Hi 👋🏼 I know your feeling terrible but boy you cope well. I just cry. Your beautiful home looks so peaceful. It’s so hard to not let pain especially constant pain get you down. The vertigo on top of it is not pleasant. I wish I could come sit with you and your pups and enjoy that beautiful view. Your doing amazing and my hats off to you. Your a trooper
Crying is a great way to cope too. Crying really made me physically worse which is why I really tried not to. I hope you are able to somehow take in some of the peace through the video even though you aren't here. It is really hard not to let pain and symptoms get us down. I think I mentioned it in this video, but I really believe it is a balance of letting oursleves be upset and be frustrated by the reality of things because we are really suffering. And also make sure to appreciate and take in the positives that do exist. The positives don't eliminate the suffering or ignore it. Because pretending suffering doesn't exist isn't helpful either. I believe acknowledging both the suffering and the things that make life better helps me cope. Sending a hug your way!
It is like a roller coaster, hold tight in the drops and enjoy the views as much as you can. I hope the next rehab session goes better. You are very strong and brave as well, go for it!
I know you’re probably sick of me saying it Kelly but please look into the medical medium. Listen to a few of his podcasts that resonate with you or watch some of his CZcams videos or better still get one of his 8 books. I really hope you look into it properly with an open mind ❤
It means so much that you care about me enough to recommend something you think will help me. Thank you! I looked into the medial medium when you suggested it before. He wasn't for me, but if it helps others, that is wonderful.
Are you asking about Migraine treatment? I am no longer on Ajovy for migraine prevention. I'm on a medication in the same class as Ajovy - the med is called Vyepti. It is a CGRP inhibitor, but it is administered via IV rather than injection. Happy to answer any questions you have!
@@IncredibleAnyway hi there. Yes I’ve heard of it but no idea what it is. I’ve had lots given through the drip but nothing really works. It’s very frustrating. Then I watch your videos and you cope so well. Your going through so much . Your mum and dad doing well I hope. ❤️
@chloewolf9201 Vyepti is similar to Ajovy because it is in the same class of medication called CGRP inhibitors. There are only 4 CGRP inhibitors: Aimovig, Ajovy, Emgality and Vyepti. I’d never had IV meds work for me either. If I have a CGRP inhibitor in my system, they are more likely to help a little. But otherwise they don’t . My heart really goes out to you. Are taking Ajovy? How are you doing? I’ve had 18.5 years to learn how to cope with this stuff. I didn’t always know how to cope. And I didn’t always cope well. It was trial and error to figure out what serves me best. I still don’t make the best choices for myself, but I’m trying. That is all we can do is try. Be gentle with yourself. Living with Migraines and any chronic illness, chronic pain is really really tough. Sending a hug your way. My parents are doing well- thank you for asking! 😊❤️
@@IncredibleAnyway hello. I’m happy to see your getting better. It’s been a long haul for you. Yes we all have our own ways of coping I guess. Apart from migraines I’ve got chronic neck and back pain. Drs tend to ignore this. However I’ve just found a great caring lady dr. So I will see how I go. The ajovy is ok. It’s a few side effects. Feeling very tired when I’m already tired lol . Stretchy. A bit out of it. I’m not sure if it’s the ajovy or just my anxiety or a bit of everything. I’m getting on a little now so bones and muscles ache more. I’m aware I need to walk more , however it’s easier said than done. I’m pretty sure they have given me every medication that can be given IV . Nothing worked. Dexamethazone helped the headache a little but my heart rate was through the rough and I couldn’t sleep at all. So they won’t give me that again . I don’t want it. I get physio for vertigo and I HATE IT. It’s aweful and I feel sick. I thought this age in my life I’d travel a little and enjoy life a lot more yet it’s not meant to be. I try to do as much as I can when it can. I love the beach and my daughter takes me as much as she can . She’s a treasure. You have had many years dealing with this crippling disease. I’m so sorry. I honestly hope with more time you get better and better. Your still young . I’m happy your mum and dad are doing well .❤️
How wonderful your daughter takes you to the beach! That sounds so nice. The beach is life-giving for me, but I haven't been in 10 years. My heart goes out to you that you have so much going on. I hope this new doctor is more responsive to you and the complaints you hve. Physio for vertigo is horrible, I hated it too. I completely understand. It made me feel sick too. Way to go for doing it. I hate you aren't able to travel and enjoy life more than you are. Chronic illness is so hard because we have to grieve hte loss of what we thought would be. I've had to grieve that I couldn't have children and that I lost my career, so I understand the loss of beign unable to do what you want, hoped and expected! I see you! You're not alone.
Hi 👋🏼 I know your feeling terrible but boy you cope well. I just cry. Your beautiful home looks so peaceful. It’s so hard to not let pain especially constant pain get you down. The vertigo on top of it is not pleasant. I wish I could come sit with you and your pups and enjoy that beautiful view. Your doing amazing and my hats off to you. Your a trooper
Crying is a great way to cope too. Crying really made me physically worse which is why I really tried not to. I hope you are able to somehow take in some of the peace through the video even though you aren't here. It is really hard not to let pain and symptoms get us down. I think I mentioned it in this video, but I really believe it is a balance of letting oursleves be upset and be frustrated by the reality of things because we are really suffering. And also make sure to appreciate and take in the positives that do exist. The positives don't eliminate the suffering or ignore it. Because pretending suffering doesn't exist isn't helpful either. I believe acknowledging both the suffering and the things that make life better helps me cope. Sending a hug your way!
Hi just want to say you’re doing amazing
Thank you my friend!
It is like a roller coaster, hold tight in the drops and enjoy the views as much as you can.
I hope the next rehab session goes better. You are very strong and brave as well, go for it!
I completely agree - absolutely like a roller coaster! Rooting for you too!
❤❤❤
I know you’re probably sick of me saying it Kelly but please look into the medical medium. Listen to a few of his podcasts that resonate with you or watch some of his CZcams videos or better still get one of his 8 books. I really hope you look into it properly with an open mind ❤
It means so much that you care about me enough to recommend something you think will help me. Thank you! I looked into the medial medium when you suggested it before. He wasn't for me, but if it helps others, that is wonderful.
If you don’t mind me asking what pain relief do you use? Are you still using ajovy? . ❤
Are you asking about Migraine treatment? I am no longer on Ajovy for migraine prevention. I'm on a medication in the same class as Ajovy - the med is called Vyepti. It is a CGRP inhibitor, but it is administered via IV rather than injection. Happy to answer any questions you have!
@@IncredibleAnyway hi there. Yes I’ve heard of it but no idea what it is. I’ve had lots given through the drip but nothing really works. It’s very frustrating. Then I watch your videos and you cope so well. Your going through so much . Your mum and dad doing well I hope. ❤️
@chloewolf9201 Vyepti is similar to Ajovy because it is in the same class of medication called CGRP inhibitors. There are only 4 CGRP inhibitors: Aimovig, Ajovy, Emgality and Vyepti. I’d never had IV meds work for me either. If I have a CGRP inhibitor in my system, they are more likely to help a little. But otherwise they don’t . My heart really goes out to you. Are taking Ajovy? How are you doing?
I’ve had 18.5 years to learn how to cope with this stuff. I didn’t always know how to cope. And I didn’t always cope well. It was trial and error to figure out what serves me best. I still don’t make the best choices for myself, but I’m trying. That is all we can do is try. Be gentle with yourself. Living with Migraines and any chronic illness, chronic pain is really really tough. Sending a hug your way.
My parents are doing well- thank you for asking! 😊❤️
@@IncredibleAnyway hello. I’m happy to see your getting better. It’s been a long haul for you. Yes we all have our own ways of coping I guess. Apart from migraines I’ve got chronic neck and back pain. Drs tend to ignore this. However I’ve just found a great caring lady dr. So I will see how I go. The ajovy is ok. It’s a few side effects. Feeling very tired when I’m already tired lol . Stretchy. A bit out of it. I’m not sure if it’s the ajovy or just my anxiety or a bit of everything. I’m getting on a little now so bones and muscles ache more. I’m aware I need to walk more , however it’s easier said than done. I’m pretty sure they have given me every medication that can be given IV . Nothing worked. Dexamethazone helped the headache a little but my heart rate was through the rough and I couldn’t sleep at all. So they won’t give me that again . I don’t want it. I get physio for vertigo and I HATE IT. It’s aweful and I feel sick. I thought this age in my life I’d travel a little and enjoy life a lot more yet it’s not meant to be. I try to do as much as I can when it can. I love the beach and my daughter takes me as much as she can . She’s a treasure. You have had many years dealing with this crippling disease. I’m so sorry. I honestly hope with more time you get better and better. Your still young . I’m happy your mum and dad are doing well .❤️
How wonderful your daughter takes you to the beach! That sounds so nice. The beach is life-giving for me, but I haven't been in 10 years. My heart goes out to you that you have so much going on. I hope this new doctor is more responsive to you and the complaints you hve. Physio for vertigo is horrible, I hated it too. I completely understand. It made me feel sick too. Way to go for doing it.
I hate you aren't able to travel and enjoy life more than you are. Chronic illness is so hard because we have to grieve hte loss of what we thought would be. I've had to grieve that I couldn't have children and that I lost my career, so I understand the loss of beign unable to do what you want, hoped and expected! I see you! You're not alone.