The Darkest Time of My Life | My Hashimoto's Story PART 1
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- čas přidán 5. 07. 2024
- My Hashimoto's / Hypothyroid Story: The Diagnosis.
It took over 5 years to finally get a doctor to listen. Depression was my number one symptom.
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I was diagnosed with Hashimoto's less than a month ago. I am 15. I was feeling very depressed for the past year and decided to do some research on what causes depression. (I also experienced fatigue, a bit of weight gain, heavy menstrual flow, painful periods, muscle pain, my sleeping patterns were weird and stuff.) One of the most common causes of depression is thyroid problems, so I decided to get my thyroid checked out. I was doing a lot of negotiating, but I finally convinced my mom to let me get a blood test, and ultrasound and talk to a doctor about this and, boom, I have Hashimoto's. I was really happy. Partially because I want to become a doctor when I'm older and getting this diagnosis because of my own concern and because of my own research made me feel very proud, and also because now I know that my mental breakdowns, suicidal thoughts, endless crying, not being able to go through the day without having to take a few hour nap weren't just "my fault", but an actual condition. Also, because I'm insane. Yay!
I'm so proud of you for taking control of your health needs and pushing your doctor to test for Hashimoto's! You are amazing! Yes I totally relate to that .. I felt all those years I was just stupid and messed up.... it's empowering to know it's not "YOU".!
Potato Wisdom thank you) btw my nickname is Potato. My friends call me that. Funny coincidence...
Wow i cant believe we have so much in common.
I too have Hashimotos. A nutritionist actually diagnosed me back in 2008. I was weak, felt like i was 90 when really i was 35. My joint ached so bad. I felt like i had the flu 24/7. Along with depression, anxiety this disease is a silent for sure disease. It definitely doesn't have the recognition that it should. If i could pinpoint when my symptoms started it would have to be right after 3 major events in my like that happened back to back.
Its nice to watch videos of other people tell their story. We are not alone ..
I watched and cried; I completely understand and have walked in your shoes. I am glad we are both much better, even though it's an everyday struggle. Much love :)
Thank you Irina
I don't think people understand the effects of Hashimoto's on the brain and emotions. I've always tried to be a sweet, kind person, but when my levels are off, I can get mean. I also totally understand the suicidal thoughts. When you are depressed or anxious over a situation, that situation may change. But when you are pretty content with your life and think about suicide, that's a problem. I have had anxiety so bad that I felt like something was trying to kill me. I've had depression so bad that I wanted to die. I didn't necessarily want to kill myself but I wanted to go to sleep and not wake up. You just lose all motivation to continue living.
Also, I have to say I love the Boston!
Are you feeling well know
Yep, same here. You just want to go to sleep and never wake up.
Changing diet, supplement, exercise, stress management, good sleep - that all helps a lot. When I started supplement vit D, my anti TPO number dropped.
Thank you for sharing this! You are incredible! We are always cheering you on!
wow...i see so much of myself in you 😢 so sorry to hear about your story but glad you got diagnosed. I think it's time I see a doctor about this with myself. thank you for making this video. 💛
Thankyou so much for making this. I'm feeling the exact same way, and have done for the last half a year. Hashimoto's runs in my family, but I didn't know until recently. Needless to say, I've got an appt. with my doctor in two weeks. Hopefully I can get a confirmation. Anyhow, until lately I was thinking I was just crazy...I feel bad that you were so ill, but it is nice to know I'm not alone.
I got diagnosed when I was 13 and now I have just turned 23, boy has it been a tough journey! Watching this I realise I'm not a bad person for being so down and angry! Like recently I have just been in the deep end and having anger outbursts out of nowhere, I've gained so much weight and can't seem to lose it plus I always thought I just had severe depression and anxiety but now I can see just how much Hashimoto's comes into play with that too. It's so hard because people just don't understand and then there is also not enough info out there about our disease. So, thanks heaps for sharing your experience and I hope you are doing better now xx
Legit real story. Thank you!
*hugs* Invisible illness....the perfect description. I am glad you have found a great Dr. That's one of the reasons why I don't want to leave this area. I love my Dr's! I was supposed to release my lupus story on my channel a while ago...I should get on that!
The past few years I was going to an ND who was able to manage my medication, my family doctor wasn't as involved at that point except for ordering my lab work - it was so nice to have a doctors willing to work WITH me!! Yes, get on that girl. It only took me two years LOL!
Thanks for sharing, I can so relate to your story
Thank you for sharing your story :)
New subbie! Well told story, almost my thyroid story verbatim! I had my thyroid out in 2012, I was diagnosed with Hashimotos a few yrs before that, I am still struggling but I’m hanging in there. Thanks for sharing your story so others know that they are not alone! 💜🌸👍
Hey, welcome! Sorry you've been though the same kind of hell. I'm grateful to not have to get my thyroid out ... how is that for you?
I've never related to a story so much in my life. The exhausting & fatigue is literally killing me. I get blood results Friday. I'm terrified that I will get the same "subclinical" BS response.. or worse...."normal". Subscribe
I have had very, very similar experiences. The only difference is I was diagnosed when I was about 12 because they noticed a goiter in my neck. I started taking thyroid medication then and the dr's always kept my TSH in the "normal" range. When I was 16 I was graduating high school and had basically starved myself for months to lose weight which seemed to make the endocrinologist think I was somehow getting better and he wanted to see what would happen if he took me off synthroid cold turkey. Well within about 3-4 months i had gained 50 pounds lost my job dropped out of all my college courses and was sleeping like 20 hours a day, I could barely walk up a flight of stairs. My TSH was over 100! So I went to another dr who immediately started me back on a high dosage of synthroid. That was 14 years ago and I cannot seem to lose weight no matter what I do unless I use weight loss drugs like phentermine. However my TSH is never stable but i have always kept it with in 0.2-9.0 (usually it's around 3). About a month ago I started feeling really weird, so tired, depressed, hopeless and I was packing on the pounds for absolutely no reason. There was a point where like you I seriously wanted to be dead, I was just laying in bed wishing for death. I had never been in such a dark place in my life. Then the dr. called with my TSH results and told me they were up to 23.0! It all finally made sense to me I immediately double my dosage for a few days and felt better almost immediately. I don't know what caused this and I gained 15 pounds in one month. It's so hard to manage, I feel like I can't manage my job or life and that I'll never be able to deal with this. I have been vegan for four years but have never been as fat as I am right now :(. Thanks for sharing your story, it gives me hope that you are doing well and I'm not the only one out there who deals with this.
Hi Crystal, wow what a roller coaster you've been on! Definitely getting the TSH at a more stable level is top priority and I would recommend that you ask your doctor for a standing order on your TSH and possible ferritin - a standing order would allow you to go in to the lab every 1 to 3 months as needed. And also see if your lab can send you a copy of the results directly. Feel free to email me if you have any questions shyvegan at gmail dot com
I feel the pain people. Been there and done that still doing that. I am doing to a functional medicine Dr now. She found my B12 was low. She put me on the mentholated b12 and folate I take a vitamin from PURE called O.N.E. You can get it from amazon. I also am doing the AIP way of eating. That has helped a lot! I wish you well!
@@darlenesnyder4083 methylcobalamin (b12) folate (not synthetic folic acid) zinc (for hair loss) magnesium, bplex, selenium especially! Or 3/4 brazil nuts a day. Zeolite, glutathione. Lots of liposomal vitamin c. My diet changed in last 6 months, no alcohol, cut back on sugar. I got my thyroid antibodies down more in 6 months then it has in over 3 years. Was 600, then 400 6 months ago to now 139. Can be done, I've never been offered medication, lost a shit load of hair and sleep. Functional medicine is far more helpful than any medical doctor. Fluoride (neurotoxin) also affects the thyroid, endocrine system.
It is uncanny how your symptoms are as if you were telling people about me!!!!!
This is so helpful thanks
Thank you so much for sharing your story and this video.
thank you for listening, it's really not an easy thing for me to put myself out there like this. I think you all know more about this than my family at this point :)
Thanks for sharing your story! You look beautiful!
This is a hard thing to open up and talk about! I recently spoke on this on my channel :) thanks for raising awareness! I’m sorry the struggle is so real!
Thank you
I've been I'll since 2008, and have experienced many of the same things you spoke of (depression, feeling alienated, feeling worthless). I'm glad you finally got a diagnosis. Much love 💞💜💕
*ill not I'll stupid autocorrect
How are you feeling these days? Let me know if there's anything I can do to help. I've thought about talking more about the depression too, that's a long story in itself - being on anti depressants, how I felt on them and how I got off them.
Honestly; I'm not doing well. My illness, and degenerative disabilities, are making it hard to do much on my own anymore. I feel very sick and fatigued. I am in severe physical, and emotional pain ( I lost my 20 yr. old son in 2014).
I hate sounding so negative; I don't like to bring others down, but that is the truth.
You are so sweet; I truly appreciate your response. If you can keep doing CZcams videos for as long as you can; that would be great :D I love your personality, and you (and Betty Lou) really make me laugh.
I think a video on your experience with depression, and the pharmaceuticals, would be helpful for a lot of people.
If you ever want to chat on skype I'd be more than happy to
@@PotatoWisdom is anti depressants work in Hashimoto?and is insomnia is also normal in Hashimoto day and night evening can't sleep?
so helpful.
I'm overjoyed that others are finding the diagnosis and solution that they need!
I too went vegan, rested up, and I also started weight training. My energy and strength is the best it's ever been, and I'm so excited for my future because for once I feel normal again!
💕 feeling normal is amazing isn't it?
Thank you for this video
It's a good thing when you depress or feel bad with something and then you share to the other people to learn about you more. You are one of the most kindness and I started following you for a few months and much often in nowaday coz u are good and interesting person😘 love you.
Thank you so much
I know exactly what you are going through. I have suffered with these horrible symptoms since 2014, and in December of 2017 on my 9th doctor he actually done his job and just didn't focus on TSH , and tested my antibodies and discovered that I indeed had Hashimotos. He started me on Synthyroid, which I was somewhat discouraged by this because I had been on many different levels of Synthyroid and I hated it because all it ever did was exacerbate my symptoms or through me into Hyper. So I was started on the lowest dosage, took it as prescribed and NO change, so he tried giving me Predisone to try and kill whatever was attacking my thyroid and that didn't work, plus he started me on Armour, which I have taken before as well. So currently I am taking 30 mcg
of Armour and so far No change in my symptoms. It's so discouraging living with a disease that has such detrimental symptoms. I'm currently in so much pain at the moment, my joints and muscles ache, I have lost all of my strength, I'm having to prop my feet up because of the swelling in my feet and legs is so painful. I have lost so much hair it's ridiculous. I completely understand when you said you felt like a zombie, I feel the exact same, plus I feel like a 95yr old and I'm only 36. It's frustrating not having anyone that understands what you are going through to talk to, because I might not look sick but people can't seem to understand what it feels like when your body is destroying itself. Is there hope for me? Because I'm losing faith that I will return to the vibrant, energetic, motivated, happy individual that I was. I just don't understand how some people who suffer from our disease just simply takes their Synthyroid and they feel fine again and get to enjoy life, what makes my case so difficult? Why are my symptoms so unbearable everyday I open my eyes? When it comes to your lab work are your t3&t4 levels normal? Because I follow my blood work carefully and mine runs like this- TSH bounces from high to low, my vitamin D is low, B12 low, antibodies high, but t3&t4 are always normal. When I was given a high dose of Synthyroid it would throw me into Hyperthyroid. Have you had any of these problems? And I'm sorry this is so long , I just have no one that gets what I'm going through and I have no one to talk to about. I hope you see this. Thanks for sharing your story.
Honestly I feel 1000 x better than I did in my early 30's. I'm now 41. Yes there is hope!! I suggest getting B12 shots done for a few months or longer until your B12 levels are off the charts. And get that vitamin D up. Please email me at shyvegan at gmail.com and I can take a look at what you're eating, supplements, etc. and give you my 2¢ (my time is free!)
There is a different thyroid supplement called Liothyronine (synthetic T3)which can be added to the principal one, and it did the trick for me, the Synthroid and all the others are T4, I take it but my Enocrinologist, who is the best in Cleveland Clinic and I love the guy, he gave me that extra T3 one, because mine was low, and I take it twice a day, once with the daily dose of normal levothyroxine and then by itself in the afternoon!!!!! Oh Happy Day!!!!!!! the T4 is a stronger form of Thyroid supplements and moght be associated with higher risk of excess thyroid replacement such as palpitations, arrythmias and osteoporosis. It is why he limits the normal T4 everyone gets but then reinforce it with the T3. The divine blend in my case!!!!
I’ve just been recently diagnosed with Hashimotos and I’m only 20. Pretty scary to be diagnosed so young. Just been for ultra sound scan on my thyroid and doctors have called me in again to go see them.
I'm so sorry to hear Sophie but I'm glad you were able to get diagnosed -- at least now you are empowered to take care of yourself. If you have any questions along the way feel free to email me jeannine at thepotatoreset dot com
I have Hashimotos and hypo as well, diagnosed after pregnancy. Many people think I look normal, but don't understand that I feel the symptoms. I feel for You! I have changed my diet - gaps for now.. and low fodmap. Healing the gut & cleansing helps with healing. What medication are you on? Do they measure your t4, t3, reverse t3, when they check TSH? I Hope so :)
This is a horrible disease.. I could stay in bed for days... mood swings.. anxiety.. bloating.. fatigue.. it's real and I can relate. I hope you feel great!
Hi Diana. I was on Synthroid to start, then Erfa Thyroid then back on Synthroid. I didn't see much difference between the meds except for when I was eating shitty. So when I was eating a crappy junk food vegan diet I noticed a difference when I switched to Erfa. But now that I'm eating a whole foods plant based diet, I don't feel any different being back on Synthroid. I feel as though the food has made the biggest difference because I now have way more energy and way less symptoms.
Yes I know my T4, T3, TSH and all that jazz but prefer to go more by how I feel than anything. I have found that the numbers honestly mean nothing most of the time, they don't even correlate with how I feel. Example: I'll feel hypo, yet my TSH / T4/T3 is great. Or I'll feel like I'm getting hyper, and my TSH/T3/T4 shows HYPO.
Potato Wisdom numbers do matter.. I went hyper and symptoms were exactly the same as my hypo symptoms! I would have never known what I needed to do, raise or decrease, had it not been for the lab results. People usually feel better with a suppressed TSH anyway.. and reverse T3 number does matter. Of course, diet is number one! Without a clean diet and eliminating Foods we have allergies to, medication will not work. But numbers do matter, along with symptoms...
There is a different thyroid supplement called Liothyronine (synthetic T3)which can be added to the principal one, and it did the trick for me, the Synthroid and all the others are T4, I take it but my Enocrinologist, who is the best in Cleveland Clinic and I love the guy, he gave me that extra T3 one, because mine was low, and I take it twice a day, once with the daily dose of normal levothyroxine and then by itself in the afternoon!!!!! Oh Happy Day!!!!!!! the T4 is a stronger form of Thyroid supplements and moght be associated with higher risk of excess thyroid replacement such as palpitations, arrythmias and osteoporosis. It is why he limits the normal T4 everyone gets but then reinforce it with the T3. The divine blend in my case!!!!
Thank goodness for getting the diagnosis and treatment. You said that it wasn't as simple as taking a pill, have you found other things that have contributed to recovery or healing? Thanks so much for sharing! ❤️️
Thank you and yes definitely eating whole plant foods has helped tremendously. I will for sure talk more about this!
Thank you for this amazing insight! As a Hashimotos symptom did you get a feeling of adrenaline running through your arms, legs and stomach?
Wow, I'm so sorry that you waited so long for a diagnosis. My mom has hashimotos so she had me tested at age 11 bc my neck was swollen. That was in 1990, I've been on thyroid medication for 27 years now. Hashimotos has caused so many problems for me, even with treatment. As an older teen I was noncompliant with my medication and I became quite ill. I've had all sorts of problems with my liver, etc. It's too much to mention here. Hope you are feeling better now. It's a lifelong battle.
Have you children
Thank you for sharing your story. I have Addison's Disease and Hashimotos. I've definitely experience the brain fog, weight gain and incredible exhaustion. I'm happy that you're able to find proper care. It took a long time to be diagnosed for me as well and Addison's disease can lead to death without treatment so I understand feeling like complete and utter crap lol. I really love your videos they are so down to earth and up beat, aside from today's lol. They really put a smile on my face. ❤️
Oh wow, I feel for you having two things going on there. Adrenal issues are certainly messy. Are you managing okay?
Cutie, I think I might have Addisons. What were your symptoms because I get sick every 3 months and when I say sick I mean I can’t keep my eyes open and basically bedridden. Then I get nauseous and even vomit but I don’t eat anything because I lose my appetite.
Thank you for sharing your story. I was diagnosed with hypothyroidism in 2011 when I was 28 and because I wasn't overweight I had to really push for them to test my thyroid. My tsh came back at 69 and the doctor called me the next day at work to get me on medication asap. Needless to say I found a different doctor quickly.
Wow!!! 69??! That's insane! The ironic thing is, my thyroid doctor told me my weight had nothing to do with my thyroid (LOL!) -- yet when I got medicated I lost 40lbs without changing a thing. Here you are fighting to get a test because you're not overweight.. and on the flip side doctors and many people argue that overweight people blame their thyroid. Sigh.
i have had all of these symptoms. Glad you are doing better
thank you Nola, I hope you are feeling better too
Incredibly informative. I had never heard of this before. I hope it is not cancerous ❤
thank you
Thanks!
Omg. Your ex... that’s horrific. I was having really bad symptoms for a long time and no one could explain it and its so invalidate when the doctors say “everything is normal” (what they should say when a patient comes in with these problems is “THESE tests didn’t show anything”.) But then to have your partner not believe you just because they can’t find a diagnosis is the worst.
When you need their support the most... ☹️
My husband always believed me and has been my strongest advocate, and sadly when he comes with me to doctor’s appointments i get treated much better and my concerns taken much more seriously.
Males can have it too. I reckon that because it is so rare in males i was not properly checked.. until i was 52. Looking back i think my hashimotos since adolescence.
I've heard that too, it's quite possible my brother has it
Same here, diagnosed at 57.
You made my eyes water.. cause I have yet to be diagnosed but just as you , I have been brushed off an just recently as of last week my endo’s office called me an said he doesn’t think it is my thyroid ( yet he put me on synthroid) I had called them wanting an in hopes that maybe changin me to or adding a t3 medication could help covert an get my TSH TO POSSIBLY GET THE GLAND WORKING MY TSH WAS HIGH, my t3 & T4 are low an my prolactin level is elevated ( where I the symptoms of lactating in my left boob,, an here I thought it was normal that soon enough it would dry up, yet it had been 3yrs since I last breast fed, 2018 was the worse, too much to go into .. but were your liver enzymes ever effected by it ? Cause my have been for some time now like 3yrs lord only knows how much longer .. but by me being my own pt advocate I found a liver specialist but the dark rabbit hole doesn’t end there .. 2 biopsies later a year apart with a misdiagnosis ... I have been told my liver is toxic ( toxicity in my liver ) fatty liver but not too much to worry about.. that is also after I brought up the 2fibroscans I have had an what I was told about those.. my body hurts my headaches are like migraines , fatigue as if I’m pregnant all over again , an my weight is back to what I was after pregnancy weight ,I had lost 40lbs when I was at 180 2yrs ago .. now I’m 170 ;( an my significant other well let’s just say that’s where you made my eyes water .. I’m still awaiting my new endocrinologist appt. an I’m really hoping I can get to feeling better ..soon I hate that I am unable to do the things I used to do an love ..
There is a different thyroid supplement called Liothyronine (synthetic T3)which can be added to the principal one, and it did the trick for me, the Synthroid and all the others are T4, I take it but my Enocrinologist, who is the best in Cleveland Clinic and I love the guy, he gave me that extra T3 one, because mine was low, and I take it twice a day, once with the daily dose of normal levothyroxine and then by itself in the afternoon!!!!! Oh Happy Day!!!!!!! the T4 is a stronger form of Thyroid supplements and moght be associated with higher risk of excess thyroid replacement such as palpitations, arrythmias and osteoporosis. It is why he limits the normal T4 everyone gets but then reinforce it with the T3. The divine blend in my case!!!!
I haven't even finished the video and am compelled early on to mention something regarding "situational" depression as opposed to something purely physical. Hashis typically has some sort of trauma associated with its onset. This could be childbirth, a car accident, a toxic relationship etc. or various combinations of stressful events/circumstances. For me it was a very toxic relationship which I was in the midst of extracting myself from, and a directly related car accident which was later followed by a diagnosis of depression. I refused those meds and dropped that MD and went to a holistic advisor - which led to thyroid tests & meds etc. That was over 20 years ago and to this day Hashis is still a major issue for me. But the main point is that so-called "situational" conditions can and often do lead to chronic health conditions. In may case the stress of the relationship led to the car accident led to the Hashis which involved depression. I thought people should understand that... OK, on with the rest of the video!
I can relate to that - my symptoms got worse after marrying someone I did not love.
Through a CaT scan for something else, it was discovered that I have nodules on my thyroid. Just had my levels checked (came back high for the first time ever even though I have been wondering about this for years). Had my ultrasound yesterday. So we'll see.
Let me know how the ultrasound turns out, hopefully you don't need meds
Thank you for your story. Is gives me hope and I know iam not alone. Right now iam feeling hopeless, my lack of want to do anything is really tough. I have 2 kids.
Right now is the time to decompress and try to keep stress to a minimum. Strange times we are having right now. Stay safe and try to keep yourself busy.
Anymore updates on the nodules on your thyroid or have you found a new Dr since moving?
I haven't found a Dr yet, I'm still considering getting thermography done. I'm also going to talk to someone at True North (free consult) to get some ideas on where I should go from here.
How are you doing these days? I feel I might have it too.. definitely going to get it tested cuz the symptoms are eerily similar
I'm doing very well these days. I hope you get some answers regarding your symptoms!
This is a helpful video to share. It would be great if it included part 1 in the title, with an update in part 2.
please let me know if you make a part 2 so I don't miss it. x
Great idea!
will do! sorry it's taking a while :(
omg your pup!
I am right there with you, right now :( I feel like my life is over.. I have lost my smile, my laugh, my health... I POUR sweat.. profusely... have never swear like this is my life.. I have gained weight also... blew up everywhere.. I try to avoid going into public unless I have too.. I feel so "OFF" inside.. I can't explain it... :( I am depressed.. feel horrible.. no one understands... I need help... :(
but they say my levels are "normal".. and basically have kept me on the same dosage for over a year now... I barely have an appetite but still am HUGE... I am NOT fine... regardless of what the levels say
I'm so sorry you're going through this right now. Have they tested you for Hashimoto's? What is your diet like at the moment?
I'm so sorry you're going through this. Have you tried taking B12? stabilizes mood and energy, including chemicals in the brain. good luck!
I have struggled with my weight my entire life... up, down, up, down, and it never gets any easier. As a 50 year old woman it doesn't get any easier...in the past I had to eat like a bird and exercise like I was training for the Olympics in order to shed pounds... so frustrating. I have had my thyroid tested and it always comes back normal. I have had an ultrasound done whereby they found nodules on my thyroid and although this is common in most people I have a large one on one side and a family of 5 smaller ones on the other side... I have had a biopsy and the results were normal - thank goodness! I am being monitored on this front every two years to ensure that nothing changes, but I still feel sluggish. It was not until I discovered the starch solution as well as folks like High Carb Hannah and Chef AJ that my diet has improved and my energy has gotten a lot better. I have been vegan for over 3 years now albeit a chubby vegan...the starch approach seems to agree with my metabolism and it is such a much more satiating way to eat! Thanks for sharing your journey with us - you are a brave woman! BIG hugs to you! :)
I'm so glad you found the Starch Solution, Hannah and AJ!! Congratulations on 3 years vegan ❤ Thank goodness your biopsy came back normal!
Have you had full thyroid panel tested? Many Dr's only test tsh.. testing t4, t3, reverse t3 are very important as well..
You can still have hashimoto's encephalopathy with normal thyroid function. Get your Anti Tpo's checked though.
So what is required for the Hashimoto's diagnosis? I'm confused. I know I have "subclinical" hypothyroidism (because my TSH is off but the T4 I think it is - was just still in range but getting worse with every test which I've had every few months). My antibodies tests were all really high. My doctor has sent me to get an ultrasound of my thyroid. He hasn't said I have Hashimoto's yet but I thought the antibody tests meant I have Hashimoto's too? .
Yes if you have thyroid antibodies above the lab range for "normal" you have Hashimoto's. Do you have a copy of you lab results?
I am Australian and generally doctors don't give blood results so I don't have the latest results but there were three tests done. He said they were the anti-thyroid antibodies and they were all very high and then he ordered an urgent ultrasound of my thyroid. My last TSH was 7 (not sure if the range is the same but its 0.3-3.5 on my results my previous result was 4.5 in April so it's jumping up fairly quickly) and my last free t4 was 13 (so still in range 9.0-19.0). He did diagnose subclinical hyothyroidism when I did these tests about 4 weeks ago and I've been taking a low dose of thyroxine since. Just got the antibody tests back on Friday though so I will have to ask for a copy when I get the results of my ultrasound. Thank you. I will have to ask him more about Hashimoto's.
Wow I did end up getting them. My thyroid peroxidase AB was 907. I was gobsmacked. My Thyroglobulin AB was 26. So both high. Still no actual diagnosis but he has said he believes I have hashimotos and I'm seeing an endocrinologist soon thank goodness!
so I'm almost positive this is my issue. I cannot lose weight.. I have tried everything... I workout 5 days a week, eat really healthy but I'm not losing a single pound. I'm so exhausted i can barely function, I sleep at least 8 hrs a night but I can barely get out of bed or stay awake at work.. I'm getting to a point where I can't even push myself to go to the gym to even try anymore. my hair skin and nails are dryer than ever before, and im having memory problems and an the weight issue is making me more upset by the day. I have talked to my mom about it and she is very insistent upon me not telling the Dr that I think I have this... she said he will think I'm a hypochondriac and not listen to me. I just don't know what to do.. I'm going to the Dr in a couple weeks for a physical, they know I'm having issues but I have had anxiety and migraine issues in the past. I'm just so worried they won't help.
Please tell your doctor. It's your body, not your Mom's! Please PUSH for the following tests: TSH, T3, T4, Vitamin D, Ferritin, Thyroid peroxidase and Thyroglobulin antibody. If your doctor doesn't know your family I honestly would just say Hypothyroidism runs in the family if they are hesitant to give you these tests. Insist on it!! Say you are really worried and just would like to know. Ask for a copy of the results and let me know how it goes!!
Banana Wisdom thank you!! I will write all those down and try that!!!
please see a naturopath and get your antibodies tested!
How long took you to feel better
I'm taking l thyroxin 50 for about month and a half now but I still experiencing anxiety and some kind of depression
My energy level is so low I'm kinda hopeless that im gonna feel any better soon....
It took me about a year before I started to feel human again. My thyroid was in a very bad state by the time I was diagnosed. Your doctor should be getting your blood tested every 6 weeks and increasing meds if needed. Has your doctor increased your dose recently?
Im glad that you feel much more better than before!!! You gave me some hope..
My doctor prescribed me to take 5days a week 50 and 2 days a week 100 l thyroxin
2days before i made my blood work done
My tsh levels was 0.8 (0.4-4.00 normal range)
My t4 was 13 (11-26 normal range)
And t3 was 3.7 (3.3-6.1 normal range)
Did I hear mention of you writing a book on the potato diet and your thyroid disorder?
I am working on a potato diet book and I will address my thyroid story in there
I also am being tested my antibodies can back thru the roof he is saying most likely hashimoto,I also have a sound nodule which when biopsied can back inconclusive not enough cells mostly blood may look into removing nodule and affected side if thyroid what are your thoughts on that??
Solid*
Hey, I have a similar situation except that now my antibodies are much lower than they used to be. I strongly feel it's due to eating a whole foods plant based diet. As for the nodules, I have a similar nodule... it's solid and calcified and came back inconclusive (I've had it biopsied 3 times and its' always the same result). They wanted to remove half my thyroid and get a better look at the nodule but I refused. It hasn't grown at all in 10 years so I'm not worried about it at the moment. Definitely do what feels right for you.
I just got diagnosed with hypothyroidism for weeks i have been laying on the loung severly fatigued feeling like im lazy and hopeless i one day made my self mow the front lawn that was a big mistake after i finished i quickly went back on the lounge and my body brain just felt like i was dying even to rest was stressful i couldnt recover my energy and thought about suicide i have no one to help me abd its been really hard each day i tell my self to just do my best when i can i wash the dishes or vacume the floor then quickly lay back on the bed or the lounge im on thyroxine 100mg for now its been 5 days on medication hopefully things get better but from what ive read its a daily battle bugger that im going to meditate and manifest a healed thyroid ox
Hang in there jazz, it will get better and takes time for the medication to take effect. Your doctor may end up increasing your dose depending on your test results -- when is your next blood work?
100 mcg MOST LIKELY will NOT make you feel better or rather how you would want to feel. The numbers DO LIE. Sometimes a suppressed TSH or added T3 is what's needed. The generics are not up to par and the generic co. just pay fines and don't opt for quality. They are made overseas in questionable labs. That's a big part of the problem. If you gwt Rx'd stimulants you will feel A LOT better but your TSH will be suppressed even though "the lying numbers" are midrange and doctors think your thyroid dosage needs to be lowered even when you tell them it's not the thyroid dosage that's doing the lowering. Just make sure you get feeling like other people without thyroid problems DON'T SETTLE FOR LESS!!! THAT DOCTOR EXAMINING YOU WOULDN'T LAST A WEEK FEELING LIKE YOU DO...WHY SHOULD YOU?
do they use a lot of generics in America? I've never had them offer me a generic here in Canada. As for her dosage, it takes time to work up to a high one, hopefully she'll get it upped on the next visit. But for me the biggest difference in how I feel came with diet.
RUN to an endocrinologist, then you will get the T3, T4, T7, TSH, TPO (antibodies) and the doctor will pinpoint it. Remember, Hashimoto is not a thyroid disease, is an auto inmune disease that attacks your thyroid and the poor gland is affected, cannot release hormones as it wants and you end up hypothyroid. The antibodies TPO and a complete panel will show it. Family doctors only order TSH and overall you may be within range but some nodules may be excited or messed up. Your thyroid condition looks like is caused by hashimoto.
I have the same thing
My endocrinologist ordered two blood tests, one of them TPO antibodies. Normal level is less than 60 and my level is 9710.5... She said nothing about this, just doubled my L-thyroxin (now I drink one pill). My hair is thinning out (I already had a very small amount of those), I'm always tired, and my legs, joints hurt and other stuff. I kinda think that my antibody level might indicate Hashimoto's, right? The doctor didn't mention it and I didn't ask (dang that anxiety).
I'm so sorry I didn't see this earlier... yes that is definitely a high number for TPO antibodies and something your doctor should have discussed with you.
Oh! this happened to me and thankfully I now have an Endocrinologist and I was looking back into the online medical chart because he sends messages online and found a doctor once in ER ordered it and it was off the roof also and no one said or did anything. My endocrinologist capture dit right away and knew I had Hashimoto just listening to my symptoms, he did others tests and all was confirmed, he also added two doses daily of a special T3 supplement in addition to the normal T4 (levotyroxine) one. The trick is not to raise the T4 supplement because it is nasty on the heart and causes arrythmias, etc. he keeps it normal and helps it with T3 which is called Liothyronine. You take it twice a day and the normal T4 (levothiroxine) once a day. Oh Happy Day! my perfect blend.
@@asuarezjd I eventually clawed it out of my endo that it's Hashimoto's, but she didn't tell me anything, just to take my meds. So I went dairy and gluten free and started feeling better. Not good but better. It's quite a few years later and I gotta go see an endocrinologist, since now I live in a big city I can choose a doctor and do some research about them.Glad your doctor is listening to you and helping you!
@@emilytaylor9397 I hope you find a good one, you will be bale to tell in the first visit. I had your problem with finding a doctor for many years because I was in the USAF and went to the base hospital of course. Yet, most doctors were recent graduates which is natural and they move on every two years. Good health plan of course but the very military nature is that you move much and doctors are soldiers also, so they move. It was better after I retired later with the VA because it is likely that they are stationary and civilians who live nearby, but most move on they start with VA and after a few years they resign to start their own office instead of a federal government pay. Now, I am going to Cleveland Clinic/Akron General in Ohio. I asked nurses that were walking around the hospital and even my friend's son and daughter in law which are both doctors there and the same name kept popping up for the "endocrinologist that walks on water", nurses mostly because they loved him and said he was "the weetest and most caring doctor in the world" and other doctors because he was extremely detailed and competent. And, Cleveland Clinic has doctor ratings online, you see the picture, a small bio and the reviews. They were right, the guy shook my hand when he entered the office, listened to a very brief but organized summary of symptoms I had and even asked about others I forgot to tell him. Told me his suspicion and ordered labs that confirmed it the very next day. The visit is the same $30 copay as any other, labs were downstairs and food to eat right next to it. I was in google looking for "hashimoto" while waiting for the lab to call me for the thyroid panel, FIRST TIME I READ a lot of "T"s and not just the TSH. The next day I read the results online and the TPO Antibody was off the charts! range went up to 60 and I was in the thousands. T3 was low, Vitamin D super low, etc. It was Hashimoto! 30 years after having issues I was finally diagnosed by a guy who was a toddler back then, ha!
Dude that first doctor was ignorant! But I do hope she was ok after her bicycle accident. I had gone to about seven different doctors until I found one with a brain. It makes me so frustrated how many people are undiagnosed because doctors are using outdated science! More doctors need to get with the program!
❤ 😢👍 hashimoto girl here ❤❤
I have hoshimotos
how are you feeling?
💚💗💚
MWA!! I hope you're home in June =)
I just went to an endocrinologist and as soon as he started asking questions I knew I found a treasure in him! He asked things like my wife or someone had told him what I had been complaining and telling friends. He instantly captured what I had and ordered the tests to confirm. They came back as he thought and I read in the aftercare notes the word HASHIMOTO...I googled it and looked for videos when I found yours. It was uncanny how you were telling MY STORY in these last four years!
I have been to a cardiologist because my heart was acting up sometimes, I even got a loop monitor surgically inserted in my chest to monitor my heart beats. I had a tilt table test checking for P.O.T.S. because sometimes my blood pressure would drop and I would end up dizzy about to faint. I was always in a swim team since I was 9 years old, competed in college and was in a diving team. I threw myself spinning from platforms and elegantly entering the water probably thousands of times. Yet, I now have VERTIGO, can't even look out the window in a tall building or cliff! Vertigo! what a joke in my case! And, three years ago I ended up in my bedroom all day long for weeks. I was a succesful attorney who loved his job and was earning good money and benefits. My coworkers and boss were the best in the world, they accommodated for me, they woul dhave done it forever but I was too ethical to take advantage and decided to retire despite the loss of income. I still have contact and they still look me up for events but I had no energy nor desire to go out at all, nothing social, legs swollen at the ankles a bit in the afternoons, sleeping forever, tinnitus like cicadas in my brain and absolutely fatigued even when I never moved out of my bedroom and was imply watching TV.
I have a happy life because our home is a sanctuary and my family is the best, perhaps this is why I never realized I was depressed because I did not have a reason to be sad, but looking back I now see I was, for no reason at all!!!! I was always tired and sleeping like someone with deep depression. Oh! and the pain in my wrist joints, fearing it was ALS or some muscular disease. I simply did not care to live, never contemplated suicide because of my Catholic faith but I do admit I would have not cared if I was dying or died then. I was ready and even at peace with an early grave. And, I am a guy who was always cheerful, have many friends, clse friends, never missed any activities and would always celebrate even changing my car engine oil with a BBQ or a party! Then, retreated to my room and never got out, not even to the living room, eating in my bedroom to avoid going down the stairs because they tired me to climb them back up....TSH kept coming back "normal" and the primary doctor did not tackle anything, at least nothing deeper, just cholesterol and thyroid levoxyne but none T3 or anything else. I even choked eating many times, my throat would shut down and it always took forever to recover from seasonal allergies that woul dmutate into bronchitis, and all this time it was Hashimoto!