Vestibular Neuritis Full Recovery (1.5 Year Update)
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- čas přidán 13. 09. 2024
- A quick update on my recovery from VN. It's been a year and a half now and I'm all better!! YOU CAN GET BETTER! It's just might take some time.
My VN Time Line:
Dec 2017- first signs of VN while traveling abroad, not sure what I had. SO SCARED!! Saw multiple docs. Had an MRI, looked for MS, tested for Lymes, parasites, some docs wondered if it was BPPV.
Feb 2018- diagnosed by ENT with VN, told it was mild and I should be better in a few weeks. Sent to physical therapy. While some things improved from PT, other things got worse (this is a normal process!)
March 2018- still doing PT daily, feeling worse in many ways, anxiety at an all time high, lost 15lbs because I couldn't eat, afraid my diagnosis was wrong, set up appointment for an ENG.
April 2018- started taking SSRI lexapro for anxiety and depression, got the results of my VNG and VN was confirmed- 49% loss of function in my right vestibular nerve. Finally felt like I wasn't crazy, was amazed I could do as much as I had been with that amount of damage. As my anxiety lessened my VN symptoms were more manageable.
May 2018- Went back to work (taking people on active travel vacations). started living my normal life. Still doing PT, still experiencing daily symptoms, but they were manageable and not scary anymore.
Sept 2018- almost felt normal everyday and was pretty excited about it.
Oct 2018- saw an increase in some symptoms again. felt like a minor setback.
Dec 2018- best I'd ever felt. Almost completely normal.
Feb 2019- left to go on a solo backpacking trip. hiked 950 miles over the next two months. FELT AMAZING!
May 2019- I FEEL TOTALLY NORMAL!!! SYMPTOM FREE!!!!!!
Cool stuff I've done in the last year that I never thought I'd be able to do again:
Drove from Utah to Alaska!
Went on a bike trip in CA
Road trip Oregon to CA to Utah to Arizona
Backpacked 120 miles on the PCT
Backpacked the 800 mile Arizona Trail
Hiked Rim to Rim in the Grand Canyon
Took people on hiking vacations in Yellowstone, the Tetons, Zion, and Bryce
Flown in planes
floated on boats down winding rivers
run around in circles with my niece and nephew
danced
grocery shopped for hours on end
LIVED!!!
Getting better is a real thing. The scary stories are the loud. Let's try to make the good ones louder.
The dizziness I could handle. The anxiety it very difficult. Thanks for sharing lovely x
you make me so happy by just hearing your recovery. I'm 10 months in and noticing some big milestones but wasn't expecting FULL recovery. This gives me hope!!!!
Isn't it exciting to think that people actually fully recover? It's great. Hold onto that hope!
@@lindsey8081 few ups and downs recently but looking forward to the next big 'I can do this again' moment lol
@@watfordfccccc How you going now mate!
@@jordsjek never thought I'd be saying this but I ran my first half marathon 3 weeks ago! When I wrote this, I probably would've felt nauseous being on my feet too long, or motion sickness from jogging. I feel 100% again, I cant even explain the feeling, knowing how bad I was at times. Sometimes I get a bit of anxiety as my body was so used to feeling nauseous doing certain things but I can happily say things really do get better and continue to do so!
@@watfordfccccc unreal mate! Very happy for you! It’s been 2.5 months, so hopefully I get there soon!
Lindsey I can’t even tell you the relief I have found in your videos. By the grace of God, I stumbled upon your two year video and bawled my eyes out at the relief I felt listening to you. It is so scary to look on the Internet, and every time I did, I would be bombarded with horror stories that would make me go into this depressed. Anxiety filled state. I am on almost 2 months of my diagnosis with vestibular neuritis. Actually, I wasn’t diagnosed fully until about 2 1/2 weeks ago and I have started PT. But I just came on to tell you how incredibly powerful your video is and I want to thank you from the bottom of my heart for posting. I hope you’re still doing well. I am watching all your videos over and over to get through this.
How are you feeling now?? I completely relate to this… has been such a tough journey so far. Just taking it a day at a time and holding on to hope!!🩷
Hey guys
How is your recovery going ?
Are you seeing a slow /fast improvement at all..
I'm now 6months into this awful journey '
Its been the longest hardest struggle of my life
I spent 7 days in stroke unit
Partially disabled/ non verbal for many weeks
Cat scan /mri say no visible sign of stroke. Diagnosed with Vestibular neuritis
I'd never even heard off this at the time ( nov 23)
It's taken months to start walking again ' bed bound for 2 months .my heads still dizzy now and no sense of balance still. I'm having regular accupuncture still and also started with physio dome months ago
Guys it really can be a struggle I just say from my experience keep ya Hope's up and keep battling it, .time is the only thing I can see that will see the back of this terrible debilitating condition
God bless you all 🙏
@@Lovemy911 my journey with this started almost a year ago now… Ive noticed i have good days and bad days with it. I’ve really tried to reduce my stress levels and that has helped i think. It has gotten better over the months but some days it does come out of nowhere. But just keep your head up! I always continue to just focus on all the good in my life and stay hopeful for the future ahead! We all have so much to look forward to in this life and it doesn’t just stop here😊! God has a plan for our life… it can and it will get better!! On the days i have felt helpless I hold on to a Bible verse and read it over and over again❤️ He will bring you the peace that surpasses all understanding.
I LOVE this video and your reflection on your journey!! Inspired by and grateful for your story.
Thanks Sharon. I've said it before and I'll say it again- your story was the only thing I found when I was sick that could make me believe for a second that maybe I'd actually get better. So thank you. I'm just adding to the positive narrative that you started and hoping I can help give back hope in a small way.
Sharon Hen and Lindsay, I’m glad you’re both here bc I came online to post comments to both of you! Let me start out by saying this journey has been ROUGH, but finding both of you on here has helped me in so many ways! I realized I’m not alone and this is a very real illness. You have both given me the information and motivation that I was looking for and I’m happy to report that after 8 months of this I’m finally starting to get better. I did quit my job so I’m able to heal at my own pace and I did develop the avoidance behavior but both of you kept saying you have to keep moving and I did. I do leave my house on the weekends when I have someone with me bc I have noticed when in public settings (shopping malls, grocery stores, restaurants) my dizziness really comes on me so I’m curious if this happened to you guys and what you did to get past this step?
@@Kenoqueen hi! Stores, malls, busy places were all hard for a while. I literally would make myself go to one everyday. No joke. I'd pick a store and walk the isles. At first I could handle just walking and not looking around. Id wear a hat to block out bright lights. I would fix my eyes on a spot at the end of the isle. Then I'd go home and lay down until I felt better. Eventually I could stay in stores longer, move my head back and forth, read labels. But I'm not joking, I treated it as therapy. Anything that made me feel sick or off I would do in small doses every day until they didn't bother me anymore. Constant measured exposure
Lindsey McKelvey that’s what I’ve been doing but not everyday lol. I stay home mon-Thursday and I go out on the rest bc I have someone with me in case something happens. It’s so overwhelming but I really miss working and the only way I can get my life back is to put myself in these most uncomfortable situations. Thank you so much for the reply and I will try to make myself leave daily, in small doses of course, so I can finally reach my 100%!! Again, thank you for posting and giving us hope ❤️
@@Kenoqueen you're welcome! You've got this. On days early on in the beginning when I couldn't get to a store I would stand in front of the TV and watch it while standing on one foot. Or I would hold my hand up in front of the TV and focus on my finger moving with the TV in the background. It's funny the things you can find to do that can be therapy for your brain.
A reminder for you that you are a bright light to so many of us who are still battling through this. Thank you!
Lindsey you are an angel for making these videos and not forgetting about those of us who are still suffering. When I fully recover, I am also going to make a video about my Vestibular Neuritis. It's important to me to make a recovery video to help people like you have and possibly give them some hope. Thank you Lindsey.
Yes! do it! Let's flood the internet with positive, encouraging recovery stories.
Good to hear ur recovery
Your videos are so positive and beautiful, makes me smile and happy cry. I cannot wait to make my own recovery videos to give back to others who are also going through VN. Only 3 months in, still have such a long way to go, but knowing I will get there keeps me going. Thank you so much for sharing
How are you doing now? Im 3 months in so stressed and depressed
@@jeffcuellar974 how are you feeling these days?
You are my strength right now. Thank you for your videos!
This gives me hope. I'm 8 months in and going through a relapse after being anywhere from 80-95% better for the past few months. Anxiety is no doubt holding me back right now. I can't wait to be fully recovered!
How are you now?
37 yo healthy person with suspected VN, I'm 2 months in and was and am sooooo scared. Having a lot of symptoms still. I hope I get better just like you!!!! Thank you for sharing the positive.
Hey, did you find improvement?
Thanks so much for this video!!! I'm going on 6 months and it's been a crazy ride!! Definitely a lonely illness unless you have had it or have it so videos like this I look forward to. When I first got it I thought this was my new normal and if that's the case idk if I wanna be here. It's horrific!! But I'm happy to say I'm about 75/80% better rn and even though I'm not 100% I never thought I'd be this good again so I'm grateful!! Though a couple days ago I got a really bad cold which j still have and it's brought back alot of symptoms/: I agree the anxiety is way worse then the actual vestibular neuritis symptoms. I'm trying to manage my anxiety without meds! Don't get me wrong meds are wonderful I just wanna try it as natural as I can!! Anyways I hope to be 100% sooner then later. Glad you're 100% ❤️❤️🙌
Ah yeah, getting sick and having setbacks can be so scary and frustrating. I was always super against meds...wanted to only ever use herbal remedies, meditation, talk therapy, and exercise for mental health because they work as well and always had for me in the past. The first few months of VN I was having panic attacks daily, crying so much, and more depressed than I'd ever been before, which was really scary. I'd never been that down before and it was terrifying to feel that low. I felt like the anxiety was beyond anything I could do to calm naturally, so I opted for the meds and I'm really happy I did. Once my anxiety and depression started to ease up, I could face the VN and do the work it took to get better. So no matter how you get there, meds or naturally, do whatever you can to ease your anxiety and the VN symptoms will no longer be able to control how you live your life!
Hi Lindsey. I was hit with VN 2 years ago and the recovery process has been long and hard. I can’t say I’m at 100% but I’d like to be. Your videos are truly inspiring and brings me so much hope. In the 2 years I’ve been diagnosed with it, I haven’t really been consistent in moving my body, exercising or the VRT exercises. But after having my baby I made a promise to myself that something has got to change. So I’ve been consistent with the VRT and moving my body more. But now I feel like crap. I am more unstable daily, I wake up with terrible head pressure that stays throughout the entire day and the only thing that relieves it is lying down. Running makes my vision bouncy and the head pressure worse 😔 and I’ve been feeling a lot more lightheaded with near drop attacks. In the throws of your recovery, were those some of the symptoms that came with it and eventually resolved with time and persistent exercising?
@@janicemateo2945 sometimes you feel worse before you feel better. I'm serious. It usually means your brain is being challenged, creating new pathways, and relearning how to function with an impaired vestibular system. Keep up the exercises, rest after, then get up and move again. Do the things that make you feel off. Rest. Repeat. You have described many if the things I experienced. You're not alone. It's hard and scary but keep trying.
I appreciate your response. It means so much to me! It’s reassuring to know, that this is part of recovery and that I need to stick with it and allow for my to body rest. Thank you thank you!!! ❤️
@@janicemateo2945 , go to CZcams,type in lazy eye,or eyeball,or eye coordination exercises,cover good eye watch video, follow with your bad eye which is the same as your bad ear,my vestibular physical therapist uses these,this cleared up my lingering dizziness.
What a beautiful person you are! And how lovely and awesome that you made sure that you told people that you got better - and that you give them hope ❤
Lindsey, on your journey (especially at the beginning), did you ever feel chronic fatigue, or when just sitting still like you were going to faint? Like for example, sometimes I'll be just sitting or driving and my head will want to fall forwards - like I feel faint and weak and I have no control over my head wanting to fall forwards or backwards...? TIA, Louise 🙏💖
PS if you write back, I hope I see it here! If not, please feel free to PM me on facebook. Thanks so much and wishing you continued good health!
O man, yes, I did have those feelings. I was so scared in the first month because I just felt like I might pass out or my head would't stay on my neck. I hated it. I was SO TIRED. SO SO TIRED. When I would get dizzy I would feel like there was an invisible person pushing on the back of my head and I couldn't make sense of the things around me. IT was awful. BUT! I never feel it anymore. So, there's hope.
Thanks for being an inspiration and giving us timeline and hope!!
Thank you so much for your videos! I’m only 2 weeks in, but am thankful for a quick diagnosis and referral for vrt. Definitely have felt the anxiety stronger these past few days, and am really missing be able to work. But grateful for your words of affirmation!! Constantly reminding myself to be brave, keep pushing, and believe that one day (hopefully soon) things will be different. ☀️
They will get better! So great that you have things figured out so fast! That will get you moving towards recovery much quicker. Chin up! Cry when ya need to and keep moving forward.
Lindsey McKelvey just popping in here to say thanks again for your encouragement. Your “cry when you need to and keep moving forward” was my anthem. 4 months in and I am functioning pretty dang normally. Also want to encourage anyone who might be reading through these comments and say it can get better. I was so overwhelmed by the negative. Healing is real and possible. Thanks Lindsey for spreading that message too.
Hey, u inspire me and give me hope. I started out of the blue feeling dizziness last July 3rd, losing my balance, ended up in ER and I was told that I have BPPV. I did the manuever on my own and the dizziness went away. Last week it came back but in a different way I started feeling dizzy kinda walking on a soft ground or an a boat. Aweful almost every day. I have to walk slowly and making head turns very slowly.
I'm scared because I am a very active person but I cant even work out. Not feeling myself, feeling off almost every day.
I wonder if u wouldnt mind sharing the exercises you learned from PT. We have tons of common because I was thinking of hiking in Arizona, Nevada, Utah, exploring the national parks but feeling the way I feel Im scared to fall off the cliff or something. Thanks and God bless you. thanks for sharing your optimism
No joke, if you google search vestibular therapy or VRT I did every and all exercises. Also just made up my own. If I did something that made me feel off or dizzy in the real world, I would them add it to my list of things the practice daily. and I'd do it over and over each day until it no longer made me feel weird. Find the things that make you feel funny, and practice doing them until you no longer react to them. Example, walking and looking down at my feet and then back up made me feel off. So I did that everyday for a few minutes until it stopped being a problem.
Thank u for sharing ur video I’m getting better slowly I got vestibular Neuritis at 10/12/23 is not easy i was so frustrated tired fatigue all kind of thing but I try to stay positive i also go to balance therapy I’m getting better I’m going to my third month in January hoping to go back to work in January therapy did a lot for me still doing now my symptoms r 80% taking it day by day Thank you
Thank you so much for this ♥
It never goes away. Learn to live with it and get on with your life.
Some times I feel like mu ear pressure changes suddenly in one ear ...Some.times i feel tinnitus in one ear in the same ear where pressure is dropped.
But all this feeling goes away in few seconds.
But I get scare alot bcoz of
this..
Have u experienced it anytime???
Plz respond
Always enjoy your videos. I'd say by around 1 year I hit 100% recovered. Yeah. I too was taking a low dose of Lexapro and decided to start slowly coming off it. I was okay for the first few weeks (at 5 mg) and then I started to have symptoms again. I went back up to 10 mg and I'm still slowly climbing back up to normal. Did you try coming off your SSRI? If so, do you mind telling me how long it took/how you decreased the dosage?
Hi Sarah! See, now I'll be the one asking you questions. No, I haven't tried to come off of it yet because it seems to serve me well. I love not being anxious. I've considered weaning off of it because I did gain weight when I started taking it, but I worry that coming off will make me feel dizzy (not from VN stuff but because that seems to happen as a side effect). It makes me wonder a lot on what causes what- like what was VN and what was anxiety. What was inner ear and what was just my brain? Will you stay on lexapro for a bit longer?
I did go back to the full dose. I was at the half dose 4 weeks and now the full dose 4 weeks and I think I’m getting close to back to normal. I did restart some of my vrt. I ask myself the same questions. What was/is vestibular and what is my brain/anxiety. My non-medical thought is that there’s an equilibrium that makes us feel better and right now that’s lexapro and compensation. I do wonder if a lengthy tapper (6 mo- 1 yr) would help our brain very slowly adjust to a new equilibrium? I don’t know but if SSRIs cause people with fully functioning vestibular systems to get dizzy, then is weak vestibular folks need to approach a tapper differently. But I’m not planning to figure it out any time soon. I have two young kids, so the SSRI is pretty nice when my house is a mess and my kids poured cereal all over the floor :) If you try to come off please keep me posted. I’d love to hear what you try.
Thank you for posting your videos. I am currently 9 months post acute vestibular neuritis and slowly recovering from the chronic symptoms. Your videos have helped me immensely throughout recovery. I have definitely improved as a result of VRT but am still experiencing some daily symptoms. One of my lingering symptoms is head pressure which increases when I am talking on my cell phone or participating in video chats. This head pressure then leads to some dizziness. Did you experience this? Also, for those experiencing neck tightness I am currently receiving neck mobilization treatments from a physiotherapist accompanied with neck exercises. I am experiencing steady improvement of my neck issues. Thanks again. You are truly an inspiration and I hope to reach the finish line as you did.
I’m glad you’re doing so well. 800 miles? Wow...! Since I don’t yet have an official diagnosis I’m still mulling over whether or not to get the MRI. I guess it’s going to depend on how much improvement I see over the next few weeks. One odd symptom that preceded the dizziness and tinnitus by about a month was the onset of hyperacusis, and it’s morphed into symptoms of vestibular hyperacusis (sound-induced disequilibrium).
O boy that sounds awful. Loud noises really bothered me when I was first sick. But that cleared up after a few months. You probably dont need the MRI, but if your insurance covers it, i say go for it. I love the peace if mind testing can bring. Helped me rule things out and calmed my over active imagination.
Hi Lindsey,
Thank you so much for posting your videos. It’s such an inspiration and I am so glad that there are people out there who understand what you’re going through rather than being dismissed that you are just stressed out .
So you mentioned that you did exercises to make you feel better. Are you able to share what exercises that you did apart from the lazy eye exercises? I have been having this neck pain for years now which never go away with any treatments ( osteo, myotherpahy, chiro, u name it) but i’ve always believed that the neck pain is the cUse of my dizziness. Just wondering if you do any exercises for your neck, too or will it go away by itself when your vision/ balance is fixed? Thanks for taking the time to read my comments and hope to hearing back from you soon. :) wishing you good health and happiness always.
O I wish I could help! I did have neck pain. Heaps. But mine was a direct result of the vn and chiropractic care, acupuncture, and healing from vn eventually made my neck feel better.
Thank you for all your videos, your helping so many people. Just wanted to let you know and everyone else, the flu vaccine contains gentimycin antibiotic. I just found out from 2 pharmacist and also read about it. The antibiotic that destroys the vestibular system. There are other vaccines too , with gentamicin in them. No flu vaccine for me anymore, I have a bilateral vestibular hypofunction, I don't need to damage whatever I have left . Hope your still feeling great 🌈
Hiii Lindsey how are u now ?? I just want to know when I woke up late nights then my symptoms get worse and I when I hear sudden shocking news it increases did it happen to u ??? This problem resolved with time
Thank you for your posts!! My VNG is scheduled for 9/16 & I hope to have answers!
how did it go?
Won't know till October 2nd when I'm scheduled for follow up. Tried to find out if I could get results before my appointment & was told no. In the meantime, I'm trying to learn to enjoy my new perspective on the world on tilt. Ha! :D
@@GlimpseInside any luck? Hope your getting all of the answers.
@@lindsey8081 my results showed no nystagmus but did show abnormal saccades. Neurologist sent me for vestibular therapy which hasn't helped. He said if it didn't, it could point to a chronic CNS issue. I also have double vision often. Went to optometrist & my script changed & I now have convergence insufficiency. He said CNS involvement too, probably caused by an autoimmune issue. I have other issues now too involving gait, etc. Thank you for asking! Are you still good??
@@GlimpseInside o wow. I hope you get all the answers soon. I'm still good. I'm great even! I feel healthy and happy.
Hi Lyndsey you have been my only motivation nobody else got through to me, I am four months in suffering from a lapse and wanted to ask a question which is quite specific. Did you have a feeling of like you would fall backwards if you tried to focus on things up close? I find if I go to look inside a kitchen cupboard I get a sensation like at the beginning where my heart flutters and I feel like I’m falling. My insomnia has been tough I feel it’s holding me back so iv started magnesium, exercise wise if I try a run I feel like I have pressure in my head and feel floaty afterwards, did you at this point? Thank you for being so amazing xx
Omg I love that shirt!
Haha thanks!
I am at my 1 year and 2 month mark. At that point did you still have ringing in your ear and do youbstill? My story sounded almost identical to yours. It's been so encouraging to know I'm not alone. Thank you so much for sharing💟
lets see....yes I did. but, it was much quieter than it was the first few months. It was SO LOUD in the beginning. I've always, as long as I can remember, had some ringing in my ears (I thought everyone did. it never bothered me growing up). It got really bad and loud with VN. Now, it's back to the level that it used to be pre-VN. I only notice it when the world is super quiet around me and it's not obnoxious. I can sleep without a sound machine now.
Thank you for the info. Yes,mine still fluctuates from quiet to loud.
I try not to focus on it but sometimes it's hard not to. I still have the strain and overstimulatiin visually at times and loud noises hurt my left ear in particular. It's so good to hear you are well. I am very active too. VN really took the wind out my sails for a long while,so your updates truly encourage.
Hi Lindsey, thank you for the lovely, positive videos. I just wanted to know: did you get regular headaches during your recovery? I’m a couple of months in and while the nausea/dizziness is much better I still seem to get headaches at least every other day.
I had headaches almost everyday. I'm prone to them anyway, but when I was sick, everyday some form of a headache would show up. I found magnesium helped. As did resting with a cold compress on my eyes. I'm back to normal now. headaches just a few times a month.
Thank you! I’m back at work (3 months in) and the headaches seem to be settling but now I have increased ringing in my ears which I’m trying to ignore. Seems to be no way of predicting what will pop up next, but I’ll keep plugging on. Hope you’re still doing well, and thanks again for the videos. (By the way, your job sounds awesome.)
@@victoriahattersley4458 Yay! Back to work! It will keep getting better I bet. annoying symptoms will pop up, I'm sure, and it's super frustrating. but, just when I thought I was as good as I'd get, I just kept getting better. Cheers to healing!
Hi, what about the muscle twitching ?? Do you still have it thanks!
Lindsey, what was it that you did to help yourself? I’ve Ben suffering with this and will see balance specialist on the 16th of this month. I’m so afraid of the intense vertigo. The vomiting is awful too.
Thank you for sharing your story! Have you noticed any increase of ringing in your ears when starting Lexapro?
no increase, it's only improved and I had less ringing as I got better.
Hello Lindsey, first of all I would like to thank you for your help. Your videos have helped me to understand my problem better than any doctor. I wanted to ask you a question about the stomach. I am in my fourth month and in addition to nausea because of dizziness, I have a lot of stomach pain, I do bad digestion and swollen gut. All this produces arcades although I do not have vertigo. My doctor said that stomach pain can not be due to neuritis and I wonder if it will be because I take many medications, such as Serc 16mg three times a day. Did you have stomach issues apart of nausea? Did you need Serc to stay better through the process? With my stomach problem I'm finding hard to be active..
Thank you very much for your help!!
That sounds so frustrating. Stomach problems on top of all of the other ones! The only stomach problems I had were feeling nauseous and loss of appetite. I didn't have any stomach pains, just a really hard time eating. Part of that was the anxiety because once I was on anti anxiety drugs i could eat again. I didn't take any meds for stomach problems specifically.
Thank you so much for sharing!
Can you please tell me if you still take ssri
What exercises did you do at physical therapy?
I do, I take lexapro daily. I found I'm a less moody person with it so I've decided to stay on it a while. As far as PT, I've done it all. Anything you google will be something I did for at least a little bit.
Lindsey,
I am a few months in. VRT has helped the dizziness a lot. But, out of nowhere a couple weeks ago my tinnitus, which was fairly mild, got a lot worse and I also have now been getting the ear pressure symptom. Just wondering if random symptoms would pop up during your recovery?
O boy. So many seemingly random symptoms. Felt like there wasn't any rhyme or reason!
Im 8 weeks in and i feel like shxt. Please when did you start feeling better which week?
In regards to the muscle spasms did you also feel those in your legs or just your arms and shoulders. Also did you just take the SSRI only or was there anything to help. Thank you
I literally felt them all over my body. Face, arms, legs, hands. My muscles would just randomly spasm and twitch.
what exercises did you do to help this?
Hey lovely, did you have your thyroid checked. I’m having major anxiety and palpitations. Yes the anxiety or worse than the Vestibular Neuritis. I have it it’s awful.
Hi, yes, I did have my thyroid checked. All good!
Hi hun! Im suffering the same thing 😔 could you help me please huny
Hey Lindz, have you ever heard your heartbeat in your ear? When I lay down sometimes I can feel my pulse in the back of my head and then actually hear it in my affected ear. Sometimes I hear a wooshing sound when I lean over or stand up from another position. Sometimes that ear has so much pressure, other times it hurts. These symptoms are just adding on top of the each other it feels like. I can’t keep up! Did these symptoms happen to you?
So many symptoms it's hard to believe sometimes. The heartbeat in my ears, yes. The whooshing, not too much but I've heard of other people having it. Pressure and ear pain, yes.
I have noticed that when I take magnesium citrate the tinnitus or sound decreases. maybe you can try it
Hey Lindsey! I’m seven months into labrynthitis. Physically I’m not experiencing anymore dizzy symptoms or nausea! Yay! Still going to vrt but feel like I’ve not progressed anymore in a few weeks. Most very progressed exercises don’t have an effect on me anymore. Yay! My issue now is a floating feeling. Like my head is apart from my body. I feel as though this is from anxiety and hypersensitive to anything happening in my body. Did you have this and if so, do you feel like lexapro helped with that? My deep self feels as though this symptom is from the chronic anxiety I’ve experienced during this journey, and maybe I need an ssri or buspar to overcome this last leg.
Do the VOR head movement back and forth focusing on a target, don't let the target move, also head movement in opposite direction while looking at a target,go slow or your brain won't compensate . This exercise will recalibrate your , vestibular ocular reflex . Will correct that lagging feeling, dizziness with reading, watching TV and balance issues with turning body or head movement. It's all connected with the brain,eyes,body. These exercises are most important part of recovery. Also add on CZcams,lazy eye, amplyopia eye exercises.NL balance dizziness centre, tons of exercises Google eye can learn then click on animated videos, fixation, saccades, pursuit,this is the visual system. All of these exercises will correct your vestibular system,but must do them all daily to have best results. My vestibular physical therapist uses these.get better soon.
Hi!! So exciting to be getting better!! The floating feeling left for me after the first few months, but I did start taking an SSRI around that time. So, maybe it helped me with that. Not sure. I've been lucky. Taking an SSRI helped me so much. The anxiety response from it all was too much to cope with. My central nervous system was in flight or fight mode almost all day! I'd talk with a doctor about starting an SSRI. You know yourself better than anyone else at this point. having this disorder makes you super away of every little detail going on within your body- you know best.
Lindsey McKelvey thank you so much for replying!! I’m def going to look into it :)
Jessica Devries thank you so much for all of that! Def going to try!
@@candacetaylor9895did you have tinnitus ringing in ears? have you fully recovered?
Hey Lindsey! Could you possibly make a video of the VRT you did? Where I live we don’t have any physiotherapist that are trained to do it. It would help out a lot! Thank u :) x
I'll think about it and put 9ne together if I have time. There are so many videos out there with vrt exercises that I assumed itd be redundant, but, if its helpful, I'll give it some thought.
Hello sister, I have been following your videos and I have experienced everything you had. I am in my 4th month now and I am able to exercise solo now and have been able to play basketball with my friends. My symptoms keep coming back, sometimes I only feel a little but there are days that I feel really bad. Now I have been experiencing tinnitus constantly for a week now but the rocking swaying is not that much, just some time of the day. I never experienced spinning vertigo but i do experience oscillopsia. its weird sometimes things move but when i look for the second time it doesnt or if i close 1 eye. my balance is still bad but i can manage it better compared before. What ear problems did you have? pain, ringing, itching? did you have any problems with using the phone and computer?
Hey there, I'm sorry I'm just now seeing your comment. Hopefully you have noticed big improvements since your writing of it.
Ear problems I had: they felt full and like there was a lot of pressure. I think a lot of that had to do with the tension in my jaw. I also had an increase in ringing. It has since gotten quieter, but it is still there (it doesn't cause me any problems or stress anymore. I sleep with a sound machine and don't notice it- I've had some ringing in my ears for as long as I can remember).
The first year I did have problems with being on my phone and on computers. It would make me feel really queasy. All good now.
@@lindsey8081 Hello there! I have been seeing a lot of improvements lately. my bestfriends are exercise, centrum, magnesium and tylenol for headache and eye pain 😂 i did get a part time job in a restaurant just to have a feel of going back to the world. it still bothers me a lot but i tried to ignore it. i get a sudden deafness when i look to long on my phone and like 3-5second ringing in my ears after the deafness which last for like 3-8secs then its gone 😂 and imbalance here and there. haha this thing i think will stay for a longer time, its been 8months now. but i have like 60% of my life back. i hope it gets better and better. daily exercise really helped. still i didnt get any call from the specialists so i just helped myself and pump myself with vitamins and exercise and daily routines and work haha
Do you still have to take your anxiety medication after recovering....also I don’t know if you drank coffee or alcohol before you had VN but if you did are you able to drink it now? I know I’m unable to drink coffee or one glass of wine without feeling worse and I don’t know if I will ever be able to again.
I never quit coffee. Just drank a little less than normal because I was so anxious and I didn't want to get more jittery. I wasn't drinking because I was trying to keep my immune system happy and healthy and I couldn't bear the thought of ebing even slightly hung over while feeling so crappy already. once I started feeling better and had a few drinks, I didn't have a problem. Being hungover was a pain, but it always is. I'm fine with it all now. I drink tons of coffee and never worry about drinks.
Thank you so much for replying this gives me a lot of hope ☺️
R u live your life how long time
Did you have any side effects when you started the lexapro?
no negative side effects. i did gain weight, but i wasn't able to eat when i was sick. just couldnt. and once i got on lexapro i could eat again.
@Lindsay McKalvey war Vitamins are you eat?
Magnesium, fish oil, vitamin C, vitamin D, vitamin B.
I got mine due to antibiotics and now still have bad anxiety with awful ringing
Did your ringing get better ?
The ringing in my ears did get better! Hardly notice it at all ever now.
Multiple vitamin B will help ringing in ears,mine stopped.
@@life-mm5do how long did you have it for ?
Mine got worse with the stress and ototoxicity
And did you take them naturally or in tables form ?
@@kingkongjjs I also took b vitamins and vitamin c hoping it would help the ringing. obviously I have no idea of they helped, could have just been time, healing, and the brain adjusting and ignoring the noise to some degree. I just found a B vitamin that had good reviews and took that daily along with a powdered vitamin c drink.
@@lindsey8081 how long did it take to subside ? I'm struggling with DP DR and dizzyness tinnitus
Any good tips for what helped x
check out some of my other videos if you haven't yet :) best tips I have: stay calm, keep active, and then rest.
has the ringing in your ears gone away?
MoreLike HurricaneTortilla for me it comes and goes, but not as much anymore
I hardly notice it now. It's super quiet and i can fall asleep just fine without a sound machine.
@@lindsey8081 Has your tinnitus gone away completely?
@@lindsey8081Has the tinnitus completely disappeared?
Thank you so much! Your videos are on my re-play list, so inspiring.. I am 3 months in and just started on Lexapro (I told my doctor about you). Did you have any trouble with sleep? I developed horrible insomnia about 2 months along with a really bad jittery feeling. Here is my story
czcams.com/video/Zk07bNkMjh4/video.html
I'm so glad I can be of help. I feel like I had trouble with EVERYTHING. More for me, it just took forever to fall asleep. I would be so tired but dread going to bed because laying there meant I would feel all of the insane things happening in my body and I wouldnt be able to distract myself from the sounds in my ears and the tension in my jaw and the twitching in my body the all of the worries and sadness I had. I usually fall asleep in like 5 minutes, but when I was sick it would take hours. Then, I wouldn't want to get out of bed. I'd dread another day of feeling terrible. It was so hard. I felt like the lexapro helped me sleep. So did taking Magnesium before bed.
Lindsey McKelvey Thanks! I now have a weighted blanket which helped get me off sleeping pills completely- yay! Still struggling with some symptoms but I’ve got to believe there will be an amazing normal life after this. I want to go on one of your trips! 😁