Jake Henderson there is a new medication called Trikafta (I think that’s how you spell it) and it was just recently approved and I’ve grown up with it CF. It wasn’t easy without that pill. Some days I would randomly cough so much that I ended up throwing up as well. And I would get more sick then others and be in the hospital from infections. It’s harder to breath in the morning Bc when you lay down the mucus builds up on the side you lay on. Then Trikafta was made and it helps me a lot. This is the first time of my life that I feel great for one without any problems and it helps a lot. I even cried from emotion. My lungs are already damaged from my past though but now Trikafta helps a lot more and helps thin the mucus a lot more than usual. Sense your son is young, you should ask the doctor about the medicine and he will have less lung damage than most people around my age. The life expectancy is way higher than it used to be. Especially bc of the Trikafta medicine. I highly recommend you asking your doctor. You won’t regret it. Coming from experience, without trikafta it’s way harder to breath and it’s more lung damage and more hospital trips. This is the first time of my life being able to ACTUALLY breath.
@@jady_vanity4015 thank you!!!!! I asked about it, they can only give it you you at 12 and up but they are intrials for younger children!!!! In the next year or so they are saying 2 year olds can get it
@@jakehenderson2532 if you want the best treatment, you should ask what class of CFTR gene mutation your son likely has. This gene is a main contributor toward development of CF. There are 6 different classes of CFTR mutation and there are some treatments better suited to certain classes than others.
My sister age 57 Before 2days died because off this TYPE 1 ACCUTE RESPIRATORY DECEASE SYNDROME. Her lung was damaged within 20days Even she is admitted in ICCU and on ventilator Doctor said no reason known for lung fibrosis. I am really cry when watching this video Pls reply and Senior medical professional (Doctors ) Is any treatment to cure lung fibrosis permanently instead of lung transplant?
I work in a deli and had a “medical professional” tell me i meed a mask🙄 theres literally only 1 person in my state and 7 total in the country with COVID... plus i cant help but cough
Read the room. A video about a progressive disease that largely affects the lungs is not the place to rant about covid restrictions. We wear masks to protect people who have conditions like this.
@@hannahd8375 I think they might have been complaining that they cough due to cystic fibrosis, and people were demanding them to wear a mask due to that. Not completely sure though.
thanks CFF for the informative video and excellent graphics.
7 years. Time flies by when u don't worry😌
great video!!
Thanks for sharing very imformative
Great video, the animations are stellar! They really help the viewer visualize what is happening in the lungs.
Nice video
My 8 day old son was just diagnosed with this, what are the best treatments?
Jake Henderson there is a new medication called Trikafta (I think that’s how you spell it) and it was just recently approved and I’ve grown up with it CF. It wasn’t easy without that pill. Some days I would randomly cough so much that I ended up throwing up as well. And I would get more sick then others and be in the hospital from infections. It’s harder to breath in the morning Bc when you lay down the mucus builds up on the side you lay on. Then Trikafta was made and it helps me a lot. This is the first time of my life that I feel great for one without any problems and it helps a lot. I even cried from emotion. My lungs are already damaged from my past though but now Trikafta helps a lot more and helps thin the mucus a lot more than usual. Sense your son is young, you should ask the doctor about the medicine and he will have less lung damage than most people around my age. The life expectancy is way higher than it used to be. Especially bc of the Trikafta medicine. I highly recommend you asking your doctor. You won’t regret it. Coming from experience, without trikafta it’s way harder to breath and it’s more lung damage and more hospital trips. This is the first time of my life being able to ACTUALLY breath.
@@jady_vanity4015 thank you!!!!! I asked about it, they can only give it you you at 12 and up but they are intrials for younger children!!!! In the next year or so they are saying 2 year olds can get it
@@jakehenderson2532 if you want the best treatment, you should ask what class of CFTR gene mutation your son likely has. This gene is a main contributor toward development of CF. There are 6 different classes of CFTR mutation and there are some treatments better suited to certain classes than others.
Im sorry to hear this. Its been 6 months since u posted this, how are things going now? best of wishes for your son
5 feet apart
🕊
My sister age 57
Before 2days died because off this TYPE 1 ACCUTE RESPIRATORY DECEASE SYNDROME.
Her lung was damaged within 20days Even she is admitted in ICCU and on ventilator
Doctor said no reason known for lung fibrosis.
I am really cry when watching this video
Pls reply and Senior medical professional (Doctors )
Is any treatment to cure lung fibrosis permanently instead of lung transplant?
Is it cure able plz tell me my 3years son effected from it
Sadly they have not found a cure for it yet but they are trying to find a cure and I as well have the CF and so does my brother
does cystic fibrosis end up taking over attack new donor lungs
yes it is a genetic dissorder
😮😊
I'm 8 and I have cystic fibrosis
I am actually have cf
I've been researching best treatment for ovarian cysts and found a great website at Litzy Remedy Tactics (google it if you are interested)
I work in a deli and had a “medical professional” tell me i meed a mask🙄 theres literally only 1 person in my state and 7 total in the country with COVID... plus i cant help but cough
and you say this on a cf video. kinda ignorant ngl considering a lot of us had to shield for a year
Read the room. A video about a progressive disease that largely affects the lungs is not the place to rant about covid restrictions. We wear masks to protect people who have conditions like this.
@@hannahd8375 exactly
@@hannahd8375 I think they might have been complaining that they cough due to cystic fibrosis, and people were demanding them to wear a mask due to that. Not completely sure though.
Thanks for the informational video. But it sucked.
C Dub u rlly need to chill this is my daddy’s account and if it gets banned my daddy will spank me
C Dub my mommy works for CZcams so she will get u banned
@C Dub lmaooo haha
what is this comment section
@@ciaranfooty7720 idk it feels like a conversation between 2 alt accounts