Meet Addy, Cystic Fibrosis Patient

/ chrichmond
While Addy was discovering her love for architecture... Dr. H. Joel Schmidt was discovering ways to make sure cystic fibrosis never keeps her from being a kid.
It's a fact. Kids are curious little creatures. At Children's Hospital of Richmond at VCU, so are our doctors. It's that curiosity that led Dr. Schmidt and his team to discover a new therapy to treat Addy's cystic fibrosis. And it's seeing her playing, laughing and building princess forts that keep our entire staff dedicated to discovering the best care for kids.

[@t.maryyy8037]

Lost my friend to this disease yesterday morning..... I want to start fundraiser dedicated to the people who are fighting this disease. ❤️

[@shauntayecooper9489]

I am sorry for your loss

[@abbieprice3430]

I wish we could’ve heard Addy speak during this interview as well! Also I wish they could a segment where her sister spoke out about what it like having a sibling with cystic fibrosis!

[@judystewart356]

I lost my nephew from CF ..he was 35 years old ..we were SO Blessed to have him that long.

[@jennamichelle2001]

I’m very happy to hear that this clinical trial is helping her!

[@summerdelaney5529]

Who else has Cystic fibrosis like me? And Addy u are amazing and so brave :)

[@Zahra-ky6rb]

I have, hope you're doing well

[@BellaThePomeranian]

I have cf

[@isabellb8853]

I do!!

[@kesha5248]

i have and its really hard :(

[@dttsf8966]

My uncle died from it

[@ashleykevin380]

I wish someone would find my best friend a cure I really wished he could live a normal life as well

[@zoey.stone7811]

my little cousin, Lilliana, 8 has cystic fibrosis and a few months ago she got her feeding tube out, I’m so proud of her. She won’t be able to donate blood or have kids. She most likely wont make it to 22. A meal of pills she has to take, and treatments two times a day. Sometimes she so happy I forget she has cf.

[@abigailhurstfield9421]

I have this and I hope she keeps breathing and has no problem fighting this

[@theartempress6100]

my friend has cystic fibrosis and i hope by the time he reaches the average lifespan scintests come up with a cure

[@catlover1873]

i am 13 and i also have cf it is hard you have to take a lot of meds and your in the hospital a lot

[@taniabernal8087]

I’m sorry

[@user-ob3sg2wt3v]

I wanted to say this, I was born with cystic fibrosis, my name is Adey, and she is a sweet girl! Hopefully she started tricafta. I have a question does she go to the children’s hospital in Houston.

[@gamerqueen5720]

hi im Elizabeth and i have Cystic fibrosis and the parents of Addy i believe they are working on a cure

[@erikagarcia-oj7zn]

My baby Victoria died of this cf😭😭😭😭😭😭

[@plastiqueedwards2722]

So sorry to hear that 😭
Keep spirit sweetheart! Dont be sad ❣

[@oofo5982]

Omg i am gonna pray for u and ur family 😢

[@charley953]

God bless you poor soul. Just know that even though I do not know you I am prying for you. 🙏

[@sonia15702]

I feel for you so much, having known families with CF

[@aprilbequette2606]

I have to do treatments

[@victoriak2358]

I have CF, you got a semi cure. Ya better plan on sharing that!!!

[@chaoticghost_x]

I have CF too I got diagnosed at he age 7

[@emmaquiring2791]

1:21 When Will My Life Begin? from Tangled

[@emilylittlewood3229]

CF is absolutely genetic. I know the brother of the RESEARCHER who found the cf gene on the human genome map. whysoseriousmister you should probably do a little more research yourself.

[@dazzle_slimez8144]

I have cystic fibrosis

[@diyazaveri3958]

God bless you!

[@summerdelaney5529]

Same here

[@oofo5982]

My sis has cf she got it at birth

[@ElleKathleen123]

So you're using one source against thousands? You need to realise that just because you hear one thing doesn't make everyone else wrong. It probably just makes you wrong. Know because you speak.