Hi Holly my name is Gracie I have cystic fibrosis I'm 13 and it's hard to get through things in life but pushing through and thinking of the end result is the best thing to do. so happy you are well, love watching your videos you are very inspiring x from Gracie x
I am soooooo glad to see you back on here. It sounds like you have a lot to look forward to. I love your videos, not to sound like a cliche, but you are very inspirational. You're going to do great.
Great to hear from yourself, you have been invaluable academically but more so as an inspiration, hope everything goes well and I will be subscribing to your blog :) healthy regards, Jason, Student Physiotherapist.
hollyrosanna Thank you for sharing your pre transplant journey and thoughts. At the end of the video when you were talking about sharing the truth about transplant recovery I was remembering my sister's recovery from her double lung transplant. It's true, it's not a walk in the park, and I want to thank you for being willing to share the hard parts too. We will encourage you when you are walking through the hard days, and will cheer you on when you are able to start jumping and running :) You got this Holly! We are actually in the UK right now and learning how to live with CF in another country! czcams.com/video/VfNi5wDMOQc/video.html
I'm a huge runner, too! I ran cross country and track in high school and am now in college in the running club. Please do take up running...it's so addicting!
I'm so glad to hear you're doing OK! Hang on in there and let's hope for the best! I hope you liked to hear about Chopin and his music, hope it helped.
Great news kid...stay strong. My mom had a double lung transplant about 10 years ago...we were having thanksgiving dinner at a cousins place near where the hospital was....was quite a trip I can tell you...I of course had the job of carrying the oxygen machine :p
Oh holly, this is such great news! I just know it won't be long now!! Praying so hard for you and your donor!! Please accept us on your Instagram so we can keep up with you more often, because I'm just a nervous wreck wondering about you! Fingers crossed!!!!!
You're so strong! I noticed that you're not wearing your oxygen...are you feeling a bit better than the previous video? I have Cystic Fibrosis (Delta-F508 mutation...the most common type) and I know that it can be such a pain having to be constantly hospitalized and treatments daily, but you're such an inspiration and I enjoy hearing about how you're doing!!
Hi Holly,have been thinking of you a lot lately,I do hope you are OK,as I know this was always a bad time of the year for our Jonathan (November- March),because of all the nasty bugs flying around,maybe you have got your new lungs (I really hope you have got your wish),if you are able please let us know how you are,best wishes from me and all the Mummery family xx
Hi Frank, I finally got my call for new lungs on february 17th 2015, after 2 previous false alarms! I have successfully had my double lung transplant and am now well on my way to recovery and going home! I can't believe how it feels to breathe and not be plagued by coughing 24/7! I can't wait to begin my new healthy life! I am so lucky! Do you have an email I can keep you up to date with? I will be doing more blogs and videos about my transplant when I am home! Lots of love to you and family, Holly xxx
hollyrosanna Hi Holly, Sorry for the delay in replying ,but only just seen your message,I am so pleased you have got your new lungs,you have been so brave,I am sure Jonathan will be looking down and saying well done,it must have been horrendous waiting and not knowing if you were ever going to get those precious lungs. It would be lovely to keep in touch and maybe when you are feeling a bit better we could have a chat,as I would love you to tell me how what you and Jonathan spoke about during those long hospital stays. Anyway as I said I am absolutely delighted you got your wish and lets hope the long road ahead is smooth and not to bumpy. My e-mail address is frankmummery@hotmail.com. Best wishes and regards to your family. Frank Mummery xx
@@hollyrosanna Hello holly i can I ask you question when people who get lung transplant for cystic fibrosis does new donor lungs get infected and damaged over time with cystic fibrosis sill be in another organs like pancreas and liver and when I Google it stay this transplanted lungs will not have CF and will never develop it, What do you believe holly and I have see video on CZcams call I need to breathe two sisters call Kristie and Nikki I dont understand and narrator stay this stay cf end up infected new donor lungs too when lung transplant doesn't have cf in them everymore i dont understand i hope you can help me is that turth ur not let me know thank you for your time love from Jess Sellars xxxxxx
Dear thank you for sharing that video I’m happy 😊 that you are better are you single mom I can take care of you I will not let anything bad happen to you believe me 💋👄you are so beautiful 😍💋👄😘
I don't know you but I do know struggle and to that I say.. you are so very strong and beautiful!!! I love every broken piece of you =) I urge you to notice and understand that all the majority of doctors really know is medication medication medication... your best bet at ever being fully healed of this illness is to live as healthy as possible by nature's design.. notice animals live by nature's design and they don't get such illness.. get sun, eat plenty of fruit and veggies and fish, get physically active.. I'll tell you one thing.. once you're suck in a hospital bed getting none of the mentioned above, it's too late.. "it's genetics" is just negative mental programing.. Google epigenetics. I love you!! =)
Hi Holly my name is Gracie I have cystic fibrosis I'm 13 and it's hard to get through things in life but pushing through and thinking of the end result is the best thing to do. so happy you are well, love watching your videos you are very inspiring x from Gracie x
Wonderful news Holly! It was such a pleasant surprise to see your new video in my subscription list today!
I'm SO glad to see you're still with us!! Keep strong love!
So glad you took the time to do this, I worried about you! Keep fighting, I look forward to seeing you get through this!
Thank you for updating us! Glad to see you're well. Prayers sent from Sacramento, CA.
Im so delighted you're on the list! when you get that call its gonna be amazing, a whole new chapter! congrats :D
Thank god ur back!! Was worried! Rooting for u!
it's so good to see your sweet face! God bless you! Always praying for you
How lucky to have amazing parents to take you through this 🌸🌺
positive vibes sent your way. May you be happy and healthy and get everything you deserve!
I'm so happy to see you looking well and on the list for a transplant! I worried about you! I wish you all the best. :D -Mary from the US
I am soooooo glad to see you back on here. It sounds like you have a lot to look forward to. I love your videos, not to sound like a cliche, but you are very inspirational. You're going to do great.
Just watched all 4 of your videos. You are amazing. Praying you get the call for your transplant very soon.
yes holly you are amazing i pried for you god bless you and your family
I really hope you get your transplant asap and that it goes really well for you.
Great to hear from yourself, you have been invaluable academically but more so as an inspiration, hope everything goes well and I will be subscribing to your blog :) healthy regards, Jason, Student Physiotherapist.
hollyrosanna Thank you for sharing your pre transplant journey and thoughts. At the end of the video when you were talking about sharing the truth about transplant recovery I was remembering my sister's recovery from her double lung transplant. It's true, it's not a walk in the park, and I want to thank you for being willing to share the hard parts too. We will encourage you when you are walking through the hard days, and will cheer you on when you are able to start jumping and running :) You got this Holly!
We are actually in the UK right now and learning how to live with CF in another country!
czcams.com/video/VfNi5wDMOQc/video.html
glad to see you again, best of luck with getting some new lungs. hope to see you run one day on here!
Good to see you again..
I'm really happy your double lung tx went great. 33 with cf in the U.S.
I enjoy your videos, keep them up.
mike
I'm a huge runner, too! I ran cross country and track in high school and am now in college in the running club. Please do take up running...it's so addicting!
I'm so glad to hear you're doing OK! Hang on in there and let's hope for the best! I hope you liked to hear about Chopin and his music, hope it helped.
Horrible ..... Makes me wanna cry ... These people go through so much in 1 life time ..
God bless you!
praying for you
Like, you're still absolutely gorgeous. You go, girl!
Hi, I had the same problem,,,, Now im 2 years on the waiting list. had 1 false alarm.
Hope you feel 100% your with your new life x
Great news kid...stay strong. My mom had a double lung transplant about 10 years ago...we were having thanksgiving dinner at a cousins place near where the hospital was....was quite a trip I can tell you...I of course had the job of carrying the oxygen machine :p
I hope you get the call soon!
Congrats on your new lungs!!! It sucks cuz having cf feels like your lungs hate you. I plan on telling my CF story on my channel soon.
Wish you the best! I hope you get beautiful lungs
Oh holly, this is such great news! I just know it won't be long now!! Praying so hard for you and your donor!! Please accept us on your Instagram so we can keep up with you more often, because I'm just a nervous wreck wondering about you! Fingers crossed!!!!!
Yaay you are still fighting!!!!! Now, I need to watch the video :)
yay u are back :)
I just had my CF lung transplant May 31st. Feel free to contact me if you like..
You're so strong! I noticed that you're not wearing your oxygen...are you feeling a bit better than the previous video? I have Cystic Fibrosis (Delta-F508 mutation...the most common type) and I know that it can be such a pain having to be constantly hospitalized and treatments daily, but you're such an inspiration and I enjoy hearing about how you're doing!!
Hlelly. Cysitc fidrosis. video love
Lachelle. Tertmnstm. , 2
good to see you, again. Maybe you can post more often...
Had been wondering how you were :)
Is this your last video ! I hope you are doing ok :/
Hi Holly,have been thinking of you a lot lately,I do hope you are OK,as I know this was always a bad time of the year for our Jonathan (November- March),because of all the nasty bugs flying around,maybe you have got your new lungs (I really hope you have got your wish),if you are able please let us know how you are,best wishes from me and all the Mummery family xx
Hi Frank, I finally got my call for new lungs on february 17th 2015, after 2 previous false alarms! I have successfully had my double lung transplant and am now well on my way to recovery and going home! I can't believe how it feels to breathe and not be plagued by coughing 24/7! I can't wait to begin my new healthy life! I am so lucky! Do you have an email I can keep you up to date with? I will be doing more blogs and videos about my transplant when I am home! Lots of love to you and family, Holly xxx
hollyrosanna Hi Holly, Sorry for the delay in replying ,but only just seen your message,I am so pleased you have got your new lungs,you have been so brave,I am sure Jonathan will be looking down and saying well done,it must have been horrendous waiting and not knowing if you were ever going to get those precious lungs.
It would be lovely to keep in touch and maybe when you are feeling a bit better we could have a chat,as I would love you to tell me how what you and Jonathan spoke about during those long hospital stays.
Anyway as I said I am absolutely delighted you got your wish and lets hope the long road ahead is smooth and not to bumpy.
My e-mail address is frankmummery@hotmail.com.
Best wishes and regards to your family.
Frank Mummery xx
@@hollyrosanna Hello holly i can I ask you question when people who get lung transplant for cystic fibrosis does new donor lungs get infected and damaged over time with cystic fibrosis sill be in another organs like pancreas and liver and when I Google it stay this transplanted lungs will not have CF and will never develop it,
What do you believe holly and I have see video on CZcams call I need to breathe two sisters call Kristie and Nikki I dont understand and narrator stay this stay cf end up infected new donor lungs too when lung transplant doesn't have cf in them everymore i dont understand i hope you can help me is that turth ur not let me know thank you for your time love from Jess Sellars xxxxxx
I cannot find your blog online :(
hollyrosanna.blogspot.co.uk
x
Thank you!
you're so cute ☺️
Dear thank you for sharing that video I’m happy 😊 that you are better are you single mom I can take care of you I will not let anything bad happen to you believe me 💋👄you are so beautiful 😍💋👄😘
I don't know you but I do know struggle and to that I say.. you are so very strong and beautiful!!! I love every broken piece of you =) I urge you to notice and understand that all the majority of doctors really know is medication medication medication... your best bet at ever being fully healed of this illness is to live as healthy as possible by nature's design.. notice animals live by nature's design and they don't get such illness.. get sun, eat plenty of fruit and veggies and fish, get physically active.. I'll tell you one thing.. once you're suck in a hospital bed getting none of the mentioned above, it's too late.. "it's genetics" is just negative mental programing.. Google epigenetics.
I love you!! =)