reach and for how long but look where it's left him ! He achieved his ultimate goal, but at what a price !
I've been doing sports for my whole life with a truly demanding career besides and I just dropped two years ago while helping a friend on his boat.
My heart stopped, I looked at him with my hand on my heart and just had time to say "Something's wrong" before collapsing.
Long story short: 3 weeks Coma and a ventricular pump grafted to my heart I now walk around with a computer linked to a pump grafted to my heart while waiting for a transplant.
I'm extremely lucky, but I suffer from chronic fatigue now and feel that there is NO WAY I can let the people who saved my life down now.
Its been two years. This is the third.
I'm part of a rare blood group so it'll take time and not one day goes by without me HAVING to walk and do cardio exercises to stay alive; all mixed with fatigue because of a heart that isn't working properly anymore.
Kudo's to Casey for at least realising what's up and for dealing with it, but it seems that he unwittingly somehow brought it onto himself and now there is an enormous void without the pressure to go out and WIN another race, meaning perpetual training etc.
He wore himself out, top notch.
It's good that he believes the coach that told him he was an A grade cyclist. He's too small to ever be an A grade cyclist. He's the equivalent of an A grade cyclist for a guy his size more like.
@@team3383 Nah. Every single champion of every sport trains to the absolute limit and none of them (except Casey) gets chronic fatigue. Also Casey got it many years after he already stopped. This is a medical condition, triggered by something that our current medicine is incapable of diagnosing.
@@il-conte I won't go into my personal case, BUT Casey stoner was trained and trained his body since the age of 4 to become world champion.
Just like in training; if you go out running once a week it'll do you little or no good.
A bucket of water thrown over a stone every day has NO effect apart from wetting the stone.
A drop of water every second for years will cut through that same stone.
In the same way Casey's body has reacted to him stopping his "ultra" training to stay at MotoGP N°1 level with TIME.
End of.
Cheers.
Its a good yarn he has but it's like lietening to his doctors and psychiatrists when listening to him.
His body is finally recuperating from all those years of abuse he's put it through.
The real question here was was it worth abandoning his childhood for it.
@@team3383 Sure, but again... there are thousands of top atheletes around the world. Why don't they all get chronic fatigue? Sports like boxing or swimming, or even soccer, require much more physical exertion than motorsports. Those guys start very young too.
The physical stress might be a trigger, but I really doubt it's the only cause. There must some other genetic/autoimmune disease at play..
@@il-conte Casey says it himself sometimes and there is of course the famous time he ran up to someone "Rossi or Marquez" to tell them they'd 'run out of talent':
Casey doesn't work on talent. He's very good; the best, but it's through diesel training (that he refutes)....
He forced his body to do thingd he wouldn't normally do while racing with other pilots that were talented AND heving fun while riding.
Casey wasn't having fun. He was "At work" all the time..... Just like so many other athletes. It catches up with them sooner or later.
90% of top Athletes start because they are good, then train and train and train getting their body used to training very hard so their bodies (especially Casey who started at 4yrs old) that this is what life is and "adapts".
When they stop. The body takes on it's normal functions instead of being forced through training that it had got acclimated to.
Its a very long process. He'll grow out of it. He's still fit and young.
He hit the nail on the head with the getting excited part!
Im going through hell at the moment. Have been for some years now but started thyroxine treatment about 6wks ago and i started to feel myself again....i got immensely pumped and excited thinking YES IM BACK, like youve got that pep in your step again or youve got ur mojo back...only to be crushed the next day!
I used to cycle with my sons rugby coach and he could never understand why i couldnt plan ahead. I never know what im going to be like from one hour to the next.
I have massive sympathy for Casey. What a worrior. Why dont you go on Joe Rogan Casey? He is into a lot of modern era treatment and might be able to put you in toutch with someone.
Gob bless you brother. 🙏🏼
It’s brutal hey 😢so had enough of it all
It's really good to watch this , chronic fatigue syndrome is very real ,I raced mx for 16 years lots of big injuries my last spell in hospital I never fully recovered and that was 17 years ago , Casey's struggles sound exactly the same as mine and most sufferers of cfs . Glad a legend like Casey is bringing the condition into the public eye , I know I personally, and most sufferers of cfs try and hide it for everyone other than there nearest and dearest .
Always strong... What a guy! Champ on the bike and off it 🏆
The king of the island 💯one of the best
A legend, We all hope you make a full recovery, you didn't deserve CFS , life can be so cruel, but you already knew that. Good Luck Fella, fingers crossed.
I was diagnosed w cfs in 2020; however, I was never given any medication or instruction on how to deal with it. If anyone knows of any resources I can use to learn more about it, I would greatly appreciate it. I’m just lost, I don’t know what to do, I just continue to push myself to live a “normal life.”
hope he got tested for a tick lyme disease, uncured after a few years symptoms become similar to chronic fatigue the singer Avril got it she needed 10 years to realise that
Big up for you Casey Stoner. Ducati legend forever, racing legend forever, and awesome guy. Gutted to learn about your CFS. Never even knew there was such a thing, but obviously there bloody well is. I remember when you had to take some down time in MotoGP but to see you still held back by it now, I’m very sad for you. You’re obviously one mentally tough man. Maybe it’s a matter of learning and enjoying your new life. You get to play golf. You get to have a nice nap on the couch. That is a good thing 👍 Just wishing you all the best.
I had epestein barr in my 20s which caused cfs, took a while too get over it , but i got there, all the best casey
Late to the party here, but massive respect for casey with his honesty.
Legend
You can here the sadness in his voice.
I've struggled with CFS since 2018.. lost my work career, motorsport dreams.. everything I'd worked for. It's f'ing devastating.
Anyone who is suffering you are not alone. I spent 3 years in bed but now feel completely fine- i run my own business & lift weights 5x a week with no issues.
These are the things that helped me, I hope they can help you too:
1. Cut out animal products
2. No sugar, salt, vegetable oils or processed food
3. Fast for 20+ hours per day & periodically do 3 or 7 day fasts
4. Take cold showers daily and do Wim Hoff breathing exercise.
Since doing these things, I don't just feel good. I feel amazing, which is crazy because 12 months ago I couldn't get out of bed & was suicidal.
All of this may seem hard but it is absolutely nothing compared to the hopelessness of CFS.
Nothing beats a dry fast
If you could only do 1 of those 4, which would you choose. Which helped the most?
@@dennishora3328 fasting for sure. I couldn’t believe the difference it made.
@@dennishora3328 I'll just add, although fasting would be the #1 thing I'd do, incorporating the others plays a huge part. Even if I was fasting and then drank a beer or ate a burger I would feel horrible. What we put into our bodies is the fuel, so making sure it's nutrient dense and can digest easily & quickly (plant based food) means the body can focus more energy to healing instead of digesting. I was shocked when I found out meat takes up to 5 days to digest. That a lot of energy wasted.
animals products include meat as well ?
Very interesting I think the biggest thing would be trying to not get depressed with that knowing what your body was once capable of I have chrons disease and I get how upsetting it is when you think you have it nailed and it out of no where flares up again as I’m currently waiting to get operated on.
At least we are living in a time that there’s 100% hope with advancements in pharmacology and medical knowledge that some of these diseases may be much more treatable or may even be cured.
Hate to see anyone have these issues. Best wishes for the future Casey 👍🍺💪
It's heavy hey,Ive had me/cfs and fybromyalga for the last three years.never been to jail but it couldn't be worse than this.
Life is more than just a motorcycle racing and training 👍 i understand that it's passion for Casey but also own welness and health is important 👌 you are Legend Casey ✌️ one of the most naturally gifted motorcycle racer what grand prix motorcycle racing knows ✊
This must be so tough mentally and physically. It sucks! Keep trying mate, someone has to be the first to figure this shit out. Why not you?
Casey you are amazing, look into Anthony William, his information about EBV and CFS has been healing lots of people previously on couch island.
Mr. Stoner. There's one very important trophy absent from your collection, winning a GP title on a Yamaha.
The big three, ultimate satisfaction.
unfortunately someone was too afraid and blocked him from joining yamaha - which was no loss for Stoner actually. On the contrary, it's yamaha's loss.
Give him some test & deca bro 💪🏽
It's quite similar to me. At the middle of my 40s now I'm not able to do a whole day work. I feel fatigue after the lunch and then when I try to push it harder I fell into the anxiety, get a nausea adn very sleepy. I visit the doctor many times but I just can't get rid of it. 😢
Casey if you ever figure it out let me know what helped as I'm in the same boat.
2:00 He should be introduced to David Goggins :D
But in seriousness he is a legend.
Incredible to think he was riding a MotoGP bike not that long ago, and now can barely move sometimes.
Damn this is some sad shit man
Considering the fatigue started after the shoulder reconstruction I'm thinking it could be some sort of heavy metal poisoning. Maybe try oral chelation for a few months and see how that goes.
More likely an adrenal issue... Body couldn't handle additional stress. Straw that broke the camels back.
@@Christopher-cp6yn Yes, usually heavy metals are crushing the adrenal glands. I was thinking this could be linked to the shoulder reconstruction. But it could be anything. I'm sure he went to a lot of doctors.
He had problems with fatigue during his career
“Gypsy...GANG” 🤣🤣🤦♂️
Been tested for Lyme Disease?
Chronic fatigue caused by what?
Raw meat Casey you Legend!
I hope Casey gets back into cycling. Sounds like he has some bad adrenal fatigue / chemical imbalance going on.
Is this something of a science
Casey should consider changing his diet to low carb or carnivore to fix his fatigue problem.
100% it really helps
Get checked for RA .I had the same thing for years and then became RA positive ..fml but if I knew sooner .
So his problems started after his shoulder surgery. I wouldn't be surprised if there is some sort of infection in his shoulder. Even the best surgeons make mistakes. There are videos of surgeons accidentally leaving scissors inside their patients and sewing them back up.
Somone's put a gypsey curse on him for beating Rossi.
pleasure and pain is mixed up for our generation. they are intertwined.
I know what "IT" is, and its not what we re told.
do tell...
@@davidneal9602 yes what do you mean?
enlighten us!
Pretty much sounds like Casey’s HPA is messed up. If his anxiety and stress and physicality was maxed out for long periods of time as in his career, the effect on the HPA can be significant. Essentially burning out the body’s ability to produced regenerative hormones leading to his conditions. If the pituitary is messed and doesn’t produce ACTH hormone properly, the adrenal gland does not activate to produce cortisol, and without cortisol, well bad enough, can be fatal. Basically an adrenal crisis at some level. This does correspond to obsessive compulsive related tendencies forced on conscientious type folks, in other words, a decent kid trying to do his best to win and please a whole whack of people oh and a nation, to the detriment of his health and no one was selfless enough to notice it was killing him slowly.
No longer having those specific, hyper exciting goals/races always scheduled and worked toward that create purpose and parameters for function is also a major factor. Lost in the nothing is almost more devastating given that anything less than 200 with his hair on fire won’t trigger “desire” motivation component and corresponding adrenal action even if it weren’t messed up is something to consider.
If I could suggest, if he hasn’t already looked at it, get the pituitary/adrenal/cortisol levels checked asap and also book a golf match against someone, to re-focus his goal/purpose spark fired and the gas burnin situation. He will likely not have a desire, but something significant should be booked for the jump start. Heck I will challenge him. We’ll play for charity to keep the stress low the competition strong and the experience fun.
I too have eerily similar issues from stress burnout, physical damage, correct levels of expectation destroyed and decades of constant disappointment, some of which was my own fault from expectations simply set to high. Avoiding the trap of paralyzing pointlessness is paramount. Sometimes shear grit and determination of the mind over the body then becomes the major factor knowing and creating real importance in your actions.
Despite the challenges that we face, we forge ahead. I am
It is an awful way to exist. 😩
Casey, maybe your so in tune with yourself that you can't believe that you are aging.
Epstein Barr? Keep you're head up bro.
Sounds like he has it got a bad dose of CF.I had it for 3yrs,went from hard working fit,to couch potato in weeks.Never really got back to my best, and had to be careful for a number of years as not to over do it.Played golf most days of the working week back then,had to quit,just could not walk 9 hole let alone 18,took it back up 4yrs ago,in a buggie.
Did I call it or did I call it? 😂🔥
hope he never took the poison jab
Upload video to Spotify noob
What are you talking about?
@@GYPSYTALES you uploaded audio to spotify, upload the video of entire conversation.
Casey needs to be sat down and told straight up, What causes CFS, Why he has it and How to reverse it. Also He most likely has a form of PTSD from his shoulder Operation (Yes that's a real thing) That is making the whole thing worse. It is so easy to explain and to fiX. I have worked with the top Urologist in the country along with over a dozen Emergency Medical Physicians at the Gold Coast ICU In an educational capacity, Most of them would not know the fist thing about how the body actually functions on a cellular level. Once you know that, most physical conditions like CFS are simple to cure!
So what’s the cure?
@@GYPSYTALES Malnutrition and high levels of stress hormones have destroyed his ability to absorb nutrients properly. But the biggest problem is understanding how to get all the nutrients and minerals you need in the right form. When they are in the right form, they contain Live Enzymes that help your body to know what it is so the body can absorb it. Apple Cider Vinegar with "Mother" enzyme will restore your gut to optimal health so it can uptake nutrients properly and then Organic Beef Bone Broth to replace all of the Nutrients your body needs in the right form (alive) and in one go.Vitamin pills and Pharma drugs are a scam and do nothing!
It will take 3 months to top up all your nutrient stores to functional level.
6 months and you will have topped up all your nutrient reserves as well.
After 2 years your body has replaced every single cell with ones made from optimal nutrients.
I also believe Casey has a Form of PTSD which basically is just an unbalanced Endocrine System. That needs to be addressed also!
@@GYPSYTALES If you deplete your body of nutrients for too long, Your body actually loses the ability to Absorb nutrients. So now your body can't absorb nutrients, how do you put them back? That's the million dollar question and that is what CFS is in a nutshell!
@@quaussiemoto3939totally wrong
@@petejames9366 Oh, Ok Doc!
hes bored. get a MT-09 or something and you will feel better. you were born to race and ride bikes and live on the edge. golf is not the edge.
Get back on roids