Tara's Story - Living With Cystic Fibrosis
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- čas přidán 3. 11. 2015
- "It's kind of surreal to see people supporting your cause, because essentially they're supporting your life." - Tara Bourque
In this short documentary, CF Champion Tara Bourque is sharing her journey living with cystic fibrosis.
Learn more about Cystic Fibrosis and support us today: www.cysticfibrosis.ca/
She's still with us! I saw her X account is very active as I type this November 2023.
Tara, Thank you so much for being willing to share your story. This video is now a month old, and I hope to hear that you are feeling a bit better, but living with CF myself, I know that sometimes its hard to get better...so whatever you feel like today, I hope you were able to find something to laugh about and I hope you are enjoying your day with your family and those who make you smile! Hang in there!
This video is not 6 years old
Tara recieved her second double lung transplant on her 25th birthday in 2019
Amazing that she received her second double lung transplant ❤️
I hope she is OK and going great
🎉🎉hope she is ok
@@sangitathami4973 She is! She's on X and seems to be quite active
Can I give her a hug! I hope she is doing well!
I have a daughter with CF, She had a baby this year and I'm so glad that She looks so healthy and happy with My gorgeous grandson. Believe me a made her to do her treatments everyday, It's not hard to take care of a person with CF, if you really love that person, you want to give your life for them. GOD IS THE OWNER OF EVERYTHING, SO YOU MUST ASK HIM TO PRESERVE THE LIFE OF YOUR FAMILY AND KEEP ASKING HIM, HE WOULD MAKE THE MIRACLE. HAVE FAITH IN GOD.
I hope she is still fighting her battle like a hero and is living the life of her dreams. Lots of prayers.
My 3 week old daughter just got tested positive for CF 😔 praying for a false positive 🙏 If you see this please pray for Alannahs health 💕
Can you let us know how you are doing?
@@charlottebruce979 she was tested 3 times and they all came back positive for CF so we did the sweat test and it was negative 🙏 shes doing great just being followed closer by a bunch of different doctors for other health issues
@@klynn9445 I hope she's ok ❤️
Bless you, your family, and loved ones, thank you for sharing your story. I participated/volunteered in my first CF foundation great strides walk today, in West Virginia. I plan to get as involved as I can as time goes on. Last year I learned I was a carrier for CF, and no one in my family, paternal/maternal, was aware of being a carrier. I recently became a father of beautiful identical twin girls, both positive for CF. Born at 28 weeks 6 days. Strongest little girls. They have inspired me to do something greater with my time in this world. Very sadly, this past week I lost one of my girls at 68 days. Devestating. I am still figuring out how to come to terms with it. God has a plan for everyone, no matter how brief a life is, there is a purpose and change made in this world. Her sister is doing well as can be and I hope to take her home from the hospital very soon. She begins her enzymes this coming week. I am very blessed to have an emotionally supportive family surrounding me and we are getting through this tough time by coming together as one. May my sweet little girl rest in heaven and watch over her sister. Forever in my heart
Such a beautiful person on the inside and out. I wish you all the luck in the world on your journey, you are very inspirational.
+Heather Pelley Thank you!! :)
Hallo get an ag Cera will really help you.
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Tara; you are the strongest, bravest living person I know. I pray that you get another chance for a transplant. Our heart & prayers are with you . You are a true inspiration for all.......wish more had your courage in life.. Hope & love is what you live on .. so.. chin up girl _Bless you
Hey, we have CF too! We have an older sister who also has it. It can be really tough sometimes but we fight this battle together & it feels good to have the people you love around you that can relate to how you feel, ya know? But anyways, keep up the great work & don't let CF get you down! We will fight & conquer this battle together 😊💪✊
thank you for sharing your video, it helps a lot especially for a mom like me who lost a son perhaps due to this disease. My son was only two days old when suddenly he had difficulty in breathing, at that time he was already screened but the newborn screen result had yet to be released. It was seven months later when I and my husband had been informed that my son had cystic fibrosis and that he needed to be tested for further confirmation but he already passed after 2 days of given birth. At the time of his passing, we were really confused why my son suddenly suffer from difficulty in breathing and he did not take his feeding. We rushed him to the hospital but five minutes after we were catered in the emergency care, he was not able to get through. It was the saddest part of our lives, just remembering those time brought so much agony for me and my husband. We were blaming each other thinking we havent done well or that much for our son. We did not know that he had CF until such time his newborn screen result was released. We didnt know what is CF, so I had to google it and that's how I come across your video. It is painful to lost my son, It has been 2 years and the pain still lingers. But your video helps me understand and somehow accept why my Ronan could not make it. I hope you will not lose hope of fighting to live, you are blessed because your are able to make it 23 years of life. How i wish my Ronan had able to survive with it because I will really do whatever it takes just to make my son live..
Hi Tara, I was just wondering how you are doing? I have CF & I have a little 7 week old daughter with CF too. Your video is so honest & beautiful. Thank you for sharing x
i’m sorry.
You are the bravest woman ,I salute you
I have CF to and yes there is a lot about it, and just a couple of months ago I got a medication called “Trikafta“ and it truly changed my life. And it is scary, you don’t know ur future. Not knowing if u can go to college or have children if u don’t make it that far in life
Thanks for sharing your story Tara, i wish you are feeling well now. Live long girl!
I know a girl in the Netherlands who had a second transplant. She calles them my lungs nr's 5 and 6. And she has been doing great for many years now. Her story resembles yours. I hope you will get a numbers 5 and 6 when the time comes and will live a long and healty life. Thank you so much for sharing, greetings all the way from the Netherlands. I am 42 and also cf.
I am 23 and i just got diagnosed as my country lacks reasearch about cf
Whats the name of this girl?
@@zeeglam8993 what's your symptoms 😭
I am from India. I am 20 years old . Struggling with shortness of breath for more than one and half years. Still struggling. Sometimes I feel better, Sometimes I feel very bad , I am very tired, I hate the Nature which causes our lives so sad, frequent fever and almost fainted many times 😭
I also had acid reflux more than a year . I diagnosed with stomach ulcer.
Some doctors didn't understand my pain. Still didn't got proper medication. Please help someone 😥, living with pain
@@mokkascience-2840 I m also from India please send your contact
God bless you. God sees your suffering and will reward you in the future. Be patient.
All the best to you Tara and thanks for making this video. The word is getting out about CF because of people like you sharing your videos. God Bless You
Tara, I have signed on to save a life here in Australia. A card we hold In our wallet. I have decided to surrender all of my organs if I shall die unexpectedly. My family knows all my wishes as they have also discussed with me. I have had friends growing up with CF in the church. One close friend who lived five years post transplant, was a wonderful thing. Bless you.
Tara you're Inspiration! very nice video!
I am thankful to her for telling her experience. I wish the cheesy background music wasn't so loud, it's hard to hear her.
Thank you for sharing this ❤️
Here in the UK my niece has just moved in with her boyfriend who has cystic fibrosis. They are both in their mid-twenties. Unfortunately if they marry he does want to have children as he has been told that any child he father's will have a 25% of having the illness. Very sad. But things are improving. I am 59 years old and I remember that when I was young people with CF rarely lived past adolescence.
That is not true. Cf is a dominant motation and not a recessive one. Untill and unless both the parents have atleast one allel for the CF gene their childern will be perfectly healthy and will only be a carrier of the cf gene. Your beice can get her genetic test done and if she is not a carrier they can have perfectly healthy kids ❤❤
@@zeeglam8993
God bless her! praying for you Tara
Thank you for sharing and I’m hopeful that you are doing better with your new lungs
I only have to deal with bronchiectasis and it’s not great. God bless all your people.
cool video, very well done.
God bless Tara!!!❤️🙏
Praying for you ❤
Stay strong tara
I want to hug her
My grand daughter was just born with cf.
Beautiful woman, I hope you're doing well
I am from India. I am 21 years old . Struggling with shortness of breath for more than one and half years. Still struggling. Sometimes I feel better, Sometimes I feel very bad , I am very tired, frequent fever and almost feeling fainted 😭
First diagnosed with Pneumonitis and then some ct's are taken. Some doctors tell scars(fibrotic bands) in the lungs but it's okay, You are alright. But my problems symptoms are same , not cured?
I also had acid reflux and belch more than a year . I diagnosed with stomach ulcer.
Some doctors didn't understand my pain. Still didn't got proper medication. Please help someone 😥,
living with pain
I hate the Nature which causes our lives so sad,
How to contact you iam facing same problem
hi Tara my name is Jon Ferguson I'm from Illinois I'm praying for you to get better my niece has cf she doing really well I'm going send you Alot of prays may God blessed you Jon Ferguson 💜💜💜❌❌🎈🎈🎈💗💓🌷🌹🌹
We love you
Didn't need the music...Thank You for sharing Tara
How is this lovely lady now
Bless u
Hi Tara, my son also suffered a lot with this CF desease and nw he is knw more nw also I remember that pain of my child he just 5 month old last 3 months he not more with me😢😢😢
Baki Bachy theek ha ap k
@@sonasikandar2047
April me aur ek ladka hua with same disease he daed with in 55 days.....it's truly heart breakable
I have first child that is daughter she is fine I just decided to stop my pain..... I am happy with my first child.....
Have you contacted my niece Megan who has an MS in nursing and has CF?
I'm a healthy lucky one🤗
Please Help Cure CF #HelpCureCF# #CysticFibrosis#
How is she now?? Anyone know
I'm terrified about my future now..
Don't be love, live one day at a time. I am a am diagnosed with the disease in my 20's. Much love ❤
Is there anyway to contact her?
🙏🙏
How is she doing now??
Please can any one tell me??
Tara recieved her second transplant on her 25th birthday in 2019.I only live about 90 miles from her.last I heard she's doing well
@@thedivedeeper thank you for the update!!
Haha 4:20, that’s the weed number 😂