What Does it Mean to Have Light Perception Vision And What Does it Look Like?
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- čas přidán 5. 05. 2019
- What Does it Mean to Have Light Perception Vision And What Does it Look Like?
Matt describes and demonstrates what it means to have vision that can only see light perception. Matt is blind because of Retinitis Pigmentosa and has been losing his vision for 19 years. Thank you!
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I showed my Dad (who is sighted) this and he said it looked exactly the way you said it should so you did a great job with putting it in the right place near the camera
Hi Matt! Thank you for the feedback! It is cool that your dad watch the video who is cited and was able to tell you that it is exactly what it was supposed to look like. I appreciate that! Very cool! I hope you’re doing well and having a nice week! Talk to you and see you again soon :-) Matt
Hi Matt, I'm really glad that you shared this description and visual representation of your vision. I appreciate being able to have a better understanding of your vision. I remember before we went on our first date that I watched a youtube video that someone made about what you might be able to see. It wasn't totally accurate to your vision but I hope this video will help other people, too.Thank you! CB PS: Keep a good handle on all your stuff the rest of this week because maybe that will be what I give away! :)
Hey Corey! Thank you, I’m glad you enjoyed the video and that an allowed you to understand my vision a little bit better. LOL, I will definitely keep all of my belongings very close and locked up so that you are not able to give them away. :-) Matt
That is how my vision is I can see light and I can tell when it's dark
Hey E J! That is interesting, I wasn’t sure the degree of your vision loss, it is fun to learn more about you!! Thank you for sharing this! Matt
Thanks for the video Matt. Your explanation of light perception was very good. I hope someday people become more open to receive education and understand our struggles. Awesome video. 👍😄
Hi thank you for watching this and for your feedback! I appreciate your kind words. I agree, hopefully people will understand more what does like to have vision loss and what it looks like to have different degrees of vision loss. Thanks again for your very nice words, I am glad that you thought the description was good. See you tonight in another video! Matt
Wow what a great video Matt You are extremely creative and I love the way you held up the wax paper and give us an example for daylight and for a nighttime view. Very cool. Thank you for sharing the very well detailed explanation. I am confident it will help a lot of people out on understanding your perception of light. Thanks Matt cat!
Hey Lenny! Thank you very much, that is very kind of you! I’m not sure exactly what it looks like through the camera, but I thought this would probably be a pretty good example. Somewhat transparent, but yet not at the same time. But still allowing a significant amount of light to shine through to give the illusion of light perception, but a very cloudy image at that. Thanks again Lenny, I’m so happy to be your friend and to know you! :-) I have had a few people reach out already and say that this description was spot on with how they see with light perception. Have a great Tuesday Lenny! I hope you’re having a nice week and enjoying the beautiful California weather! Talk to you soon, Matt
Thank you so much for this! Vision is extremely subjective, and this helped me understand what my love’s vision is like. He tried to explain it to me, but I didn’t get it until now. 👍🏽
In my dead eye, I had light perception only for a bit until it went away altogether.
Good morning Kia! Great, thank you for the feedback! I’m glad that this video was helpful and give you a better understanding of what it looks like to have light perception in different settings. I appreciate you watching this and for your feedback! That is very nice to hear, I’m glad you enjoyed it and possibly learn something from the video! And hopefully better understand the vision from your love :-) have a great Tuesday, talk to you again soon :-) Matt
This is really fascinating. Really appreciate you sharing this
Hi Matt. Good job describing light perception. That’s the best we have ever heard it described. In my case the more light I have the better, because it makes it easier to see where things are like chairs are people even though I can’t tell just by looking that it’s a chair or a person. As far as contrasted think it’s easier with a darker background. For example in my kitchen we have a darker colored tablecloth. If I lay a white sheet of paper on top of that to scan it with my phone or something, I can tell that the paper is a lighter color because it stands out with a dark background. I only have central vision though, so in my case I can only see straight ahead or whichever way I’m facing.
Hi Tiffany! Thank you very much for your very kind words, that means a lot to me! I’m glad that you think this is the best light perception has been described, I appreciate the great feedback! That makes perfect sense about a white piece of paper on your dark tablecloth, I am exactly the same way! It’s always nice to have that drastic contrast difference which allows us to see things a little easier. It’s interesting that you prefer more light and very bright situations which allows you to see better. I always find it to be fun to learn more about you and your vision. Thank you for sharing all of this! See you again in a few hours in another video! :-) Matt
wow just saw this video as I am crying still after a year having to put down my cat ,one of the vets notes was both eyes light perception only . great info
Great video man love the content
Thank you! I really appreciate that!
Great video! Very informative! It's so interesting to learn what exactly different people with vision loss are able to see versus others. Hope you are having a wonderful day Matt!😊
Hi Claire Ashley! It is so nice to hear from you, I hope you are doing well too! Thank you, I’m glad that you enjoyed the video and learning more about what I can see year with a light perception. It is very interesting, everybody has a different degree of vision loss and everybody sees things differently, but at the same time, all of us have a very similar vision. That doesn’t make any sense, but it does to us. LOL. How was your Monday? I hope all is going well for you, I look forward to hearing from you again! Good night, Matt
@@BlindtoBillionaire It totally makes sense! And my day is going well! No work today so I got to sleep in so that was nice! I asked before but I forget which video it was on and I never saw if you responded.. what do Corey and you do for work? If you both work that is!
Good morning Claire Ashley! That’s exciting you didn’t need to work yesterday and had the opportunity to sleep in. That is awesome! What did you do on your day off? Anything fun? What do you enjoy doing for fun or for your hobbies, or just for leisure? As for what we do for work, Corey is an occupational therapist with a specialty in hands. She works directly with a hand surgeon and does outpatient rehabilitation for post surgical patients. As for me, I do not work at your initial job however I do contract work along with managing our rental properties. I stay relatively busy, but do you have some downtime occasional he. I hope you’re having a great Tuesday so far! I look forward to hearing from you again soon, have a great day, and enjoy the beautiful California weather! :-) Matt
@@BlindtoBillionaire That's awesome! Corey's job sounds very interesting! What a cool speciality! And in my down time I spend alot of time with my dog! Walking her and playing with her and just spoiling the crap out of her. Haha I dont have any kids so she is my baby! She is a boxer and she is 9 years old but she acts just like a puppy! And I live with my older brother who is my also my best friend, so we spend alot of time hanging out together with the pup. I am also engaged to a wonderful man, it will be 5 years together next weekend! We haven't officially started planning a wedding but we will be soon! The planning has been put on hold for now because we recently found out our dog has a very rare and aggressive form of cancer. We had the tumor removed and did scans to check for any spread and so far there is nothing detectable but that doesnt mean there arent still cancer cells in her body that could grow and spread, so she is going through chemo right now. Just started her first dose a little over a week ago. She is taking it surprisingly well! Dogs and cats get a much lower dose than humans as to keep their quality of life as best as possible so she has very minimal side effects luckily! Some side effects can be very scary but so far she has only had some GI symptoms but naseau meds help with that alot! She still has all of her energy and is eating great and thankfully dogs dont lose their fur! Sometimes they lose their whiskers or longer haired dogs can lose some fur but its uncommon. So yea we have been dealing with that. It's been tough but we are thankful she is feeling so well and acting like her normal self! 😊 hope you have a wonderful day! Do you guys have any pets or do you want any? Other than a guide pony that is? Haha that would seriously be the best! Can you take them everywhere you can take a guide dog though? I'll have to some research on them! So interesting and cute!
Hi Claire actually! Congratulations on your engagement! That is so exciting, I’m very happy for both of you :-) he is a very lucky guy to have you! That is really sad about your dog, I am so sorry to hear that. It is nice to hear that your doggie is still doing well despite her diagnosis. That is very sad, and I hope that the chemo will allow her to live a lot longer and still live a happy life. Although, I’m sure she is still being very happy with as much as you spoil her as much as you love her and take care of her. That is so sweet of you! As for pets, no, we do not have any pets and probably will not get any. We do enjoy dogs and other animals, but we are not really the type of people to have them as pets right now. We feel like we wouldn’t be able to give it to him as much time and attention as we should, and we feel like we would not be able to give it as much time as we would like to. Possibly at some point in the future, but not for a little while. I hope you’re having a great Tuesday, see you and talk to you again soon :-) Matt
I went to the eye doctor yesterday and received scary news. I've had headaches and vision trouble. They diagnosed me with optical neuritis. I have pressure in my brain pushing my optic nerves. Sometimes, all of the "lights" go out suddenly and it is scary. They are telling me my left eye has thinning and may have permanent damage. I am a relatively healthy person so this is confusing everyone. I hope we figure this out bc I am more worried by the day. I don't usually publicize my personal life, but I have been reaching out to may be come across someone who is having this happen to them too. Although I read it is very rare. Anyway, I love this community of people. I love Matt and Corey and Six Blind Kids. I look forward to every new video! These videos are also educating me on Vision impairment. Thanks guys for all of the effort you put into these for us!
Hi Courtney, thank you very much for reaching out to us. Wow, that is very scary news, but at least they were able to determine what is going on and give you a type of diagnosis. I can’t imagine how you felt when they told you with this information. It was probably very scary, probably still is. Thank you for all of your very nice words, I’m really happy to hear that you enjoyed the channel and the videos and that you find them informative. Please feel free to know that this is always a very supportive community and we are here for you at anytime if you need us. Always feel free to reach out at any time if you need support, just not to talk to somebody, need some friends, or just want some camaraderie. If you want to have a more personal conversation that you don’t want to display to the entire world, you are also welcome to email us at Blaine to billionaire at Gmail.com i’m not sure of anyone else specifically who has this, but there are a lot of great people here on CZcams and in these communities, hopefully you can connect with someone who has the same condition. Thanks again Courtney, I hope you’re doing well. Talk to you and see you again soon :-) Matt
@@BlindtoBillionaire thank you so much for the support you guys have no idea how much it means to me. I have been extremely tired along with everything. There's been a lot of blood work, exams and doctors. Whew. Hoping to get a little bit of energy back soon. I will for sure be around again for the opportunity to get to know the community better. but thank you Matt and Corey it means the world to me that you got back to me. I'm just resting and trying to stay as positive and relaxed as possible. Whatever happens I can handle it is the mindset right now. Much love to you both. Talk very soon. Courtney
Hi Courtney! Thank you for reaching out, it’s nice to talk to you during these times you’re going through. We are here for you and wish you the absolute best! Please keep us informed with any additional information, if you are comfortable sharing. Thanks again Courtney, always feel free to reach out at any time if you would like to talk. I will have another video up in a few hours, if you are able to watch, if not, that is totally fine, please get your rest :-) talk to you again soon, Matt
Omg great video! Most ppl have issues with understanding this topic in my experience with none visually impaired persons.
Good morning Brittany! Thank you for watching the video. I’m glad that you enjoyed it and thought it was a great exclamation. I completely agree, it seems that a lot of people have confusion and don’t understand what we see as visually impaired people. Thanks again for reaching out, I’m glad you enjoyed the video! Have a great day, Matt
Good video hopefully this allows the sided community to understand blindness a little bit better. Keep up the good work
Hi, thank you very much for the very kind words! I agree, hopefully some people find this video to be helpful and recognize what it looks like to have low vision, and that there are different and varying degrees of vision loss. Thank you again for watching this and for the very kind words! See you again tonight in another video. Matt
Hey Matt. As always an excellent, and very informative video. I often wish I could get across to people how I see, but, I guess my descriptions are a vague as my vision lol. I have more vision than yourself at the moment, I see Light and dark. I also see shapes - so, like if someone is sat in front of me, I see they are there , as I see their "shape" - albeit with blurry edges . I don't see the detail, so couldn't say what they are wearing, or see if they are looking at me etc. It scares me to go out at night, as I am almost totally blind then..but getting there with all of this vision loss life...very slowly
Hi my friend! It is so nice to hear from you! Thank you for the very nice words, I’m glad that you enjoyed the video. It is very interesting how you see, it sounds like we see very similar, but like you said, possibly you have a little bit more vision than I do. Oh yes, going out at night can definitely be stressful unless there is a cited guide to help us. I hope all is going well with you, it’s really nice to hear from you again :-) talk to you again soon! Matt
Excellent video.
Hi! Thank you very much for watching the video, I’m really happy to hear that you enjoyed it and thought it was good! It’s great to hear from you again and I appreciate all of your support on the channel :-) have a great day, talk to you again soon. Matt
Sorry for the late comment. Thanks for sharing what it looks like for you and your vision.
Hey Thomas! No worries at all, I appreciate hearing from you when you have time! You’re a cool person and we are both very happy to have you here on the channel :-) thanks again for all of your support and friendship :-) Matt
@@BlindtoBillionaire no worries. Happy to watching your videos
Thank you Thomas!
HEY MATT.
THANK GOD IT IS MONDAY AGAIN. I STAYED UP JUST TO WATCH YOUR MONDAY VIDEO!!!
THIS VIDEO WAS AWESOME AND IT REALLY DOES CONVEY HOW MY VISION IS TOO. BUT i NEVER REALLY CALLED IT LIGHT PERCEPTION. I WOULD JUST SAY MY VISION IS REALLY CLOUDY TODAY OR HAZY. BUT I GUESS I HAVE LIGHT PERCEPTION ALSO. THE THING WITH ME THOUGH, IS THAT THIS LIGHT PERCEPTION HAPPENS LIKE EVERY OTHER DAY. LIKE TODAY I HAVE IT BUT TOMORROW MY VISION WILL SEEM TO BE CLEAR. THEN THE NEXT DAY I WILL HAVE LIGHT PERCEIPTION, THEN THE NEXT WILL BE CLEAR. AND SO ON AND SO ON. I TOO LIKE THINGS THAT HAVE A BLACK BACKGROUND AND WHITE ON IT. THAT IS HOW MY LAPTOP IS SET UP AND MY IPHONE TOO. I AM FINDING THAT SOMETHING OR SOMEONE THAT IS AGAINS SOMETHING BRIGHT OR LIGHT IN THE BACKGROUND SEEMS TO LIKE BE VERY FADING TO ME. SO I HAVE TROUBLE SEEING PEOPLE OR THINGS.
THANKS AGAIN MATT FOR MY MONDAY FIX AND A GREAT START TO ANOTHER GREAT WEEK. SEE YOU ON WEDNESDAY. HUGS
BY THE WAY, ARE YOUR EYES READY YET FOR CONTRACT SURGERY? I WROTE A COMMENT ON A VIDEO THAT YOU MADE A WHILE BACK THAT YOU CAN READ. IT IS THE VIDEO WHERE YOU HAD ASKED THE EYE DR. ABOUT IF YOU WERE A CANDIDATE FOR CATARACT SURGERY AND IF YOUR VISION WOULD BE BETTER. I REALLY THINK THE DOCTOR SHOULD OF BEEN A LITTLE BIT MORE INFORMATIVE.
WHAT I MEAN BY THIS IS THAT WHEN YOU HAVE CATARACT SURGERY, THEY TAKE YOUR BAD LENSE AND REPLACE IT WITH A NEW LENSE THAT IS KINDA LIKE A FAKE LENSE THAT IS NOT THE SAME TYPE OF LENSE THAT YOU HAVE HAD SINCE BIRTH. WHEN YOU WAKE UP, YOU WILL FIND THAT LIGHT WILL BE A LOT MORE BRIGHTER AND MAYBE A LITTLE MORE CLEAR WITH SLURRYNESS. THAT IS WHAT I WHAT I EXPERIENCED WHEN I HAD CATARACt SURGERY ON BOTH MY EYES. IT WON'T TAKE AWAY OR MAKE THE RP ANY BETTER, BUT IT WILL CLEAR UP SOME STUFF.
I HOPE THIS MAKES SENCE. ALSO, IF YOU HAVE NOT BEEN TO A EYE DR. FOR A WHILE , HAVE THEM CHECK TO SEE WHERE YOUR CATARACTS ARE. THAT MIGHT BE WHY YOUR VISION IS LIKE LOOKING THREW WAX PAPER.
UNTIL NEXT TIME. IF YOU HAVE ANY QUESTIONS, FEEL FREE TO ASK ANYTHING ABOUT CATARACTS OR THE SURGERY OR ANYTHING ELSE.
LATER MY FRIEND.
Hey Stephen! Thank you, that is really sweet of you to stay awake to watch my video! I’m glad that you enjoyed it. Sorry to keep you up so late, it took forever to upload this video this time. It is very interesting to hear how some days you have like perceptions, while other days you have clear vision. That is very interesting but at the same time, I think it is pretty consistent for a lot of us to have a vision that varies almost on a daily basis. I know that mine does. Thank you for all the information about the cataract surgery, that is very exciting and encouraging. I wish I could get the cataract surgery, and I am aware that they do take out the lens and replace it with a synthetic lens. However, a couple different doctors that I saw said my cataracts are very minor and that is not what is causing my poor vision and cloudy vision, but rather it is the retinitis pigmentosa causing my vision to be that way. Which is both of us know, there’s nothing that can be done about that right now, unfortunately. Thanks again Stephen, I really appreciate all that information and for you staying up to watch my video, that means a lot to me! I hope you’re sleeping well, sweet dreams! See you again on Wednesday :-) hugs to you too :-) mad
Hi Matt. Great job describing light perception. You almost described my vision to a T. The only difference with me on the inside I do not see shadows at all. I rarely use lights in the house also. I also use the lights in the windows. Also, I do see lights Close up. I have a late in the middle of both of my eyes so I see it in my vision most of the time. Outside during the day I am completely blind. LOL. But, for real.
Hi! Thank you, I’m glad that you resonate with what I said in this video. Well, I’m not glad that you can’t see, but I am glad that I described it in a way that also resonates with your vision. It’s interesting how our vision is so similar and how you described it sounds exactly how I see you as well. Very well said on your part! It is interesting that you also avoid using lights inside and use windows and other lights as markers and placeholders around the house. Thanks for reaching out, it was fun to learn more about you :-) Matt
Great video
Hi! Thank you very much for watching this video. I’m glad that you enjoyed it! I really appreciate having you here on the channel :-) mad
Hey Matt that is a neat visual example to use to help explain light perception.
Hey Melissa! Thank you, I’m glad that you enjoyed the video. How did it do? Do you think that was a good example, or do you think there was a better one that I could’ve used? I appreciate you watching in the feedback! Have a good night, Matt
@@BlindtoBillionaire hey Matt! It did work. You could still see some shapes but got a giod idea. This is coming from a vip though so i'm not sure how much a fully sighted person could see. Maybe have Corey test it out with one sheet then a folded over sheet? It is a very clever idea. Hope you and Corey are doing well!
Good morning Melissa! Thank you for the feedback, I appreciate that. I’m glad that it worked and that he gave a general idea of what it looks like to have light perception in different settings, the day and at night. I appreciate you watching this and for the feedback. I will need to test this out with Corey to and see what she says. Have a great day, see you again tomorrow! Matt
This is cool, it’s one of the more ingenuity of explanations. Another example I’ve heard is Vasoline on glass. Come to think of it I think I fit into that category I sometimes get glimpses of high contrast colour in very bright light but there is no definition of borders i’ll context. For example here in Australia. We have our garbage bins are identified by coloured tops. But they all have the same shape and size. The only colour bin I can differentiate is the one with the yellow lid Quite often in the yellow lid is the only thing I can see. It can be quite disorienting because it looks like it’s floating, just this yellow blurr floating
Hi, that is actually a really interesting perspective about the garbage can lids. That is kind of funny how you see the yellow lid just floating there. LOL, but actually very similar to how I see it too. It makes it difficult when all of them are the same size and shape, with the exception of a different lid cover. Color. Oh yes, I like that idea too, Vaseline on glass, that’s actually really good idea. That would be a great way to describe it, blurry but yet light still shines through. Thanks again for watching this, it’s so nice to hear from you again! Matt
Hey Matt that's a pretty good example that you showed in this video that is kind of what my peripheral vision looks like which is basically the outer portions of the visual field so I can't really see objects or people around me only directly in front but as I look around I can kind of see just light blurry light they've done visual field testing before on my left eye since it's the only one I see out of I can't see the little dots that the machine is projecting onto the screen but when I'm outside I can kind of see the light through the corner of my butt that enough to really know if there's something next to me or not.
Good morning Sam! That is very interesting, it sounds like a revision is similar with the exception that you still have some central vision allowing you to see objects directly in front of you. However, it sounds like your Perfield vision is very similar to what I see as a whole throat all of my vision. It actually sounds like our vision is very similar in a lot of ways, but yet also has some differences. It’s interesting how you see differently when you were outside versus indoors. Another great comment, I always enjoy hearing from you because it’s fun learning to more about you and your vision!
Hi Matt Great video x I changed my bedroom black background and white furniture I find it easier.
Hey Tony! That’s awesome, I’m happy to hear that. I agree with you, it definitely is easier with that color scheme. Very cool, that sounds very exciting! I hope you’re enjoying it :-) have a great day, I’m excited to hear from you again :-) Matt
@@BlindtoBillionaire loving your videos great topics 😊
Thank you Tony! I hope you’re having a great week so far :-) I wish I could be there so we could go to the beach together :-) see you again later today in another video! Matt
I’m a student doing a masters and was wondering if blind people with light perception is able to define the shape of an object? Or how or what would it make it easier for them to navigate? Maybe auditory cues ?
Hi Matt.
I also have RP but my central vision is not too bad I am using orange tinted glasses and its very good for RP patients.
Hi! Thank you for reaching out to me with this information. It’s nice to hear that you still have pretty good central vision. That is very interesting about the orange tinted lenses on your glasses! I have heard the glasses the cut down blue light is very helpful for people with retinitis pigmentosa. Apparently blue light is very harmful to our eyes. Thanks for the recommendation on the glasses! Matt
i use sounds as place holders ... clocks, fridge ... lots of stuff to hear
Hey Neil! Great to hear from you, I hope you’re doing well! Very well said, I do the exact same thing. The nice thing about all of these different devices is that they all have a different sound which is distinct so it’s very very easy to know our location when we can just listen to one of the zones and know exactly where we are. It seems that we have a lot of similarities. Thanks for watching this! As always, it’s nice to hear from you. Have a great night! Matt
I have light perception only in right, hand motion in left. hand motion adds to light the ability to see an arm, hand, or an object of some sort crossed my path. I can’t tell what it is, rather it is an arm, leg, hand, or an object, but I can see whatever it is crossed my path if it’s right up to my face. they call that hand motion. it just adds to the light is all, so I still can’t see you what it actually is.. it was kind of frightening actually, because my vision just dropped to that just a few months ago and it happened before my very eyes. I went from being able to count fingers and being able to see colors, to that, pretty much during the day one day out of the blue. I started out at 20/100 back in 2009, and slowly dropped a little bit at a time. Each time it was during the day before my very eyes. this happened to a condition called glaucoma. for that, I take a series of four different brand of eyedrops, one, two, and three times a day. and with those drops, the pressures were pretty well-controlled, but I still lost vision, and they don’t know why. One thing I noticed, is the sight got worse the longer I was exposed to sunlight and indoor bright light like you see at Walmart. without my sunglasses on. The doctors don’t know, but I think do you longer I was exposed to those type of lights without my sunglasses, caused the sight loss, because it seems like whenever I was out in the sun, or those really bright overhead Walmart lights, are the times I noticed losing sight during the day like that. but I was so dependent on what sight I had, that I didn’t take the time to realize that. sunglasses impaired my sight more, so I took them off to see or navigate, when I shouldn’t have. I should have taken blindfold training earlier. but our local blind training center, bosma, encouraged me to use what I have, discouraging me from learning blindfold skills early. if I had learned those skills earlier, I could have saved my sight, I truly believe that.
Hi Tom, that is really scary to see a decline in your vision as rapidly as you did. Going from being able to see your hand and counting fingers, to only being able to see an object go across your visual field but not being able to identify what it is. That is very scary to see how quickly your vision declined. The bright lights inside of stores like Walmart, like you were suggesting can actually be very detrimental to our vision. The blue light that is emitted from these lights is very damaging to our eyes. It is always recommended that we were sunglasses when in bright lights and definitely outdoors in sunlight. Hopefully the eyedrops that you are using are somewhat helpful in slowing the progression or possibly prolonging the vision that you currently do have. Thank you for sharing this information, I always enjoy learning more about other people in the degree of their vision loss. I hope you are doing well, and once again, thank you for reaching out and sharing all this information about yourself. I look forward to hearing from you again soon! Matt
I'm legally blind from birth. When I was born I had cataracts and in 1977 they didn't know how to get rid of them other than destroying my lenses. I do have glaucoma and now I have artificial lenses but I still wear glasses but not as thick as my old glasses were. I do have the ability to see color but I know that there have been times when I have had a Milkey and blurry film over my eyes and most of the time I don't. When my friend who has light perception let me know she has it I thought that light perception was that you only could see just white light and that it didn't have any detail in it. Behind you, you had a night light that was shining when you turned the overhead light off. It was not as bright as the overhead light but when I was looking at the light through the waxpaper I could see the different beams of light in detail but I'm not sure if the light to someone who has light perception would look like a light that is scattered so you can't see the detail like if the light source was in a frosted lense cover. I have had people ask me if I can see shadows and I'm sure that a shadow looks differently to you than it would to me. I have looked at a light table or the thing that doctors use to look at X-RAY. When you place an object on it for example black would the lines on the outside of that object be clear between the light and the opaque object or would the light and the object be blurry but you could define the shape against the light? I know that blindness is a spectrum but just trying to really put myself in the choice of the other person can at times be frustrating to bother the person who experiences it but wants others to know what it is like and the people who want to just understand what it's like. It was a good video.
People at my job tell me all the time that I am not blind because I get around so well
I just tell them that i have good mobility and inside the plant where I work the light in the building actually helps to my advantage
Hey E J! That is really interesting, but not shocking that people say that. Does it bother you when people make those comments? It’s cool to hear that you get around so well and have such good good mobility even with your low vision. That is really cool to hear! May I ask, what do you do for work? If you don’t want to answer that, and definitely you do not need to. I am just always curious what other people who are blind or visually impaired do for work. Thanks my friend :-) Matt
Blind to Billionaire no it doesn't bother me lol
I think it is pretty cool that they ask me about it.
I get the opportunity to educate them about blindness awareness
Blind to Billionaire I work for volunteer Blind industries in tennessee
We make army and navy pants, helmet covers, beds and paper towels
Gabor the Blind Guy lol right
Gabor, that is kind of funny. But yet not surprising. LOL people. My favorite is when people say, you don’t look blind. When I say, how was that, why don’t I look blind? They say, because you’re looking at me. LOL. Well I can hear your voice so I know where you are. LOL
My Central vision is just like looking through a piece of wax paper except the outer peripheral is much clearer however not a hundred percent. My lower peripheral is pretty much gone and very blotchy.
After taking a shower the other day I noticed that the mirror in the bathroom through my peripheral looked very similar to my vision. From what I could tell so I took a photo of it. When I checked it later in the zoom it was the closest thing yet I have seen to my vision loss. Perhaps I will show it in a future video on my channel.
Hey Vincent, that’s actually very interesting. I never thought of that analogy, but the foggy mirror is actually a perfect example. I no longer know what that looks like because I haven’t seen it in years, but I do recall it from when I had better vision years ago. That’s actually a great example, I may borrow that one from you! It’s very interesting to hear that your central vision is like looking through wax paper while your proof of vision is a little more clear. It’s always interesting to learn more about you and your vision. Thanks Vincent! I really enjoyed learning more about you through the comments and through your videos! Have a great night, Matt
@@BlindtoBillionaire but you have my full permission to use any analogies you want from me. As the wax paper analogy I stole from someone else. LOL
I heard someone say that and I said oh my God never even thought of that. But wax paper is so on the point. It's blotchy some parts are easier to see through and some are not that's how my vision is in the central. Minus the Stars rainbows and firework shows I get.
I'm hoping it stays this way for the rest of my life if not and it has to change again I hope it will get better. I have heard of stories where people have optic atrophy and miraculously out of the blue their Vision comes back dramatically. These stories exist maybe one day I'll be the next one. But until then I'm happy the way I am I've met awesome people like you your wife and every other awesome amazing blind or visually impaired and sighted individual on CZcams. Friends are awesome.
Hey Vincent! Thank you for the very nice words, we are so happy to know you too! I agree, friends are awesome and there are so many amazing people in this community. It has been so much fun connecting with so many different cool people here on CZcams. Wow, that is really exciting to think that possibly your vision could spontaneously restore, that would be a miracle story! I hopefully you are the next person! I completely agree, wax paper is a good analogy. It is somewhat transparent, but at the same time not really. It provides a cloudy image but still allows a significant amount of light to shine through. Thanks for the permission to use your analogies, I appreciate that! LOL. I will be sure to give you credit for them in the future. Hope you’re having a great night, see you and talk to you again soon :-) mad
3 minutes in and I'm already confused. I suck at understanding things like this
Is it possible that a low dose dopamine agonist would create a pharmacological contrast by using the dopamine agonist for lateral inhibition so you would not have to look for a dark wall to see objects in real time?
Is light perception hereditary.. ? Is there any other symptoms before getting light perception?
Good morning, that’s a good question, no it is not hereditary, but rather this is the only vision I have left after losing so much, I hope that makes sense, thank you so much for watching this video that’s great :-) matth
Do you know anything about the eyedrops called dorzolamide 2% ophth soln 10 ml?
The doctor prescribed it to my step daughter for rp
Hi! Thank you for watching this video. No, I have not heard of those eyedrops being prescribed for patients with retinitis pigmentosa. Did the ophthalmologist give a reasoning for why they prescribed these eyedrops?I would be interested to learn more information about why these were prescribed. Let me know if you have any additional information, I would be very interested in learning! Thanks again, I look forward to hearing from you.
Dorzolamide is used to treat high pressure inside the eye due to glaucoma (open angle-type) or other eye diseases (e.g., ocular hypertension). ... This medication works by decreasing the amount of fluid within the eye. It belongs to a class of drugs known as carbonic anhydrase inhibitors. .... Go to a Specialist about RP ... the normal eye doc's hardly have a clue
Hey Neil! Very well said, thank you for the detailed explanation! This is a great comment, hopefully other people see this and learn from this information. This is awesome! Thank you very much for sharing :-) Matt
Thank you for replying everyone. Your right she should be referred to a specialist
Hi matt I can not see at all so I don't see light by the way when are you doing a nother give away from Kylie
Good morning! Thank you, I’m glad you enjoyed the video. So you are completely blind, that is what it sounds like. That is OK, not all of us see light which is totally fine. There are actually a lot of people in this community who are totally blind and to not do not see light at all. Yes, I will deathly be doing another giveaway sometime soon! Stay tuned and watch the videos and you will see when the next one is :-) Matt
The only way I can describe my light perception is that I can teĺ that there is light but I don't know where it's coming from
Hey Matt! That is actually very interesting, that is a great way to say it. I also experienced this sometimes too, I can tell that there is a light, but I cannot tell where it’s coming from. For example, last night I was in the kitchen at night with the lights off and I could see that there was light from somewhere, I was looking up at the ceiling to see if the lights were on and I said to Corey, which lights are on? She said it is the night light in the wall behind you. I thought it was coming from the ceiling. Thanks for watching this and for sharing more about your vision! It’s fun learning more about you. Have a great day, talk to you soon. Matt
@@BlindtoBillionaire well I find it very hard to even make a guess as to where it's coming from. All I know is it's there
Hey Matt, that is very interesting. Thank you for sharing more information about yourself and your vision, I appreciate that! Matt
This is a very interesting topic. Because in order to explain it so that a fully sighted person my understand. It would require a understanding of how a fully sighted person might see. Sort of a middle ground understanding of both worlds is needed. In order to put it into context sighted people can understand. It’s almost like the equivalent of a sighted person trying to explain colour or light to a person who has never seen if you are still reading this there is an interesting video discussing visual perceptions Called is your red the same as my red? made bye v-source
Hi, that is actually a very interesting perspective. Trying to explain color to a blind person who has never seen color, where do you even start, how do you explain it, how does it a person even conveyed to the blind person what color could possibly even look like. How does that blind person even build the image of what color could possibly look like. Is very interesting, but yet a great topic to discuss with a lot of similarities to this video!. Thank you so much for reaching out that resource, I really appreciate it! I should look into that and do some research on it. As always, it’s nice to hear from you! Matt
Hey Matt how is it going😊
Hey my friend! It is going well :-) how’s everything going for you? Thanks for the message, it’s great to hear from you :-)
I'm doing good😊
Good morning! Glad to hear you’re doing well :-)
I'm good😊