"Uncover the Secret to Beating Cancer: 5 Tips You Need to Know!"
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- čas přidán 20. 03. 2022
- In this video, I'm sharing my story of how I beat cancer. I'll tell you everything I learned about cancer, how I overcame it, and how you can too!
If you're struggling with cancer or have had it, then this video is for you. I'll share my story, my tips for cancer recovery, and how you can beat cancer too! I hope that by watching my video, you'll find the courage to fight for your life and find hope in the midst of darkness.
I've watched DOZENS of videos. This gentleman is spot on with his statements. I had 35 radiation treatments, 7 weeks. Week 8-10 were the worst. I went 3 months with no food by mouth. You have to start back slow. A major accomplishment was a sip of water. I was fed by tube, that alone is depressing. You think you'll never recover.... Today, I'm happy to say, 3 and a half months later, I am eating most meals. All soft, lots of soups, had baked fish the other evening, and a major accomplishment was part of a turkey sandwich. I had burning in mouth and throat, a severe undiagnosed case of Thrush from radiation. Got meds for that, and it is resolving. Physical therapy has helped regain some energy, speech therapy and e-stim is helping with swallowing. I still gag some, but nothing like 3 weeks ago. I'm just hoping my next PET scan in April looks good. To you Sir, congrats on being clear and cancer free. I hope you rang your bell long and loud.
Hi CP,
Sounds we had matching treatments, matching experiences! That first sip of water (successfully) was the best drink I have ever had. That appetite coming back and being able to ditch the tube was amazing as well. Now I wish I had a bit less of that appetite... I'm getting damn fat again!
We are looking forward to hearing your PET/CT Results in April!
Lee
@@theregularguy141 I have my husband batteling neck cancer.had35 treatment of chemo radiation too.. unfortunately the petscan last week showed still all cancer..he's in Sloan Kettering NYC trying get help 🙏 such severe neck ear jaw pain.hes up all night stabbing pain .we don't have much help he's got feeding tubes and eats small portion.sips drinks .I'm praying for him to stay alive we need a miracle he's down to129 pd from187. 🙏. Your video was amazing.god bless you
@@tammyr3255hi.how is your husband now.i am also neck cancer patient.i had my surgery one month ago.now my radio n chemo therapy is going to start for 7 weeks.i am still unable to eat chew food with surgery area.
I had 35 radiation treatments and 7 chemotherapy treatments. Never lost my ability to eat but it was hard to swallowing food, it took 1 and a half hours to eat a child’s portion, and sometimes gag on a sip of water and puke it up.
I had to keep my weight up with boost drinks. I got back some of my taste buds after a month after treatment. But I can’t grow a beard anymore and my mouth is dry. Best of luck.
Same story of my father 😢...can we go for again same treatment if cancer not clear after 35 rediotherapy and 6 chemo?
As a HNSCC survivor, I have only one very important piece of advice. If your Doctor advises to have a PEG feeding tube, do not hesitate or over think this part of the treatment. IT WILL SAVE YOUR LIFE! You will looses weight, you will become nutritionally challenged, but you MUST continue to maintain a caloric intake. It is imperative to surviving the chemo-radiation treatments, and to making a recovery to normal life. Good luck and Godspeed to all who must face this disease.
Great words Jeff. I was talked into it by my wife and gastroenterologist and I am sooooo glad I did. Definitely was huge plus with no side effects.
Lee
Am a week into my treatment for squamous cell carcinoma which began at the base of my tongue and spread to a lymph node. I have a feeding tube in place but have not used it yet because my oncologist wants me eating for as long as I'm able. It is becoming more difficult but I am still able to drink protein drinks and other liquids. I can still eat yoghurt and ice cream.
I might add this is not a cancer reserved for men only. I am a 75 year old woman who refuses to give in to this disease. I have a wide circle of great friends who are with me every step, and a loving family getting me through. And I have a brand new grandson to spoil in the most loving way!!
I have much to live for!
Thank you for your videos and congratulations on your cancer free diagnosis!
Thank You Vanessa! Hopefully the feeding tube will either not be necessary or will be there only to supplement what you can get down. You do indeed have a lot to live for. Keep us informed of your progress. You are an inspiration.
Lee
Congratulations on being cancer free!
I’m in remission it’s been 8 months I have feeding tube I drink little bit of water tried eating eat very little bit, but after radation I have so much flem , it doesn’t let my food go down, but I put my Faith in God! That soon I will be back to normal!🙏🙌🏼❤️
Hi Susan,
I know what you mean. It's definitely a tough recovery. I had my feeding tube for right at 7 months (ish). I found that when I ate something, I used a small sip of water to help wash it down. As a matter of fact, i still do that quite a bit due to the dry mouth. I hope everything smooths out soon and that you begin to start eating solid food again!
Lee
I finished my rads yesterday, I also had chemo alongside. For left tonsil and lymph node. Apart from a wobble week 3-4 I’ve managed to keep eating right through. It is very painful but doable. I kind of developed a technique of swallowing on whichever side is less painful at the time. I’m aware it may get harder for the next couple of weeks but I’m determined to keep going! Thanks for your videos I’ve watched them a lot before and during treatment and they’ve been really helpful. Congratulations on clear scans by the way ❤
Hi Mike,
Congratulations on getting through everything and I have to applaud the effort on the swallowing. No way I could have done that!! I'm glad the videos have helped. Now, keep us updated on your progress!
Lee
Thank you to the author of this video and to you for your comment. Did you have surgery first? Or radiation plus chemo? How was the few weeks after? How are you doing now? Thank you.
Hi. I didn’t have any surgery at all. I had daily radiation for 6 weeks, and my first chemo was on day one and ran alongside so after 6 weeks I was totally finished with treatment. I was actually ok for the weeks afterwards- well, not any worse at least!
It is/was a very gradual recovery I’m almost a year since I finished and I feel great tbh. I often forget anything happened. I do still have a few side effects like the tinnitus 24/7 and also some numbness/tingling in my hands especially at night. But I’m extremely grateful to be here 😊
That’s great news Lee 🎉🎉😀🤗🙌🏼🙌🏼 cancer free yeah 😊
I have watched many of your cancer videos and found them extremely useful. Thanks for your efforts.
Thank you very much for saying that Ralph!
Thanks a lot for this place where people can share their feelings and be understood. I'm one of those. Easily going through radio therapy at the beggining until the last week when suddenly a huge burn on my neck. Had to stay in hospital to finish my course. Chemo was the worst and I had only 2. Two weeks after and weakness is terrible not to say about eating. Can eat only blended soup. Pain in my throat, poor hearing, weight loss. Problems with digestion. Reading through comments I feel great compassion to people who share their experience. Wish all of them to overcome their suffering.
Thank you for the kind comments! The whole purpose of this to is to provide a place exactly what you said, is to provide a place where we can can all exchange ideas and suggestions to help each other during this tough time and to provide information in Regular Guy terms to people who were struggling to find information. Keep watching!
Lee
Brilliant !. You have just described my present condition. I took note of everything you said and recommended. I am making my plan . Thank you.
Hi Lee,
I'm sorry that you have to use any of my videos, but I am happy that they are useful to you! Making and having a plan helped get me focused on the task ahead and to lift me out of what can become a very dark place if you let it. Please keep us up to date on your progress. Do you have a treatment plan or a start date yet?
Lee
Thank you so much for this video. I'm 3 months post treatment and everything you said is spot on. Wished l'd found it earlier as struggled with early recovery. Have my PET scan in 3 weeks.
Hi Richard,
Thank you! Your comments are very kind and I am glad that you find the videos helpful. Keep us updated in regards to your upcoming PET Scan!.
Lee
Im heading into week 3 post hpv viral neck cancer,thank you for letting us know,it's been absolute hell the last week,easing off my throat a bit but still pretty sore, 5 chemo,33 radiation,congrats on being clear,workin my way there
Hi Craig,
Keep at it! We will see you on the other side with your own good news of being free and clear!
Lee
Congratulations on you PET results ☺️ it is brutal treatment - I have so much respect and awe for anyone and their loved ones having to go through this. I work as registered dietitian and I specialise in head & neck oncology. It never ceases to amaze me how resilient and strong my patients are. Thank you for highlighting the importance of good nutrition before, during and after treatment - food may be the last thing you want to focus on but it really is the key to fuelling your recovery. Wishing you all the best from 🇬🇧
Thank Henry! You are correct, I did not want to eat at all and the tube was a life saver. Nutrition is the key not only to recovery but to overall better health! Thank you for what you do for us!
Lee
Appreciate what you’re doing!
Thank you Colin!
Lee
Thank you so much, I'm going in soon for the same treatment on the back of the tongue. This is very informative indeed. God bless you.
Hey Mr. Surfer!
Thank you so much. That is the purpose of the videos, to provide some positive information to people who have been diagnosed with cancer and their friends and family as well. I hate that you have been afflicted with this disease and that you are having to go through the treatments. We are here for you. please keep us up to date with your progress.
Lee
Love your video. It’s very encouraging.
Hi Tony,
I'm glad I could help. Keep watching for more! Hope everything is going well!
Lee
Great story and a very strong effort to get back to normal.
Thank you very much Bill.
Lee
Just finished my 25 radiation series. Never stopped eating, but I now have ZERO sense of taste. Very tough/depressing/draining to just cram nutrients down the pipe when my stomach demands. Not complaining. I know others have it worse than I. Just know you're not alone out there. Keep going! ❤👊
Thanks Ryan,
That lack of taste is tough for sure. It took several months (around 8) to finally get back to around 80% of my taste back. Let me know how it goes with your taste! Other than taste, how are you feeling? Any weight loss, weakness etc.?
Lee
@@theregularguy141 Hi Lee! I'm hanging in there. Between surgery and radiation, I've dropped from 185 lbs down to 170 (I'm 6'4", so pretty skinny now). I have been doing everything possible to not drop any lower and avoid the feeding tube. Lol!
I'll drop back in and let you know when I start tasting something again. Hopefully sooner than 8 months! 😁👍
Hope you are doing well. I had a total laryngectomy 10 months ago. Then 30 radiation treatments to make sure they got it all. They also pulled all my teeth so I've had to learn how to eat and talk again . I had to have a voice prosthesis to be able to talk after they removed my voice box. All in all I'm doing well but it's taken a lot to get to where I am. Starting to get back to being me little at a time. Hang in there. Stay strong and keep moving forward.
@@mikegifford9223 Wow, what a huge journey you are having! You keep pushing as well!!
Lee
Well done Lee.
Thanks Eric!
Thank you so much. My sister is going for throat cancer treatment now. I hope your video will give her some hope and encouragement
Hi Eileen,
I hope your sister’s treatments go well. Keep us informed of her progress and let us know if we can help!
Lee
How is she doing ?
Thank you for this great video ..❤
You are certainly welcome!
Hello, my name is Jon, and I am two weeks post treatment of both radiation and chemo. I won't lie. This has been the most challenging experience of my 62 years. Besides all the other side effects mentioned, unfortunately, the chemo caused me severe hearing loss. As a musician, I hope it will return, but it could be permanent.
I opted to go through the treatments without the feeding tube. Since starting, I've lost 50 lbs, and more will come off. I was easily 50lbs overweight, so the rapid loss, however not healthy, was a buffer. I will say that my swallowing is in tact and working, but it is painful. I am able to drink 3 to 4 boosts, but it takes willpower. These last two weeks post treatment, I have gone in for fluids every day, including weekends. I did not drink anything. The mucous is exhausting. No sleep, continuous gagging, and hacking - For me, that is the worst. I am currently on Fentynal, the patch, and will continue for another week to 10 days.
Others will never know just what we went through or are going through. It's alarming how many men will receive this diagnosis in the coming months and years....it's becoming an epidemic. I hope to be a source and advocate to help others make it through. If you are getting ready to begin treatment, dig hard and dig deep. You will get through it and come out stronger on the other side. We are facing a do or die with a 95% success rate of total cure. Others you will sit next to during chemo and fluids will not have the same outcome as you. Kind regards, Jon
Hi Jon,
Everything you described sounds like exactly what I experienced, except for the hearing loss. I really hope that will come back to you. Sometimes I feel like my taste is still slowly coming back, but I am not sure. Good luck on your continued recovery! Keep us updated on your progress, I am sure there are others who will read your story and find inspiration.
Lee
@theregularguy141 I was just diagnosed with stage 3 laryngeal cancer, on my vocal cord and lymph node involvement ad well, scheduled for radiation 5 days a week and chemo once a week, had the mapping CT scan and mask made, waiting to see a speech pathologist and do a barium swallowing test prior to starting, after all I've heard and learned about this treatment idk if I can handle it, I'm at 160 and Dr said if I get down to 147 then I'll have a feeding tube.. ugh dreading this so much
@@Carol-iu5us Hi Carol,
It's a lot to take in. A lot of info coming at you fast and furious, like drinking from a fire hose. Just keep in mind that this is a marathon and not a sprint. Take each day as it comes. Some will be good and some, well, not so good. In my case I opted for the feeding tube right off the bat. I had it in before treatment even started. Despite my reluctant grumbling about it, I admit that it was an absolute lifesaver for me. Others have not needed it at all. Keep a good positive attitude and a sense of humor. Laugh and joke when you can. And most of all remember that we are ALL here with you in this. Keep us informed about your progress.
Lee
😢
@@Carol-iu5usI am also having parotid cancer.after surgery my radiation n chemo is starting😢
Awesome job explaining your journey! Thank you♾⚡️👍
Than you Bruno! I really appreciate it and thanks for watching!
Getting ready to start radiation for p16 squamous cell carcinoma of the base of tongue and I needed this video. Thank you for making this, it helped me a lot.
Hi Hal,
First of all, I am so sorry you needed the video in the first place, but I am glad it helped you. That HPV 16 keeps rearing it's ugly head! Keep us updated with your progress!
Lee
I’m fixing to have to start chemo and radiation for the same thing. I’m so nervous. What’s it like?
@kimmie_jo I completed my treatment for the same two weeks ago. Listen to your body. Rest when it needs it and move when you feel up to it. The worst for me apart from the sore mouth, was the fatigue. Second week post radiation and I feel energy returning. I feed myself via a peg tube or drink the supplement. Food has no taste which is why I use the tube. (Take the tube if it’s offered. ) However I can swallow easily and it’s never been an issue. The treatment is not pleasant, but it’s doable . Good luck
@@desireeross9651 the fatigue I can handle, I heard the sore throat was awful. I hope I can get through it. Kinda scared really! 😞
@@kimmie_joyes it can be unpleasant however your team will give you the meds you need to cope . For me, I’ve had worse sore throats with a cold . Every patient is different . I took each day as it came. I didn’t dread what was ahead because I found that just brought it on. Chemo fatigue wasn’t an issue , it was the accumulated daily radiation that got to me towards the end. Good luck. Wishing you all the best
Thank you for the video
You are certainly welcome, and thank you for taking the time to watch it!
Lee
I'm here because difficulty swallowing forced me to see an otolaryngologist. She's scheduling an MRI but I expect the worst. God Bless you and your family. When I have the strength, I'll read your entire story.
Hi Jim,
Hopefully it is something that is easily treatable and not throat cancer, but if it is I'm hoping it has been caught early. The treatment is rough but doable. Keep us informed on your progress. Remember this isnt a "one v one" fight. We are all here to support each other.
Lee
@@theregularguy141Mogu da ti pitam koju kemo terapiju ste uzimali hvala
@@biljanamarfi4504 Hi,
My chemotherapy was Cisplatin 1 time a week for 7 weeks.
Lee
@@theregularguy141 hvala puno dali ste nakon kemo terapije imali apetit vec nakon 2 mjeseca moj prijatelj nema apetit
@@theregularguy141hvala puno na odgovoru i sve naj bolje ti zelim lijep pozdrav iz Hrvatske
Congratulations so happy for you I have my PET on 12 September 22 and I feel really good right now. I have gained 20 pounds in almost 2 1/2 months since I finished my treatments, Feeling positive. My voice is still hoarse but a lot better now. Still have dry throat specially at night.
Hey roger,
Thats great news. Feeling positive certainly helps. I finished my treatments in Sep 2021. Unfortunately, I still have dry throat and mouth especially as night as well. How are your taste buds? I think mine are kind of holding steady at around 70-75% of recovery.
Lee
@@theregularguy141 great I had a prior accident about 5 years ago and I lost taste and smell prior to the cancer. I only knew salty and sweet and acid. during radiation I lost completely my taste. It came back to the same to salty and sweet but now also certain foods taste better than before, not 100% but batter. I just noticed some lymphodema in my neck about 3 weeks ago, called my Dr and he recommended some neck massages.
Hey for dry throat at night.. Do try taking a steam before you sleep.. It really helps me. Hope it helps you too
whats was ur symptoms when u get diagnosed? i m just 23 and mucus is coming with blood from the last 3 days , i m very worried about this any suggestion?'
hey , is having dry throat and mucus with blood is symptoms of cancer?@@nikitaagarwal8765
thank you so much for these informative videos, i was diagnosed this friday tonsil cancer that has spread to the thyroid and nodes, i don't know whether i am going to have treatment, i hope i can, as i am absolutely terrified, knowing others have been through this does help, i just want to live
Hi Ichi,
In my most humble opinion, have a good long talk with your doctor before making any decisions on deciding not to have treatment. I will be honest, the treatment is a tough process to go through but it can absolutely be done. Let us know how it goes!
Lee
Hi, I have lymph node cancer with primary source on my tongue. I have been recently gone through a surgery and going to have radiotherapy started in next week. Your treatment will be available and your medical team will advise you of the process involved. I wish you a successful treatment and faster recovery
Your videos are so helpful. Thank you! Did you do a video in which you discussed the impact of that white heavy phlegm on eating and what one can do about it? Again, thanks so much and I am so glad you appear to be in complete remission. Me, too. Stay well. Alan.
Hi Alan,
Not yet, but that's a good idea!
Lee
PS - Thank you and congratulations!!
Very helpful for what to expect in the near future, thanks for posting! After weeks of a soar throat and left ear pain, yesterday I was diagnosed with a base of tongue tumor which I fully expect to be malignant when the biposy surgery is completed in a few days. Although I have not been notified about the CT scan results, I'm prepared for the news about size and scope of the mass. I've learned that Squamous Cell Carsonima (SCC) is the most common culprit. Oddly enough, just last year (2022) I required open surgery of the esophagus through the neck due to a growth called a Zinkers Diverticlum which blocked the esouhphas with a 5cm (2") growth preventing me from swallowing. No mention of any cancerous tissue at that time. This was rough go as well requiring use of an NG feeding tube for about 6 weeks until the esophagus healed with no leaks resulting in the loss of 40 lbs from 175 to 135. Based on what I've learned, the base of the tongue area is the most difficult location to access and treat, so we will see how this works out over the next year or so... Cheers from Alabama!
Good luck going forward. It definitely sounds like challenging time ahead but definitely treatable. I have no idea how you managed an NG tube for 6 months... I can barely handle the scope from the ENT doc for 2-3 minutes with out gagging. I found that the PEG tube was comfortable and almost unnoticeable when I had that in for about 6 months. Keep us informed of you progress!
Lee
@@theregularguy141 - Thanks... The NG tube was only for 6 weeks which was enough!
@@toploadtele LOL, I have no idea how I read that as 6 months... Old age maybe?
@@theregularguy141 - LOL! No worries...
so many brave people in the comment section.. heart breaks to see so many people in this horrible situation....i have had a sore throat for God knows how long...but my situation is that foods and meds get stuck in between my chest where i have a hard lump ...has anyone had this? I think mine is more esophagus issue right? But since i have a sore throat and hard lumps in my throat and swollen glands im not sure which dr. To see...Do you feel like you have pins and needles in your throat? Because i do and just wanted to see if anyone else experienced that and makes this tickling sound and sensation..God bless you all...glad to know im not alone😢
Hi Day,
If you feel like something is wrong in your throat then definitely go see an Otolaryngologists (ENT). If it is during swallowing and seems to be down in your chest, then it would be a Gastroenterologist. That doctor takes care of everything that involves your esophagus, stomach, and intestines. It sounds like the "hard lump" you are describing may very well be a condition known as GERD, (Gastroesophageal reflux disease) This can lead to serious complications in the long term. You definitely need to see someone about this though. Keep us informed on your progress. there are a lot of people who are here to help.
Lee
Thank you so much Dr Obaz for all you do for so many during their unexpected hsv outbreak. I know at least three other women who were patients of yours, and all felt deeply cared for. I am grateful for the gentleness and care you’ve shown me too🔋..
Salamat sa info
Thank you Jeremiah!
God bless you
Thank you! 3 years on and STILL CLEAR!!
Lee
Thank you for this video !! It seems nobody including the dr’s can tell you
Where you should be in recovery. I had 35 radiation &7 chemo. Finished a little over 6 weeks ago. Some people say I could be eating by now…
I can eat small amount of very wet cereal, oatmeal but there is no way I can do more right now. I try and get thru the pain and then stop when it’s to much. I have just realized that sometimes the pain will go away in 7-10 minutes but not always. What is a reasonable goal to start eating meat etc? My family thinks I’m falling behind as I know I need to work those muscles. Any info would be helpful. This is the only place I could find real information from people that are going through it
Thanks
I can honestly say that at the 5-6 week mark I was barely choking down ice cream and yoghurt. Both my oncologist and gastroenterologist both suggested to just take my time and slowly increase amounts as you are comfortable. Of course we should push a little, but not huge steps. You have effectively suffered radiation burns in your throat. Unless they are speaking from experience, ask them to back off. Work through this as it sounds like you are. FYI - I still go through about 16 Oz. (500 ml) of water per meal if not more. That is mostly to help me swallow.
Lee
Thanks Lee. By chance, can you do a vid talking about what the first year of recovery will be like? or can you point me at the vid if you already did one with this info? I'm in my 8th month of recovery and now experiencing what my med team thinks is likely scarring of the lymph gland which was radiated, I have updated testing set for next week (regular schedule). Trying to learn if what I'm experiencing is normal/expected this late in my first year of recovery (it's pretty alarming).
Thanks and I'll check that fb page out.
GREAT IDEA!!! I will get right on that!
Lee
Congratulation Mr.Lee,
It is grate news for you and your loved ones.
IHi Vijay,
t was excellent news for sure!! I look forward to some excellent news later this month on my one year anniversary scan!
Lee
@@theregularguy141 good day Mr .Lee
Happy to hear fm you and Wishing you all the best and hope to hear good new fm your end for the future test.
In fact my wife was daygoanasied throat cancer in July 2022 and she took treatment in Singapore and her pet scan result after treatment last week came as she is cured fm cancer.
Hi Vijay,
That is fantastic news!!
Lee
@@theregularguy141 thank you Mr.Lee,
Recovery depends on the stage of cancer you had, Everybody's cancer is different as well as treatment and of course so is recovery. I am 6 years from treatment, they damaged my epiglottis,, soft palate, salivatory, glands and the radiation killed my teeth. I will never eat food again and just recently have been diagnosed with Ostero-Radio -neurosis. It all depends on the stage you have been assigned, some have full recovery some don't some live and some die. Get tested regularly the sooner they find it the better your chances. No matter what your told stay positive you are going to have to deal with it anyway you look at it. Hug a little longer, laugh loud and proud and enjoy this fragile life we tend to take for granted and enjoy everyday you wake up and get another. Life is like a great ride at the park and it's never long enough.......I wish you peace and happiness upon you. ( I had Stage 4 tongue cancer inoperable saved by radiation and chemo )
Thats very true Kevin, the sooner it is discovered the better. I agree that a positive attitude is crucial to keep your mind right.
Lee
Kevin have u been initially diagnosed with stage 4 or its a reoccurrence?
My husband was diagnosed with a stage 1 SCC, base of tongue/tonsillar area. He endured 35 Proton radiation treatments, with all the accompanying side effects. Three months after treatment ended, he was given a NED, or no evidence of disease shown on PET. Three months later his disease was metastatic, causing constant pain. Three more months and he was gone. Fifteen months from diagnosis to death from aggressive disease that began as a minor scratch in the back of his throat of two weeks duration when presented to our physician. I am happy for those who have more positive outcomes, but not everyone clears the disease, in spite of treatment.
well done and I subscribed.
Thank you very much Peter! Have you or someone you know been given a cancer diagnosis?
Lee
@@theregularguy141 Thanks for asking Lee. I was diagnosed with Squamus cell carcinoma. Had surgery almost one month ago and they got it all but having me follow up with 6 weeks of radiation. Sill doing Ibuprofen 3 times a day but feeding constantly past the swallowing pain. Trimus has been tough not knowing how long it will last if ever as I was a professional voice actor for 40 years. Your videos are very helpful.
@@petewhite85 Thanks Pete! That had to be a really tough diagnosis with your job as a voice actor. Hopefully the truisms can be worked out through physical therapy. Good luck and definitely keep us up with your progress!
Lee
@@leeh2351 Thanks Lee.
Oh, I need you...looking back to find the begining. My guy just finished chemo and radiation for throat cancer and the way he is now is scaring me.
Hi Winds,
It is pretty scary not only to those of us who underwent treatment, but also to the family and friends. I think a lot of people forget that side of cancer, the family and friends. My weight loss of 80 lbs, coupled with being very lethargic and struggling through daily tasks absolutely scared my wife. The recovery took far longer than the treatment did, at least in my case. Hmmm, an idea for another video has now formed....
Lee
@@theregularguy141 Yeah, you talked about going back to work at three weeks. Friday he'll be three weeks from last day of treatment and there is NO way he'd be able to hack a day, even in the office, at work. Thank you for being here and sharing and answering my questions because he's just not up to being questioned right now.
How is he doing now ?
@@donnabarnes540 Long, slow recovery. He just, a year later, got clearance to start eating and work at getting off his feeding tube.
@@WindsofChange that’s brilliant. I had a nose feed for a few months. Thought I’d never eat again but here I am , eating . Not steak and chicken but at least eating ! Are you in the US ? Xx
My treatment finished 14 September 2021…… my biggest mistake for my recovery was returning to work beginning of December… 2 months before I got a medical clearance.
Ice Cream was life!!
Everything tasted very peppery to me… couldn’t do anything spicy and sugar was like an acid to my mouth!
I’m fairly much back to normal eating nowadays, but I still need to be mindful whilst eating.
That really sounds familiar. Anything spicy, at all was like liquid fir in my mouth. My sensitivity went WAY up, even high temperature was not comfortable for a while. How are you? How are your scans going?
Lee
@@theregularguy141 I’m currently cancer free…. Still on 3mthly check ups.
Fatigue is still my biggest enemy lol
Started physio for the muscle damage… unfortunately I had a previous shoulder injury on the same side as my tumours and also an old lower neck injury all of which have been complicated by the radiation.
Just when you think you’re on top of the side effects, more seem to raise their hands and go “oh hello 👋 I’m here!” Lol
I also seem to have awakened some of the hereditary delights from my family…. Rheumatoid arthritis seems to think that it’s their time to shine….
It’s interesting the further away from the treatment you get, the more you discover about the ongoing side effects this journey can cause.
Makes you appreciate the small things in life and how blessed we truly are to be here to appreciate them
hey , what was ur symptoms when u get diagnoised? is bloody mucus and dry throught is symptoms of this too?
@@Shubham_68276 the reason I actually went to the doctor was that I had a lump on the side of my neck, that started out as being the size of my finger tip, but grew to the size of a plum over a month or two.
In hindsight I had had multiple earlier symptoms…. Feeling like I had something stuck in my throat ( I thought it might have been tonsil stones) months before hand I had earache, but when I went to the doctor there was nothing wrong with my ear.
White coating on my tongue, bad breath,
In the year before my diagnosis I had randomly totally lost my voice for an entire week TWICE.
Your symptoms absolutely should be checked, they may be something totally different, but I have learnt the hard way to be proactive with my health!
Please go see your doctor.
@@Sonyas_Makeup_Beauty_Secret thanks for the reply!!
I'm just facing this issue from last 4 days blood comes in mucus and dry throats and a bit of throat pain ..no problem in eating till now .....but from last six months i was having excess mucus production but no others issue...! Today I also had chest x ray and it was normal completely so I'm hoping something wrong with my throat but very worried about throat cancer ..and i am just 23 , never smoke or drink in my entire life ...but still facing this issue
Suggest anything if u can please
I still have no teeth 4 months ago pulled 18 teeth , also Patricials, so my goals are small feeding stomach ped tube
so working on swallowing with drinks of Water ,tea and iced coffee .can make bigger leaps with dentures been 90 days since 35 radiation and numerous chemo .. Throat Cancer partials are no good all teeth are missing
When will you get dentures in?
Lee
@@theregularguy141 This Friday getting wax imprints then send to the lab Seeing ENT doctor tomorrow .. Post opp from last month, included an esophageal and laryngoscopy and Pet Scan knees to throat .results thanks Lee for your reply and insight .
I just recently found out that I have throat cancer and within the next few weeks I'll be starting my treatment. I'm absolutely terrified of how painful and miserable this process is going to be. How did you stay so positive and deal with the process? I'm very glad you made a full recovery and are doing well. Any Words of encouragement or positivity are greatly appreciated
Hi Slimothy-James, I am sorry you have a throat cancer. However, bring a cancer patient, I assure you there is a pretty much good treatment available for a throat cancer. All you need to get mentally prepared and strong. Make yourself ready to fight it and I have no doubt you will go through the treatment process successfully. Good luck
Hi Slimothy,
I agree whole heartedly with @lawandyoubyks completely. There are good treatments available and the outcome is usually pretty good. I will not lie, the treatment can be pretty rough depending on a lot of factors, however by being mentally and physically prepared and keeping a good attitude will due wonders for you. You will absolutely do fine. If your doctor agrees, get a PEG put in before you start treatment, that will definitely help. We are all here to help through advice and encouragement.
Lee
@@theregularguy141 What is a "PEG"? Does that have to do with the chemotherapy? I'm going this coming Monday to get the mask, or something, made so they can design the plan for the radiation starting the following Monday. I'm getting nervous but I'm staying as positive as I can
So, the PEG tube or percutaneous endoscopic gastrostomy tube is a feeding tube that is a direct line into the stomach for feeding in the event you are unable to swallow due to constriction of the throat due to the radiation treatments. It is placed using a endoscope and an incision in the abdomen. My gastroenterologist recommended getting it in before starting treatment. However, I would have the discussion with your doctor. Your treatment may not be so severe as to require it. Here is a link to my video about the PEG Tube.
Lee
czcams.com/video/7j743El4mg0h/video.htmlttps://czcams.com/video/7j743El4mg0/video.html://czcams.com/video/7j743El4mg0/video.html
@@theregularguy141 Oh ok. They actually talked to me about that in our initial consultation and said that about 20% of their patients require it. That actually freaks me out really bad because I don't like any kind of surgery and I'm terrified of being put to sleep. I told them that I'm going to do everything I can to avoid it because of how scared it makes me but I've been having trouble eating already because I had to have my teeth completely removed before I could be cleared to start treatment. I had to have them removed because they weren't in perfect shape and I could possibly develop an infection from the radiation that could ultimately lead to me having part of my jaw removed and that isn't an option. I've been eating a lot of soup and blending a lot of stuff up recently just to maintain some quality caloric intake but I might need to have that PEG eventually. Thank you for taking the time to respond, it means a lot
do you think now looking back that you could have not got the feeding tube?
No, I’m pretty sure that I would get it again. Knowing what I know now, I would definitely do a better job of nutrition management.
My 92 year old mother was diagnosed with stage III base of tongue cancer and will be going through 6 weeks of radiation and chemo. After watching these videos, I’m not sure she will survive it all. I’m scared for her and dont want her to suffer. She lives at home alone and I live close by. Any suggestions for this situation. I’m heart broken.
Hi Gingin,
I will not sugar coat it. It will be difficult for her. My suggestion is for her to work closely with the palliative care team to help reduce some of these side effects. Will she have the PEG tube? A big key takeaway for me was to stay hydrated and eat, eat, eat. (through the PEG tube). Do something every day to stay physically and mentally active.
Lee
Hey Lee, just watched this video. Some questions. It two weeks for me since my last treatment. I have gone in every day including weekends for fluids.
Currently, I am consuming 3 boost shakes and 32 Oz of water on my own. I can swallow but deliberately and slowly. I tried eggs and jello but not ready for solids. Where were you two weeks post? I know I need to get the nutrition to start healing faster. Exercise right now is tough..it's all I can do to walk the length of my house. Thanks in advance...
Hi Jon,
At two weeks post treatment, I was a miserable person. Like you walking the length of the house, up and down the stairs was an exercise. I was still forcing things down the PEG. I was also probably just slowly getting past the mucous, but unable to take any solids. Liquids made me gag and choke, but I kept working it. Surprisingly, my gastroenterologist suggested yoghurt... That helped, slightly.
Hi Jon. I had 33 radiation treatments. Last one 4-14-23 I am having 3 shakes a day just like you but I use Blendjet and water them down. I also add benecalorie that you buy on Amazon that adds 330 calories. I’m having a rough time and getting depressed that thing are not happening faster. 6-13-23 will be 2 months from last treatment and can only swallow soft foods like scrambled eggs, jello,pasta. My throat feels so slimy that I need water after each bite. I get clear bubbles in my throat and on pallet that are very painful. I am using magic mouthwash sparingly and mugard sparingly for the pain. This keeps me from trying more foods. I’ve been on shakes since 3-13 due to pain so I am frustrated. I don’t know if these are normal for my time frame. Are you experiencing any symptoms like mine? Thanks
@@user-zy2io5wm1z Absolutely! I definitely remember that! I agree at the 3-4 week mark I was still convinced I wouldn't ever eat real food again. I think you are right, blend shakes with water to help it get down. Unfortunately, I still drink water practically every several bites due to the lack of sufficient saliva. (I hadn't heard about this "little" side effect). But my appetite and ability to eat did come back and I want to say by 8 weeks post treatment I was eating somewhat normally in smile amounts.
Lee
Hey man I have another question for you. I'm now 5 weeks post radiation and have been slowly and gradually feeling better but within 24 hours I started having the same pain and and swelling during radiation. Is it normal to have a flashback? I'll be contacting the radiologist today.
Hi Pete,
I did not have anything like that, however it also wouldn’t surprise me due to the amount of radiation we receive during treatment. Please let me know what the radiologist says!
Lee
@@theregularguy141 Thanks Lee.
Btw i just wanna know how much time does it take to get back our normal Appetite after chemoradiation its almost 1.5 month i have completed my treatment any idea?
Hi Arpity,
Well it really depends on you. remember that during chemo and radio therapy you were probably not eating as much due to throat constriction and loss of appetite. Due to that combo your stomach also shrank reducing your ability to ea as much as you used to as well. I would guess that approx 8-12 weeks after treatment, I felt that my appetite was kind of normal. As far as fully recovered, I would say 6-8 months post treatment.
Lee
I start in about 10 days. It sounds like the same treatment you had.
Hi John,
You have a difficult journey ahead, but one you can survive! Good luck and keep us up to date. I are you doing the chemo / radiation route or is there surgery involved as well?
Lee
I finished radiation last week. I have terrible mouth sores. Did you have these and if so when did they lift?
Hi Susan,
No. no mouth sores... I did have a sore mouth, but no open sores. I rinsed several times a day with something called Magic Mouthwash. Maybe that helped?
Lee
Hi Susan. My doctor recommended Orabase it’s dental paste specifically for mouth sore and that helped a lot. I got it on Amazon but I believe it comes in a prescription under a different name. Not sure what the name is.
@@user-zy2io5wm1z Another great answer! I had never heard of Orabase before now. Thanks Theresa!
Chew on icecubes when have Treatment
I'm about to go through these treatments how long does it take to recover I only weigh 130 lbs I can't afford to lose 50 lb I'll die what do I have to do or should I just do nothing
I think I truly felt like I was starting recovery by about the 5th or 6th week. I think I felt like I had fully recovered by about 8-9 months post treatment. I was still a bit weak and tired, but I was feeling much better week to week. As far as the weight loss goes, speak to your oncologist about getting a PEG tube. I would also speak to a cancer related nutritionist. Your body will burn more calories than you think during treatment and you will have to eat regularly. Take it from me, do not stop putting food in. I spent 5 days in the hospital for malnutrition and dehydration. Not cool at all.
Lee
Hi sir my father is concurrent rtct and its been 10th day and doctor has decided to give total 37 dose of rt and now he is unable to even drink water and thinking of having a nasal feed pipe is there any excercise or medication that may help his condition?
Not that I know of. Unfortunately the radiation causes swelling and constriction in the throat. I do recommend having the doctor look at using a PEG tube if it can be safely inserted. From what I understand it is way more comfortable and easier to use than a nasopharyngeal tube for feeding.
Lee
I am in the recovery period. It’s hard to eat. A couple of teaspoons here and there. Any tip to get eating?
Hi Susan. I had 33 radiation treatments. That ended 4-14-23. I was told 2 weeks after stopping would be the worse and then it would heal. It is now 6-8th and I’m still having pain. I am only drinking 3 shakes a day watered down using a Blendjet. I was told if I couldn’t drink more shakes get benecalories on amazon to add 330 calories. The symptoms change weekly. I am now getting clear bubbles on throat and pallet that are painful so I use mugard and that helps. Then my throat will be numb where I can’t feel any pain for awhile. I did get mouth sore and was told it was due to metal fillings in mouth that scattered the radiation. I was told much later that I should have gotten trays made at the dentist so that wouldn’t happen. Instead they put gauze around the tooth that was supposed to help but didn’t. I used Mugard for the sores during treatment and it helped but took some time clearing up. I have no mouth sores now. Since I cal only eat soft foods like eggs pasta and can’t eat a lot of it I have to use the shakes. Boost. Ensure. Premiere protein. To keep up my weight up. I thought I would be further along by now. I was told recently to Continue the shakes and even if you eat 1 egg a day it is something. Just do the best you can. I am so sorry you have to go through this. It is much worse than I was told by my doctors.
@@user-zy2io5wm1z I agree. No one really told me about the recovery period. I have Mugard, Magic Mouthwash and nystatin. No one explains how to use all of these. Yes, I am pushing. Yogurt and pasta. A couple of teaspoons plus the peg….
I think i have throat cancer cause my ears ache my throat hurts it hadd to breathe and its hard to swallow 😭😔
Are you able to taste now for example a cheese burger and French fries?
I recently completed treatment on the 11th of August 2023.
YES I CAN!! I admit it tool about 3-4 months to really notice an increase in taste. The first few months, I felt like I was eating a cardboard box, once I got to where I could swallow that is.
Lee
can you recommend additional chat groups for HPV cancer survivors? not so much general cancer dhat groups, specificially this HPV cancer chat groups.. thanks.
Hi Kevin,
If you are on FB, there is this group. I'll do some more research when I get from work today and update this.facebook.com/HPVCancersAlliance
Lee
Thanks Lee. Having a scare/mental flip over a pain I'm experiencing in the main node that was radiated and trying to see if there may be a group where I can read/share comments to learn if this is a similar issue others may have had in their first year of recovering (I'm in 8th month of recovery). I'm slated for next scan in two weeks but have been calling my case nurse to share my concerns, they think it's likely scar tissue/fibrosis like effects). By chance with all of the research you've done, have you heard of these kinds of after effects occurring throughout first year recoveries? @@theregularguy141
Thanks Lee. I'm in my 8th month of recovery and having a scare at the moment, the gland that was radiated has been not sore but feeling tight/pressure-like. called my med team to discuss, they think it's scarring tissue but I'm freeking a bit. in all of your research and talk with others, is it possible to have this kind of issue not happen until the 8th month? @@theregularguy141
I am so scared. My CT scan is April 13. Everything point to neck cancer. I don't know if I can do this. I don't have a good support system.
Hi CJ,
I get that. It's definitely a frightening experience to go through. Maybe start reaching out to some of the local cancer support groups. (American Cancer Society) By your profile image it appears you were or are military? If so, check out the new assumptive disease list from va.gov. Those guys get a bad rap, but they have been very responsive even though I live over seas. Take a deep breath, and start planning ahead for treatments. Follow the plan. It will be difficult, but you can do this. Please keep us informed on your progress.
Lee
@@theregularguy141 they have moved up the CT SCAN to March 22. I get all my care at the VA. Thank you.
My husband was diagnosed two years ago with throat cancer. Please do a lot of research picking up a surgeon, oncologist and radiologist😔😔😔
Don’t do CT scans. The radiation that causes damage to your cells will cause misrepair which will result in more cancer elsewhere down the line
Okay I’m new here, but how did u know you had throat cancer ? Like what were some early symptoms ?
Hi Jay,
Well, to make a long story short, I had a sore throat, ear ache and swollen lymph nodes in FEB 2021. My initial primary care physician prescribed anti biotics for an inner ear infection and throat infection. The pain went away but the swollen node stayed the same. After several ultrasounds that revealed the swollen lymph node getting bigger, we had a biopsy done that identified the cancer and then several more tests to identify primary point and any other locations. This led to chemo and radio-therapy treatment from July 2021 - Sept 2021. Currently 18 months post treatment, I'm still free and clear.
Lee
@@theregularguy141 wow congrats I’m glad that you’re free that’s great to hear, I only ask because I have GERD. & I constantly feel something stuck in my throat. & sometimes when I swallow I feel something sharp. Is have bad anxiety but doctors have told me with im experiencing isn’t throat cancer. But I just worry a lot
@@jaywallace907 I managed to start suffering through GERD as well after my cancer treatments. If I don't take my medication I'm in for a crappy day... With me, I felt no pain or any issues at all. If I had not had the swelling in my neck I would not have known anything.
I will say if you are not satisfied with what you are being told by your doctors get a second opinion or a referral to a specialist.
Lee
@@theregularguy141 okay thank you, this is the last question where did u feel the swollen lymph nodes in your neck ?
Hi Jay,
I felt it just under the left jawline towards the rear of the jaw. I think they are called the tonsilar lymph nodes.
Lee
PS - Apologies for the late response, please ask any time!
Thanks for the video. My father was diagnosed with throat cancer last year . He underwent 35 radiation sessions alongwith chemotherapy. Even after 6 months of treatment, his throat area has swollen and pains a lot. Did you face any of this symptoms ?
If yes , any tips ?
Hi Priyanka,
I did the same, 35 radiation treatments and 6 chemo (cisplatin). My throat was swollen and sore for quite a while. I was finally able to eat somewhat normally by 4-5 months after treatment ended. Somewhat normally was mostly soups, noodles etc. It was another couple of months before I could really eat solid food. My only advice would be for him to eat as it feels comfortable, avoid spicy foods, and of course continue checking with his doctor. Unfortunately the treatments hit each person differently.
Lee
@@theregularguy141 Ok. Thanks for the reply Sir.
Love & Care from India 🙏💙
@@priyanka5527 Thank you Priyanka! Best wishes to you, your father, and family.
Brilliant.For anyone with cancer CANCERActive site run by Chris Woollams is superb.Great books,regular newsletters and Chris is the most knowledgeable person for both conventional and holistic medicine .This gentleman is so right.Taking control of recovery is vital and building a body with the best immune system gives us the best chance of keeping this very clever virus in an inactive state.
Hi .. Priyanka...how your father respond to treatment...Did he cure from cancer in PET scan?
I am not sure of the type of radiation you received, but the type of radiation I received 13 years ago is still impacting my throat.
I had photon radiation treatment and yeah, I still have the dry mouth, difficulty swallowing and some limited neck mobility.
Lee
Were you hpv positive or negative?
I was positive for HPV 16
Keep up with hard recovery. Be strong.
I had stage 4 throat cancer, 30 doses of radiation plus 3 chemo after an 8 hour radical neck dissection it was back in 2007 at the Christie in Manchester uk.
So my saliva has been screwed from then and until now. At the time I was down for a special program of pin point radiation but I have really bad claustrophobia so that didn’t happen just broad brush radio. That messed me up. No criticism for Christie, they are the best in the world. I now live in Boston MA. USA.
My go to hospital is MGH. Wonderful place and people who care. Please stay well my companions of cancer
Hi Mark,
I cant imagine doing the treatments with bad claustrophobia... That had to be tough. How are you now after all of that? Still all clear?
Lee
Yes my friend still all clear 16 years on.
Still got really bad dry mouth and my teeth are starting to suffer. I get neck spasms from my overworked remaining lymph. I stand in a hot shower and use a small roller down my cheek and neck and that helps a lot. I hope this helps. Stay well
@@markgreenwood6630how are you😢is your cancer treatable or not.i am having parotid cancer of stage 3.my gland is removed
its amazing to hear that stage cancer get cured its miracle , god bless u , i m having blood in my mucus and dry throat i m very worried about my health condition ,can it be due to cancer? @@markgreenwood6630
How do you manage the pain if you can't swallow a pill? I am soon to start radiation and my nerves are already shot
Hi Rodger,
I worked with palliative care doctor and was prescribed some multi day slow release patches for pain and was also given specific pills that could be ground up and added to a mixture of water and tossed in through the PEG tube. Definitely consult your oncologist and get the process with a palliative care doctor started early. Will you have a PEG tube?
Lee
@@theregularguy141 peg? Is that a stomach tube? Doc says 50/50 but most do
@@rodgerdodson7957 - Yep, the stomach tube. If I was given the circumstances that I had before, I would, without hesitation elect for the tube. Every time. Treatment will be difficult, there is no need to make it harder on yourself. This video should answer a lot of your questions. To be honest I was not only reluctant, but was absolutely opposed to getting the tube. The conversation with my doctor and at the insistence of the wife kind of talked me into it. I am glad that I did it.
Lee
My husband could not swallow pills, ended up in the hospital on fentanyl patch. But don’t be afraid. At the hospital they kept him hydrated, did blood tests and replenished electrolytes, placed feeding tube and started him on formula feeding, which helped a lot. Also, they arranged for transportation to proton treatments. We were so happy with care he received there.
@@theregularguy141 how long was the time between diagnosis and treatment.
Local doctors wanted to do 7 weeks of radiation and chemo with the port and a feeding tube in the stomach. My Primary DR told me don’t do it and sent me to an ENT surgeon specializing in HPV cancer of the head, neck and throat. Used a robot to remove cancer on tonsil and tongue and lymph nodes It reduced radiation to 5 weeks at a lesser intensity. I have a specialist to help with chewing/swallowing and a nutritionist. No feeding tubes and no chemo either.
That is fantastic news!! Anything to reduce or eliminate chemo and or radiation is a sure positive in my book!! Congratulations on this! How long ago did you have treatment?
Lee
What doctor and where?
Is it normal to develop a cough 3 months after radiation my Otorrino saw me 5 weeks ago and saw everything ok inside the throat, but I have develop this cough like a week ago. Also i have some lymphedema on my neck,, any advise?
Hi Roger,
As far as a cough goes, I have had a cough come and go over the past year since my treatments ended. I would give it a week or so and see if it clears up. Mine is usually gone in 10-14 days if not sooner. As far as the lymphedema goes, I only had that when we got the diagnosis. All my swelling disappeared. Given your past history with cancer, I would suggest referring to a lymphologist to get a specialist opinion. Those radiation treatments are rough. I still have a very dry mouth when I’m sleeping and talking. Let us know how it goes buddy. I’m sure others are quietly asking themselves the same questions!
Lee
@@theregularguy141 great thank you Lee. that gives me a peace to hear Monday have my PET will keep you postd for sure...
Lymphedemia treatments are available. Contact the Occupational Therapy dept at your hospital. There are people versed in massage that moves the fluid back into the lymph system. There are machines as well that provide compression that are worn at home. Flexitouch Plus from Tactile Medical.
Did you have leukoplakia
Hi Amber,
No I did not.
Lee
@@theregularguy141 did you catch it early? What was the survival rate they gave you? I just subscribed to you and this is the first video I seen from you
Plz Convert video in Urdu
I will try
Lee
Did you loss all of your saliva glanes
Hmm, I estimate about 40-50% loss. That dry mouth is a bit much...
Lee
Ice cream??? Cancer feeds on sugar.
Hmmm, while I agree that in normal circumstances a reduction in sugar (empty calories) is a good thing. At this point soothing the burn in your throat and using ice cream to serve as a delivery vehicle for vitamins and nutrition might be a good option. www.mdanderson.org/cancerwise/sugar-and-cancer-treatment--4-things-patients-should-know-.h00-159144456.html#:~:text=Absolutely%20not.,the%20sugar%20to%20those%20cells.
This is definitely getting a dislike
?