Vestibular Neuritis Recovery Story

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  • čas přidán 29. 04. 2018
  • Recovery from vestibular neuritis / vestibular hypofuntion / vestibular disorder is real, does, and can happen! This is my recovery story and I'm sharing in hopes that it will serve as a source of encouragement for those struggling with this disorder!

Komentáře • 575

  • @charlescarter2072
    @charlescarter2072 Před 5 lety +54

    Dear God please come into my problem. You are the controller of everything including the inner ear. Help me recover or manage this condition. Give me my spirit back.

  • @tonypenver7278
    @tonypenver7278 Před 9 měsíci +4

    I'm so glad that you are recovering. I have had chronic VN for the past 10 years. I am a still very active 70 year old and have learnt to live with it. It put me in hospital for 5 days after coming out of nowhere. I had extensive rehabilitation exercises for the first 9 months and still continue with some of the exercises. Good luck with your full recovery. Tony Penver, Cape Town, South Africa.

  • @JenniferPrescott
    @JenniferPrescott Před 3 lety +34

    I feel like I finally found someone who understands! I’ve been struggling with this for 7 weeks. All my tests have been normal. I walk like a drunkard! Very grateful for this video.

    • @lindsey8081
      @lindsey8081  Před 3 lety +4

      It will get better! It is a bumpy road and has small gains, but you will get there.

    • @EE-ie9gm
      @EE-ie9gm Před 3 lety +2

      Are you getting physical therapy for it?

    • @JenniferPrescott
      @JenniferPrescott Před 3 lety +4

      @@EE-ie9gm After several tests they told me I was normal and did not have this condition. It made no sense to me because it matches so perfectly with what I'm experiencing! I don't believe everything doctors say any more. At any rate, I did not get professional physical therapy but I did exercises on my own that helped. Anything having to do with symmetrical movements (such as tossing a tennis ball from one hand to the other) seems to help with the balance issues.

    • @nituyadav4678
      @nituyadav4678 Před 3 lety +1

      @@JenniferPrescott how are you now

    • @nituyadav4678
      @nituyadav4678 Před 2 lety

      @@JenniferPrescott hii how are you now plz reply

  • @JohnGobbi-jw6tw
    @JohnGobbi-jw6tw Před 7 měsíci +3

    Hi I am John 70 year old who has been suffering with stuff for three years before I recently found have PPPD, I thought I was going mad, I thought I was dying. I have just started exercises and reading. I am retired and have a lovely wife who is very pleased I have found out what is wrong with me. Thank you so much for your story. John

    • @thatgirl1134
      @thatgirl1134 Před 6 měsíci

      I hope you’re feeling better ! I’ve recently been diagnosed with PPPD too . Doing a lot of vestibular exercises and meditations / somatic tracking and it seems to be helping

    • @krunalkavlekar
      @krunalkavlekar Před měsícem

      Do VRT exercise regularly, each person takes time depends on the vestibular adaptation, check for b12 vitamins, that helps, do all the exercises that include bending, stretching, playing with the ball. Do all those exercise that makes you dizzy. Do meditation to calm your senses and confusion. Be calm, when the right time will.come, you will be back to normal life, Hare Krishna Hare Ram.

  • @stefanobordoni4201
    @stefanobordoni4201 Před 5 měsíci +4

    Based on my experience, I confirm the same trend. I am 4 and a half months into this nightmare and things seem to be significantly improving. I still have balance issues here and there, but I am learning how to cope with them. Because of anxiety, pure fear and recurrent panic attacks, I had to quit coffee after 20 years of daily usage... yesterday, I have finally had my first coffee in 3 months! Anxiety is still there, but I have managed to take back control on my life (for the first three months, this wasn't the case). This condition triggered so many seemingly unrelated issues all other the body: leg and harm weakness, consistent neck pain, leg pain, palpitations, chest pain or constriction... I can go on listing for an hour! Moreover, my symptoms increase any time I feel stressed about something, like an endless spiral: symptoms cause fear and fear causes more symptoms. It's so easy to feel hopeless, especially when you are misdiagnosed... thank you for your encouraging story!

    • @cristhiandiaz1149
      @cristhiandiaz1149 Před 2 měsíci

      How do you feel now ?

    • @cristhiandiaz1149
      @cristhiandiaz1149 Před měsícem

      Hi , how era ypu feel now ? I hope you are ok , i'm on two months ago , same sintoms , same condicion , it is horrible .

    • @SheilaBR
      @SheilaBR Před 14 dny

      How are you now?

  • @lilah9675
    @lilah9675 Před rokem +3

    Oh my goodness! EVERY SINGLE symptom you mention I've had since waking up from a coma 19 1/2 years ago. A brain injury and broken neck vertebrae from a car accident. The swaying feeling, the noise sensitivity pain, the confusion, weird vision, wobbly legs, etc, etc! I also hiked previous to the accident but have used a walker almost 2 decades to keep my balance and that horrible imbalance is there 24/7 all these years. Can't wait to call my doctor in a.m. 😧

  • @danielled444
    @danielled444 Před měsícem

    I’m almost 8 weeks. This is so encouraging thank you! The symptoms are so bizarre it’s hard to get anyone to understand what you are going through. It’s so helpful to hear your relatable story. I had an acute attack at onset and it was intense. Then 2-3 weeks sort of just lived life with weird sensations but week 4 things escalated a lot and I had to stay home and not drive. My PT started week 6 and it was baby steps. I’m anxious to be able to drive again especially. I’ll hold out for this coming for another 1-2 months hearing your story.

    • @8benzin
      @8benzin Před měsícem

      You will recover Danielle !

  • @michellebrinsden4941
    @michellebrinsden4941 Před rokem +4

    I'm on exactly 4months since symptoms started. I had Covid in May and started feeling dizziness June 1st. It took me over a month to get a proper diagnosis after seeing neurologist and ENT. I have 41% weakness in my left ear. It's been apsolute hell and took a month off work. Here is a list of areas I made progress in and a list of continuing symptoms. I've also been in PT for 2.5 months. My ENT also gave me steroids and a steroid shot in my ear. As of 10.1.22
    No shaking
    Able to eat
    Way less nausea
    Ear no longer hurts
    Ear no longer full
    Eyes no longer heavy
    Eye no longer twitching
    Balance is much better
    Carpet doesn't bother me
    Lights are manageable
    Decrease in feeling like tipping over
    Sitting still is better
    Tolerate grocery stores better
    Goals...
    Decrease dizziness feeling
    Decrease brain fog
    Decrease eye strain
    Decrease anxiety
    Increase activities and exercise
    Never give up!

    • @omarbilbao7460
      @omarbilbao7460 Před rokem

      Hello michell have you recovered from tinnitus?

  • @SharonHen
    @SharonHen Před 6 lety +32

    thank you for giving recovery a voice. I can't wait to see what you do with your post vestibular illness life. Love the message. So important. IT GETS BETTER :)

    • @vinothkumarp5662
      @vinothkumarp5662 Před 2 lety

      Hey Sharon, how are you doing ? Have you recovered completely from vestibular Neurities ?

  • @gormo6403
    @gormo6403 Před 3 lety +1

    love this. thanks lindsey

  • @mumzee52
    @mumzee52 Před 5 lety +2

    Thank you so much for your video. Very helpful.

  • @gloriousm
    @gloriousm Před rokem

    Thanks for sharing this!

  • @davehawkes5963
    @davehawkes5963 Před 2 lety

    great video....you are a natural .

  • @conorkeenan9214
    @conorkeenan9214 Před 20 dny

    Thank you for your videos! Very helpful and encouraging.

  • @renougasandira4634
    @renougasandira4634 Před 3 lety +8

    Thank you, really appreciated what you shared. Positive and encouraging.

  • @user-oi9rg2nn8d
    @user-oi9rg2nn8d Před rokem

    So good to listen to you talk about your recovery journey. It's such a scary unknown recovery time. Thank you for this as my usual positive outlook is waning and I'm quite scared, good to hear Your story. X must keep positive 💚

  • @user-oi9rg2nn8d
    @user-oi9rg2nn8d Před rokem +1

    So good to listen to you talk about your recovery journey. It's such a scary unknown recovery time. Thank you for this as my usual positive outlook is waning and I'm quite scared, good to hear Your story.X

  • @aliciaschreader1981
    @aliciaschreader1981 Před 3 lety +5

    Thank you for this video! Yes we need positive recovery stories. I’ve been struggling with this July - Sept of last year & it returned late January of this year. I’m recovering now.

  • @kemattin87
    @kemattin87 Před 5 lety +6

    Thank you so much for sharing. I've been struggling with VN for over two months now. I am a law student and am taking a reduced load this semester but it still feels near impossible because of my symptoms. It is nice to hear a positive story. The majority of the stories on the internet can be disheartening.

  • @AllyJack77
    @AllyJack77 Před 3 lety +20

    For anyone reading in similar situation or that is just starting out on this journey, I had this happen completely out the blue around 6 months ago, July 2020. The world started spinning out of nowhere when I was watching tv, it felt like I was very drunk without any of the fun, constant tinnitus, sore/ stiff neck, headaches, nausea and general vertigo. I had a CT, MRI and all clear, so expected Labyrinthitis. It took me about 4 weeks to regain my balance properly, but was easily tired out if i went out, sensory overload, but I always tried to do what I could to stay active. I had two further relapses of vertigo and balance set backs in September, not as bad, but recovery was also slower. It's now January 2021 and just last week I feel that my balance is fully restored. Before that the lingering thing was if I looked up to the sky too quickly I would fall to the right. The tinnitus remains constant, but I'm feeling much better, running 5 and 10k's, no longer any balance issues when I quickly move my head. My sleep has not been good since July, I think the tinnitus keeps my brain always active, but hopefully in time this will also improve and I will make a full recovery. It's not pleasant, but I felt getting the scan and knowing it was nothing life threatening was an important first step. It let me accept it, try to understand it more and do as much as I could without the fear of what else it could be. Stay active, eat well, exercise, get out and about and try to stay positive. Although it's frightening at first and quite tiresome and limiting at times, there are worse things that happen to many people every day, so be grateful for what you CAN do, and hopefully you will recover in time. Namaste

  • @low149
    @low149 Před 11 měsíci

    Same happens to me now. Tinnitus with dizziness. Thanks for this good sharing.

  • @MrsC48
    @MrsC48 Před 5 lety +26

    Great video. VN took me down suddenly in July of 2014. Intense spinning, could not open my eyes without vomiting, ambulance ride to hospital where I spent 4 days on IVs, had a kidney injury from the dehydration. Finally discharged and spent 2 weeks more mostly in bed. Hubby had to help me onto the toilet for 2 weeks (TMI, but that's how severe it was). Got myself to physical therapy to learn the exercises and did them 4 or more times a day. If an activity really made me dizzy, I did that activity over and over until I wasn't. I went to stores with a cart for support and walked up and down the aisles, to get used to the visual stimulation. The nausea lasted about 4 months. It took 2 years before I could walk a straight line and get back on my horse. Driving was a challenge and for 3 years I had "right lane days", in case I had to pull over suddenly from vertigo. I had a constant floating sensation for 3 years. It's now been 4 years and I consider myself fully recovered. I have very loud ringing in my right ear and some hearing loss, but all other symptoms are GONE. My advice is to MOVE, do those exercises faithfully and be patient. It's a long and slow recovery, but don't give up. Do not let VN win, it can be overcome! Move, move, move!

    • @lindsey8081
      @lindsey8081  Před 5 lety +1

      Hey, thanks for your response! You're journey sounds so intense!! I'm at about 10 months now and have days where I feel completely and entirely normal. I still have days where little symptoms come up, but for the most part, I am living my life fully and as if I did not have this disorder. It can still get disheartening, even though I am doing so well. It's easy to think you're as "healed" as you'll ever be and will just have to cope with the little symptom flare ups...but when I hear stories about people dealing with symptoms for years and improving, then I remember there is STILL ROOM for MORE improvement!

    • @MrsC48
      @MrsC48 Před 5 lety +2

      I think your video is SO important. Like you said, all I could find too were horror stories of people never recovering. The only residual now is walking through a crowded restaurant of all things, not sure why. What helps is concentrating on my feet and where I'm placing them, weird, but so is this illness. lol. Keep moving and you'll get there! All the best in your recovery!

    • @charlescarter2072
      @charlescarter2072 Před 5 lety +2

      Thank you. I get the floating sensation too. I hope that goes. I am following your words. Thank you for sharing you experience strength and hope. It is helping .

    • @BeaRam-jg5ec
      @BeaRam-jg5ec Před 4 lety

      Interesting about the kidney issue. I was actually admitted into the hospital for low blood sodium because I was drinking too much fluid (virus perhaps made me extremely thirsty) and two of my medications which I stopped (cymbalta & gabapentin) also made me thirsty. Nephrologist told me to get off cymbalta. I was still dizzy after sodium was normal and 2 1/2 months later, a VNG test ordered by an ENT revealed 30% weakness in left ear. I did vestibular therapy and kept moving as much as possible but that triggered anxiety and acid reflux (I am very lucky I haven't vomited). I'm 3 1/2 months into this and still feel dizzy most of the time, sinus and head pressure and pain, tight muscles and neck. Follow ups with nephrologist revealed kidneys are fine. The virus or whatever triggered the VN, is also inflaming my eustachian tubes which finally opened after an allergist and an urgent care doctor prescribed prednisone. The ENT totally dropped the ball in this respect eventhough I saw him first and told him how my ears, throat and allergies were inflamed but I wasn't sneezing at all nor did I have a sinus infection. He actually scared me more because he told me I had vestibular migranes. Two good things he did: 1. Ordered vestibular therapy and 2) ordered the VNG test finally done on 9/18/2019. Because the eustachian tubes closed, a PA at the ENT practice made a small hole in my left eardrum and that helped with crazy pressure and dizzines. The hole closed and in 3 weeks they will put an ear tube. The intensity of the dizziness, anxiety and spinning got worse when the little hole closed. I have had to take some xanax, bonine and meclizine here and there to see what can help the most (Dr. said it's better not to take anything but that's easier said than done when having panic attacks). God bless you all and keep moving as much as you can.

    • @pallabidutta525
      @pallabidutta525 Před 4 lety +2

      Same I was also feeling thirsty all that time of attack..
      I thought it is dehydration problem... after all the test including MRI was done last test was ENG test where dr found I have vestibular lesion in left ear...now maximum symptoms has gone...still dr told to do vrt for three months...I am scared will this nightmare come in my life again...can the problem come again and again...pls ans if anyone know

  • @francoangulopereira3388
    @francoangulopereira3388 Před 3 lety +9

    Thank you for your experience. Each day I am feeling Better. It's a terrible illness. We must fight it. Our family and friends must help us

  • @LaxBroBabe
    @LaxBroBabe Před 2 lety +9

    So happy to hear you have gotten better! I am 3 months into my vestibular neuritis journey and just started seeing some improvements. This is truly one of the scariest disorders!!!! Prayers prayers prayers God fully heals us all ✝️ listening to others positive stories is what keeps me going. This disorder gets dark very quickly and knowing there is light even if it’s faint at the end of the tunnel is what helps me stay strong. With God all things are possible

    • @life-mm5do
      @life-mm5do Před 2 lety +2

      Buy a foam mat on Amazon and do vrt exercises . Look on CZcams for vestibular balance exercises. The mat is important to use for recovery

    • @sherinecraig9663
      @sherinecraig9663 Před rokem

      How are you doing. Are you fully recovered

  • @georgeslavin6137
    @georgeslavin6137 Před 2 lety +3

    Yes ! I have all of these ! And also I have visual tracking problems.

  • @stevenwestman
    @stevenwestman Před rokem

    Thanks for sharing your story. I was just diagnosed with Vestibular neuritis last week after struggling for 15 months. My doctors have run all kinds of tests over the past year after initially ruling out BPPV. I have done 2 MRIs, 2 CT scans, an echocardiogram and physiotherapy with a vertigo specialist and finally I saw a neurologist who ordered the vestibular testing. I have right side vestibular neuritis (46% decline in the caloric test) and I also have left side peripheral vestibular issues. They think it is 2 separate issues caused by 2 separate things - a viral infection on the right side and a concussion from a car accident on the left. On to more physiotherapy and hopefully improvement!

  • @randyearl3153
    @randyearl3153 Před 5 lety

    Thanks for sharing information and your own story. I am on day two of this journey. Thank you for helping me in my effort to find a path that works best for my own recovery.

  • @nouramohhamed4168
    @nouramohhamed4168 Před 4 měsíci +1

    Thank u for ur tips I’m going through now also getting better is been 3 month is hearing getting better

  • @traciwall6108
    @traciwall6108 Před 3 měsíci

    This a true blessing to hear your symptoms as they are exactly what mine are. The only difference is I'm 60 and feel like something is wrong with my heart even though I have spent lots of money testing to show my heart is fine. Every detail you describe is me to a tee... thank you sweetie.❤

  • @michellebrinsden4941
    @michellebrinsden4941 Před rokem +2

    Thank you so much for sharing your story and providing hope! This is a long journey but I believe deep down there is hope for a full recovery!

    • @lindsey8081
      @lindsey8081  Před rokem +2

      i feel 100% normal, recovery is real

    • @bebeautiful2286
      @bebeautiful2286 Před rokem

      Hiii Lindsey when u saw the proper improvement coz I’m at 5 months and I feel off balance too much it feels like some thing inside my brain

  • @nuclearsid
    @nuclearsid Před 5 měsíci

    Thanks for sharing your story, really inspiring

  • @BraveCounsel
    @BraveCounsel Před 3 lety +2

    Thankyou very much for your video series, it is of great benefit and comfort.
    Your explanation is almost identical to my symptoms, even the stress and anxiety which I have not experienced in life before.
    Have a great 2021!

    • @lindsey8081
      @lindsey8081  Před 2 lety

      I had an AMAZING 2021, thank you! I hiked and biked all over the West. Thanks for the well wishes. Here's to hoping a year later you are feeling next to new.

  • @Honey-gl8gv
    @Honey-gl8gv Před 7 měsíci

    HI! month 6 and i just feel DP DR from anxiety and heavy head and sometimes a floaty feeling or a slight falling sensation in my head that gets worse after a workout. my symptoms would often leave at night and still do so now im a night owL! I worry about my slight smoking habit that i started, just a couple ciggies a day if that but then I found it made the anxiety much worse so I stopped. Ive made alot of progress but still worry that smoking may have stalled or may keep me in this :( Im sure there are alot of smokers that got VN and then had to smoke and still recovered . I had quit smoking about 3 months before I got sick. picked it back up because i got depressed. glad your ok now! Im doing the same exact things your doing. I was afraid I had done too much in the beginning of this.

  • @jamiemagdicrdn8560
    @jamiemagdicrdn8560 Před 2 lety +2

    Hey, thanks so much for this. It is so nice to hear success stories during this hard time. Have you seen yourself backslide in vestibular therapy through the process? We see it and it is discouraging

  • @christianmaus8240
    @christianmaus8240 Před 11 měsíci

    Thank you so much for your Informations, like you told i searched for positive Moments which give you Hope and reduce Anxiety, and i saw all of your Videos about Vestibular Neuritis Recovery, they give me the best Medicine and calm me down within Minutes. I deal with it for 5 Weeks and some Days are good and other more complicated.
    I also have a active lifestyle and i think my fitness and my healthy lifestyle help alot.
    The biggest help for me are the colder temperatures at night, i mean we have summer here in Germany and it cooling down to 10 degrees this helps alot and for the mentality your videos are the gamechanger, so thank you very much!!

  • @michellep1821
    @michellep1821 Před 5 lety +1

    Thank you for sharing your story. All your symptoms are exactly what I’m going through for the last 2 months. I came to find support but it was all so negative (years of symptoms) and it was making my anxiety worse! My next step is asking for a caloric test and asking for vestibular PT. Well wishes and thank you for the positivity!

    • @lindsey8081
      @lindsey8081  Před 5 lety +3

      Michelle P I totally understand that. And for further encouragement, I'm at 7 months now and living my life fully as if I didn't have this. I may still have an odd sensation here and there, but it's hardly noticeable! Good luck!

    • @omarbilbao7460
      @omarbilbao7460 Před rokem

      have you recovered from tinnitus?

  • @beeg.1549
    @beeg.1549 Před rokem

    Thank you. I’m in my 2nd month. Crying all the time. I needed the positivity.

    • @janegordon9222
      @janegordon9222 Před rokem

      Hello I’m 4 weeks
      I’m and I can relate … it’s so scary / my life as I knew it is on hold … ringing in ears / my dizziness comes
      And my legs are so weak and won’t hold
      Me ( feels like I’m dying )
      Then the anxiety 😥
      And derealisation …. Shaky
      Have lost my confidence and won’t go far from home ! Hearing this story gives me hope !

    • @omarbilbao7460
      @omarbilbao7460 Před rokem

      ​@@janegordon9222have you recovered from tinnitus?

  • @cranraz
    @cranraz Před 5 lety +1

    im so glad to have found your video. doctors have put me in antimigraine medications and they dont seem to help. and i have this terrible neck tightness, palpitations and inability to focus. hopefully i will get better in time.

    • @lindsey8081
      @lindsey8081  Před 5 lety

      Best wishes to you. Time helps! continue to narrow down what you have so you can then assist the healing process with the best therapies!

  • @Jeandeluka
    @Jeandeluka Před 2 lety

    thanks, i'm on process to recover but is hard, i feel better to know your experience and this is a light for many people like me, thanks a lot 🙏 from Colombia

    • @cristhiandiaz1149
      @cristhiandiaz1149 Před měsícem

      Hola como estas ahora , yo vivo en argentina y recien empiezo este terrible camino , estoy buscanso informacion pues los profesionales solo se encargan de darte las pautas clinicas y estadisticas , dicen que deberia durar unos pocos meses pero que saben ellos ? Nunca han sido pacientes solo ven a travez de sus conocimientos tecnicos y algunos no estan actualizados , no tengo diagnostico aun estoy atravezando todo un programa de pruebas y examenes , pero estoy casi seguro que puede ser neuritis o laberintitis pues todo empezo luego del covid ahora en 2024 , aparce una otitis media y luego se desencadena el vertigo , aunque el mio fue leve de apenas segundos , pero vasto para dejar bastante daño pues se presento tambien cervicalgia , y tinitus en ambos oidos y luego lo que ya sabemos la enorme cantidad de sintomas que son tan dificiles de explicar a quienes estan a nuestro rededor , en mi trabajo no me creian y constantemente choco con una persona porque parece convencida de que mis sintomas son una pavada , y sus chistes y actitud me molestan .

    • @Jeandeluka
      @Jeandeluka Před měsícem

      @@cristhiandiaz1149 animo amigo yo ya me cure, tuve neuritis vestibular por descuidos mio, me asuste mucho y pensé de todo, animo, se puede hacer algo, y por demás con terapia te puedes curar. Mantén actitud positiva, reduce el stress, concentrate en sanarte. Mente cuerpo juntos lo hacen posible.

  • @toddkrump4520
    @toddkrump4520 Před 3 lety +4

    I’m just over 4 months in and I just want to say thank you !
    It was this video that helped me so much I’m 20 years older than you but my story is so similar to yours.
    I’m feeling better and like you want to share my thoughts that you can recover from this scary experience.
    God Bless

    • @lindsey8081
      @lindsey8081  Před 3 lety

      you're welcome!! so glad I could help.

  • @chesneymunyard7283
    @chesneymunyard7283 Před 3 lety +5

    So glad I have found this I’ve been experience everything you have said for 5/6 months as waiting for a MRI BRAIN & EAR scan which I am praying is ok because everything I feeling is in this video. Thank you so much for posting this 😫💜🙏🏼

    • @chesneymunyard7283
      @chesneymunyard7283 Před 3 lety +2

      Did you head feel heavy for your body I’d that makes sense xx

    • @lindsey8081
      @lindsey8081  Před 3 lety +2

      @@chesneymunyard7283 yep! I felt like my head was too heavy for my neck to support.

    • @teenina6829
      @teenina6829 Před 3 lety +1

      @@chesneymunyard7283 i think i have this and i feel super light like detached to my body

    • @laurenbaldwin6068
      @laurenbaldwin6068 Před 2 lety

      @@teenina6829 hi did u recoverm

  • @tarpon07
    @tarpon07 Před 3 lety

    4 weeks now and still a daily battle. Every morning I’m feeling very noxious followed by a day of lightheaded wandering around. I’ve been in the hospital for 3 days and started working again 5 days after I was dismissed and believe me if I say that was much too early...You have to keep moving around but I firmly believe that resting is as important! Nevertheless I was very happy watching the video: the feeling that you’re not struggling alone is very comforting, thank you!

    • @lindsey8081
      @lindsey8081  Před 3 lety +4

      Totally agree with you! It is just as important to rest!! I would go walk for an hour and then come home and lay down for an hour in the beginning. Anything active I did was followed by something to recoup. I also was getting like 12 hours of sleep every night! I was exhausted. What I mean by be as active as you can be is to push to do something active everyday- but once you reach your limit, rest until you feel "stable."

  • @5414sunshine
    @5414sunshine Před 6 lety +7

    Thank you for this video!!! I am recovering from this as well. I agree, it was difficult for me as well. I am now better!!! So encouraging!!!

  • @shawneehellman3621
    @shawneehellman3621 Před 2 lety +3

    Your story is exactly like mine, thank you for sharing. I’m 5 1/2 months and have the same stuff. I need to possibly get on anxiety meds because I have been struggling with that!

    • @life-mm5do
      @life-mm5do Před 2 lety +1

      czcams.com/video/wnrNcCWWAws/video.html. A vestibular physical therapist to help you.

    • @jasonn2284
      @jasonn2284 Před rokem

      Do you think Covid Vaccine did this?

  • @mike70s
    @mike70s Před 3 lety +1

    It's a full on thing. I'm currently in my 2nd week of it. I was hospitalised for the first week,home now.
    It's a life altering that's for sure.
    Each day I focus on my physio exercises, eat well,listen to your body and rest when you need too.
    Push through the dizziness a bit with normal day to day routines but ask for help when you need it and don't rush ,it is what it is for now.

    • @nattygeorgina1137
      @nattygeorgina1137 Před 2 lety

      how are you now?

    • @lindsey8081
      @lindsey8081  Před 2 lety

      now you've got to make some videos- that's some positive energy. hope youre seeing big improvements now

  • @Lucid_Anomaly
    @Lucid_Anomaly Před 10 měsíci

    I massively seen a great improvement after a couple of weeks when I did a blood test for food allergies and cut out those foods, I also cut out wheat and dairy and only eat natural sugars in foods, the biggest one for me is cutting out histamine foods as well as toxic smells from perfume, air fresheners, toxic household cleaners to even as far as turning my head to avoid petrol fumes when filling. Sleep is very important too. Fasting helped massively as well during Ramadan eating only after Sun down, dry fasted, it reduced my symptoms by 30% before I figured it out, all the above alongside the VRT exercises and I was out walking and then back in the gym and gradually doing circuits within weeks after building up my confidence, when I don't sleep well, smoke loads or eat wrong foods (as I tend to have the occasional blow out to let of steam) it comes back with a vengeance, but now I know what the cure is for me (and hopefully everyone else) I go from vertigo non stop and anxiety to being back in the gym after 2 days of sticking to my routine. l've spent thousands on different doctors and tests from MD's to naturopathic doctors and my diagnosis jumped from vestibular neuritis to labyrinthitis (based of a hearing test from 10 years ago which is not really good data). When I first got it couldn't walk further than the toilet or kitchen for a couple of months and laid in bed all day spinning out, and my anxiety was so bad not knowing what's happening I started questioning my own sanity, until I found out what the problem was and read loads and understood it. Bottom line no matter how bad it is it will get better providing you change your lifestyle, diet, mental and emotional health (with faith in god, that's helped massively with the mental and emotional side, I studied the meaning to 'Tawakallah' to be precise), I'm 43 and it took me 4 years from the date it happened, to figure out how to cure me, with all the above approach, keep a log and you'll soon figure out what makes you feel worse or better and you'll cut out the bad. Being VRT exercises then diligently stick to it or diet (eating to my metabolic type - Aryuvadic dosha type) then trust me guys be disciplined and you got this 100% I promise, have faith in yourself god and the process

  • @studio_strix
    @studio_strix Před 3 lety +4

    LINDSEY!!!! THANK YOU SO MUCH FOR THIS VIDEO! IM CRYING AT HOW YOUR EXPERIENCE EXACTLY MATCHES MINE! LIKE TO A TEE! I appreciate you so much for this! I'm so glad to here this. going to continue following this as I recover!

    • @lindsey8081
      @lindsey8081  Před 3 lety +1

      awwwwwww. so happy to help! chin up! You've got this.

  • @nathandawson7558
    @nathandawson7558 Před 3 lety +5

    GUYS it does get better but it takes time and work.
    I’m close to 2 years and I can tell you that when I flare up a little or have a bad few days it’s because of ANXIETY.
    It’s hard to tell yourself it is just you being anxious and I don’t have all the answers but my anxiety medication has helped.
    Keep fighting

    • @lindsey8081
      @lindsey8081  Před 2 lety

      Thanks for sharing! I agree with you!

  • @SEA-BASS1
    @SEA-BASS1 Před 7 měsíci

    Hey Lindsey, did you deal with any 24-7 dissociative, spaced out feelings… almost like your in a dream, derealization early on and if so when did they disappear. I’m almost 4 months and have slight motion sensitivity and spaced out is all I have left. Thanks for your help. Your videos have gotten me through some rough days.

  • @glynisniven874
    @glynisniven874 Před 5 lety +5

    Thanks for sharing...I am 2 months into this and it's so good to hear positive news as this is not fun by any means and can be very scary.Certainly look forward to "normal"again.

    • @lindsey8081
      @lindsey8081  Před 5 lety

      Super scary! I wish you well and a speedy recovery!

    • @lindsey8081
      @lindsey8081  Před 5 lety

      feeling normal is FANTASTIC! I feel normal most days now. It's been almost 9 months. I get small little flair ups of odd feelings, but they don't scare me and they don't prevent me from living a very full and active life. Stay as positive as you can and stay active! Best of luck.

    • @mistyrodriguez2476
      @mistyrodriguez2476 Před 3 lety

      Glynis how are you feeling

    • @nituyadav4678
      @nituyadav4678 Před 3 lety

      @@mistyrodriguez2476 how are you feeling

    • @erikakonrad7036
      @erikakonrad7036 Před 4 měsíci

      @@lindsey8081
      Dear Lindsey
      Thank you for giving hope and info.
      Im 7 months suffering😢
      How long did you take SSRI?
      After stopping it did the symptoms come again?
      Thanks

  • @SugarxRushTutorialsx
    @SugarxRushTutorialsx Před rokem

    Thankful to find your videos. Sept 2 2022 I got taken down. I'm 49, I travel lots, bake full time, always on the go. I had 4 weeks of acute symptoms puking 5 to 6 times a day. 3 emerg trips, 2 iv treatments. Ent diagnosed me with VN. I've been doing VT once a week for 7 weeks. My eyes feel tight, mostly right side. Anxiety was through the roof. My hubby had to come home to let dogs out.
    Now I can take them out. I managed to decorate 60 cookies on Friday. The weekend I felt off and more bouncy, wobbly and trying not to let myself worked up about it. I went grocery shopping for the first time in 63 days. I'm nit driving. Today will be 2 weeks without puking at all.

    • @lindsey8081
      @lindsey8081  Před rokem

      Woof, I remember the days like that!! You are already improving. It sucks. It's a slog. But you can get better. Do whatever it takes to calm the anxiety, that will make the healing process a lot better. I'm 5 years post VN and doing well. Totally myself and VN is a distance memory. Best of luck, hopefully no more puking.

    • @SugarxRushTutorialsx
      @SugarxRushTutorialsx Před rokem +1

      @@lindsey8081 thank you..I've made it 5 weeks today without puking so I think thats gone. I'm at every 2 weeks for VT. Now on Balance exercises, standing with eyes closed, turning head side to side up and down. Changing feet from heel to toe. Thankfully I got rid of the bobblehead. This week my balance is really off. I'm hoping it's because of the fight between using my eyes for balance and retraining my brain. Does it often get worse (balance) before better? I am 3 months yesterday since this started. And I know I've came a very long way already..I was hoping to be well enough to take my 50th bday trip to Aruba Jan 4th but not looking likely 😕

    • @moonshinehikes3107
      @moonshinehikes3107 Před rokem

      Yes, I found the path to wellness wasn't just a steady and even progression, it was filled with ups and downs. There were weeks or days when I felt Amazing and saw a lot of progress that were then followed by days of feeling like I took a step backwards. Don't let that worry you.

  • @i.k.5822
    @i.k.5822 Před 3 lety +1

    thx Lindsey:)

  • @Lolitarepublic
    @Lolitarepublic Před 5 lety +1

    Exactly what I’m going through. Only I have been diagnosed with this first, and then vestibular migraines. Has anyone mentioned vestibular migraines to you? ?

  • @chriszolanski
    @chriszolanski Před 5 lety +2

    I'm 23 and have been dealing with this for 3 months . All the symptoms and situations you described. Just saw and ENT and hes going to test my balance and hearing next week. Really hoping I have the same outcome and quick recovery .

    • @lindsey8081
      @lindsey8081  Před 5 lety +1

      I hope the same for you! Keep as active as you can and gets lots of rest. Be kind to yourself and best of luck!

    • @cheriemicki
      @cheriemicki Před 5 lety +2

      Hi Christian espinoza did u have symptoms of muscle twitching extremely fatigue and visual disturbance beside feeling dizzy and imbalance?

    • @chriszolanski
      @chriszolanski Před 5 lety +2

      @@cheriemicki yes exactly. I've had lots of symtoms and they always seem to be changing but I've had sparks in vision, muscle twitches, ear fullness, muffled hearing , lightheadness and ear ringing

    • @cheriemicki
      @cheriemicki Před 5 lety

      @@chriszolanski thanks for responding.. I m having the same dizziness and imbalance.. hope that you can get back to normal soon.. hang on there!!!

    • @lizad5824
      @lizad5824 Před 5 lety

      @@chriszolanski How are you feeling now?

  • @hajimemashite210
    @hajimemashite210 Před 3 lety +3

    Hi. I’ve been going through this for 9 months now. I was diagnosed with vestibular neuritis and vestibular migraines. Double whamy. I’m glad I found your video as I also have twitching of my body (which was worrying me) and most of the other symptoms you had. It’s taking a bit longer to heal but I’m sure I’ll get there. Hope all is well with you. Thanks.

    • @Angel.76239
      @Angel.76239 Před 2 lety

      How are you doing now? I was diagnosed 4 days ago with VN

    • @lindsey8081
      @lindsey8081  Před 2 lety +1

      Thank you! I'm glad my video was able to help some. I've been doing really well. Hope you are seeing big improvements!

  • @rishikeshbhosale1800
    @rishikeshbhosale1800 Před 3 lety +1

    Hi Lindsay, thank you for posting this video I am exactly at the same stage 4 and half months and getting better hopefully. VRT started 2 weeks back and I am experiencing more problems... same thing doc said that I will feel this initially and gradually it will decrease ... but your video is very hopeful and I feel little bit relaxed now... let me know if you have any suggestions for me.
    Regards
    Rishi

    • @lindsey8081
      @lindsey8081  Před 3 lety

      Trust the process and try not to let your anxiety get the best of you! It is true, you will probably feel worse before you feel better- but that is the only way to get better! You've got to repeatedly do the things that make you feel terrible in order to help your brain understand it's new normal.

    • @nituyadav4678
      @nituyadav4678 Před 2 lety

      Hii rishi ab tum kaise ho

    • @nituyadav4678
      @nituyadav4678 Před 2 lety

      Bilkul normal??

  • @reealitey
    @reealitey Před 5 lety +5

    I am suffering for 5 days now.
    Promises I am making to myself. To never go on any kind of ride again. EVER.
    To be grateful for my many blessings including balance if I am blessed with it again. To not complain about work as this is terrible and I rather be at work .
    I plan to go to a chiropractor to make sure it is not my vestibular nerve being pressed . I pray for anyone going through this to get a quick recovery. I can't believe this. It is so difficult for me to do simple things . Even typing is stressing I tried to remove a bandaid off my skin and I had to take rest and ask someone for help.

    • @reealitey
      @reealitey Před 5 lety +1

      I am fully recovered now. Since about the 3rd or 4th week. I am replying to this comment to share what I did.
      I took a qtip and dipped it in blackseed oil and dropped it in my ear daily. I would sit with my ear up so that it could drip down to the innermost part of my ear for 5 minutes or more. I did this to both sides , even though I was diagnosed with left vestibular failure . I did not double dip the qtip, nor did I share the qtip with the other ear. I got better by around week 3 to 4 I was totally back 100% . I still drop it daily in fear of it returning. I still have some small feeling in my ear like there could be some issue also and I am continuing the treatment , so as not for it to return in case my diagnosis is wrong and it is viral. I think it is a good idea to try this as it may help others as it helped me.

    • @loveconquersall143
      @loveconquersall143 Před 4 lety +1

      Nice one Reealitey! I hope you're still feeling well and I hope that it continues that way for you. Lou 💕

  • @cagreninger
    @cagreninger Před 3 měsíci

    Been exploring over a year.. Finally diag vestibular neuritis in L cochlea.. very similar journey.. getting better! Still get very fatigued ! Toprol made me paranoid of getting😮 12:59 in shower. Do physical therapy.. yoga. Walk at gym trying pilates
    I stop and rest if I need . Take pressure and reflux and Olly sleep gummies. Did stop wheat and sugar and one coffee per day
    Only dealing with fatigue. Dont stay long in big stores, some unstable motion feelings but encouraged! Do the work!

  • @rickfascinato5758
    @rickfascinato5758 Před 3 lety

    Thank you for doing this video....was diet a factor for your recovry?

  • @PersianIranian88
    @PersianIranian88 Před 4 lety +2

    I’m glad you’re getting better. I'm 4 months in with labyrinthitis/vestibular neuritis. The first 40 days or so, I felt I was floating most of the time. I also have constant buzzing in my ears (mostly the left ear). The past one month, I haven't experienced any floating sensation and my balance is perfect. Currently, it's just the constant tightness of muscles around my ears (temple), in my jaw and neck as well as heaviness of eyes and forehead that bother me the most. I wonder if you also have experienced the muscle tightness and eye/head heaviness without any dizziness?

    • @lindsey8081
      @lindsey8081  Před 4 lety +1

      Yeah, Id' say yes to that. I was getting acupuncture and massage on a regular basis to try and help with that. Also, yay to getting better!

    • @omarbilbao7460
      @omarbilbao7460 Před rokem

      Hello have you recovered from tinnitus?

  • @leonpalmer9557
    @leonpalmer9557 Před 2 lety

    I'm hoping my ent can figure out if this is what I'm going through I've had the same symptoms for a long time and thought it was just anxiety but it started getting worse now I've lost my job so I'm hoping I get better like you and I'm happy that you are doing well

    • @life-mm5do
      @life-mm5do Před 2 lety +1

      czcams.com/video/wnrNcCWWAws/video.html. A vestibular physical therapist on CZcams, she has 6 videos to help you recover. Eye exercises make sure you don't ever go any faster than her directions, otherwise if you turn your head super fast you will never recover from the dizziness Do all her eye exercises,not just one. Spread them out. The vestibular ocular reflex only will go so fast while turning the head,/ eye,/ head motion. Also buy a foam mat on Amazon for statics balance exercises. And walking,heel to toe while turning your head up and down and side to side for dynamic balance exercises. Must do both kinds of exercises, not just one. Static vestibular balance exercises are standing on a foam mat with feet together turning head,then eyes closed standing still. Then progress to one foot in front of the other on foam mat, turning head up and down then side to side and eyes closed turning head and standing still without any movement. Make sure on CZcams the balance exercises are vestibular balance exercises only. Walk across a room with your eyes closed. Do a lot of eyes closed vestibular exercises. Examples sit to stand vestibular exercise , first eyes open then eyes closed, then same but turn around and then sit back down. Don't use your arms to sit back up . This is another dynamic balance exercise. Moving both feet is a dynamic balance exercise, and feet staying still while the upper body moves, for example the head or arms is a static balance exercise. And standing still. Walking up stairs is a dynamic balance exercise.

  • @brittany6495
    @brittany6495 Před 5 lety +2

    I've dealt with minimum dizziness until I have a trigger like patterns, lights, darkness, but still have it after 3 years. Physical therapy does help though

  • @Deebz87-
    @Deebz87- Před 3 lety +2

    I got diagnosed with the damaged vestibular nerve in the ear my physiotherapist gave me a Head exercise to do 3 times a day she told me you have to get dizzy to get better which sucks because I have to try slowly move around more because of that nerve in my ear to get better

  • @priskasewzyk9247
    @priskasewzyk9247 Před 4 lety

    @Lindsay thanks for your Video die you have a complete damage inner ear or only a Prozent from the Nerv? What exercises die you a day ?

  • @davewalsh8278
    @davewalsh8278 Před 5 lety +21

    Thank you for this, I am nearly 6 weeks into it and it is a daily battle

    • @gowthamjilla
      @gowthamjilla Před 5 lety +2

      I'm in for past 9 months but no improvement what I do and where to go 😥

    • @loveconquersall143
      @loveconquersall143 Před 4 lety +2

      @@gowthamjilla go and see somebody at a vestibular clinic & a good physio and chiro- that are fully educated in vestibular neuritis. Good luck! ❤

    • @gowthamjilla
      @gowthamjilla Před 4 lety +1

      @@loveconquersall143 Tq so much 🤗

    • @loveconquersall143
      @loveconquersall143 Před 4 lety

      @@gowthamjilla My absolute pleasure. Let me know how you go! 💞

    • @gowthamjilla
      @gowthamjilla Před 4 lety

      @@loveconquersall143 Ya treatment was going well .... 😊

  • @reneasissom8611
    @reneasissom8611 Před 2 lety +2

    Currently on month 4 with no relief. I have 50% loss on left side. I’ve had to leave my nursing career, I cannot drive and am barely able to get out of bed. Thankfully, I do not have the nausea but I have lost 30 pounds due to lack of appetite. My local ENT has scheduled me with a specialist and I’m hoping for some answers. VNG show peripheral and central dysfunction. MRI was clear. It’s so frustrating. Glad you are recovering I needed some encouragement.

    • @lindsey8081
      @lindsey8081  Před 2 lety +1

      My videos are a few years old- update- I'm fully back to normal. I'd say recovered. Get up and move as often as you can even when it totally sucks.

    • @Monicablackard
      @Monicablackard Před rokem

      How are you feeling these days? Hope you’re doing better.

    • @erikakonrad7036
      @erikakonrad7036 Před 4 měsíci

      @reneasissom8611
      How are you?
      I hope that you have recovered
      I am 7 months in VN

  • @wadeharris2522
    @wadeharris2522 Před 3 lety +2

    Thank you for posting these videos, I haven't been officially diagnosed, but I know this is what I have...it's been 9 days of hell, so scary, anxiety is an understatement...I notice that walking outside with my dog makes me feel better so I just keep doing that but I hope you stay good and never have to feel like that again....just one question, what SSRI did they give you? I was given Paxil...thank you

    • @lindsey8081
      @lindsey8081  Před 3 lety +1

      Walking is one of the best things you can do! Good for you. I was given lexapro. Worked great for me.

    • @debramilner5791
      @debramilner5791 Před 3 lety

      I am over 8 months in Australia and only just properly diagnosed. 8 months if hell and doctor telling me it was BPPV.. which I have had in n off for 25 years. I did tell him this was similar but different. He never listened. Get to a Vestibular Therapist under an ENT or Nuerologist I beg you. I am in a World of Hell from misdiagnosis. Have been in vestibular suppressants. Serc..and VT has said has stopped Brain Compensatating.

    • @nattygeorgina1137
      @nattygeorgina1137 Před 2 lety

      @@debramilner5791 How are you now?

  • @Deon16Tube
    @Deon16Tube Před 5 měsíci +1

    Hi Lyndsey, if there any information or video which describes, which exercises you have performed starting VRT, how many repetitions and have you had CT scan to confirm it was that? Also what tests you had done to confirm it was v.neuritis?
    Not sure if you even monitor this channel, but any information would be appreciated. Our teenage son has got same symptoms as you had it and cant get out of this for 4 months now so glad to see there is a way out.

  • @hawaiidispenser
    @hawaiidispenser Před rokem

    You just made 5 years recently, would you do a quick update, pretty please? 😊
    I'm just getting over a decompensation myself and your videos were the most helpful of all tobme
    I will be making my own video soon.

  • @jessewolf8496
    @jessewolf8496 Před 3 lety +2

    Hey! It’s so encouraging to hear success stories.
    I’m 7 weeks in. I’m doing therapy and feeling worse. I started lexapro 2 days ago.
    Did you find that lexapro helped with the recovery? How so? I’ve heard that anxiety can prohibit recovery, so I definitely want to get it under control.
    Thank you!

    • @lindsey8081
      @lindsey8081  Před 3 lety +3

      I think of lexapro as my little happy pill. Anxiety can prohibit recovery. It's hard to force yourself to do the things you need to do to allow your brain to compensate for your damaged vestibular system when you are afraid to leave the house and having panic attacks all of the time! Before lexapro, if I started to feel dizzy or I was having a bad vestibular day, my nerves and anxiety would spike and I would feel even worse. After lexapro, if I started to feel off or dizzy, I could still go about my day doing what I was doing because I wasn't afraid, I wasn't having panic attacks, I wasn't obsessively worrying about everything I was feeling. It was a game changer for me.

  • @momoe1974
    @momoe1974 Před 3 lety +3

    I had Vestibular Neuritis and it took about a year to recover about 95%. Now everything is well 100% and I noticed sitting in the sun for long hours helped me so much and I dont know why...Thanks for your video and good luck to all.

    • @nattygeorgina1137
      @nattygeorgina1137 Před 2 lety

      What did you do to recover? any help/advice/tips much appreciated!

    • @momoe1974
      @momoe1974 Před 2 lety +1

      @@nattygeorgina1137 You should go see an upper cervical doctor ASAP. Make sure your neck is well aligned . Make sure the doctor is for upper cervical and he will let you know what you need to do.

    • @nattygeorgina1137
      @nattygeorgina1137 Před 2 lety

      @@momoe1974 Thank you for this advice. I also read you said sitting in the sun was good. I read that Vitamin D is great for these kind of issues so maybe that also helped you. I'm taking Vitamin D supplements now 2000iu a day as I was severely deficient in a blood test I had.

    • @momoe1974
      @momoe1974 Před 2 lety +1

      @@nattygeorgina1137 Sitting in the sun is good for your nervous system and helps calm your Vagus nerve which can cause tinnitus but if it is an upper cervical issue, then you must check with a doctor. You can do a search on youtube for Tinnitus and upper cervical to find out more info. Best luck

    • @lindsey8081
      @lindsey8081  Před 2 lety

      vitamin D does wonders for our health! I'm sure sitting in the sun also was good for calming your nerves and giving your body the rest it needed.

  • @deborahburrows3282
    @deborahburrows3282 Před 2 lety

    i put my ear crystal out 3 half yrs ago. had 2 episodes and still coming and going. valium today

  • @sherinecraig9663
    @sherinecraig9663 Před rokem

    Thank you for posting this. I am on month 3 1/2 and the struggle of this awful diagnosis is terrible. It's physically and mentally debilitating. Im currently doing vestibular therapy 3x a week and walking at home on the treadmill. The vestibular eye exercises help alot with jumping vision. Thank you for being my inspiration ❤️. I listen to this video at least 5 to 6 times a day to remind myself I WILL HEAL. I also watch your 9 month and 12 month update and I can't wait to get there. Hope all is well with you and your family and you are out living your best life ❤❤.

    • @Monicablackard
      @Monicablackard Před rokem +1

      We’re about the same in terms of when this started. A little over 4 months in now and it’s just awful, so I absolutely understand your struggle. I always come back to this video and her other ones with updates just hoping and wishing I can get back to normal. One day…
      Hang in there. We’ve got this.

    • @sherinecraig9663
      @sherinecraig9663 Před rokem

      @@Monicablackard ❤

    • @life-mm5do
      @life-mm5do Před rokem

      ​@@Monicablackard czcams.com/video/wnrNcCWWAws/video.html. This vestibular physical therapist on CZcams has 5 videos to help you recover. She demonstrates exercises for dizziness and balance.

    • @sherinecraig9663
      @sherinecraig9663 Před rokem

      @@Monicablackard do you have that bouncy sensation when you walk

    • @Monicablackard
      @Monicablackard Před rokem

      @@sherinecraig9663 Yes for the past 5 months. It’s gotten a little better but I still feel it everyday

  • @francine6567
    @francine6567 Před 2 lety +1

    Hi Lindsey, I feel like I have this. dizziness, blurry vision, did you have that too?? i got some new glasses and I was fine before. legs feel weak, balance issues, ringing ears, ear fullness and hyperacusis sensitivity to sound after a noise trauma, then another one 6 weeks later. Lights seem to me now sensitive and pc screen So scared I've got vestibular nerve damage and will never heal. Any hope for me? Fragile right now

  • @mikereillygolf
    @mikereillygolf Před 5 lety

    What did you do to recovery? What was the treatment?

  • @alinaroshberg5536
    @alinaroshberg5536 Před 3 lety +1

    Hi! I’m 4 months in and my ent thinks I have migraines because of my light sensitivity and sound sensitivity. Did you experience this too?

  • @tasneemakhtar166
    @tasneemakhtar166 Před 4 lety

    I’m delighted that you’re feeling better. I’m on week 13. Did you experience any chest pains or pains in the left arm?

    • @lindsey8081
      @lindsey8081  Před 4 lety +2

      Only at first, but I think that was because my anxiety was through the roof. So scared.

    • @TheBella489
      @TheBella489 Před 2 lety

      Yes! Same thing with the sharp chest pains.

  • @shoz2502
    @shoz2502 Před 6 lety

    Thankyou so much for your vlog I'm four months in this too. I can relate to all you have said. It's hard but I'm feeling like I'm improving even tho i have so much weird sensations sometimes through my body. Can i ask do you have or have you had ear fullness??
    I have a CT scan next week to check my prestoris bone in my ear. Subscribed.

    • @lindsey8081
      @lindsey8081  Před 5 lety +1

      I'm sorry I missed this comment and didn't get to reply to you sooner. I did have ear fullness for the first few months, yes. My MRI did not show anything abnormal and at this point 9 months later, the fullness isn't there like it was. I do have problems with my Eustachian tubes feeling sticky, but nothing to be too upset about.

  • @Nick-di4jp
    @Nick-di4jp Před 5 lety +5

    Dont give up guys. I legit got this just over a week ago. Massive dizzy spell, knocked to the ground. followed by weakness and and anxiety constantly with strange feelings in and around my head and further dizzy spells and panic attacks at random times that just destroyed me. I went to the doctors ASAP and found out I most likely had Labrynthitis I was prescribed STEMETIL(A MASSIVE LIFE SAVER) for the dizziness and nausea also helped greatly with the anxiety and panic attacks too. After looking online about this condition I think im one of the lucky ones, just 8 days in and I feel like I am getting better so I thought I better share my story. STEMETIL WAS A LIFE SAVER also when I could I did as much walking around as possible and looking at a spot on the wall and focusing while moving my head at all angles. Literally all I did was take stemetil and try to go on walks and the wall focus exercise. I might have just been very lucky but give it a go and dont give up. I am a 30yo male perfect health but was very stressed at the time when I got it.

    • @jasonn2284
      @jasonn2284 Před rokem

      Did taking Stemetil Fix and cure your issues of feeling unbalanced and nauseous? Are you finally off the drug? How long did it take… I’ve been struggling for 3 weeks with nausea and unbalance.

    • @Nick-di4jp
      @Nick-di4jp Před rokem

      @@jasonn2284 hey Jason. I feel like the stemetil actually made things worse in the end (possible overuse and reliance on it) not long after having these attacks I ended up getting pretty severe anxiety and slight depression not sure how it all relates. I realised the only thing I could do was literally everything. (Changed my whole diet, cut out a lot of salt and sugar and other things. Started excercising and making sure I kept meals and water intake as stable as possible throughout the day) definitely when I commented here was early days. I still have problems from time to time but it is greatly reduced. Keep your chin up and watch that diet and make sure your salt, sugar or water intake doesn't fluctuate too much through the day and you will get better!

    • @jasonn2284
      @jasonn2284 Před rokem

      @@Nick-di4jp I’ve been prescribed betahistine. It seems to be working! my balance is fixed. Google states : Betahistine is a medicine used to treat the symptoms of Ménière's disease. These symptoms include: feeling dizzy and a spinning sensation (vertigo) ringing in the ears (tinnitus). None the less thanks for the quick reply. I will slowly try to ease off the drug in 2 weeks - 3 weeks time so I’m not so dependent on drugs. I really hate being on drugs but i rather take it than feel the nausea and unbalance on a daily basis. Thanks for the salt and sugar advise.

    • @Nick-di4jp
      @Nick-di4jp Před rokem

      @@jasonn2284 great to hear you're feeling better already! Just remember there will be many ups and downs and you just have to really appreciate the good days 🙏 in time we learn more about meneres and how to manage it, we grow stronger and more prepared to deal with future flare ups! I wish for you what I wish for myself 😁💪

  • @brianlion123
    @brianlion123 Před 4 lety

    lindsey, all of your symptoms are just like mine. even down to the random twitching etc. my anxiety is still high but getting better. neuro diagnosed VN after rigorous testing. however my ear testing was normal at ent but i have mild hearing loss in my right ear.

  • @Infern0121
    @Infern0121 Před 5 lety +4

    Thanks for this video, more of us who recovered need to let people know. I had it for almost a full year but I HAD to work full time through it which didn't help. Onset was June 2017 and it was 100% gone by May 2018, also I was having BAD days as late as Feb 2018 so it went away suddenly rather than gradually

    • @jonathannovoa85
      @jonathannovoa85 Před 5 lety +1

      how did u get cured??

    • @Infern0121
      @Infern0121 Před 5 lety +1

      jonathan ortega Just time my man and also I think cleaning up my diet helped. If you can put your mind at rest that it WILL pass and try live your best life in the meantime thats the best way to go.

    • @ali.s21
      @ali.s21 Před 3 lety +1

      @@Infern0121 Wow 2 years...so you have no symptoms at all right? Like it disappeared completely and never came back? I hope so:)

    • @Infern0121
      @Infern0121 Před 3 lety +3

      @@ali.s21 Yes it has not returned since, if you have it now try to keep stress now, almost try to forget about it as it will eventually pass

    • @ali.s21
      @ali.s21 Před 3 lety +1

      @@Infern0121 thank you so much this makes me feel much better!

  • @remitos98
    @remitos98 Před 5 lety +7

    Im 18, I went through the same thing except i recovered in about 2 weeks and had lasting effects for about a month. Those 2 weeks were absolute hell.. couldnt go to school or do anything, i had to stay in bed so i wouldnt puke or trip everytime. I was so scared that i would have to go through this for more than a month, my quality of life was 0%.But the recovery is so sweet, pay any attention to getting better and ride that feeling until fully healed.

    • @lindsey8081
      @lindsey8081  Před 5 lety +1

      Feeling better is the absolute best!

    • @reealitey
      @reealitey Před 5 lety

      I am suffering for 5 days now. It's awful. I started crying when I heard her say 4.5 months in the video. I am sooo worried . I want to be better. I'm also pregnant and I won't take any meds now.

    • @Itz_Mackenzie
      @Itz_Mackenzie Před 3 lety +1

      How r u now?

    • @nituyadav4678
      @nituyadav4678 Před 2 lety +1

      @@reealitey how are you now

    • @reealitey
      @reealitey Před 2 lety +1

      @@nituyadav4678 my vertigo lasted 3 weeks only. The docs said 6 months minimum when they diagnosed me with a vestibular failure . I used blackseed oil took qtips and dropped in my ear. I think this healed me. I stayed lying down for an hour wiith the ear up to let the oil go down (2-3 drops). Then did the other side. It was the worst time of my life, but glad to be normal now.

  • @sarahpellan9593
    @sarahpellan9593 Před 3 lety +4

    Hi everyone. This might be me but unsure. All started with a sudden acute episode of vertigo while sitting at desk looking straight ahead. Lasted just a second. Felt like my brain was scrambled. Then I was fine. Fast forward a 6 weeks or so and I’ve had roughly 7 of these startling episodes! Feel slightly dizzy while sitting now all the time. BPPV ruled out. This sounds the closest to what I’ve experienced. Good luck everyone xo

    • @lindsey8081
      @lindsey8081  Před 3 lety

      try getting yourself in for a VNG, or at least a caloric test, to test your inner ear and see if there are any deficiencies coming up. Best of luck

  • @jaak170
    @jaak170 Před 4 lety

    Can you tell why you got it? Did you have like a cold or a flu a few weeks prior? I've read that that is usually the case.

  • @Lolitarepublic
    @Lolitarepublic Před 5 lety +3

    Exactly what I’m going through. Only I have been diagnosed with this first, and then vestibular migraines. Has anyone mentioned vestibular migraines to you?

    • @priskasewzyk9247
      @priskasewzyk9247 Před 4 lety

      @Sophie what are your Symtoms oft vestibular migräne?

  • @kramer911
    @kramer911 Před 3 lety

    did you feel hot in your forehead randomly?. what kind of exercises did they make you do for recovery? im about 2 weeks in now and because of the virus.. i cant see an ent until next month!. I pray it goes away this week so I dont have to deal with it for long term. How can I even work for example? theres no way

  • @kathrynwalker8991
    @kathrynwalker8991 Před 4 lety +3

    Takes 6 mths to get tests in.England its Ridiculous such a joke so Glad your getting better x

    • @tasneemakhtar166
      @tasneemakhtar166 Před 4 lety

      kathryn walker Why six months. I’m in Scotland. I was diagnosed very quickly.

  • @nimetdn1559
    @nimetdn1559 Před 3 lety

    yes I also have the illness how long did the illness last until the salary was you had otitis media also on the nerve

  • @1985mohez
    @1985mohez Před 5 lety

    Very glad seeing this video..one month into this now can say 50 percent better but still kind of dizzy ..my doctor doesnt recommend vrt ..just says to rest etc ..what are your views on it ..can one get better without vrt....and in your case after 3 months did u start becoming better ...just like that??

    • @lindsey8081
      @lindsey8081  Před 5 lety +1

      From what I've read you can get better without vrt but vrt can exponentially speed up the process of getting better. I did vrt and am glad I did.

  • @woodhamshrimper
    @woodhamshrimper Před 2 lety +1

    I suddenly collapsed while out walking my dogs one day out of the blue, I had had tinnitus for a few weeks and ignored it. I can honestly say for someone who rarely visits my GP this started 3 months of hell, absolute hell. The extreme vertigo & nausea l felt was unbearable, and coupled with the anxiety was very debilitating. I like you walked around trying not to turn my head but just a slight movement would trigger the Vertigo and nausea and extreme sweating. After three weeks and 4 different drugs I was lucky enough to find a clinic that specialises in vestibular Problems and I was diagnosed within 30 mins. They told me to throw away all the medication as it was not going to help and start my recovery by doing head movement exercises that retrain my brain into accepting new signals. Well i tried my hardest, only they would trigger my condition and I was back to square one only with the worst anxiety ever. The attacks slowed down and after 2 months of basically laying down with x 2 pillows between my head i started to be able to walk as the extreme vertigo attacks subsided. I was able to return to work, only even now 10 months later I can sometimes get up or bend down and it is like my body is standing still but i am moving.
    I take my hat off to all of you.

    • @omarbilbao7460
      @omarbilbao7460 Před rokem

      Hello have you recovered from tinnitus?

    • @woodhamshrimper
      @woodhamshrimper Před rokem

      @@omarbilbao7460
      I have now been diagnosed with Ménière’s disease. I relapsed 7 months ago, which coincided with the hearing loss in my right ear, only now the vertigo as subsided again but just when I feel I am getting better I fall back. It’s migraines now. 😩👎

    • @woodhamshrimper
      @woodhamshrimper Před rokem

      The tinnitus is always there.

  • @timfowler6558
    @timfowler6558 Před 2 lety

    I am so sorry for anyone who has to go through this. It is tough. Mine started in January of this year. I had covid 2 days in started to get brain fog. Started to feel off. I knew something was wrong in March when I became dizzy 24/7. Anxiety kicked in. High blood pressure. I started physical therapy on my 5th week. Dizziness is for the most part gone expect on occasion I feel weird. Right ear 33 percent loss which I hear is minor. The right sometimes feels woozy and lifts pretty quick. My main issues right now are light sensitivity still. I wear glasses but still feel the sun. Lately I have been able to take glasses off for a bit but I pay for it with a major headache.
    I am curious I seem to get headaches daily right now with lots of movement. I walk everyday and ride my bike but I can feel headaches starting soon after but fight through it. I’m curious are these cause from therapy and doing exercises at home and does mean the brain is calibrating and working work to figure this stuff out? Fatigue is a lot better. I appreciate all the feedback. I know it will get better. My therapy folks say I have made significant approvement From my understanding all of us will get back with compensation just takes time and lots of patience and believing.
    When Will headaches go away. Jumpy vision. Feel eyes get strained. I assume it’s from the therapy and everything else that is going on and I hear it is one of the last things to go away.
    Thoughts?

  • @jessicaanggiansah8093
    @jessicaanggiansah8093 Před 3 lety

    Hi lindsay, thank you so much for this. Just wondering if you had a cold or any infection prior to VN? Because mine just came on suddenly. ENT suspected BPPV but my physiotherapist said it could be VN. Mine was triggered when I pushed my earwax too far into the canal. But no infection or inflammation . I’m 5 months in. Thanks so much .

    • @lindsey8081
      @lindsey8081  Před 3 lety +1

      I did have a sinus infection the month prior. Who knows, that could have been the culprit. I have this idea that I have a virus that made itself at home in my inner ear- on the vestibular nerve, and if I am really really sick, it can wake up and cause some damage to the nerve. I did a lot of reading about causes when I found out what I had and it was the one thing that made sense to me. Now, if I start to get a bad sinus infection, I immediately go to urgent care and get a round of steriods and take an anti-viral just in case (twice in the past 3 years).

    • @MajesticWorks
      @MajesticWorks Před rokem

      What did you do to heal from that?

  • @fourshow11
    @fourshow11 Před 5 lety +1

    Thanks for taking the time to post your story. I'm going for an MRI next week to see whats going on. I think my Doctor thought I was nuts, hell I thought I was nuts until I found a video yesterday describing vestibular neuritis.

    • @hollyholly1434
      @hollyholly1434 Před 5 lety

      R G
      The doctor you need is a nuro physio, no meds just rehab . I recovered after 3 years ! Hang in stay positive it’s a long road

  • @audreycampbell4549
    @audreycampbell4549 Před rokem

    Lindley how long was it until your anxiety symptoms started after the initial VN event and when did you feel that the lexapro had an effect?

    • @lindsey8081
      @lindsey8081  Před rokem

      id say immediately felt anxious and it got worse and worse each passing week until i treated it. started to feel less anxious after just a few days on meds. felt really good after a couple of weeks.

  • @michelfoster4053
    @michelfoster4053 Před 5 lety

    Thank you for sharing your story! I have this problem 4 day now. Got medicine prochlorperazine, feel bit less dizzy. I hope i will be ok soon. Is it possible to have only a mild form of VN or maybe I suffer from something else? They did not send me to any special examonation...

    • @lindsey8081
      @lindsey8081  Před 5 lety

      From what I've gathered, many people get over vestibular neuritis in days or weeks. If it last more than a few weeks it is considered chronic. At that point docs start to send you in for more tests. I think it's one of those things that happen with docs... No need to spend money on more tests when the symptoms typically clear up in a couple of weeks.

  • @clairecruz7358
    @clairecruz7358 Před 3 lety +1

    Im experiencing this, less vertigo though. But im having a hard time sleeping, i can feel my head shaking when lying down., i can feel every pulse..im becoming very anxious. I really hope i can recover from this

    • @TheBella489
      @TheBella489 Před 2 lety

      That's me too! How are you doing now?

  • @georgeslavin6137
    @georgeslavin6137 Před 8 měsíci +1

    I have visual tracking, balance problems. And get so exhausted by the brain having to adjust to this.

  • @NkoDmtryPoletv
    @NkoDmtryPoletv Před 3 lety +13

    Im on my 1 year now. Still struggling. 😢 One day ill recover, we'll recover

    • @anupriyarajak6550
      @anupriyarajak6550 Před 3 lety +1

      How are uh now ?

    • @NkoDmtryPoletv
      @NkoDmtryPoletv Před 3 lety +5

      @@anupriyarajak6550 hello, I'm on my 80% recovery. I do feel dizzy at times but I have improved a lot.

    • @anupriyarajak6550
      @anupriyarajak6550 Před 3 lety

      Same prblm i suffer since last 3 month but i feel very bad can u tell me about your recovery what you do for that

    • @anupriyarajak6550
      @anupriyarajak6550 Před 3 lety

      I want to talk u i want share you my experience about my prblm I m form India can you given me your contact number .

    • @nituyadav4678
      @nituyadav4678 Před 2 lety +1

      @@anupriyarajak6550 hii l am also from India how are you now

  • @louiswar1
    @louiswar1 Před 3 lety

    Lindsey my husband has had vestibular neuritis for 8 months now. It’s really tough, he has been off work and scared he will loose his job. We have a 2 year old daughter. It’s been the worst time ever, feels like we are getting no support from medical team x

    • @lindsey8081
      @lindsey8081  Před 3 lety +1

      Are there other medical providers you can seek out? I did not like my first ent. He was a total jerk so I stopped going to him and found another. I also had pt with one gal for a while and then switched to a new place because I felt like I had reached her cap and needed someone else to take me.to the finish line. Happy I put the energy into finding doctors that believed me.and could help. Good luck out there.

    • @nattygeorgina1137
      @nattygeorgina1137 Před 2 lety

      How's your husband now?

  • @adhadh2606
    @adhadh2606 Před 5 lety +1

    Thank you for these great videos. I have 2 questions: How long did you experience muscle twitching? Also did you ever have sore muscles ( legs) as well.

    • @lindsey8081
      @lindsey8081  Před 5 lety +1

      I had muscle twitching for at least 4 months. After I started taking an SSRI it calmed down. My legs were not sore, but walking felt exhausting and the first month I could not move fast.

    • @pallabidutta525
      @pallabidutta525 Před 4 lety

      @@lindsey8081 ..same problem I have experienced...now I am better

    • @nituyadav4678
      @nituyadav4678 Před 2 lety

      @@pallabidutta525 hii Ab aap kaisi ho

    • @tasneemali11
      @tasneemali11 Před 2 lety

      I have the muscle twitching and tingling does that get better?