It's stupid I'm doing this? | Day 175 Pt 3 Post op Vestibular Nerve Section
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- čas přidán 13. 06. 2024
- Hello! I'm Kelly and I've had Meniere's disease since 2010. On May 25, 2023, I had a brain surgery for Meniere's disease called a Vestibular Nerve Section and Craniotomy after I exhausted all treatments for Meniere's disease. I kept a private video journal while I recovered from surgery and recently decided to make it public in hopes it would help others go through this surgery recovery. The date this video was recorded is listed below. I'm happy to answer any questions you have or talk more about my experience. Recovering from brain surgery was unlike anything I've every experienced. But I've come so far and I am SO glad I did it. Thanks for going on this journey with me!
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🎥FILMED: November 17, 2023
[Visual Description:
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Text Beginning of the Video: Tiktok + Instagram: @IncredibleAnway
Text At The End of the Video: During the closing music, the end card has a photo of Kelly standing with a blue cane in her right hand and holding onto a handle on Golden Retriever Benevolence's green service dog cape. Kelly is wearing a blue T-shirt with Anna from Disney's "Frozen" on it that says"Live Your Truth." Service dog Benevolence is standing on Kelly's left side. Pet dog Dash is laying on the ground next to Kelly with his head on the ground next to Kelly's cane. The screen reads" Subscribe to Incredible Anyway with an arrow pointing to where the Subscribe Button is. Above Kelly's head is her Tik Tok and Instagram Handle.]
Those pies looked delicious! Talking to yourself is not a bad thing at all. I do it to encourage myself or talk myself through some difficult times. I believe it helps! Continued prayers
❤🤗 & 🙏
Glad to know i'm not the only one who talks to myself! It really helps me.
You should be proud of yourself l’m tired just watching you lol. The pie looked great😁
Thank you! I was exhausted.
You cooked an entire meal by yourself which most people have help with you’ve done so much give yourself credit 8:44
Yay!! Thank you! It felt so good!
❤no it whas not stupid sweety. You do you. You feld like doing this. You are not alone in the phonecall anxiety. I hear it allot. And i am also like that. These days it goes better as i have been teaining with my helps. But when we just started working on it i always tryed to get them to call for me. 😉😁.
Nowadays tgey sit with me but most of the time i can manage tge call myselve. ❤ Hugs marloes
Way to go for making progress on making phone calls! That is Fantastic!!!!
DHL Is the worst . I’m like just give me where my package is !!! lol it gives it like 1800 stops . Even with American companies 1:56
Yeah, I definitley prefer Fedex to DHL!
Hello, My name is Rene and come from Austria..... Österreich.. I have morbus menier.... Can i ask you please. I become gentamicin.....4 peaces 40 mg in 5 days. It was very very hard.... It was for 4 weeks. Now it's damage and i Hope for ever. Have you become 40 mg too? 3 ...4 Peace with Gentamystin ?You are okay forever now??
It was very nice when you can answer me. My english is not so good. CZcams ist translate your answer to me.
Match thanks for you for your Videos.
Thanks.
Good luck Rene
Hello Rene! Thank you for your question. The recovery from gentamicin is very difficult. It will get better over time. My doctor said, the more difficult the recovery, the more the recovery is helping. I do not know how many mg I had. Usually it takes 1-3 injections of gentamicin for the vertigo to be permanently gone. I had to get another treatment because I am one of the rare circumstances where Gentamicin does not help. But it usually helps most people! I wish you luck. Please let me know if you have any other questions!
Hallo Kelly,
my english is not so good also I have translated with Google.
First of all I have to tell you that I think you are really brave. I know how hard it is to cope with Menier's disease. I have been taking medication for it for over 12 years and only now. gentamicin. Four injections within a week. 40 mg 1 ml per injection. The Meniere's is apparently burning out.... So it's almost over.... However, I now had three attacks every day that lasted hours. This could have dragged on for months or a year or two. That's why such extreme therapy was done. You say that you are not suitable for the gentamycin.
Is your middle ear scarred? Or did you get too little?
You got nine pieces Injektionen in seven years. Thats Not enogh for the end ...the time ist too .fare apart..three pieces within three to four weeks. Or four pieces within four to five weeks. In order not to endanger hearing. My hearing on the left is almost gone and that's why I didn't have to take it into account anymore. That means four pieces within a week. If you only get one a year it can't eliminate everything. You then had surgery. How long did you have dizziness after that? And how do you feel now? Everything gone? And is the pressure in the ear gone? And is the tinnitus gone too? Lots of questions.... I've had constant dizziness from the gentamycin for four weeks now. The balance organ is gone and the right side now has to take over from the left. I hope it stays away. Every time I saw your videos I had tears in my eyes. I felt so sorry for you. That's how it was for me too, but you don't have to watch yourself. You are brave. And your dog is so cute. I had to laugh so hard when you gave him the present for his birthday. How he rolled and was so happy. A real friend of yours. Really sweet. Good comrade. Sorry for asking so many questions. But who else do you want to be with? Many people don't see what you're going through. You don't see a wound. I wish you all the best. And I hope we hear from each other again. But everything is positive. Kind regards Rene