Vestibular Neuritis Full Recovery (2 year update)!
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- čas přidán 13. 01. 2020
- 2 year anniversary update on my life after Vestibular Neuritis. Spoil alert: I'm STILL fully recovered and doing really well.
What do I do to recover?
I made getting better my job. Heres an abbreviated list of all of the things I did the first 6 months that got me well enough to return to my job and active lifestyle:
Daily:
VRT- (every exercise on the web, I did)
EXERCISE-walks, gym, eventually running and biking
EXPOSURE- go to a store, a festival, busy places,
REST- get at least 8 to 9 hours of sleep each night. Nap when needed.
SUPPLEMENTS- magnesium, vitamins c and b, fish oil, zink.
MEDICATION- lexapro 10mg to help calm the panic, anxiety, and depression
Weekly:
TREATMENTS- acupuncture, chiropractor, talk therapy, physical balance therapy
EXPERIMENT- find things that made me feel off and incorporate them into my life in small doses until I felt normal doing them.
SOCIALIZE- find time to be normal and enjoy a meal with friends and family
PRACTICE KINDNESS TO MYSELF. Sometimes I needed to just cry and I let myself do that.
I lived with family and friends while I was sick. At the 5 month mark I returned to work with minor daily symptoms that were manageable. By 1 year I hardly noticed any symptoms at all. The final symptom to go was the visual disturbances.
Year 2- what a great year!
I always come back on this video whenever I feel down. I watched you couple of times since last year of July after I was diagnosed with VN. Fighting on this illness for 1 yr and 3 months now. Im not 100% ok but a lot better compare for the last months. You serve as my inspiration ❤
so glad to hear that. It can continue to get better and better, sometimes slowly, until one day you realize you haven't had to endure any of the shitty symptoms for months.
Me too! ❤It always give me power to
Keep going
@chaarmea1637
How are you now?
Update: Its been a little over 2 years for me after I first experienced VN, and I can actually say that I'm offically at 100%. No symptoms at all. It showed me personally that Lindsey is right; it really is possible to recover.
I want to thank GOD, and thank you Lindsey for helping me conquer the most hellish period of my life.
Hi.. i had 2 episodes of vn in the past 6 months and although i dont have acute symptoms i still m struggling with visual issues and rocking feeling.. when were u out of symptoms completely and what all did u do
@uzmanausheen5475 hi, im really sorry that youre dealing with those issues. Ive made a couple of previous posts that detailed what I did and the different stages i was in at different times. IIRC, it was around month 9 until I could personally say I was (mostly) fully recovered.
In short, what I did included the following:
-LOTS of sleep
-LOTS of sunlight (Vitamin D/infrared)
-fasting and intermittent fasting
-Eating salmon/fish oil supplements
-"Wahl's Protocol" diet (diet for MS patients [i dont have MS btw] involving eating LOTS of plants)
-VRT (tried to do it throughout the day too)
-HIIT/playing sports
-Dancing/capoeira (movement challenges like yoga/tai chi/capoeira are basically the ultimate form of advanced vrt therapy from my experience)
-lots of walks in the park
-gradual (re-)exposure to tough activities, like highway driving
-sauna (promotes healing properties)
-GOD/prayer + loved-ones + church support (helped the worst of anxiety problems, which is a big factor in long-term VN persistence)
-believing that I could get better/support from stories like Lindsey's
Things that did NOT help in my personal long-term recovery from VN:
-medicine (it [arguably] helped with short-/medium-term symptoms for me though)
Btw, the youtube channel called "The Steady Coach" also had very good videos with helpful tips that aided me. I hope you continue to get better
@@beestar504thank u fa sharing it means so much .. my story is a bit more complicated.. while i was recovering from vn i started taking antidepressants which then caused a whole bunch of new symptoms.. so i withdrew in 6 weeks.. but since after that i am dealing with withdrawal symptoms which are very much like vn symptoms and its so disheartening to b back to square one
@uzmanausheen5475 wow, that's terrible. I hate that you had to deal with those new symptoms.
I dont know if this is helpful, but I had a point where I was advised by one of my doctors to take anti-anxiety meds for 6 weeks. At best it temporarily dampened the VN symptoms, and when my meds ran out, I had withdrawal via a significant spike in blood pressure (30+ points) for half an hour in the middle of the night. That scared me and had me worried about long-term damage or med dependency. After that I focused on natural methods and foods for my lifestyle and my body normalized and acclimated not having the meds. I hope you will be able to recover from your med side effects as well.
hey what did you do to recover?
This is very helpful, I went to a few specialists an ENT and a Neurologist the vestibular neuritis was honestly never addressed properly by either one. I'm two years in and thanks to great information on CZcams channels I found out exactly what was wrong. Thankfully, I've had a great improvement in the last 6 months. I feel almost normal at least 95% of the time. Understanding what happened to me and so many others has been everything towards getting better,😊
Exactly what was wrong?
Hi Tam, can I have your email address to briefly speak to you?
Thanks for this! I’m 1year 2 months in xx
This is really the nicest thing. Thank you for making these vudeos. You're so right, people who get better tend not to make videos, so yours are a ray of light.
I'm a newbie, only a week in. But I have the "advantage" of having fibromyalgia for 20 years, so the rocky journey I get...also the taking it slower sometimes, being kind to yourself, etc.
Just nice to hear someone's positive recovery story. Especially important considering most internet info says we'll get better in maybe a week, possibly a month! That makes people feel crazy if they have lingering symptoms!
Man, for a "rare" thing, there sure are a lot of people that are out there dealing with this.
Kudos to us as we make our way!
Thank you for this. I am two months in and this video makes me more hopeful and less lonely.
Hi , how are you feel now .
Hi Lindsey. Thanks for the video. I’ve just been diagnosed with vestibular neuritis. And I’ve been dealing with this since early March. It’s the most awful feeling in the world! I’ve been doing my own rehab since it takes forever to see a doctor sometimes. I originally thought I had BPPV. Did a lot of Epley and half somersault maneuvers and still had vertigo. My head felt so heavy! I felt like it was as heavy as a watermelon. So I figured it’s probably cervicogenic in origin. I ended up going to a chiropractor and my gosh, the watermelon head feeling went away. I kept doing my vestibular exercises and was able to do aerobics without getting too dizzy. My symptoms were improving but I was hoping that it would all be gone. I finally saw my doctor and they did the ear test and diagnosed me with vestibular neuritis. So now I’m doing the VRO and the balance exercises and close to 90%. But then there were days when I was more dizzy. I was getting a little anxious that I would never be back to normal! Watching your video made me realize that I just had to be patient with myself and just take it one day at a time.
Thank you for this!!!
Thank-you Lindsey! Your story has given me HOPE 🫶🏻
Thank you for the update! So good to hear from you💖
Thank you for the update ❤️❤️❤️
Thanks Lindsay for your update! I’m three months in with my vestibular neuritis and very optimistic after watching your videos!
how are u now?
How are you now? Please let me know.
Thank you for posting this! xoxox
Thank you SO SO SO SO Much for positive hope. ❤️...i am suffering from the symptoms
Hi, I am suffering from this as well. Can I have your email to discuss with you?
So happy for you.
lets gooooo. wish me luck. thank u for the motivation
Thank you so much. I am on a one year journey of very similar symptoms. Mine started with BPPV vertigo - violent attacks - crystals. I have learned to do the Epley maneuver and can clear the vertigo episodes within 15 minutes. Then new progressive glasses caused me major adjustments issues. Then my symptoms turned into light and glare and noise triggers. I experienced out of body vision experiences, walking wasn’t stable at times, I was very anxious in the beginning. I had major visual vertigo attack while driving and could not turn off the highway which was horrifying so I stopped driving long distances. A year later I am noticing mostly visual vertigo, brain fog, and pressure in my head. I have continued my workouts at the gym and I play lots of PICKLEBALL. Sometimes I have to fight through as my vision goes blurry and I loose my balance. But I have to say things do seem to be calming down lately mostly because I am not afraid and have tools to manage better plus I am doing VRT. My husband is my support, he massages my back and neck which is often quite tight. He is with me all the time when outside of the house, to provide me with security as we are both retired and enjoy being active. I have not had any testing yet, but have seen 3 doctors (family doctor, an ophthalmologists, an eye doctor, who specializes in concussion related therapy). All 3 have said it sounds like I have Vestibular Migraines (VM). I appreciate your positive attitude and will probably watch your video a lot as a boost of positive energy and hope. Best of luck to you. FYI: We have RV’d to Alaska went as far west as Homer and have RV’d coast to coast through Canada and down through the US to Florida several times as far south as Key West. Would love to know more about your job if you have time one day. Wendy Vlasman
Thank you for putting your videos together, with all the updates. Helpful and encouraging!
Wish you the very best in your fully recovered active and happy life.
Love this!! Thank you- so glad you have recovered from this horrendous illness
This just motivated me to get up and do my daily exercise. Have to keep moving
Love this!!! Thank you so much for putting this out into the world!!!
I’m so happy to hear this!!! Working though my journey with this and so happy to see such a positive outcome!!! ♥️ it’s a tough road! But pushing though!!! Thank you so much!
Thank you so much for being part of the light at the end of the tunnel. Great to hear you are back to normal,.
You’re awesome for that. 🙊🙏🏾
Lindsay, this makes me feel so much better. Thank you for making these positive videos ❤
Thanks for being so real! I wish I saw this three years ago. Thank you.
Thank you very much. I’m a cop and was diagnosed with VN. I am at 10 months in with little symptoms throughout the days like visual, lighting, etc. I hope one day it gets even better with hardly any lingering symptoms. But tonight had been rough and seeing this has helped.
Hii.... How are you feeling now
I have no words how I can say thank you so much for positive video feel good to hear about you love you
thank you so much!
So exciting to watch this and gives hope.
Can you please share what exercises you did? Web links etc would be amazing. Love from Australia 💜
I have not been diagnosed but i have been watching for months and your symptoms are just like mine. You give me hope ❤
Wow.. i really needed this.. I have unilateral vestibular weakness.. and have some of the symptoms you’ve explained!! Ive been dealing with this issue since December 2020.. thank you for giving me some hope!
Awesome video
Thank you can you please please do a video of the VRT exercises you did.
I´m on my third year of recovery from the initial VN. Watching your videos makes me cry of a mix of happiness and nostalgia. For anyone else who reads this comment, it gets better no matter what. In my case it lasted an extra year because I had a weird reaction with the covid vaccine (I got covid later and it did nothing to my symptoms). *Just an additional but very important detail. Besides a lot of physical excercise, vestibular therapy, good nutrition, lot´s of support and faith: DO NOT take any amount alcohol as a way of dealing with this. I know it may sound stupidly obvious but after the depression and frustration I went through, made me find that alcohol did actually calm my worse anxiety and vestibular symptoms, but it´s actually one of the worst things you can do to you, specially with an active VN recovery, it WILL make things way worse in the long run. It won´t kill you, but will complicate the recovery process enormously.
I also got this after getting the vaccine its been 18 still have symptoms daily some days better than other its been depressing
Was just diagnosed with this... Thanks for sharing and giving me hope things will get better. Hopefully i don't miss too much work. Thats all I'm worried about is paying bills. Thanks again
Thank you for explaining this so good, it makes me feel very accompanied, and it helps me make my partner understand how I feel. thank you very much
Hi Lindsey your videos have been a big help for me and I definitely think unless you have had this, people will never understand how day to day life can be torture.
I feel I am similar to yourself as I'm a very active and busy person
I'm 2 months in and have had good and bad days my dizzy spells are getting less and less and my headaches which were terrible at the beginning are now happening for 10-20 minutes periods instead of all day what I mainly struggle with is the feeling of 'not being present' and my eyes feel exhausted all the time
apart from the first few days (of which I was bed ridden) I have tried to live my life as normal as possible, I have been working and running and playing football (even though its very hard to do so)
what I have found is I have my worse days when I'm tired and stressed and haven't been looking after myself i.e. drinking and not getting proper sleep
I have a stag do in June and I and hoping to be near 100% by then - I just cant wait for that first day that I feel 'normal'
i do think that the worry and anxiety makes it so much worse - positive thoughts are a must with this!
I going to live as healthy as I can for the next 2-3 months like you did and I'm hoping this will make a difference
thank you for your video's they have really given me hope when I thought my life was over I don't know what I would have done without them
You give me hope. I've been experiencing your symptoms for a week. Plan to call my migraine doctor on Monday. So glad you had a good outcome.
Thank you very much. You really gave me hope in my darkest time.
how are u now?
@@saintlywig5123 Hi there! I am getting so much better, feeling closer to full recovery each day.
Omg!!! I’m dealing with vn right now , you hit home when you mention the driving on the right shoulder , cause that’s exactly what I do , I just feel so uneasy in the middle lane , like I might get real dizzy and crash !!!
Yes you get your life back!
Thank you so much! I'm suffering from vertigo its been over than a year now, yesterday I went to a dizziness clinic and saw a vestibular therapist for the first time ,she diagnosed me from vestibular neutritis , she gived me some exercices to do im starting today, I hope I complete get rid of my vertigo one day! It's really difficult I have a 3 and 7 years old .thank you so much your video gives me hope!
Thank you for this update Lindsey, it's wonderful that you're doing so well!
I realise it's an old video but I'm so glad I found this, I'm not as bad as you sound but very very sick and balance rubbish. So scared because I live alone, just had my second hospital stay. Your video has brought hope to my troubled head! Gonna contact my doctor about therepy, was it like a physio you saw? I have a fantastic guy the helps me with sciatica. Hearing your symptoms I realise I've had this longer than I thought but you have given me hope. Thank you. 😘😘
Thank you so much :) four months in and hoping to get to where you are! Thank you for the hope and encouragement ❤️
how are u now?
@@saintlywig5123 Truthfully, I didn't get over the lack of focus until about the 7.5 month mark. After that everything was really great! I still have flare ups though that - literally as of today as I went to see a Neuro-Opthamologist this morning! - my neuro definitely thinks are due to migraines (I'm also 15 months postpartum with my third baby, and all that comes with that has contributed). I still do VRT, and although I wish I never had any symptoms, I definitely think I am over the worst of it!
Super helpful! What vitamins did you take? Any foods you found triggered it?
Acupuncture really helped me. Also going to visit my chiropractor.
Thanks!
Thanks for sharing. You have given me confidence. It's really wonderful to hear you talk about your recovery & your way/approach to achieve that. I'm doing exactly what you have done & I'm feeling much better now. Tinnitus is still with me but I can accept that. No problem at all. I'll keep to my routine of 8/9 hrs sleep, rest when tired, exercise everyday, going to the malls, eating right, drink water & be happy. Thanks again. God bless you.
chin up! good work!
I've commented on here a few months ago, but I wanted to come back and thank you, Lindsey. I'm about 8 months in, and I can honestly say that I feel close enough to 100% to say that I'm probably fully recovered. I'd say I'm like 99.5% or something like that on most days, except on the days i have like 2 hours sleep, where then I feel 96%, still relatively light symptoms. On most normal days, if I do feel symptoms, they are for the most part so mild, that I can't even really tell if it's just normal stuff that I just happened to notice more now bc I've experienced what it was like having an overactive sympathetic system from dealing with VN. But I honestly go for days at this point without even thinking about VN at all. Felt like this for around a month or so.
I can essentially do everything I did before I got sick (I'm pretty active with sports and martial arts) mostly without issue too.
My personal quick bullet points of what helped me most was: 1."Chasing the symptoms" (VRT, balance exercises, and other things Lindsay mentioned), 2. Exercise (HIIT, dancing/capoeira class, and basketball helped me most), 3. Diet (I followed the "Wahl's Protocol Diet", which helped me alot. It's designed for MS, which I don't have, but it's principles on nutrition was extremely beneficial for my recovery, as it specializes in nerve and nerve myelin repair. Also fish oil too. Talk to your doctor about magnesium as well.) 4. Intermittent fasting and lots of good sleep (sleep and fasting are the only real times where your body can actually heal and repair itself), 5. Family, friends, and church (really helped me calm the worst of my anxiety, alongside Lindsey's story).
Dunno if it's the same for everyone, but my experience with VN involved two intertwining stages: where most symptoms are caused by Vestibular nerve damage and subsequently, where most symptoms are caused by overactive sympathetic nervous system. From my personal research, a good nutritious diet and fasting are the current best ways to repair nerves, though doctors are still researching this (keep in mind that, according to what I've seen/read from doctors research atm, nerves heal slow and take months or even over a year to heal, and sometimes don't completely heal. Also, the studies I read did NOT focus on vestibular nerves). After a check-in with my Primary Care doctor around month 5 or so, at the end of it, she said at that she believed at that point my VN was 'gone' (which I guess meant my vestibular nerve healed), and that my dizziness symptoms at that point (similar to Lindsey's at her month 7 or so) were from anxiety (which we both agreed was likely from hyperactive sympathetic nervous system, aka your 'fight or flight' system). Taking steps to calm my sympathetic nervous system/anxiety (diet, exercise, and sleep) got me from that point to where I am now currently.
I hate perscription medicine, but I did take an anti-anxiety medication (doctor recommendation) for two weeks at month 4. I can say that it did not help me very much at all to getting to long term recovery, though it did help me feel "normal-ish" for those two weeks by numbing alot of the symptoms temporarily. I did have withdrawl symptoms (spike in blood pressure for 30 min to an hour), but thankfully it seems nothing long-lasting. I should also mention that I subsequently visited another GP doctor, who was horrified that my doctor before even recommended anti-anxiety medication (i guess SSRIs are comparitively lighter? Even then, I still dont want to take any more medication, and rather use diet, exercise, and social activity to calm anxiety, which helped immensely, though it took longer).
I can't thank you enough, Lindsay. You are truly an angel. Your messages of hope and also watching Mark H's recovery (his journey into calisthenics inspired me, since I had similar goals) really helped me in my darkest times. Your messages were truly a blessing for myself, and I'm extremely thankful.
Thank you for sharing your story!!! Hopefully others in the super hard stage of it all will read your comment and be encouraged. glad you are where you are now.
I really should post an update to let people know I'm STILL good 5 years later.
@@moonshinehikes3107 Couldn't hurt!!
@@moonshinehikes3107 BTW, I'm sorry, I forgot to congratulate you for 5 years of successful recovery! That is a massive accomplishment!!
@@beestar504 Was your dizziness sort of almost a 24/7 constant thing that kept getting milder over the months? I have had a persistent lightheadedness along with nausea (that comes and goes) for 4 months now. I never had any balance issues. My neurologist diagnosed me with VN. Even though my continuous lightheadedness improved a lot over the months but it is still there. Although mild, the fact that it is constant makes it very hard.
Thank you for sharing! Needed to hear this today! Been like 3 months, doing better, but still wobbly. 🙂
How r u now
Lindsay , thank you so much for posting this Iam emotional today as its one year ago today I got vestibular neuritis ( well took three months to be diagnosed), I was so off balance I had to relearn to walk , I haven't been at work for a year , but guess what? I start working again Monday ! , I haven't fully recovered still have shitty issues but go weeks without symptoms and then maybe feel " off" like today , but can do everything I did before I got sick , my heart goes out to anyone who has this vestibular disorder, but your right Lindsay trust your body and brain and believe in yourself ! , Iam so happy you are better , I watched your videos when I first got ill to help me . , thank you and all the best ! .
look how far you've come!!! Congrats! so glad to have been a source of encouragement for you as you recovered.
Thank you so much for sharing.I am on my 3rd months and sometimes i loose hope that i will get better.Feeling better after i found your channel and watched your videos.
It's easy to get down. Chin up, hun.
how are u now?
Thank you for sharing your story! I’m 3 months in and while I’m focusing on positive healing and full recovery, this illness gives you so many doubts. I appreciate you sharing this for all of us suffering and I hope to recover like you!!
Bro.. How exactly u feel right now..
thank you so much for this video, I have symptoms since last week and it's been very dreadful and scary.
czcams.com/video/wnrNcCWWAws/video.html. This is a link to a vestibular physical therapist specialist. She has 6 videos with demonstrations of exercises to help you recover .
Im gonna listen to u literally everyday to get through this
so glad I can help! I have a few other videos up, too, so you don't have to listen to the same one over and over. haha. Good luck! chin up!
how are u now?
Thanks Lindsey for this update. It's help a Lot. I start the symptons agains . Last year for the first time start. But they never goes.
so sorry. sending hugs and good days your way
how are u now?
Thank you so much for giving me hope. I am 21 days with it !!! Still profoundly spinning.
it won't always be as horrible as it is for you right now. promise. things get better. try to move as much as you are able. the sooner the better.
how are u now?
@@saintlywig5123 Hi, yes a year on, I still have issues. I can now walk, in a straight line ! I can speak, but not hold a lengthly conversation. No driving. I write backwards, draw clocks backwards, , have a number blindness, and have had no therapy or treatment due to lockdown in the UK. What a lovely surprize for you to check on me. Typing uses my left hand as well as right, so I can compensate. My taste and smell are back but I have terrible tinnitus.
Cannot thank you enough. Wish I had seen this a year ago. Afraid to ride my bike but now I will try. I can swim, walk, jog,and dance. It has been just over a year. I still have off days but the VRT really worked. What a scary thing. I will check out your other videos and THANK YOU, I thought I would never get better. Now I have hope.
how are u now?
Lindsay - you are amazing and so inspiring! I’m 5 weeks in - intense VRT and exposing myself to the triggers. I was lucky to find out and start the therapy early. Recently I noticed there’s so much pressure on my eyes and I can’t see as clearly as before (and that’s a new symptom) and because of you I realised that this is my brain compensating I’m actually getting better.. THANK YOU.
give updayes as u improve pls
@@saintlywig5123 it’s a slow process but I’m improving. On week 6 I noticed not so much brain fog, energy levels are better too. The dizziness is getting better aswell.
Hi Lindsay
Thank you for your recovery story...lm going through it now.
Your right the anxiety is so bad so makes recovery hard...l can relate to your story.
Hi lovely, I have watched your recovery many times. Thanks for the encouraging video. I’m in month 8. The anxiety is the worst! Being a positive person all my life. This was debilitating. Didn’t take anything for anxiety. Just started to run long distances. As I’m a runner. Thanks sending love from UK.
I agree, the anxiety is awful. I really think running was one of the best things to help with all aspects of this illness. There would be times I'd be running and my vision would be bouncing all over the place but I'd be so happy to be running that I wouldnt care that I couldn't see straight. It was so freeing.
Lindsey McKelvey Yes I’m glad that you have been consistent about tour recovery journey. Giving updates, unlike others who do not post anything once they have recovered. Xx
Ask the doc about propranolol
Thanks your video gives so much clarity and insight. My friend was recently went to the hospital with some strange symptoms, since they are diabetic we assumed it was the problem. No it was explained my friend was suffering from vertigo. Now after listening to your video we both see why the diagnosis was made and more importantly how to move forward! Wishing you well on your way to recovery! And thanks again!👍🙏😉✊💯
So glad the videos were helpful!
how are they now?
@@lindsey8081 ...much better. Thanks again👍🙏😊
PS I could not be more grateful for having found this. Your experience sounds so much like mine. I’ve been searching for an answer for 7 weeks. Almost 8 weeks now. I’m not so scared now.
how are u now?
@@saintlywig5123 Struggling. The doctors told me it wasn't VN (after running a bunch of tests). One doctor thinks it's post-COVID long haul syndrome. It got better for a while but I have some very bad days where I'm super dizzy and disoriented!
Thank you. I was diagnosed yesterday with vestibular neuritis. Praying I recover as well as you. I caught it quick though. Diagnosis was after two days of symptoms. Super scared but ready to conquer this.
so lucky to have such an early diagnosis! you can start healing right away!!
Did you recorved
how are u now?
Hello! I am so glad to hear your doing good! I have been going through this for 6 months now. I had gallbladder surgery with this also so I have a real issue with eating. I couldn’t eat in the beginning but now I am eating more but I still have such issues with my head and feeling so weird with eating and drinking water. Hate this crap so much! Did you have issues with eating? Would love to know what is vastibular vs what is gallbladder or gut issues. Thanks for your time. I love this, gives me such hope!
I had a hard time eating in the beginning because the dizziness made me nervous and nauseous. Had zero appetite until I got on lexapro for the anxiety.
Thanks for sharing. I’m currently on Vestibular neuritis recovery.
Hru now I’ve had boat feeling for almost 5 months
I cannot tell you how happy I am to have found your videos. I have been dealing with vestibular neuritis for over 5 months now. There are so many symptoms and all so very scary! Today I diagnosed myself with MS. The neck pain, blurred vision and the worse are the internal vibrations. But after watching your videos it made me realize this is all part of the process. I’ll keep plugging along, doing the therapy and trying to get more active. Thank you so much for keeping us updated. I’m feeling more optimistic now. You are an inspiration!!
o good! reminds me of me! haha. I remember being at the gym about 3 months into VN. I was on a stationary bike to get some exercise that didn't make me feel dizzy to help with the anxiety- but while I was biking I was reading all about MS, was sure I had that, too, and that my MRI had missed it and the ENT didn't know what he was talking about and I was going to die. The healing process has a lot of ups and downs. Keep on keeping on!
Larissa - how long did it take for your internal vibrations to go away? Dealing with them on month three and they are horrible.
Thank you for doing these videos, You are 100% right that the internet amplifies the minority of people who are struggling and it makes it really scary. In the middle of month 3 of dealing with very similar symptoms and started VRT a couple of weeks ago. Your story makes me feel more comfortable trusting the process. Just thought I would let you know that years later you are still helping people.
Weirdest positive news story for me yesterday where after waiting for an appointment at the regions leading balance center and having all of the tests done yesterday it was confirmed that I have damage to the signal from my lower semi-circular canal in my left ear and my doctor did say I will eventually get back to 100% but it will take time. I am feeling better than I was when I posted the original comment 2 months ago, but having confirmation that this is what is wrong and that its slowly getting better is great and takes a huge weight off my thoughts.
How are you now?
Thank you for this!! I am almost 6 months into it and definitely getting better over time. I have about 3 good days and then one bad day. Mostly it's the feeling like I'm moving or on a boat when I'm not, or walking on sponges. But I have also changed my diet which I think had helped tremendously. I have cut out dairy, sugar and gluten. Also, realize that anxiety makes it so much worse so I try to calm myself down when feeling anxious. I appreciate this video very much, thank you!!
How are you doing now?
Hopefully you are feeling next to 100% by now! Happy to have been a help in the dark days.
How long did the boat feeling last it’s been almost 5 months for me
Oh I am so thankful for your video and your story... I am on my 5th day being dizzy, nonstop. The only thing helps me is to be in bed. Searching for answers, only to find mixed messages, people wanting to get my money... then here are you giving me hope!
I hope you can get the answers you need to start the healing process!!!! it can be a scary road, but there is hope.
Only thing helps me is laying down , do you feel better now
Jake from Texas Thank you for sharing your wonderful message I was diagnosed with vestibular neuritis four months ago but I feel I am improving in the last month or so I’m going on six months but the symptoms seem to improve as time goes by I meditate exercise eat right and take it one day at a time I think that’s the key. But you’re right it sucks having the disease.
Jake how are you now?
@@richardcrane7169 hello. I’m doing well. I still have tinnitus in both my ears but lot calmer than before. Vertigo is gone. I feel great .
@@jakep389 I have vn to I believe. My ringing started about a week and a half after the hell of constant super vertigo. Did the ringing in your ears pretty much stop? Mine is only in my right ear. Btw I'm a month into it and my brainfog is still terrible. Feels like I'm on on street drugs of some kind.
Thank you for sharing your story. I am going through this. It’s almost two months now. First month was really bad. All kind of negative thoughts. Finally I am in a positive mindset. Trying to stay active.I work from home and have to sit all day working on the computer. Whenever I get chance I stand up and walk around the house. I know one day it will get better. Your story give hope for the people like us. Thank you again
Have u recovered
Yes I was recovered in about 8 months.. Thank you
Hey Lindsay - I'm on month 14 of recovery...total of 10 months in PT (took awhile to get diagnosed of course:). I watch your video's a lot as a reminder that I can get better. Do you remember when you started to not think about your symptoms? I have had such a great recovery but of course still have some ups and downs...like... maybe my eyes wont focus as well for a week or I feel a little light headed. Going from completely unable to take care of myself and my toddler son to the symptoms I have now is amazing. Its hard to be my own cheerleader and constantly stay positive, but I just keep trying:) Things do get better. I am still hoping for a full recovery as my PT reminds me "the brain is plastic" and "it just takes time". Thanks for your video's they really help.
Your PT sounds like a good one! So glad for your progress. The thing is, sometimes we are allowed to be annoyed and feel frustrated, I don't think we always have to be positive every step of the way. But, you have to even in your down moments be able to tell yourself the truth- and the truth is that you have already improved in ways you would not have felt possible and you WILL continue to improve in ways that you don't feel are possible right now!
I think I stopped thinking about my symptoms on a regular basis somewhere around a year and a half? Then there would be a day or so every few weeks where there would be this slight awareness to feeling a little odd, but it was like background noise- easy to ignore. I don't know when it happened, it was so gradual. It'll be 3 years come December and I can say now that I feel completely like myself and how I felt before VN.
@@lindsey8081 Thank you so much for the reply. It is perfect. If you know nothing else in this life, please know how important these video's have been to me. Sarah.
I am exactly in the same boat as you! I’ve been doing VRT for about 10 months now and have had the issue for a total of 19 months. It took a long time to diagnose me and I have damage to my nerve. I’m so much better too! It was so bad I couldn’t move off the couch and would cry and have panic attacks. Now, I can do anything! I still have off days but some days I barely notice it! I still do my exercises once a day and stay as active as I can. I avoid being lazy or sleeping too little/too much. Some days I worry I’ll never be 100% but then I remember how far I’ve come! I believe I will get there!
My lingering symptoms are sometimes I still get a feeling of lightheadedness, my eyes feel tired, my vision gets blurry and unsteady, my heart rate and Bp are still higher than before this happened (even though I started an antidepressant- but my anxiety is much better overall). I don’t really have the constant swaying/dizziness I had before, but sometimes do feel off and a bit wobbly.
I’m glad I’m not alone in this! It sounds like we are about in the same place. Keep your head up! :)
Oh I forgot I am also really sensitive to fluorescent and bright lights. It makes me feel off when I stare at my computer too long for work in the office with the fluorescent lights. Blue light glasses help some though! I hope that goes away too.
how are u now?
Thank You
Hi there. I have recently been suffering from vestibular balance issues due to a vestibular migraine. That’s causing me PPPD.
I am currently going through the worst 3 weeks of my life. Utterly depressing and full of anxiety. I’m trying to stay hopeful at the moment my entire life is on hold and career.
I am thankful for videos like yours they’re giving me a glimmer of hope.
Thank you very much.
I would love to one day upload videos like this my self.
How are you now
@@MajesticWorks Hi. So I still have symptoms however i have learned to adjust and still live a full happy life. I can still do 90% of the things i used to do its been a process however i have accepted it.
Continued to work and progress in my career. Be active and achieve new fitness goals.
Its a process both mentally and physically I am still positive it will go away. habitualization is key
thank you for this.. Day 7 im terrified.
Lindsey: You are my hero. Your explanation of this virus helped me more than you will ever know. I have an acoustic neuroma, so when I got vestibular neuritis, I thought it was my tumor. Gratefully, I have recovered and I thank you for sharing your knowledge.
That is a really nice thing to say, I'm honored. Very glad to have helped!
how long did recovery tak?
@@saintlywig5123 It was months. I’m thinking five to six.
Thank you
I know this was made 2 years ago, but thank you so much. I hope you are still doing well. ❤️ I am about 7 months in and just finding out that this is what I've been dealing with. I wouldn't wish it on my worst enemy. I can't even pick up my 10 month old baby girl. I was wondering if life was worth living. People who have never dealt with this cannot possibly understand.
I feel the same way and am new to this 😞 I can’t even be a mom to my kids right now and have days I just don’t know what to even do it’s so overwhelming. Are you still experiencing this?
Hi from UK Lindsey, thank you so much for these updates. It's really helped to understand your progress especially the fact you have a physical job. I am also very physical and really hope to get back to my hobbies of wakeboarding and snowboarding soon (once we're all out of lockdown!). My exercise rehabilitation is going well and I can do most things but it seems that all of my balance is still with my eyes and with my touch. As soon as I close my eyes my balance completely disappears. Was this something you had and did this correct itself over time? Was there anything you did to help with this? Thanks once again and stay safe in these difficult times! James 😊👍
Yes! Once I got to a place in my PT where I could stand on one foot with my eyes open and not fall I would then start practicing doing it with my eyes closed. I still sway some when I close my eyes. Our brains rely on our vestibular system for balance along with vision and touch (think feet on the ground). So when we close our eyes we are taking away the visual, and you brain is probably heavily relying on that right now because your vestibular system isnt functioning at 100%. When I closed my eyes I focused on planting my feet squarely on the ground and focused in on how that felt. My balance got better that way. I did a lot of exercises aimed at letting my brain use other information for balance besides just vision. So, balancing on one foot or feet in a line while watching a really busy video- having something in my visual field that didnt match what i was doing my my body- so my brain could learn to tone out the visual input and rely more on the physical input. make sense?
@@lindsey8081 yes that's very useful! Thank you! I think there's no substitute for hard work is there? I think putting your brain into new movement scenarios with eyes closed and trying to concentrate on understanding where your body is can really help. I'll try to do that more!
It's not a fast and easy recovery is it?
Thanks once again and stay safe! 😁👍 x
@@jameskendall3591 Sadly, no, not a fast and easy recovery if you are dealing with a chronic case. Some lucky ducks stay in that acute phase and go back to normal fast without really doing anything...lucky bastards! But once you are past a few weeks, you usually have anywhere from 3 months to a year of hard work ahead of you. (doesn't mean your life has to stop that whole time, but yeah, lots of work!)
@@jameskendall3591 hi james I have read your comments and just wondered if you are now better and how long did it take?
I'm 2 months in having a very bad day and need some desperate inspiration
hope you are well
I love your videos! Thank you for the update almost 6 months into this horrible illness! When Did the balance swaying and rocking sensation go away?? Mine is still there 😩 I just had a set back! Please help I’m hopeless sometimes and cry my self to sleep! All I have is faith in god that is helping me get through the roughest days of my life
I think it's different for everyone, dear. By 6 months I wasnt really dealing with feeling off balance anymore. Most of the daily symptoms left for me to deal with were visual (bouncy vision, blurred, hard to focus, trouble making sense of what I was looking at when I was running or biking) and I'd feel motion sick occasionally.
I definitely cried myself to sleep on kore than one occasion. I'm sorry you're struggling. It's hard, I know.
Lindsey McKelvey thank you for replying , congrats on your recovery
@@lindsey8081 hello I have been doing vrt for more than a year, I feel that the exercises no longer make me dizzy, the last symptom I have is about vision, will the exercises help to correct that? thanks
PLEASE DO ANOTHER VIDEO PLEASE!!!! Please give us another update. Triggers, Relapses/“bad days”, anxiety etc. please give us an update.
Hi! I'm alive and well and living a full and vibrant life!! No relapses to note. 4 years post initial illness and I'm doing great! I still have ringing in my right ear. It's minor and does not cause me any issues in my life. I'm more sensitive to car sickness and am a little unsteady on my feet in total darkness. honestly, I don't notice these things and live a very active life. I just finished a 5 month hike and drove across country twice last month.
Lindsey please post more videos about your well-being. You bring so much hope, solace and somehow just listening to you alleviates my anxiety, helplessness and discomfort. Please post more videos about how you are doing. I see myself and my symptoms almost exactly like yourself but you are so positive about everything, it brings so much hope and promise.
How are you doing now, Blaze? Hopefully almost back to feeling normal? So sorry for the delay in response- I was out busy living life! I am doing so well. I hiked the Continental Divide Trail last summer! 2500 miles of hiking from Mexico to Canada! Needless to say, I wasn't very connected to my youtube page.
Thank you so much for the video, what about the head pressure feeling, that floaty stuffy feeling, did you ever have that and around which month did it start to fade away? Please help and thanks
The floaty feeling, at least from my own experience and research, is called 'depersonalization'. It is a product of extremely high anxiety.
If yours was like mine, if you lower your overall anxiety (sleep, plant-heavy+organic meat diet, intermittent fasting, spiritual support/family support/therapy, VRT, lots of exercise, progressively adding life activities back), it will likely improve drastically or maybe even progressively be gone in months time.
Hi!! Thanks for share your story, it really gives me hope. Do you think the symptom of feeling off of balance can be caused by anxiety too? Im not dizzy anymore is just that feeling, that is triggered in close spaces
czcams.com/video/wnrNcCWWAws/video.html. A vestibular physical therapist
Lindsay,
I was also left with tinnitus (static & fluttering sounds) I am trying to cope but I cry everyday depressed. Contemplating antidepressants but scared of taking them 😭😩
Thank you for such an inspirational story!!! Its so good see a successful FULL recovery story!!! I feel very blessed and I thank you for your thoughtfulness in making this video for sufferers
My question I have is did you or do you have any sleep issues from VN, and what did you do get more/better sleep?
Once I was asleep I was fine and would sleep forever- like 10 hours. The falling asleep was hard because I was anxious, felt dizzy sometimes, and my ears were ringing. So I used a sound machine and took supplements that were supposed to help with anxiety. Ultimately, once I was taking lexapro, the anxiety issues relaxed and I could fall asleep easily
@@moonshinehikes3107 WOW, youre so amazing, thank you for your fast reply!!
My issue is i have to sleep in an inclined position on my back, to keep me from having "falling" vertigo sensations interrupt my sleep (i am out of the acute stage, btw). Also, if i sleep on my side, espescially my right side, I'll wake up after an hour or two with bad dizziness (either side), and burning sensations in my ear canal (right side only). Its to the point where I kinda have to use pillows or a wall to "restrain" my head from moving at all, lol. I have to keep my head straight and not move at all. Its to the point where im about to google for some type of sleeping head straps or something, lol.
Usually i'll get 5 to 6 hours of sleep (not enough for me, but enough to get through the day) but only like 1-2 hours on bad days. Its less a huge issue and more of me trying to intervene with a plan before it does become a huge issue for me. I am on my second month into my recovery btw.
It seems like you did not have to deal with this issue, which I am VERY GLAD that you have been able to avoid!
@@beestar504 God that sounds terrible. I didn't have it that bad but I did have to stop sleeping on my right side for the first 6 months and in the early stages it felt better to be propped up more than usual (typically I like a very flat pillow but I was doubling them up).
It would sometimes take me hours to finally fall asleep I had so many weird sensations in my body and could not relax. But luckily once I was asleep I could stay asleep. Good luck. Getting sleep is so important in recovery!
@@moonshinehikes3107 tbh, for me, its still pretty bad I guess, but I've been more pre-occupied with sorting out the traumatic feelings, which I feel waaay better about recently (to which your video helped out even more, I am SO THANKFUL!), so the sleep thing felt more annoying at this point than anything, and I currently view it more as a preventitive measure for me.
Now that the vertigo stage is gone, I feel like I want to attempt a step forward to try and sleep more like you did on your left side and with one extra pillow (instead of, like, 3, lol). I tried it once before, and though I still felt dizzy waking up, i felt it was successful. Small steps like these for me I feel is what will help me get back to normal, so your viewpoint is very encouraging. I was always a side-sleeper anyways, so if I can make this, this potential victory will make me feel amazing haha
Also, I think getting back out and exercising to the level I did before this all happened will probably help with that issue for me alot too. Again, I feel your story helps me with that too (THANK YOU ONCE AGAIN!)
Just a quick update: I laid down on my left side looking at my phone as a test run, and then ended up sleeping 4 and a half hours (nap) with NO dizziness....Operation success!
Been dealing with something for 6 months. Vestibular neuritis has been mentioned but no one has said it definitively. Based on my MRI and CT and all my other tests being normal it seems like VN is the best guess. I was watching a few VN videos online and 100% props to you for making these and keeping them going. It's very reassuring to hear that if this is VN I can be normal one day.
I did have a few questions.
1. Did the sensation of fullness in your ear ever go away?
2. When you say your ear is 40% loss, is that hearing, balance or both?
3. Did you feel pressure in your head? (kind of like sinus pressure) I feel it less in the mornings and it makes me think the pressure is just the eye strain of me compensating for the dizziness.
Great questions!
1. Yes, the fullness in my ears went away.
2. I have 49% loss of function on the right. No hearing loss, just some tinnitus now.
3. I had so much head pressure. It would change through out the day depending on what I did that day. That's gone, too.
My MRI looked normal besides chronis inflammation of my sinuses. What confirmed vn was getting a VNG. Mainly, the caloric test was my big indicator. I'd ask to get that test asap.
@@lindsey8081
Glad to hear the ear fullness goes away. Its felt that way for a month and at first it just felt like I needed to pop my ear and I couldn't, like just stuffy. Now it feels like waking up with a dead piece of my own head. The first thing I do every morning is rub my fingers together and test the hearing in that ear and of course breath a sigh of relief that is sounds mostly like the other ear. Because I'm only just now experiencing the ear fullness, the current ENT I'm seeing (ENT number 4) wanted me to take a course of anti virals just in case I'm still fighting the original bug 6 months later. He also signed me up for Vestibular rehab. Based on your videos and others it seems that activity and guided rehab are the best medicine.
I was trying to express to everyone the panic attacks and feeling like the nerves in my whole body are just fried from dealing with this dizziness and slight vertigo every waking moment. Some nights it hard to sleep because the bed and room start to float away and I feel like I'm going to fall and then I open my eyes and the room comes back but then I have to try to fall asleep all over again.
I'm not sure the names of all the balance test I have done. I did the cold water warm water in the ears test, the spinny chair in the dark test and the one were they hook electrodes to my head. And of course basic hearing tests. The findings were basically that I had a slight problem with sway detection and that my eyes and my ears were slightly out of sync.
So no one has said VN definitely but I think its the working theory moving forward.
Thanks again for the info, sharing your story and keeping updated. Maybe when this is all over I should do the same.
how are u now?
@@saintlywig5123
Still dealing with it. After 6 months it got worse. It's been 18 months since the start.
The current theory now is that is it not Vestibular Neuritis but instead a Vestibular Migrain. This seems to be supported by the fact that when I started on propranolol (a blood pressure med) and Paxel (depression med) I did experience some of the first relief I've had since it started. Even though migrain is not what those drugs are marketed for they have certain properties that can help migrain. The drugs help but they by no means make me normal. I'm still doing my vestibular exercises and trying any other treatments I can come up with. When I take my propranolol and paxel, drink lots of water and eat some turmeric gummies regularly I feel almost normal.
I am so sorry for anyone who has to go through this. It is tough. Mine started in January of this year. I had covid 2 days in started to get brain fog. Started to feel off. I knew something was wrong in March when I became dizzy 24/7. Anxiety kicked in. High blood pressure. I started physical therapy on my 5th week. Dizziness is for the most part gone expect on occasion I feel weird. Right ear 33 percent loss which I hear is minor. The right sometimes feels woozy and lifts pretty quick. My main issues right now are light sensitivity still. I wear glasses but still feel the sun. Lately I have been able to take glasses off for a bit but I pay for it with a major headache.
I am curious I seem to get headaches daily right now with lots of movement. I walk everyday and ride my bike but I can feel headaches starting soon after but fight through it. I’m curious are these cause from therapy and doing exercises at home and does mean the brain is calibrating and working work to figure this stuff out? Fatigue is a lot better. I appreciate all the feedback. I know it will get better. My therapy folks say I have made significant approvement From my understanding all of us will get back with compensation just takes time and lots of patience and believing.
When Will headaches go away. Jumpy vision. Feel eyes get strained. I assume it’s from the therapy and everything else that is going on and I hear it is one of the last things to go away.
Thoughts?
I did not compensate fully. I was dizzy almost always but life can be great even so. I danced, jumped around the house, walked, ran, traveled, and could drove hours. At 3.5 years I decided to do VRT again and it made a difference. Got hit again 5 weeks ago and its ROUGH. But I plan to get better...and even more better.
Hello ,how are you doing now ?? Had VN for one year and four months ,for me it's actually being a rollercoaster I am okay now but I have moments plus the trauma that VN leaves you with is absolute horror ,but overall I am better ,how are you??
Hey Lindsey, I'm moving into my 6th month with VN. Wobbly days, slight eye blurriness still, ear pressure...but my biggest issue daily is a constant "headiness" like always a bit disassociated, never fully present. It's like the last part...trying to break through the invisible glass and back to "me". Wondering if you experienced the same for a length of time? Thanks for your time, and for your positive, wonderful, hope filled videos! I hope you're well!
hopefully you are feeling better! This is a late reply, I've not been checking my comments, sorry! I did feel a lot of what you are describing the first 6 months pretty consistently and then once and a while up to the first year mark.
I am well! Life is good and I am healthy :)
Wondering how you are feeling now? This seems to be the last bit for me 4 months in! Just a slight dissociated,detached, dreamlike state. Thanks
@@SEA-BASS1I been struggling with VN since 1/2/22 going on 2 years now.. I had the dreamlike felling for quite some time.. Maybe the first 8 months were the worst.. Then some days i would wake up feeling like it wasn’t me.. And the worst part was the tugging sensation on the top of my head.. Im almost on my 2 year mark.. And still occasionally have the tugging sensation.. But overall 90% healed.. From all The Dizzy and disoriented feeling.. Stay hopeful and very active.. We got this 🙏🏻
I've watched some of your other videos and like to know how your ectushian(sp) tubes are after two years. And, also sound sensitivity? Thank you for making these videos. God bless you xx
I'm back to normal for sound sensitivity. My eustacian tubes are almost completely normal. They don't pop and stick anymore when i move my head, but they are sometimes still a little sticky sounding. Hard to describe. They don't bother me one bit though.
That's wonderful to hear. Would your eustachian tubes pop/ crackle when chewing or yawning, or only when you moved your head? I was dignosesed with ETD but I have all the other symptoms dizziness, brain fog, stiff neck and full feeling in my head, so I don't think its just my eustachian tubes. Looking forward to your reply. Thanks for making these video
@@mandyrose5822 For a few months, they would pop, crackle, stick, sound gunky whenever I moved my head side to side, yawned, opened my mouth wide, etc. It was SO ANNOYING. not a problem like it was. I'd look further into your diagnosis, you could possibly have something going on in your inner ear, such as vn.
Did you take any vitamins, supplements or herbs for this?
Thank you for the video!! Im 10 months now an I feel imbalance now after VN, but my head now feel like 10 kgs and I have a lot neck pain to maintain my head weight. Did you feel this way?
yes! it gets better, though! chin up!
did you have gaze stability problems, mainly when turning your head while looking at an object? if so, how long did this symtom stay? many thanks!
Did you ever come off your SSRI? The lexapro took all of my symptoms away, but I recently tapered off due to side effects and they came back. At this point around 6 months in. I’m trying now to heal naturally. I feel the lexapro was masking the illness although it did help greatly.
Hi,
I want to ask the same!
I am in VN in 7. th month and I am thinking of ask my foctor to give me SSRI.
This illness makes me totally hopeless,
But I heard that it could be better to heal naturally
I dont know
Please Lindsey help us with an advice
Thanks in advance!
Thank you for making these videos. Just watched all of them. My problem started at Christmas this year. Our symptoms are all similar. Off balance, head wobbling at the dinner table, nightmare walking in shopping aisles but not too bad in an open field, and then not knowing what was happening anxiety went crazy! Couple of questions.... did you try meclizine? My dr insists it helps but I don’t see a difference. He also put me on 12 days of steroids. No fun and didn’t help at all. And you mentioned your blood pressure went up, did the same happen with your resting heart rate? I was in the 60s but now I’m around 100. I am going to start forcing myself to walk through store aisles tomorrow. It seems like a good easy therapy to try. Thanks
No fun, right? But you can do this. Get out and get moving! I think it is a good call for the steroids- not because they will make you feel any different (because they wont) but because they can help stop the progression of whatever inflamed your vestibular nerve in the first place and prevent further damage. I think of taking it as a safety precaution. My blood pressure was high and my heart rate was slightly higher for a couple of months. I blame that on the anxiety. My body was freaking out. Freaking. Out. I did not take meclizine. Not even sure what that is honestly.
When you get yourself into the store, take it slow. Walk the isles but keep your head straight and focused on a point at the end of the isle. once you can handle that, try walking the isles and turning your head. Then reading things and moving your head around, etc. When I would walk the isles and start feeling really off, I would stop and take really big deep breaths and look at my hands until I stabilized.
Good luck!
Lindsey McKelvey Thank you. Meclizine is the same stuff people take for motion sickness on airplanes and boats. I think doctors confuse dizzy and off balance. My biggest challenge early was trying to get a doctor to understand what I was experiencing. ....Trying my store therapy today. Thanks again.
@@donk286 oooo yeaaaaah. I did take that after my first er visit. It did nothing for me.
Good luck in the store! Buy yourself something fancy :)
Lindsey McKelvey I’m making some progress walking closer to normal. Been to a good vestibular therapist. The one thing I can’t shake off at all is the awful dizzy feeling when sitting down like my head is going to fall off. The therapist says suck it up and suffer through it until it stops but it’s not getting any better.
@@donk286 it will get better. We all heal at different rates. My head felt like it was falling off. I'd hold it when I sat still to make it feel more stable. It didn't go away in a day or a week. It took time and eventually it wasnt a symptom any more
Hiii Lindsey u recovered completely?
You are so lucky to be recovered. Are you still on the SSRI's? Did you ever take betahistine? Are you able to sleep on you effected ear now? I am going on 5 months and i haven't try sertraline yet my dr wants me to cause my anxiety is so bad now i can't calm myself on my own so close to trying CBD oil to calm myself want to do try all natural ways. I still can't drive and can't work you are such a positive influence i sure hope i can get better like you i found VRT didn't help for me just walking all the time.
I did natural remedies for anxiety AND an ssri. I am still on an ssri. It helps me for other reasons, too, so I've stayed on it. I avoided sleeping on my effected side for at least a year, maybe even two, but now I sleep on both sides and I do not have any problems or wake up feeling symptoms. I did not use a betahistine, I don't think they are commonly taken with VN, but I'm not sure.
@@lindsey8081 what natural remedies did you try for anxiety i am willing to try anything. I can't take most of the meds the dr's give me cause of my SVT :( so it's making my recovery harder to find things that won't make my heart race.
@@sheenapoucette5888 magnesium- i used the product (and still do) Calm at night. Fish oil. cdb tinctures. And I drank A LOT of water. Deep breathing. Stretching.
What does the cbd tinctures do? Or help you?
@@sheenapoucette5888 they help relax your muscles, which I found helped me sleep better.
Thank you so Much for this video... i am 11 months in, and Some days are okay, and other days it is just horrible 🙁🙁 did you get anxious after you started on medicine? And What vitamins did you Take? And did you avoid sugar, coffee.....? Greetings from Denmark 😊😊
being on meds took my anxiety away (i was taking lexapro) and made things a lot better for me to manage. I took vitamin b, D, and c daily. magnesium as well. I never quit drinking coffee, just had a little less when I was feeling anxious. I did stop drinking booze for a bit.
@@lindsey8081 thank you for taking the time to anwser me, it means alot 😊 i watch your videoes when it all feels hopeless.. they make me feel Better, so thank you for making them. 😊
Lindsey, can you tell me if when you had this condition if you had oddities like not being able to walk in a straight line but when you run or swim you are fine? This is the case for me and it’s so strange. I’m also horrified in grocery stores-big stores like Home Depot are terrifying!
Yes, andni think the inconsistencies with what I could and couldn't do made me think there was something even bigger and scarier than vn happening.
I felt amazing running but couldn't walk in a straight line if I turned my head. If I was in a pool all day, I felt like a normal person. It was odd. But, also, when I examined it all, it made sense in the end as far as where my brain was at with compensation