Living with cystic fibrosis 5: False alarm for transplant
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- čas přidán 27. 07. 2024
- I have cystic fibrosis and am awaiting a double lung transplant, this video is about when I received a false alarm for my double lung transplant in November 2014.
Follow my blog:
www.hollyrosanna.blogspot.com
Or twitter:
@hollyrosanna
Thanks for watching and don't forget to send me a message if you would like to commission me to make you a greetings card for any occasion.
Love
Holly Rosanna
x
Holly
Like you said everything happens for a reason. Your perfect lungs will come. Blessings and prayers, Ashlynn
My younger brother has cystic fibrosis and someday, hopefully, he will receive a transplant. You are incredibly brave, not only in staying positive through disappointment - but in sharing your journey. You have no idea the inspiration you are to me. Hoping good luck and many blessings come your way! ❤️
I'm so sorry you didn't get the transplant. That must have been such a devastating moment. I have faith that you are going to get one eventually. Hang in there, girlie.
Thanks so much for being open and sharing your journey! My husband and I do daily videos about living with CF, and it's great to be able to see what other CF patients are doing to! I hope in the month since you posted this video, you are hanging in there and trying to enjoy the days...I also so hope that the perfect lungs for you will come soon :) Stay strong!
I watched this video with my husband in the same room but I didn't think he was paying attention. He was. At the end he said, "I want a card!" I told him you lived in another country, and he said "I want a card!" I hope you will sell to the US when you open your Etsy. We both admire your strength and courage.
Holly, I was researching CF and found your videos. I'm super emotionally invested in your recovery now!
I hope you get your transplant soon, and I hope some day we can have a permanent cure for you.
Stay strong! We are all waiting for some good news.
Keep strong beautiful young lady. You're so inspirational.
Stay strong. Keep posting. Your videos are really helping folks.
cant wait to see your transplant journey video! congrats holly!!
Your stories and videos and spirit are inspirational. Best wishes that your transplant happens soon.
congratulations on receiving your transplant! I love reading you're blog posts, and can't wait till you post a new video!
Holly I just checked your blog, you are such a positive, loving soul. x
I came across your videos while looking for youtube videos to help me with my studies. I am currently studying CF in my paediatric nurse training at university to try and help me to understand CF a bit better because there is so much included within this condition that I never really realised! anyway I just wanted to leave a comment to say how amazing you are and garenteed you will or already have inspired so many younger and probably older people than yourself that have cf. I admire your strength loads and hope you get this transplant eventually!!!!!! keep us updated :) xxxx
Hello I'm Stephen. It's good to hear that you're studying to be a nurse. I have Cystic Fibrosis and am totally willing to help you with any information you may want, from a patient perspective. I'm in the UK. If you reply to this comment, we can get in touch.
im a student nurse , just researching about cf and found your videos n have watched them all. your so strong And these videos r helping so many people
So sorry (for you, and your family) that it was a false alarm Holly. Keep strong. Your day will come x
Hang in there girl. Your time will come. You deserve those new lungs. ❤️💙
Stay strong kid....I'm watching.
aww you such a lovely young lady i pray you get everything you desire x
You're such an amazing brave person and I hope you get your new lungs soon, stay positive !
Your so brave !! I hope the best for you !!!!!xx
I am in tears just seeing this video! I have CF and am still fighting!!!!!! Keep fighting girl!!! I can only imagine going through what you went through with everything and am praying for you!!!!!! im literally in tears seeing how strong you are in these vids seeing you hold back your tears!!!! keep your head up!!! and you are an inspiration!!!! Stay strong!
I can't imagine the high hopes at this moment, and the let down. I am wishing you so much success when your transplant comes. And I am always in need of greeting cards, looking forward to seeing your etsy shop. Could you make cards with black labradoodle dogs?
keeping you in my thoughts,
Liz
Dear Holly,
Thank you so much for sharing your story. I'm a medical student and your videos are so inspirational and informative and motivating. I can't imagine the stress of being on a transplant waiting list. Prayers for you and your family!
Praying for you!
I like your positivity, such a huge inspiration! Must say that you're one of the strongest people I've ever watched on youtube, I am a medical student who waiting for your updates always. Wish you all the good luck dear ❤.
God bless you!!! I'll be following you on here with your battle with CF and hopefully transplant of new lungs. I'll pray everyday for you and in hopes you continue fight and get that transplant! I'm a Nursing Student and your videos have helped me appreciate the pathophysiology of CF and it very intriguing to me and helpful for me in the future to provide adequate care to my patients. Stay Strong holly!
Such a strong, girl! ♥️
Your so brave holly
:( I really really really wish you get your transplant very soon! Love you lots! ❤️❤️
Thank you for sharing your story. My grand daughter has CF; however, a milder case. This really helped me to understand it better. I will begin praying for you daily, You will get your lungs, baby. Just stay strong and positive!
congratulations on your transplant hunni your such a amazing women and to say you beat off the infection xx
So close..! It is a good thing they caught the problem before the transplant. Keep your head up. Thank you for sharing your life. I am a nursing student and my class was encouraged to see your videos. We wish you the very best. -Miguel
Congratulations on getting your new lungs all the best xx
Holly: you're very much in my thoughts and prayers. those false alarms just seem so unfair to someone who's already gone through so much! but I concur with others who have posted here: your "real" call will come very soon!! Wishing you much strength and many blessings.
I am sorry you didn't get the lungs but I am sure you will get your perfect lungs somewhen soon! You are such a strong young woman and you deserve it!! I wish you all the best! Keep your head up and stay strong!
Good to see you posting. Practice run :)
there are 4 things people told me to do to get what i want and that is patience, resilience, courage and hope and you have all of that. Don't forget that good things happen to good people and i am sure that you will get those lungs that you have hoped for. :);) i will be praying!
It's coming holly. Soon. You are strong, not because you choose to be, but because you have to be. No real choice there. You ca either be strong and angry or strong and lovely. I'm glad you are a sweet girl. Your lungs are coming
Keep strong, gorgeous!
Hope your doing well
Hope you know many people love you❤
I have enjoyed your honesty and bravery sharing your story with with world. Keep posting videos and let us know how your life is progressing. God bless and hoping new lungs come your way soon.
she has received her transplant. :)
good thoughts…stay strong
be strong your are a strong beautiful person inside and out champ
Bless you
I hope all is well. I suffer from CF too and feel your pain :(
I hope yourlungs come quickly to you, stay strong beautiful
Hi holly,i'm a Physical therapy student from Philippines :) , and i'm currently studying about CF..not only i have learned so much from your videos but also i'm inspired.. from now on i'll study hard, so that in the future i could help people with such disease :) .. Thank you so much for sharing your life with us..Hope you'll get well :) Stay strong girl and God bless :)
I have Cystic Fibrosis too. Please let me know if you need any help with your studies.
Stay strong
And cheerful keep it up
aww u poor thing :( hope good newz comes ur way soon beautiful :)
too bad about the false alarm, but at least your plan worked well. and you know the timings for how long things take. hope you get them soon!
You may have cf but you have an iron mind. I would give anything to have it. You inspire me me Holly.
Hi Holly, I think you're so strong and positive :) And excuse my complete unintended ignorance, but why were you blue lighted? Is it to do with the organs and the length of time they're out of a body, or a case of every minute counts on your part?
I really hope you manage to get a transplant soon xo
She got her lungs read her blog
I love your vlog. There's another one called the Frey Life about a girl from the a states struggling with CF. She and her hubby will be moving back to UK soon for school. Check out their CZcams channel.
I hope you get your lungs soon!!!!! God bless!
im sorry my friend had a bad transplant to. .. . . . .
You are okay, nah!!!!?????? Girl, just say you're fine!!! 😇
Hi dear you look so pretty 😍 it’s normal dear I’m sure you will be better if I now your place I can take you to hospital 🏥 I now good doctor he can treatment you dear and give you nice medicine for that cough and he can split that mucus from your lungs dear
I recently had a good friend who died from Cystic Fibrosis. Glad all her pain is gone and she is in Heaven.
Reeling N' Revving I'm sorry But this is a really insensitive thing to say.
Nefertiti Negus nok
:)
You need for your doctor to prescribe you kalydeco