I have a large brain tumour... How they found it, my signs and symptoms.
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- čas přidán 26. 11. 2023
- At 26 years old the last thing I expected was a huge brain tumour. This is my story, signs and symptoms.
Here's all of my symptoms, my seizures and the process with all of the doctors and surgeon at the emergency room hospital / A&E.
Please send lots of good vibes for my surgery and recovery. ❤️
If you have any questions at all please let me know.
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Thank you so much for all of the positive, lovely comments. I have read every single comment and will slowly work on replying :) I have now posted an update video if you'd like to know a wee bit more.
bless you hope all goes well.
Stay strong, wishing you all the best!
Let me guess, you got the \/ax....many of us tried to warn you. Go carnivore it may save you. Best of luck.
@@garry8390 you know you don't HAVE to say anything, right?
@@garry8390there's evidence that she has had this tumor a very long time and they have hormone receptors. Brain tumors are actually very common. It's not often talked about. What in the world is your problem that you have to comment something like that to someone who is trying to recover?
As a nurse in Canada, I encourage you to send the link to this video to the hospital in which you were treated and that the nurse and the resident who saw you in emergency made to review it and reflect LONG AND HARD on how they FAILED to abide by their ethical and professional standards of practice in the way they treated you.
Well done you for encouraging this young lady to call out medical staff who shouldn't be there.
1000000% Make complaints. The way the emergency staff treated you was absolutely wild.
Agreed especially since they most likely don't know what happened and just continue to treat other people in such an appalling manner
As a Nurse the nurses behavior and the medical student needs to not be a doctor anymore
This ^
Honestly the audacity of a doctor to say it’s definitely not a brain tumor without a scan is insane
Could have happend over here in Germany as well
Her symptoms sound like focal epilepsy or transient ischemic attacks. Add the headache and it sounds like a brain tumor. He should have said it's probably not a tumor
@@Bolcjek You shouldn't be "saying things" what you should be doing as a doctor is everything possible to eliminate the worst possibilities first. But obviously doctors are people too and have no time and are fallible, thank god we now have AI to better diagnosing and making these things more efficient.
@@user-oi3lt7nu8g ironically i just commented in this section that this wouldnt have happened in germany. Stuff obviously depends on the idnividual hospitals aswell but ive had similar problems in the past. Went to the ER. Was checked up that same night and they even kept me there for the next day to do some other tests just to be sure. They took my concerns 100% serious and didnt send me home until they were confident.
Edit: Just to add to that story, my best friend had a morning of intense headaches a few weeks ago. Was also taken to ER and got the whole checkup. Turned out to just be a migraine but since he never had migraine before, they made double sure its nothing serious. Again, german hospitals did fine by us.
@@sash1ell Nope. Eliminate the worst things within reasonable suspicion. I would have suspected a tumor in this case. However handing out CT/MRI to anyone with a headache to eliminate the worst possibility is simply not possible.
My cousin was having these headaches and the doctor thought something was up so they made him get an MRI. The second the doctor got the image back, they made my cousin go to the hospital in an ambulance and got the tumor removed. Turns out it was giloblastoma the most aggressive cancer you can get. 5 years on and he's still alive. He's part of that 2% that make it to 5 years.
Your family is blessed. My ex husband was diagnosed on Memorial Day of 2021. He passed away on 9/01/23. My adult children were happy for the time they had with him. It's difficult watching their grief journeys.
My prayers are with any families who have a loved one with the terrible diagnosis of glioblastoma.
I also have glioblastoma, I would like to check whether your cousin has been working during these past five years. Thanks a lot.
@@mindenn123it's been on and off. He got another tumor removed a couple of years ago. Now he's wearing an experimental essentially cap that emits very low radiation that he has to wear everyday. He's just blessed to one of the very few to alive after 5 years. He didn't even need high dosages of chemo and radiation. The surgeon did a really good job taking most of the tumor out.
My dad was diagnosed in May 2019 and passed away April 2020. One blessing was we got to be with him during his last year, at home, in the hospital, and hospice before Covid shutdowns really went into full effect. I don't know how I would have handled not being able to be in contact with him.
@@TheXLAXLimpLungs That is a blessing for sure.
You may not see this, and my comment may fall to the bottom of the pile, but hopefully someone who sees this will read it and feel better. Almost 20 years ago, my mother started having health problems. She was in and out of hospital, being picked up in ambulances late at night from home or work, and doctors did not listen to her concerns (of course, because she's a woman). She had to fight to get any scans. She saw doctors who waived her off and sent her away, and even had a scan with a visible tumour which somehow didnt even make it out of the doctors office. A year of health issues later, they discovered she had multiple extremely rare brain tumours and lung tumours, coupled with graves disease. Her cancer was terminal, and classed as inoperable. She was basically told to go and try to enjoy her remaining time alive, could be months, could be years. Fast forward to today, she had surgery, radiation and chemotherapy which were all successful. She's still around, and the cancer is completely gone, and has been gone for a decade. She does triathlons, runs, cycles, camps solo, hikes. She's seen myself graduate and my brother go to uni. The human body is resilient and amazing.
❤❤❤❤❤❤❤
Where did she finally get good help? What system gave crap help?
I'm chronically ill and reading this gave me so, so, sooo much hope. Thank you for this and so happy for you to be able to enjoy your momma for much longer, but also really happy for her, as her suffering has finally stopped. Thank you so much for sharing this.
Amazing to hear that. All the best to you and your Mum. x
Your mother is a fabulous woman!
Back in 1988 when I was 17 years old I was told I had two brain tumours, both operated on ….. I’m now 53 years old and happy and alive,stay positive & hope all goes well.
💪🏽
Great to hear!
damm thats good to hear my dad had 1 brain tumor25 years ago but he didnt make it was a cancer tumor :(((
@@ismokeyzhd9057 so sorry to hear this, hugs
Thank God
Shocking how quick doctors are to assign any woman's symptom to her period or anxiety! Honestly sometimes I think you could walk in with bones sticking out of a compound fracture and they'd hem and haw about whether it was hormonal or psychological! I am so glad you and your boyfriend stood up for yourself. Wishing you the speediest, most complete recovery, and only good news from here on out. Love from Ireland.
surprised drs didn't ask if she was pregnant 🙄 we are so in danger
It wasn't a doctor.
It’s not like they laughed at her and sent her home without a scan. They did all the tests she needed (which is how she found out about the tumor to begin with) but I think the problem here is expectation. People need to stop thinking about doctors & nurses as gods who know everything. They are working TOGETHER with you to figure out what’s going on, and sometimes they need to ask silly-sounding questions to really get down to the bottom of it. And 99% of cases are not serious like a brain tumor, yet 50% of patients are paranoid and think they have something like that. So it makes sense for them to exercise caution (imagine if they told everyone “Yes you probably have cancer” when they didn’t!). Bottom line is: People should realize that it’s their right and DUTY to advocate for themselves, as much as it sucks. Like all things in life, healthcare is not perfect. And this woman did a GREAT job advocating for herself.
I had a pulmonary embolism and was told I had anxiety and was hyperventilating
THIS!!!!! 👏👏
As a medical student in the U.S , they teach us from year one to NEVER invalidate the patients! So disappointing to hear this happened to you!
Yea well in the USA the doctors/Rns push many of us straight to the side and definitely invalidate patients here as much as possible...ive seen far more doctors not act when they should have. Insurance companies rule the USA medical field. Patients don't matter at all without a nice fancy insurance card. Atleast Canada is free. Im a us citizen btw so I'm not even biased. Our medical system just purely SUCKS.
Glad you're a health provider of sorts but the USA is hardly proactive in making sure they listen to their patients early. They wait here in the USA till it's mostly if not already too late...ohh unless you're high class and have alot of money that is.
@@megilacuttyjones735 I disagree. I think the healthcare in the US is much better. She is not in the U.S.
@@daniii2022 yea it might be better but it's only better if you're paying more than a gotdamm mortgage on your healthcare bill every month atleast. Meanwhile, Canada's health insurance is free. Im not saying it's any better at all. What I'm saying is that the USA will only provide u with the good services if youre paying up the ace. Or have a great health benefits plan. But now that the economy sucks even more and now that they've raised min wage for fast workers to 20 gotdamm dollars an hour our benefits have absolutely tanked. Im happy for the min wage workers to get 20 an hour cause I'm not a hater...but that really took out many benefits especially health that could/would have been offered. The 20$ hour for fast food workers in California is a straight up lie. They have made everything so gotdamm expensive we are 70% lower in min wage when compared to wages is in 70s. So in the 70s u got 70% more of your moneys worth for groceries, gas etc compared to now. Our grandparents sit there and complain to us about how we need to do this and that but they need to realize their money was worth 70 fuckyng percent more than our money.
Man. Iove my grandma...but she really is delirious to these facts. The older gen wants to act like they worked the very hardest etc etc yadayadayada when yea of course they worked hard but they also had more for their moneys worth by a large margin. This is why u so so many old people with big farms who are on SSI nowadays yet barely keep up. Because at one point their money was Even with their lifestyle...lol not anymore it isnt. Not anymore.
@@megilacuttyjones735 oh 100% agreed! All they did with raising minimum wage was jack up the prices on everything else! And us as the middle class are the one that suffers!
@@daniii2022thank you and yep! 💯💯 It's sad .
Psychedelics are just an exceptional mental health breakthrough. It's quite fascinating how effective they are against depression and anxiety. Saved my life.
Can you help with the reliable source I would really appreciate it. Many people talk about mushrooms and psychedelics but nobody talks about where to get them. Very hard to get a reliable source here in Australia. Really need!
Yes, dr.porass. I have the same experience with anxiety, depression, PTSD and addiction and Mushrooms definitely made a huge huge difference to why am clean today.
Is he on instagram?
Is he on instagramm?
Yes he is dr.porass.
just so tired of doctors blaming even tumors or cancer on periods and anxiety wtf!!! so glad you found out what was causing your seizures and had the surgery as well! i wish you full speed recovery!
Yes!, exacly! Just get a good doctor that worries about u!
I hope you're making a full, complete recovery now, Thinking and praying for you. Now secure a GOOD, CARING DOCTOR. Learn to fully advocate for yourself, now. We ALL have to do this , nowadays, to secure the Medical help we need.!! Trust what I say, I'm a very experienced Nurse of over 30 years. You know your Body best. PUSH to ensure you get any tests, or Medical Care, that you feel you need , in the Future
At least they didn't blame it on global warming or sea level rise.
I just happen to have gone through 5 doctors, this week I was diagnosed with several stomach issues, Ulcer, Gallstones etc in one go, because I was sick and tired of nobody listening, I paid for my own CT, ultrasound etc just to prove them this is not due to "anxiety".
Even the ambulance I called one time said I just had a stress symptom. Ah yeah "insane pain in chest, not being able to breath and my arms going numb" is a stress symptom. Right. Eff them.
Comments like these are why people complain “why is my medical so expensive?” Our assessments are the cheap way from you spending thousands of more dollars. If every patient that had an anxiety attack got a MRI, the hospital would be extremely rich.
We practice safety, so my hospital will have no problem to rule out anything you are fearing. But when the medical bills comes don’t be upset on what you have ordered.
At 23 years old and 16 weeks pregnant, I went through the same thing with feeling like I had a brain tumor but so many drs telling me, I was way too young and healthy to have a brain tumor! 2 weeks later after begging for an MRI, sure enough I had a walnut size brain tumor! Thank God mine turned out to be benign. It’s come back 3 times but I’m still here and my baby was born healthy as well! Wishing you all the best!!❤
Omg. This is also happening to me right now while pregnant. I was also around 23 weeks when I found out. 34 now and surgery is planned a couple of months after birth :/
Praying for you all!
I really hate the fact that age is even considered a factor ! Like even infants get cancer or tumors .
What made you feel like you had the tumor ? I hope you are able to get healing , btw.
I probably lived my whole life with mine. Was discovered when I was like 29 or 30, but most of the medical community thinks mine is always asymptomatic. Was a pineal cyst and what they didn’t explain me was that the difference between tumor and cyst is that one has fluid, still makes pressure and the brain is a compacted area with very minimum space. I knew I was sick and getting sicker, but lived with that gaslight for 7 years. At the end I was already leaking csf and had developed conditions and symptoms all around my body, I was non-functional. I wish doctors would look at patients with curiosity and if an otherwise healthy patient is developing chronic illnesses like a collection, be curious and understand that something that serious can totally happen to a young person. Another thing I also learned, is more common for women to develop symptoms because we have a few glands in the brain and we have many hormonal changes. What caused my last trigger was a birth control that didn’t agree with my body and when I did my MRI, it had grown double the size since the last checkup. I’m not surprise it happens in pregnancy too.
I'm in Canada and I had a stroke in my 40's . The ER doctor told me I was drunk and "faking it" because I didn't present like most stroke patients. He kept trying to send me home.
some doctors can be so incompetent and stupid
So much for your “free” not free healthcare
@@DaughterofGod-777medical malpractice happens in the US all the time, quit your bellyaching. It's the same continent, same language group, same culture different economics.
What dr. Where?
@@DaughterofGod-777 we pay for health care in the US and still see these kinds of behaviors. Don’t pin it on free healthcare. It’s purely due to bad doctors and malpractice.
The worst part of being traumatized is that people expect you to behave as if you aren't.
Medical gas lighting is so gross. I'm so sorry you had to go through that. I'm glad that you continued to advocate for yourself and you found out, unfortunately terrible news, but at least you can progress with a successful surgery! You have your youth on your side and hopefully you will have no trouble recovering. Sending you well wishes! ♡
This is such a lovely comment I really really appreciate it. Thank you so much ❤
I have an undiagnosed medical issue and have been through 8 years of specialists. I have come across a lot of ignorant, arrogant and very ineffective doctors. I’ve found the most valuable information online in Facebook groups and Google. I can’t deal with a doctor that tells me to get off the internet. I don’t tolerate it anymore. I think they’re just jealous that they don’t know as much as Google does! 😂
Legit medical gaslighting is ridiculous. I have been complaining of stomach pains and general unwell feeling for about 15 years now and they kept telling me im just fat and need to lose weight. I lost some weight and felt even worse. They tell me im still fat and my body is lazy and i need to work harder. I cant even with these people. I may be fat but i am not that fat ffs. I was in the hospital vomiting blood and after an ultrasound they found a tumor on my pancreas.... But im just fat right? Thats rhetorical i know that its gaslighting.
Medical gaslighting is not a thing.
It’s a shame some people ruin it for the rest of us. They go to the ER with a hang nail.
I am absolutely horrified by how these professionals treated you - gaslighted, ignored, unheard. It's disgusting. These are the folks who should be working in any other field. Good job advocating for yourself!
It's extremely common. Like very.
This is typical of the Canadian medical system. They always think you're lying and basically treat you like you're lying until your tests prove you have a condition.
Really - in what other field exactly do you believe they would fit in better, and where else could they have so much power over other humans?
@@anjazapico6380 great question- anything that doesn't give them life or death power over other people, at the least.
@@sj9410 unfortunately, you're absolutely right
Whenever a doctor refuses to test you could order them to write their refusal to your request in your medical file. They know that this can make them liable in case the patient is right and suffered because of their inaction. This can lead to them ordering the necessary tests anyway.
My brother in law fainted during a massage from work. They found a mass in his brain and removed it and he was confined to his bed for about 4 months afterwards. That was 10 years ago and he's perfectly fine now. I hope this will happen to you. That you will get past it.
My mom had migraines all her life. They found a tumor in her 3rd ventricle. They got it out, It was benign and there was no damage to her memory. The headaches stopped. Her surgery was done in Houston Tx. Prayers this goes smoothly
Yes go to md.anderson not methodist
Hi. I am happy for your mom ! My son has a central neurocytoma in the third ventricle . It's been a year now. he is going to have his MRI in two weeks . If the tumor shows signs of growing , he will have to have the surgery to remove it. I am so terrified. We are in Toronto.
Okay that's terrifying.. as someone who's had migraines my whole life I'm currently waiting on the results of my MRI I keep telling myself it couldn't be that because I've had them for like 16 years
As a med student in the US going into emergency medicine next year, your symptoms are tons of red flags. I'm so sorry you weren't validated for what was happening to you in the ER. These are the stories that drive me to be a better physician for my patients. Thank you for sharing this, and I wish you the best of luck going forward.
Well said. Unfortunately ethical medicine is declining as well as critical thinking skills among those in the medical community... I'm glad to be a retired HC professional.
God bless you xxxx
Will be praying for you and your family keep smiling and you have got this Sad the doctors did not help before
Right?? I’m not a medical professional but even I thought her systems were super concerning
Same here but hopefully neurosurgery, these NUMEROUS stories of this happening makes me so sad but most of all motivates me to ensure in every way I can that I never treat a pin that way and never tolerate it if I see anyone else doing that.
This is my biggest fear because I get constant headaches and migraines. You are such a strong woman ❤
🚨PLEASE READ 🚨 There is now some disturbed person with a fake youtube account impersonating me. They're trying to add people on telegram and say I'm doing a giveaway. PLEASE do not fall for this. What a horrible, horrible person to do this at this time. Their CZcams name is "@Tele.gram.me-- Offical_Eireann" PLEASE REPORT THEM!
Hello! Im sad to hear u already went thru operations and all but i truly hope it didnt change u / hurt u, i randomly saw the vid and clicked the link to tell u about natural, special ways to heal it, i have saved both people and animals from both cancer and other things and never uses doctors since i know better than most standard doctors, but i guess i can still recommend a few powerful things, ill say NR 1! is Medical grade "Hydrogen inhalation" ( Lourdes Hydrogen generator ) or other but they are the best, hydrogen inhalled directly in or drinking the water alot, inhalation would be best, pure cannabis vaporizing aswell, and ofc alot of other things, but the most important thing u can do it the Lourdes Hydrogen generator inhalation , actually that and the vaporizing would do alot, ofc u can also eat the cannabis oils instead but it has to be full-spectrum oil not some seperated only cbd thing, but ifs that all u can get then go for it . Inhalation of hydrogen would repair more than u can even imagine and repeating it as a daily thing u will end up totally healed or as healed as u possibly can..
Best of luck with it all and im here to answer any question u might have...
There is a telegram scam on almost every big youtube channel.
😮
it is a very common youtube scam and there is always more than one account doing it. reporting ultimately does nothing as it is a fake account.
@@godw1ll99 The correct thing to do is report any scam accounts doing it and spread the word to warn people of the scam.
My oldest grandson has a brain tumor. He has had 3 surgeries and several rounds of radiation and chemotherapy. He was diagnosed in January of 2012 and he’s still with us today! His initial mri looked just like yours. His tumor was in the exact same place and his initial symptoms were the same as yours. Keep your faith and stay positive! God’s got you! Praying for you sweetheart from Texas today!
Did he get the mandated poison? Lots of cancers now !
hell yeah sister!
God bless you with all the treatment plan. I pray they find your miracle. I pray the tumor shrank down to a pea and all they have to remove is the rest of the dying tumor. Leaving you healthy and tumor free .❤❤❤
Is he in pain?
Popped up in my recommended, I must say, despite knowing you have a huge brain tumour you still have a huge smile on your face and were brave enough to share this with the entire world. Sending prayers your way and wishing you a fast recovery! 🙏
I can totally sympathize with the difficult time you had in getting a diagnosis as my sister had a similar situation in Canada several years ago when her brain tumour went undiagnosed for quite a few months . Each time she went to her doctor (with constant bad headaches, feeling sick, watery eyes, not hungry, anemic) he would tell her she had clogged sinuses and sent her home. Most frustrating! It wasn't until she started to "black out" that her doctor finally sent her for a CT scan which revealed a huge brain tumour. Fortunately she got surgery within 2 weeks and it was benign. Her recovery was very long and slow but 6 years later, she's as normal as ever. Keep positive Eireann! And yes humour goes along way. Prayers for you.
Medical gaslighting is so horrible and seems to be done more so with women than with men. I’m so glad you stood your ground and got the necessary care. All the best with your surgery and recovery
It's EXSAUSTING that we have to fight even for those basic yet extremely important things. It's exhausting being treated as second class citizens and suffer/die due to negligence.
I’m a man and doctors never give me the medication that I need and never believe me when I tell them that something hurts or I have certain symptoms. I think it’s just a doctor thing.
How the hell do you come to the conclusion that this happens more to females than males?
@@Ghost-gf4yd it’s well documented in medical literature and have had many examples explained to me by male and female physician friends
The world seems to only revolve around you then
It’s been 11 days since this was posted so you’re probably having your first days of recovery right now from surgery. I hope it all went well! You’re very brave. Wishing you the very best.
My brother had a Seizure. He found out he had a brain tumor. Now this week there going to see how much it’s growing. Are Spreading. Hope he’s okay. God bless 🙏
It's essential for healthcare providers to check for cancer before looking into other possibilities, as time is critical for cancer patients. Wishing you a speedy recovery and a bright future ahead.
As a medical student myself, that medical student was definitely breaking the code of ethics in medicine. I’m so sorry you’ve had such a difficult journey to get a diagnosis, I hope all goes well.
I was misdiagnosed in a Northern California ER and I have lost functional vision in my left eye. It happens.
@@DearestDawn It happens, but it shouldn't
It's funny cause I have experienced and heard so many situations of med students and doctors being confidently wrong, not listening to patients, disregarding individual experience over what is more likely statistically and I see in comment sections many saying 'We're not all like that' yet it seems all the ones that arent like that are all in youtube comments lol.
I was misdiagnosed for 10 years. My mum was told she doesn't have cancer, wasnt treated and died. My friend when dying was left without care and my dad had to go fetch nurses that were on their phone when he was using the emergency button/thing. This isn't towards the original comment. I just wish these people that seemed chill actually appeared in the hospitals and not just online.
@@DearestDawnyeah, nurses also intentionally harm and kill native kids and babies in hospitals too. "it happens".
What is the matter with you why would you scare this young girl, shame on you
Good morning, from Regina SK!! I'm a current nursing student and hearing your story makes me so emotional! I'm so sorry you had such crappy interactions with medical personnel at the beginning of your journey, no doctor or nurse should diminish your symptoms and feelings and reassure anything! This is one reason why I want to pursue a nursing career, to truly listen to patients and try to help as many people as I can! I wish you the best in your recovery and will be watching your journey!
Thank you so much for such a lovely comment. I love that this is something that motivates you and I know you’re going to do an absolutely amazing job ❤️
We need more people like you. I'm going through so much medical stuff right now I wish ther3 was someone I knew in the medical world
From a retired RN of 39 yrs, I'm wishing you the very best outcome and compassionate healthcare workers from here on out!
I wonder what fraction of people ultimately diagnosed with a brain tumour first came to a doctor thinking that that was what they had
@@diaryofeireannhi I’ve just been diagnosed with the same , I was in total shock , my Daddy past with the same so very scary, mine started with constant falls. Good luck for the future .
This is terrifying. I can't imagine myself being so calm as you are in such situation. I wish you all the luck in the world.
So much love from Sweden. I was diagnosed with skin cancer 3 years back, and the part where I didn't know if it had spread or not... Finding out it hadn't was the happiest day in my life. The time in between, was tough. Can't even imagine what you are going through. Sending so much love!!
I forced my previous doctor to check my lump in my neck. She said "Oh it is nothing..." and it turned out to be cancer. Always advocate for yourself!
My mom is 71 yrs old and had two brain tumors removed 8 years ago. Stay strong 🙏
How is your mom now
Same to my mum , probably after vaccination?? Cause that is my theory
Vaccination would not cause brain tumors, so stop spreading misinformation and fuelling harmful ideologies@@patrickpressler9959
How can she have it removed 71 years ago if she's 8 now? Man your mom is crazy.
@@AwesomeRepixyou are reading it wrong.
Her positivity and sense of humor is awe inspiring. Stay strong Éirean!
Can't imagine what any of these people fighting cancer are going through. They are strong individuals.
Please don’t call it ‘your’ brain tumor.
A few years back I was speaking to a woman about ‘my’ cancer and she said the most helpful thing to me… ‘honey don’t claim that! It doesn’t belong to you, you are not going to keep it’.
I hope you understand. 💗
Love that it'
S not your brain cancer..your beautiful I pray for it to be benign and you live a healthy full life .❤
I agree with you! Deny all negative things and slowly they will disappear 💖✨
so true!!
@@dianacazadora360 give more tips on how to make it disappear naturally
Hmm, a lot of us in the meningioma brain tumor world name ours. But most brain tumor surgeries aren't this fast so we have time to.
My sister had a brain tumor. She worked as a loan officer at a credit union for 23 years. One day on her way home she stopped at a red light. By the time the light turned green, she could not remember which way to turn. She had driven that same route all those years and just drew a blank like you did with the crisps. All the best to you I will pray for your doctors as well as you, daily. It was actually an optometrist that diagnosed the tumor, there was pressure on the back of her eyes.
Is your sister okay? Sorry to hear
It didn't end up being a tumor, but my optometrist advised me to get checked for one for the same reason, swelling at the optic nerves. I'd been having pressure headaches for a while too but I didn't even think they could be a problem. I had to have a spinal tap to drain the fluid that runs up and down your back. Routine eye exams are no joke.
I had an optometrist think I might have a brain tumor because it looked like I had edema in my optic nerve but I apparently have drusens on my optic nerve mine are the benignish kind with the possibility of maybe causing peripheral blindness. Otherwise besides making some optometrists think I have eye pressure problems when I don’t it doesn’t really do much else.
@@luciferfaustare you the sister?
As someone who is recently diagnosed with brain cancer I know what it’s like more than ever dealing with grim news. I’m here for you! We’re all here to support one another! #nevergiveup
This showed up in my feed tonight….
I’m so sorry you’re going through this… but I’m gonna stay with ya and pray for your quick recovery and healing.
🙏 from Delaware USA
A buddy of mine from grade school 40 years ago started having severe headaches and having seizures so he finally went to the doctor when he was like 35 and started the process of figuring out what was wrong. They eventually figured out that almost all of the left side of his brain was a tumor and was swelling and putting pressure on the right side so they removed the entire left side of his brain and told his wife that he was going to have many years of therapy to recover but when he woke up he was completely normal. He has no memory loss or loss of motor skills and was even able to read and write just fine. They think that he had been living his entire life with the tumor and never had function in that side of his brain so the right side adapted or something but it is crazy to think that the body can overcome things like that. Keep your chin up and stay positive because as log as you have the will power to make it, you will.
Wow! 🙏🏻
The fact that the brain is mostly just a blob of fat means that it accommodates for this kind of thing and it absolutely blows my mind. That’s an incredible story!
Wow. A miracle truly.
@@moozycarrotsThere is much more to the brain than just "a blob of fat".
@@rdallas81I mean, yeah, but it’s still meat. Mostly fat.
This happened to me (the gaslighting by medical personnel/doctors) and so many other family members. I was in high school and had severe pain from bowel movements. It was not normal…. I’d call home sick because of how off I felt with my body. My mom didn’t believe right away, she thought I was just trying to get out of school. One particular day when I had enough, I called my grandmother who listened to me and had a gut feeling also (she’s been in and out of the hospital for many things) so she took me to the my doctor right away. My doc said “oh you’re just constipated” my granny was furious and said my granddaughter is suffering and pushed hard for more testing. Finally got the MRI and several other tests, turned out I had a grapefruit sized tumor attached to my appendix. Got it removed and it was benign 👍
the gaslighting is unreal, no matter where you're from. I will never get it. People have serious conditions and diseases and are being told off by doctors and treated like imbeciles while precious time is wasting away. Like, why would anyone go to a hospital to have highly unpleasant tests done if they didn't feel really ill?
hope you enjoy your new life, brave soul you are . I am sure you will stay in the state of health. God bless you abundantly 🙏💝✨
You have described the exact ! symptoms and odyssee of diagnosis my son suffers. Currently he is in hospital for depression treatment and we did not hear from him over a week now. He also had a referral from his physician for a brain Scan ; this only after I insisted ! My gut feeling told me .
May I ask : did you have other symptoms such as extreme hair loss and loss of weight, extreme fatigue etc ?
. I am totally off guard at the moment and will have to go above and beyond tomorrow at hospital to at least find out where he is.
I wish to you all the very best and thank you for sharing 💝
@@anniemiller8927God bless, strengthen, heal and uphold you sweet friend and your son, I pray for y’all’s complete miraculous healing in Jesus’ mighty Name!!! Amen amen ❤️🔥
Bless your sweet grandma and her sanity to take you serious
Yes exactly, why do the doctors think we are wasting lots of time and money on medical appointments if we’re not serious. A lot of doctors are in their own world and don’t consider patients to provide any useful knowledge
I'm so, so sorry you're having to deal with such an awful disease. Especially at your age. I pray everything goes smoothly for you! ❤️
I wish you all the very best in this battle. My wife just past the two year anniversary since her brain cancer surgery due to metastasis of melanoma (she has had 6 melanomas starting in the mid 1980s). Her tumor was in the same area as yours and she also had seizures (they didn't appear as the classic grand mal). She had a whole brain radiation and a series of infusions of Opdivo. She is cancer free now (thank God!) and is looking forward to however many years she has been given. No one knows when their number will be called so it's critical to make certain you are ready. I will pray for you - I know it's frightening, but focus on all the good and stay positive. I send you love and my promise to continue to lift you in prayer.
As a Canadian, I'm sorry to hear about the challenges that you had with our health care system. It's a nightmare too for those of us who've lived in Canada all our lives. I love how every woman's symptom is associated with her period. I'm not an expert in anatomy but the last I checked the head and the uterus were at different ends of the body.
as an american i’ve been told the same thing, then had to pay $275 for it 😅🙃 i actually ended up having fluid buildup in a blocked fallopian tube. and now i have thousands in debt bc i had to go to the emergency room once it got so bad that i couldn’t stand or sleep or eat without puking. i was actually asked to my face with a ultrasound probe actively showing my insides if i was sure i wasn’t holding in my pee. smh healthcare everywhere needs a reboot smh
sadly this sort of stuff happens far FAR too often in the US as well. It is truly awful :(
But the whole menstrual cicle involves hormonal changes that can give many symptoms, so it could have been as the doctors said.
@@momof3731Hormones don’t cause severe headaches and seizures. Or forgetting words. They cause things like sore boobs and occasional mood swings. ‘Hormones’ is not a diagnosis and does nothing to help a patient or explain their pain, and unless a patient is dealing with an actual hormone disorder then no doctor should be blaming hormones for their condition.
@@mizfeng1442 It’s not like they laughed at her and sent her home without a scan. They did all the tests she needed (which is how she found out about the tumor to begin with!) but I think the problem here is expectation. People need to stop thinking about doctors & nurses as gods who know everything. They are working TOGETHER with you to figure out what’s going on, and sometimes they need to ask silly-sounding questions to really get down to the bottom of it. And 99% of cases are not serious like a brain tumor, yet 50% of patients are paranoid and think they have something like that. So it makes sense to exercise caution. People should realize that it’s their right and DUTY to advocate for themselves, as much as it sucks. Like all things in life, healthcare is not perfect.
I’m 30 and I was diagnosed with a rare blood cancer, went through a year of treatment and had an allogeneic stem cell transplant. I’m now cancer free. I also had a huge baby watermelon size benign tumour in my abdomen. I had surgery to remove it and my appendix.
I am recovering now and my hair is starting to grow in, it used to look like yours ❤ praying for you. The medical miracles they do these days are truly magical.
What were your symptoms? I had the beginning stages of T-LGL but it never progressed.
I am so so sorry. i can not imagine getting news like this. My dad was diagnosed with a glioblastoma brain tumor/brain cancer in 2020 & most people only live months but he is still alive today its been 4 years this month. He was just put on hospice yesterday but only bc he is no longer doing treatments...but the glioblastoma is the most aggressive type of brain tumor so hopefully, you do not have that type of tumor... My point of telling you that is you never know..i know its easier for someone else to say bc we are not the ones going through it YOU are but keep your head up and try and stay strong...i pray to god your tumor is NOT cancer and you will be able to overcome this with treatment. If it IS in Fact Cancer, just fight as hard as you can hun. Your a beautiful strong woman you got this❤❤❤
All my sympathy for you. What a very frightening operation to have to face. I hope you come through it intact and can continue to be the person you are.
Just found your channel and next two videos! I'll watch them soon.
❤ I’m a retired neuro ICU nurse and this makes me sad and angry. Over my 46 yr career I’ve seen so many women get the pat on the head that you’re imagining your symptoms. You have to insist on them doing something. Don’t feel that you’re wrong on doing this.
I hope you’re doing better. Make sure you have someone to advocate for you after surgery.
I’ll be praying for you.
Irish doctor. Agree. Also the bit about maybe it's her period 🙄🙄🙄
It's really crazy ! My pediatrician wrote me off as being dramatic. Luckily I had a neurosurgeon already because of a VP shunt and Neurofibromatosis. So we called him in for a emergent MRI and what do you know a big old brain tumor sitting on my brain stem.
Horrendous @@lauramurphy5104
Most hospitals are full in the western world. People are discouraged to attend a hospital setting unless having a life threatening event at that moment.
It isn't only women. It's young men too. A close relative of mine was a young, strong man who was having terrible back pain. He went to the ER. They took a look at him and decided he was a drug seeker. His testicular cancer was finally diagnosed after his primary care finally referred him to a urologist. It had spread to the lymph nodes by then, but fortunately he has lived a life, and still is. So.... women are not singled out. The busy people listening to never-ending blather and scams still need to take complaints and symptoms seriously.
Just for anyone in the comments in case you're worried, I have autism and epilepsy and they can cause the symptoms described in the first half of the video too. It's definitely something to check out properly in either case (don't let anyone gaslight you into thinking it's just stress, etc) but its not necessarily always as extreme as a tumour.
Please look into the " brain saver" books from Anthony William and learn how to heal ❤
You can heal !
Well I have autism without epilepsy and losing the speech centre of my brain happens quite often. As a kid I was considered to be just very dumb. Later I was considered to be that nerdy genius whose mind is just too fast for the tounge. Both wrong, very very wrong. It just sucks.
Oh, as a young adult I got my brain checked cause I was afraid of having a tumour. Not the case.
I started getting similar episodes in my mid 20s where I would get a weird sense of Deja vu, then start to feel dizzy and suddenly forget what what happening, what I was doing etc. then when it was over, forget everything that happened during the attack.
Naturally I feared the worst and convinced myself I had a brain tumour (cheers google.)
The first neurologist I had suuuucked. She didn't take me seriously and wrote it off as Anxiety / Depression. I started taking anti-depression medication which made me fell 100x worse and didn't stop the seizures.
EVENTUALLY I was given a new Neurologist who suggested I get an MRI scan. Two MRIs later and thankfully, nothing serious was found and I was told they were absence seizures caused by epilepsy, which I continue to take medication for. I haven't had an attack in over 4 years now.
So yeah, there are a lot of things it could be, so try not to worry *too* much, but DEFINITLY get it checked out and don't take no for an answer.
Exactly and the medications for many conditions can cause similar symptoms as well. From personal experience Lamictal can make my mind go completely blank and I have to completely stop and walk through what the heck I was just doing to be able to continue
My mother one afternoon had taken a nap. My son arrived to give her weekly medication day planner. He couldn't get her awake. He called me as I lived right next to her. I advised calling 911. Then she woke up and he called me back as I was getting dressed quickly. I said let them come anyway. Something went wrong as he couldn't wake her up. She was breathing good but couldn't shake her awake.
The emergency room gave her a Cat scan and said she had 2 brain tumors. Then she was taken to a Cancer center that was near and they did scan and said 3 tumors. She was sent to a place that did chemo and radiation treatments two hours from our town. After they brought her out of the preparation making head gear for radiation. The doctor called us back and said she has 5 brain tumors.
I was devastated.. we had the choice to have them do biopsies or just do treatment. They didn't know if she would live through brain biopsies. I chose to not have them and she died 5 months later. No regrets except I worry about my siblings and my brain.
I also have a brain tumor in the 3rd ventricle, when they found mine they gave me less than 3 months to live, this was 3 years ago and I am still doing alright. Since then they have found 2 more tumors in my spine. You are very much braver than I am, I would not be able too and even asked my doctor about having a surgery while awake and if it was necessary, but thankfully it was not. I wish you the very best of luck when it comes to this, try to keep a strong mind, it will help guide you through this. I never experienced seizures myself, but would start getting sick a couple times a month with no explanation. Your story is similar to mine, I basically took things into my hands and finally found things out. Good luck young lady!
I'm happy I was able to listen and I hope that this next chapter in your life isn't too difficult. These kinds of issues are so hard but thank you for being willing to open up and share your experience. Your energy is genuine.
Oh the medical gaslighting 😥 unfortunately you have to stand up for yourself and not back down when you know something is wrong. Sending you lots of strength you’ve got this ❤️
Very very true. Thank you so much ❤❤
My 9 year old had a craniotomy for a temporal lobe mass . She is seizure free and recovering well. Wish all the best and know you’ll be in good hands. Sending love from the US
We love you You Erin…my entire family and all our friends are praying for you every day since we found out…let’s claim an amazing miracle for you…❤️❤️❤️🙏
Praying for quick and complete recovery dear.
My daughter had a brain tumor dx 7 1/2 years ago. Her journey to diagnosis was similar to yours. Praying for a complete recovery. 🙏❤️🙏
I had a golf ball sized tumor melanoma millimeters from my brain stem. After a 7 hour surgery and intensive care I went back into the swing of life ... This was 4 1/2 years ago. My brain reclaimed the area taken by the tumor. i was also back in Zumba classes two weeks later. I wish you success in your treatment plan and want you to know you can fully recover! ❤🙏💕
My mom had an orange sized tumor in her brain that was benign and they removed it pretty easily. We found out she had it because she had bad migraines and lost her peripheral vision. This was in America of course so it cost $850,000 but it only took one week from the visit to the surgery and she only had to pay $80,000 because she didn’t make a lot of money and we have loan forgiveness programs. She passed away 14 years later; last year from colon cancer. Her brain tumor never came back. And I got 14 more years with my mom. ❤ I pray it’s benign for you as well!
I am sorry for your loss. 💐
$850,000.... America needs to change this. Every 1st world country has a better healthcare system.
Surely 850,000 has to be a typo, surely?! I knew it was awful but that is like a lifetime's worth of money for a lot of people... @@evilcookie422
@@evilcookie422
It cost that in every country only governments hide the facts of the costs involved. Many European countries have active government programs that slow down the treatment pipelines.
@@Art-is-craft Here in my country (Austria) this costs exactly NOTHING for the citizens. EVERYTHING is covered by state insurance. Not 850.000, not 80.000, nothing. Not a cent.
Wishing you a speedy recovery! 🙏
I’m so sorry to hear this. I’ll say a prayer for you and your family. I hope this (5 months after the video) finds you snd yours healthy and happy.
I don’t have a brain tumor but I have MS and I was gaslit by doctors and the hospital for two and a half years before I went to a better hospital much further away. Within 2 hours of getting there I had an MRI and diagnosis. Way to go advocating for yourself! You have to because these doctors won’t. Lots of prayers from Florida, USA. 💛
have you looked into the carnivore diet? people are greatly improving MS symptoms on it
My mom has MS, she struggled to get a diagnosis as well until she had a major flare up (where she lost her vision in one eye). We live in NYC so one would think she’d have access to the best healthcare 🤦♀️
I’m so sorry your mom went through that too. It’s crazy to me that in this day and age women are gaslit and ignored by physicians constantly. It’s so frustrating and it makes it just that more important that we advocate for ourselves and don’t let doctors push us aside.
😭 my grandma died from MS
Read the book by dr Terry Walsh , how she cured herself with diet
I'm a junior doctor in Australia. I've heard a lot of experiences like this which has always led me to be very careful not to dismiss a patient's concerns. It can be very difficult to wade through the anxieties and unrealistic wild fears and then to be smart enough not to dismiss those that are legitimate. Especially when you are tired or unwell yourself. But I always listen when my patient's insist something is wrong and I follow up with objective measures like scans.
I hope everything goes well with your surgery and recovery. You are in the right hands with your neurosurgeon from what he seems to have said.
I could see the tumor on your CT quite clearly I'm honestly a bit shocked the doctors said that about the calcification
I agree with the nurse who commented you ought to feed your experience back to hospital administration via the feedback/complaints process. Its the only way to be fairly certain a change will be made. I understand you have more important things to focus on for now though.
I'll be sending my best wishes.
As an Australian, it's so amazing to know we will have someone like you in our medical sector ❤
I wish my doctors would listen to me. I have a bunch of random symptoms and they just look at me like I am crazy. I KNOW ther is something wrong inside of me, but the doctors don't care.
Dear Doc, have cancers among young people skyrocketed since the vax?
@@TheGrindBoardGame they aren't allowed to write about this 😢
@@TheGrindBoardGameOMG show me the research and data 😳🤔waiting ….🥱🥱🥱
Hi Eireann! I hope you are doing so much better now ! Such a scary thing to go through. I can personally relate as this happened to my mom last June and she had a grade 2 meningioma also causes her a seizure and fall at work. She promptly was assigned a brilliant surgeon , he was godsent🙏🏼, and had her craniotomy just under a week later . This was the most real and frightening thing I have ever had to deal with and she had all the same signs you mentioned happened to you. Im SO sorry the system failed you . Irs truly heartbreaking and I can’t believe how you were dismissed and pushed around for months . Wishing you the best recovery and future full of happiness and memories ❤
I am 22 and also just found out I have a brain tumor. also had been gaslit prior to that, and had to beg for the mri to be done. so sorry you’re going through this as well. I wish you all the success and healing🫶🏻
Yes, the unknowns are the hardest part.
I'm being treated for stage 4 esophageal cancer so I understand to a degree. You're very strong and brave I can tell. From Boston, Massachusetts, I wish you all best of outcomes and support systems. 🌻💛
I switched hospitals since the first one didnt treat me for 4 months.
My 26 year old daughter has been through 2 brain tumor surgeries recently so now we know how to pray to God for your healing through surgery and for the long recovery. Praying for you in South Carolina, USA
❤
As women we get gaslighted by medical professionals, especially if we Google our own symptoms before they Google them. It's sickening and a culture that medicine needs to get over. I saw a video recently where someone called out that the only time they listen to what a patient is saying they need is when they are already in hospice. SO TRUE! How about listening when we walk into your facility the first day? I'm so sorry they have failed you so far but glad you're finally heard and on track.
No, what you have in the middle of your legs doesn’t matter, doctors will behave this way literally for anyone, unless it’s another doctor or something
The other response to your comment is rude but also just incorrect. You are completely right. I’ve experienced as a patient but also watched it as a student doctor. Women are constantly dismissed. It’s terrible
@@lucasmatsuocaIt happens more to women. You're ignorant to the world around you if you think otherwise.
I pray 🙏 for a full recovery for you and 100% healing ❤
Thank you for sharing this struggle. All my wishes of a quick recovery. ❤
There needs to be a shakeup in the medical field. There are far too many stories like these of medical incompetence and dr's "assuming" instead of doing their job and investigating. They need to listen, people know their bodies and know when something isn't right. I really hope things will work out for you and it's a benign tumor 💜🙏✨
Ya know, one of the side effects of constantly bashing the medical community is less and less qualified people want to enter the field. Who wants to go into a field where they're constantly denigrated for things that a lot of times are out of their control? The bottom line: it's a conveyor belt of humanity. Day-in, day-out a never ending stream of people with varying degrees of sickness. If you think you can do better, then by all means pursue a career in it and change the world...
@@SnarkapotamusYa know, you sound very defensive and it’s unwarranted. People are allowed to complain about being treated poorly by medical staff, and they’re also allowed to raise those concerns and hope for improved care. Sorry your feelings are hurt that people aren’t satisfied with their shitty medical care- but if you can’t handle their valid frustration, then you shouldn’t be in the medical field (if you even are)
@@bellamcfaul8259- And that complaining leads directly to less qualified people entering the field and sub-standard care for both you AND I. Here's what I know about the medical field in general. YOU have to be your own best advocate. You can't just offload that responsibility onto someone else and then blame/complain about them. That's on you! Trust me, over the last few years I have fought tooth-and-nail for certain treatments and if I hadn't, I'd have been left to suffer. She, you, I all deserve the best medical care we can get, but to complain about it isn't the answer...
@@SnarkapotamusActually, no it doesn’t. Me saying that I’m disappointed my doctor didn’t take me seriously doesn’t directly lead to less qualified people entering the field. I’m very curious what your sources are on that, considering everyone who becomes a nurse or doctor has to literally go to school for years? and have the extensive qualifications and at least one degree? People are ALLOWED to complain, and they shouldn’t have to BEG to get adequate care. People literally die bc their doctors tell them they’re too dramatic or accuse them of lying- that’s NOT OK, point blank period. The patients are not to blame, the doctors are- it is entirely in their control to listen to a patient and address their concerns without being flippant or belittling. It’s truly pathetic that you’re willing to defend terrible doctors over patients who have been mistreated, and go as far as to blame them for the poor care they received. Sad.
@@bellamcfaul8259- Just ask all of the doctors and nurses that slogged their way through Covid whether your opinion holds water...I can guarantee you, it doesn't! But, you've decided you're right and everyone else is wrong, so congrats...a little less whining and a little more doing goes a long way!
I recently went to the ER with the thought of having a brain tumor. My CT scan came out fine and although I'm positive there's something more to it I was happy for the result. This video has encouraged me to keep at it and get an MRI. I have insurance, that's what it's for and the doctors never know everything.
I had similar symptoms to a brain tumor and was diagnosed with IIH. you should look into it!
ER doctors might miss something a neurologist or other specialist would see right away as well! That happened to me
The tumor was already visible on the CT scan. You don't have to get an MRI if the CT scan is completely clear. The MRI gives more detailed information into the nature of the tumor, but it is worse in detecting acute brain bleeds, for example. They serve different purposes.
Check into Chiari Malformation
look into csf leaks and brain pressure. An eye doctor can measure the pressure from your eyes. good luck
Praying for a speedy recovery!
Sending you lots of love. My daughter was diagnosed at 11 years old and it took 6 months to get a diagnosis. She is 16 now and is doing well. I hope your craniotomy went well and you have some answers and a treatment plan now.
As a future physician your story made me feel disappointed and furious about the health care system. The people that treated you were so condescending it’s unacceptable. I’m so sorry it took you so long to find a proper diagnosis 🥺❤
Please do research on shots. There is no reason to inject Mercury into our blood streams. Thermosol is mercury. My white coat didn't even know that. They listen to the drug reps. WE ARE ALL the guinea pigs UNLESS a medication has been on the market for over 10 years. White coats don't want to rx them because they don't get the kick backs from the drug reps. I have white coat friends. Trust me...I am schooling them too.
Unfortunately that’s kind of common in medical professionals. I had a pinched artery in my chest that took awhile to find and I had like 8 different doctors over the course of 10 months tell me I was just a hypochondriac. It seems a lot of doctors will just default to “the patient must be crazy” when they don’t have the expertise or training to figure something out.
That’s great, but unfortunately, woman, especially if they have ever had depression or anxiety, get labeled, instead of proper testing, and conditions go unchecked until for some….too-late!
The gaslighting is so infuriating. I'm sorry you had to go through that. Sending MOUNTAINS of love to you from Virginia. ⛰️❤
Love the positivity you show up. God is with you. Praying for you and those in need.
Also from Canada and worked at a hospital in the GTA. Went to ER 3 times total over the course of about 3 years due to consistent pressure pain in my left cheek. Turned out I had a golf size schwanomma tumor which can grow on your nerves. Was always told its probably a sore muscle by the ER docs that I personally worked with. I did so many things to try and relieve the pain. In the end I had a 9 hour brain surgery to have the a large portion of the tumor removed. Very thankful for all the folks who helped me along the way and the amazing surgeons
Bless you. I went through a very similar story. My brain tumour was mis-diagnosed for 3 years. I finally got an mri just in time to find an egg sized tumour stuck to my brain stem! It was so shocking I needed an operation right there and then. The next morning I had a 9 hour procedure. Luckily it was benign but very big and pressurising and entangled with the most important part of my brain. That was 20 years ago. I did have to relearn a few things and had a 6 month recovery. Ask me anything, if you’d like. You got this.
Hey, from Scotland. Just came across your channel. I'm so sorry you had such an awful experience with the medical team. I would report it. That medical student needs further development. They should NEVER just assume, bit arrogant of them, and dangerous. ALWAYS go with your gut. It's your higher self telling you. My prayers are with you. I hope your recovery is speedy. ❤
Absolutely. Thank you so so much ❤
This is an issue with our medical system. They are desperate for Drs and i swear the med students are being pushed through too fast and not trained enough or if at all.
Did you ever have nausea or problems with balance? How about swallowing?
I do remember the news of the hospital computer getting hacked!
Rooting for you ! You are a beautiful soul, sending hugs and prayers ❤ xxx
Brave woman. I’m watching this before your latest update. God I hope it’s good news.
We found out in September that my 33 year old fiance had 2 brain tumors and 2 craniotomys. It's been a scary journey but he has made a lot of improvements. Good luck!❤❤❤❤
The doctor told my cousin it was “just nerves”…..she was having difficulty swallowing and had just had a baby. So she waited…..suffering through the symptoms. She went several times only to be brushed off. This was in US. Because they brushed her off her tumor continued to spread and grow. When she finally couldn’t swallow they did some sort of test to discover her cancer too late. I’m so glad you got the scans you needed and praying yours is not cancer.
Wishing you a speedy recovery. Stay positive ❤
god that pisses me off so much. we pay SO much for health insurance and somehow manage to be treated like this. why are certain doctors even in the field anymore? if they want a laid back easy day at work, a doctor certainly is not the career path for them…
i get doctors have so much stress and deal with many patients being paranoid about minor things, but if the patient wants to be tested for something i believe there should be no questions asked. its their HEALTH they are coming to you for- their LIFE, not car dealership. so tired of hearing stories like this. makes me not even want to go to the doctor.
I’m really sorry you’re going through this, but I can definitely relate. I had 2 masses on my L&R brain. My husband took me to the hospital and about 2 hours later I was in surgery. I was in ICU for about 6 days and in the hospital for another 3 weeks. My recovery after was about 6 months. I won’t lie to you; it was the hardest thing I’ve ever been through, but if you have a support system and you try to live in the moment….. you will conquer the world 🙏 you will be in my prayers 🙏 You got this girl.
❌❌ from Aspen, Colorado
Just adding a comment, like so many others: you're an inspiration! So strong!
You're so brave. The typical "oh you're so young you won't have abc" is so common and frustrating.
This is Phil from USA. I just had a surgery on my right temporal lobes. They took out a big piece of my brain like 3X of a golf ball. I am still in pain but doing OK. I have some mood swing, headache, some communication issues and low vision.
You will be fine for sure. Please ask your doctor for a functional MRI so the doctor would know in advance what would happen to you after they take out the tumor. Functional MRI is very critical to brain surgery.
Good luck 🍀 and you are in my prayer tonight!!!
Wishing you a speedy recovery, Phil!🍀🍀🍀
Lots of prayers
Thank you so much Phil. You’re doing an absolutely amazing job and you should be so proud at how well you’re doing. I will say a wee prayer for you that you recovery speedy :) thank you so much for your comment
Praying you feel better soon.
Wishing you the best! My Father got a same sized Tumor, it's on the same area. it got removed and within couple weeks it came back bigger. It's unusually aggressive. Now he only can do therapy but his speech started to get worse. His right hand got numb. Whenever you try to have a conversation, you can see his frustration. It's scary and it breaks my world, especially living in different countries.
Glad you're still with us & hope you're doing much better on your road to recovery. A friend of mine passed away before xmas from a brain tumor which he only found a couple of weeks beforehand. He had been feeling off for quite a while and just thought he wasn't feeling 100% because of his studies and typical life stress. I'm seeing way more examples of young people coming down with brain tumors and cancers. Really glad you found out about it eventually and a great reminder to everyone out there to not take their health for granted. All the best and hope you are well.
Sorry to hear about the passing of your friend. Blessings to you 🙏
I cannot STAND when medical people invalidate what you say ("I have a brain tumor"). I believe we intuitively know some things, just like when I had a hysteroscopy I absolutely KNEW prior that I had cancer. This invalidation is so common. By the time I am watching this, your surgery is over, but I am praying that you are okay and recovering. I remember the protein drinks - I had to have them prior to my hysterectomy. I didn't care for them.
How incredibly brave sharing your journey with us. We’re here for you and wish you the best outcome
I was very nervous but nice comments like this one has made me feel so glad I did. Thank you so much!!
@@diaryofeireann❤❤❤❤❤❤❤❤
i had a very similar situation. i was actually misdiagnosed with a stroke and treated for a stroke for months until they found out i actually had a tumor. which was a cavernous malformation and had a crainiotomy in july of 2020 in the same area of yours. the aphasia effects me from time to time but i also think the keppra causes it too.. did you find out what it actually was?
You’re young and strong 💪 and Irish ☘️ and ahead of even the doctors. Our family is praying for you to come through this and live a long life
Finally finished this episode. Subscribed. I swear this is the most I’ve commented I didn’t expect it
This video popped up on my recommended and I just wanted to say that you and your family are so strong. I was diagnosed with a brain tumour officially in April 2022 and also went through lots of ups and downs. My first seizure was massively downplayed, and the doctor I saw in the ER said it was nothing to worry about. The next seizure I had was two years later, I went to a different ER and they did a CT and found a mass and assumed it was GBM. I was on holiday at the time, so when I returned to the UK in January 2022, I had more scans and they didn’t really know what it was since it didn’t look like a generic tumour. After a few months of debate, I had another suspected seizure while waiting for an MRI. In April 2022 they decided to operate and I had an awake craniotomy that lasted for 10 hours. I’m sure I was to a degree, but I don’t remember being terrified in the hospital. I had really nice doctors, nurses and specialists all in my corner who supported me. After the surgery, I lost movement on the right side of my body, struggled to communicate and couldn’t really think straight. I was told this was completely normal and it was due to the swelling from the surgery. But, my neurosurgeon put in so much time to help me regain my mobility in my right side and I worked with a speech therapist and physical therapist to help with my speech. After my surgery, I was in the hospital for 5-7 days while I was recovering. Honestly, what kept me going was the support from my family, boyfriend and friends and that really is so important. At the time, in the UK hospitals were still practicing Covid protocols and so my family couldn’t actually come and stay with me, but knowing you have a support system behind you makes you want to fight like hell. Two weeks after my surgery I got the official diagnosis and it wasn’t as bad as it had been originally. Since then, I have completed my degree and I will be graduating in February. This is to show that you can do anything you put your mind to.
If you ever want to talk about anything, as someone who knows what you’re going through, my dms are always open, feel free to dm on instagram (@georgieearcher). I know I don’t know you, but I will be thinking of you as you recover. You got this!
Did you get the vaxx?
That is a nice gesture.👍
was it after u took the covid vaccine?
❤
Are you vaxxed?
You’ve literally just validated me and my current medical concerns. This motivates me to get medical attention. I’m closing out of CZcams and looking at my options right now. I live in the US and don’t have health insurance, but life is too short to be afraid to get healthcare because it’s too expensive. I deserve to get looked at. Thank you.
If too expensive and curently these institutes are run by nzi, long story short, look at free youtube healing binaural beats, frequencies, etc.?
@@TheSapphireLeo Absolutely zero peer-reviewed scientific evidence that shows that "binaural beats" can heal you in any sort of way. Not only is this wildly misinformation, but it puts people who are already vulnerable due to a fear of a potential serious illness at risk of seeking legitimate medical attention.
@@TheSapphireLeoThat is all bs
@@TheSapphireLeohorrible advice.
Get health insurance before diagnosis.
Wishing you all the best! Hopefully you have a speedy recovery
Beautiful lady, you are ill yet are wanting to help other people. God bless you. I hope and pray that you can make a full recovery.
Thank you so much for talking about the tumor. In 2003 I had a brain tumor (left parietal, Astrocytoma grade 3). I had a resection, 6 weeks radiation and 14 months chemo (Temodar). I no longer take any seizure drugs. I am praying for you. I found that a positive attitude and humor goes a long way. You can do this and it sounds like you have a good support system. Take care and if you ever want to talk I am in Florida.
How are you now
My mom had a meningioma in the same location. Very similar symptoms as well! She had hers surgically removed also. Her symptoms are gone but sometimes she thinks she still has seizures. Also her language is permanently affected but it’s very mild (occasional memory issues for word or concepts). I hope your surgery goes smoothly and I’m and you recover in full.
That is so so interesting. Your Mom is so incredibly strong ❤ I’m so glad that they removed it for her. I will say a wee prayer for her too that any seizures or symptoms goes away for her. Thank you so much for your comment :)
Stay strong, I hope all goes well for you! 👊 🙏