I Have Turners Syndrome
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- čas přidán 9. 01. 2017
- I never dreamed I would tell anyone about my genetic disorder, let alone CZcams. I want you guys to know that you are marvelous and that you are made of the same stuff as stars. The universe has a place and a purpose for you always. You are never alone xx
👍 I also have TS but my story is a lot different to most... I had no idea until I was diagnosed at age 29. I was on the operating table having a c section when they noticed that one of my ovaries was totally empty and the other was 1/4 of the size it should have been. I guess that along with my short stature they knew and had me tested the next day. The doctors had no clue how I managed to conceive let alone naturally. I had irregular periods my entire life but I fell pregnant 3 months after I got married. We talked about the idea of trying one night and little did we know I was literally about 3 weeks pregnant already :-) She is now 5 and a half and started prep this year! Glad to have heard some of your story :-)
Cheeky Middleton Hi, that’s good to hear... it gives me hope. I just got diagnosed with 10% of the 45x mosaism. Do you know if you can give that to your child?
Can you please explain to me what you mean by one of your ovaries was totally empty?
I fit in this category to. I'm 47 and had genetic testing done. Doctors suspect I have Turners. I had normal puberty and have one child. Women who fit in this category typically have mosaic Turners. That means we have have some normal XX chromosones in some of our cells instead of all of them. I also feel sad my mother didnt notice anything was wrong with me and didnt get me help in a timely fashion. I am really wrestling with this right now as opposed to the actual diagnosis...
@@alejandrareyes8694 I did some reading for you and Turners occurs as a random event in cell division. Typically it isnt inherited but if a mother has part of her X chromosone missing, that can be passed down to her offspring. Still it is rare. Please take this with a grain of salt. I got the information off google and their is a lot of misinformation out there, so a doctor who specializes in genetic testing can better tell you. I dont want to give the wrong information...
@@mimiwill5618 mosaic turner, that's interesting
Hello! I’m Audrey and I have TS too (Classic Type), and I was diagnosed at 5. I see my endocrinologists every 6 months and have been on growth hormones since I was 6 (I’m 14 now) and I’m 4’ 9”. I feel very out of place at high school (Class of 2023) and feel like I stand out from the crowd 24/7. I have been on estrogen for about a year now and am very insecure about my lack of development and not being as developed as my peirs. My doctors have diagnosed me with early ovarian failure at 9 years old and it is just hitting me that I most likely won’t be able to have my own kids, I want kids and really want to have kids of my own. I want to get tested in a few years to see if I can freeze my eggs but I don’t think that I can. love this video and the whole turners community makes me feel less alone. I don’t have many of the symptoms of turners, except for the ovaries, height, and I have a slightly enlarged Aorta. Overall though I am pretty healthy, and am thankful that I have such wonderful doctors and my family is always supportive of me and helps me with whatever I need. I want to become an endocrinologist when I grow up to help more people with my condition and study it more because I think it’s fascinating, and I also want to dissolve some of the stigma for new moms that are expecting a baby with turners. Anyways if you’ve read this far leave a 🦋 in the comments and feel free to share your stories as well because I love reading them ❤️❤️❤️
God bless u
Wow. You’re so brave. I miscarried a baby girl with Turners syndrome. You help me envision what she might have been like. So beautiful. Lots of love to you! ❣️
I just had a daughter 6 months ago and she was diagnosed with mosaic TS when I was 12 weeks pregnant, I have so many worries for my daughter and watching this videos really helped me look on the brighter side!
I have Turners too. I was diagnosed before I was born. I had to take the shot everyday except Saturday. I also toke thyroid pills and a estrogen patch. You are very brave!😁💖
U got ur ovaries removed too, I also have one and I found out the hard way my ovaries had to be removed ( I got a malignant tumor that ppl with turners can get)
If I may borrow your words: "You are beautiful and amazing just as you are"...and ...brave, kind, poised, and incredibly thoughtful to share this with others who need to hear your words of wisdom spoken so beautifully. The best to you on your journey, mickiethepoet
I am so proud of you, thank you for spreading awareness for T.S, you are so brave!!!
Thank you gorgeous :)
You're beautiful on the inside and outside! Thank you for encouraging positivity!
I see such a bright light within you. Keep your head up, radiant soul. Your purpose here is infinite, & so very important. Sending good energy your way 🕉☮️☪️
Hi! I have a ts too, I have to take shots every nigth too
It is so lovely that you have done this video! Having turners myself, I often feel alone and as I don't know anyone else who has it I often feel like I'm the only one. Thank you xx
TheMugglechick I'm so glad it helped you ❤ always here to talk if you ever need it
I love this! It can be so hard to keep going sometimes as somebody who is seen as abnormal by society, but it is possible. You’re living proof of that, and so am I. You’re amazing! :-)
Congratulations Micky for being you.
You'll have a wonderful live and you deserve it.
Very, very proud of you :D. Stay strong. You are absolutely brilliant.
As a recent graduated doctor, you helped me to understand better what Turner kids got to go through. Lotta information that I unfortunately did not learn in medical school. We go so fast from one genetic syndrome to the other that we do not understand what's real like. Personally, i've never met a patient with Turner's so it's really hard to have a grasp of it. Thanks for sharing. btw, you published this vid one day after my anniversary. It should not matter, it's 2020 after all, but you know, i couldn't help thinking... cheers from Brazil.
Hey!!! You are a very strong and beautiful girl.. I was diagnosed with TS when I was almost 13 and my life has been changed ever since. So glad to know you
I was born with Turner's Syndrome too, and it took me years to come to terms with it. Like you, I wanted to believe I was normal, but now I ask myself what that word really means. My attitude about the situation has changed through the years, and now instead of thinking of my condition as a stumbling block I use it as a reminder to be thankful that I'm unique, because let's face it. If everyone were "normal," the world would be pretty boring. You are a very strong and beautiful person. Keep doing you, and don't let anything anyone says about you or the way they act toward you keep you from enjoying life.
I have Turner syndrome too. I was diagnosed when I was 12. I never met anyone in life who has Turners just a few on line. we have to keep in touch and support each other. Please fee free to find me on FB if you ever want to talk
Delilah Ginnetti
Delilah Ginnetti I will definitely add you 😊
sounds good be nice to get to know each other
I do too we have so much love in us i would love to walk to either of you 💗
Delilah Ginnetti meee to I have mosque
Makes me fell better watching this video because a lot of what you said I related to and I don’t feel like I’m the only one with TS ❤️
I have TS as well. I was diagnosed anywhere from 3-6 months old. They noticed that I wasn't growing "as fast" and one of the nurses actually ended up calling health and welfare on my mom cause they thought she wasn't feeling me.. sure enough they did a couple test and bam.. TS. I am 17 and 4'5. Taking estrogen and growth hormone everyday. I get bullied EVERYDAY at school because of my height. And because of my height (I'm pretty sure) I've never had a boyfriend. That adds onto the bullying. I get made fun of because I've never had a boyfriend. These 2 things have been the main source of my self confidence issues. Also because us TS girls can't have kids I want to be A Neonatal Nuse. I love kids and it breaks my heart that I most likely won't be able to have my own. I'm guessing your a little older than me (first video of yours I have watched) and I've never seen anyone my age talk about their story so if anyone my age wants to share that would be greatly needed to help me realize I'm not alone
You'll probably meet a tall guy. Guys over 6'4" often like tiny women. I've never had the guys to ask if it hurts their necks when they kiss :p
I are amazing 😋
Hi, im so touched by your story and honesty, you are a very brave and beautiful person and im so happy that you found yourself and dont feel scared or embarrassed any longer!!! Conquer the world, not many people with a "syndrome" can be as honest and tell the world how u really felt all those years!!!,be proud of yourself and achieve all your goals!!! Thankyou for sharing your truth and ur story, all the best for you from my heart!!! 😍😍😍
My baby just got diagnosed with TS and I can’t wait to meet her!!! I want you to know that you are so unique and special to God. Your identity is defined by his love and nobody and nothing else!!! Life is short and eternity is long. I am really hoping that you can find some people of faith who are accepting and loving. It is truly a miracle that you are alive. You defied all the odds. Not many babies with TS make it, only 2%!! You are that 2%. You have a powerful calling and purpose in your life and I hope you did super deep in not only society and social Justice and the trans community trends, but into the words of God. He is so in love with you. He is in LOVE with you. And one day there will be a wedding!!!
Your so Incredible Kenzie just finished watching this video about to watch the next one!
Please don't take this wrong and I hope it doesn't seem disrespectful, but I have a genuine question. I also have Turners and I don't understand why you consider yourself intersex. Never have I questioned my gender. Typically that term is used to refer to individuals that are born anatomically with both or undetermined genitalia. Genetically girls with Turners are female, simply part or all the 2nd sex chromosome is missing. If you don't identify as female that is one thing, but I don't understand how it relates to Turners. Being a woman is more than being able to have a biological child. However thank you for spreading the word about TS and I wish you all the best!
I agree with you , I have studied genetics, Turner syndrome is not an intersex condition at all .
Interesting point. I went and had a look. Although wikipedia can be wrong, it says: "Intersex people possess any of several variations in sex characteristics including chromosomes, gonads, sex hormones, or genitals". So that would make Turner very much intersex.
mrspaisley1 hi guys!! Intersex can mean different genitalia but also it can mean chromosomes that do not fit the typical male or female sex. It is totally dependent on whatever you are comfortable calling yourself
+suhakka not really , inter means in between , so in between sexes . So intersex is the politically correct term to what was ( and still is ) called hermaphroditism and pseudohermaphroditism . There are several syndrome where that can cause pseudohermaphroditism and those are intersex conditions . Turner syndrome is not in between the 2 sexes cause has nothing of the opposite sex. No Y chromosome , no trsticulat tissue , no ambiguous genitalia . Turner syndrome is not an intersex condition . Remember , inter means between , and Turner is not between the 2 sexes .
mrspaisley1 not fitting into the genders girl and boy is non binary, not necessarily intersex. Not 100% sure if TS effects this but from my research it does not.
Love your video, and relate to your story 100%. I have TS too! I went though a phase of body resentment. I would compare my body to other women's. This weird middle ground of never felling like a women or a man. I have only recently come out as intersex, pansexual and non-binary. No longer living as of a cis, straight, women was the best thing in my life!
You are so sweet and wise, I love this video and hope you are well
My granddaughter looks like a short, chubby, beautiful 28 year old. I love the hell out of her! I would die for her! I always tell her just to be who she is!
She is sad she doesn’t have the choice to have kids and that’s the issue! CHOICE
I told her in this crazy world we aren’t doing any child a favor being born in the 20 th century! This place is way over populated! The future is kind of scary
Global warming etc.
I’m old- when you’re old everything isn’t so emotional.
You are beautiful! Be whom ever you want to be! Take a few deep breaths.
Life is soo short, it’s over before you realize it. Enjoy every day!
Love, health and happiness to you always👍🏻🌻🤗💕💕💕
Normal is boring! You go girl! Thank you so much for the video, very helpful for my exam :)
suhakka happy to help 😊
Hey there! I'm Kate, and I have TS as well. Yours is the first video I've seen where someone with Turner's has used the word intersex to describe themself, and I just found that really interesting. I don't know if I'd call myself intersex- I've always felt female, but still different from other women at the same time. So I think I understand why 'intersex' fits for you. There is a whole gender spectrum, and all of us with Turner syndrome fit on there somewhere I think. And we shouldn't have to justify how we identify ourselves- there's no 'right' or 'wrong' answer.
I don't have TS but I do have a TBI (Traumatic Brain Injury) and someone who helped in my old day program room had TS. She was 4ft. 8in. tall. You are right, she and you are both very beautiful people. I also wrote a speech and did a presentation on Turner Syndrome, in light of her. - BEST WISHES TO YOU!
I just watched your video and started crying cause your words are exactly how i feel with living with Turners syndrome😭😭 the thing about not fitting in with either being a girl or boy and just being in between was my biggest struggle in childhood and it took to i was 25 to accept this and i also recented everything about Turners and it has completly ruined my life not taking care of the issuses that comes with it. Diabetes, hypotyreosis for a start but also my hearing problem, i use hearing aids. Im also 5.1 and i am happy with that though! But im not going to be able to have biological kids but i also have decided not to have kids at all and i think that is the best choice for me. Stay strong my turner sister! Or as we say in Sweden, butterfly girls 🦋🦋 much love to you ❤️
There's literally no reason to feel insecure. I'm not saying this to disregard your feelings, but because any kind of syndrome is nothing that should be ashamed of, just because of the society. Of course, some people struggle less than others, but even if it puts us down sometimes, it's how we stand up afterwards. From the first few minutes of the video I knew your soul was so pure and beautiful. I'm always very glad to listen to people's stories regarding their struggles and secrets in life, because it truly shows how beautifully diverse the world we live in is.
ts has given me so many amazing people in my life and makes me me :) awesome video thank you
Also to add to my comment, you are a beautiful person inside and out❤
Absolutely gorgeous. ~☆~
You are beautiful because you are you! You are beautiful just the way you are!
You are such a strong person.
So glad to know you
I have tsm so it's mosaic and I really needed support so I found ur video and u really helped me so thank you !!!!!
❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
So proud of you
im so proud of you
Thank you
You are a beautiful human being.........believe in yourself : )
TS girl here. Thanks for sharing your story 💕
God Bless You Dear ! Life is Beautiful .. Dont Worry :-)
Hi I have turners too! I was diagnosed at 11 years and I am 14 now. I sometimes secretly don’t take my pills cuz I hate puberty. I am proud to be a 14 year old girl that is definetly not far in that. Thanks for the video, youre amazing!
Please take your pills
When you look at how life proceeds, it is amazing that as many biological entities approximate the template as do. Some folks drift further from the default than others. You are as you are supposed to be, you just have a different blueprint. Chaos is the real default of the universe. Finding the balance in chaos is the challenge. Sounds trite but just be the best you that you can be.
proud of you ❤
Thanks love
Your beautifle and I wouldn't know you had Turners syndrome if you hadn't mentioned it. ❤❤ I just had katotyping done and a few weeks away from finding out if I have Turners. I have many signs and 2 typed pages of health problems that is probably a result of Turners. I'm also only 4.10. I was able to have a child naturally so likely I have mosaic Turner's. Great video and happy holidays! (December 20, 2019)
This is a awesome video I have Turners syndrome as will and sometimes I don’t think about and then sometimes it’s hard
First of all;great video, you are so so brave ❤️
Second of all; My sister (10 years old) just got tested for a few things because she is really short. One of these things, is turners syndrome. I am really worried for her, and I have been googling for it a lot. I have noticed a few things in the way she looks that apparently are typical for people with turners and I don't think anyone else in my family knows about these. I don't want to tell them either, because I don't want to scare them since we haven't even gotten the test results back. But I would love it if someone with any knowledge about turners would tell me if she might have turners if she has some extra skin around her eyes and that her nails grow upwards?
Olivia hi Olivia I'm glad the video helped 💜 I would love to help you. So if you need support for your sister email me at mackenzie.gossett@comcast.net.
I have turners as well. My height actualy is 4'6 so im like a kid but im learning to get over it and be positive thanks for the video it really made me feel comfortable for who i am .
Snowflakes are the most unique and beautiful things in the world, so I am glad you embrace that and turn an insult on its head like that. You are very brave and you really helped me by sharing your story. My daughter was recently diagnosed with Turner, and I honestly wracked my brain thinking what her life will be like later on. Your video really answered some questions for me, and I hope that she has high self-esteem like you, but I understand there will be struggles. All the women in our family are so tall. I am 6'1". My other daughter is 16, and she is 5'11" already. I want my youngest, who has Turner, to know that she is beautiful and accepted, and I hope no one gives her a hard time and that she adjusts to the changes okay. If you have advice for a parent and how I should approach things will her, I am very open to that. She is 9 years old currently. Do you have any advice for talking about the infertility? On one hand, I think knowing early can help her adjust, then again I want her to be a kid and not think and worry about that, but then again, she may feel worse to learn it as a teenager. I am very worried for her, but coming to CZcams and seeing vidoes like yours gives me hope. If you have information on innersex, videos or tumblr pages or anything, that you can link to that would help me out a lot. Do you have any companion diseases or problems? My daughter also has Celiac disease and hyperthyroidism.
Hi!! I'm so glad that my video can be a good resource for you!! I will help in anyway that I can! I was told about my infertility at a fairly young age, but everyone deals with the pain surrounding learning that differently. I think it actually helped me to learn earlier on so that I could learn to accept the idea of adopting and feel comfortable with it! I also have hypothyroidism and had to have kidney surgery at a year and a half old. And I also have high blood pressure. The greatest resource I've found is the Turners syndrome society of the US: www.turnersyndrome.org/
Also my favorite CZcamsrs for gender identity issues/intersex issues are:
Ash Hardell
Pidgeon
Tyler Oakley
Sam Collins
Kovu
Ty! I registered at TurnerSyndrome.org as soon as we were diagnosed.
when I was 10. I was taller than all the other kids. I hated my body. I already was getting a large chest. Big butt. Started my menstuation. I was only 10. I didn't feel like I fit in anywhere. Childhood is so difficult. It's horrible to not like yourself. In my 20's I became more accepting of me. I still feel different. But I am happy now. It only took me about 40 years to reach this point. And I am a Mom of 7 girls all adults now. They can tell you almost the same horrors of childhood. All of them are happy now too. You feel exactly the way all of us have felt. Your human. We all survived it. High five!
Lots of love from here 💗... The world's happy to have you!
Omg....I have Turner's as well! Found out at 14. Totally can relate to quite a bit of what ur saying. I don't classify myself as intersex but I guess I get where you're coming from
You are unique god bless you.....
aww so proud of u
Thank you so much
You are a lovely person! To me you present as female, but you don’t feel like it. So just be who you are. Life goes fast and everyone has some sort of issue with themselves. Enjoy your life and move on with your goals and interests. Walk away from anyone who does not support you.
do you have cardiac comorbidities like bicuspid aortic valve or coarctation?
I also have ts i found out when i was 17
I relate to your story my whloe life i have alway felt diffrent i was always questioned about my hight i was told my hight was not normal by other kid.
Even to this day i still have a hard time excepting myself sometime i feel very empty
At 17 i went from being a normal teenage to have to take growth hormone estrogen replacenet patches and tablets to get a peried
It hard being diffrent but you learn to live with it i have a lot of the same feelings as you do about sexuality and i also found out that i am asexual i have never felt any attraction for males or female sometime i felt like i dont no where i fit as a person.
Thank you so much for shareing your story to help other learn that they are not alone so thank you
Mother here with a month old new born with turner syndrome any advice to help me with my fears on her having turner I didn't know she had it till after I had her any advice helps I want to know and help be the backbone and support.
I wasnt diagnosed until in my 40s and that was only found when going through other health issue.
I am a Terner patients and 😢 I have a webbed neck l need to surgery plz give information please🙏🙏🙏
Watching in the UK.❤
i have ts too. but they diagnose it 3weeks ago.. and they cant prescribe me growth hormone as i really wanted coz my bones way to grow is closed coz of my age im 26 yrs old and im only 4'5 to 4'7 iguess? thanks for the video it really works...
Thanku mam it is very helpful god bless u thanku
It’s a weird self reflection! You reflect on the way you are developing and making sure you are developing like you should be that you are hitting the development markers but then compare yourself as a teen as a teen would with stuffing your bra with tissues to make you bigger. I get the grey world !
U r too beautiful my dear sister❤
When you were a kid, did you think you had dwarfism, before you were diagnosed with TS ?
Hi I have turner's syndrome too and I was diagnosed at 10 years old rn I am 14 years old so I was diagnosed 4 years ago
OMG sweetie you are awesome. You just keep on doing you.
Tubby Tilly 😍😍 thank you ❤
You are beautiful and Jesus Loves you!!!!
I have Turners syndrome i was diagnosed at 2 weeks actually and i also took growth hormone every night (I never liked it though) and i have met and is friends with one person who also has TS
how old are you?
I also was diagnosed with Turner syndrome at 5
God said were wonderfully made and the he knew our substance before our bodies how awesome ..so he knew all the preceived " imperfections " that i would have to cause me to depend on him to help me thru my journey ..i embrace me and my" program " he created in me..i am wonderful!
I was diagnost at the age of 12 and got ingections at 13 I’m now 14 and I’m 4,6 and I’m nervous because my doctor said it’s my last year to take my ingections
You are so articulate on this subject. I understand nonbinary a bit more now too.
My 5 year old has TS as well. I got pregnant 3 years after she was born(miscarried), but that baby was missing a chromosome. Its so crazy. I also didn't know how many girls have this because I've never heard of it till they told me my daughter has it.
1 in 1500-2000
Im late, but i struggle with turners syndrome as well. My ring finger is shorter on both hands and it embarrasses me, but now that I know what it stems from i feel a lot more comfortable in my own skin. Any of you can add me on facebook if you need a friend, Corrine Williamson. Same profile pic as my yt
I found out about my Turner syndrome at the age of 11 . I am now 14. I’m short and have difficulty with puberty. I take a shot every night in the leg to help me grow taller.
I study cytogenetics IAM preparing my master year final essay on it so thank you
more research to be done
YOU are NORMAL. You are among the normal variation, that NATURE can create, you are uniq, and I think you are VERY attractiv , and you can be both , you can be both , and even if you cant concive natrual , you can ADOPT, I grew Up as a fosterchild and was adopted as grown up, but I NEVER LOVED My fostermother less than my biological birthmother and my fosternmother didnt love me less, because I wasent her biological Child( didnt mean we didnt have problems though).
You think you have a problem, yeh you need treatment, but thats not importent , my niece needs treatment ( she got diabetes) thats also tuff , but it doesnt matter, you two just need a bit of support to live your life, and thats OKEY. It is.
I was diagnosed at 7
I am 37 and diagnosed with TS birth. 2% strong 😉xoxo
I have TS too❤
I have turners syndrome I never went through puberty I don't have a period also
I have ts too
I don't have Turner syndrome but I'd only about five feet and a quarter inch so you're taller than me so it's not too short.
I have Turner Syndrome too
Hi I have Turner syndrome too
I'm another turners syndrome non-binary kid I was diagnosed when I was 12 and funny story I met my best friend like a year before I was diagnosed and I brought up to her that I was being tested for this thing called turners syndrome and she said she had that and that when her mom first met me she thought I had it but didn't say anything at the time but low and behold I do have it, I like to blame my shortness on ts but I really know it's from my mom who's only 5'1
Finn the Ace so amazing to hear you story!!! Would you like to be friends? I don’t really have any other turners people to talk to. Also I’m on the ace spectrum as well.
mickiethepoet of course I'll be friends with you
mickiethepoet I just followed your instagram
Hey I have also Turner syndrome and unfortunately I started my hormones cure very very late
Hey talking about ts am beginning to think that I have it because of this shortness and short neck yet am 29
I have ts to but I feel am a normal
Im 12 and I have to take estrogen because I have turners
I'm Alexis, I have mosaic turners syndrome. I always got bullied for my height. taking my growth shots was always the worst part of the night. I'm 18 and at a final height of 4' 9". I kind of get the hating your body when you find out you can't have kids. I'm grateful that I'm a loner and don't really plan on having/wanting kids.
Hey! I believe that God made you who you are, and that's you! You are not a special snowflake, as the conservatives say, you are special the way you are!
,,The universe has a place and purpose for you always.,, -Mickiethepoet
,,I dont like masculine women any more than efeminated mens,but finally everybody will find its place into the society,,-Napoleon Bonaparte (Btw,Napoleon was an XX/XY mosaic- a chimera like me and Alexander the great was also a chimera XX/XY but leonardo da vinci was the smartest chimera with XY/XY) Among all the chromosomal soo called ,,disorders,, i think that turner syndrome has the most pleasant individuals.
they said its possible to have baby in a healthy egg cell donor? why dont u try?
Where is my damn comment
intersex and non binary are two different things. but go you for finding your truth.
I thought boys could get it too.
Social justice is everything and I am so proud of you!