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I hope the steroid injection in your ear is super helpful! Steroid injections helped me for a time. Super hopeful for you. You can do this. One step at a time. God's got you.

Heyy!! Long time no see. How are things?!

I replied, but I can't see the message. So writing again in case it didn't post. You are SUCH a warrior! Way to go for navigating so many health issues. Just one of those is so hard. That is so exciting that you are going to be training your dog. I'm rooting for you and so hopeful for the changes s/he will make in your life! You've got this and you're never alone.

I am! :) When I was 20, someone saw a old wedding photo of my mom and thought it was me - thought I'd gotten married.

My parents do live close by - a few minutes drive. I have a younger brother.

It was so gross. I'm not familiar with Clenpiq- is it flavored?

@@IncredibleAnyway Supposedly it's raspberry flavored.

@@elizabethbest6992 Thank you! I’ll ask about it next time.

Im glad you don't mind it. To each his own. :)

I hope that the Ajovy helps you! I'm glad they offer both options so people have a chioce. :)

Thank you! It was the first time I'd been to my parents' house post brain surgery and so I really knew what a privilege that was!

@@IncredibleAnyway You’re so awesome, don’t forget it!

Yes! I thought that was cute Dash wanted to dance!

Maybe a collector thing. My guess is it is also an identification thing because a person picks and chooses which ones they get.

YOu are SUCH a warrior!!! Way to go for navigating so many health issues. Just one of those is so challenging. Excited for you as you train your pup and for the difference they will make in your life. You're not alone.

Thank you! My dad is not a fan of that type of dancing, but he did it for me and it made it that much more special.

That is a good question - I'm not for certain, but sometime in early November.

I'm so glad you found me! Yes, please stay strong! Keep fighting. You are not alone and I'm always here if you need an ear or have a question. Take care of you!!

Oh no! I'm so sorry you were having a violent vertigo attack when you wrote this. Have you been diagnosed with Meniere's? If so, have you tried steroid or gentamicin injections? You didn't mention those and they are usually the step before the Vestibular Nerve Section. Gentamicin is a much less invasive treatment than the brain surgery and does the same thing in a different way. This brain surgery is definitely something to take time to consider and talk about with your doctor. It is a very very long healing time though every one is different, it is longer than I expected. It is not an easy fix at all.

@@IncredibleAnyway yes. I have been diagnosed with Meniere’s for a long time unfortunately. I get violent vertigo and drop attacks. However, sometimes, I can go a whole year of no attacks.

No, I don't regret having it at all. It changed my life and is continuing to change it. I would've been debilitated and in bed by vertigo every day without the surgery.

I”m so sorry to hear that you developed Meniere’s in your other ear after the Labyrinthectomy. That is so tough. My heart goes out to you. The gentamicin actually didn’t work for me. I had 9 injections/procedures before we declared they were a failure (usually doctors do 3 max). My inner ear hair cells kept regrowing, so I had brain surgery: Vestibular Nerve Section. Are the steroid shots helping you? Rooting for you.

I think I started 9-10 days before thanksgiving though I didn't make food every single day.

I do with chicken. I didn’t have enough energy to do it with the turkey after making the whole meal. Would be yummy tho!

@@IncredibleAnyway yeah maybe next year!! Well now 125 days until November 1st when you start cooking again !!

It’s a real meat turkey 🦃

@@IncredibleAnyway oh wow . I’m so glad something was somewhat easy as apart of your meal !! Yay 😁

That is a really excellent question for your doctor. No one can really tell you why your B12 is low except the doctor. Personally, we found that my body doesn't process B12 well, so that is why I'm low.

My heart goes out to you. I'm so sorry that you are dealing with brain cancer. All the symptoms must be so rough. Rooting for you and sending a virtual hug your way.

I'm so sorry. they are rough.

It really does lol! It was soooo good.

Aw thank you! I enjoy it. Made me hungry editing it too!

Thank you! Definitely a berry sandwhich.

Ugh, Meniere's is so rough. Did your doctor recommend Meclizine? There might be some other things that help you more if it isn't helping. Yeah the messing with the vision is rough. Cheering for you!

Yay! I'm so proud of you too! That is a hard one to accept. Music is so healing for me. Oh wow, you don't eat fruit! Is it a taste thing or a texture thing? Yeah this pie was not good.

@@IncredibleAnyway its a texture thing. Possibly a combination of factors. My chromosome disorder comes whith eathing struggles from birth it seems. (Just joined a fb group with people who have the mutation to or parent children with the mutation). But some textures also trigger trauma memories in me.

Lots of different places. What I'm watching on this video is a concert on Amazon Prime called "Yet to Come." There are concerts on Disney Plus and documentaries. "Permission to Dance" concert is on Disney Plus. The BTS documentary on Disney+ is called "Beyond the Star." BTS has a CZcams channel called "Bangtan TV" where they have tons of content. They also have an app called "Weverse" but most of the content there are concerts and documentaries that have to be paid for. They will livestream concerts through that app and its where the members will livestream. BTS is also on IG and Tiktok. :) Probably more than you ever wanted to know lol

@@IncredibleAnyway oh wow !! No that’s actually really helpful thank you 🙏🏻

Yay! That is a huge win! Well done! I switched to eating Paleo in 2017. I was already eating gluten free since 2010. But changing to Paleo helped a lot of the brain fog I was having and some inflammation. Though I will say, in my experience, foods affect us all differently. So while Paleo food plans may significantly help some, it may not help everyone.

Ah thank you so much for sharing that! I'm so glad you found it helpful!

Hello Rene! Thank you for your question. The recovery from gentamicin is very difficult. It will get better over time. My doctor said, the more difficult the recovery, the more the recovery is helping. I do not know how many mg I had. Usually it takes 1-3 injections of gentamicin for the vertigo to be permanently gone. I had to get another treatment because I am one of the rare circumstances where Gentamicin does not help. But it usually helps most people! I wish you luck. Please let me know if you have any other questions!

Hallo Kelly, my english is not so good also I have translated with Google. First of all I have to tell you that I think you are really brave. I know how hard it is to cope with Menier's disease. I have been taking medication for it for over 12 years and only now. gentamicin. Four injections within a week. 40 mg 1 ml per injection. The Meniere's is apparently burning out.... So it's almost over.... However, I now had three attacks every day that lasted hours. This could have dragged on for months or a year or two. That's why such extreme therapy was done. You say that you are not suitable for the gentamycin. Is your middle ear scarred? Or did you get too little? You got nine pieces Injektionen in seven years. Thats Not enogh for the end ...the time ist too .fare apart..three pieces within three to four weeks. Or four pieces within four to five weeks. In order not to endanger hearing. My hearing on the left is almost gone and that's why I didn't have to take it into account anymore. That means four pieces within a week. If you only get one a year it can't eliminate everything. You then had surgery. How long did you have dizziness after that? And how do you feel now? Everything gone? And is the pressure in the ear gone? And is the tinnitus gone too? Lots of questions.... I've had constant dizziness from the gentamycin for four weeks now. The balance organ is gone and the right side now has to take over from the left. I hope it stays away. Every time I saw your videos I had tears in my eyes. I felt so sorry for you. That's how it was for me too, but you don't have to watch yourself. You are brave. And your dog is so cute. I had to laugh so hard when you gave him the present for his birthday. How he rolled and was so happy. A real friend of yours. Really sweet. Good comrade. Sorry for asking so many questions. But who else do you want to be with? Many people don't see what you're going through. You don't see a wound. I wish you all the best. And I hope we hear from each other again. But everything is positive. Kind regards Rene

Sending warm hugs to you. It is so hard to have a headache every single day. One day at a time is all we can do. Let me know if I can be of any assistance. I don't want give unsolicited suggestions! I'm rooting for you!

I'm so glad that you found something that is helping you when other treatments did not or were harmful to you! All the best in having less frequency and severity!!

Yay!! Thank you! It felt so good!

Thank you so much for sharing your experience. I think the more we create awareness and normalize ambulatory wheelchair users, the less the stigma will exist.

Way to go for making progress on making phone calls! That is Fantastic!!!!

Yeah, I definitley prefer Fedex to DHL!

Oh I'm so glad it was helpful!

No. I had gentamicin injected 9 times and never lost hearing. I have a video on gentamicin and hearing loss here: czcams.com/video/WRpFzUIeHrE/video.htmlsi=FpZ6Fn81wAJZEnOI

You're welcome!