You are absolute amazing and have changed my life immensely. 9 years ago I had a baby daughter with CF and I used your videos to educate myself. I can honestly say you have no idea what your videos meant to me. thanks again 😊
Good to see you again! I was going to need a double lung transplant, but then Trikafta (Kaftrio, in the UK) came out, and my FEV1 was 30%, got down to 19% at my worst.... but now I'm at 70%, back to lifting weights (and beat my previous personal bests) and doing jujutsu again. Anyone thinking about Trikafta, I highly recommend it.
Hi holly i have questions for you. 1 Why do new lungs go into rejection for? 2 what happen if people keep on leave Pseudomonas to infected new lungs what would that happen too them? 3 i have question for you over lung transplant for cystic fibrosis. Can bacterial from old cystic fibrosis lungs infected new donor lungs after lung transplant for being sill being in CF sinus? Cf patient who had lung can that happen . 4 i have question for you over lung transplant For CF .why do people get lung transplant for cystic fibrosis when it not cure CF? 5 can people get recurrent chest infections a again in new lungs?
This is brilliant. Please keep the updates coming You're an inspiration for other younger CFers!
a BEST friend made it to #1 on the list at stanford in usa, and complications took him away. live 47 beautiful years. cheers and long life to you!
I’m so happy for you!!! Great to see you thriving 😊
You are absolute amazing and have changed my life immensely. 9 years ago I had a baby daughter with CF and I used your videos to educate myself. I can honestly say you have no idea what your videos meant to me. thanks again 😊
How is your daughter?
Good to see you again! I was going to need a double lung transplant, but then Trikafta (Kaftrio, in the UK) came out, and my FEV1 was 30%, got down to 19% at my worst.... but now I'm at 70%, back to lifting weights (and beat my previous personal bests) and doing jujutsu again. Anyone thinking about Trikafta, I highly recommend it.
Amazing. I remember watching your old videos and crying. Inspiring
Very Inspiring!
You're a true star
hi holly i'm very happy to see you i miss you
Glad to see you back after 8.5 years 👌👌🤗you are aweeesome..you are awe-inspiring in so many ways..
god bless all..
Is nice to see you again. Have thought of you over the years and hoped you were doing well.
So wonderful to see you thriving! Blessings to you and your Doners’s Family
Thank you for sharing your story and so glad you're doing well
Well done lovely to hear something nice
I had no idea that post-transplant you still had to do so many things, covid must have been extra terrifying for you glad ur still doing well
Hi holly i have questions for you.
1 Why do new lungs go into rejection for?
2 what happen if people keep on leave Pseudomonas to infected new lungs what would that happen too them?
3 i have question for you over lung transplant for cystic fibrosis.
Can bacterial from old cystic fibrosis lungs infected new donor lungs after lung transplant for being sill being in CF sinus? Cf patient who had lung can that happen .
4 i have question for you over lung transplant For CF .why do people get lung transplant for cystic fibrosis when it not cure CF?
5 can people get recurrent chest infections a again in new lungs?
Is she still here?
What not a respiratory therapist , I guess they don’t have them in the UK.