Happy belated birthday! Blue and grey describes it perfectly, I'd like to hear that song, gonna search for it. I'm sure you are not dissaponting anyone, you are very brave indeed and you are a beacon for many of us suffering from chronic illness. You've endured a lot, I'm rooting for you and I hope the migraines gets under control soon in real time.
Thank you! The song "Blue and Grey" by BTS is a beautiful song and is sung in Korean. You can find the English translation on line. :) Thank you - your words are such encouragement. I don't see myself like that, but it feels good to know what I share is helpful. Takes a lot of perseverance for sure as I am guessing you may know. Rooting for you too!
I really feel for you l also suffer migraines with aura and the anxiety l feel on special occasions to be well is ridiculous considering l have no control over them. I just don’t want to disappoint others. We need to be kinder to ourselves. Hope the meds kick in soon. Happy birthday to you . 🎈🎉🎈🎂🎁
Soo good to see you Virginia! I hate you hae migraine with aura. Migraines are so rough. Its so hard to miss out on special occasions - as you say it creates so much pressure. We *do* need to be kinder to ourselves. I'm starting to work on that. Its hard though for sure. Thank you for the birthday wish!
You dont disappoint nobody sweety. As the people that matter all know you. All know nobody asks to get a chronic illness, disability and or trauma. Happy belated birthday. 🎂🍀💐❤ My birthday is comming up next month. Big hugs Marloes ❤
Thank you my friend. Your words hit the spot. I have your birthday on my calendar! The 14th of June, right? Do you have any plans? Hugs coming back your way.
@@IncredibleAnyway jes, June 14th indeed. And now i have looked back in owr privat conversations i have found your birthday to. 🎉 I just must have forgotten to write it on owr calander. 🧐 So i now wrote it down so i dont forget again. 😉 No nothing special planned for my b-day. The day after though is a brainact group meeting so well see if they remembered 😁. Im voicemessege you back soon. ❤ Hugs Marloes
I dont know why your divorce video popped up in my feed this morning ❤ hope its nothing! I have been happily married for 40 yrs I am 59. I thought lets see how her life is now? I have been so sulky about the week of pouring rain. I start my days with gratitude but my garden calls & its floating away. I live in Ak and winter just ended. I have only been in the hospital 3x for the birth of my kids and litterally never get sick, not even the dreaded C. I find you incredibly string and upbeat, you have every right to have your days. I dont want to prey on your chronic medical challenges but it certainly is a reminder to be grateful❤❤❤
I'm so glad that you are here! Welcome! Thank you for commenting and sharing your experience. I have had a similar experience from watching someone I cared about go through hellish life circumstances. I knew someone who had a multi-viseral organ transplant and she went through hell. She appreciated *every single day* - the hard and the harder - and it deeply impacted me. She passed away a little over a year ago, but her life deeply impacted me and I think of her all the time. Her life reminds me of what I do have. There truly is so much to be grateful for- no matter what our circumstances are. I think it is normal and human to get annoyed and upset about things. Please don't be hard on yourself about yoru garden washing away! I would be frustrated too! You put in a lot of work in it, I imagine. Please don't be a stranger! I'm glad you are here. ❤️❤️❤️
I get them terribly, I go to the VA they give me shots of B12 and Demerol, close the door and leave me for a few hours.. Please don't feel disappointed it's your day do what makes you feel comfortable and safe..
I agree! :) Its called "Blue and Grey."So many songs have such profound lyrics. They go there with their lyrics and address depression ect. I find a lot of comfort in their music but also catharsis where I can just get my emotions out.
@IncredibleAnyway I'm there every other week!! I'm okay, haven't been on life support in almost TWO YEARS! That's a new record for me! 21 times on life support is more than enough lol. How're you?
I missed this reply! WOW! I'm so happy it has been two years! that is fabulous news. OMG one time would be more than enough - 21 times is hard to get my head around. You are such a warrior!!!
Happy belated birthday! Having a chronic illness is so hard, I'm praying for peace and comfort
Thank you so much for the birthday wish and the well wishes! I appreciate the prayers for peace - I really crave that the most.
You are never a disappointment. The people who love you know at least on the surface what you deal with. We love you ❤
Thank you Em. Love you back.
Happy belated birthday!
Blue and grey describes it perfectly, I'd like to hear that song, gonna search for it.
I'm sure you are not dissaponting anyone, you are very brave indeed and you are a beacon for many of us suffering from chronic illness. You've endured a lot, I'm rooting for you and I hope the migraines gets under control soon in real time.
Thank you! The song "Blue and Grey" by BTS is a beautiful song and is sung in Korean. You can find the English translation on line. :)
Thank you - your words are such encouragement. I don't see myself like that, but it feels good to know what I share is helpful. Takes a lot of perseverance for sure as I am guessing you may know. Rooting for you too!
I really feel for you l also suffer migraines with aura and the anxiety l feel on special occasions to be well is ridiculous considering l have no control over them. I just don’t want to disappoint others. We need to be kinder to ourselves. Hope the meds kick in soon. Happy birthday to you .
🎈🎉🎈🎂🎁
Soo good to see you Virginia! I hate you hae migraine with aura. Migraines are so rough. Its so hard to miss out on special occasions - as you say it creates so much pressure. We *do* need to be kinder to ourselves. I'm starting to work on that. Its hard though for sure. Thank you for the birthday wish!
You dont disappoint nobody sweety. As the people that matter all know you. All know nobody asks to get a chronic illness, disability and or trauma.
Happy belated birthday. 🎂🍀💐❤
My birthday is comming up next month.
Big hugs Marloes ❤
Thank you my friend. Your words hit the spot. I have your birthday on my calendar! The 14th of June, right? Do you have any plans? Hugs coming back your way.
@@IncredibleAnyway jes, June 14th indeed. And now i have looked back in owr privat conversations i have found your birthday to. 🎉 I just must have forgotten to write it on owr calander. 🧐
So i now wrote it down so i dont forget again. 😉
No nothing special planned for my b-day. The day after though is a brainact group meeting so well see if they remembered 😁.
Im voicemessege you back soon. ❤ Hugs Marloes
I dont know why your divorce video popped up in my feed this morning ❤ hope its nothing! I have been happily married for 40 yrs I am 59. I thought lets see how her life is now? I have been so sulky about the week of pouring rain. I start my days with gratitude but my garden calls & its floating away. I live in Ak and winter just ended. I have only been in the hospital 3x for the birth of my kids and litterally never get sick, not even the dreaded C. I find you incredibly string and upbeat, you have every right to have your days. I dont want to prey on your chronic medical challenges but it certainly is a reminder to be grateful❤❤❤
I'm so glad that you are here! Welcome! Thank you for commenting and sharing your experience. I have had a similar experience from watching someone I cared about go through hellish life circumstances. I knew someone who had a multi-viseral organ transplant and she went through hell. She appreciated *every single day* - the hard and the harder - and it deeply impacted me. She passed away a little over a year ago, but her life deeply impacted me and I think of her all the time. Her life reminds me of what I do have. There truly is so much to be grateful for- no matter what our circumstances are. I think it is normal and human to get annoyed and upset about things. Please don't be hard on yourself about yoru garden washing away! I would be frustrated too! You put in a lot of work in it, I imagine. Please don't be a stranger! I'm glad you are here. ❤️❤️❤️
100° in Tucson
Haha sometimes Siri makes what we’re saying completely different ❤😅
LOL it does. In my case, it is Google who doesn't hear me correctly hehe.
I get them terribly, I go to the VA they give me shots of B12 and Demerol, close the door and leave me for a few hours.. Please don't feel disappointed it's your day do what makes you feel comfortable and safe..
I hate that you get them terribly too. Do the shots at the VA help you? Thank you for your kindness.
Yes the shots help as long as I can go to sleep.. if I can't sleep it just gets worse..
HAPPY BELATED BIRTHDAY KELLY 🎈HPOE YOU HAD A GOOD DAY AND HOPE YOU ATE CAKE 🎂 ❤ 🤗 🙏
Thank you, Helen!
Woah that BTS song you read was beautiful 😍 7:49
I agree! :) Its called "Blue and Grey."So many songs have such profound lyrics. They go there with their lyrics and address depression ect. I find a lot of comfort in their music but also catharsis where I can just get my emotions out.
I think I seen you leaving the hospital last Tuesday, I could be wrong, but I'm pretty sure that was you and your doggo
Oh my gosh, please say hi if you see me again! I am there every week. How are you doing?
@IncredibleAnyway I'm there every other week!! I'm okay, haven't been on life support in almost TWO YEARS! That's a new record for me! 21 times on life support is more than enough lol. How're you?
I missed this reply! WOW! I'm so happy it has been two years! that is fabulous news. OMG one time would be more than enough - 21 times is hard to get my head around. You are such a warrior!!!