Still waiting with a MELD of 34. What does it feel like? What is happening with Operation : Liver ?

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  • čas přidán 2. 05. 2021
  • Catching up since I was discharged on Friday. Adding a new shirt store. Getting feedback from family members.

Komentáře • 106

  • @jodiemorgan8063
    @jodiemorgan8063 Před 3 lety

    Hi, I’m Jodie and I live near Melbourne, Australia. I’m early stage cirrhosis and currently in a clinical trial that’s looking at the use of an infusion of amnion cells (from the amniotic sacs of newborn babies) to protect and calm the inflammation of the liver so it can regenerate itself. I’ve had one infusion and will be going into hospital in a couple of days for my second and last infusion. I’m the 8th patient out of 12 in the world to have this done. I’m very blessed and thankful to have been chosen to be apart of this. I feel better and am so hopeful that this clinical trial is a success. I just wanted you to know that in my little part of the world we are working hard so that, hopefully, one day people will no longer have to wait for transplants and livers will have the environment to regenerate and heal. Until then I will continue to be apart of as many trials as I can to help cirrhosis sufferers. Sending you lots of prayers and hugs, and I hope your transplant happens as soon as possible. Take care, Jodie. 🐨

  • @missdaisy5736
    @missdaisy5736 Před 3 lety +13

    You are a hero and your wife is also the same. I just found your channel and I have subscribed. We all have so much compassion for your fight! You actually look better today because your eyes are not as dark underneath and you look better hydrate it and your teeth are beautiful👀👍🏻 your bravery and courage means so much to your family and CZcams friends❤️🙏

  • @barbarahowell5492
    @barbarahowell5492 Před 3 lety +5

    Dear Lord I pray for this man and his health. I know you are the healer and you can help him.God if it is your will let him be healed in your name Lord Jesus I pray.

  • @suedyck6835
    @suedyck6835 Před 3 lety +7

    Prayers for you and your family, your new liver and the doner and their family! 😊🙏❤️🙏❤️😊

  • @glennrubel4326
    @glennrubel4326 Před 3 lety +9

    Thanks for the update. I'm praying for a new healthy liver soon.

    • @Dpurple28
      @Dpurple28 Před 3 lety +1

      I hope you recieve that gift of life. Praying 🙏 you!!!

  • @helencheadle5285
    @helencheadle5285 Před 3 lety +1

    Hi Justin! It’s Helen here from the U.K. .....my goodness...first time I’ve seen you without tubes everywhere and at home!...you ARE a handsome chap! 😉. I already thought you were an incredible person and then I hear you reaching out to other folk waiting for a liver or struggling having had one, and your asking if there is anything YOU can do to help! How sweet and kind that is Justin..how you can find time in your heart to think of others when you are going through so much yourself is such a rare quality bless you. I’m just going to tell you our prayers have been expanded as I’ve told more people and they too send their best wishes and are praying for you as I am. Hold tight Justin, try and go with the flow and don’t stress...nothing can be gained by stressing , and you need that energy for yourself so don’t waste unnecessarily.... enough chat from me! Sorry if I seemed to bully you there a bit. Didn’t mean too.. with much love, hugs and prayers Helen in U.K. 🙋‍♀️🥰😘👏🏻👏🏻👏🏻👏🏻👏🏻🤞🤞🤞🤞🤞👍💐😻💕🍎🍏🍎🍏😉

  • @fishermansdaughter5793
    @fishermansdaughter5793 Před 3 lety +6

    I’m also trying to recover from 6 yrs of being ill, not as serious as yours but I have an idea what it feels like to be sick 24/7. I’m much older. You are so young, I pray for you to be healed, so happy you have a family to help. If love alone could heal you’d already be there.🙏❤️

    • @damonknight5335
      @damonknight5335 Před 3 lety +2

      The body keeps rejecting the new liver it hapoeness from time to time they give drugs to stop the the body from rejecting the new liver but some times the drugs don't work hope that helps all the best

    • @fishermansdaughter5793
      @fishermansdaughter5793 Před 3 lety +1

      @@damonknight5335 was sure hoping after all you’ve been through that it would have been easier this time, so sorry. What a wonderful lovely wife you have by your side, can’t imagine how hard it is to go through this with you & not give up. You & her have got to know we’re praying with everything in our heart & souls that’s Gods’ will be for a healthy recovery. Hope to see you out & about soon enjoying the summer with your family. 🥰

  • @TM-fj4tr
    @TM-fj4tr Před 3 lety +5

    I’ve been waiting for this video, having a good support system is so very important and yes, it is hard on the family as well. So, thank you family for your support and love. I know is difficult for you as well. Praying for you a new liver, you hang in there, it’s coming 😊

  • @sherrykirk7248
    @sherrykirk7248 Před 3 lety +1

    I pray that all goes well for this Precious 💝 young man !!!!!!! God Bless 💕 him !!!!!!!

  • @naturalbae8049
    @naturalbae8049 Před 3 lety +2

    My dad lives off of Highland, I’ll have him come support. I live in Kentucky. Much 💙

  • @kimtongo3533
    @kimtongo3533 Před 3 lety +3

    Congratulations on your subscriptions!!!!!!! You are sounding good!!!!! You seem better than last week!!!
    You are such a inspiration!!!!!

  • @amberlynn8591
    @amberlynn8591 Před 3 lety +1

    Love that you care and ask how we are doing, so I am doing well here in North Carolina praying for your LIVER which is most important right now along with your family, doctors and youtube family (subscribers)❤🙏

  • @Kimberly-yt6nn
    @Kimberly-yt6nn Před 3 lety +10

    I was excited when I noticed I was your 800th subscriber. Praying for you and your family 🙏💜

    • @TheSaltySiren
      @TheSaltySiren Před 3 lety +1

      And now he’s up to 4.05K!!!!! WOW!!!!!

  • @theresadarr3084
    @theresadarr3084 Před 3 lety +1

    Praying for you, operation Liver.

  • @catelinemontijo4573
    @catelinemontijo4573 Před 3 lety

    Prayers to you and your family, stay strong!!!

  • @pugz910
    @pugz910 Před 3 lety

    My son was 40 with a blood infection. Complication after complication. Not a drop of blood i his body was his. You got this.

  • @Babybac3
    @Babybac3 Před 3 lety +1

    We are all praying for a good doner for you. ❤️

  • @dorothykirk4661
    @dorothykirk4661 Před 3 lety

    Hi, I just started watching. I am praying for you, total recovery, speaking God's word over you. I heard you say you are in Clearwater, I think that's Florida, right?? I encourage you to call the River Church, Tampa and ask them to pray for you. New and Perfect liver and complete compatibility! You declare your outcome, speak over yourself, Abundant health and restoration. Glory to God brother!

  • @kathyglenn7773
    @kathyglenn7773 Před 3 lety

    Prayers for you and your family❤

  • @linaaa791
    @linaaa791 Před 3 lety

    You are a great person, I'll pray for u! 💖

  • @collettewhosthatgirl1330
    @collettewhosthatgirl1330 Před 3 lety +9

    Can I ask, what makes the livers keep going bad making you need to keep getting transplants? With all do respect.

  • @paulpoliachik2671
    @paulpoliachik2671 Před 3 lety

    Checking in and so good to see you back at the home base. Love the smiles J....!!!
    One day at a time and great to hear the numbers ....Prayers and fingers crossed....its going to work out....CHEERS!!

  • @loristevens5876
    @loristevens5876 Před 3 lety

    Wishing you all the love and happiness

  • @michelleharmon9815
    @michelleharmon9815 Před 3 lety

    Prayers for you and your family.

  • @jamieuseh
    @jamieuseh Před 3 lety +2

    You’re so close to 900! ❤️

  • @Lolly1974
    @Lolly1974 Před 3 lety +1

    Massive love from the UK xxx💜🙏🏼💕

  • @dodsbringaren3698
    @dodsbringaren3698 Před 2 lety

    im proud of you for still fighting on, much love and many blessings to you

    • @flyingpenguin574
      @flyingpenguin574 Před 2 lety

      RIP him, hope him rest well in the afterlife. god bless this strong soul

  • @MrNathanounet
    @MrNathanounet Před 3 lety

    I feel very sad to see you suffering so much. I hope you will have your new liver very soon.
    Best wishes from France

  • @francessavella2279
    @francessavella2279 Před 3 lety

    God bless you and your family 💖⚘🙏

  • @memesissydollar3080
    @memesissydollar3080 Před 3 lety +8

    I am your newest subscriber and wanted to say hello and I can relate with a lot of your dxs .
    I am having it hard as well . And I am not receiving the medical help I need . Pray if you believe in prayers . I do

    • @dresdners54
      @dresdners54 Před 3 lety +4

      @@VanessaRRSUN do you know what a MELD score is? Hot tea will have no effect on his very seriously damaged liver. I think now is the time to pray for this wonderful man.

    • @beanj580
      @beanj580 Před 3 lety +1

      If it was as simple as hot tea, many people would be alive and well today. Don't you realize many of these people have tried all the natural approaches too out of pure desperation?

  • @katyandersen197
    @katyandersen197 Před 3 lety

    I'm a fairly new sub here, you are very strong and inspiring!!! Keep moving forward xo I'm sending prayers from NB Canada!

  • @jackieswick3528
    @jackieswick3528 Před 3 lety

    praying praying for you hunny .. god bless you! keep positive like you are and it will happen... take care

  • @collettewhosthatgirl1330

    Your at over 5k in only 2 weeks😁..congratulations! Prayers to you❤

  • @rubydoo22-y8e
    @rubydoo22-y8e Před 3 lety

    Look forward to seeing your updates 😘

  • @rowenayoung9100
    @rowenayoung9100 Před 3 lety

    Praying for you 🙏🙏🙏

  • @sharondunn5711
    @sharondunn5711 Před 3 lety

    Sending special prayers from Kentucky

  • @53j3
    @53j3 Před 3 lety

    Thinking of you in the U.K. your an inspiration sending big hugs 🤗 xx

  • @twolf401
    @twolf401 Před 3 lety

    Hi new friendly here, I'm going to pray for you and your CZcams channel until you have recovered! Your a courageous battler and I know your going to get that liver so hang in there.

  • @StephanieGelling-Wollenhaupt

    May God be with you

  • @maushamraj6274
    @maushamraj6274 Před 3 lety +1

    Get well soon

  • @MonaYY_Rig
    @MonaYY_Rig Před 3 lety

    Hi Justin I’m a new sub. Your channel popped up in my feed. I’m sorry about your struggles with your health. I’m an RN I understand what you’re going through. I’ll be praying for you, my friend. God bless you. Hope to see more updates ❤️❤️💜💜💜💜🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻

  • @lenayoung519
    @lenayoung519 Před 3 lety

    Sending prayers

  • @Babyboffa2018
    @Babyboffa2018 Před 3 lety

    You look better than you did in your last video. Praying for you my friend.

  • @bethwillard7795
    @bethwillard7795 Před 3 lety

    Blessings always ☝🏼💯🙏❤️🥰

  • @kathleenmorse4479
    @kathleenmorse4479 Před 2 lety

    So sad he passed away!! He was a fighter 🥲

  • @karendodge4865
    @karendodge4865 Před 3 lety

    I'm still praying for you.

  • @larissawong1638
    @larissawong1638 Před 3 lety

    Hi, new subscriber here. Watching your videos from Brazil! Hope you can add the subtitles you want and praying for your new liver, keep your hopes up, the call will come!

  • @redhenful
    @redhenful Před 3 lety

    Thank you for the update.. I 🙏🙏🙏 you get your new Liver soon! What day and time is your thing at the gym?
    And as of today you're a bit over 900 subscribers..so you're getting there soon!! 💖

  • @naturalbae8049
    @naturalbae8049 Před 3 lety

    My dad lives off of Highland, in the neighborhood Jus behind there. I’ll have my dad come support. I live in Kentucky 💙🤍💙🤍..I pray u get ur liver

  • @debbiesale3265
    @debbiesale3265 Před 3 lety

    I'm watching from NZ...hope you get your transplant soon

  • @louisepeters8455
    @louisepeters8455 Před 3 lety

    So sad watching your video my heart breaks for you. Xx

  • @emerysmom100
    @emerysmom100 Před 3 lety

    You look much stronger already.

  • @Anastashya
    @Anastashya Před 3 lety

    Many prayers 🙏🏼🙏🏼🙏🏼 for you getting a new liver very soon. I’m supposing that a new liver has to be as near a genetic match to you as possible - but maybe not, I don’t know. If it does need matching, it might be that there’s none yet available that suit your genetics. You sound sleepy, so I hope you’re getting enough rest and not overextending your body. At least at home you have love and support! x

  • @justcallmecraycray7671

    Still praying 🤍🙏🏼

  • @beckyrockwell7964
    @beckyrockwell7964 Před 3 lety

    I just said a prayer 🙏🙏🙏

  • @ashleylitalien2529
    @ashleylitalien2529 Před 3 lety

    New subscriber here ! Is there a video of your diagnose? What where your signs symptoms etc praying for you also!

  • @reneelanier3475
    @reneelanier3475 Před 3 lety

    ❤️🙏🏻

  • @cloverHp
    @cloverHp Před 3 lety +1

    Hi , r you getting a live doner transplant, if what is your match type

  • @okallie
    @okallie Před 3 lety +1

    Sending you positive vibes! Also, you may be able to get a more custom url with 100 subs. ❤

  • @karencillano2691
    @karencillano2691 Před 3 lety

    Hi! im your new subs 💓🙏

  • @TheSaltySiren
    @TheSaltySiren Před 3 lety

    I have a question. You said in a previous video that you were diagnosed with Crohn’s Disease when you were younger, which prompted your first liver transplant. What prompted the second liver transplant?

  • @MemeMary926
    @MemeMary926 Před 3 lety +4

    What happened that you’ve had 2 transplants, soon to be 3. Praying that you get your liver soon.

    • @NinasHere4U
      @NinasHere4U Před 3 lety +1

      Yes I was wondering the same, thanks!

    • @Me-ru6cl
      @Me-ru6cl Před 3 lety +1

      Cancer

    • @MemeMary926
      @MemeMary926 Před 3 lety +1

      @@Me-ru6cl same type? That’s insane

    • @Me-ru6cl
      @Me-ru6cl Před 3 lety +1

      @@MemeMary926 Im not sure.

    • @MemeMary926
      @MemeMary926 Před 3 lety +4

      @@NinasHere4U it’s actually from Primary sclerosing cholangitis due to Crohn’s disease, I believe. I did some research and liver transplant is the only “cure” but can recur in transplanted liver.

  • @carolcole570
    @carolcole570 Před 3 lety +2

    Since I am new to your website, I have no many many questions ! Other than your extreme tiredness, what are your physical symptoms ? Where ARE you ? Is your hospital an excellent one for you ? How many years have you had cirrhosis ? ( My A1C is 7.1 as of Friday ). Did your cirrhosis start with alcohol ? Mine came from my diabetes. Itching ? Okay.......when does THAT begin ? I had a friend who used a hospital over in Birmingham, Alabama, several years ago. What is your name ? You sound Southern ! I am from Atlanta. How is your wife’s support group ? When I am more progressed, my hospital will/is Emory Hospital in Atlanta. So far, I have my MRI’s are every 6 months, to be sure it has not turned into cancer. I have told all of my doctors’ that if it DOES, that I will NOT take chemo.......to give me pain pills and send me home. Of course, my biggest prayer is that since the rapture is expected just any day, that I will be raptured before much longer. Ohhhhhh, I pray that YOU and your whole family are Christians ! My days consist of taking my pills, getting my meals, and then back to bed, to snuggle down with my cats. I love to see my family come over, but honestly, they wear me out so much ! God bless you and keep you in the Palm of His Hand.

  • @jackiefb1
    @jackiefb1 Před 3 lety

    I do not suffer with your health problem but I do have a few different ones - will you pray for me as I pray for you? Also, I was wondering how long do you stay well after a liver transplant and is it possible for a transplant to last for a lifetime? Thank you, Jacqui

  • @loridom5375
    @loridom5375 Před 3 lety +2

    What is the cause or diagnosis? I have PSC and life is hell some days.

    • @lottatroublemaker6130
      @lottatroublemaker6130 Před 3 lety

      Go to his channel and look at the «info» part, it there mentions PSC, cancer, Crohn’s Disease etc. Go read it, I couldn’t copy it.

  • @stephanieschrayer5328
    @stephanieschrayer5328 Před 3 lety +5

    Itching for a new liver.... #dadjoke
    What are the factors they evaluate in determining a good match?

  • @vanessaburckhard3081
    @vanessaburckhard3081 Před 3 lety

    🙏🙏🙏🙏🙏🙏❤️❤️❤️❤️❤️❤️

  • @beckyrockwell7964
    @beckyrockwell7964 Před 3 lety

    Where are you? Clearwater mi?

  • @kimtongo3533
    @kimtongo3533 Před 3 lety +1

    Liver coming in the Name of Jesus!!!!!!!!!!!!!!!!

  • @MrBlack-bq2ug
    @MrBlack-bq2ug Před rokem

    Poor baby im so sad 😢 didnt know he died

  • @nefelibata4190
    @nefelibata4190 Před 3 lety

    are the eyes like that because of the liver damage?

  • @katyandersen197
    @katyandersen197 Před 3 lety +1

    Is this your first liver transplant?

  • @nancymosby7369
    @nancymosby7369 Před 3 lety

    How did u get here I’m not sure what ur story is?

  • @michelletrimmer6750
    @michelletrimmer6750 Před 3 lety

    What is your blood type?

  • @daedricfork4760
    @daedricfork4760 Před 3 lety +1

    subscibed. The least i can do

  • @carebear802
    @carebear802 Před 3 lety

    What is a MELD?

  • @MrBlack-bq2ug
    @MrBlack-bq2ug Před rokem

    Senna and furosemide help

  • @user-je2om8tv4s
    @user-je2om8tv4s Před 5 měsíci

    i hope you like jokes.I to have cirrhosis .when i first my dr he ask a lot of questions.i ask him ; do you know the differance between pink and purple i said it depends on how hard you sqeeze it.hope this makes you laugh.

  • @memesissydollar3080
    @memesissydollar3080 Před 3 lety

    I want to create a go fund me account and pain and confusing hinders all . My life’s not good .
    I hope to talk with ya here it a text or email one day if it’s ok .
    I too have a lot to deal with and it is so bad to me and I can’t ask and get any help from anyone that I know . How was it when u created a go fund me please ?
    Yes will add u to my prayers for all needs and desires too .
    Hugs 🤗
    I’ve only watched two or 3 of your videos but want to and will do my level best .
    What state are u in it you don’t mind me asking ?
    Thanks
    I hope I can get the new liver in time . Ohmy gosh . The itching is horrible . I would like to ask a few more questions when can . I am having some of the exact things as you .
    Too Cute to ever Be Sick .
    You was every encouraging thank you !
    My name is Sissy.
    I am going to take a peek at your go fund me and maybe that can help some and not exactly sure or how . When in pain I can’t do well . I am also weak , pains so much weight loss . Failure to thrive also is a diagnosis and I don’t have any support to help me finish this race because I know I want life long .

  • @ronalddonner3396
    @ronalddonner3396 Před 3 lety

    Hopefully you'll be better before you can attract too many more suscribers!

  • @allalone1461
    @allalone1461 Před 3 lety

    check out ctfxc site, maybe you could make a new friend, nearby you

  • @purpleviolet207
    @purpleviolet207 Před 3 lety +1

    Praying for you to feel better soon.💜🙏✝️🙏💜