Hoping This IV is Painless | đ Fluids Day for Ostomy-Related Dehydration | Let's Talk IBD
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- Äas pĆidĂĄn 22. 07. 2024
- IVs are a hit or miss - and today I tried to do everything I could think of to make its placement easy. When you're going in for ostomy related dehydration, it can make it harder for an intravenous catheter to be inserted. Even though it seems counterintuitive, I continue to drink electrolytes prior to ensure I am as hydrated as possible!
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Hi, I'm Maggie and I have Crohn's disease. I am thrilled to be here sharing my personal experiences with Inflammatory Bowel Disease as well as living with an ostomy. I'm proud to share a little bit from a clinical experience as well, having worked as a GI pediatric nurse and ostomy telehealth nurse. I am so glad you are here. â„ #ostomy #ibd #chronicillness
Thank you so much for tuning into the video! If you liked this, I'd love if you subscribed! â€
No GI Iâve talked to in my seven year battle with Chrons ever brought up fluids. I had to find out on my own. Iâm so glad youâre talking about electrolytes because they make a huge difference in quality of life.
They finally put a port in for me 2 weeks ago as I had no veins left. It's like night and day!
I'm so glad for you for the positive change! That is awesome!!
I highly recommend a port. So much easier and less trouble.
Yea anesthesiologists couldn't even keep a vein from blowing if the coukd find one w ultrasound. I felt bad for nurses and all tryingnto jab around. They felt bad for me..we were all a mess. I should never have been let out-of hospital after 2 months without one I an being told..well shish lol. I am grateful
I have a port too and it has pro's and con's. Matter of fact I am on my 5th one due to getting infections. Not sure if it started there or somewhere else but I love it anyway đđđđ
â@@LetsTalkIBD You got this!!
Stay Hydrated @Maggie and you are a real fighter, Proud of you God Blessâ
Super great start to this video! Wow!
Thank you!! I was trying to be a little fancy shmancy!
Iâm so happy to be part of a Community Paramedic program in my area. We have a robust program working with a hospital physician group that has us do IV fluids in the field. We can draw labs before if need be or a VN before our visit does it. Patients are so damn happy to stay home. In the future maybe itâll be an option for you. And btw as a patient who has had multiple iron infusions in an infusion center Iâve decided that some of the nurses are NOT super good at IVâs because most people have ports. ER nurses and techs are pretty awesome. Many infusions centers, radiology centers and infusions centers are now starting to hire medics because when youâve learned to start an IV in bad light on a combative patient while bumping down the street it makes most lines not so terrible. I see this as a blessing, Iâm not trying to boast! Thank god I come from that background.
As an NC State grad, I approve of the sweatshirt! Go Pack!
It stinks we have to drive over an hour... Yes I saw a difference after the IV. Tell Zac the best place to buy state souvenirs is a truck stop. They have all kinds of stuff. I'm getting ready to take my Friday Enbril shot. Great to see you today đ
I don't have an ostomy but my brother had colon cancer and some scares, he told his wife he would kill himself if he ever had to have a colostomy bag, I told him grow the f up! Your videos make it acceptable and ok to have a colostomy bag, it's not the end of the world â€ïž I take a biologic for RA, and the only doctor who takes my insurance is over an hour away đ
I'm glad you have access to fluids and agree that your home is the boundary for some sanity. I always feel a bit violated and my home dirty when I need people cutting through. It's my safe zone..
Please stay hydrated as we are in the 90's. Good luck at your appointment. â€
Yes - it is so hot here today! Hiding inside drinking tons! Thank you so much!
I can relate to difficult iv sticks. I have had Lupus for 42 years and chronic pancreatitis for about 16. No matter what I do, I get stuck multiple times. You are so right, it's the digging that's the worst! I'm so sorry for everything you have to go through because of your Crohn's.đą Thank you so much for sharing your journey. It really helps knowing that other people go through health issues. I don't feel as alone.
Yikes I had mine on Friday for blood test
Maggie it Breaks My HEART that Everyday You have to live Your Live about Your HEALTHâŠ.What People like Myself take For granite
You are a BEAUTIFUL Young Lady and I Always enjoy your VideosâŠ.
Take Care from Virginia đč
Thanks for the book recommendations
I'm a real bad stick but miracle for me I had a good stuck for my op on 7tuesday. May you be blessed with easy sticks. I feel your pain on the rough ones.
You getting out of your sweatshirt reminded me of when I was at the clinic for my colostomy a few weeks ago. I was in the process of changing into the gown. With all the commotion going on with nurses coming in to ask question and get the IV into my arm and everything, I forgot to take off a few things. So about 45 minutes later, I was having the nurse to help me out of them and get tangled up in them. LoL
Hi I just wanted to say your ring is so beautiful I hope all goes well with your appointment
I have had a port for 6 years and it is the best thing I have ever done.
My veins got so bad they were putting them in my neck, inside of my hand, and my toes! Iâm so thankful for my port!
Congratulations on 101.5 poundsđđ„łđ! Interesting goal of 110 pounds as that is my goal also although I am approaching it from the other side. I am losing some weight for medical reasons not for fashion. BTW beware the coffee maker that starts making more noise than usual. In my experience there are two likely causes (1) possibly needs cleaning but unfortunately more likely (2) it is soon approaching its time to go to the great supreme coffee maker machine that resides...somewheređ
Wolfpack hoodie looks great!
We called it the library!
Torey hadens books remind me of 8 weeks in the hospital my family could not bring them fast enough.
I love her books too!
Happy Friday Maggie.
Happy Friday!!
Lovely, kind, and bold woman. Wishing you wellness. (wondering if some bicep curls with a small weight, just before hookup, would help to define your veins. For future consideration, a car that memorizes seat adjustment by driver. I suspect focusing on weight measurement is counter-productive. Fluids with electrolytes, smart.) -- over 90K subscribers, anyone available to drive you to appointments -- come on folks, "it takes a village" is more than a saying.
I love Jodi Picoult also. Nineteen minutes was so good. I have Kindle unlimited, so will wait for that one you're reading when it's free. Well, after I pay my $11.99 a month. Anyhoo, I'm gonna watch the rest of your video now.
I want to âThank Youâ, your all I have to help me understand my newish Ileostomy & whatâs happening, what to do, whatâs normal & what isnâtâŠ. Even just changing my bag quite often I have to watch 1 of your bag change videos over & over just to feel comfortable to do mine & not shaking & scared if doing it. Now I have my mom & newish stepdad in my life, but my mom doesnât want to see it or talk about it, let alone help me in anyway??? Iâm a mom & I would have wanted to know everything about it & help my daughter through it & know how to change it myself, if she had something like this. Especially if she was permanently disabled & medically homebound like me for the last 19 years, but other that some groceries and some laundry ( now that for the 1st time in 12 years I have NO CAREGIVER 6-8 hrs a day, ever since my surgeryâŠ..) when I always did have one they didnât do that stuff for me, because â I have a caregiver for thatâ or at least thatâs what my mom would sayâŠâ Iâm not young, but itâs still so difficult all by myself & since mine was a Emergency more extreme surgery I didnât get to know much. And due to my disease/ disability I was in the hospital 10 days and couldnât even talk to anyone due to the pain for 5-6 days. So I had a in home Ostomy nurse every 2-3 days for 2 months, but since they were just nurses who new the basics of changing a bag they didnât teach me anything than that & Iâm still scared to do it myself⊠I have a lot of liquid more that anything all day & can usually only change it between 6-8-10 pm with a tired disabled body.. so your videos help me soooooo very much & I Thank God I found you hunđ€â€ïžââ€ïžâŁïž So thanks for ALL you share & tell people, your my support groupđ€âŁïžđâŁïžđ€šđ kind of pathetic I know, but yahhhhđâŁïžâŁïžâŁïžâŁïžâŁïž
My mother refused to tend to her bag. I. Live in a different country so couldnât help. She had nurses com in twice a day to change it supplied y the state. The reverse operation was way more painful than her initial emergency pone.
Great news on the weight gain :D, such a hard thing to keep weight on.
I have such a hard time drinking enough during the day, I try and force myself to drink a couple Gatorades and bottles of water daily, just never seems to be enough. Always low key dehydrated. My output (Ileostomy) is always basically pure liquid, no matter what I eat to try and thicken it up. But right now the GI is more concerned with my low iron, B and D levels - and my PSC (Liver disease) issues - that the hydration issues are low on his list of priorities.
I had a thyroidectomy a year ago last May. After the incision closed, I would apply Jamaican Black Castor Oil every night. It is amazing! You canât even see the incision! Bought it on Amazon. Very inexpensive.
Just a hint. PS In the past, I have always healed with scar tissue.
I had a lab person at the hospital with my second stroke said I was a bad stick.but I had others that got it in the first try.still happens when I go for my MRI/A the digging kills me.đ
Just wondering if you'd be more comfortable having the fluids sent to your house, especially with your RN license. I'm in Arizona and insurance has no problem doing mine that way. They send fluid and IV supplies, and even an IV pole if you need it. Take care.
And yes, I could definitely see your face plump back up. But that's normally a good thing for us ostomates. :)
I have found that fiber gummies (vita fusion brand) really help regulate the stool . It also helps if you take it before a pouch change.
I take those too. They are amazing
I start a trial of weekly IV fluids on the 12th of June for my PoTS and Iâm terrified as I have hEDS and cannulas are a nightmare. To make things worse Iâm having surgery on the 9th so my potentially good sites might have been used up. If the IV fluids help they are talking about a PICC line but that terrifies me too!
I Hope you Have a successful Stick maggie.đâ€
Love †your videos! How is Nanners doing?
She is so much better thank goodness! It's like nothing happened - so confused at what happened to her!
Changing your bag will become second nature. I was in hospital for 8weeks. Once left I had no aftercare. I had to do lots of research myself. Just by adding some thinking sachets may help a lot.
I have a love/hate relationship with Jodi Picoult. I like her, but every one is INTENSE! And the ending of My Sister's Keeper (book version) WRECKED ME. I don't think I've read one since.
Hello there. Everything Baltimore Maryland Dundalk area hot sunny have cold salad and sub sandwiches. Yes the air conditioner is on. I have K -cup coffee maker. You can use a coffee grounds with permanent K-cup filter .
Lmao! I actually thought that was one of your dogs in a deep sleep. If you would've have said anything I wouldn't have known it was your coffee maker. đ
Scott MacDonald here. You're right I forgot how much time I was been in the bathroom before I solved my Crohn's. Probably totaling four hours, in the morning, before I go out and do some work. I'd end up with a numb butt.
Must have been fun good music in the car ride home
Two sets of IVs were replaced by tube during my hospital stay. Also, got rid of the daily blood draws via veins that were not doing the trick any longer. I need more fluid intake⊠!đź
I sa where you eat marshmallows when you get to gou g to much. It's it to thicken your output?
Do warm compresses help maggie? Anyone? I never have heard of this, and where i get my fluids have never used that? Maybe i should try it?
Youâll have to say what you think of the book. What did you eventually decide on the book that you were reading in an earlier blog âWhen We Believed in Mermaidsâ?
How long does that Humera box last? How often do you do your Humera?
Question đââïž please: does the Berry flavored Nuun dissolve clear? I am wondering because I have a colonoscopy in a week & I ordered them for before & after, to feel better. I can still use after if not, but was hoping they donât color the water (as you know wellâŠno orange, red, or purples lol) this will be my 14th colonoscopy đ ulcerative colitis đ
But doing good đ (hopefully no surprises found during my scope) my doctor calls mine sneaky đ
Because a mass was found that turned out NOT cancer (yay!) but an angry mass of active colitis that no one had seen before, took it before her colleagues and a older GI doctor had seen it once in a Crohnâs patient who had Crohnâs of the colon. So then I went through all the diagnosticâs for Crohnâs. I still donât think they know for sure, so back to the label of UC đ€·ââïžđ
Anyway this turned into a book. đ I am glad the infusions are helping you Maggie đ„°
If it's not clear, try using liquid IV. Those work better for me than nuun
@@delicateflora thnx!
I don't have water infusions. I get very confused when I'm very dehydrated. Once I get to A AND E THEY GIVE ME FLUIDS I come round nd most of the time go home say day.
btw that IV scar is not a nasty one itÂŽs a needle that was in for a longer time and thats like a few days. Only had IBS here but still watching. Maybe due to my leaking issue sometimes make me wonder if other solotions for the problem. last 6 months been extra hard then if been for years nad had a few to many accidents. every time I get a better eating up instead of food replacement shakes for a few meals a day I get into problems.and way to many cameras say itÂŽs not chrons or colites
Yes going to a clinic can be better than at the space you live
Thank you for reminding me to take my Humira! đ
Lmao đđđđđđ
So how do you deal with heat above 75 or 80 degrees?. I have a friend that has the same condition you do and had the same surgery and anything above 80°, just kills him sometimes we feel like we just need to keep them in a pool. đ
You seem to be kind of at a good baseline. Of course, we only get to see a small portion of your day. I'm really happy for you that you're gaining the weight you want. When you talk to your dad again, tell him we all said hello!
This time I definitely was much better! I'm going to ask to drop the amount of fluid I get because I think things have slowed down enough I don't need quite as much. I'm calling him again this weekend so I'll make sure to say hello â€
How much fluid do you usually get?
Should put a port centrel line
I have baby veins.... don't have coffee b4 an IV. No one should 'fish' for a vein. If you think they can't...just go for your hand. PS I â€ïžu. I wish I found you sooner. I could be your fav aunt.đ€
I really want to know how can you have coffee with crohn's ,I can't even think of having anything other than bland food
Hello from Romania. ..
I miss Border's books!
Like that ur dad went in the bookstore everyday so gave him discount
I always feel so much better after IV fluids, but here in the Netherlands they don't give IV fluids because you have an ostomy (I even have two, and am reallllllly really sick.. But still no)
I'm sorry you can't get that where you are. Have you tried liquid IV? It's the only electrolyte drink that seems to actually work. After surgery, they saved my mom from having to go back to the hospital for fluids.
Loll Zak the giant
Please see a doctor who is educated in nutraceutical treatments. They have really good evidence for treating depression and gut issues. â€
Who is your Dr and hospital?
i know you're not supposed to say this but you look more beautiful without makeup on. You look great with makeup as well but i thought i'd say that since you said you looked 'less scary now' lol - don't be silly!
There are many foods that I avoid and the main foods I avoid as much possible is fruits and veggies. Sweeteners are not good either. Today, I brought some wham inspired ice lollies (itâs a raspberry fizzy chew bar candy) and they are so good. Been missing as struggling with the undiagnosed crohns - my anus is producing a lot of creamy pus that smells of what I eat. Iâm surprised that Zach didnât any mr beast merc. He also has crohns.
8pm dang to eat
Before you had your surgery, how did you deal with your diarrhea?
I actually didn't have much - I had my rectal stricture for most of my diagnosis, so dealt with severe constipation! Prune juice was basically my drink of choice!
@LetsTalkIBD how lucky for you
@LetsTalkIBD my dad would drink that .he wasn't water drink
We share a birthday and scars... I have a scar on my hand from an IV when I was ten.
We need to talk to whoever placed these IVs that left us scars! haha!
and HAPPY BIRTHDAY!!! I hope you had a fantastic day!
@@LetsTalkIBD That wasn't the worst needle though... I had to have some test that required the needle going into the wrist bone and a student was doing it...need I say more...lol
@@LetsTalkIBD Thanks... It was a great day over all that involved donuts for days! Hope yours was great also...
âïž
It makes more sense to have a port.
Ports require surgery and have their own complications and care. I don't want one at this time but it's definitely a great option for many!
Really, I thought I was commenting on a post where you said you got one. Not making judgement Maggie. I appreciate how you share the nitty gritty of your disease.
Ik IV stinks but at least it helps u I'm on Zoloft as well.
So your coffee maker is trying to keep up with your active stoma, or the dogs?
Drink small amounts at a time.
U look so prettu makeup free
Sorry you are going through so much. I drink Smart water all day long. đ
"I didn't buy this car to look nice. I bought this car to carry dogs." You know, I don't actually have any sisters but somehow I feel like you must be my sister.
Stylish shirt...looks 90s
Ah congrats 102lbs
Why do u foxus so much on ur weight , iff u feel crap u will lose weight , and iff u feel good u will probally stil not gain any weight crohns is a great disease , i trew my scales away long ago .