😱 My Port Isn't Working Well! & 1 Month J-Tube Post Op Update ✔ (2/15/18)
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- čas přidán 13. 09. 2024
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What a coincidence! I just had to go to the ER for a fibrin sheath this same day. How crazy!!! Luckily, the hospital in my town has a cancer center, so they are very familiar with ports. They actually had someone in the ER that worked closely with ports and was able to do the contrast dye test right there. I am also familiar with fibrin sheaths as I used to get them on PICC lines, so I was 99% sure that's what the problem was - this is the first one that I've had on my port, though. I'm also super thankful for the team in the ER. They were so kind and understood how well I knew my port/body.
As for the port aspirating sometimes and not other time... if you are using heparin, that could be breaking up the clot enough that you are getting a return sometimes. It sounds like that if you do have a fibrin sheath that it's not very bad yet and it should be very easy to clear. I don't have any experience with the other possible thing it could be. Whatever it is, I hope it's an easy fix (if it is a fibrin sheath, it should be - we just put TPA through the port and all my old trouble PICCs and they were just like new)! Sending positive vibes!
Oh sweetie. I hope the port gets sorted ASAP xxxxxx
Glad paul was there to help u. ❤
Paul sounds like Judd, “that’s what family does!” Totally sounded like him
Hi, Jaquie, is it possible for you to post your Chicken Parmesan recipe? It looks SOOOOO GOOD!!!
Lol I'm doing my pt exercises while watching this 👍
Hopefully it resolves quickly for you. Your a strong woman who I pray has the best life possible with the least amount of pain possible.
If he felt like it was the fibrous sheath why didn't he go on push CathFlo. What it does is break up/dissolve fibrous tissue and small clots that get in the way when trying to pull back for blood return. It generally takes 30 minutes to 1 hour to work. The small clots are nothing to worry about. I have had mine for 4 years, (reason, no vascular access), it flushed really good but had stopped get blood return. Finally, at the oncologist for lab work, they pushed CathFlo into my port, and was working great again. Don't get discouraged, it happens to everyone! As long as it is flushing good, you are in good shape.
Omg when paul says "that's what family does" while driving back frm the er, he sounded so much judd lmao
Hi. Hope you’re feeling okay for the day. I have systemic lupus so I kind of know how you feel being chronic pain. I am having trouble finding a mask to go out in public and stay safe with being immunosuppressed. What is your brand of mask? I have been looking for that specific mask.
I'm praying for you to get your port working real soon, and continue to heal from your surgery. You are such an AWESOMETASTIC inspiration! God bless you and your family (including your Orlando family that's currently visiting you).
Sometimes it feels like one thing after another. ❤️Sending my love.
I agree... Hoping for a simple fix!
Prayers for you guys ❤️
I had that dumb thing on my ports too, every single time, even a surgically implanted one😭😭😭❤❤
Port problems suck. Mine has gone through phases of having a few months without return but easy to flush & then went back to flushing and drawing easily. My team aren’t worried if it flushed well and easily. Hopefully it sorts itself out or you can get some rest.
You're a young soul warrior. I admire you a lot.
I'm sorry for your frustrations. Feel better soon and Paul you're amazing! Y'all have a wonderful little family.
Sending you much love and prayers. I believe that nothing painful lasts forever, and your team and family and are looking out for you and have your best interests in mind ❤
I love your videos Judd is a character like my soldier husband and there so informative.
Do you not have an épi-pen? Most ppl with anaphylaxis don’t have ports or anything... we just carry épi-pens!
I have epipens. But my reactions are very frequent. We try to abort with IV Benadryl when possible. Everyone's protocol is different.
Jaquie, Janiece. You both have an amazing support system. Prayers. Happy birthday Paul🎂🍦🎉💜🐾🙏🐕💕🏥💊😍💉😍💚
Stay strong! Everyday is a new fight and people are here for you. Sending good vibes your way!
You had to go in, the port is too important to you. Kudos to you for the meticulous way you manage your complex issues. Never hesitate to trust your judgement. Better safe than sorry.
Oh no! I am sorry you having problems. I hope things better. Send love, support, and prayers. 😊😀🙏❤. Hope you have a blessed day.
God bless Paul he is amazing, Happy Birthday..
Harlow and Orion reunions never get old
If worse comes to shove with your port not working and if you go into anaphylatic shock, you could give yourself the benadryl IM.
Oh my ,you sure do have patience ,I believe I would have been upset if they sent me home with not doing anything,maybe trying a med flush for the covering.i had a port for cancer treatment's and understand how upsetting it is to have problems with it
Youre so strong. If anything like that were to happen to me I would automatically think the worst possible outcome and give myself anxiety. I wish I was more calm in my approach to issues like you.
Well I was actually a little panicked. Glad I went to the ER and was given peace of mind, otherwise I would be a mess today! I try to approach things logically but everyone handles things differently. (: Stay strong!
HAPPY BIRTHDAY PAUL
remember that God will never ever give you any problem that you cant handle
I know not too long ago you were asking for suggestions on shows to watch. I started watching one called "Body of Proof." It is on Hulu, not sure if you have Hulu but if you do check it out and see if you like it.
I've learned due to things happening at the worst of times, that you just have to roll with it. Thank God you have wonderful friends in Jenice and Paul. they are so supportive and vice versa. I hope you get the J-tube issues sorted quickly. At least you have some company thru this whole deal...wishes for better days ahead. : )
Get well soon jaq
That Sucks! I Hope All Gets Better.
After many PICs and ports and tunneled lines the one common thing is my lines are innies not outies very seldom have i had blood returns but they work fine for infusions even in the hospital they still use them.
Paul is seriously the best!
It's my birthday today and your vlogs make it even better 💕💕💕
I love your leggings (those ones and others you’ve worn). Where do you normally get them? I’m stuck at home and sometimes in bed because of chronic illnesses and being comfortable is paramount. I’ve been living in Old Navy leggings but really want some patterned cute ones!
Good luck with ur port. I was wondering if we could hear about what kinda of bed u have
Robin Phillips Its in her vlog "New adjustable bed for better health." It was posted about 3 months ago
What size is your mask?
The golden adventure!!
my port isn't working well either, i get no blood return & it's painful to pull back. insurance isn't letting me get home infusions anyway, so I'm thinking of having it out.
they said the port problem was caused by my eds healing, i ended up with a lot of scar tissue growing up into the tubing.
yup, i hadn't watched the whole vlog, mine is the same problem!
Darn, I pray things work out for you as well!
Alyssa M ....so sorry to hear that. I have EDS too. I don't have any feeding tube but I have surgery and healing issues, so I can understand your frustration. Hope it will work out for you soon. xoxoxo
jackie mine has done that before and thankfully with another needle change it fixed the issue. best you had it checked out and as the doctor has said as long as it flushes your ok till they can get you in for the study!
I went through the exact same thing with my port, I would have told you exactly what the doctor said to you. i also panicked a bit and went to the ER and was told the same thing- if it flushes there is no clot and you are fine to keep infusing. I ended up not doing the port study first- and the doc put into homecare for cathflo to break down the fibrin sheath, if it didnt work we were going to do the study but it worked and i didnt even have to leave me house to get it fixed. I wish you luck, I hope it goes smoothly for you!
My daughters Port just did the same thing she has had it just over a year same as you she went to radiology department they put a special medication through it and that cleared the problem it was just a piece of fiber blocking the end so it's working well now hope all works out for you as well xoxo
Yes I am hoping some Cath FLo will do the trick! Just waiting to see what my doctor thinks. Glad your daughters port is back to normal!
Don’t get down about your port Hun. I have had the same problem with my port and found out it was due to my hEDS. If I have slightly dislocated or a subluxation of my should or a rib it does this too. They will figure it out and if it is a sheath, they can put meds through to try to dissolve it.
Hello Jaquie, I was wondering how your training process was when you first were training Harlow. Did you do that training all by yourself or did you have help from a trainer? I plan to get a service dog myself in the future. I'm trying to learn as much as I can before I make this big decision. I've been looking at some of the organizations near me and I'm just so worried I will get scammed. Like you I have POTS and mast cell, I would need an alert dog. I would like to do the training on my own, but I'm concerned and curious how I would train my dog to alert. If you have already made a video about this would you please direct to it. If not would you mind sharing your experience? Thanks!
Check out my Harlow video (:
I will thanks!!
Hope everything is okay..
I know this is kind of a weird question, but do you have a menstrual cycle. I was just wondering if it was different because of your health, and if you do, do you get bad cramps and pain from it.
I do not have one
love you!!!!
I hope your port is fixable... Hang in there...
Thanks girl!
Chronically Jaquie You know I’m always here for you too. ❤️
It has been two years of abdominal pain. The doctor I went to said it was in my head pain didn’t stop. I went to a different doctor. They have diagnosed me with gastroparisis. Went in meds,didn’t work. Went back to the doctor and they said I am backed out and need to do clean outs. I have done 4 cleanouts. I just wish I could have a feeding tube so I would have as much pain. I hope the doctors would give me something that helped me.
Love those soft pants like yours I get my soft pants like yours at cvs store love them
Ahh port problems! I had what was probably a fibrin sheath too (if not the vascular wall thing) after about 6 months of my port working perfectly. Same issue where it would flush but wouldn’t draw back. I was taught to flush saline and heparin in short bursts so it makes some sort of vortex effect, and I noticed that after the one time I decided to be more forceful with those bursts, it started working fine again so I’m guessing that helped dislodge the fibrin sheath.
You both have great husbands
The dogs greating was so cool and funny. Great dogs
It was soooooo CUTE!!❤❤
😊❤️💚💪🏻
My port is really finicky too. Lots of times it doesnt gives blood return, but I have been getting great blood return here lately. It can be so frustrating!
I just love those leggings!! Hope you get your port working again
I hate that you're having port problems : / that's very scary, I know how much you rely on it.
I've always wondered-- since your port always has to be accessed, has getting a PICC line ever been an option for you? I am not an expert by any means, and I hope I'm not overstepping when I say this, that is definitely not my intention. From my research and things I would think that a PICC may be more practical for your purposes because you wouldn't have to access and de-access every week. Please tell me if I have offended you or have overstepped my bounds; that is definitely not my intention and I'm truly sorry if I have.
I hope your J tube pain gets more manageable soon! I hate that you're still recovering. EDS is the worst!
Meagan White She made a video “All About My Port” that explains it ;) it is an option but she just chose a port since it was more long term and such
AJ 2700 ....I had heard that you get a picc first, then when your body stops tolerating it, then you get a port line. Obviously, it's not a set in stone thing. I've always thought that for saline infusions etc, the port line is bigger, to handle the fluids more? I have no clue, just what I thought I heard. Great questions. Will head over and watch that video that you referenced. Thx
samiamisme I’m not sure 🤔 I’m definitely not a pro either haha but glad I could help!
Hang in there Jaquie!!! As a fellow chronic pain warrior I am rooting you on💜 much love!❤🤞
feel better sweetie
If you use option care it may be your needles there’s been issues recently(past month or so)
That is a good point, with my next needle change I think I will go with my old 22 gauge and see what happens.
it sucks that your port keeps acting up
I have never had issues before! Just this suddenly. Hoping we can fix it! (:
Hey, Janience is right.. better safer than sorry :)
For February 15 it’s actually my country’s total defence day(if u wanna know more abt total defence day u have to search Total defence day Singapore)
Rianne Loh Hi fellow Singaporean ^^
bobododo100 hey
HOPE YOUR PORT GETS BETTER MY TWIN DENISE SENDS HER PRAYERS AS WELL KEEP STRONG WE'VE HAD HEALTH ISSUES DENISE HAS A DIABETIC PROBLEM SHE DID STAY FOR AWHILE WE NEED PRAYERS WE'VE BEEN PRAYING FOR YOU & JUDD TOO PLUS YOUR FRIENDS JANIECE & PAUL GOD BLESS YOU ALL
🥘 Would you be so generous as to share your chicken 🍗 parm recipe with us? Continued wishes for a speedy and complete recovery❣️
You are in my thoughts and prayers. Love y'all. Hugs.🐕🐾🙏💕💕💜💜💪💪💕
3:38 That does sound good.
4:32 Did Judd set parental controls to tease you?
6:47 I've never heard of that.
10:18 I certainly do.
Vulcan Viper I
Jaquie🌷💕, you are doing very well, with your recovery. I'm glad you got your port, checked out. My sis had issues, with hers and they, had to replace it⚘💕. Best wishes, as you move forward❣😎.
I love your channel and am a faithful watcher but I ask that you please think about the term brain dead. I had a 19 year old nephew who was brain dead who had to be taken off life support.
She means brain fog. Saying brain dead was a bit insensitive but probably not meant that way
Holy cowvin, Jacquie. What troubles you have. But, I'm so glad you have loving family in your friends. I hope you see how God is working in your life. Keeping you all in my prayers. Lol. The dogs greeting...I thought Harlow was going to have rug burn!
I love your leggings!!!!
I thought your j port was linked !!!! Lol
You just can't catch a break, can you? I know how that feels.
Dang it. Hope things work out. 🤗🤗 Orion and Harlow are boyfriend and girlfriend. 🤣
Hey jaquie
Probably some Cath flop will do the trick
That is what I am thinking. Going to see if my doctor will order some. He may want a dye study too, just to be safe.
I just realized I wrote Cath FLOP instead of Cath FLOW !!!! Hahaha..oh boy.
Why would your best friend need permission to enter you home? My best friend does the same thing Its called family , You knew they were coming - Kinda rude saying what you say JS .
Relax, it was a joke. They have their own key for a reason.
51!!!
Hello!
I love your leggings.
Hi to other girl from from raw video
Eep early
First!