Epstein-Barr Virus & Multiple Sclerosis: New Study Outcomes
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- čas přidán 18. 05. 2020
- A German study involving 901 people living with early multiple sclerosis (MS) has found that 100% of participants had antibodies against the Epstein-Barr virus (EBV). Performed by researchers at Charité - Universitätsmedizin Berlin, this research provides further compelling evidence that infection with EBV may play a role in multiple sclerosis. In this video, MStranslate co-founder and chief science communicator, Brett Drummond, discusses the outcomes of this published paper in more detail and explains the potential implications of the findings.
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I had Mono when I was 13. I started getting MS symptoms when I was 37 although I did start experiencing terrible fatigue in my 20s. I was finally diagnosed with relapsing/ remitting MS when I was 50. What a long road. My GP always explained away my symptoms as being other things. I developed Trigeminal Neuralgia at age 50 and was sent for a MRI. The MRI showed the cause of my Trigeminal Neuralgia but it also showed that I had lesions. I was finally sent to the MS clinic where they did tests, and I was finally given my diagnosis. My Trigeminal Neuralgia was not related to the MS. I've since had MVD surgery for Trigeminal Neuralgia and have been pain free for the last 3 years and 4 months. My MS symptoms are progressing. I've never taken MS drugs, nor will I ever. I'm trying to find natural remedies to help with my symptoms.
This is amazing. It's weird to find out that this disease had its first steps in my childhood already.
This just popped up in my feed. I see it's from almost a year ago but I asked you about EBV a couple of weeks ago and my answer presents itself...like magic! Lol. Thank you for talking about this. As you mentioned in the video, maybe the tests for antibodies have gotten better since I was tested for it. I wonder if it's tested for at all of my major bloodwork panels or just at my initial MS diagnosis, which was in 2004.
It's still such a high percentage in both populations that I am skeptical that it will prove to be the key. I always find myself circling back to my appendectomy when I was 12 and my hindsight showing me that soon after is when my symptoms began. I believe our appendix is related to gut health so that is interesting. But many people with MS still have their appendix.
To me, I don't believe that the appendix is just not necessary anymore, as my doctors tell me. But maybe there was something that triggered the appendicitis and that might be looked into.
Lol. I may remember to follow up on that theory. Or I may even remember to make a note to follow up on it. I wouldn't bet on it, though!
Cheers
I was diagnosed with EBV when I was 44 after suffering for a full year of complete exhaustion..missed diagnosed by Doctors...Finally I had a wonderful female doctor run titers test ...which other Doctors never did...Well I was in the convalescent stage of EBV..im now 67...Ive had 2 major episodes of EBV, 1 almost shut kidneys down...Anyway I am now experiencing numbness, weakness jn my legs..I stumble alot...my vision seems off...ringing in my left ear for over a year...My point is I moved since I 44..my current Doctor has no clue about EBV...she said my ringing in my ear was WAX ..my tingling in hands was Carpel tunnel????...My weakness was because I'm 67 and still working, I'm tired.....Where can I find a Doctor that specializes in MS & EBV?...Is there a list somewhere per state?..I live Iowa...
Hi Virg, thanks for the comment and sharing your experiences. I'm not aware of specialists in this area per state in the US, though I can do a quick look for you. I suggest discussing it with your healthcare professional is always a good place to start. There is research now going on that looks at specifically treating EBV, as a way of also treating MS. We will be providing some updates on this shortly, so stay tuned to all of our channels. Thanks again - Brett
I had these symptoms fir yrs and same thing. They said numbness was a pinched nerve in my spine and everything else, including vision, stumbling/falling, missing when reaching for things, tingling, crawling sensations and ringing in ears was anxiety.
Finally I had vertigo. I was told it was my inner ear. I insisted that it was my brain because it was not positional and was washing me from sleep. They said you must be turning your head in your sleep. I insisted that i could move my head in any direction while awake and it would not happen and I was waking in the same position I fell asleep. I had to fight but they sent me to a neurologist. Six months later after two MRIs and a spinal tap I was diagnosed with MS after 8 yrs of being called crazy.
You need to be persistent and get referred to a neurologist who specializes in MS. I also recommend the carnivore diet or at least keto to save your self from progression.
Our story is typical. Takes many yrs to get diagnosed because at first even an MRI will not show anything.
Doctors are hiding this! I believe the increased EMFs and weather modification are the cause.
Ok quick question... my friend recently had a pancreatic flare up and at the end of his hospitalization he had gone neutropenic and these drs have no idea what happened or why. They mentioned very little to all my/our pleas for help figuring out why. When they ran across his EBV panel coming positive, that’s where they stopped. He’s now walking around like a 105-year old, never can walk in a straight line, can’t hold convos, has developed lung issues/breathing problems, has multiple seizures and more. Should I advocate for him to be checked out for early MS? We’re sitting here in a state between scared of the big one and how he can’t breathe at times and is in constant pain. Our drs won’t listen to me but I’ll try if there’s any reason we should. I know you stated it’s not always coloration but would you have any insight? We’re in the center of America right now.
Hi Trish, firstly, my sincere apologies for not replying to your comment sooner. Secondly, it is important that I state from the start that I am not a clinician and my background is purely in multiple sclerosis research. Considering this, I have to be really careful about the things I say when it comes to medical advice. All I can really say at the moment is that there is growing evidence that suggests that being infected with EBV may be a necessary step to developing MS, but that it alone isn't sufficient (e.g. not everyone that is infected with EBV will get MS). I think in any of these situations my advice is always the same - if you are worried or have any concerns, I think it is always worth raising them with your healthcare professional or neurologist. You could mention that you have seen research linking EBV infection with MS and wondered if that is something that should be considered. I hope this helps and apologies again for taking so long to get back to you. I hope your friend has seen some improvement and is feeling a bit better. Kind regards, Brett
@@MStranslate1 no thank you so much for the response and I will definitely relay the info, and see if another dr can look into the case because his health is dramatically declining for a once healthy 36 year old male. He can hardly walk upright and straight let alone do other things he use to. Poor guy. But thank you I appreciate your time!
Are you suffering from Epstein-Barr virus (EBV) and you are still doubting natural herbs? I have seen the great importance of natural herbs in my life and the wonderful work they have done in people's lives. I wonder why people still spend their money on drugs. you can get a confirmation yourself by clicking on his Facebook link below facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/ for solution..
@@sarahkelly1067 the person I know who was suffering from EBV that I knew, actually died in November and while it was unexpected for us all, we don’t doubt that he died from all his conditions combined. Not just one, like EBV.
@@sarahkelly1067 but thank you for the comment and help.
Thanks so much for posting this video. I still have gazilll.lion questions, but will pursue them offline.
Thanks Therry, sorry for not seeing your comment sooner. If you do have questions, please feel free to send them to me via e-mail (brett@mstranslate.com.au). If you don't already, can I also encourage you to follow us on our Facebook page? I often do Facebook Live Q&A sessions with our community, where I answer all of their questions about MS research. This would be a great opportunity for you to ask any questions that you have. Kind regards, Brett
Just been told my husband has Epstein Barr virus bad. He has also has Glandular Fever. He may have a neurological issue he has lots of pain in his coccyx with osteomyelitis. He is very unsteady on his legs.
I had glandular fever in 2001 and was very ill for nearly a year with fatigue and weakness. Over the years I've had symptoms like very dizzy and weak pains in my body. I've been told I've got functional neurological disorder. I said to the doctor about MS and she said no to its not. I've had the whole year 2020 very ill and in bed most of the time falling over swollen glands
A number of different multi-system and neuro-immune diseases can be caused by glandular fever and some other viruses, it doesn't have to be MS. I hope you figure it out. I have no idea what I'm dealing with but I'm more disturbed the more I read about how many disabilities get caused by viruses, yet all most authorities ever bother warning us about with covid-19 are the acute causes of death, not the yet-unknown rate of long-term misery and disability among even the mildest cases, which might be preventable with early diagnosis and management of post-viral fatigue but they aren't doing a thing to make that happen. I was diagnosed with covid-19 in March this year, didn't need the hospital but the main symptoms lasted 4 weeks, in two distinct stages. Since then I have waves of energy throughout the day but most of the day fatigue, brain fog and mood swings, and recurring mild flu-like symptoms including recurring distinctive covid symptoms, triggered by the heat or post-exertional malaise. It's lasted long enough to be called post-viral fatigue syndrome now but not long enough to be called chronic fatigue syndrome. But now I'm getting frequent eyelid twitching and trunk sensations that I find out are called the "MS hug", and I read about MS, and oh my god are there lots of reasons to think covid-19 could trigger MS. Covid-19 has so many symptoms in common with early signs of MS: optic neuritis, mild leg stiffness, itching and burning in the chest, poor balance and spacy feelings without vertigo, heat triggering symptoms and relapses later on, and of course brain fog, depression and extreme fatigue. Yet NOBODY IN MEDICINE HAS BOTHERED TO WARN US that hey, ANY new virus should be avoided like the plague by ALL age groups until we know what the percentage will be that's going to be permanently disabled by NERVOUS SYSTEM diseases, not mere lung scarring which is all most ever bother warn us about. I had severe asthma as a child, so I know breathing problems can get pretty bad before they stop you being happy. Whatever this is, it makes me angry that covid didn't kill me, bitter every day
compulsiverambler Same, caught covid in March. Have been unwell for over 5 months now with endless health problems and new symptom every week. Today I came back from hospital appointment, got my blood test apparently I have EBV too.
@@sinnermeister It's very common that covid makes dormant EBV activate, there was a study proving it early on in Asia :(
compulsiverambler Yah I learnt some people also tested positive EBV from their blood tests. Covid reactivated it. You feeling any better?
@@sinnermeister My incapacitating symptoms (fatigue, malaise, heavy weak stiff crampy legs, cognitive problems and random mood swings) are much better, thank you. But at the same time as those got better I developed new symptoms and some of them are dangerous to leave uninvestigated, so I'm arranging to see a Rheumatologist about them: tender scalp, slightly bulging tender temple and forehead veins, puffy ankles, return of some joint and other pains that had gone away, and several firm masses in my legs. Also still sometimes getting the symptoms of mild pericarditis, endocarditis or myocarditis that most of us seem to have experienced. How about you?
So there is A chance to find the medicine cure
MS.
Yes! Scientists are working on it!! Crispr Technology.
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Are you suffering from Epstein-Barr virus (EBV) and you are still doubting natural herbs? I have seen the great importance of natural herbs in my life and the wonderful work they have done in people's lives. I wonder why people still spend their money on drugs. you can get a confirmation yourself by clicking on his Facebook link below facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/ for solution..
*Ozone Therapy*
Are you suffering from Epstein-Barr virus (EBV) and you are still doubting natural herbs? I have seen the great importance of natural herbs in my life and the wonderful work they have done in people's lives. I wonder why people still spend their money on drugs. you can get a confirmation yourself by clicking on his Facebook link below facebook.com/Dr-Itua-Herbal-Clinic-100313388455998/ for solution..