Hospital admission
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- čas přidán 23. 09. 2011
- As part of raising awareness for cystic fibrosis I have made a video a series of videos explaining what is involved with the disease and how I cope living with it.
To donate go to www.cftrust.org.uk or uk.virginmoneygiving.com/fundr...
I'm a nursing student learning about CF now. Thank you so much for posting these- now I have a better understanding of what it's like- keep going strong girl
Your hospital visits are so different from mine here (Northern California, USA). Thank you so much for making this video! You are amazing. Keep up the great work! lots of love, Tiffiany.
Hi Holly, thanks for these videos, I've seen all three. You are a very inspiring young lady! Glad to see you're doing well with you're medication regimen. I'm a pulmonary nurse for the cleveland clinic in weston florida, currently working with a pulmonologist speicalized in CF, we're doing research and I'm sure one day we'll find a cure! God bless you and best of luck!
Aside from being a strong an beautiful girl, you are truly an eloquent and smart girl. The video was very informative!xx
Hi Holly, I have watched a few of your videos (I am a final year Masters student in Physiotherapy) - I just wanted to say I think you are an inspiration for anyone who suffers from CF, or any other conditions that they have to deal with. I wanted to wish you all the best with your treatment and health in the future. Best wishes. Amy x
Hey Holly, I don't have CF but I discovered your videos for a project I have in class. Just wanted to say that you are such a strong willed person to keep going through everything CF/life throws at you. As a person who doesn't have to take pills everyday, it really inspires me to live life to MY fullest. Thanks for putting these up :)
My 5year old dose this and its great to see that people with cf are happy when they get there meds
I have learned so much from each of your videos. Thank you for sharing.
i never knew cf was this serious, my lil nephew has cf, hes curentley in the hospital for 3 weeks, they have to do surgery on his lungs. thanks for your videos holly, it helped me understand what he goes threw. hes only 4
Dear Holly! Thank you so much for making this video! I hope you are doing well and have a long life ahead. Good luck! Andrea from Hungary
@FalseDisposition Keep strong! I have CF and I was very sick when I was younger, BUT around 6 or 7 I got wayy better. Ever since then my CF is only bad when I'm sick which usually isn't often. You never know your baby could have a mild case of it and still be a healthy happy kid. Just keep praying and stay hopeful =)
Hi Holly,
Thanks so much for sharing. I'm in the hospital now for a 2-wk tune up & probably going to get a port placed next week. It was nice to see that you have a port & that it doesn't stick out like a sore thumb even though you are very petite (as am I). It's my biggest worry that I won't be able to wear what I want because the port will stick out too much (pure vanity - I know!!). Thanks again for sharing. Be well! :-)
that's a pretty good scar for the chest; i have one that's REALLY bad..it became a keloid. glad to see you are trucking on!
Hi Holly is it? I find your videos a) very informative/ educational; b) motivating; c) very mature. I'm Down Under in Oz, 23 yrs old and also have CF. There are some things very similar but also different I suppose about how you personally/ the UK do to the Aus system.
You are VERY well informed and clearly have a total understanding about the CF condition which is great!
I go by the tag 'Mr Money Minutes' or M$M.. it's all about money/ finance for young people and getting the most of your $
You are very informative and well spoken. I hope you are doing well and have a long life ahead. Good luck!
Oh my gosh, i hate blood, horrible, never give up, please
I like how professional you sound in your videos. You are a VERY good speaker. You inspire me as my medical videos have never sounded as good as yours. Even though I do NOT have CF (my health is related to kidneys not lungs) I also had to have a port in my chest but since I am in Canada it was not that type as they don't have that kind here. My scar on my chest looks like yours but mine is in my right side.
Hi Holly, I would just like to thank you for your videos. I am a second year childrens nursing student and being able to understand to a degree what it is like to live with CF is as important to know as well as the condition. We had a young women like yourself, become involved in teaching us and I think that is something that you may be interested in as I have learnt more from that and your vlogs then reading it in a text book. Get in touch with your local uni :) xx
Brave inspirational lady
you go through a lot and I hope you continue to be strong keep it up
All this regimen..i can't imagine it. You must have a strong personality to keep focused. Thanks for explaining it , it was very interesting. Actually i was going to say you could be a presenter or journalist, you have a realy engaging way of presenting informaiton.
wow so many nursing students have used ur videos for info well done, ive done the same my self :)
I concidered myself quite a strong man but i just want to give you a big hug.
Thanks for ur Vids, It has certainly made me aware of what CF is about! best of luck for the future xx
You are truly brave.
I agree! She's very brave
you are gorgeous! God bless you! hope you are ok since u didnt post more videos
you are so brave
@supersmileyface97 hi i have cf aswel and have a port cath. if you have only been in hospital twice in your whole life. you won't be getting a porta cath soon. they would only give one to you, if you get admitted into hospital more than at least once a year. good to hear you are so healthy!!!
I'm pretty heartless but this breaks even my heart. This is a terrible disease.
pro video guys, nice work
This was very comforting for me =] I am 14 years old , i have CF i was diagnosed when I was 2 years old ; I am on the IV right now ; I should be in the hospital but im at home ; I have a medi-port on my right side too!
How are you doing now?
This is so interesting! But it shows that my baby's life with CF has just barely begun....
i respect you
also love your hair like this! wish i could do this! x
I think she said she has atypical mycobacterium in her previous video. Based on her treatment regimen (clarithromycin), I'm assuming she probably has M. avium which is a nasty, resistant bug indeed. They're related to the bacteria that cause tuberculosis, which is very hard to treat effectively.
I, too, feel lucky to "only" have the bugs I have: 2 strains of Pseudomonas (the only difference being that one is resistant to amikacin) and a not particularly aggressive strain of MRSA.
you should keep making videos not just about your CF but your daily life. Just an idea :)
O...M...G! That almost made me cry watching that... I haven't had IV's in 17 years now but they're well and truely in the post... I know I have all this to come myself. Can I just ask a question? In your 1st clip, you said you was infected with a very nasty specific resistant bacteria... I "only" have chronic Pseudamonas infection, I've heard of the Capacia species, is this what you have? I would really like to know :) Btw, IV's may have destroyed your veins but not your good looks! Take care :)
It's very unlikely that you will have a portacath. You actually won't know when the portacath is being inserted anyway, when I had mine done I had anesthetic and got put to sleep. The only needle was the cannula in the back of my hand.
i know that this isn't the point of the video, but you are absolutely gorgeous.
i have this i know what u are going though keep fighting i know we will have a cure
Thank you - I have c.f and Pseudomonas (Holly will know what that is) is starting to get the better of me. :( I was really worried about having a port, but the video has raised by confidense loads! Thank you so much, keep going strong! p.s, How do you cope with c.f so well? my family are struggling real bad with it :-(
I hope u r ok it's been a long time
Wow, very informative. I assume they had to wait until you stopped growing before they could install the portacath in you. Otherwise they could have saved scarring the veins on your arms. Do you have internet connectivity during your hospital stays?
My girlfriend has CF, thanks for these videos.
But it says you havent been online since December 2011.. I hope you are ok.
Very interesting, Holly! Do ports clog very often?
stay strong, i'm living the same, did your PFTs go up?
Having Cystic fibrose is kind of a downer I was diagnose with at 6 weeks old as well. It is the same annoying schedule here as well in long beach california usa I'm acturally getting admitted today to the hospital. It kinda ruin my upcoming weekend
(If anyone cares to know, my treatment regimen is inhaled tobramycin (Tobi) for 30 days and then swapped out with inhaled aztreonam (Cayston) for 30 days. Pretty easy and not many pills! I'm very lucky. I did have a recent hospitalization, though, that required IV vancomycin, fortaz, meropenem, cefepime and then oral doxycyline and levaquin in addition to inhaled tobramycin, so I definitely made up for lost time on antibiotics then. Haha!)
brave girl
i think you are brave then me because I'm scared of needles and hospital
Well that was cool. Holly I hope your ok. I felt sick with the blood. I can't beloved that you are in there by yourself.? I'm only 13 but I would never be able to stay at a hospital alone. Then again you 18 so.
You sweet thing!! How is your health????
Holly, have you ever heard about phage therapy to treat the various infections that many people with cf can have?
@83N170 , im 13, and i got mine inserted when i was 4.
And @hollyrosanna, i love your videos ! I have CF also. Breathe easy ! Oh, you should also check out @candlewaxidents youtube channel. He has CF and is selling bracelets ! All money going to the CFF
Hi, just interested to know, do you have to flush out your portacath in between hospital visits?
I Have The Same Thinq A Port But
hey um, i have cf but i dont hav ea portacast, i rreally dont want one cause ive got a sevre fear o fneeles and things goin into me, sorry im just really scared now, im 14 and ive only been in hospital twice, do you think ill have to egt one?? D:
hi holly,
im an artist from westmids, nigal goodship, i am a cronic pain suffer. i use alot of my own personal experiences of my condition in my own art
i was researching an cf suffer who is an artist called bobby flanagan when i came across your videosany how, how are you?