🏥 Frustrating Hospital Admission: My Body is Freaking Out! 😰 (4/20/18)
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- čas přidán 13. 09. 2024
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Jaquie, I wish I could send an adventure in a box for you to enjoy from your hospital room! I can only imagine how frustrating this must be, especially when you continued to take care of yourself while on vacation. Since I can’t send you an experience, I send you so much love and well wishes, and I hope you start to stabilize soon! 😘❤️❤️
WELCOME BACK Jacquie...I am so sorry you are in the hospital...you can’t be happy and chipper every day when you have chronic illnesses...you have every right to feel frustrated...sending love and prayers your way as always from New York❤️💋
Hope you’re feeling okay. Best wishes.
Take it slow. Don’t rush.
If you need to take a break from vlogging, do anything you need to do to recover.
Stay strong!
Sorry to see you in the hospital again. Hope you get a lot of rest and care so you’ll feel better soon.
Hey you scrolling through the comments you are awesome and have an amazing day
Why thank you! You have a great day too
Megurine luka ♥️ You too!
Jaquie you just look exhausted. If you still need some time off from vlogging we support you. We want you feeling better for some more exciting adventures. However it’s very inspiring how even in the hospital you’re taking time to vlog and show your life. Feel better soon Harlow wants her momma back home! 🐶
I'm so glad you are surrounded by loving, supportive people. I hope you consider us viewers as part of your support system because I am certainly cheering you on.
It's not surprising that you had a flair up. One big day takes it out of you, and you had a few huge days concurrently. The fact that your trip was so full on for days and you didn't get a chance to rest in-between events made it so your body had no reserves. And while correlation doesn't equal causation, it could have been a contributing factor to the severity of your flair.
Maybe you should start charting and color-coding your rest times and stressers. That way you would have a better gauge of how far you are pushing yourself. If you chart your day by 15 minute increments and color those increments green = relaxation/sleep, yellow = schoolwork/tv/games, red = outings/cooking/chores/exercise, you might find a pattern to better gauge your limits.
“A loving God walking this journey with me”
Amen & amen sister! You trust in him with all your heart do not lean in your own understanding! Keep that faith strong 💪🏼 Best wishes!!! ❤️
Oh Jaquie, I’m so sorry 😐 I hope you’ll get better soon. It’s okay to feel down as you know, so just get through it as better as you are able. You are an inspiration for everyone. 🇵🇹❤️💐✌️
Only someone with severe allergies/mast cell issues understands the inability to sleep/rest, etc. despite all of the medications. The epipen makes your heart race, your hands tremble, it's an adrenaline rush, then you get the benadryl which knocks most people out and the steroids that make you heightened too. Your body and brain are exhausted, but the meds have you so on edge that getting any sleep, or any good sleep, impossible. I feel for you Jaquie. I hope you made it home today, but only if you are over the worst of it. You had managed to get a new allergist (or was that the immunologist you referred to) recently. Has she come in to see you at all? I know you are in good hands with the doctors you have, but it is still hard and frustrating as heck. Hang in there Jaquie. I hope things continue to settle down for you. You are in my thoughts. xo Heather🇨🇦
Heather D. Thanks for your comment. Everything you said is very true!
We appreciate you bringing us along. But also glad you are putting down the camera when you need to rest. Sending our thoughts and prayers. That you get home soon.
Sending love and strength and spoons your way! It’s really helpful watching your ability to be down but also find the silver lining without invalidating the fact that your situation sucks. You’re a colossal help on my chronic illness journey, and I’m so thankful for you 💖
I hope your body calms down a little bit soon! But I’m glad you’re being so well looked after
God bless you sweetie. Just remember where you came from a year ago! So down turns and reactions are going to happen but, it’s getting better and will continue to get better. Keep the faith and know we love you and Judd.
you’re in my prayers!! you’re so strong and it looks like things are already looking up a little bit! :)
I totally understand your frustration of having a chronic illness and how it affects your ability to do fun things without repercussions. I too have several chronic illnesses and if I have an active day today then tomorrow I have to rest. There is no two ways about it and I have to accept that. Thank you for being real about your feelings. Praying for you to feel better!! 💓🙏💓
I love you Jaquie. I thank God for you because you have taught me how to love and appreciate my life. God is working through your trials to touch sooo many people. I hope all the love we have for you is never forgotten because you deserve it. I'll be praying for your quick recovery and for peace. God Bless Jaquie! ❤️
I hope your body starts feeling and working a bit better so you can get home. Thinking about you always as you are one of the 3 of you online that help me hang in there. Different chronic illnesses, but spoonies and the same in the end. Know you aren’t alone and prayers are going out. 💕
I'm so very sorry that this is happening. I hope that the doctors and doing the best they can and are being very kind and careful. Take your time to get better and know that there are so many people that support and love you and want you to get better. I hope you are feeling better soon and can see Judd and Harlow
I’m sorry ur so sick. Feel better. You sure do have a hard road to go girl. Ur a tough girl, hang in there
Hi Jaquie, I just want to send my love and let you know how much your videos have helped me to pay attention to my body. I get so frustrated sometimes too but we both know God is with us no matter what. God Bless you sweetheart! I will be praying for you. God Bless Judd it is such a blessing to have that support. My husband is also very supportive. Don't know what I would do without him and I thank God for him. Praying for you and yours.
I had a mast cell episode today and I totally get it. Today was worse than the usual and it affected my breathing. Thankfully my normal treatment helped. I completely understand how mast cell issues can kick your butt. I’ve been really cold and tired all day after this morning’s reaction. I feel the exact same way a lot of the time, but being able to watch your vlogs helps me get through things. The reactions are quite annoying since they happen out of nowhere, like today’s.
Remember, part of mast cell flares can affect thinking and mood. I know I can get crazy depressed and unable to function normally...and I don’t realize how out of it I am until I come out of a reaction.
I hope you feel better soon!
There will always be bad times, but you are SO STRONG! I look up to you so much, and you help me to keep going when I have flare ups and I want to give up. Thank you for being so resilient as well as documenting your journey! It means so much to me and so many other :)
Jaq, I hope you get better soon, and prayers you continue with positive thoughts. Yes, God has you wrapped in his arms, walking you through it all. He sure loves you! Your an amazing woman, you are a very important part of this world of ours.. I pray you have the mental strength to get through the rough patches, and be if positive mind. Your so loved and respected. It's so obvious your very needed and loved! Rest well, feel better and I hope you get to go home too. xo
OMG I HAVE BEEN MISSING YOUR VLOGS A LOT AND NOW I SEE THIS OMG I HOPE YOU'RE OKAY, I HOPE YOU HAVE A FAST AND COMFORTABLE RECOVERY! WISHING THE BEST!
Only a Spoonie understands the phrase "concurring the shower".
Definitely.
Love and hugs to you, Judd & Harlow. My fiancée has a severe undiagnosed seizure disorder so I feel for you. Wishing you well. Blessed be xx
I find it harder to live with one chronic illness and I can't imagine having multiple! You are so strong Jaquie and I wish I was that strong.
Hang in there, take it easy. You've got this. Praying for you ❤️
I'm so sorry for all of this! Stay strong! I have a severe allergy to nickel and I have a huge fear of having to use my epipen someday.
That's weird because my mother has a severe nickel allergy too, Her whole hand swelled up once
I’m amazed you went through the trouble to film edit and upload this video for us knowing you are having to deal with all the pain. I appreciate all you do. I really really hope everything gets under control and you’re able to go home soon.💕
Hope everything goes well and you can go home early. It's ok to feel down. We are human we have emotions sometimes. Get well soon.
Greetings from Hawaii and sending you aloha and best wishes for a speedy recovery. I too like Fixer Upper and am glad it brings you some cheer. Glad your mom is with you now, too. Please get a good rest and don’t worry about posting. We’re here rooting for you girl!!! 💐🌺💐
Feel better. Remember, there are a lot of people that care about you. :)
I’m so sorry that you are back in the hospital Jaq!! I am praying for you sweet girl,stay strong!!
I am so sorry that you are going through this. Chronic illness sucks. It’s ok to be upset. I went on vacation and came home and was sick for two weeks afterwards. It sucks! You just want to be normal once in a while. Feel better soon and rest as much as you need. ❤️
aw, Jaquie,
You can’t appreciate the UPS without the down times. Our 🙏 are with you. I know what living with chronic pain is like, so many of us here do. We lift you up; you are not alone. Love, JoDe in NH
My lupus causes me to have similar allergic issues with physical overstimulation. I’ve got a trip scheduled for Denver in August. Although I can’t wait for the adventure I’m so worried about how my body is gonna react.
❤❤❤
Man, your body never does anything half-way, does it!!!
Thank you soooo much for letting us know what's going on, and having the strength of will to pick up the camera and also for continuing to be the Real You.
I do worry about you and your Jan-Jan, but I know you are both in great hands and family that comes together when you need them.
So much ❤❤❤ and good thoughts from the slowly thawing ice planet Hoth!!!
Fixer upper is my favorite hgtv show! I hope you feel better soon. Praying for you ❤️
Oh Hun feel for you. Rest and recover hun sending you gentle hugs
Hugs!!!!! hope your body goes back to your normal state soon.
Feel better jaquie. Stinks this happened but I'm so glad it waited till after the trip so you could enjoy Dallas:)
Jaquie hope you feel better! Stay strong, things will get better 💙
Virtual hugs! Hoping this flare up ends soon!
So sorry to see you're back in there !! 😔
Stay strong as always !!
Sorry you don't feel well. Hang in there and just relax so your body can recover, we love ya!
So sorry chin up you give me so much inspiration I cannot imagine what you and people with chronic illness go through
😢 hope you feel better soon x
Praying for you💟
I attempted the ER Tuesday myself and wasn't seen😔 My GI has been very unhelpful. Finally got into a different ER yesterday with an EDS knowledgeable doc. I got the feeling my GI is not well liked. I know I'm not happy.
Your so strong, you inspire me so much!❤️❤️
Sometimes I feel down too. When I see my peers and friends getting married, having children and traveling or working out and looking great, I sometimes feel frustrated and a little saddened. I have to rest and have set backs but most of the time I stay positive and stay close to Jesus.
Jacquie I’m cheering you on and praying for you.
I'm praying for you girl. Stay strong! This to shall pass, And you will be home again soon. I know its rough. Today has been one of those "I should go to the ER days, But I'm doing my best to handle my problems from home" kind of day.
I’m so sorry! You can do this! Sending you hugs and prayers!
About the time I was thinking, "Wow, you really gave Dallas your all!" you were saying it could have been a coincidence! Here's hoping your doctor can shed some light.
So sorry you feel this way, speedy recovery wishes.
Thinking of you sending love and prayers, get well soon!
I'm sorry you are havig such a hard time. I hope you get better soon!
Aww I'm sorry your in hospital again Jaquie 😔😟🙁
Sending you lots of 💖 and hoping you get better soon xxxx
I know this is not for everyday but in situations like this when my aunt was going through chemotherapy, She was super weak afterwards and couldn't shower, We bought her these adult " baby" organic wipes for when if by any chance something happened or if she felt dirty she can spot clean. Not a everyday thing but can help when situations like these. She was a person who showered daily so when she didn't she felt nasty so when she couldn't she used those. Hope it helps
You are amazing Jaquie🌹💕. I have you in my prayers. Keep moving forward, sweet girl🌻💕. Sending you lots of love, light and positive vibes, that you will make a full recovery. Go easy, on yourself🍀💕..
So very sorry you have to go threw this, :( you are a very strong person but sometimes you need to go at a much slower pace than you want to. Take it easy and hope you start to feel better soon
It takes me days to recoup when I catch a 3 hour flight from Canada to US. The waiting and preparing before a flight. The cramp quarters of the flight and getting to your actual destination is to much for my body. Being a chronic pain warrior is very difficult at times. Just get through it as needed then move on as the better days do come.
Dangit Jaquie.......so sorry. It has to be so frustrating........bless your heart. You are strong.....many prayers
Honey i feel so bad for ya. Anything your facebook family can do. We are all here for you. HUGS
Oh, Jaquie! I'm so sorry you are in the hospital! We are praying for you and your family.
Im sorry your having a rough time with your health. I know what its like to go through a lot of all at once health issues alone in the hospital. Sending support thoughts to you. Remember your survival thus far has been 100% Hope you can break out of the hospital soon and feel better. Take care of yourself.
sending positive thoughts your way! love you jaquie!
Fixer upper is my go to when I’m feeling down too! Love to you Jacquie
Hang in there!! Get some rest and know we are all rooting for you!!
Really hope you get to feeling better!! I enjoy your videos so much. I don’t have any major chronic illnesses, but I love your positive outlook and the way you handle things.
I’m so sorrry to see that you’ve had such an awful week, Jaquie. I hope this flare settles quickly and you’ll be home with Judd and Harlow very soon xxxxxxx
The wear is long and the journey is far but you've made it so far, you'll keep making it!
I know somewhat how you are feeling with the chronic illness frustration. I miss my life before cancer and chemo. And i wish i could get it back. But due to the reaction and permanent side effect from chemo, I am permanently disabled, and in constant pain. Wishing you the best
I'm feeling for you hun ❤ It's so frustrating when our bodies have these terrible meltdowns... It's totally ok to be down.... You are human beautiful & allowed to voice disappointment & sadness... I understand these emotions also. With EDS it is especially challenging because we are in a constant state of change. Chronic illness is not stable sadly... :-( You do absolutely amazing at coping. I hope things continue to head in the right direction... Progress not perfection as you say. I'm with ya hun & understand how rough it is ❤ Love Nicole from NZ
Its great they were able to put you on isolation because you're at higher risk for MRSA. Hope you get better soon! I bet you miss Harlow a bunch.
I hope you are feeling better. Hospitals are so uncomfortable sometimes. I hope you can sleep and maybe you can go home soon. I am glad that you have a good medical team.
I love Fixer Upper, too! I watch it in my PT's waiting room.
Sister, God loves you! You're not alone not ever! God bless you!
Get well soon and stay strong!
Praying you feel better soon!
Oh, Jaquie... All I can do is send you long-distance caring and prayers. ❤❤❤
In trying to figure out if the trip caused the flare I would look at the sheer number of chemicals that are used on the airplanes. They spray all kinds cleaners, insecticides and some companies even spray scent through the air vents. Each airplane can have this process done over and over and over, several in a day even. I have MCS, and most of the folks like me (and there is a lot of overlap to MCAS/MCAD) can't even dream of getting on an airplane any longer, and those that do usually go fully masked with as much skin protection as possible. I am so sorry you are ill, so I hope this might help.
I have mast cell activation. After a very bad flare on a short flight and extensive studying it apears to be triggered by walking on the runway to board the plane. Wearing a mask reduces by 95% particle pollution. 2'000'000 less 95% is 100'000, this is still an extremely high level to be exposed to,especialy if you must wait on runway before climbing the stairs. The physical effort of climbing the stairs with a heavy inflight bag increases your air/pollution intake also. If the wind is blowing in the right direction you have no worries if not your condition will worsen, to what degree depends on many factors.
Jaq, I feel you. We all just have to keep praying and moving forward.
Lovely Jackie. I feel so bad for you. I know I probably wouldn't handle it but I wish I could switch place with you for a week or so so you could go on adventures and don't have to worrie about your body. 😢💔 But I know you are strong and you have an amazing supportsystem and many of us who loves you and are thinking about you. Sending so much love from Sweden and I wish you the best girl. Love you 😊❤❤❤
I hope you get feeling better fast.💙
Sorry your in hospital but thank goodness you are getting help you need. Hope things settle down so you can go home and actually get some rest. Sending you prayers.
Aww I was just wishing for an update ... But this is not what I was hoping for :( I hope you get well soon! It was good to see you tho!
I am so sorry that you had to go through this again and so soon after your holiday. I hope that you get discharged soon but I am praying for you and your family. Take care and God bless you and your family xxxx
Thank you for posting Jaquie,I know it isnt top priority at all but it is nice to get updates on your situation..sorry things have got rough again for you..
hope you feel better soon 💕
“Get well” thoughts and prayers are with you!
I’m sorry that you got sick it sucks when your body doesn’t want to do anything but I’m very happy you are feeling better keep staying positive and strong 💪 love ya 😍😍😍😍😍
All of us are here to support you. I may have said this before but I'll say it again, your health is what's most important. You just need to focus on yourself at the moment.
Feel better Jaquie💕💕
anyone would feel down! you are stronger than you think.
Stay strong and hang in there jacquie love you 😍 hugs being sent for you and prayers
Plenty of get well wishes to you!! Stay strong Jaquie!❤️❤️
I hope you feel better soon!
Although it's not anywhere near as bad as what you're currently going through I can empathise because my body is also revolting against me.
The past month I've been dealing with what the doctors thought was eczema but later turned out to be ringworm (which is just athletes foot). In the meantime, I'd gotten sick and went to the ER and the doctors there admitted me because they thought I was having an appendicitis but thankfully after some tests they discovered that nothing was wrong so they sent me home (they thought it was constipation) but I was still feeling ill so I went to a walk in clinic and they told me I had a stomach virus. So I was told to stay home and go on a liquid diet for a couple of days but I was sick for about a week. Afterwards, my body decided that it'd be fun to repeatedly break out in hives for a few days. My legs look like a war zone because I scratch without realizing it and then I tear the skin and bleed so my legs are covered in scabs. We have no idea what is causing the hives though I do have a number of allergies, however, none of them has caused hives before so it's very curious. Oh and to bring it full circle, I now actually have eczema in addition to the ringworm. Yay.
TLDR: I thought I had eczema but it's ringworm (athletes foot), got a stomach virus and was sick for a week before having repeat hive attacks for several days. To top it all off, I now also have eczema in addition to the ringworm. Yay.
I would like it if my body could just calm down and have some chill.
Prayers you get better soon and get to go home! Sending big hugs 🤗!
I'm sorry your body is being a butthead, and reacting to the stress of your fun trip by putting you in the hospital. But thank goodness for modern medicine for keeping you with us!
I hope you feel better soon, and will be able to be reunited with Harlow at home!