Going Numb from the Neck Down | My MS Story
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- čas přidán 13. 05. 2021
- Hi. Thank you for listening to my MS story.
If you missed my other MS videos, here's the link:
• Diagnosed with Multipl...
Resources:
MS Society: www.nationalmssociety.org/
Great Summary of what MS is: www.healthline.com/health/mul...
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My girl amazes me every single day with how strong she is, how positive she is, and how resilient she is! Keep smiling and kicking butt! I love you Sarah
I'm still waiting on a formal diagnosis, but I've had the tingling numbness in my hands, feet, and lips for ten months. No doctor and no book has been as helpful to me as listening to your story. Thank you so much for this
Hope you get the answers you're looking for. We're a great community the MS gang, we here if you need us.
I'm delighted to hear that some of the numbness and stiffness in your hands is getting better, it's an emotional moment when we get to those milestones of recovery, I felt your emotion when you spoke about it as I have felt that happiness when symptoms decide to bugger off ! You're doing great Sarah and I really hope you'll get even better soon. Your MS friend from Ireland 😊
So glad you posted this! I was diagnosed with MS 13mths ago, have severe leg spacticity. 2 1/2 mths, ago, numbness slowly crept up from my toes to above my waist-my Neuro called it stocking glove parathesis. I have MS hug, painful tightening & spasms under my right breast,I'm having thoracic back surgery in 3 days.im so glad to hear your numbness gradually went away- that gives me hope! 🦋🌈💜
Visualize the lesions shrinking or dissolving. Practice. Prayers going up for you Sarah. You are courageous. Keep sharing all your beauty.
Sorry you've been going through this. It's a long journey ahead, but you are showing support to others, and we are all here with you too. Keep going! 🧡
Omgosh my first encounter of noticing something is wrong was back in late March 2023 I was using the restroom which my bowels were constipated TMI lol and all of a sudden my right foot up to my knee went in the pins and needles numb and I was banging and stomping my foot for feelings to return it did not come back it felt heavy but I couldn't use that foot or leg and it's been happening since then not always but sometimes and most of all always on my right side. I need to see a Dr so far Google has gave me this as a reason why this may be but it also gave me other options. I am 35 and feel emobile a lot I do have a 6yr old son so I need to be mobile to put him on the bus and do some activities with him out doors. I'm scared and the numb tingling is so sharp that I already feel like my foot and leg is cut off 😳 it's a insane scary thing to go through. Thank you for sharing your story ❤️ I hope to find out soon what's going on with my body.
Glad to hear you have enjoyed the return of sensation in your feet. Any improvement is a gift.
I was diagnosed about 3 years ago. I am much older than you, but I am pretty sure I have had it for quite awhile. I never had any health problems either, and I was just stunned by my diagnosis. Mine is progressing pretty quickly, but as I said, I am much older than you (64). I wish I had found out earlier in my life, but little things would happen, and I would just blow it off as being dehydrated, exercising too much, etc. I have never been the kind of person who runs to the doctor with every little pain and ache, even when I got older... just a once a year checkup. Glad you caught it early.
Same I'm 44 and just getting symptoms I noticed apparently there are old lesson I never noticed was applying for disability an issue fir you😅
I was diagnosed with MS last week (after 7 years of not really understanding wtf was going on). Your videos are a huge help. You have given me courage to be a little more public about it (also now that I have a name to put on it...), to talk to people about it, to understand how this illness can vary and how it shouldnt dominate my life (while still being a powerful motivator to change stuff in it that will help me fight it). Thanks for being great and I really hope everything is going for the better!
Hope you are ok and doing well. We're all here with you
Love this video - Not that you suffered with all of this but the content and how calm you seem about such a huge and difficult part of your life. Lots of respect and admiration to you for powering through it all and all of those incredibly tough times.
I'm going through a diagnosis process atm. Lots of flares and symptoms of MS. frustrating process isn't it.
Thanks for sharing
Hope you get the answers you're looking for. We're a great community the MS gang, we here if you need us.
Just wanted to say you have a beautiful spirit. Thank you for sharing your story and keeping us posted. Wishing you the best!
That's a lot of numbness! Wow. I've had arms and legs and that kind of thing go numb, but nothing on that scale. Good job working through it and dealing/coping ... hang in!
Your a very brave lady and strong. Keep going dont give up.
I was diagnosed with MS in 2019. As hard as the bad days are keep going. Long story not to do with MS but Stress is the worst for MS and not being able to be as active has affected mine greatly. Keep as active as you can and keep life as stress less as you can.
As both gave my MS a chance to pick the weakness being low stressed and not be as active as I was for reasons not to do with MS it gave MS a chance to set in more.
Thank you so much for sharing!! Finally I have someone else that knows exactly what I have been going through for over a year. I have not been diagnosed with MS but you give me so much hope! Because now I know I’m not losing my mind! You can’t imagine how much this video means to me because I didn’t know how to tell people what was going on with my body without people thinking I was delusional! Because they can’t see what you’re feeling! I am numb from the neck down and have been for a little over a year going from specialist to specialist, still with no answers or definitive diagnosis. Please keep sharing your journey because you can’t begin to imagine how much you lifted my spirits and gave me hope that there is an answer!!
❤❤❤❤❤❤
Was diagnosed a week ago. Have progressive multiple sclerosis. Seems I’ve had for a couple of years and blamed it on other things. It’s a whole new ball game to get my head around.
I wish yoiu the best, Nina. Please reach out if you need support
Heyaaa....
I somehow came across your story a few days back only. And I must say, i can totally relate with you.
So it has been almost 4 years now I got diagnosed with MS (Nov 2018 to be precise). Started with diplopia (shifting vision), squinty eyes, dizziness, numbness on left feet etc. Immediate treatment was IV steroids for 10days in hospital with series of tests everyday.
I didn't immediately started with DMTs.
Second episode, Aug 2020 numbness on the upper part of the body for about 2 months, remedy was oral steroids.
Third episode, a recent and acute one when my body was numb from chest till my feet for 2 months (still i can feel that numbness here and there, not 100% normal)
Have recently started with Plagridy (fortnightly injections) after 3.5 years of diagnosis.
Symptoms really vary. Every single day is a new experience. All I can say is, this disease can be defeated....
You are very elegant, sweet and gracious. I am sure your personality and positivity will lead you to live a great and fullfilling life
A very sweet comment, thank you so much
Amazing to hear that it is slowly getting better!
I was just diagnosed in June 2020 and I had very similar numbness all on my right side for about 2-3 months as well as optic neuritis as my onset symptoms 💚
I know everyone's story is different but I completely relate to this feeling and experience. I assumed it was from changing from bartending / hairdressing to a 9-5 computer job sitting all day in March and didn't know it was MS until end of June.
Thank you so much for being so open and honest with your sharing! 💚 It is scary and weird to deal with and ever changing so quickly. 💚💚
Keep it up 💜
I was diagnosed in 2002, but believe onset was mid 90s. Stay away from Gileneya and Ocrevus without a shingles vaccination-I got the shingles in 2012. Chronic pain ever since. Love your story. There are many similarities I can relate to. Thank you Kate for sharing.super hug ❤
I just got told MS been blaming the problems on life but lost my legs and arms pins and needles just stopped driving, Its tough mentally so I couldn't share so thank you!
I get the tingly bum cheek too haha Im SO pleased things are improving for you 🤍 Lots of love and healing from England
Thank you for being so open and honest. Bless your sweet soul and I pray that you have more good times than bad. I am going through this now too and I am going through testing but I am much older than you. I find a weird relief in hear the stories of others.
I live for the last 3 seconds...every time. Never disappoints. Good luck on the MRI Sarah Kate.
Wish you a speedy recovery sarah
I really admire you.
You give me hope, thank you & God Bless.
I was diagnosed in August 2020 enjoying your video I really dig the background music,,
I just want to give you a big hug 🤗 God bless you ♥️🙏🏼
Hey! Love ur videos. I have been struggling with numbness for a long time, like 4 months ago it stared, now I'm on steroids. I hope we all can get better...
inspiring - actual hero - 🦸🏻♂️
Multiple hours long MRIs are soooooo tough! I have tourettes on top of my other chronic illnesses so it's a "blast" trying to remain still for 3+ hours.😩😩😩 I'm probably going to need another mri soon.. I think I have ms and I'm really overwhelmed. In 2019 my optic nerve atrophied and I had a csf leak. That got fixed last year thankfully and my optic nerves have stabilized. I'm experiencing a lot of new symptoms now and things I thought were normal that my primary said my neurologist needs to know about. It's really overwhelming but I'm trying to stay positive and calm. Lol 😂 harder than imagined! Thank you for sharing your story.❤️
Thank you for sharing your story. I have been having lots of different symptoms for awhile and have been waiting to see a neuromuscular specialist and rheumatologist for more tests to confirm my diagnosis they believe I may have Myositis or MS . But I have been dealing with numbness and loss of feeling lately in my right side and left arm and weren’t sure if these symptoms could be related to MS or from something else . So I appreciate you and others sharing your experiences also . The tingling and numbness has mostly gone away in my right side now but I still seem to have decreased feeling and strength similar to what you described. And the tingling and numbness seems to be starting to get better in my left arm now so I’m hopefully it will improve
Of course, Audra. I hope you were able to get the tests needed to give you answers. And I hope you get better very soon, you have my best wishes
Had to come comment. You're not alone. Everything from my shoulders down has had varying amounts of mild to severe numbness for five years now. I have never been seen by a Dr, but my first neurological appointment is this Monday. Praying they will find out what's wrong with me.
I wish you the best!
You are mot always going to get everything back after a flare
You’re the most beautiful woman ever!
So you should do a video on your neurologist exam. I know a lot of people get nervous about what to expect!
Also when they do the test where they tickle the bottom of your feet, do your toes flinch or freak out?
I've been watching several of your videos and I am really grateful to you for sharing and your positive attitude. Can you compare the tingling vs numbness that you have had? mine was very widespread but it was mostly tingling and less numbness. Mine took 4-5 months to subside to the point I was loosing hope it will ever subside.
I’m happy they are helpful to you. Thank you for telling me that. The best way I can think to describe my numbness was more of a heavy feeling… like my limbs were being squeezed or wrapped tightly with bandages. I would agree with you that it is more tingling but my arms were very numb. I’m very happy yours did eventually subside and I’m so sorry you had to go through that
Try electromagnetic waves on the spine and the most affected zone. It will accelerate your metabolism and regenerate tissue (400/500$). Train reflection exercises after Joe Weider technique. 3/4 times a week
You're. A. Ray. Of. Sunshine.
It does! It kind of sounds like All My Loving
My first cousin was diagnosed with MS years ago when we were both about 23. There were no medications then. She is 75 now. She since has gotten 2 master degrees, 2 children (biological), and one divorce (not biological, lol). She is still a practicing psychologist. Info: About 15 years ago my sister was diagnosed with MS, but has been on one medication that has seemed to stop the progression. Her main sympton was a weak leg that she still has, but she's done very well with the medication. She has Primary Progressive. I will find out her medication. She was advised that it had the least side effects which she found to be true. She's still up and about, driving and performing all of her activities...just uses a cane.Good Luck. You have a good sense of humor. You should think about doing some speaking like Ted Talks or to MS groups. You're delightful.
which medication is your sister on? and how old was she when she needed a cane and first got diagnosed
@@lillyaswad5028 I will ask her. It's only one.
@@franciastone5048 wishing them good health
I’m watching all your MS videos! Trying soo so hard to figure out what is going on with me, it’s all the same things as MS so I am very discouraged 😭 I had the brain MRI and there was a lot of white matter in the periventricular? Sheath? I’m not sure but my doctor said there was nothing wrong with my MRI. But they also were not looking for lesions or whatever it is shows up if it were MS 😩 I’m just at a loss 😭
Num by the neck down Holly guacamole 🥑 !!!
Sara you are wonderful. If I may ask, what drug are you taking? Also, a bit of advice, always try and get the newest MRI machine you can. The difference from a newer machine and an older machine, is like 2 or 3 hours. My last MRI of all three areas, took less than a hour.
Thank you for the tip! I am taking ocrevus. Wishing you the best
I have had numbness for two years.
I m from India .I luv U 💖💖💖.
I was driving and I went numb from the neck down and the doctor and the emergency room told me it was all in my head and gave me an antipsychotic but then said that my potassium and my magnesium levels were way too low...
Hi Sorry to hear about your troubling MS experience. Where you still able to walk during this time? Or was it more loss of sensation in the skin.
How long did take for the numbness to completely go away? im at 4 months and my feet are still numb :(
Try the Mediterranean diet, speak to a chiropractor and use Herb's like turmeric, ginger and Asian ginseng, Blessed Be.
Hey Sarah, this was such a powerful video - I hear a lot of my story in yours, so thank you. Is there a suitable email to reach you by? Thanks - Billy 💚
Hi Billy, thank you for listening. You can reach me at sklach21@gmail.com!
Hi 🌹
You are so very beautiful. Stunning ❤
Not many MS sufferers talk about their supplement history. Is it possible that iron overload or fat-soluble vitiminosis could cause problems, one has to wonder. Someone wrote in to say that after taking cod liver oil (different brands) he and a friend landed up in hospital (on different occasions) with bacterial infections; cod liver oil sends the ferritin level (iron storage) through the roof. Lots of people routinely take cod liver oil, etc. I may be wide of the mark but perhaps all information should be pooled to arrive at an answer.
There's something else: perhaps chronic excessive exercise heats the body/brain too much leading to problems?
Hii which infusion u will have i am also ms patient 😔 my doc also told me to go on medicine ocrevus but he said my immuinty will be devasted after it
I have a lot of raw IMS and it's a progressive one, and I'm going downhill, but I still get out and do things in my wheelchair. Can I get things in your videos very uploading and very appreciated? Thank you. John will cox 😊
Do you test your D and vitamin b1, b5?
Hi
I went iinto a coma for 2 wks
So was income an issue for you ? I have total numbness on left side even my face .. it's a Lil over a month I don't see it improving I supposedly had a stroke and they discovered ms flare as well .. long story short was applying for disability an issue
Im newly diagnosed and your vodeos have been very helpful. So thank you for that. A wuestion about the numbness in your hands. Even though they are numb, do you feel pain in them? My hands and fingers are very tingly and nunb, yet the dinger tios ecspecially are so painful. It feel like the tingling in the tips is gonna make the finger tips burst. Thats the best way I can explain it. Lol. I have the claw hands too. But i find touching anything, it feels like my hands are rubbing sandpaper and it just hurts so bad. Curious if you have a lot of pain eith the numbness as well. Hope you are doing well. Take care!
Hello! I did not experience pain whenever I touched things, but despite being numb if I did something painful, like prick myself with a pin, I was able to feel that! I hope you have experienced an improvement in your symptoms!
Did you have leg cramps?
I'm not going to lie to be upsetting to see this girl get her diagnosis at least a working one within a month of presenting symptoms grown men who are ugly as can be like me can be waiting for years to even have a doctor consider MS