Mastering PEG Tube Techniques: Cancer Treatment Tips
Vložit
- čas přidán 11. 07. 2022
- In this video, we'll be discussing the use of PEG tubes in cancer treatment. We'll cover everything from how to use them to their benefits and drawbacks.
If you're looking to start using cancer treatment methods that are proven to be effective, then you need to watch this video! We'll discuss the use of PEG tubes in detail and give you tips on how to use them most effectively. After watching this video, you'll have everything you need to start using these complicated treatments with success!
Thank big help for hope the best for u I appreciate your insight and help about the peg tube...
I'm 6 weeks out from a 12 hr. operation where they removed and reconstructed half my voice box - a recurrance of squamous cell carcinoma from a 'micro-direct larengoscopy' only a few months before .
Nuts !
O well , so I'm dealing with a trachea and PEG . 'Really appreciate your videos .
Both little buttons fell off the PEG site but I have it well dressed , very clean and no leakage . The Docs don't seem concerned .
Mucus is still a problem , though I've not needed the suction machine in 2weeks .
Started out trying to swallow food 3weeks ago , with a donut as my motivator , and I'm up to one solid - though soft - meal a day . Still not good with thin liquids though I regularly risk drowning in a cup of coffee every morning.
My throat will only take so much at once before the snot explosion so I'm learning my pace .
Man , recovery is no joke , and I'm here ( so far ) to testify !
I do hope you're well these days (march 2024) . Again , thanks !
Hi Michael!
Great to hear from you again! You are right, recovery is no joke! I do have to admit you did get a chuckle from the "snot explosion" comment, what fun that is... And thank you, I am doing well.
Lee
I’m so glad I found you. My husband is about to go thru all this. Teeth are pulled. Feeding tube placed. Now onto mask.
Good luck to Leslie's husband and Leslie! It sounds like everything is going to plan. PLEASE keep us updated on his progress and how you are doing as well!
Lee
Thank you so much for sharing your experiences and explaining everything so well. It will help so many people ❤
You are certainly welcome. I hope that people are able to use some of this information in their own journey.
Lee
thank you for sharing this information!
Hi Cindy,
You are certainly welcome. I am glad if this is helpful to you!
Lee
Another great video! It’s interesting seeing the slight difference between USA and UK feeding tubes, it’s a very slight difference but definitely a difference like in the UK our syringe actually screws onto the feeding tube.
I’m amazed that when we have these things fitted no one actually teaches us how to use them in the most efficient way, watching this I realise I could have done something’s slightly better!
I’m having my tube removed on 5th April and then join the “two bellybutton club” 😂
EXACTLY!! I fought that thing several times, and always lost when I was too fast or impatient.
My Thoughts Are With You. So sorry you’re going through this. Prayers.
Hi Francine, I finished all of the treatments in Sept. 2021 and had the PEG removed in Jan 2022. I'm doing much better now. Thank you!
@@theregularguy141 so, it was temporary, not permanent as far as I m understanding from yr response
I pray u doing great and tht u will thrive in future
@@manmeetgill5789 - That is correct. The tube was removed once I was able to eat and drink orally. The only reason we kept it in as long as we did was that my PET scan was due in December of 2021 and we (Gastroenterologist and I) did not want to remove it until the scan was completed and we got the all clear.
@@manmeetgill5789 - Thank you very much! I'm doing well now and fingers crossed all the future scans will be clear as well!
Wow! This is very informative. I never would have thought of this for throat cancer, but it does make sense.
LOL, if I knew then what I know now I would have been using it much sooner!
@@theregularguy141 you could almost be a doctor by now with everything you have been thru, and the knowledge you’ve acquired throughout this horrific ordeal.
I do kid that my wife got her Oncology PHD through CZcams as we went through this. She's the smarter one of the two of us for sure.
@@theregularguy141 awwwwwww, well, there is nothing wrong with learning, that’s for sure! I’m glad u have a support system!
Thank you so much that was a great video. Im still using one about 2 months after treatment. Not sure when I’ll eat properly again but getting used to the peg, just hate losing the weight.
Hi David,
Yeah, I had mine for 4 months post treatment. I would have gotten it out sooner, but the gastroenterologist and oncologist wanted to wait until the 3 month scan was completed in the event that further cancer treatment was needed. I probably could have realistically gotten it out sooner. At 2 months i was drinking some fluids/meals and working my way into food, slowly. While I loved losing 80 Lbs, thats not the way I really wanted to go about it!
Lee
It does look a little fiddly. Some people have a bag which drains through. I'm glad you are able to enjoy most foods now. Is that a Liverpool fc pillow in the background at the beginning? I thought one of your other pics was in England. You look like you have British roots.
It can certainly, as you say, "be a bit fiddly". It always seemed to flop around a bit the opposite of where I wanted it to go. But I found that if I took my time, which was rare, it would work out fine. I became a Liverpool fan through some Welsh friends here in Dubai and try to watch every match depending on broadcast time!
YNWA
Lee
Yes I still have mine Lee. 😢 I have the peg tube.
Hi Annette,
How are you doing now?
Lee
@@theregularguy141 doing good, took some time to adjust to the tube and trach,but now it’s just another day . Take care, Annette 😀🤗🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
The weight loss can have such a negative affect, to date I’ve lost 56 lbs and am weighing in at 140 lbs, I’m six foot two inches tall and 55 years old so that’s had a dramatic affect. I’ve started to be able to keep down soup, porridge and jelly at the moment but in two weeks I’m having the feeding tube removed so I’m trying to get used to orally drink my supplement drinks. One thing I found really amusing was while using the feeding tube I’d sometimes get a taste of the flavour of the supplement drink! Is this just me or was this something you experienced as well?
LOL... In answer to your question, YES! I did experience that a few times. I asked my gastroenterologist about that, and he said that its mostly in our mind, we expect it to taste a certain way and our mind then gives us the perception of, "Yeah, that's chocolate etc."
The way he talks, his voice. You can tell this man really suffered. Cancer is the worst scourge to plague humans
I can honestly laugh about some of my decisions and lack of now. But at the time of using the PEG, I was frustrated and yes, my throat hurt. A LOT! Thank you for your support!
Lee
What are throat cancer symptoms to look out for? Ive had a persistent sore throat and im a bit worried, im 25 but i drink and smoke relatively excessively, able to reduce both recently im just hoping its not too late. Im praying for you
@hot shot Unfortunately it seems most doctors just act like it’s an assembly line in a factory with patients instead of doing thorough genuine examinations they just want to tell someone whatever and get them out of there so they can make more money, that’s my experience is as well whenever i’ve had other issues. I’ll keep you updated on my story and i’ll continue to keep up with yours good man. Do you recommend I see a GI doctor / specialist just to make sure. Or am I overreacting it’s only been about 3 weeks of the sore throat, not having any difficulty swallowing at this point.
Hi Aeodian,
I'm going to add to #Hotshot's response. See an ENT if you haven't already. An ENT will scope you down to the vocal cords for an exam as well as investigate any neck lumps you may have. A gastroenterologist will scope from the vocals on down and into the gut as well as from the "exhaust end" if necessary. As a former smoker of 10 years who quit, then started again for 10 years, and quit again, it is extremely difficult to kick the habit but necessary.
BTW - Is that a Space Wolf on your profile picture? Possibly Ragnar Blackmane?
Lee
Hi hope you can see my comment. I’m heading to proton therapy and initially was told no need for the PEG but now they are recommending it. What type of radio did you take if I may ask. Thanks
I believe that it was photon radiation... Get the tube. You will not regret. Big advantages with little no down side.
Lee
Thank you so much. That helps a lot 🙏🏼
Did you have nausea and vomiting? My husband had terrible nausea and vomiting from all this. Here he is three weeks post treatment and he still vomits once a day maybe. Not sure if it’s from all the mucus or him being in this liquid diet so long.
Absolutely! I think it was the 2nd week post treatment, I had a lot of mucous build up that caused quite a bit of vomiting and dry heaving for about 24 hrs straight. I went to my treatment center and they put me on some sort of lopramide, an anti nausea medicine for a few days. That seemed to calm everything down to a manageable level. I was still somewhat nauseous for the next 2 weeks or so, but not nearly as bad as I was before the meds.
Lee
For me, it was the mucous build up. I felt like I was drowning in that gloopy stuff...
My husband is now 5 weeks and a couple days post treatment. He still feels rough. SLOWLY getting better. SO SLOW! He now has sores all over his tongue. Did you get these? Like canker sores. He can barely talk and is supposed to go back to work July 3rd.
I did not the sores on my tongue. I had a couple in my throat, but the magic mouthwash helped that. I would ask the doctor about that. Sounds like a real issue!
Lee
Moj muz isto situacija ali nakon kemo terapije dolazi umor slabost i nema apetit prije 3 mjeseca proslo ljecenje sad dolazi ono tesko
Moj muz isto situacija ali nakon kemo terapije dolazi umor slabost i nema apetit prije 3 mjeseca proslo ljecenje sad dolazi ono tesko
Hi, are you still need to wearing PEG tube now 2024 or NO? Thanks. Take care.
Hi Brian,
I was able to get rid of the tube in early Jan 2022 after my first PET/CT. BY then it was mostly unnecessary, but my oncologist and gastroenterologist wanted to delay it's removal until after a successful PET/CT inn the event that additional treatment was needed.
Lee
I can’t grow a beard since radiation. How did you keep yours.
As I understand it, it is based on the level of radiation and pure luck. I have lost all of my beard below my jaw line. Smooth as the day I was born. But that makes sense as the radiation was primarily focused from my lower jaw to my clavicle with the heavier doses on the left side of the neck/throat area. It's nowhere near what is was before.
Lee
Hi what stage cancer did you have ?
Hi John,
I was stage 2. I had my primary tumor was on my left tonsil and a secondary on one of my lymph nodes. The lymph node tumor was the one that kept me awake at night.
Lee
@@theregularguy141 Hi thanks for getting back, they say i have stage 4, but it sounds the same as you had ? Not sure if UK here is diffrent
Hey John,
In all honesty I'm not really sure about what the criteria for each stage is. I started researching that and found myself spiraling down a rabbit hole of "This and this equal stage 1, however if this but not this then it is stage 3 A(1), UNLESS...." Have they talked about when your treatment starts or what treatment you will be going using?
Lee
Did u lose a lot of weight with your throat cancer and are u cured now?
I did, I lost around 80 lbs. As of 1 year ago, I am clear. Taking my annual scan tomorrow (26 FEB)!
@@theregularguy141 wow! Congratulations on being cancer free! You have been on such a big and challenging journey. I’m so happy for you. Did your your insurance company approve of the scan u needed? Is this the test your having done tomorrow?
As far as losing the 80 pounds, that is a lot of weight!
As to the scan, that's the one! and the weight, yep. I hadn't been that weight since, well the mid 80's?
@@theregularguy141 oh wow! Your insurance company approved of it quickly then, because it was just the other day I remember you saying you were trying to get them to approve it. Great news and I feel like u have won this war (not just the battle)!
Thanks for the video,I
One question does everybody use the peg during and after therapy?thank you
That's a great question. I know I was given the option, but it was highly recommended. It made my life easier when my throat was ravaged by the radiation treatments.
My guy had to have it, didn't even know it was a "thing" until he was losing too much weight because he was increasingly unable to eat. I just sent him a link for the pouch....
That pouch was the best investment I made...