Cystic Fibrosis - A day in the life of a person with Cystic Fibrosis

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  • čas přidán 5. 04. 2012
  • This video features Christina who has Cystic Fibrosis, and the daily treatments and therapy required in the life of a CF'er. The video was created to help inform and educate health care professionals the various difficulties of treating patients with Cystic Fibrosis and ways to improve the care that is given. The various health care professionals in this video work at Long Island Jewish Medical Center in New York.
    In loving memory of Christina McDonald. April 6, 1985 - January 23, 2011.

Komentáře • 28

  • @hannakinn
    @hannakinn Před 5 lety +3

    So sad she only made it to 26. RIP sweet young lady.

  • @annettequinn2471
    @annettequinn2471 Před 6 lety +2

    Thank you for sharing this video. A lot of the hospitals need to see this. University of Penn should get a medication kit instead of taking your insulin pen and other meds and locking it up and having to call a nurse each time. Breathing treatments are not on time (usually) at this hospital either. Very sad to see at end she had passed away. I cried for you 😢

  • @aquadeathnight
    @aquadeathnight Před 5 lety +2

    My oldest brother is pass away at age 27 with CF. My other two brother that also have CF are still alive. My mother in law piss me off because she lose a son at the age 16, and told my husband, at less my mom got to see him grow up. When my oldest brother, her first born die, it hurt my mother very badly.

  • @jacquelinesmith-jackson2815

    Every doctor that cares for a patient with Cystic Fibrosis is awesome.
    😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍😍

  • @DScottWhitaker
    @DScottWhitaker Před 10 lety +3

    Me and my 7 year old little girl lost her mother to CF one year ago today. We miss her so much. RIP Tara Michelle Ball

  • @NMeyer0
    @NMeyer0 Před 10 lety +2

    May God bless you and give you healing.

  • @Bellapetrovitch
    @Bellapetrovitch Před 8 lety +2

    RIP love

  • @annasarfu3006
    @annasarfu3006 Před 7 lety +1

    I am a CF patient.

  • @sarahgreen6357
    @sarahgreen6357 Před 10 lety +1

    My son is 4 years old with cf and this is is one of the worst thing to happen to anybody its more than sad.

    • @jacquelinesmith-jackson2815
      @jacquelinesmith-jackson2815 Před 5 lety

      Sarah Green
      I agree
      😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱
      When I was in HighSchool I had 2 friends with Cystic Fibrosis. I do not have Cystic Fibrosis though.

  • @robinsfrog
    @robinsfrog Před 7 lety +2

    does insurance help you with your supplies?

  • @rebeccawilkes3859
    @rebeccawilkes3859 Před 10 lety +1

    RIP

  • @mihaelahatch4490
    @mihaelahatch4490 Před 8 lety +2

    she looks like the Olsen twins

  • @joshuagodfrey8289
    @joshuagodfrey8289 Před 7 lety

    I'm 30 years old you surprised me when you said your 25 wow you look younger but I've been told that too lol must be the cf but keep trying hard my thing that got me was by surprise is I'm a bleeder. So now I'm on oxygen daily all day fev1 21% it's been hard I feel for you I too got diabetes among more stuff I can say if you eat solid food and try hard to eat solid foods you'll gain better than them know it all doctors and dietitians telling U to drink all the shakes I had a peg tube feeding tube I could tell you so much more it's hard I know hope you get healing I hope to god u get all the help and healing

    • @3tinaa
      @3tinaa Před 7 lety

      I'm almost 23 and I'm kidney transplant paitent and don't look like my age

    • @heathermiller76
      @heathermiller76 Před 7 lety

      Joshua Godfrey Christina passed away in 2011, just a few short months after filming this....

  • @clo-belle3216
    @clo-belle3216 Před 8 lety

    I wanna cry but if your strong so am I 😢😘

  • @valleygirlgg
    @valleygirlgg Před 7 lety

    COPD patients are also not treated well. COPD is a chronic progressive fatal lung disease. I have it and when I have been hospitalized for it my care has been horrible. Now I wont to to the hospital unless my breathing is so bad I can't speak. When you don't have breath there is nothing else. I really think a lot or hospitals don't know how to deal with lung disease.

  • @katiehartx1105
    @katiehartx1105 Před 10 lety +1

    your really beautiful :)

  • @Sickandtired24
    @Sickandtired24 Před 4 lety

    At 5min is just me or is this lady swaying while she talks. Stand still you making me sea sick.