Realistic Nighttime Routine | Ostomy, Crohn's, & Regular Life | Let's Talk IBD
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- Äas pĆidĂĄn 28. 06. 2023
- Just a goofy vlog sharing my nighttime routine. It involves minimal medical management (thank goodness), but it reminds me of a time when I did nasogastric tube feedings and my nighttime routine was a bit more complicated! Thankful for the point that I am at today with stability in my health.
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*This video is not meant to diagnose or treat any illness or condition. This is for entertainment purposes and to get you thinking! Please ALWAYS refer to your physician for medical care.
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Hi, I'm Maggie and I have Crohn's disease. I am thrilled to be here sharing my personal experiences with Inflammatory Bowel Disease as well as living with an ostomy. I'm proud to share a little bit from a clinical experience as well, having worked as a GI pediatric nurse and ostomy telehealth nurse. I am so glad you are here. â„ #ostomy #ibd #chronicillness
The fact that your hubby calls you âkiddoâ so cute!!!
It's my favorite :)
Enjoyed watching your nightly routine. Also, I must add--you shouldn't be worried about being without your makeup. You are very naturally pretty.
Hi Maggie, thank you so much for sharing your routine with us.
Hugs to you and Zak đđđđ
Enjoyed your daily routine video, and the pups of course.
Maggie, you are amazing!! So inspiring. Keep living your best life. You and Zak are awesome with the best sense of humour. đ
I totally loved loved loved this night đ night routine Maggie đ thank you for sharing â€
Thank you for sharing your evening with us. Take care.
I can't wait for this weekend
Your natural and i love all your blogs. Appreciate your sharing bravery
Do more you are so calming to watch. All the best
Every video that I've watched that is sitting down chatting in the intro, I think ooh that is a nice jumper/sweatshirt! So I keep browsing for sweatshirts online, but it is so warm in the UK right now so I can't be wearing jumpers! â€
I *always* get stabby butthole pain every cycle during the ovulation period, I dunno why! But it hurts sooo bad. Glad to know I'm not alone *hugs* that is weird you still get them even with no booty hole! I also get lots of vulvar pain and that hurts like heck too. I have PCOS and PMDD so I've just assumed it's related to that.
Happy day Maggie God is with you forever take care and stay healthy keep telling your beautiful story you are the best friend your channel the greatest
Hi Maggie. This is a nice homely video. Thanks for sharing. Those burgers looked nice. I have had to give up bread, pasta, etc, on account of not pooping but I long to be able to eat that again with my fish.
Happy 4th of July to you and Zack
I enjoyed watching maggie's night time.
You are awesome!!!
I like those kind of maps you have on your frig
Love you and your family thanks for sharing â€đ
Dear maggie †i too have ibd at night time its a nightmare sometimes peristalsis goes mental then suffer the day time associated drowsiness
Watched ur video. Thanks for ur conpanyâ€ïž
Could the rectal spasms be from lifting that 50 lb bag of dog food? Love your videos!
I was told never to lift over 15 lbs with my osteomyelitis. Hernias happen too easy
I get that same type of pain! Mine started after my hysterectomy, and it has gotten bad enough that I almost pass out.
Ouch! I'm so sorry, I get it too but still have everything in tact :(
I have those rectal spasms also. The only way I can get them to stop is lay down on my back with my legs flat also. It takes a few minutes until they stop but it works every time. Sitting doesnât help me at all.
I should try that!!!
Those burgers looked so good!
07:26 You mentioned rectal spasms. The culprit could be those tricky Prostaglandins. Because a person who doesnât have part of their bowel tract and an anus anymore can still be affected by Prostaglandins at anytime but in particular when women have their monthly Moon-Flow. But of course if it becomes Real bothersome and gets super painful get it checked out ( which Iâm quite sure You will Maggie)âŠ.. Going off on a tangent here, I know. Just wondering âout loud â so to speak. Could prostaglandins be one thing thatâs involved with Phantom Limb PainâŠâŠ. âïžâźïžđ
I wondered about the sleeping time with an ostomy, I guess the body simply learns. I wonder is the phantom pain (in an area without "the usual equipment") analogous to the phantom pain people can feel with missing limbs? Hope the infusion and the weigh-in went well.
Hi Maggie! Those burgers looked delicious.
Maggie: A dog will be a dog. If you're sleeping they just love to lay on you. Maggie, if you need a cyber brother, I love to fill the position. May you and Zak have a good 4th of July.
You rock.
Your nighttime routine sounds fabulous, Miss Maggie.
I think it is essential to get your ostomy cleaned up and changed every day, isnât it?
I empty multiple times a day, but only change the whole appliance every 3-4 days! :)
Is it cold out there? You have a lot on I would be fanning myself lol Thankyou for this video
Do you have a video on what happens with your weight when you have your colon removed? I've just found out I have to go through this so would like to know.
Please talk about electrolytes problems n how you deal with that problem?
Iâm totally in love with you and Zak. Your energy is so upbeat and positive. I do not have your illness but Iâm drawn into your stories. Very informative and interesting. You seem like you would be an awesome RN. Iâm new to your channel. Is your illness why you donât work anymore?
Aww thank you!! And yes - I had to leave my hospital when I had my proctocolectomy surgery!
@@LetsTalkIBD đ
Is it not possible to work with an ostomy? Or is it the fatigue?
Hi :) Have you ever considered getting checked for endometriosis? I don't have any ibd issues, I just enjoy watching your channel :) Through the age of 17 - 19 I had a lot of issues which worsened each month (at some point prior to my periods) where I couldn't go to the bathroom due to feeling a lot of pressure to where it seemed like I would break some nerves whenever I needed to go. Got so bad I went to the Dr, got prescribed the pill, it helped with symptoms. Went off the pill and it returned, although milder. I ended up getting surgery to having the endo and scar tissues removed. I haven't had issues like that since.
I had surgery where a lot of scar tissue was removed but it wasn't endo thank goodness! I have adenomyosis though!
@@LetsTalkIBD Just looked up adenomyosis. I've never heard of that one before. Maybe that's what's causing it, pressure being pushed towards that area. It's amazing how resilient us females are with everything we have to go through. And to the ones who have some sort of illness/chronic illness on top of all that, you guys are the epitome of resilience â€
Are you ok to eat tomatoes? I havenât had tomato in 9 weeks ( since operation) and I love them. Iâm not sleeping very well at night as I keep getting pins and needles going down both legs and canât sleep, donât know if thatâs from my colitis or something else , a month before my proctocolectomy I found I had a growth on the base of my skull and this might be causing the pins and needles , Iâve had both an mri and a CT scan and they donât think itâs serious but still need it looking at.
is it possible for you to do a "how i cut my hair" video?
What brand Ostomy bags do you use?
I thought that you two were pescatarians? đ đ. Did I imagine that or did you change?
I am so glad that I am not the only Crohnie/Ileostomate that has to nap. I can get a decent sleep at night and still need an afternoon=/early evening nap. If I donât, like you mentioned, I have to go to bed early and canât spend time with my sweetie or will fall asleep on the couch while watching TV.
We were! We switched our diet back and I think that's a big reason I started gaining weight!
She started eating meat again a while ago, in the hopes it helps with her output, I believe. (someone correct me if I got the reaso wrong)
@@LetsTalkIBD I try to never question anyone about their diet as I suffered with an eating disorder, but I was curious as to whether I remembered correctly. We are trying the Mediterranean diet as it is good for reducing inflammation. Weâll see..,đ
Electric fryer! lol
I have an electric grill because my stove ran on gas and it was the only thing in my house that ran on gas so I got gas cancelled.
Your night routine is similar to mine without it I would be lost and my husband is like yours very helpful and supportive...oh my spasms happen after lifting something heavy...could that be why you have them?
Your awesome. â€ïž. Intelligent funny and very sweet. God made you uniquely
How many times are you getting up throughout the night to empty your bag?
That was a portable Griddle. Great for pancakes for large groups. You donât comb out your hair after your shower (it looks uncombed).
I brushed it actually but it gets wavy as it dries!
Maybe it is where you lifted that heavy dog food bag. Just a thought.
Same with makeup no worries
I don't eat after 6 pm. I once ate at 7 pm and it wasn't a good idea.
Counter top griddle
Maggie do you get you in the middle of the night the empty your pouch /bag ??
Something I have to.
Yesi wake up also
An I check mine few time I'm middle of nite I have a pad on my bed just in case of leakage...
I get rectal spasms when Iâm on my period too. Super sharp pain and it sucks!
For me it's not during the period but ovulation! I have no idea why, also crotch pain D:
Me too! They used to bring me to the floor until they passed. Now nearing menopause at age 49, and I rarely get them anymore. đ€·đŒââïž
Iâm 8 weeks out from surgery. How many times a night do u have to empty your bag? How many times during the day? I just having a terrible time getting rest n napping.
This is a serious question: Can you sleep on your stomach? After you got up from your nap and showed us your full bag, it occurred to me that you probably have had to train yourself not to flop over onto your stomach in your sleep. Thank you for your videos and for demystifying a condition that most of us are aware of but know little about.
I can! If it starts to get full, I somehow flip myself over, but I don't often sleep on my belly!
Thank you for asking this question, I have an ostomy and I was wondering the same thing
I have an ostomy because I have no bladder so itâs a little different but I do sleep on my stomach sometimes and it will get just as full if I drank too much in the evening. Itâs been a year and a half still getting use to it.
To Maggie, Cherie, and Wendie: Thank you all for responding to my question. I almost took it down after posting because it occurred to me that it was just nosy. But it also occurred to me that one of the reasons that Maggie does these vids is to teach those of us who havenât suffered through the pain and frustration that you folks have about what life is like with your conditions and the challenges in adapting to the âmodificationsâ required to treat them. Having no experience myself, I wondered if flipping over on oneâs stomach with a full bag during sleep could lead to disaster. Or at least a mess that is so much worse to deal with when you are half-asleep. You all deserve the greatest admiration for dealing with what you have all gone through - and are going through. We all do what we have to, but some people have more obstacles thrown in their paths. I wish you all well.
I sleep on my side (right more than left) and roll toward my stomach and don't have a problem with it. Also, it cracked me up when you couldn't think of the word griddle. I thought those senior moments only happened to people my age and I'm 43 years older than you.
Luckily I donât have these deseases but found your channel. Your videos are interesting. What happens to the gases inside you? Do you still have them? Is it different when everything is shorter?
Gas goes out her ostomy bag instead of how it comes out normally.
đŒ
Your dogs are funny
Like u sharing ur routine in a video
â€
My sinus infections stopped when I fixed my deviated septum
Maggie, How did you defrost the meat so quickly?
I know you didn't ask me but I always put the meat in a bowl of scalding hot water to thaw it quickly :)
Bruno too funny n cute
You're a kick!
But it's one of the things you live with having a osteomy. Your healthy in a way I feel healthy The Sundays
Griddle pan
Griddle
Idk how you can take a nap with an ostomy. Even with Imodium I canât sleep during the day
Every stoma has a mind of their own!
Itâs a griddle.
having hamburgers tonight!đ
Hi Maggie! maybe the sac of dog food is to heavy for you. Please dont carry any heavy stuff!!!
Don't worry, no backs were pulled and no muscles were strained!
You are adorable.
you will love...
dog
food
advisor
dot
com
Just saw a shadow lol don't worry
Like that sweet cool called u kiddo
Are bad as you know
And I will take one day of constipation LOLđđđ
I wonder if you have adhesions or scar tissue. Next time you see your Gastroenterologist ask. Everyone who follows you on You Tube has some idea or remedy so I guess I am not alone in offering unsolicited advice. Forgive me!
That is a griddle. An electric griddle. They are fabulous. My mom had one and so did I when my kids were little. I had one of those pastry bags and a narrow nozzle and I would make breakfast initials for little people. I would spend Sunday mornings flipping Cs, Ms, Rs, Ss and Es.
Your bedtime routine is lengthy and you think it is different because you have an ostomy but mine is also lengthy because I'm old, have night meds, a crazy oral hygiene routine to prevent dental bills, and I also go through the face cream thing. So, not too different. You empty bags and because I have irritable bowel I spend lots of time in the bathroom too. You get used to it. Well, I did, anyhow. Odd what we share on line or in comments, isn't it? But that's what happens on your channel.
Sleep tight!
Please don't lift large heavy bags. Adding a hernia to your list of ailments would not be good. This is the 1st time I've watched your channel. I had that surgery 20 years ago. I appreciate what you share. Blessings!
I'm always very careful and very aware of my belly when I lift heavy things, don't worry! I've been doing it for the 10 years we've had dogs đ€Ł
Maybe lifting those heavy bags of dog food hurt your muscles down there.
Itâs a griddle
'PromoSM'
Nice burgers nomnom. But - you risk eating tomatoes with skin?
I have no issues with tomatoes, thank goodness! They are my favorite!
Griddle
Griddle
Griddle
Griddle