🙄 Being Judged When I Eat: Feeding Tube Probs 👊 (4/12/18)
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- čas přidán 29. 08. 2024
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The bow in Harlow's hair......cuteness overload.....lol
i seriously couldnt contain myself when i saw her cute face!!
Girl, DO NOT WORRY ABOUT WHAT PEOPLE SAY. How you eat is none of their business. No one judges them. Have fun on your trip! ❤️
Claire Elizabeth 🙌
Exciting feeding tube story!
My church had a big Easter event the other week and more than a thousand children showed up. One of the woman from my church and her teenage daughter (a tubie!) were helping in the childcare area. A little girl came to the event and had a tracheotomy and the teenage girl showed the little girl her feeding tube. The little girl was so excited that someone else had a tube! These families bonded and shared their burdens with each other, and the mom from our church shared the source of her strength and hope. It started a whole conversation with the family of the little girl, and they ended up accepting Jesus right there!
I really appreciate how you don’t shy away from the ‘embarrassing’ parts of chronic illness, like bowel problems- it’s really shouldn’t be anything that people feel they need to hide or be ashamed of & I’m sure you’re helping people realise that 😊 ...myself included, so thank you 😊
Ps, don’t worry about the judgemental people, most of them just don’t understand! Keep doing what’s best for you Jaquie, you’re doing great 😊
Right? I think BMs are a part of life lol
My 4-year-old requires a feeding tube mainly because she aspirates even on pudding thick liquids. Our biggest issue was dehydration so when she got her tube since she wasn't very thin that was a judgment - well she must be okay she's not super skinny. Someone will see her eating dry Cheerios and act like well see she can he I must just not "get her to mind and eat her vegetables" or that well she can eat Cheerios or Pretzels so she's fine. People make comments about force feeding and starving her into compliance as if that's any way to treat anyone let alone a small child.
Some people are so ignorant. She may be able to eat, but that doesn't mean she can eat foods that have nutrients she needs and the fluids! You are doing what you know best for your daughter and that is what is important, not all the people who think they know everything and feel it is necessary to voice their opinions on the medical treatment of other people's kids.
Thank you. My husband and I usually laugh it off because it's always some random person who thinks they know more than us and her entire medical team.
Ive been force fed before. Physically force fed. I still hate that person.
I like that Jaquie is super accurate when reading Harlows emotions and feelings, but have trouble with reading humans xD
Agnes Christina I think that dogs are easier to bond with because they’re so pure of heart. They’re free of sarcasm and ridicule and they can read our emotions just as easily. The love we share with our pets is truly unconditional and that’s very hard to find these days.
Animals are easy to read to people that have trouble reading emotions, facial cues etc because animals don't act happy when they're sad etc
listening to my body is what I do, people judge me for eating popcorn, but my body likes it. When i go to restaurants, I eat food off my boyfriends/families plates because I hate the waste. Tubies unite!
your last statement about people judge bc they don't understand is so true. I had people say people say people with ostomy stink. not knowing I have one then I show them I have one. not to embarrass them but show you can't assume.
You were beautiful AND diplomatic while explaining the ways a feeding tube can be used to supplement oral intake. Thank you for helping to spread awareness and encouraging people to realize they do not know the whole story when encountering someone with a feeding tube.
Just like when ppl give me dirty looks when I park in the handicap spot and they see me walking not all handicapped people are in wheelchairs just because the sign has a wheelchair sign that don't mean all disabled people are in wheelchairs
Eating is a social activity. It's good that you can participate social activity when you are able.
Harlow and Orion look so beautiful !!!!
I get so many looks. I work in an animal hospital as a surgery tech. I get many questions about my backpack and tube feeding. I can eat about a mouth full of food. I try to educate when I can, and ignore the looks. I have the same back pack as Janice. I am proud of my feeding tube, it keeps me healthy
Elisabeth Wheeler Kids should get educated as well on stuff like that and plus kids are easier to teach than adults.
My son had failure to thrive when he was 15 months old and we investigated the feeding tube option with our feeding team at CHOP here in PA. You do you! I am so happy to see when you eat something. I know what it means and I agree, people who judge over things like this just don’t understand the whole concept. You’re such an inspiration to me. I found you several months ago when I was looking for my service dog prospect and your videos have always kept me going back because you’re always upbeat and smiling through all the pain/worry/illness. It means a lot and some days I just hope for the ability to smile like Jacquie ;) thank you for being you!
Jaenice had her hair done, the pups are groomed, the trip must be important! Have a safe trip ❤️
I love when dogs lie down like a frog! With their legs out behind, it is so cute :) it definitely made my morning!
On the topic of feeding tube awareness... I've also seen comments on 'other' people's vids who are large, like I am, who have a feeding tube. YES! You CAN be overweight AND have malnutrition issues due to Ehlers-Danlos or other digestive issues. Bodies are strange things.
I don't know if you'll see this comment, but I'm so appreciative of your videos right now. My dad is having heart issues and is suddenly about to get heart bypass surgery. I'm in the hospital with him, and because of your videos, I have some idea of what to expect (like hospitals don't move on the weekend!), and terminology like what MRSA is, as well as what different medications they're giving him can be used for and what side effects they often have. This isn't exactly a known chronic illness, but you've definitely helped spread awareness and education about hospitals/ER stuff. Thank you!
You don’t need to justify what you do. We are just along for the ride of your life that you share with us....it is your life and if they feel they need to judge you they can leave simple as that.! You do what you need to do and I thank you for what you choose to share
It's actually really nice to see you eating orally as you've always maintained that you want to keep as much function in your GI tract as possible so it's awesome that you're being more able to eat a bit more now.
The pups look so good! Harlow looked so cute with the bow in her fur🐾
It glows in the dark! That is so smart. Somebody put some thought into that.
The fact that anyone is negative about someone eating when they have a feeding tube is perplexing to me. It's great that someone can eat! People should mind their own business! Enjoy your trip and don't let those judgmental people get to you!
I’m glad you were so honest about this issue. You always teach with compassion where I know I’d be like duuuuuuudd how about living your life and I’ll live mine, ok?!? You’re a gift. Thank you, Jaquie. And can’t wait to see all your joy on your trip wherever it is!! Blessings! 🌸🌹
You don’t need to explain about when you are able to eat orally. It’s nobody’s business, but two thumbs up for being diplomatic when responding to people who just can’t mind their own business. I hope you have a safe flight and I can’t wait to find out where you’re going.
I'm glad you said everything you did about feeding tubes. It's more than obvious if you watch your vlogs that you would rather not have one. You need it to stay alive. Every time I watch you actually get to enjoy some food I'm super happy for you. It's always in the back of my mind that I hope you get to keep it down so you can truly enjoy it. Frankly you are very courageous for continuing to eat and enjoy despite the aftermath that can occur. Enjoy everything you can! You're amazing.
Hi Jaquie Judd and Harlow 😊. Enjoy your Friday and have a wonderful trip. Sending you lots of love from New Hampshire
VERY well said! I totally believe in advocating for oneself.. (I have to do this on a daily basis for myself as well) and as you said.. it's the ones that don't fully understand the situation. And JUST because you share with us things... we will never fully understand what goes on in Jacquie's life and with health and wellness. You ROCK, Jaquie!
I had a procedure that went horrible Friday and Thursday was pre procedure jitters, so sorry I'm watching late. I can't believe people actually judge based on your feeding tube but you explained it so amazingly and are so calm. I would not be that calm lol.
Good morning Jaquie, don't let anyone kill your happiness, like i say to myself they don't live with me, just don't care about negativity. It's all about positivity and taking care of myself. Just do you by taking care of your needs. Have a fun safe trip!
You and Janiece are like parents dropping their child off at school for the first time with the pups at the groomer 😅.
Girl eat as much as you can!!! When u don’t want to don’t....we r behind you and what you decide.....
#pawsonpoint love it! ❤
I always expect your belly to swell up like a huge food baby when you show us water flushes and then it doesn't and I'm slightly dissapointed. Haha! I have no idea why I think this🙈😂😄
It frustrates me that people would judge you for eating. You have explained it over and over again. Keep up all your amazing work.
Thank you so much for posting what you do everyday. You've helped me find new ways to treat my gastroparesis. My doctor was content having me wait three months to see if I improve while I've been going downhill. Instead I was lucky to have an ED doctor suggest a port and from the information you've shared we came up with a treatment plan. Once my PCP sends over the needed information to my surgeon we will be scheduling the surgery. Thank you so much. 😀💗
Omgggg I wanted to cry for a spit second in pure joy because the dogs looked so ADORABLE after their groom!!!!
Ohhh yes! Your discussion about judgemental people!! Everyone acts like they went to medical school and have all the answers. (I suppose that makes me judgemental of them as well. LOL) I understand how irritating it is. You know you and screw them. LOL. Have a super great vacation girlie. 😀 And oh yes, Harlow looks like a princess with her bow.
No one has the right to judge you for anything especially for something so normal as eating just because you have a feeding tube they don't even you I love to see you smile your dogs are beautiful I love you Jacquie
I think it's so messed up that people judge about stuff like that! It's between you and your doc why you use the medical devices you use, not friends/family/strangers. On a side note I love your dog! High five to another SD handler!
You are a wonderful advocate! I have learned so much from your videos! ❤
HARLOW!!! She was BEYOND adorable after her grooming. (Orion looks amazing too!) Adorableness overload.
do not mind what others have to say on how you eat, because seriously it is none of their business. Don't let the people get to you, just focus on having fun on your trip
You're wonderful jaquie, it must have been frustrating for you.
When I was young, my classmates judged me for how I was eating, which came to a point where I don't eat in public anymore until this day, so if I'm outside- I don't eat until I get home. Funny how their negative judgement made an impact on me.
Totally get listening to your body. If I make myself eat when I don’t feel like it, or even eat something I don’t feel like, odds are it’ll come right back up.
Glad to know I’m not the only person with GP who alternates between diarrhea and constipation (with rare normal bms). One thing that helps me with staying out of constipation land is daily magnesium supplements (I use a citrate/malate blend).
You always give good info have a safe flight and yes orlando I-4 is a mess. I will be glad when they get done working on it
Clara Mullen - I don't think they EVER get I-4 done. It's in a perpetual state of disarray! 😬
Cute Harlow🐶 Hi Janiece🌸 You are crazy doing Miralax before a plane ride!!😧 Hugs to you beautiful friend!!💜
the little bow in harlows hair was so adorable!
I am appalled that anyone would say anything! To deny you the right to enjoy food is wrong on so many levels. Eat when you can.
OMG...the food police are everywhere! They judge what you put in your grocery cart. They judge what you order at a restaurant. You eat too much or too little, according to the FP - they judge you. I'm amazed that these people have all this extra time on their hands, so they have to get all up in other peoples' business. Sigh.
All my this regarding judgement based on what food you have. With my chronic illness, any and all 'healthy food' options are pretty much out the window with a few small exceptions. I tend to be oblivious if people don't like something about me (of which I'm starting to appreciate at times) and if anyone has tried to judge me for my food choices without knowing the story, I haven't noticed. Guess it's kind of a good thing. |D
A friend of mine and I got into a conversation about food and as a sous chef, my diet bothers the living snot out of him since I pretty much can't eat anything interesting and what I /do/ take in tends to be processed as my diet is so limited. |D I hate taking in excessively processed foods as the more basic a food is, the better my gut processes it but I don't have much of a choice. I'm actively looking for other options whenever I can (I'm actually looking into the pretzel crisps you mentioned in the video - they might work for me!) but my options are so few that if I want any sort of variety, I still have to pick up some Cheeto Puffs to supplement my diet. I'd rather cut them out if I can, I actually was able to for a short time until the white cheddar cheese clouds stopped being stocked in my area. Sam's Club pls, start carrying them again!! ;_;
Thanks again for bringing up such a topic. People really can't judge anything based on what appears to be since one person's medical story can be so vastly different from someone else with the same condition.
Harlow looked so freakin’ adorable with her little bow!!! You have to put that on her more often!
Don't worry about what others say about eating! Those people have no clue what on earth they are talking about! They just don't really know what to do with themselves! Harlow and Orion look ADORABLE after the grooming! Have fun on your trip!
I don’t know of others but when I see her trying to eat I feel happy for her!
I also have severe digestion problems, to the point where I barely can digest food. My doctor even is recommending IV feeding since my entire digestive system doesn’t work. One of my problems is I suffer from severe IBS-C, to the point I can’t go on my own. It can even be that I only go once a month. My doctor also put me on Miralax!
" spirit fingers!"😂 You 2 are hilarious together! Don't worry about people talking about you eating and in feeds. Mary Frey from the Frey life does it too. If you can consume food through the mouth that's great, I don't kniw how you do it. You and Janice are true warriors! I hope you focus on your trip and have a blast! The pups look fabulous!!!💜💛💜💛💜💛
hey girl! im 24 and was diagnosed with GP at 18. im gonna make a video for my channel about my GP journey too! thanks for being so open about yours :) im in the hospital right now but should be going home in a day or so. sending good vibes from Houston💓
Don't worry about what other people think. Just do what you want don't worry about what other people think.
Have fun on your trip! Harlow looked adorably fluffy after the grooming. Such a cute pooch !
Harlow was so adorable!!!!!! Have an amazing time on your trip!!! Praying for you!!!!
Don't worry about thing people say. everyone has a feeding tube for different reasons. I am glad that you are still able to take my food by mouth still. I have a friend who has one and she is nbm.
I’m legally blind and I get judged for simple things like wearing my glasses, wearing makeup, dressing nicely, using a computer or smartphone or tablet to post CZcams comments... My point is that you should never have to worry about people judging you for anything you do. When they do give you a hard time for doing something, ask for their MD certificate.
The thing I find disappointing is in many of her videos she’s very repetitive about many things. It’s not your fault at all Jaq, but I feel there are some things you just don’t need to explain. It’s your life! And I’m not sure if it’s the comments of negativity or others questioning her lifestyle? I don’t think I can count the amount of videos of why she explains certain days she can eat/not eat, why she doesn’t want to vlog when her and Judd Are going on dates, why she doesn’t pull out the camera during her doctor phone calls, or better yet people have commented about what’s their sex life?! HONESTLY?!
People who are here to learn positive things and raise awareness about your personal issues and medical conditions that are catered to YOUR needs should be grateful! Yes this is her daily vlog it showcases her life! But, there shouldn’t be a constant reason as to why Jaq explains in videos whether she wants to keep certain things in her life private or not! You don’t want to be here and support her channel? Go somewhere else.
She’s got a lot of people commenting her every move and what she said and didnt say.
Jaquie does a fantastic job with her videos. She always makes sure the info gets to her viewers. Its disappointing that if she repeats her info, that someone would feel the need to point it out (for no constructive reason). If she were to have left out any piece of information, someone would most certainly point that out. Just watch the video or don't watch. Personally I love them. You've done an excellent job raising awareness Jaq. ❤
I've been in Orlando the past week, while you have been in Orlando Jaquie. So awesome. I left today (you left last night, my final night)
people need to stop judging what you eat or do not eat. It is rude and unnecessary. I'm so excited for your trip! Gentle reminder: Remember to wipe with antibacterial wipes all the stuff like the tray table, screen or remote control, and reading light and stuff like that. Be sure to wear your mask on the plane. I don't want you to get sick like Peter and Mary did after their trip.
I totally get it! I have Gastrosparesis as well and I don't get hungry, I just have cravings😋💚
Harlow looked extra pretty after the groomers! 💕 I love that they put the little flower on her! :)
Do what you need to do for good health. You are awesome!
Is it just me or is it really hard to see her narcolepsy these days? It makes me so happy that another condition for jaquie is well controlled
Myojin Yang she naps more now I think.
I thought that was only cause she's more exhausted from the bad nights
Harlow's bow is the cutest!
I wish I could train my dog as well as you and Janeice have trained Harlow and Orion!
My parents are actually the ones that judge the most, which is why I have been having an issue with getting tested for pots. At this point though, I'm going to try to talk to my doctor alone and do this on my own. Anyway, good luck with everything! Love your videos❤️
Glad to see my dog is not the only wiggly dog. Happy the grooming went well. You are such a pro with all your medical stuff. Can you share how you and your team decided on what to eat? Blessings.
Dose your disrupted sleep with your nausea and vomiting affect your narcolepsy a lot?
It has been making it a bit worse to the point where I am needing more naps during the day. But as long as I can sleep for some time with my N meds I am managing it okay
Omg Harlow is looking adorable especially with that hair clip. Have a good trip
Omg! Harlow with that now in her for was just too cute! They looked so good!
Were I work we have cubbies and crates for the dogs to wait until they are ready to be peeped or bathed or finished somtimes people bring in there leashes and they freek out cause they think they going home but also they look great!! If u wanna know what tht cut is called it’s a bbt tht is where they just cut some of there belly hair and leg hairs but they look amazing
Its always best to get an early appointment or first appointment of the day at the groomers, like you did :) This way the dog is sitting around waiting a lot less since they will be taken care of right when you bring them in. Even if your dog tolerates the groomer perfectly fine (like Harlow and Orion, and my three goldens), it is still a stressful environment for any dog.
Hey Jaquie I just love the videos when you do a close up of your feeling tube so we can see what it looks like up close makes me feel as if im really there. Is there any equipment that i would need to start my channel? Also im so excited for this upcoming trip 👀
Still loving your videos! Just wanted to send a quick note to let you know Janiece's wave is the he man woman hater club wave from the Little Rascals (I'm thinking she didn't know that). And I say, eat all you want (or can)! Hope your trip is going well. Can't wait to check it out tomorrow!
I love the bow on Harlow, would you consider putting more bows on Harlow?
THEY ARE BEAUTIFUL!!!!!!!
I'm so thankful you talked about this I have celiac and delayed digestion and I had passed my local GIs expertise which was fine so the sent me to uci I went to the gi there he didn't review any of my portfolio till he was in office with me so he spent an hour doing that I have been extremely constipated I tried laxatives the only thing I hadn't tried was milk of magnesia but I have low hopes for it since I feel like I have weeks worth of food backed up in me but I love to eat I feel guilty when I eat because I end up not feeling well when I do but I love food I also eat out of boredom so even if I do eat 2000 calories in junk food I'll only absorb maybe 1500 of it and this doctor was extremely uneducated on eds didn't bother to look it up just asked to see my hands I reluctantly handed my hand over to the gi and he starts pulling back on all of my fingers trying to get them to touch my wrist and so I yanked my hand aways and because I wasn't feeling good that day when he raised an eyebrow to continue and wanted to leave eds out of it I told him it's not how you test for eds and some people have different forms and severities he looked at me stunned then got mad and said well I guess you know better eds is part of the reason food and stuff doesn't go through smoothly and he completely ignored my concern with being so backed up that I might rupture because weeks before I even got it slightly under control I was literally doubled over in pain I couldn't get up because I would fall flat on face spread out and scream in agony as my stomach stretched out I feel like I get shamed being overweight and having go issues they say I could go with losing some weight well great a year ago I lost 50 lbs in 6 weeks they said it was water weight but I couldn't lift my arms past my shoulders and if I even tried to climb the stairs my legs would turn to jellow I lost 4 pant sizes in that time and everyone knew I had lost weight they tried things to help me keep water weight on to stay hydrated and the cramps I got where horrendous like it was pulling water out of my leg muscles and they where drying up and none of my gis are willing to help me the best go I've been to since thinks that I'm so backed up that when I eat the bile leaks into my stomach because it has no where else to go which rotted my tonsils and I've had to go to many doctors trying to figure out how to do the tonsillectomy as safe as possible and we finally have a plan down but it took a year I have been so stressed and overwhelmed with this and being shamed by doctors I had a doctor who told me " I have a patient with stage four stomach cancer next door who literally can't eat who is skin and bones where you are overweight and complaining your vomiting food give me a break and come back when you have a real issue" I left that office in tears but hearing you talk about made me realize I'm just different and I need to push through all of this to keep pushing
I have a g tube and I'm completely nil by mouth. Don't worry about what people say! They don't understand really!
I just can't! Harlow's bow..... sooo cute🐶
Awesome video,Jaquie can do a video on about your Mitochondria disease,I have a friend w Mitochondria and she's doing poorly,please and thank you so much hugs😊❤️
I4 is the worst I'm lucky I don't have to drive it daily anymore. Was on it today though on my way home from mayo clinic. Wishing you all a safe trip! ♡
Enjoy your trip!!! The dogs looked beautiful!!
OMG THAT LITTLE BOW ON HARLOW’S EAR WAS SO CUTE!!!!!!!!!!
Yea EnFit... I was promised that last year still not got it. The supplies we get now are fine I actually leave the white tip in the extension and attach to that. It's really frustrating when a company keeps promising things to you but does not deliver :( I understand the judgyness everyone has feeding tubes for very different reason my son is because he has to drink so much water for his kidney disease he never feels hungry. So in his case he can eat but has no desire. Its prob because your an adult or maybe I over think but it seems like a lot to bolus into a J, I don't claim to be an expert im opened to learn (pls dont judge :( I have no tube myself only the caretaker of one I learn more every day, 2 yrs 2 mos and counting) I know you know your body though (obviously there's going to be a range between an adult and a toddler im curious thought of what the range is). My issue for my son that we run into the most is people think he's on a leash (because hes 3) I just kinda laugh and explain it. Each experience I had was great (thank goodness). My sons tube saved his life! While I don't love it I am so glad these medical tools are in place to make his life better, yours and so many others. Keep on sharing everything good and bad!
Jaquie, You don't have to explain yourself, we all know you and the ones that don't need to listen instead of passing judgement....
Does Harlow have a specific action that signals to her that she's "off-duty", or at least allowed to relax a bit? I work in a vet clinic which sees several Guide Dogs and they understand their harness coming off as the signal for them being allowed to get excited and accept pets and have a treat. x
OMG! Love the frog legs!
So excited for you guys getting to go away! Hope you enjoy it to the fullest
You guys are like each others port ♌
Always near to the hart
And you wouldn't survive with out!
#❤♌🔄
Thanks for the information 😍
You're weight is looking really good. I love your glow in the dark tubies. Have a safe trip.
I get judgement too and I hate it sooo much I think it's probably one of the worst parts about being a tubie 😣
Were your blood work results flagged for malnutrition before you received a feeding tube?
Yes
You guys are awesome! I love your channel!!
I'm npo right now with my jgtube.. And because I watch you everyday I know one day I can try and eat.. I don't miss food yet.. But one day know I will.. Because of you..