MS Update: Is my Medicine still Not Working?
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- čas přidán 2. 06. 2024
- Thank you for listening to my MS story.
If you missed part one here's the link:
• Diagnosed with Multipl...
MS videos playlist:
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Resources:
MS Society:
www.nationalmssociety.org/
Great Summary of what MS is:
www.healthline.com/health/mul...
Music:
♫ Music by Goosetaf - Bumblebee - thmatc.co/?l=BBDF70C7
▬ Contents of this video ▬▬▬▬▬▬▬▬▬▬
0:00 - Intro
1:53 - Reading my MRI Results
4:16 - Meeting with my Neurologists
13:35 - Thank YOU!
1,346
I am 73 yrs old with ms since I was 19. Still walking and healthy. Wasn't on meds til 2006. Best of luck with ur ms.
thats amazing, any advise were u on any medication?
I am 70 just dying to get meds and feel better, why did u go off your meds?
@@mzvictoria8842 I was non ocrevus for over 3 years and felt great and no new legions from mri scans. But, in the last year I had numerous utis for no real reason. My neurogist felt it was safe to get off ocrevus and see how I do. So far so good but I need a new mri to know for sure.
I’ll keep you updated. Best of luck with this disgusting disease. I’m
Thank you for commenting, keep us updated please!!!
That's Great! You are the 1 out of 10 of those with MS that didn't effect you greatly!
Video to relevance
czcams.com/video/ReLU-rEUivA/video.html
Hope your still doing well
This woman is a warrior
I hope you’re still doing well!
Hi Seb there, please have your digestion and gut microbiome checked to see if you have any problem.
I have had lots of symptoms of ms over the past 6 months and even years prior to that, started as tingling in my arm, tingling lower legs and feet, slightly blurred peripheral vision, dizziness, sensitivity in bladder, fatigue, etc...
I waited for my 'urgent' neurology appointment for 5 months.
In meanwhile I've done lots of research about ms and connection with your gut health and I've decided to take healing in my own hands(didn't have much of a choice).
I've had some specialized stool test and gut test done to uncover what is the matter with my digestion as I've had IBS for yours and never would I have thought that it could mess up so badly with whole body and even nervous system.
I've found that I have sibo (small intestinal bacteria overgrowth) and bad gut dysbiosis. I'm now taking some antimicrobials to deal with it.
My symptoms of ms have been slowly getting better/disappearing. I'm still sometimes experiencing buzzing feeling in my feet but it's getting less as my digestion improves.
Recently I've been finally sent to have MRI for my brain and spine and they found nothing, which was a massive relief.
There is a definite connection of ms and gut dysbiosis and I believe that lots of people can combat this scary condition by completely healing their gut and a healthy lifestyle. I read a few books by people who managed to heal from ms.
Just wanted to say, don't give up and think you need to live with this.
Investigate what is off with your body otherwise and focus on healing all aspects of your life which is not in balance.
It's a long journey but I really believe it can be done.
I started by googling people who overcame it and that gave me a hope. People like that are around, even if medical doctors will tell you otherwise.
Glad to hear!
I'm also a brain tumour survivor, they found an 8 ball size brain tumour while looking for MS during lockdown and MS.
So I'm still learning alot, ty fir tour video.
Hi Sarah :) I hope you are still doing well? I will hit the sub button so I can catch your next video, I love seeing you smile and hearing your positivity. I am not diagnosed with MS, I was diagnosed with POTS last week and am going for a brain MRI Tuesday. The POTS may or may not exist, but I know there is something much more serious going on. I am very dizzy 24 hrs per day, much worse when I am upright and/or in the heat and I have to use a cane to walk ( I still fall a lot. I am almost blind in my right eye and getting worse, I have numbness in my right arm, right hand and left leg. I have HORRIBLE pain behind my eyes, ears ringing, high blood pressure and more........ Anyway, you seem to be as beautiful on the inside as you are on the outside and we need more people with your attitude to be in healthcare. You rock, God bless you and yours......
P.S.... I hope you kept the Trader Joes shirt ;)
I switched from tysabri to ocrevus due to JCV. Been on ocrevus for a year now and feeling good. No new lesions or side effects so far. I also mostly eat an anti inflammatory diet. Glad to see you have a great attitude. Best of luck on your MS journey.
Your videos are great. Thank you. Hopefully you are well and we can get further updates.
Vitamin D Queen! Merry Christmas Sarah
Good news! Congrats and hi I'm new here. I have PPMS I'm in a clinical trial here in Greece where I'm taking Fenebrutinib or Ocrevus or placebo. I think the Ocrevus is the original. I will have my MRI results 4th of January :) Hope it will all go well.Have a great day you and your boyfriend! Hello from Greece :)
edit:I don't have news from the MRI cause it's clinical trial. My doctor can't say anything to me and the results go to the company that made the drug..But I feel the stabilization already....
GO SARAH! thank you for sharing 💛
Great news! Merry Christmas!
You are such a light! Praying for you Sarah Kate!
This was good news! Congratulations!
Such wonderful news. Happy Christmas, and an even better New Year!
Just found your channel. Thank you for sharing your story, and I’m thrilled for you that you received good news! I was diagnosed with MS in 2020, and I’m still learning and trying to navigate all that comes with MS. Your videos provide much needed support. Thank you, and have a wonderful and healthy 2023!
Great Info!!! You’re such a Super Strong Person!!
Hooray! Glad you are doing well!
I wish you all the best honey!!! Sending lots of positive energy!!!
Thank you for making this, MS can be so isolating.
I'm so happy for you 🤗
You're amazing!! 😍😍
Your perseverance is such an encouragement to all of us!!
You are such an inspiration. Thank you for sharing.
Your a sweet heart..keep feeling strong and happy.
Yay, so happy to see you again!!! You look beautiful as ever:) Getting these reports can be so unnerving to say the least. I know. On Kesimpta for almost a year and feel pretty good. I am going skiing so that's a plus right?! It's not easy with all that goes along with MS, but so grateful we have medicine's along with everything else we do to stay well. Thanks so much for the updates & Merry Christmas & best to you always:)
I hope your medication works better now! I wish you all the best in your life! ❤️
thanks for sharing Sarah, so glad you're doing well :) I have a new scan in January and am hoping there is no new activity. On tecfidera/vumerity now as in the Netherlands Ocrevus isn't standard treatment sadly - they still adhere to the escalation model :/ Hoping things are calm and otherwise will have to swap I suppose! Have a great Christmas :)
Nice to see you here again. And fabulous that your disease process has been controlled by medication. My brother had MS but at that time the medications were very limited. You are lucky now to have several options for meds. Good luck in your career.
Good to see this video after you last video...don't know why I had a faith things will be good for you as as I commented on last video...it good to see you smiling back ...wish you speedy recovery and best of time and health..
hey sarah, i recently found your channel when im in the middle of confusing condition and situation regarding my body. and your video really helps me. your energy and your wisdom encourages me. thank you so much for sharing your stories. it's been 1 year since you last posted. so ive been wondering how are you today. i pray and wish you always well. your are a warrior!
You got this! I just posted an update. Hope you are doing well too!
Sarah I love you so much! Thanks immensely for letting us hear your appointments with the doctors. How incredibly brave to share. When I watch your posts, I feel like I'm watching a movie star. Then I think I'm watching your mother...had to say it! Finally, I realize that I'm watching the grown up version of the toddler that came to visit us in New Jersey, went to the Bronx Zoo, sat with a big, pink bear (as big as you were) and ate something chocolate and got it all over herself! What an amazing person!!! Love you.
I’m so happy for you. Stay strong. The world needs more healthy smiles. 😀
🔥🔥🌄🔥🔥
Hi Sarah, I just found your channel and I want to thank you for such amazing content. My daughter who is a 29 year old medical school student was diagnosed just this November with MS. In one of your videos you mentioned you may be interviewing or speaking to your family and how this diagnosis has effected them. I'm hoping that is coming soon as I am definitely looking for content related to what I can do as a Mom to help my daughter continue to be as fearless and rare and real as you have been through your journey. You are in my thoughts and prayers and I'm so thankful to have found you here. Keep up the good fight, you're worth it.
Thank you for the comment and the reminder, I have had that video for over a year but it was so large to edit, I will work on it next!
You have such a terrific attitude. Thank you for sharing your journey. May I ask which medicine you're on? My husband has MS and he's on Aubagio.
You are such a lovely person, I love your personality, and you're so beautiful. I have a lot of symptoms but I was referred to rheumatology to start with and I'm on the waiting list for neurology. 12 months 😢
I hope you continue to do well! As a dental assistant I can tell you we need more people like you in this profession 😇!🙏🏻
Hi, glad you got good news. I’m in the process of getting tested. Such a long and frustrating ordeal waiting to find out but hopefully I’ll have my answer. My symptoms are left leg constant tingle/sharp jolts up and down my leg and at times my whole left leg going numb and a handful of times waking up to my left arm being numb. I’ve had three MRI’s already on my back multiple bulging discs but there are also lesions on my cervical spine. Dr wants to do yet another mri but of my brain this time to confirm or deny his suspicions which is that I have ms. It’s a scary thought and waiting game but at least I will have a answer to what is possibly going on
Glad to hear you haven’t got any new lesions , and you feel good with the medicine you’re on . Happy holidays
Happy holidays Neil!
Very good news. Well done.
@@sarahkate717 what infusion are you on. My son-in-law is on Ocrevus, not much improvement. Thanks honey.
Whoa! Just watched your new update. Thanks for helping us, the viewers. I'm glad to again see you thoughtfully take on not only MS, but the worry it creates. You have a certain authentic strength about you, which for me is touching. For others, too. I think you're going to be an excellent dentist. You'll form good bonds with your patients and colleagues, I bet. I hope you will share future updates. 💐
Thank you so much, Jeffery! That was very meaningful to me. I’m sure you have that strength in you too 💐
@@sarahkate717 pls don’t stop updating us. U bring a sense of calm and peace to this chaotic and scary disease. Well wishes to you, sincerely. (I agree w u abt this) but I’d rather have and not need than need and not have lol ❤
So so glad all is well it’s always scary Getting new MRI results!!! Happy happy holidays to you and yours!!!
I'm so sorry to read this title. I really hope you have some good news
Just saw the video! Happy to hear about the good news! All the best
How are you doing? I see you haven’t been on for 9 months. Everything okay!?😊
10,000 IU of Vitamin D3 👍
That's what I take too. I've had neuros tell me they recommend 5,000, like trying to talk me into taking less. 10k works for me, so I've continued with that level for years now.
Do you have any vision symptoms like photophobia, distortions, trailing or afterimage
@@SkypeLive My eyes are sensitive to the sun, but I think that may just be because I have blue eyes. I may have afterimage sometimes, but that's about it. Do you?
Hello. I'm checking your channel occasionally to see if you've posted another chapter of your life. I hope you are doing well.
Every time I see your eyes I get happiness and love
Hi Sarah,
Ive just following your journey a friend of mine has been diagnosed with MS, and Im finding information to pass on to her. May I ask what type of MS have you been diagnosed with?
Did you do a heavy metals test? Gadolinium, mercury, aluminium and lead, depending on where they are deposited, can cause MS
What is the medicine you are on? Brilliant news BTW 👏
3:50 you got some moves there, good-looking!
How are you now? I have very similar symptoms thank you
I just posted an update :)
Any updates...thanks.
I just posted an update! :)
Look up Terry Wahls.
What medication is it?
Can you say which medication you like! Thanks
Which medicine are you on ?
Her last scene
What's oh wow with D3 10,000 ? Like that is dangerous. That's what he said. . I take that daily myself. I don't have any auto immune issues. D3 is very important. . My sister in law died of MS at 49. . One thing I can tell you. God is always with us. He holds us in life. He holds our days. Talk to him 📖🔍⚔️🔥 KJV. He's over all the Drs and specialists. Blessings 💞
❤
Aye, it changes a lot, I wrote a book on it, we are on the wrong planet! Chin up lassie :)
Any new updates lovely? Xxxx
I'm a immigrant with no money I'm pretty sure it's ms or worse I cant even get an mri I feel tingling and I don't feel aware of my body movements sometimes its scary but I have come to terms with it my hand gets heavy and painful I just want to know to be sure
Hello 💚 how are you doing this year
Well, thank you!
check it all out, I tell no lies. xx
Vitamin D 50,000 ius and lose any meds.
I pray in the mighty Name of Jesus that you get healed, that God restores your health. Amen.
Please Believe in Jesus and trust in Him. He will free you from all depressions, anxiety’s, pain, suffering, diseases and problems.
He just tells u test results. That's it!!!!
Man you si cute 😊
Sorry "coach"...auto correct so annoying
Are you on a special diet?
You peed yourself say wah.. 😊
How are you doing today?