An Interview with Josh Griffin: His Experience with 47,XXY
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- čas přidán 30. 07. 2017
- An interview with conference attendee Josh Griffin by Carrie Ribey from the 2013 AXYS conference in Denver, CO.
Josh Griffin talks about his path to self discovery and experience at the conference.
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I found out I was xxy about 17 Year’s ago, felt different as a kid, but played sports in high school,football. Found out about this issue hen the wife and couldn’t conceive a child. Then found out and changed everything. Wife and I split, but I can understand now, she had 2 others kids after, which is awesome for her. Myself I didn’t want kids ,after I found out, hated the world, but eventually got over it. Now I’m 43, and love life. These days I’ve researched this issue but I guess it is what it is.... just live you’re life to the fullest and be happy, it’s all that matters.
Dude, life sucks even if I am XY.
life isn't good its cruel and unfair , instead of loving life learn to love yourself and be happy with what you got once you achieve that you can do wonders
You’re positive attitude is awesome.
@
Richard Brown how strange, the same story here!
Easier said than done when you have mothafuckas staring at you all the time.
This video had me in tears at the end. I am pregnant with my miracle baby. I was told I could not have children over 12 years ago and 2 days before my 43rd birthday I found out I was pregnant. Just started the second trimester. My obgyn suggested doing genetics testing through blood work because of my age and not being able to have children. I did the genetics blood testing and the test said my child has a high risk of having klinfilter syndrome xxy.
I was told abortion is an option but I was also told these genetic blood test are not 100% accurate. I was offered more invasive test but they could lead to miscarriage.
My husband and I talked and did some research. I have been watching videos of people living with klinefilter syndrome and learning so much. Being I feel this is my miracle baby I did not feel abortion was an option for me. I have always wanted to be a mother and it was so hard for me to accept the news I would never be one when I was told I could not have children.
My husband and I are going to test our sons blood to get a more accurate result and go from there. Being that the genetics testing is not 100% of a diagnosis we do not know for sure if our son has klinefilter syndrome but we do know with having the higher risk we are learning and preparing our selves! At the end of this video is when my tears fell. I want to be those parents that are so helpful and supportive for my son! We have narrowed it down to two names for our little miracle boy! Ethan or Rayden! Thank you for sharing what your life has been like living with klinefilter syndrome. You are making a difference in this world! I love that you found a career that you love! God bless! 🥰
My husband has KS, I wouldn't chang him for anything. Thanks for this video !
There are very few ladies like you in the World 👍👍
Hi, I suspect that I have it too and I feel depressed. Can I live normally with it?
@@AliSalman-en4uz Of course... you can start TRT if your testosterone is low
@@rz5b1qszkdf44 Can it reduce hip size not bone i mean mass or fat whatever it is
@@BhaveshHR08 TRT will shrink all the fat at your hips
He sounds like a really nice person.
Wow. I started going to therapy 15, through to 45. Diagnosed with all the adhd, depression, ear problems, all the same. I’m 6ft 2, tallest in the family etc. Hate sports. Anyway, im 47, and diagnosed 2 years ago!
This guy is great. I enjoyed every word he said. What a GREAT speaker!
Great Interview. I found out about my 47XXY at 50 years old ! There was no excuse for Doctors to not find out about my condition as I was an Airline Pilot and had to get medicals for close to 30 years. I will have yet to meet anyone else in person like me in this condition I have.
I'm self-diagnosed at age 35. No doctor ever told me I have the disease despite having the stereotypical 47XXY body.
Do u have kids??
@@WebVManReturns maybe you are only suffering from low T like most of the men these days? You will never know without doing a karyotype.
@Graeme Tucker they are interested in earning a lot of money
@Graeme Tucker you got it wrong. DOCTORS are interested in making money. Thats the thing they care the most about.
Found out at age 66. It explained my whole life in this diagnosis, but didn't fix it. Still have untreated ADHD. But looking back over past medical records I found one physical done in the 1990's where my testosterone levels were at 120 ng/dl. Doctor never said anything about it! Prior to being diagnosed by my current endocrinologist I had a physical done by my GP. Testosterones was 80 ng/dl!! He said that was normal for my age as I should "expect to be slowing down as I get older". I knew enough at that point to seek out an endo to get it fixed. My most recent labs tell me I'm at 700. Never went back to that GP! Actually am using my endo as my personal doctor as she is very thorough.
I and so many other have similar stories of incompetency from doctors. It is the norm, not the exception. Standard care should be run through algorithms and actuaries. A simple system that uses these would have easily caught this abnormality and indicated the appropriate next step.
When he talked about having an invisible disability on a job, I could really relate. You're right. Employers really don't give a damn. I don't have kleinfelters, but autism and was fired from jobs (crappy ones, so no love lost) and it can really suck before you get a diagnosis and understand why. I'm glad you finally got employment that suited you. I'm retired and finally "working" at the thing I was meant to do and don't have to deal with their shit anymore.
Why should employers give a damn? Employers need a job done. You can either do it or you can’t. If you can’t, you’re a burden.
@@Woodman-Spare-that-tree I never said they "should" give a damn, but when you're out there killing yourself at some low paying crappy job and they still say you aren't good enough, it can build up resentment inside of you. It worked out for my benefit, though. From this (and other bad experiences) I've been able to put together a series of satirical comix depicting the horrors of sweatshop life. See, I do have talent. I'm just not too good at shoving things into boxes at breakneck speed.
You never had a diagnosis you got a label.
@@ashtongrist Try living with it.
Thanks so much for this! You're an inspiration.
Learning from our ups and downs and see the joy that comes is amazing. Great video!
Great video, well spoken, I agree ...anyone who has an obstacle is greatly served with parents or a network of support in place
I was told I had Klinefelter’s syndrome after I had testicular cancer. Was married at the time but split as wife was an evil person saying I wasn’t a man anymore. I hate injections, so I have tried all the treatments but couldn’t get to grips with them so I have to have the injection every 12 weeks. I also have a few other health issues. Osteoporosis in the spine. Inflamed Spleen to date 28/9/23 it’s 20cm a normal size spleen is 13cm. It would be great to have a support group in the Uk 🇬🇧.
Thank you sharing your story, truly helped me understand the complexity of this syndrome.
Your new job is so great. You receive a lot of love from people with disabilities.
This person has similar physical characteristics as my brother. It's awesome to see how this syndrome varies from person to person.
@Graeme Tucker NIH article describes KS as having "extreme heterogeneity in its clinical and genetic presentation" I never knew it was so wildly variable with many interindividual differences. The teeth thing he mentions in this video was news to me! I've been lucky in that department but the strange aches I related to!
I'm happy I found this video, it's helping to educate the ones around me since I'm also xxy klinefelter. I hope one day I can find the help I need. Thank you for sharing
Found out I was xxy at 16 now I am 53. So much more info out there.
How many of you that have this condition feel lonely and been wondering for so many years wtf is wrong with my body and personality? Since a kid I knew I wasn't a normal male but finally at 41 years old I'm finding out the name of this syndrome. Wow lucky us with this syndrome are we supposed to feel special for having this?
I dont feel special at all. Just found out i got xxy. Im 32. Ive had it exactly as ur describing it. All the thinking whats wrong with my body and my personality
@@mido88881000 what symptoms did you have?
Same
You feel like a fucking loser with big tits and a light voice. People also tend to think you're queer.
It sucks
I have an invisible disability. I had a stroke and emergency brain surgery. Surviving is only part of it. My brain has a lot of damage. Left side on my focal lobe which is the area that affects memory, speech, problem solving. SOOOO I GET IT.
Why does this look like a police investigation?
Probably is
This guy is basically me. I reckon we’d get on like a house on fire. XXY are my people aha
You're almost peter griffin from family guy?
나는 47 xxy 입니다
그리고 무정자증 진단을 받았으며
포기하지않고 개인적으로 노력한바 시험관을 진행할 수 있게 되었습니다
하지만 쉽지 않았고 매우 적은양이였습니다
1마리.. 많게는 10마리
더 많게는 20만마리
이후 0마리.. 4회차
포기하지않고 계속 체크하며 기록하고 있고 나는 승리할것입니다
3개월이 지난 지금
다시 1마리가 나왔습니다!
I've had all kinds of problems in my life no doctors ever noticed. I was slow to speak, slow to walk, had a speech inpediment, starting feeling lethargic at age 17, started having balance issues at age 17, started having memory issues at 34, and now at age 35, started growing breasts, curvy hips, and a big bum. I'm pretty sure I have Asperger's Syndrome, too. I started researching 47,XXY online and apparently, my body is the exactly like someone with 47,XXY, only I have slightly more body hair. How on Earth did all my Pediatricians and adult doctors never realize I had an extra X Chromosome?
But did you get tested and are you diagnosed now?
Bro even I am xxy but can't get my diagnosis done as my fanancial condition doesn't permit. My life is a mess
@@ankurtiwari8820 how do you know you have it?
I have had memory issues too as long as I can remember. I can't tell you what happened 5 minutes ago yet I can recall in great detail things that happened when I was 6 years old. It's strange.
@@chastitywhiterose lack of testosterone only affects short term memory...
I haven’t been diagnosed yet but I’m very sure I have this as well. I’ve always wondered why I have this annoying fat on my chest. It’s so annoying. I also have a symptom where I can speak what I’m thinking a lot of the times. It’s so frustrating. I tend to have a short attention span. I have been working out for 5 years and have not been gaining size like my friends have. I have gotten stronger but not as fast as my friends do. Whenever I wear a shirt my fucking chest fat always sticks out. Makes me looked fatter then I actually am. Im actually not even “fat.” I’m skinny fat. I’m also clumsy and have below average hand eye coordination. I found out about this syndrome about a month ago in my biology class. My professor was describing this and I was like holy shit. I always new there was something add about me and my body. Now I know. God fucking damnit.
Same here but I have only wide hips and small testicles, I think I have this syndrome too
Quit your whining dude. God. I have it too. Do you have feminine hips? Long legs w/ short torso? social anxiety or anger?
@@austinskaggs4184 your main question should be do you have small testicles? Everything else about the body including that hip thing, or far distribution is also a symptom of skinny fat symptom which is way more likely to occur than xxy.
Me too man, im just gonna go to the doctor to check out if i have it... then ill probably go on trt or estrogen blockers so I can get strongner and more masculine. To list my situation: -big hips and legs
-small wrists and ankles and bone structure
-struggle to gain muscle
-small testies but above average penis
-ADD
-Anxiety
-clumsy
-memory loss
@@dream6689 didnt go, I think I was just overthinking. Apparently when u are xxy you dont produce much sperm and I do so I dont think I have it
He seems intelligent. Ppl whom be diagnosed with XXY are intelligent, it's just the disability avoid us from developing the social skills. I think it is challenging for us to stay focus on one specific thing
Short term memory loss is called " Antero amnesia".
There is also Retrograde Amnesia. Information is power. God Speed brother
How old is he, anyone know?
Your lucky you have parents who care for you. Some of us don’t have that 😢
My body had all the feature of ks growing up. I am now stuck in a dismorphic body with breast,wide hips & butts like women. I haven't tested myself for ks but i'm sure i have it cause i faced all the effects
Hello brother plzz reply me
@@BhaveshHR08?
I hope you’re doing better. I have had gender identity issues and body dysmorphia for years because of this, so I get it.
i think i have it. I have my doupts. Unfortunately i live in middle east (dubai) and am unable to run the test here in my country since its not available. Does anyone know where can i get this test in dubai?
what do you mean bro, its very easy just go to hospital
Having nondisjunction in meiosis is irritating just as having high estradiol levels with 46,XY kariotype ;d
I don't fit all the notches but I have many of the traits.
Hey, im a shy, short 16 year old with Klinefelters. wtd?
Research EVERYTHING you can about this Syndrome. Start your Testosorone shots. Find your ABILITIES. Do not let yourself get so involved in your disabilities with 47xxy. This guy said " I worked with others with disabilitirs" Thats Cathartic for the individual. I think thats correct in the word im using. God speed my friend. I found Music and Law.
Weird memory loss every 5 minutes. My gosh yesss this! People don't get it. We have a couple things that factor on this but the people over-empathize the other things over KS. It just isnt known about enough
I'm taller than almost everyone on my family, yet only 5'8. Then again, my mother is only 5'6 and my father was only 5'4, so I tower over them.
i am 6.3ft rest my family short look funny in family photo's
I compleatly understand. It takes so long to get diganosed
My bf has KS he is 54 only found out he had KS when he was 40 I just want to know if anyone else with KS has anger out bursts
I have.. not sure if its cuz of low testosterone
@@naikjoy can ks produce sperm or really not?
@@hamdankhan9424 it can.. i think there can be mild versions of it. I can produce sperm if I dont masturbate for more than a day. my balls and dick are normal size .. i think it saved me that I liked to do pushups and parkour when I was 13-16... now I've been doing leg exercises for raising testosterone................... btw I dont know if I have 47,xxy but........i do have wide hips and a bit of boobs.. long limbs as well and I cant cum during sex even if I had a harem
@@naikjoy what about ur height
@@hamdankhan9424 google is your friend
💛💛💛🦋💛💛💛🙏🏿
3:04
I m 47xxy ks mosiac .i have made channel for info of ks
funny i found out by just getting out of the back seat of the car stand in front of my mum psychologist he seen me 2 sec know right away i had xxy life begain.
I don’t understand anything you’ve said.
@@rz5b1qszkdf44 o if had xxy you understand it better our brain wirded different rest of you normal people. i bet you lot other xxy people out in this world know what talking about. my mum just add words in mddle of it she workout what i am talking about my be u could do same seem u smart person.
I think I have KS, I’m 6’5 long arms and legs wide hips Gynocamastia sparse facial hair. My balls aren’t small but Idk what my sperm count is or if I’m fertile or not because I’m a incel. My IQ is above average but I also have Asperger’s syndrome so maybe that’s why. I don’t have low energy. I do tend to have a more sensitive disposition than most dudes.
It sucks I think I have it.
What's the result bro ?
I am 17
Is there a cure?
You cant get rid of it but you can treat it ( And since your 17 im gonna assume that your still going through puberty?) You need to go to the hospital and get testosterone injections
No cure. It’s a genetic disorder so it’s in your DNA unfortunately.
Is he related to Peter Griffin?
Yes, he's Peter's nephew
I just figured it out now and I'm 29.. memory issues from 28.. erectile dysfunction since 25.. depressed, angry, anxious, cant concentrate and anything.. I measured my balls and dick and they above average but my hips are wide and I got lil boobies and long arms and legs.. 6'2 tall.. not really obese but I do have a bit of a stomach. Maybe when I was 13-16 it saved me that I was doing push ups a lot, so I might had been able to produce enough testosterone for my balls and dick to be above average. But now I don't do that anymore and it seems I'll have to exercise and be under the sun so vitamin D helps produce testosterone. I'm unsure if I'll take the hormone therapy but I'll try to raise my testosterone through exercise alone.
Nice that's what I am doing currently I am not sure about I have ks because I am 5'2 and my age is 15 But I have One problem I didn't
Had puberty and also I have undecended testicle it means My one testicle is in my abdomen since birth so I have only one ball because of that I have gyno And now I started doing Exercise and Get vitamin D to boost my testosterone
@@FOOTBALLHD9397
Bro undescended testicle need to be removed surgically or to be pulled to scrotum , because it’s in this position predispose you to testicular cancer. Please take serious what I’m saying , I’m a doctor. and seek medical advice urgently.
Warm Regards.
@@ahmedaltigany2332 how much does surgery cost sir
@@ahmedaltigany2332 please reply?
@@FOOTBALLHD9397
That’s I don’t know, but it’s not costy and prevent big problems that could happen to you from the undescended testicle. Please read about the risk and seek medical care immediately.
I am suspicious and i think i might be klinefelter because of my wide hips and that is the only synptom i have , they are not so wide just a little ! So ... I need help ! Please !
Only a doctor can diagnose.
Peter Griffens son.
I was 6'4" in the 8th grade!
And none of the physicians thought to test genetics.
XXY is one of the more common intersex conditions. The good news is that most children have tough childhood but when the reach their mid twenties these issues seem to subside.
I happen to have an intersex condition related to germ cell sexual development.
Xxy is not an intersex condition.
It is NOT an intersex condition.
I don’t think it’s an intersex condition. It’s a genetic disorder.
I'm really thankful to God ❤️ for providing 46 Chromosomes
These chromosomal defects aren't really anything to celebrate. An aquaintence admited he had Kleinfelter Syndrome, after he told me he was infertile and I said I was a geneticist. You just have to accept what life brings you. Turners syndrome is the female version.
Do you have tremors?
I do
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