G-Tube? NG Tube? What Are We Doing for My Vomiting? 🤢 (4/4/18)
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- čas přidán 29. 08. 2024
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My aunt had something put in place for her gastroparesis vomiting called a empiric pyloric balloon dilation. It's NOT the nuero stimulator that's usually mentioned when it comes to this. Mention it to your doctor or do your own research. She has been able to stabilize her weight with only 1 or 2 bad days a MONTH. Be your own advocate.
I must say, I love how Judd is with Harlow ❤️ At the end of the video it just warms my heart how he is with you two
OfficiallySavannah ❤️
I’m with Jaquie, it’s Aluminium Foil, there is no tin in it 😉
Alethea Ashby..In Australia we call it Alfoil.
I say aluminum foil but I read this artical and it seems as of 1990 it is scientifically officially aluminium, even in America, although the typical American says aluminum. www.worldwidewords.org/articles/aluminium.htm
However, when I wrote aluminium here, my spellcheck changed it to aluminum. Lol.
m.czcams.com/video/CL-wo61PMMg/video.html
Here is a funny example of regional english differences. 15:30-19:30 (The thongs part is at 19:10) Stephan is from Canada visiting Bondi Beach in Australia. He dislocated his shoulder. He is very funny in many ways but the part about the the thongs was the main part about English.)
I hate when people say Fawl????? Like what are even saying
I've never heard of Fawl. I looked it up and all I could find was acronyms for: From Amsterdam With Love, From Above With Love (band), Florida Association of Women Lawyers, Farm Assured Welsh Livestock, Family Adult and Workplace Literacy, and Fine Antiques William Limited. The Urban Dictionary did not list anything. If someone just said it and wasn't typing it as an acronym for something, my guess would be slang for "for real" but that's probably not it as it would probably be in the Urban Dictionary or something. So, basically I have no idea. Anyone? (Hopefully all this funny talk about language will help Jaquie take her mind off of medical stuff for a few. I hope she watches that video, I could't stop cracking up at Stephan. Maybe she (and anyone here) may like the show Bondi Rescue as well, I seem to be addicted now.)
I literally think about your MJ voyage everyday! I’m praying you have a wonderful experience and it helps your symptoms profoundly! I hope it helps improve your standard of life the way that you need. And honestly, you’re further along in your MJ journey than I am and I’m watching with bated breath and crossing my fingers that it’s successful for you! (And I’m sure I’m not the only one following along closely to this process bc we’re walking the path too!)
Also, that chicken recipe looks genius! I’d love to try that. Also, have you guys ever tried a steamer? It’s been a really easy addition to our kitchen, thank heavens! We can throw our veggies in there to steam and it’s relatively quick and easy...and tasty! Man, I am not the cook that you are so I take all the help I can get!! Lol...I admire all in this community that love to cook and are so freaking good at it! I married into a family of good cooks, so I’m learning lol. Anyway, I digress. I’m so glad you had a good doctor visit. I’m even more grateful you successfully escaped the bee!! There’s moments things happen to me and then I look around and hope the neighbors didn’t see what just happened. More than I’d like to admit lol.
Thank you for sharing this blog today. Blessings to all here! 💕🌸💜
I love how you pronounce things... aluminum, vitamin... lol! I had no idea what you were talking about until Judd pulled out the foil.
I really hope they find a solution soon, it’s so unfair that you have to go through this every night. It’s got to be more than a month since you went to the Medical Marijuana Dr surely.
I have the same type of fear with spiders, so unlike Judd, I get the bee thing.
Yah Judd is cooking again..lol
I got approved on the 15th of March so not quite a month yet but it feels like it has been a while
Chronically Jaquie ...Wow it feels like it was a long time ago. Hang in there.
I'm sure not a single one of your doctors have told you this but if you find the right Dr to do it you can have your stomach completely removed. They then connect your intestine to your esophageal tube. Bypassing stomach all together. Removing all pain and nausea . I had it done and I'm now leading a completely normal life. I eat all pureed food of course and can't lay down for four hours after I eat. Look into it. Its invasive but it's so worth it.
Didn't know about baking soda and water after vomiting. Thanks for the tip. Congrats on getting approved for the medical merijana. I have a feeling that u will get obtained it. Just be paitent.
My son is on medical Marijuana, has a pacemaker, had botox and pyloric sphincter surgery and none of it works. He is going for surgery next Thursday for a j tube and a g tube. He is hospitalized on an average of 2 times a month for atleast 5 days. I hope it works for you❤
Al u mini mum! We got it, Judd is wrong. Lol. If I get bit by a ant, big ones, I have to get Benadryl down right away. I pray 🙏🏼 that you can get some relief and rest. Hugs from Donna♥️ and Kitty🐾
At least you didn't leave the house with no pants on! I've forgotten to put a top on before and only realized it when it was cold outside.
I don't have nausea, I use MJ for severe pain. I don't feel safe transferring to/from my wheelchair when I'm "high" so I take an edible (the chocolates are delicious) when I'm in bed. I eat a square and drift off to sleep. I noticed within a couple of days that my pain was much better. It also helps me sleep much better. I rarely wake up several times during the night. Good luck with trying it. I hope you get some relief.
😉😂🙃♿️💓
MJ is a wonderful thing and definitely made a difference for me. I'm looking forward to hearing your outcome
Harlow is so fluffy. Her tail literally looks like my hair.
Oh Jaquie, you're awesome! I love your reaching hand. "Screw vicariously, I can have a sip of that!"
Bees don't sting for nothing. You would have to be really close to or messing with their hive, and you would hear the hive. Or if you are trying to hurt it, so basically in defense. I understand though that it's a fear response but learning more about them helped me not be as scared
Hello everyone! I love this very much:
WHEN IT'S HARD, I ALWAYS REMIND MYSELF - If I give up, it won't get any better✊🏻 I pray for every sick person, plz be strong🙏🏻
Юлия Синельникова ❤️
blessings 💜❄️🌸💕🍄
I believe in you Jacquie! I'm sending you lots of love.
Thank you for the dental advice. I've had severe gastroesophaegal reflux and regurgitation since I was five years old. I'm seventeen now and my teeth are starting to crumble away now. I'm on the waitlist for dental surgery to salvage as many teeth as possible.
I'm always nauseous as well. Oddly I haven't vomited in years. I only get dry heaving and reflux. I absolutely agree that dry heaving hurts way more.
I have been having a big problems with dental care lately. My mouth is constantly dry and tastes horrible. My tongue is cracking and discoloured. I totally get what you're saying about not living in a big city. My family dentist always tells my mom that I'm being lazy and that's why my mouth is so bad.
I rarely encounter a medical professional that is willing to look at the whole picture and attempt to treat my complex health issues.
My mouth isn't bad because I'm lazy. It's because the majority of my medications cause dry mouth, my teeth are exposed to large amounts of stomach acid, my arthritic hands fact grip a tooth brush, my sensory issues exacerbate my dry heaving, and I have a condition that causes thin tissue like mucus membranes to ulcerate and rupture.
As always you and your family are in my thoughts and prayers. I'm praying that the medical marijuana gives you some relief. My mom is completely against marijuana use; whenever someone suggests MMJ as a treatment for me she refuses. I understand though because who wants their child to use illicit mind altering drugs.
Lots of love,
Max 😊
So is finding local doctors a replacement or an addition to your doctors that are further away???
For people suffering from gastroparesis, marijuana can be very helpful if consumed in a balanced proportion. Marijuana promotes the digestion of food and helps repair the vagus nerve. Not only does marijuana promote the digestion of food, it also helps removing the signs of gastroparesis including nausea, pain in stomach, abdominal swelling etc. Marijuana promotes hibernation and relaxes the stomach and its muscles. As a result of which gastroparesis is eased in a very small period of time as compared to other ways of treatment.but Excess of everything is bad. Marijuana has immense benefits for human health but all the benefits are dependent on the fact that marijuana is consumed in a balanced proportion.
When there is no cure it’s hard all we have are treatments to ease all the pain and inflammation hope you are feeling better soon and find a good doctor that helps you all the time love using baking soda also for every thing that I can use it for..rest doesn’t help me I just have this all the time
Im so sorry you are having such a rough time ... Lord i ask that You would wrap your loving arms around Jacquie healing her body ...give her peace that passes all understanding ....i ask this in Jesus name... Amen.... Hoping things get better for you .
***hi jackie! i have an idea. take what you like and leave the rest! fingers crossed though that this works: my best friend has a form of dysautonomia that is a bit different than yours, a very rare form: FD (familial dysautonomia). although a bit different, many of the sxs are the same. she (and all FD patients) have what's called CYCLIC VOMITING SYNDROME when the autonomic nervous system gets overloaded. these sxs can get confused with gastroparesis sxs, but the two are treated VERY differently. cyclic vomiting syndrome does NOT typically respond to zofran. ATIVAN or VALIUM (benzodiazepines) is used routinely for FD patients when they are **"in crisis" (what physicians call this horrible form of cyclic vomiting syndrome.
***some of the most cutting edge FD research and treatment is done at NYU. Dr. Felicia Axlerod is the lead research physician and clinician in the field. She recently retired and I cannot offhand remember the name of the doctor who took over. I can go ahead and give you the website that might be an excellent resource for you. as you know, one problem with having dysautonomia, is that most doctors don't know a lot about it, and one ends up having to go to a thousand different specialists, and not actually treating the root of the problem. i wonder if going to a dysautonomia specialist will help you better get control of the terrible symptoms you are experiencing. i'm no doctor, but your nausea and vomiting sounds more like a dysautonomic cyclic vomiting situation than just gastroparesis.
i sure hope some of this helps!
warmly,
jessica
Prayers. You are an amazing woman and give so many of us strength, thank you so much.
quote of the day "screw vicariously I can have a sip of that!!" 😂💖
It's so cute seeing you two bicker and banter back and forth.
Dry heaves are the worst!! It causes so much pain. Sometimes when I have vomiting spells and it's just dry heaves I'll sip some ginger ale so I have something to come up. Hugs from Clearwater
I am TERRIFIED of bees. If I even hear a fly buzz I will spazz. I’ve been stung 4 times in the past and it’s not even that painful so I don’t know why I’m so scared. There was a hornets nest outside my dorm room and it took a few days for them to remove it so that was an exposure!
I believe in my heart that MMJ /CBD will make all the difference. I have done a 180 in my overall health since starting it. Many prayers an gentle hugs
I’m so sorry you feel so sick 🤢 i have chronic pancreatitis and have the nightly nausea which zofran occasionally helps with but the dry retching, I totally get. It’s truly awful.
Bless your heart.
Hope they find a good solution for you and you get added to the list to obtain medical MJ soon. Prayers for your tough nights. And wow Harlow grabbed that cube sooo quickly. Judd’s dinner looked so yummy.
Your on the right path. Just have to wait for the slow af system to do its job. Your such a trooper. Very inspirational. Showing the good and the not so good. 💕
Hopefully your medical mar will be ready soon! Dry heaves are very painful if you've ever had abdominal surgery in the past. Please don't push for putting a ng tube in and remove it when your done or having a medical professional do it without flouroscopy. With your ehlers danlos syndrome and your anatomy, you are at very high risk for perforating your esophagus and stomach! That is a major life threatening problem. It doesn't matter how careful people are when your skin stretches and tears easily. Once my G-tube my gtube was gone, the doctors at the transplant clinic would have me vent my J-tube just like we used to do with the gtube. If the episode was particularlybad, they would hook a urinary catheter to my jtube and left it that way when I was no longer running My jtube feed. Sometimes it helped and sometimes it didn't but it might be worth trying to see if you can get a little relief from it. Take it easy! I'm sending healing thoughts your way!
You are so strong! We are all here wishing you the strength and courage to keep moving forward.
Something to possibly try. I crush up promethazine and mix it in a small amount of lotion. I massage it behind my daughters ear to help along with the promethazine already in her system. Our local pharmacist suggested it for my daughter. It helps her, so I thought I would share that with you.
I just want to give you a hug. This will not last forever you will get past it. Sending tons of love to you
I'm sure this is a naive question Jacquie and you may have already addressed this, but is a proton pump inhibitor med to prevent the stomach acid in the first place a possibility? So sorry this is ongoing. These things just wear one down, and is so frustrating.
I am on several already but they only do so much
First I have to let you know that you have explained it very well the first time. I'm sorry I feel this way but regardless of spoonie or not, people seem to like make us repeat over and over . I'm glad that your gp is working to make sure you are going to be taken the best care of. Same Jaquie with the bee...... stupid gravity!
So I’ve had nausea and vomiting for the past 18 years with no definitive cause (but lots of “maybe it’s this, or this, or a combination of these things” - I’m sure you know the fun of multiple chronic illnesses and how they can interact and sometimes it’s hard to tell what’s causing which symptom). It’s generally an all day event (though worst in the early morning through to about noon-ish), and while Zofran helped for awhile, it doesn’t always work anymore, and none of the other meds did or I had serious side effects that took them off the table.
I used to live in Canada and when I was 17, I was given Nabilone to see if that would help with the nausea and vomiting (henceforth known as n/v). It worked amazingly. Took away all the n/v, but unfortunately the cognitive and mental side effects - the high, essentially - were too much for me to function with even at the lowest possible dose so that option was off the table pretty quickly.
I ended up moving to the US in 2008 and about 1 1/2 years ago, I tried medicinal marijuana, specifically through capsules first, and then when that wasn’t working and I was finding it difficult to even keep it down long enough for it to do its job, I switched to vaporising it instead. I ended up on a dose that was 50/50 THC/CBD, and I was taking it for n/v and also really intense, medication resistant muscle spasms.
This helped with both symptoms more than anything else I’ve ever tried. I could be super nauseous and on the verge of vomiting, and just inhaling a little bit from the vaporiser, not even a full “dose”, would knock it off in seconds. It did the same for my muscle spasms.
So keep hope up that it will be helpful! I truly hope it’s an answer for you. I know what it’s like dealing with relentless n/v and other chronic issues and being able to manage some of my symptoms was something that boosted me up out of a deep depressive episode enough that I could gain some perspective and do what I had to to care for my physical and mental health.
There is a downside for me, but I’ve been told by my doctor and the pharmacist at the dispensary that my experience is atypical so definitely don’t stress or worry about it at the moment, but I personally just don’t like how the THC makes me feel - I don’t like the “high”, and just straight CBD didn’t give me any symptoms relief. It could be that it’s interacting with the other medications I’m on in such a way that it’s unpleasant, or I might just be one of those people who just isn’t a fan. Either way, I still keep it available and on hand for times when my Zofran has failed and I need a break and to be able to eat. I take in as little as possible to alleviate my symptoms and I stay home while I’m under the influence of it.
I’m not saying my experience will be your experience - though I do truly hope it helps you feel better and manage your symptoms better. It’s definitely a better alternative to more surgery and tube placements (and I say this having had a open surgical J-tube placement in early December of last year that unfortunately led to an infection and displaced tube due to issues unrelated to the n/v. And now I’m heading back, this time to my GI instead of a general surgeon, to have a PEG with a J extension placed under sedation next week. I’m hoping this one works and holds up better than the last one because having it was incredibly helpful in keeping me hydrated and well nourished as needed.
Anyway I’m sorry this was long and rambly, but I wanted to give you some extra hope that the medicinal marijuana could be exactly the breakthrough you’ve been needing to help manage your symptoms. Here’s hoping they get you in their database ASAP 🤞.
About 6 months ago my gastroparesis was out of control and I was vomiting at least 50+ times a day and nothing was working. So finally I had had enough and decided it was time to go to the ER. They gave me IV Haloperidol and it really helped. I told my GI doctor how much it helped and he gave me a liquid version to put down my jtube. For me it’s been a huge help. I know you get lots of recommendations but I though this was worth sharing as many doctors I’ve talked to about it say they have never heard about it. I hope you get relief soon because it’s no fun always feeling yuckie.
Robin Lodge I found haloperidol good too!! So many people are scared of it because of its drug family but I wish more people would give it a go.
Ok Judd, that piece of broccoli you crammed in your mouth looked like a whole freaking tree! Lol 😂! I think I just ate vicariously through you too! I so miss food sometimes. Jaquie, I continue to pray that you get relief very soon. Big hugs 🤗 to you all!
Dry heaving in definitely worse than actually vomiting in my opinion. It’s almost like your body wants to feel something coming out and when there’s nothing left it just keeps pushing harder and harder to do so.
I don’t vomit I’m just nauseous nearly all day everyday. I take phernigen and Zofram but they don’t all ways help. Good luck 👍
My meds do not always work either it is a struggle but we are strong!
The bee probably died laughing. :)
My grandma has GP and tried Medical MJ and well technically it wasnt legal.. but keep it on the DL. And it did wonders for her she was definitely eating a ton haha but she didn't like the high feeling. She is much older so I'm sure it really effected her differently, but I'm hopeful it will work for you!
I feel so bad for you. Bless your heart. I pray for you all the time . God bless you.
I go through vomiting and dry heaving episodes. It leaves me feeling unwell for days. Thanks for the advice concerning dental care.
I am sorry thing are very hard you don't deserve any of these illnesses love you so much Jacqui hope things get better for you soon sweetheart you are so strong
I love hearing you say Aluminium and Vitamins right. makes my british mind very happy 😂
I hope you feel better Jaquie! Keep fighting on!
Love you Jaquie! Thank you for sharing your experience; it makes so many of us feel less alone!
Why does it happen around the same time every night?
Beauty Banter My body has that too, like clockwork
Maybe because shes laying down
man Judd made that broccoli look really tasty and I'm not even a huge fan of it unless it's in cheese soup
I so hope mm works for you 💕 I'm having a gastric emptying scan for suspected gastroparesis on Wednesday and I'm so nervous bc I'll have to stop some of my meds for a few days including mm which really helps me
I love and miss broccoli. It means almost instantaneous gastric pain for me now. I used to eat it a little differently than most people, though. I liked to dip it in a mixture of soy sauce and wasabi like I do with sushi. It was sooooo good.
I’m from India and we study British English in school (mostly) and I say the words the way you do! Aluminium, vitamins, aeroplane all of it! 😬
It absolutely sucks seeing you that sick and I really really really hope you feel better soon! I totally understand waiting for medical MJ and giving every other option a chance and stuff but man it’s rough seeing you so sick 🤒 I’ve noticed the apples of your cheeks always get bright red when you have a violent vomiting/dry heaving spell. Almost like a rash? Do you scratch or something?
haha i love how judd was messng with harlow's lips!!! i do that with my black lab its so funny
I have heard that if you put food coloring in your formula it will not hurt anything and you get colored (PINK!) formula. I checked on it turns out there a few videos on CZcams.
Milk is really good to "wash" your mouth after vomiting (not swallowing it)
Unless.... even the smell of milk can make you vomit 🤦 (like me) also the chewable tums are also helpful. I can only use the pink/cherry/whatnot flavor after throwing up tho. For some reason the others [especially mint] make it worse. And sometimes the flavor 'helps' in not tasting vomit, but sometimes even that can get me started up again.
Hey jacquie just reminding u to stay hydrated because once you get dehydrated it can aggravate nausea but I'm sure u know this. Just sayin it always helps to have lots and and lots of liquid hope you feel better.🤗
Hope you start feeling better soon. ❤️
Omg 100k it feels like your subscribers just went up so fast wow
I feel you I am hoping they find the issue with this endoscopic surgery I have so much issue eating food T.T
Do you get your nails done? They look fabulous!
Where is your father from? I know British English people say aluminium and vitamins differently than American or Canadian English.
i love cooking things in my crook pot even though i can't really eat them put my mom loves when i do i'm making potato's sauerkraut kielbasa sausage it is like a Pennsylvania dutch dish my mammy-grandma made then showed my mom and now i make it we all make it different though my mammy-grandma would cook it on the stove my mom made it in the oven i like it in the crook pot and u can put beans in it and other things if u went it taste good but i have a feeding tube to and achalasia were if i eat it will come up but i make it for my mom and we have company coming over for super so it will be a good night
Dry heaving is worse than throwing up to me. Mine have always hit when I get up in the morning.
Love you jaquie. You will always have support from me, I hope these Drs fine more research and everything. Is there a way that i could privet message you on something cause I wanted to talk to you and ask you some questions when you feel up to it. But yeah when i watch your videos and besties videos i feel as if im there with y'all but a distance friend :)
I live in a small town and every physician within an hour radias seems to have labeled me untouchable pcp and gi. I just keep fighting and hoping to find someone to offer relief. Hoping you find relief soon!♡
I understand your struggle! Finding a good PCP has helped me as he is referring me to doctors
Ive had bees randomly land on my fingers. I had no idea what to do!
I hope the process goes faster so you can find some relief!
Have you ever tried taking ginger tablets or capsules for the nausea? Or eating a small piece of candied ginger? Works great for nausea....and the candied works fast but ginger is a "hot" spice so many don't like to eat it. The tablets work great for my RA nausea after taking my meds which always make me nauseated....just a thought and it's natural...
Gastroparesis sucks. My gastroparesis has been bad the lat few days. I don't throw up, but I burp a lot. 🤗🤗 Takeit easy.
Hey Jaquie, As soon as you get approved for marijuana you can get capsules made with 85% CBD oil and 15% THC oil. That way you won’t get high but get the benefits from it. It should get rid of all your Gastro paresis issues. Be strong 💪 and keep moving forward young lady..👍
oh that's bizarre... I never noticed that Aluminum can be referred to as Aluminium (look it up). It's a dying term, apparently.
Judd and jaq, are u guys excited for Ready Player One?
Harlow is honestly the best dog ever !
I have a bee story too actually, I was walking my dogs in our backyard and I heard this buzzing noise behind me. I turned around and saw this WASP like 6 inches away from me at eye level, you can imagine my reaction to that. I started running and the wasp was flying close behind me, I still don't know what it was after other than wanting to see me scream and run around the yard to escape haha!
sam 😂
As someone from Australia, I love that you say aluminium!
Jacquie, Your father is right about the pronunciation of aluminum! We just don't say it that way in the States.
"screw vicariously I can have a sip of that"
*drinks* "no you cannot..."
You and Judd are so dang adorable!!♡♡♡
Hang in there lots of prayers and lots of love.
If the marijuana doesn't work do you think the pain was because it went to your jejunum and stomach. If it goes just to your stomach it might not hurt the same. The J portion won't be twisting any more.
Wait, I thought you were going to get a DJ tube? ha ha Janice and her tube names
You are one strong woman and I adore you for that.. x
Has Judd ever tried roasted broccoli?? Omg! Mix that with some cauliflower and look out!🤗
I don't know how you feel about essential peppermint oil. I have gastroparesis myself but mine isn't that bad yet. Essential peppermint oil I dab a little on my wrist and it helps with quilling the nausea. I hope this suggestion may help you.
Crystal Novak almost everyone with chronic illness knows essential oils are useless.
I'm sorry to say this but a lot of people that I know here in North Carolina use essential oils and they help and they have helped me a lot not saying that it works for everybody but it helps some people.
Have you tried sour hard candy? I never would have believed anyone if they told me, but.... it can actually help. Something about your brain not being able feel nausea and sour at the same time???? Idk. Of course it is no miracle but ya... i find it most helpful with car sickness too.
Why don't you try the ng as you've never tried it and if you throw it up you won't try it again but maybe it could surprise you and stay in!
Random fact, even breathing broccoli gives me an anaphylaxis reaction...
Which new med are you trying for your GP? We’re struggling to find something that will help me as I’m still in the hospital dealing with intractable nausea and vomiting.
Hahahahha. I should wait till the end to comment everything at once. I can move so fast when I hear buzzing. I HATE HATE HATE bees
8:03 lmao Judds yawn is really long
I’ll be praying for you! I’m a strong believer in Christ and I know you are to! I believe He will show you something new for your gastroparesis!!
Uh oh all that broccoli is going to make him nuclear 💨 😂😂
i'm so confused about what judd said about the tin foil - we only call it tin foil over here in ireland, but i've never met an american who called it anything other than aluminium foil 😂
I feel bad for what you go through
As a Canadian, I just say aluminium or foil paper.
Oh girl I know what you are feeling my back will not behave it's hurting
Honey you don’t want a NG tube. They hurt so bad and they tear up your throat. I never got used to mine it just drove me nuts the whole time. Have you considered Marinol?
do you pop blood vessels around your eyes and such when you vomit? i do that a lot when i vomit. they are really fine so you can’t really tell unless you are close-ish (it doesn’t look like a black eye, the veins are just way more prominent and look like spider webs across my eye lids and under my eyes until they heal and then you can’t see the blood vessels anymore).
Sometimes but mostly my face flushes and becomes red