When I got Worse | My MS Story
Vložit
- čas přidán 23. 03. 2021
- Hi. Thank you for listening to my MS story.
If you missed part one and two here's the link:
• Diagnosed with Multipl...
Resources:
MS Society: www.nationalmssociety.org/
Great Summary of what MS is: www.healthline.com/health/mul...
♫ Music by Goosetaf - Bumblebee - thmatc.co/?l=BBDF70C7
i was diagnosed in 1978. I've been through alot but am happy to say I'm an independent old lady. I hope modern medicine will kkhelp to keep MS at bay. Keep positive. Ask for help, if you need it and when you cant walk, kneel.
I’m scared right now. I’ve been having those symptoms you’ve been mentioning right now. But seeing you very beautiful and relax relives my anxiety.
I was diagnosed in 2011 while perusing an art education degree. I just went through a bad exacerbation due to stress. I live in a one bedroom apartment and my dad is 86 so I let him move in to be my care taker so I gave him my bedroom and I sleep on the couch and thought he could help, but he was causing me so much stress which led to a week long flare. I just started Ocrevus a month ago and it seems to be helping. I'm glad you have family around to help you, it truly helps. Stay strong!
ur 86 yr old dad be ur care taker??
@@mishaalzk6033 Hi, nope, had to kick him out and he won't talk to me or my brother now. It's okay because my Bulgarian neighbors have have pretty much adopted me into their family :)
@@mishaalzk6033 No I had to kick him out of my apartment and my live, and now he doesn't talk to me or my brother, but luckily my Bulgarian neighbors have pretty much adopted me:)
Dude your energy is SO positive. It’s so good and refreshing to hear you talk about your approach to it all. Positive thoughts always do win in the end. I’m binge watching your videos atm. Netflix who?
Hi. Haha I agreed with you! Welcome :)
@@sarahkate717 Thanks. Do new subscribers get a gold medal?
@@mrms6524 🏅
@@sarahkate717 You’re a star. I’m going to wear this everywhere I go 🕺🏽
However, your voice is the best in the whole CZcams ❤️
I’m watching your videos because someone I love received an MS diagnosis recently. I wanted to let you know how much I appreciate your videos. Your honestly & transparency will help so many people. Thank you!! God bless you too!!
I’m getting my first MRI in a couple of weeks and your videos have helped me so much 😭 it’s hard not to feel alone with all this weird crap going on. You and I have had so many of the same symptoms and it’s kinda nice knowing I’m not crazy and that these are real feelings that others have had too
Hi Rachel. You are not alone, I hope your MRI gives you answers ❤️
@rachelwilliams1277 What was the result?
Thank you for sharing your story and spreading awareness about MS. I was diagnosed 12 years ago and clearly remember what it was like when I was first diagnosed, it was a very scary time. You are a strong and beautiful young lady.
Thank you, Kim. I hope that learning how to deal with MS became easier with time. Thank you for commenting and helping me to feel that alone :)
I was diagnosed 9 years ago and like you had a rough go of it at the beginning!! Crazy things going on. The right side of my face was symmetrically numb like someone drew a line down the center. The extreme fatigue was awful and leg dragging and going very slow. I love your positive attitude and gratefulness!! I always am thankful that I have insurance and good doctors and medications. and think of all of those that have it in the world that don’t have those benefits and have to be suffering so much. Makes me sad. I am trying many things that are in my control like diet, supplements, etc.
You are so right, we are very fortunate to be able to get the help we need to feel better and at the very least, to have answers... which so many go without for years and years. You are strong, Nicky ❤️
THANK U YOUR INSIGHT & POSITIVE VIEW OF WHAT YOUR GOING THRU. I'M TRYING 2 EDUCATE MYSELF ON MS. I'VE BEEN EXPERIENCING PROBLEMS WITH BODY BALANCE & FALLING AT TIMES. GOD BLESS YOUR STRENGTH & COURAGE ❣️ I PRAY U DON'T EXPERIENCE ANYTHING WORSE THAN WHAT YOU'VE ALREADY BEEN THRU. TAKE CARE ❣️
Im waiting on my MRI in the next few weeks and all this sounds so familiar, the pain, the heaviness, the hug and I can't run to save my life, the wet feeling is so strange mines feels like raindrops or I was convinced my cat peed on my neck when it obviously hadn't. Every symptom you mention I have experienced, hopefully I get answers soon. Your videos are really helping me thank you xx
Late AF but how did it go. I’m having these symptoms as well and I have an MRI in two weeks.
@@brandonearl175 how did it go for you?
Hi Sarah Kate, I am believing God to touch and heal your body!! According to Psalm 103; He healed you and I from all dis-ease!! And heals you, it’s important to understand that we speak creative words and power from God’s word, past, present, and future. The scripture speaks to our past, our present in our future of God’s healing power!!!❤️💕 Our spirit speaks to our psoul, and mind have the power from God to speak to our bodies!! God uses His supernatural to effect our natural!!! With God all things are possible, Sara!!
Thank you Sarah Kate your positivity is infectious 🤗
Thanks so much for sharing your ms experience with us, Sarah! I live with ms for 8 years now, and it’s been hard these last yours, but I’ve faith things will be better, we just need to not give up!
Kind regards! Hope you are doing fine❤️
Thank you for sharing your story, this is so relatable to my diagnosis story. I wish you very good luck and keep us informed.
Finding your story is so reassuring. I am currently going through testing after having my second episode of losing feeling in the left side if my face. I have had many random symptoms previously that made no sense. Your video makes it less scary.
wow i feel so much of this. Again thankful for your video. I know i just commented on another videos of yours. But these videos are so nice to watch when youre scared this is what you could have. On another hand i'd rather have MS than other things that can cause my symptoms. Also nice to hear you have gotten some things back, gives me hope if i wind up having MS. I actually made an appointment to my doctors after watching another video of yours to start getting tested. Very glad to hear you have seen some improvements though. That must have been an awesome feeling. Best wishes to you :D
Of course! That’s exactly why I made these videos. I’m happy you made an appointment. Keep me updated if you feel comfortable, sending you my love!
I am glad that you can get on camera to explain you symptoms that you are having MS. My anxiety is so bad that I stutter and can think straight when I get or an on camera & or know that I am on camera.
I am still in the stages of getting diagnosed with MS but everything is adding up to equal a diagnosis of MS. I have been having the pain, tingling & numbness in my limbs along with memory issues.
Thanks for sharing your story Sarah. I was diagnosed 4 years ago and have had many similar symptoms.
You have the best attitude. I have been dealing with a flare for the last few months. I am glad you are doing well. I hope you are still doing good. Thank you for the reminder that things can get better, even if it takes forever.
I hope you are and continue to be well! :)
I was diagnosed in 1999. Thanks for sharing your story! I can definitely relate. I am having some new symtoms so I may be changing meds. I share my MS journey as well on my channel. Wishing you well, my fellow MS Warrior.
Thank you so much for this. Your positivity is very encouraging. Im sorry you have to get through this. Best of luck for you. God bless
Thanks for sharing. I suffer from ppms , you are not alone…
You are so positive, my daughter just got diagnosed with MS, so this video is helping me understand. Thank you.
You described exactly what I am experiencing I had symptoms probably since my teens the symptoms were with jogging I would suddenly trip eating dirt with my face . I couldn’t really pin point why I was getting clumsy more I ran and getting hot I would seem to fall it was my ankles they would get numb and I was spraining my ankles. Then numb hands then feet and I had my body parts something was either freezing tingling vibrating or cramping stabbing pains oh the itching with no rashes . Later on had numbness from feet to my neck couldn’t move it was absolutely frightening. Your right about not knowing where your hands are in space or clutching my hands into fists because of pain in my hands or unable to uncurl my fingers. This MS hits all your body parts . One symptom disappears and new and worse symptom elsewhere would strike !
Im so pleased I found your videos. I’ve just been diagnosed with ms and although I’ve improved from a flare up that started in January Im still struggling a little. Its good to see someone so positive
Wishing you all the best, Gemma
You are so brave. Amazing attitude. Thanks for posting.
Btw, loved the zoom of the kitty.
Thanks for your story. God bless
What a story ... those are some serious symtoms and I connect with so much here. Anyway, sounds rough but you also sound tough to me.
Sarah I am so sorry you have been through so much
your eyes are so pretty xD we are all in this together i was diagnosed in 2020, we have ms ; it does not have us. stay strong
Thank you Axel, we are in this together 💪🏼😌
You're. A. Wonderful young. Lady. Keep. Positive. From. England
Keep updating us pls , bless you
Sarah, your story is almost the same as my sons...he is recently diagnosed with MS.
I have MS2 and I have wondering how you deal with it. Every day was the pain and everything. And I hope you do good if you're a mess. Thank you have a lovely day John will 😊
Im getting my first mri and im nervous!!! Your videos help a lot.
I hope it went well for you!
Thanks for the video. Actually, my worst relapse took like 3-4 months to subside and I had unbearable tingling all over my body to the point I could not go to sleep without a lot of medication. For me, it eventually got better like 60-70% percent but even the remaining part makes me distracted. I still hope to learn to live with it at some point.
All we can do is take it one day at a time, one of my arms is still tingling 24/7 and it is very distracting. I wishing you wake up tomorrow better and each morning after that 💙
Hello Sarah, your description of your symptoms are very similar to my husbands. he was diagnosed last March, but he was having symptom for about 15 years. We knew something was wrong when he had a minor accident on his Motorcycle, he did not get hurt. But, several days later he was numb from the neck down and it stayed like that for 4 months and he had floaters in one eye. After that the PC started the ball rolling he had Uveitis and then the serious dizziness and fatigue. The uveitis was for him the worse, he said he did not have his peripheral vision in his left eye. Thank you for sharing your story, take care and fingers crossed for you go back to dental school,
Thank you Angie, I wish the best for you and your husband!
Wow , your video is great and it's the first time, of all the video accounts of ms stories I have watched, that your relapse sounds very similar to mine. I've had the same of the gradual numbness from feet to neck that lasted a few months. Now after 4 months of uncertainty I'm nearly numbness free, but it's been a journey as you surely know.
I've been wanting to share my story aswell as I think it's important for all of us who suffer from MS to do so , to raise awareness , as it is also difficult for people who don't know what it is like,to hear our stories and experience .
I hope you are doing better now and started a treatment. Thanks for sharing, I think you have given me motivation to do so too. So I might just do it 😅
Hi Julien! I am happy to hear that, and I look forward to watching your story :) I have started treatment and am feeling better each week!
@@sarahkate717 That's great , I'm happy to hear you're feeling better , it's hard to believe that we can get better while experiencing all the symptoms but it does . I am also on treatment now and getting back nearly to normal. Did all this happen to you during the pandemic ? if you don't mind doing me asking . 😊
@@julienjully I am glad to hear that you are too! I know what you mean, I thought that it would never get back to normal at some of the points I was. And I’m still not quite there but getting closer. Yes I was diagnosed in October 2020… It was quite the year Julien hahah
@@sarahkate717 yeah 😅 its been quite a year alright , you've said that one right!! Now when I say I'm better I'm not completely better either , my hands are still very stiff at times and the numbness can be really good ( if it is ever good 😂) and sometimes worse . it's seems to be sooooooo slow to leave . So you for you it started in October, that's seven months 🤔 what symptoms still remain now after that amount of time ? have you had any weird pressures in your head at times ?
sorry if I am hassling you , it's the first time I've reached out to someone else with MS and it's kind of nice , especially that from your story resembling mine in terms of the build up of symptoms 😅. You can tell me to feck off if you want
@@julienjully You aren't hassling me! This is why I made these videos!; o connect with other people with MS. Yes, I still have numbness and mobility loss in my hands. It is very slow leaving but has gotten better over the last month. For instance, I can type with both hands now! I get strange migraine like headaches that I never ever got before my flare and haven't been able to pinpoint what might cause them yet. So far, I think it might be when I drink milk which... would be really weird!!!
8:28 on the left side of screen there’s an orb that floats straight down starting from the top in the background that’s caught on the camera, a little ball of white light. You definitely have angels watching over you. Please let me know you received my comment. God bless you and your health ❤
Thank you for your story. I was just diagnosed last yr. I’m 64. I’ve had symptoms since I was 11. Really bad when I was 19. Nobody knew what it was. I went through a lot of what you talked about. I was cutting hair with my arm floating. I was afford if I stopped I would die. But listening to you let’s me know I wasn’t crazy. Thank you again. And thank you for being so positive.❤
You are a beautiful girl. And sound so sweet! You also explain your symptoms so clearing!
Hi Sarah, I’m currently awaiting an MRI scan after having several symptoms since March last year. The unknown and uncertainly is causing me to be severely depressed and I’ve spiralled in the last couple of weeks. I don’t know where to turn as currently in lockdown and not working and unable to see friends so feel trapped with my own thoughts. It’s tiring pretending to be okay and not have these symptoms with family. I hope to get answers soon thank you for sharing your story.
Hi Adam, I’m so sorry. It can feel very lonely especially with everything that’s going on. What a time for you to be having to deal with all of this, please know that these feelings will not last forever, that you will be able to see your friends and family soon and meet more people like you to feel less isolated, trapped, or alone. Wishing you the best and for you to have the answers you need
What ended up happening?
Thanks for sharing your story, I am undiagnosed and going for a MRI today. I'm sure its not always the case but seeing you face this head on with a smile gives me hope. I hope and prayer for your journey going forward and hope my kids have your joy when they grow up.
I hope your MRI gave you the answers you were looking for. You are right that it is hard to face each day with a smile, but on the days I have, I've found it has really helped. Thank you for your well wishes and I wish the best for you Donald!
@@sarahkate717 Thanks still in limbo, MRI of head had white spots but radiologist called normal. Have not had a MRI of the spine or been to a neurologist yet. I guess those are the next steps. I feel like the everyone thinks I'm crazy now. I don't think my wife thinks I am at least haha.
@@donaldkelly6694 it is good to have a strong support system of friends and family. I am glad that your MRI was normal but I hope that you can get answers soon
@@donaldkelly6694 how did it go?
@@donaldkelly6694hey. Did they ever find anything ?
Your so brave
I'm here because I had an extremely scary episode at work a couple weeks ago. I was standing beside a truck talking with someone and when I turned to walk away I got super dizzy. My entire body started trembling as I was walking. My heart started racing. My limbs started tingling, my speech was trembling/choppy and my vision was extremely blurred. I couldn't focus on anyone talking to me. It lasted for a couple hours. I was sent to an urgent care and by the time I got there I was coming out of it. So everything checked out fine. For a couple days after I felt off. I had memory issues and felt like I just wasn't all there. Some of it I thought was anxiety and fear of not knowing what was going on. I still don't know what happened but I'm trying to educate myself with some videos. Thank you!
Any updates on your condition?
sounds like a panic attack
That must’ve been scary! I’m so sorry 😞
Well not diagnosing, but the first time I had a silent migraine with aura it scared the s out of me- sounds similar but different to what you experienced- I had numbness in my hand too and difficulty speaking 1/2 hr into it.
After years of experiencing this I’m pretty sure it was linked to my menstral cycles.
Peace
You couldn't be anymore beautiful!
YOURE VERY PRETTY.
So happens a burgeoning protocol of treatment for MS and Neurovascular Disease CCSVI Venous Angioplasty to fix mechanical Vascular issue and stem cell therapy to repair neurological damage caused by leaky narrow malfotmed Veins! #VagusNerve
Keep in Mind!
If you hadn't noticed apparently an Individual undertaking Venous Angioplasty treating CCSVI can require up to 3-4 treatments to notice any impact. Even if a miraculous outcome is noted Symptoms can return and an additional procedure may be a benefit!
So happens a burgeoning protocol of treatment for MS and Neurovascular Disease CCSVI Venous Angioplasty to fix mechanical Vascular issue and stem cell therapy to repair neurological damage caused by leaky narrow malfotmed Veins! #VagusNerve
you're so pretty!!!
Thanks for sharing your story
Hello, I hope you respond. I'm hoping to see a neurologist soon. Scared and trying to keep it together. What kind of treatment did you do? I've been battling for over two years and doing physical therapy weekly. Crazy leg symptoms and itching in my head. Feels like bugs. However, my husband looks and finds nothing! Thanks for sharing! I wish you the best!
He’s the same age as you too!
Please give him my best!
totally unrelated to the content but i have a crush on you lmao
thanks for sharing.
My Dr thinks I have MS but my neurologist who diagnosed my PNES thinks it's just that. Things keep getting worse and I have the eye pain, weird lip spasms (back spasms), itchy everywhere like bugs are crawling all over me, tired all the time, pain in the back of my head that feels like it's burning, I just noticed the hug feeling, bladder retention (lots of UTIS), numbness and tingling, I stumble, my wording is stutter or slur words, and my vision gets blurry. Dizziness...my legs are currently feeling pins and needles. I can't feel the tips of my toes or fingertips., Extremely intolerant to heat. Loss of taste? I'm so lost....I get Medicare in August but things are just getting worse and I'm scared because I know someone who is unable to function at all. I tried to grab a cup while looking at it and pushed it off the table. I also tried to grab someones plate and they were holding their fork towards the plate and instead of grabbing the plate I kinda stabbed my hand slightly. There was something that happed like that a few months ago where I was handing someone their drink from cup holder and accidentally hit the driving stick into neutral. Thankfully it wasn't reverse but if I hit it harder it could have been. X.x sorry for the long thing I wrote...
Your story give us the idea the process of how you use your body and how your body talk to you. we foucs on the MS or other name rather understand the message from our body. all your symptoms tell the different blockage level and area of supply. I learned from healing my long time chronic pain and healing others, I believe the nature healing will help get rid of pain and numbness.
Hi SARAH ! when you talk about your itching , did it randomly just show up or did rub your skin and then it got itchy. rash or bumps, or just itched for no apparent reason? thanks for all your info :)
Hi there! It would randomly show up!
Hi I know it’s been about a year that you posted this but I’m just seeing this. I wanted to ask you I also have a MS . And my hand also does that I almost got the same symptoms as you, so may I ask what did you do to help your symptoms
How many lesions in brain and/or spine did you have upon diagnosis?
Have anyone had vertigo before at all???
Going through that now.
in September 2020 i was diagnosed with MS and went completely blind. then i got plasma exchange and within a few weeks i could see again, but my vision is impaired now. its been about 9 months and i’ve definitely had many improvements, but i had a terrible flare and no one knows what to expect. i’m scared every day of my life. i’m 25 and was just starting my life and now i don’t know what will happen to me. how have you been doing? what are your thoughts on recovery?? i’m very scared
Miranda, thank you for sharing that with me. MS can be terribly scary and hard to predict. I am so happy to hear that you had some improvement after your plasma exchange, but I am so sorry that this happened in the first place, I'm sure it was terrifying. You asked how I have been doing: and after my big scare where I also lost some vision and the ability to control some of my limbs... I STILL was able to re-gang those functions when I was almost certain that they were gone. It did take about seven months of healing and I still have some numbness, but from what I know about MS is that in most cases it does take time but you will see improvement. I'm very sorry that you're scared and I completely understand but please know that you have my support and so many others in the MS community. We will get through this together
@@sarahkate717 thank you for sharing your story. it really helps to know i’m not alone. it’s so hard to not be scared i kind of just want to fast forward to a better time in my life. i really miss who i was before this happened. because of my vision loss, i can’t drive anymore, at least for now until i regain more vision back. how is your vision now? being in the prime of your life and suddenly having such a life altering event happen is horrible. but i’m really glad you’ve had a lot of improvement. i’m just counting the days until i get better and i’m sure you’re anxiously awaiting the day you can put this all behind you too ❤️
@@mirandazapanda my vision is back 100%, although I only had partial vision loss/ sportiness in one corner of my right eye. I know it can be so scary, but all we can do is take it one day at a time. This experience really humbled me and made me so grateful for the things I do have and the reminded that we shouldn’t take any day, especially a day in our 20s, for granted. We have long lives ahead of us Miranda!
@@sarahkate717 Hello lm lraq..8years my MS
I’m curious to know, did you get better by medication or did the symptoms just went away on its own?
❤🙏💕
in relationships do you think if both have ms is easier?
😍
Hey there! What type of treatment are you on?
Ocrevus!
Bful girl