Why I've been gone + MRI Results | My MS Story
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- čas přidán 6. 07. 2024
- Thank you for listening to my MS story. If you missed part one here's the link: • Diagnosed with Multipl...
MS videos playlist: • Diagnosed with Multipl...
Resources - MS Society: www.nationalmssociety.org/
Music:
♫ Music by Mr. Jello - Yes No Maybe - thmatc.co/?l=A87FE5FD
♫ Ashes to Amber - Arizona Thunder - thmatc.co/?l=1E00CBBE
♫ back to summer by joe bae ( / back-to-summer )
♫ THNK IT THRU by yxsmay - ( / skyjaxx-think-about-it )
♫ TossedOnion - Strawberry Sundae - thmatc.co/?l=4F1CB840
♫ Music by Goosetaf - Bumblebee - thmatc.co/?l=BBDF70C7
▬ Contents of this video ▬▬▬▬▬▬▬▬▬▬
0:00 - Intro
0:38 - Come get an MRI
1:06 - My Results
5:09- Where have you been??
2,934
Happy you have no legions but even happier you have grown stronger, wiser and braver.
Thank you for this. I got diagnosed in March of this year and I’m currently taking a break from school. I feel that embarrassment you talked about right now. Emotionally I’m so ready to go out there and grow - be who I want to be in every way, but physically that isn’t realistic for me. It’s hard. Definitely grieving. But your videos make me feel so much less alone. Really, thank you from the bottom of my heart.
Don’t think that people don’t want to hear that you have no active lesions and that you are doing well. I think it gives those who are newly diagnosed hope that this disease can be controlled and life can be relatively normal!
Thank you
Whoop! Whoop! Congratulations on the good news. Good to see you again!
Thank you Vickie!
Love the attitude and the videos. Hope to see another one soon!
You maintain such a great attitude. You are inspirational. May you be rewarded with a lifetime of good news, good health and happiness.
Wow your story is so similar to mine... In 2019 I had bells palsy and was prescribed 75 mg of prednisone and it resolved within two weeks. In 2023 I started having trouble with walking after 500 meters and intermittent speech issues. I went to my GP and he sent me straight to the emergency room where I had an MRI and MS was confirmed.. I had 5 days of steroids (1000 mg) in the hospital. I started on Tysabri for about 5 months and was quickly taken off when it was found I'm JC virus positive and am now on Kesimpta. My 6 month MRI came back with no new lesions. I'm on fampridine for symptom management and it seems to help with the walking and some motor issues (which I think speech is one). Physio and speech therapy has also helped. Its so good to see someone doing well with MS and so open about going through the same stuff!
when you say trouble walking what does that mean? like leg pain or numbness?
@@mishaalzk6033 spasticity and weakness
@@mishaalzk6033 leg weakness and spasticity
I'm glad your MS is under control.I have MS too it's nice to know I'm not the only one with brain related symptoms.And happy birthday to your boyfriend Montgomery.
Hearing your good news gives me HOPE
Please keep making videos. I enjoy hearing about your journey. There are so many things I deal with that it helps to hear I'm not alone.
We missed you ❤️❤️❤️❤️ glad to see your doing better
Hey Kate, so good to see you! So very pleased your MRI was stable. I can so relate to what you say about shame - such an odd emotion to feel when you are faced with the challenges of MS. I think it’s because a lot of symptoms and struggles are invisible to others and MS is a chronic condition. It feels similar to how I felt when I had to have a break due to mental health. You rationalise it as inappropriate but somehow it’s just there. Incidentally Depression is twice as common in pwMS. I would like you to feel incredibly proud of yourself and how you managed the last year it was bloody tough!! Big hug, Jane x
Much love and light 🤙🏼
Nice to see you again...post soon.
I'm so happy you are doing fine! I started following you after my son's diagnosis last year because I was looking for more information, and your video resonated with me because you both are so young. He was 24, in college, with a very aggressive form of MS. I wanted my son to join a support group, but after watching your video about the support group you visited, I stopped asking. That was an eye-opener because we want to help, but we do not completely understand the journey a person with MS goes through. All MS warriors have a story to tell, and I'm glad you are doing it!
Hearing how a video I made opened your mindset it very meaningful to me, thank you for sharing Rico.
Yay!! Great news!! Thanks for sharing your positive news!😀
Hi Sarah! I have booked flights for Joe and I to come see you during your special time. I can't wait! Unfortunately the visit will be short, but we'll plan something for later.🥰😍🤩
Your video was worth the wait, a fun surprise tonight. Glad about the MRI results. I'm also glad to enjoy 10 minutes of your sense of humor, your intelligent introspection, and your off beat video style. I hope you post a few more videos when you are ready.
What an incredibly kind comment, thank you
God is amazing, I’m so happy for you God will reward you for give a hope to so many ppl 🙂 you are so strong
Feel your feelings. We're here to watch from afar, this isnt about us. Its about you. Be you. Its okay to feel good. Its okay to feel down. Ups and downs. This is beautiful. All of it. No need to feel guilty about the ups if we might not feel great! Be you.
I'm so glad to hear this Sarah. Your video is very encouraging. Because when I see you getting better, I believe I will also get better. Wishing you well!
Glad to hear from you again.
Hey! Great to hear from you and hope you're doing well. We're all here with you. 💛
Thank you for making this video. I watched your first one yesterday as I am going through testing for health issues and wanted to hear from someone with MS. When I saw the videos stopped a year ago with no good bye or I'm taking a break I worried. Glad to hear you are doing well. Prayers for continued good scans and good health.😊
Good to see you back and healthy...stay blessed
Happy to see more!
good luck sarah
So glad you're doing well :) You deserve some good news and fantastic that there are no new lesions! I'm up for my yearly MRI over 2-3 months hoping there is no / little activity also. 🤞 This week was my 2 year "MS diagnosis anniversary". It has been a strange two years and I can definitely relate to the sadness and depressive thoughts - it was a big shock but I think I have now settled into my acceptance of MS. It still lingers in the back of my mind but we do what we can to fight it :) Medication, healthy food and enjoying life will all help fighting this for as long as possible hopefully - all the best Sarah 😃
You have the best hair💖
Thank you for making these videos. You are likable and great on camera. If and when you can, it would be nice to hear more from you.
Yay, Sarah Kate! So happy to hear your good/great news. You look beautiful! We both have such great hair:) I am also doing good. I watched you when I was 1st was diagnosed and will now be 2 years this coming March. On Kesimpta and so grateful. I have 3 sons & husband so a minute older..lol! I was thankful you were there. Best to you & love from Colo
Hey Sarah! Keep up the great work. Love your attitude in all of this. I've had MS for about 18 years and am blessed to still have an active lifestyle as a 38 year old. You will have your ups and downs just like anyone who has MS. Keep taking your meds, try to be as stress free as possible, make sure to workout often and keep your body as strong as you can. Eat well, sleep well. Most importantly, laugh and keep close friends and family around you.
Your extremely likeable and very cute. I dont want you to be ill and i think most wouldn't..I love your hair being long too.
Thank you Sarah for updating! Just know that we are always happy to see and hear good results for you and happy to be patient while you wrestle with all those tough feelings. I'm incredibly thankful to have found your site.
Thank you for this comment ❤
Very happy for that news. Thanks for the video and the funny stuff you do on the video. You would creat an amazing travel vlogs. The type of humor you have it's hilarious! Of course you look stunning as always!
Missed your videos!
CZcams just flashed your last video onto my screen, again. I long ago watched all of your earlier missives and liked your humor and honesty. But I think MS is not the finale of your story. You're more complex. Hope these days you are doing all the things you want to do. (I found your channel a few years ago, trying to understand what a friend with MS was managing. I've commented briefly before.)
You just keep getting more beautiful!!! 😍
I will like to send you a hug. You are so sweet and positive. Me and my family will pray for you so you can have the strength to go on. I have acid reflex my self and I understand how you feel sometimes. Don’t be sorry for expressing grief, that is part of life and being sick but we are still alive and while we are alive lets make the best when we feel great and grief through the down times. You are strong and special and I am glad I found your channel. Have a great day today and tomorrow too.
your gap smile is very sweet
Welcome back. Miss you.
you are such a radiant and spectacular person who brings so much joy to the world. you should never feel any type of negativity towards getting good news. everyones journey is different and i know so many people appreciate your vulnerability and sharing your story for others to see and relate to. as always wishing you peace, love, and happiness forever. ily
I love you ❤
You are so lovely bless you 💐💐
You look gorgeous! I am gonna to get Kesimpta and would like to come to the situation with nothing new in my MRI 🎉😊. Also can you tell about your Lasic surgery? How was it? Is there something special to consider while having MS?
Glad to see you’re doing well! Do the doctors still test your babinski reflex at your neurologist exams? (Where they take something pointy and run it up your feet? 😅😅😅
First off you are an absolute treasure to not just the MS community but everyone around you. I want to be as positive as you are! I wanted to ask, you on any diet that has helped you after your diagnosis or do you eat normally and use the DMTs?
Hi Bryan! Thank you so much :) I am accidentally on a diet I guess? haha, I have a intermittent fasting eating pattern becuase of my work, but that has been known to help with inflamation. Low inflammation is the summary of it! I don't have milk becuase I feel awful when I do (my arms go more numb temporarily) and I try to avoid gluten and red meats ... like if I order it or if someonewas nice and made me dinner I will eat it no problem, but they are not on my gorcery list! Hope that helps.
i also love your teeth i am happy to hear you are keeping the gap :)
This made me smile.
What was your nutrition like before? I eat a mostly Animal Based Diet low sugar low carb and i have not gotten sick from anything ever except the usual rare cold or flu. The only time i was getting weird brain headaches was when i tried that wacky fruitarian diet. I felt like the sugars were attacking my brain.
The gap between you teeth is not cute, it is super cute 😸 It gives you character, not that you need one 😸
Haha the pinching the guy running
i cant hear the video
Cabana Chronicles YT channel is about a UK woman who has MS and says her symptoms have greatly reduced without medication despite MRI showing new lesions on her brain, because she changed her diet to carnivore. Her neurologist can't understand why she feels fine when according to scans she should be much worse and considers her LDL levels to be very bad, but she is fine and healthy.LDL cholesterol is actually good for human health and our brains need lots of it. MS is an autoimmune condition which people on a good nutritious diet, rich in animal protein and fat, apparently don't get.
MS sucks!
hell yeah it does!